I am a behavioral medicine psychologist who was diagnosed with PD 9 years
ago while in graduate school. I was experiencing depressive symptoms before
my diagnosis. In addition to sadness and fatigue I was experiencing severe
sleep problems. After my diagnosis, I took a subtherapeutic dose of an
antidepressant to help stabilize my sleep problems. Do those of you feeling
"depressed" also have sleep problems? If so, I would suggest dealing
directly with the sleep. Lack of sleep alone can greatly contribute to
symptoms that look like PD progression - like fatigue, memory slippage,
irritability, sadness.There a medical and nonmedical remedies for sleep
problems. Those of you who need antidepressants, don't beat yourself up.
Depressive symtpoms are caused by low neurotransmitters. You can wait to
build them on your own as you deal with other issues or you can get a jump
start with medication. I believe it is OK to take meds when needed.
After my diagnosis, I continued to feel sadness - I was a self-employed
single parent in just finishing my PhD in psychology. But it was not the
psychology or the medication that has brought me to my current point of joy.
Thank you Chuck for your story of faith in using PD as a teacher for
spiritual growth. My story is similar. I thank God that I slowed down enough
to find out what living was about, even if it took PD to slow me down. My
faith in God's infinite Love gives me the peace of living in the NOW with
celebration and joy. I do not "cope" with my PD, I live and love abundantly.
My witness of joy, even on tough days, has touched the lives of others. They
look at me and feel blessed that they only lost a job or wrecked their car!
And for those that try to feel sorry for me I say "Please don't worry about
me! You could just as easily die of heart attack tomorrow!"
May God bless each of us. And Chuck, just because there's no record of a
healing of PD, there's no reason you or me or anyone else might not be the
first. Spiritual medicine is powerful. My prayers are with you.
Beverly
-----Original Message-----
From: Automatic digest processor <[log in to unmask]>
To: Recipients of PARKINSN digests <[log in to unmask]>
Date: Sunday, May 07, 2000 11:02 PM
Subject: PARKINSN Digest - 7 May 2000 (#2000-397)
=========================================================================
Date: Mon, 8 May 2000 00:08:10 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: depression
In-Reply-To: Charles E Murray <[log in to unmask]>'s message of Sun, 7 May 2000
22:13:49 -0700
Content-Type: Text/Plain; Charset=US-ASCII
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MIME-Version: 1.0 (WebTV)
Chuck, sounds like you do have your stuff together. Congrats on your
sobriety.Your
sprituality definitely shows. Keep up the good work. Your posts are most
enlightening.
Hugs from me to you. Juanita CG for George 74 dx98
=========================================================================
Date: Mon, 8 May 2000 10:29:07 +0100
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Sinead Aungier <[log in to unmask]>
Subject: Non mouse Bridge game for Playstation
MIME-Version: 1.0
Content-Type: text/plain
Hi,
My mother has PD and can't use a PC because she has difficulty using the
mouse. She used to enjoy playing Bridge on our old Spectrum computer, which
doesn't have a mouse, but the Bridge tape got lost. She used to press keys
to select cards etc. As she doesn't know how to use a PC, she'd like to get
a Playstation that would play games that don't need a mouse. I was
wondering if anyone knew where I could get a Bridge game that doesn't use a
mouse at all that can be run on Playstation? If not a Playstatioin one, a
bridge game that doesn't use a mouse that runs on a PC?
Thanks,
Sinead
=========================================================================
Date: Mon, 8 May 2000 06:32:02 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "William A. Parrette" <[log in to unmask]>
Subject: Re: depression
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; charset=US-ASCII
Hi all,
On Mon, 8 May 2000, the digest contained:
> Date: Mon, 8 May 2000 07:40:10 +0800
> From: Dennis Greene <[log in to unmask]>
> Subject: Re: depression
> I have had PD for 13+ years now and I am still sad occasionally - but,
> thank God, not depressed - and certainly not clinically depressed ...
> ... the difference between sadness and depression, far from
> being one of semantics, is profound ... the symptoms
> of PD (in particular the mask with its frozen, down turned, features ) make
> us look depressed it is assumed that we are depressed ...
