My husband, Bob, (age 49) diagnosed eight
years ago, had a Pallidotomy (rt. brain) 1997, has been on a steady decline sine
his DBS STN (rt. brain also) in January, 2000. He is now in Hospice
at home.
Aside from the fact that he can hardly
move anything, he is in terrible pain... in his calves, thighs, feet, back, neck
and arms. He has difficulty swallowing his pills so I give them in
applesauce.
He is currently taking:
MS Contin 15 mg every 12
hours
Compazine 10 mg
Roxicet 5/325 every 4
hours as needed
Valium 5 mg, twice a
day
Artane 5 mg, 3 x a day
Paxil once a day
Seroquel 25 mg. 2 at
bed
Senecot 2 in morning, 2 at
bed
Quinine 325 mg 2
at bed
Dalmane 15 mg. 2 at
bet
-2 reg 25/100 Sinemet
-3 CR 25/100 Sinemet
- the above at various times throughout
the day.
Obviously the pain meds are not working
as he is in such tremendous pain, I must constantly pick him up (200 lbs) and
move him to a different position, usually to the wheelchair, sofa and back to
the hospital bed again, we do this over and over all day and all night
long. If we are lucky he sleeps 3 straight hours, usually 1 - 2 hours and
again wakes up from the muscle cramps.
Needless to say this is an extremely
difficult time (I feel especially sad for our 15 yr. old daughter who is living
is this horrible ordeal). The doctors are puzzled by Bob's pain - they do
not know why he is in such pain therefore they are reluctant to prescribe any
stronger pain meds, so yesterday they added the Valium. To me and Bob last
night his cramps seemed to be worse than before the Valium.
If anyone has any ideas or thoughts we
would appreciate it.
Sincerely,
Jackie Gilman