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> My husband, Bob, (age 49) diagnosed eight years ago, had a Pallidotomy > (rt. brain) 1997, has been on a steady decline sine his DBS STN (rt. > brain also) in January, 2000. He is now in Hospice at home. > > Aside from the fact that he can hardly move anything, he is in terrible > pain... in his calves, thighs, feet, back, neck and arms. He has > difficulty swallowing his pills so I give them in applesauce. > > He is currently taking: > MS Contin 15 mg every 12 hours > Compazine 10 mg > Roxicet 5/325 every 4 hours as needed > Valium 5 mg, twice a day > Artane 5 mg, 3 x a day > Paxil once a day > Seroquel 25 mg. 2 at bed > Senecot 2 in morning, 2 at bed > Quinine 325 mg 2 at bed > Dalmane 15 mg. 2 at bet > > -2 reg 25/100 Sinemet > -3 CR 25/100 Sinemet > - the above at various times throughout the day. > > Obviously the pain meds are not working as he is in such tremendous > pain, I must constantly pick him up (200 lbs) and move him to a > different position, usually to the wheelchair, sofa and back to the > hospital bed again, we do this over and over all day and all night long. > If we are lucky he sleeps 3 straight hours, usually 1 - 2 hours and > again wakes up from the muscle cramps. > > Needless to say this is an extremely difficult time (I feel especially > sad for our 15 yr. old daughter who is living is this horrible ordeal). > The doctors are puzzled by Bob's pain - they do not know why he is in > such pain therefore they are reluctant to prescribe any stronger pain > meds, so yesterday they added the Valium. To me and Bob last night his > cramps seemed to be worse than before the Valium. > > If anyone has any ideas or thoughts we would appreciate it. > Sincerely, > Jackie Gilman > Jackie, Sometimes adding an anti-inflammatory med such as Ibuprofen with the MS Contin helps in problem pain cases. Also, the MS Contin dosage could easily be increased. That is not a terribly high dosage. This is not a prescription, merely a suggestion for your doctor. Good luck and God be with you and your husband. _________________________________________ This message was sent using Conectiv.net WebMail. http://webmail.conectiv.net/