I'll throw in my $0.02 here and agree with Dennis. Granted,
I've only been dealing with PD for 4+ years, I am far from de-
pressed. Angry at times, sad at others, but not depressed. I
have had bouts of depression -- what felt like profound depres-
sion -- back in my teens. But, my current feelings are far from
what I felt back then.
As I described in my "journal" on my Web site, My "mask-like
face" has been an issue most of my life. And, I would really not
like to have this one feature be one of the things someone used
to decide that I was depressed. I like to call my "mask-like
face" my neutral face as it is there when I am not expressing
emotion -- which is most of the time. :-)
I have heard some *incredible* things about the powerful drugs
used to treat clinical depression. So, I would like to avoid
those drugs as best I can. (As a side note, I was involved with
another on-line group discussion forum a couple of years ago
which had a number of people who were taking some of these power-
ful drugs. I found it interesting that they they came up with a
little piece of jewelry -- a pin -- that they would wear so that
they could identify each other outside of cyber-space in real-
life.) In fact, one of the things that contributes to *my* occa-
sional anger/sadness is that I have never been much of a "pill-
taker." And, now that PD has forced me to be on three different
"pills," in different combinations, four times a day, I get a
little upset at it on occasion.
So, yes, I understand that depression and clinical depression
can be a very difficult thing to endure. But, I would like to
avoid being labeled as such based on PD and facial expressions.
It seems that there are many different PD people with a vast
range of differences in their physical being, their personality,
and their symptoms and features.
Take care ...
Bill--
...who once saw a mime arrested and told he had a right to remain silent.
(\
.___. William A. ....._..._ .......7177 Heritage Dr..(42?)\\_ _/(\ ------+
| _ \__ _ _ _ _ _ ___| |_| |_ ___ .Westchester........| \ 0 0 _\)___ |
| _/ _` | '_| '_/ -_) _| _/ -_).OH 45069-4012......| =(_T_)= )* |
|_| \__,_|_| |_| \___|\__|\__\___|.513/779-0780.......| /"/ ( / |
..... http://w3.one.net/~wap/ .... [log in to unmask] .......+--- <_<_/-<__| ---+
=========================================================================
Date: Sun, 7 May 2000 21:52:55 -0400
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Martha <[log in to unmask]>
Organization: STEWART BROTHERS PHOTO
Subject: Non-PD - Looking for a site
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
A close friend of ours has had stomach cancer for the past couple of
years, and last week they took her off intervenous etc... Her kidney's
started shutting down yesterday, and the Dr.'s (as some are want to do)
aren't exactly forthcoming with information. We're trying to figure out
how long she might last. I figure that as in most things, every
situation if different. Anyway, the point is, I'm looking for site that
might have this kind of information. Any ideas? Thanks in advance,
Martha
=========================================================================
Date: Mon, 8 May 2000 10:55:36 -0500
Reply-To: Mary Watkins <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Mary Watkins <[log in to unmask]>
Subject: Re: Non mouse Bridge game for Playstation
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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I wish I could help you, but that issomething I would be interested in,
also. Lots of times, I have difficulty with the mouse. I did purchase a
track ball to replace the mouse, and that helps a lot. But the more I can
do with the keyboard, the better I like it.
Mary Watkins
59/50
-----Original Message-----
From: Sinead Aungier <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Monday, May 08, 2000 4:33 AM
Subject: Non mouse Bridge game for Playstation
>Hi,
>
>My mother has PD and can't use a PC because she has difficulty using the
>mouse. She used to enjoy playing Bridge on our old Spectrum computer,
which
>doesn't have a mouse, but the Bridge tape got lost. She used to press keys
>to select cards etc. As she doesn't know how to use a PC, she'd like to
get
>a Playstation that would play games that don't need a mouse. I was
>wondering if anyone knew where I could get a Bridge game that doesn't use a
>mouse at all that can be run on Playstation? If not a Playstatioin one, a
>bridge game that doesn't use a mouse that runs on a PC?
