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Does anyone on the list know what the AFOs are that are referred to in the
email below????????  Joan Hartman


----- Original Message -----
From: Private <[log in to unmask]>
To: Ask the Doctor <[log in to unmask]>
Sent: Tuesday, May 02, 2000 8:03 AM
Subject: Re: Balance Problems


> ***A message from Ask the Doctor***
> answer
>   the question appears below
>   approximately 20% of parkinson patients develop difficulty with balance
>   in approximately 1/2 of patients by adjusting medications the balance
> problem can be overcome  in the remainder the balance problem represents a
> loss of what are called postural or righting reflexes and, at present,
> there is no medical treatment available
>   physical therapy and balance therapy are helpful in a few patients
>   deep brain stimulation may be helpful in selected patients and is being
> investigated as a possible treatment
>    without seeing you and examining you i cannot gauge the severity of
your
> postural instability  and therefore cannot make specific recommendations
>     these are issues you must discuss with your doctor who appears
> knowledgeable and sophisticated
> abe lieberman
>
> > I have been diagnosed with Parkinsons for seven years now but realize I
> > must have had it several years before as I started to have difficulty
with
> > walking prior to the diagnosis.  Used to be a very fast walker and then
> > became one of the slowest followed by experiencing an increase in
falling.
> > Have been taking sinemet three times a day 1 1/2 25/250 tablets.  At
times
> > it would seem that I would have to grab the back of my legs with my
hands
> > to get them to move. During my last visit the Dr. prescribed that I get
> > exterior AFO's!.   I fight as hard as I can and continue to think
positive
> > in all instances.  I must say the AFO's has made me feel like a new
person
> > - can almost walk normal  and faster, but IT HAS NOT HELPED THE BALANCE.
> > Just the fact that that my shuffling has almost disappeared when wearing
> > the AFO's makes me feel like a million dollars and gives additional
> > incentive to fight and hope!  But is there anything that can help with
the
> > balance - and it seems worse when standing in a line (even with the
AFO's
> > on). Sometimes I think the will to resist the progression of the disease
is
> > the best available medicine.  Any thoughts on the balance problem?
>
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