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ivan
i have no answer to your distress
here in australia pd month is not even mentioned
we are way behind in most things and awareness is minimal here
other diseases have developed strategies but not pd


judy


>From: Ivan M Suzman <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: PD diagnosed in the USA every 1.9 minutes
>Date: Sat, 22 Apr 2000 05:53:01 -0400
>
>Dear friends,
>
>    In my last post, I showed that ONCE EVERY 2 MINUTES,
>MONDAY THROUGH FRIDAY, 9 AM to 5PM, ANOTHER
>DIAGNOSIS OF PARKINSON'S DISEASE IS MADE IN
>THE UNITED STATES. You can quote me on that subject.
>
>   The P.A.N. says 1 diagnosis every 9 minutes on their Forum flyer
>-this is incorrect math, or a printing error..  Doctors
>are not in their offices 7 days per week, nor 24 hours per day.
>But even if they were, their calculation, based on 60,000 new
>diagnoses per year,  should be 1 in 7 minutes, not 1 in 9. They
>use the same 60,000 new cases per year that I got from the APDA.
>
>   There were precisely 40 "Ken's song" posts in the last 2 days. BUT
>NOONE commented on what I think is a powerful , and truly
>compelling new FACT.  One new American PD diagnosis every 2 minutes,
>Monday through Friday, 9 to 5.
>
>   I tried this out at my APDA support group's literature table
>in the Shaw's supermarket in Falmouth, Maine yesterday.
>The response from shoppers was uniformly that of shock.
>
>AND SHOCK is needed. PD is frightening.  Let's not gloss it over.
>
>THIS IS PD AWARENESS MONTH, people.  Outside of
>Edie Luther, is NOBODY doing anything about Legislation
>or Proclamations of Resolutions or Lawmaking?
>
>Who is writing to editors?  Who is publishing or appearing
>on radio or TV?  Whatever happened to VISIBILITY??
>
>Excuse me- I''m upset because I think some of us have lost
>focus.  Or maybe it's just me-but if I have to fight 30 degrees
>Fahrenheit and SNOW and ice, surely some of you out there
>can organize MORE than a message about Ken's song.
>
>Sorry, folks, but at times, I have to vent.  Barbara Blke-
>Krebs is ill, I am still fignting foreclosure, and I need something
>more than Ken's song to cheer me up.
>
>Ivan Suzman
>50/39/36

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