>
>Thanks,
>
>Sinead
=========================================================================
Date: Mon, 8 May 2000 10:13:56 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charles E Murray <[log in to unmask]>
Subject: Re: Non mouse Bridge game for Playstation
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Sinead said,
My mother has PD and can't use a PC because she has difficulty using the
mouse
I use a track ball type mouse. That pesky little arrow, with a regular
mouse in my hand, can wind up on the kitchen window, and since I can't
find a way to put icons on the window, I went to trackball with lots of
adjustment for speed, fixing on target places, etc. It was from
Microsoft. Mostly, however, I use laptop (Toshiba) with the little stick
in the middle of the keyboard, and this is much easier for me as I have a
few fingers that don't quiver, plus the little stick has enough
resistance that it doesn't jerk the arrow around too much.
Chuck
=========================================================================
Date: Mon, 8 May 2000 11:04:59 -0700
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "J. R. Bruman" <[log in to unmask]>
Subject: Depression and PD
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
The recent thread on depression from Dennis Greene (hi Digger!) and
Marie McNeely (aka chuck bulch) suggests that I share my own experience.
The problem, IMHO, is specialization: Neurologists who may know a lot
about PD and dopamine may not know as much about depression and
serotonin (5-HT). And psychiatrists who know a lot about depression
and serotonin may not know as much about PD and dopamine.
Early on in my course of affliction with PD, my neuro referred me to a
shrink. The latter, after a few questions, prescribed Prozac, and later,
Zoloft (possibly because I was curious and wanted to try them out). But
after only a couple of days on each, I thought: hey, I don't need this
stuff! Sure, I'm upset to learn that PD will cause a major adjustment
in lifestyle: Give up all the strenuous skiing, climbing, and travel I'd
been anticipating in retirement, in favor of more sedentary amusement?
Face relentless progression of pain and disability? But so does most
everyone sooner or later, with or without PD.
Even without any medical training I realized, in my case, what looked
to two perfectly competent doctors like depression could likely be
just the temporary "down" moodswing from running out of dopamine.
And, 5 years later, I can still cope with those terrible "downs" just
by accepting the situation and, to paraphrase that eminent philosopher-
cartoonist of the 1970s R. Crumb: KEEP AWWWWWWWWWWWN TRUCKIN!! Cheers,
Joe
--
J. R. Bruman (818) 789-3694
3527 Cody Road
Sherman Oaks, CA 91403-5013
=========================================================================
Date: Mon, 8 May 2000 14:24:08 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: clinical depression is NOT depression...
Comments: cc: [log in to unmask]
Mime-Version: 1.0
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which is why i tend to use the term cd
cd = mood disorder
like
pd = movement disorder
its diagnosis is usually quite straightforward
if the individual can answer questions about feelings honestly
of all long term 'disabilities' and chronic conditions and diseases
pd has the highest rate of cd
so there may be a functional neurological link
if someone who does not have the brain chemical imbalance of pd
takes anti-pd meds
they do nothing
if someone who does not have the brain chemical imbalance of cd
takes anti-cd meds
they do nothing
why are meds associated with shame weakness
is a diabetic weak for requiring insulin to live?
am i weak for requiring oxygen to live?
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Mon, 8 May 2000 14:25:58 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: 1800 parkies...
Comments: cc: [log in to unmask]
Mime-Version: 1.0
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means 900 have cd and 900 dont
by all guesstimates
just the facts, ma'am
jp
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Mon, 8 May 2000 19:42:46 +0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Tony Leather at Home <[log in to unmask]>
Subject: Some advice/help appreciated
MIME-Version: 1.0
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Best wishes
Tony
-----Original Message-----
From: Tony Leather at Home [mailto:[log in to unmask]]
Sent: 30 April 2000 20:22
To: L-Soft list server at UofT (1.8d)
Subject: Some advice appreciated
Thanks for this terrific support site - it is great to be able to learn &
share with PWP friends.
I am 54 and dxd for near on 4 years. I only take Ropinerole and follow a
nutritional support programme, together with weekly acupuncture &
fortnightly biofeedback sessions.
I see my doc & neuro as little as is realistically possible. I work full
time as an Education Director and am playing golf, tennis & squash.
Unlike most other PWPs I have spoken to, I have experienced a significant
weight gain and suffer from a lot of pain & discomfort across my shoulders
and in my arms. I thought an exercise programme in the gym might help with
all this - anyone got any pearls of wisdom to impart?
As an afterthought - I suffer from daily headaches - I guess this may be the
Ropinerole - any experiences of this anyone?
