My husband, Bob, (age 49) diagnosed eight years ago, had a Pallidotomy (rt. brain) 1997, has been on a steady decline sine his DBS STN (rt. brain also) in January, 2000. He is now in Hospice at home. Aside from the fact that he can hardly move anything, he is in terrible pain... in his calves, thighs, feet, back, neck and arms. He has difficulty swallowing his pills so I give them in applesauce. He is currently taking: MS Contin 15 mg every 12 hours Compazine 10 mg Roxicet 5/325 every 4 hours as needed Valium 5 mg, twice a day Artane 5 mg, 3 x a day Paxil once a day Seroquel 25 mg. 2 at bed Senecot 2 in morning, 2 at bed Quinine 325 mg 2 at bed Dalmane 15 mg. 2 at bet -2 reg 25/100 Sinemet -3 CR 25/100 Sinemet - the above at various times throughout the day. Obviously the pain meds are not working as he is in such tremendous pain, I must constantly pick him up (200 lbs) and move him to a different position, usually to the wheelchair, sofa and back to the hospital bed again, we do this over and over all day and all night long. If we are lucky he sleeps 3 straight hours, usually 1 - 2 hours and again wakes up from the muscle cramps. Needless to say this is an extremely difficult time (I feel especially sad for our 15 yr. old daughter who is living is this horrible ordeal). The doctors are puzzled by Bob's pain - they do not know why he is in such pain therefore they are reluctant to prescribe any stronger pain meds, so yesterday they added the Valium. To me and Bob last night his cramps seemed to be worse than before the Valium. If anyone has any ideas or thoughts we would appreciate it. Sincerely, Jackie Gilman