Thanks for your reply, Murray - I thought this site was great:
Newly Diagnosed With PD
http://spring.parkinsons.org.uk/spnewly.htm
I couldn't connect to the FAQ site - could you check the URL?
The Frequently Asked Questions About Parkinson's Disease
http://etb.ninds.nih.gov/PDFAQ.html
I wasn't suggesting yet another PD web site - but maybe links and
access to some of the "gems" could be expanded and improved. Also
helpful is a short description of what the link is about, if it's not
clear by the title.
Below is a listing of Web sites that Barb Blake-Krebs, who is still
recuperating, and I compiled for the appendix to our book on young onset
PD, Behind the Masks, ( which is still under consideration for
publication - they ask us to "be patient.") It is based on suggestions
from the list and our own favorites, and is open to other
recommendations (especially for non U.S. organizations and young onset
sites) -- or corrections if you note an error, or ommissions. We will
also look through all of Murray's recommened sites. Thanks
Linda
PARKINSON'S DISEASE ON THE WEB
There are at least a few hundred web sites about PD. The following sites
have been recommended by members of the Parkinsn list for being
informative, accurate and up-to-date. Each category is in alphabetical
order.
Subject Directories and Indexes to other PD Web sites : some good places
to start:
Ask Noah: Parkinson's Disease
http://www.noah.cuny.edu/neuro/parkin.html
Index to Parkinson's Disease Information on the Internet.- one of the
most complete and well indexed - compiled by Phil Tompkins, PD list
member.
http://www.pdindex.org
Parkinsonian Links - created and maintained by Art Hirsch, PD list member
http://www.fortunecity.com/meltingpot/farley/817/blynx.html
Parkinson's Web - Massachusetts General Hospital
http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/PDmain.html
(currently under construction)
Young Onset PD Sites
Arlette Johnson APDA Young Parkinson's Information & Referral Center
http://members.aol.com/apdaypd/young/index.html
YOUNG ONSET PARKINSON'S DISEASE : an online article
By Emma Bennion, list member
http://www.parkinsonsdisease.com/lwp/lwp.htm
Young Parkinson's Handbook (online version)
http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/YOPD_Handbook/YOP
D_TOC.html#TOC
"The Young Parkinson's patient" - an article by Dr. E. Montgomery
http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/Support/youngpark
.html
PD Organizations - all of these contain lots of good information, online
publications and links to other PD web sites.
American Parkinson Association
http://www.apdaparkinson.com
European Parkinson's Disease Association
http://www.epda/home.html
National Parkinson's Foundation (NPF):
http://www.parkinson.org.
Parkinson Disease Foundation
http://www.pdf.org/
Parkinson's Action Network (PAN)
http://parkinsonsaction.org/
Parkinson's Association of Western Australia
http://www.quartec.com.au/parkinsons/
Parkinson's Disease Society of the United Kingdom
http://www.shef.ac.uk/misc/groups/epda/parkuk.htm
see also:
The Newly Diagnosed - from the web site of SPRING, (Special Parkinson's
Research Interest Group): official Special Interest Group for Medical
Research, Parkinson's Disease Society of the UK.
http://spring.parkinsons.org.uk/spnewly.htm
Parkinson's Foundation of Canada
http://www.parkinson.ca/
Parkinson's Unity Walk
http://www.parkinsonwalk.org
We MOVE _ World wide Education and Awareness for Movement Disorders
http://www.wemove.org/
World Parkinson's Disease Foundation
http://www.wpda.org/
Other PWP recommended web sites
AWAKENINGS : Current news, treatments, research, links to PD
organizations and support groups from around the world.
www.parkinsonsdisease.com
Current Parkinsn's List E-mail messages: web site maintained by list
member John Cottingham. View the 50 most recent PD list messages
http://www.ionet.net/~jcott/parkmail/maillist.html
Also see John's other web sites, including:
Parkinsn List Drug database - information on PD drugs and interactions
with other medications.
http://www.ionet.net/~jcott/homepage/drugdb/drugdb.html
Parkinsn Archive Treasures
http://www.ionet.net/~jcott/homepage/archive/patp.html
Diagnostic criteria for PD - from the Archives of Neurology
http://archneur.ama-assn.org/issues/v56n1/full/nsa7701.html
James: a site about Parkinson's : List member Simon Cole's website -
the international online PD community, plus other informative links.
http://james.parkinsons.org.uk/
Also see:
Parkinsn List Archives - searchable archives of the Parkinsn List 1994 -
present.
http //james.parkinsons.org.uk/search.htm>
The Parkinson's community on the Internet
http://james.parkinsons.org.uk/community.htm
National Institute of Neurological Disorders and Stroke, NIH
http://www.ninds.nih.gov/
see also: The NIH Parkinson's Disease Research Agenda (March 2000)
http://www.ninds.nih.gov/whatsnew/pdagenda2000/nihparkinsonsagenda.htm
The Newly Diagnosed : Helpful facts and information from the Parkinson
Foundation of Canada.
http://www.parkinson.ca/newlydiagnosed.html
NPF Online Publications: Includes information on nutrition, exercise,
speech, medications and much more.
http://www.parkinson.org/onlinpub.htm
Parkinson's Facts: basic information from the National Parkinson's
Foundation
http://www.parkinson.org/eduindex.htm
The Parkinson's Institute: Parkinson's Disease information
http://www.parkinsonsinstitute.org/parkinsons.html
Parkinson's News From the Front Lines, compiled by Paul Mote - contains
news, writings, etc. by PWP
http://www.coyotewebart.com/parkinsons_news/
PD Rating Scales (progression of the disease by stages)
http://neurosurgery.mgh.harvard.edu/pdstages.htm
the PieNET : the parkinson's information and exchange network - compiled
and maintained by list member Janet Paterson - how to join, what PIEN is
all about, meet some of it's members.
http://www.geocities.com/janet313/pienet/index.html
U.S., Canadian and Australian Support Groups Database, created by list
member Arthur Hirsch.
http://www.fortunecity.com/meltingpot/farley/817/asupport.html