Incidentally, there are some great tips for using shortcut keys if you have
difficulty with the mouse - visit http://officeupdate.microsoft.com
<http://officeupdate.microsoft.com/> & download the Office shortcut keys.
There are also some useful tips for customising your keyboard to avoid that
annoying repetition of letters in words.
Stay well
Best wishes
Tony
=========================================================================
Date: Mon, 8 May 2000 15:20:57 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: QT: so
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
there is nothing either good or bad
but thinking makes it so
william shakespeare
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Mon, 8 May 2000 15:28:46 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Clare Wilson <[log in to unmask]>
Subject: Re: Depression and Fatigue
MIME-Version: 1.0
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Dennis, my MDS has recently discussed with me my complaint of
fatigue which has plagued me for months. She maintains that this
is related to depression, and I insist I am not depressed. My life is
busy and full of activities which I enjoy and friends with whom I share
much. But this fatigue has got to go, and I'm stuck with it. Yes, I
feel sad at times, and have many aches and pains, but mostly I go
ahead with my life. My doc didn't suggest an antidepressant nor did
I request one.
What do others do for this fatigue....it's debilitating!
Clare Wilson (69/ 3 )
=========================================================================
Date: Mon, 8 May 2000 16:54:39 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: Depression and Fatigue / cd or pd?
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At 03:28 PM 2000/05/08 EDT, Clare Wilson <[log in to unmask]> wrote:
>Dennis, my MDS has recently discussed with me my complaint of
>fatigue which has plagued me for months. She maintains that this
>is related to depression, and I insist I am not depressed. My life is
>busy and full of activities which I enjoy and friends with whom I share
>much. But this fatigue has got to go, and I'm stuck with it. Yes, I
>feel sad at times, and have many aches and pains, but mostly I go
>ahead with my life. My doc didn't suggest an antidepressant nor did
>I request one. What do others do for this fatigue.... it's debilitating!
>Clare Wilson (69/ 3 )
fatigue is now considered one of the five key symptoms of pd
when i 'run out of steam' i either rest and read for awhile
or take a nap - 30 minutes usually does the trick
there is no more point in 'fighting' pd-related fatigue
than there is in 'fighting' pd-related tremor
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Mon, 8 May 2000 15:45:54 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Mark Steiner <[log in to unmask]>
Subject: dbs
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
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could someone please inform as to the "typical" length of time in the
hospital i could expect to spend when I have a dbs performed on me June 27.
My hospital hasnt been anwering its phones at all today, and I need to know!
Thanx, mark
=========================================================================
Date: Mon, 8 May 2000 17:54:01 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: KF Etzold <[log in to unmask]>
Subject: Re: dbs
Mime-Version: 1.0
Content-type: text/plain; charset=us-ascii
Depends on whether the Stimulator Implant is done on the same day.
K-F Etzold Cg Carline
Please respond to "Parkinson's Information Exchange Network"
<[log in to unmask]>
Sent by: "Parkinson's Information Exchange Network"
<[log in to unmask]>
To: [log in to unmask]
cc:
Subject: dbs
could someone please inform as to the "typical" length of time in the
hospital i could expect to spend when I have a dbs performed on me June 27.
My hospital hasnt been anwering its phones at all today, and I need to
know!
Thanx, mark
=========================================================================
Date: Mon, 8 May 2000 14:32:16 -0400
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: chuck bulch <[log in to unmask]>
Subject: Re: Depression
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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Jo Ann;
That is such a nice message you sent out. You must really be a fabulous
person. Your post appeared to be so full of true concern and understanding
that I felt it was my obligation to post. And since you were the one that
convinced me that I should, it is only proper that you should be the
recipient of the first post I've done freely and not worried about what it
sounded like, or who would reading it, or if the other members were going to
like me.
Thanks Jo Ann for giving me a shred of my self confidence back.
Sorry for taking so long to reply but I'm so far behind with everything.
Marie
M.. Marie McNeely
64/62/60?
Jo Ann wrote:
I believe that depression is prevalant in PWP's. Let's face it. Imagine what
they have to look forward to. Yes, PWP's can vacillate between depression and
happy times. Hopefully, more happy times than not. We cg's suffer from it as
well, because we watch our loved ones go through what
> they go through. All of us, whether PWP or CG, must fight with all the
> strength we have to keep each other "up", and to fight fatigue and
> sadness. This is why this group is so very, very important. Someone
> wrote about dementia in PD's. Yes,the mental acuity demishes somewhat,
> but most of the time the intelligent, articulate, loving person is trapped
> inside a body that no longer functions as it once did, and the frustrations
> and anger causes
> the PWP to react differently than they normally would.
