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On 12 May 2000, at 7:25, Ivan M Suzman wrote: > PD has its own sleep rhythm > > My nights start with meds at 930 PM > and again just past midnight. > > Mine include medications at 330 AM > Sometimes again at 6AM, definitely by 7AM > > Otherwise I become immobilized. > > SO if I have rested enough, I get up at > all kinds of pre-dawn hours. > And sometimes I am most clear-headed and > productive and write more easily on PIEN > at that time of the day. > > My neuro just revealed to me yesterday that > I am the only patient who would be totally > froxen up without nighttime meds.He has > 60 PWP's in his practice of 200 or so patients. > > Maybe it's the tip of the iceberg; there > must be MANY more PWP's like me. > > Murray do you need meds to avoid nighttime paralysis? > Hi Ivan, Rigidity is not a major symptom for me so for the most part I don't take meds during the night and only seem to *require* meds when I start my daily routine. > > What year are you in since diagnosis and onset? > > Ivan Suzman > 50 age now / 39 diagnosis / 36 onset of visible symptoms > :-) > Ivan, I had symptoms at age 38 and went through a year of tests and the *diagnosis* was very indefinite ... I was thought to be possibly in early stages of MS. While this proved false, I still continued the therapy for loss of balance for several years off and on... Other symptoms exhibited over time but they were never dealt with as a package until age 49 when it became obvious that I had Parkinson's. My wife and I were taking ballroom dance lessons and I was *diagnosed* by my wife and my dance instructor. This was of course then taken to my gp and on to a neuro for confirmation. I'm now nearing my 56th. birthday. I still work and don't have a lot of difficulty aside from being slow and having a tremor. I'm left handed and my Parkinson's affects my right side. I do suffer from sleep deficit. Regards ...... murray [log in to unmask] View the Parkinson's Awareness Links at: http://www.geocities.com/janet313/pienet/wwweb/index.html