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Dear Kathy, I have had Parkinson's for 21 or 22 years. I was DXed at age 37. My neurologist, like yours, sent me to a specialist. Ask if the specialist is taking patients, or will he see you once a year. There are several methods of taking Parkinson's medications. One is to not take any as long as you can stand it so you will have enough when you are farther along. Or take it now because a cure is around the corner. Ask about peer counselors. Many Parkinson's treatment centers have them. Ask about protein if they put you on Sinemet. Start an exercise program and keep at it daily! jjjane ----- Original Message ----- From: Kathleen A. Link <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, April 18, 2000 7:27 PM Subject: New Member > Hello. My name is Kathy, and I'm 30 years old, and I am in the process of > being diagnosed with Parkinson's Disease. My neurologist is pretty sure, > but is sending me off to a Parkinson's Specialist next week to confirm. > > If I do have Parkinson's, I have had symptoms for the past 9 years without > knowing it. Thus, when I go to the specialist next week, would like to be > armed with some really intelligent questions and information regarding my > condition in terms of medication, what to do, what not to do etc. > > If you were me, what kinds of questions would you be asking? Do you think > there's any danger of being mis-diagnosed? Ever hear of anybody who was? > > This is all new to me, so I am very respectfully picking your brains. > Thank you, in advance, for any information you can give me.