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linda and yh sometimes it is difficult to take one day at a time when you are young and need to provide for the future of family i am older, of course better, and dont feel the uncertainty/concern/distress which a younger pd would feel it is a difficult confrontation judy >From: Linda J Herman <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: PD Case profiles/history and Janet Reno >Date: Tue, 25 Apr 2000 07:29:59 -0400 > >Dear YH Tan and list, > As you will see each PWP experiences the disease differently, >although it is generaally said that the progression tends to be slow in >young onset cases. There are few statistics on young onset PD, and I >don't know of any databases at this time. I was diagnosed at 45, about 4 >1/2 years ago, and I am still taking small doses of medication and >continue to work. I think Murray's letter offered excellent advice to a >newly diagnosed patient. > Most importantly, I think is to learn as much as you can about PD >and >find a good neuro who is knowledgible about PD, and who will listen to >you. Try to keep a positive attitude, and take life a day at a time. I >think it helps to take positive actions to fight PD and bring us closer >to a cure in whatever way you choose - through political action, fund >raising, education, publicity - there are many different paths. > Did anyone else happen to see Janet Reno on Nightline last >night. She was interviewed of course about the Elian case, but at the end >Ted Koppel stated that his mother also had PD, and recalled she was told >to try to avoid stress. He asked Janet how she was dealing with it. In >her usual manner she replied that it does increase her tremors, but she >doesn't let it stop her, and made it clear she could carry on with her >job. She also stated she has many more "mountains to cliimb." I believe >she is a great role model for other young Parkies, and wish her the best >as she now faces questioning by some hostile members of Congress who are >calling for hearings. > JUst wondering - if this is their way of further postponing action >on issues like drug coverage, patient bill of rights, stem cell research, >and all the rest? >Linda ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com