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Ivan, for what it's worth, both neurologists I've seen have told me that Mr Ali has pugalistic _______(something) which they combine as a parkinson + disease/disorder which falls into the parkinson syndrome group rather than pd. speaking as someone with pd+, i feel like we are in in a pretty similar boat, and rather than argue about what color it is, I would rather help bail the boat and get to shore so activists such as yourself can continue to raise public awarness of this disease and find the damn cure. sorry to get testy, i am off, fingers dont work right, pain is really ugly, and i was feeling sorry for myself. which is assine since i am luck enough the sinemet will handle the distonia in a bit and i can move around agoin. you have done, and continue to do a wonderful job in raising public awareness. keep up the good work and god bless bob ----- Original Message ----- From: "Ivan M Suzman" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, May 03, 2000 12:37 PM Subject: MUhammad Ali tonight, PWP or not? has "Parkinson's Syndrome"?????? > HiJanet and all, > > Yesterday I checked tonight's opportunity to "chat" > on-line with Mr. Muhammad and Mrs.Lonnie Ali. > A source informed me that Mr. Ali will be on-line, > but that Mrs. Ali will NOT be present > > Please note that, o' blessed world of spelling accuracy, > that I have substituted a "U" in place of the "o" in > his first name. > > Can anyone suggest why the Neuro Center says that > Mr. Ali is fighting Parkinson's "Syndrome?" Is this to suggest > he has pubilistic, P.D.-like set of symptoms, and has not > been definitely diagnosed? Does the Neuro Center think he has > something else, different, instead of P.D.? Where is the Neuro > Center? > > To me, there is a larger issue at stake here. Separating us PWP's > by the use of less well-known and somewhat different terminology > can fragment our power as a community if we are split up into too many > names. > > I thought Mr. Ali has PD, so now what are we supposed to tell the > public? > > Ivan Suzman > 50/39/36 > > On Wed, 3 May 2000 09:38:45 -0400 janet paterson <[log in to unmask]> > writes: > > a reminder from the greater pd cyber-world: > > there will be an online chat at: > > "http://www.webmd.com/" > > Wednesday evening with Mohammad Ali: > > > > Wednesday May 3, 2000 > > 7:00PM EDT to 8:00PM EDT > > The Neuro Center > > The Champion's Fight Against Parkinson's > > > > Sports hero and American icon Muhammad Ali today faces his most > > difficult > > battle -- with the debilitating Parkinson's syndrome. Join him, > > along with > > his wife, Lonnie, for a discussion about the trials and tribulations > > of > > living with Parkinson's. > > > > janet paterson > > 53 now / 41 dx / 37 onset > > a new voice: http://www.geocities.com/janet313/ > > 613 256 8340 PO Box 171 Almonte Ontario Canada K0A 1A0 > > ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > Ivan Suzman 50/39/36 [log in to unmask] :-) > Portland, Maine land of lighthouses 76 sunny deg. F :-) > ******************************************************************** >