Dear listmember:
It's estimated that currently 75% of Medicaid long term care funding goes
to nursing home care. S.1935 (MiCASSA) would redirect more funds into
community based care, and give consumers more choice in the type of care
they receive. As Helen and Charlotte said - please write to your
senators.
Linda
From NRCA website:
[National Rehabilitation Counseling Association]
LEGISLATIVE UPDATE ARCHIVE
Posted on November 19, 1999
Harkin, Specter Introduce MiCASSA
Senators Tom Harkin (D-Iowa) and Arlen Specter (R-Pennsylvania).
have introduced MiCASSA in the Senate as bill number S. 1935.
Senator Tom Harkin Medicaid Community Attendant Services and
Supports Act Introductory Statement November 16, 1999
Mr. President. Today, along with Senator Arlen Specter, I am
introducing the Medicaid Community Attendant Services and
Supports Act. Our bill allows people to have a real choice about
where they receive certain types of Medicaid long term services
and supports. It also provides grants to the States to assist
them as they redirect Medicaid resources into community-based
services and supports.
We all know that given a real choice, most Americans who need
long term services and supports would rather remain in their own
homes and communities than go to a nursing home. Older people
want to stay in their homes; parents want to keep their children
with disabilities close by; and adults with disabilities want to
live in the community.
And yet, even though many people prefer home and community
services and supports, our current long term care program favors
institutional programs. Under our current Medicaid system, a
person has a right to the most expensive form of care, a nursing
home bed, because nursing home care is an entitlement. But if
that same person wants to live in the community, he or she is
likely to encounter a lack of available services, because
community services are optional under Medicaid. The deck is
stacked against community living, and the purpose of our bill is
to level the playing field and give people a real choice.
Our bill would allow any person entitled to medical assistance in
a nursing facility or an intermediate care facility to use the
money for community attendant services and supports. Those
services and supports include help with eating, bathing,
grooming, toileting, transferring in and out of a wheelchair,
meal planning and preparation, shopping, household chores, using
the telephone, participating in the community, and health-related
functions like taking pills, bowel and bladder care, and tube
feeding. In short, personal assistance services and supports help
people do tasks that they would do themselves, if they did not
have a disability.
Personal assistance services and supports are the lowest-cost and
most consumer friendly services in the long-term care spectrum.
They can be provided by a variety of people, including friends
and neighbors of the recipient. In many instances, with
supervision, the consumer can direct his or her own care and
manage his or her own attendants. This cuts down on expensive
administrative overhead and the current practice of relying on
medical personnel such as nurses to coordinate a person's care.
States can save money and redirect medically-oriented care to
those who need it most.
Not only is home and community-based care what people want, it
can also be far less expensive. There is a wide variation in the
cost of supporting people with disabilities in the community
because individuals have different levels of need. But, for the
average person, the annual cost of home and community based
services is less than one-half the average cost of institutional
care. In 1997, Medicaid spent $56 billion on long term care. Out
of that $56 billion, $42.5 billion was spent on nursing home and
institutional care. This paid for a little over 1 million
people. In comparison, only $13.5 billion was spent on home and
community-based care but this money paid for almost 2 million
people. Community services make sound, economic sense.
In fact, the States are out ahead of us here in Washington on
this issue. Thirty States are now providing the personal care
optional benefit through their Medicaid programs. Almost every
State offers at least one home and community based Medicaid
waiver program. Indeed, this is one of Senator Chafee's most
important legacies. He was ahead of his time.
The States have realized that community based care is both
popular and cost effective, and personal assistance services and
supports are a key component of a successful program. And yet
there are several reasons why we have to do more.
Federal Medicaid policy should reflect the consensus that
Americans with disabilities should have the equal opportunity to
contribute to our communities and participate in our society as
full citizens. Instead, our current federal Medicaid policy
favors exclusion over integration, and dependence over
self-determination. This legislation will bring Medicaid policy
in line with our broader agreement that Americans with
disabilities should have the chance to move toward independence.
This bill allows people to receive certain types of services in
the community so that they don't have to sacrifice their full
participation in society simply because they require a catheter,
assistance with medication, or some other basic service.
Take the example of a friend of mine in Iowa. Dan Piper works at
a hardware store. He has his own apartment and just bought a
VCR. He also has Down's syndrome and diabetes. For years Dan
has received services through a community waiver program. But,
he recently learned that he might not be able to receive some
basic services under the waiver. The result of this decision?
He may have to sacrifice his independence for services. Today,
Dan works and contributes to the economy as both a wage earner
and a consumer. But, tomorrow, he may be forced into a nursing
home, far from his roommate, his job and his family.
In addition, our country is facing a long-term care crisis of
epic proportions in the not-too distant future. We all talk
about the coming Social Security shortfall and the Medicare
shortfall, but we do not talk about the long-term care
shortfall. The truth is that our current long-term care system
will be inadequate to deal with the aging of the baby boom
generation, the oldest of whom are now turning 60. Our bill
helps to create the infrastructure we will need to create the
high-quality, community based long term care system of the
future. And it will give families the small amount of outside
help they need to continue providing care to their loved ones at
home.
And, finally, in a common sense decision last June, the Supreme
Court found that, to the extent Medicaid dollars are used to pay
for a person's long term care, that person has a right to receive
those services in the most integrated setting. States must take
practical steps to avoid unjustified
institutionalization by offering individuals with disabilities
the supports they need to live in the community. We in Congress
have a responsibility to help States meet the financial costs
associated with serving people with disabilities that want to
leave institutions and live in the community, and the bill I am
introducing will provide that help.
And so I call upon my colleagues for your support. Millions of
Americans require some assistance to help them eat, dress, go to
the bathroom, clean house, move from bed to wheelchair, remember
to take medication, and to perform other activities that make it
possible for them to live at home. These Americans live in every
State and every congressional district. Most of these people have
depended on unpaid caregivers - usually family members - for
their needs. But a number of factors have affected the ability
of family members to help. A growing number of elderly people
need assistance, and aging parents will no longer be able to care
for their adult children with disabilities.
But they all have one thing in common with every American. We
all deserve to live in our own homes, and be an integral part of
our families, our neighborhoods, our communities. Community
attendant services and supports allow people with disabilities to
lead richer, fuller lives, perhaps have a job, and participate in
the community. Some will become taxpayers, some will do
volunteer work, some will get an education, some will participate
in recreational and other community activities. All will
experience a better quality of life, and a better chance to take
part in the American dream.
I urge my colleagues and their staff to study our proposal over
the break. I hope there will be hearings and action on this bill
next year. And, finally, I ask unanimous consent that the bill,
along with letters in support of the bill, be printed in the
Record following our statements.
