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ivan where better to vent your frustrations than here judy >From: Ivan M Suzman <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: PD diagnosed in the USA every 1.9 minutes >Date: Sat, 22 Apr 2000 12:30:15 -0400 > >Nancy and all, > >Sorry if I vented too much. I did not mean to sound >mean , or not to recognize everybody's work. It's >just so frustrating struggling for 15 years since >age 35, and my energy has been low and sporadic, >after a long and lonely winter. I guess my exasperation >just crawled out of its hiding place a bit too much. I just >hate this d--- disease and everything it does to rob me >of my freedoms. >Hopefully I'll get re-energized soon-the cold and ice don't help. >again forgive me. > >Ivan > >On Sat, 22 Apr 2000 10:42:15 -0700 Nancy O McCaffrey <[log in to unmask]> >writes: > > Dear Ivan and all, > > > > I just read your letter asking if anyone out there is doing anything > > to > > promote the awareness of PD. I'm sure that none of us will ever do > > enough > > in the eyes of people with PD to speed up the finding of a cure for > > PD. > > > > However, I believe that there are many people working very hard to > > get > > the message out. Many of them do it in a very quiet way and do not > > look > > for recognition from the world. Many support groups actively present > > programs, put out newsletters, appear on local TV shows, etc. > > > > People like Dale Severance, Jim Cordy, the Tuchmans, Carol Walton, > > Joan > > Samuelson,just to name a few, have been doing an exceptional job in > > getting the message out. > > > > Our support group is small in comparison to some others, but we do > > all of > > the things that I mentioned above. We put out a newsletter. Two of > > our > > members appear on TV two or three times a year. Several write > > letters to > > the newspapers. We set up informational booths at Health Fairs. Four > > of > > us do informational programs to groups to explain PD to the general > > public.(We are the M&M Show). We are extremely supportive of each > > other > > within our group which is what a support group should be for! > > > > I write this not to get recognition for our group, but to tell you > > that > > it does not always show when people work hard for their cause. I > > truly > > believe that there are many people doing their best in their own > > small or > > large way. Also many people with PD or other problems can not > > physically > > or emotionally do some of the things you ask. > > > > Many thanks to all of you who continue to work for PD! Keep up the > > good > > work! > > > > May you all be blessed this Easter weekend! > > > > Nancy McCaffrey CG for Ed > >^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > Ivan Suzman 50/39/36 [log in to unmask] :-) > Portland, Maine land of lighthouses deg. F :-) >******************************************************************** ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com