 |
 |
Nancy and all, Sorry if I vented too much. I did not mean to sound mean , or not to recognize everybody's work. It's just so frustrating struggling for 15 years since age 35, and my energy has been low and sporadic, after a long and lonely winter. I guess my exasperation just crawled out of its hiding place a bit too much. I just hate this d--- disease and everything it does to rob me of my freedoms. Hopefully I'll get re-energized soon-the cold and ice don't help. again forgive me. Ivan On Sat, 22 Apr 2000 10:42:15 -0700 Nancy O McCaffrey <[log in to unmask]> writes: > Dear Ivan and all, > > I just read your letter asking if anyone out there is doing anything > to > promote the awareness of PD. I'm sure that none of us will ever do > enough > in the eyes of people with PD to speed up the finding of a cure for > PD. > > However, I believe that there are many people working very hard to > get > the message out. Many of them do it in a very quiet way and do not > look > for recognition from the world. Many support groups actively present > programs, put out newsletters, appear on local TV shows, etc. > > People like Dale Severance, Jim Cordy, the Tuchmans, Carol Walton, > Joan > Samuelson,just to name a few, have been doing an exceptional job in > getting the message out. > > Our support group is small in comparison to some others, but we do > all of > the things that I mentioned above. We put out a newsletter. Two of > our > members appear on TV two or three times a year. Several write > letters to > the newspapers. We set up informational booths at Health Fairs. Four > of > us do informational programs to groups to explain PD to the general > public.(We are the M&M Show). We are extremely supportive of each > other > within our group which is what a support group should be for! > > I write this not to get recognition for our group, but to tell you > that > it does not always show when people work hard for their cause. I > truly > believe that there are many people doing their best in their own > small or > large way. Also many people with PD or other problems can not > physically > or emotionally do some of the things you ask. > > Many thanks to all of you who continue to work for PD! Keep up the > good > work! > > May you all be blessed this Easter weekend! > > Nancy McCaffrey CG for Ed ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 50/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ********************************************************************