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bob/cecily/kathy my neurologists answer was 'i cant look you in the eye and say you havent got parkinsons disease' i am to return in a month or so but i now have better knowledge based on material from this site and i am still unsure about the diagnosis as i have symptoms which could be either pd or familial tremors it is very confusing judy >From: Bob Anibal <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: New Member >Date: Wed, 26 Apr 2000 07:42:56 -0400 > >When Cecily was first diagnosed approx 20 yrs ago by a neurosurgeon her >symptoms were very slight. We switched to a clinic that had movement >disorder specialists - the boss neurologist wasn't sure that Cecily had PD >so he took her off sinemet and had her come back in 2 weeks. He then >decided >that she really did have PD and set up a to get battery of tests for free >to be repeated periodically. The only obvious symptom at that time was in >her walking. He said that he had never seen anyone so early in the disease. >Another movement disorder specialist in another clinic about 7-8 years >later wasn't sure either until she had Cec reduce medication for 2 weeks >and >return. >So, these experts are not always sure as they would have us believe. >Bob A. >----- Original Message ----- >From: "Kathy Link" <[log in to unmask]> >To: <[log in to unmask]> >Sent: Tuesday, April 25, 2000 10:19 PM >Subject: Re: New Member > > >Hello. I posted a message about a week ago regarding possible Parkinson's. >Thank you for being so helpful. Your responses helped me immensely in >obtaining information for my appointment with the specialist today. > >You were so helpful, in fact, that I must share my experiences from today, >in hopes that some really good information flies back at me. > >The specialist thinks my symptoms are too mild to actually diagnose as >Parkinson's. And I'm thinking "Too mild? What has to happen here? Shall >I >fall over dead?" Just a little sarcasm. > >She thinks I might be in the early signs of m.s. I think the reason she >thinks it's ms and not Parkinson's is because of my age and gender. The >next thing that I can do is have a PET scan. > >Problem number 1: She's not really sure where the nearest PET scanner is. >Anybody out there know where one is? Preferably in Wisconsin or one of the >surrounding states. > >Problem number 2: How do I get my HMO to pay for it? Threaten to fall >over >dead? Seriously, is there some good buzz words I can throw out to ensure >fiscal assistance? > >Any other obscure tests that I should be asking for? > >Also, I am negotiating with my doctors regarding medication to help me >manage the three major symptoms. Loss of balance, drooling, fatigue. >Anybody out there have good or bad experiences with drugs that control any >or all of these things? > >Thanks much... > > > > >From: "Kathleen A. Link" <[log in to unmask]> > > >Reply-To: Parkinson's Information Exchange Network > > ><[log in to unmask]> > > >To: [log in to unmask] > > >Subject: New Member > > >Date: Tue, 18 Apr 2000 22:27:16 -0400 > > > > > >Hello. My name is Kathy, and I'm 30 years old, and I am in the > > process of > > >being diagnosed with Parkinson's Disease. My neurologist is pretty >sure, > > >but is sending me off to a Parkinson's Specialist next week to confirm. > > > > > >If I do have Parkinson's, I have had symptoms for the past 9 > > years without > > >knowing it. Thus, when I go to the specialist next week, would > > like to be > > >armed with some really intelligent questions and information regarding >my > > >condition in terms of medication, what to do, what not to do etc. > > > > > >If you were me, what kinds of questions would you be asking? Do > > you think > > >there's any danger of being mis-diagnosed? Ever hear of anybody who >was? > > > > > >This is all new to me, so I am very respectfully picking your brains. > > > Thank you, in advance, for any information you can give me. > > > > ______________________________________________________ > > Get Your Private, Free Email at http://www.hotmail.com ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com