 |
 |
It is unfortunately true that there is more than one kind of "Parkinsonism". So when one or the other is mentioned it is in the interest of precision and not to split the community. Carline just had a PET scan to determine whether she can have DBS-STN surgery. Her condition is "atypical Parkinsonism" which presents very much like PD but the glucose metabolism brain function in her case is low while in "ordinary" PD it is high ( above normal). She has many but not all of the usual PD symptoms, poor gait and balance, micrographia, low and slurred speech. She does not have a tremor and no levadopa induced diskinesia.The judgement of the neurosurgeon at NYU is in fact that she is not a candidate for surgery. Indeed every neurologist we have seen has diagnosed her condition as PD which is in fact partly inaccurate. Quote from Ivan: Can anyone suggest why the Neuro Center says that Mr. Ali is fighting Parkinson's "Syndrome?" Is this to suggest he has pubilistic, P.D.-like set of symptoms, and has not been definitely diagnosed? Does the Neuro Center think he has something else, different, instead of P.D.? Where is the Neuro Center? To me, there is a larger issue at stake here. Separating us PWP's by the use of less well-known and somewhat different terminology can fragment our power as a community if we are split up into too many names. Unquote K-F Etzold CG Carline