> When I lurk, I read some notes and can tell when a person is "up" and
> some when they are "down". In my years of counselling, I
> learned to hear what a client doesn't say, as much as what they did say,
> and the same thing with reading the postings . This is a wonderful group
> of caring people, and to those with PWP? Keep posting, we like to know
> what's going on, whether its your meds, your feelings, or your doctors,
> and post when you are up and when you are down. We're all "listening.
> Jo Ann from Houston
=========================================================================
Date: Mon, 8 May 2000 18:17:20 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Camilla Flintermann <[log in to unmask]>
Subject: Depression
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
While Peter has never been "clinically depressed" he did experience
dep[ression for a number of years prior to being dxd with PD. Other early
symptoms were memory problems and constipation. No reason for these was
discovered until 1989 when he dxd himself woth PD, which the doc promptly
confirmed.Significant then was stiffness of arms (lack of swing)
cogwheeling of arm, vry minor tremor of right thumb--he still has little
tremor. I tend to suspect that the early depression was a PD-is-coming
symptom but we had no idea at the time. For the past several years he has
taken Prozac, and while it doesn't make him "Bozo the Clown" it does
lighten his mood. I tend to believe it was only partly "situational", as
he didn't know he had PD, and was more a personality trait, never severe
enough for hospitalization, etc. FWIW---
Camilla Flintermann, CG for Peter 82/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
also, on PDWebring at http://members.tripod.lycos.nl/genugten/flinterm.htm
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
And visit the CARE webring at
http://www.crosswinds.net/~caregivers/index.html
=========================================================================
Date: Mon, 8 May 2000 17:24:40 -0500
Reply-To: "Charles T. Meyer MD" <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Charles T. Meyer MD" <[log in to unmask]>
Subject: Re: dbs
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Mark,
I was hospitalized date of surgery until discharge 2 days. In Europe they
have tended to keep people longer to adjust the stimulator while I think
most places in the States have tended toward shorter hospitalizations.
Where are you having the surgery? Good luck!!
Charlie
----- Original Message -----
From: "Mark Steiner" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, May 08, 2000 2:45 PM
Subject: dbs
> could someone please inform as to the "typical" length of time in the
> hospital i could expect to spend when I have a dbs performed on me June
27.
> My hospital hasnt been anwering its phones at all today, and I need to
know!
> Thanx, mark
=========================================================================
Date: Mon, 8 May 2000 18:46:44 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Greg & Suzanne <[log in to unmask]>
Subject: Inderol & Procardia experiences
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
My father, who is 81, has a tremor that slowly developed over nine years.
A year ago, after Dad had a bout with pneumonia, the tremor spread from his
right hand to his right arm & is quite pronounced. He has not been on any
medication for it, but it now is beginning to really bother him, although
he still drives & manages with most things. His doctor suggested that Dad
look into whether he would be interested in taking Inderol & Procardia for
it. We would greatly appreciate any personal experiences with these drugs
& information on any side effects that people on the list have had with them.
Thank you,
Suzanne
=========================================================================
Date: Mon, 8 May 2000 18:47:37 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Barbara Blake-Krebs <[log in to unmask]>
Subject: PAN phone # asap
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Greetings from the Krebs' recovery retreat!
HELP!! Can find no listing in information or web. Would like to contact
tonite or at least give LA friend the contact info. Thanks! 913-677-1195.
Book biz.
Thanks!
Barbara Blake-Krebs 59/44
=========================================================================
Date: Mon, 8 May 2000 16:04:09 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Carole Hercun <[log in to unmask]>
Subject: Re: depression/Clinical Depressiom 101
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Dear Bill: Let me preface this, MY 2 cents worth on
depression, by saying that I enjoy your comments/humor. I
would also like to say I'm glad you're not depressed
because Clinical Depression is a bitch. That said, let me
get up on my soapbox for a little lecture on Clinical
Depression 101. CD is a biological illness like any other.
It has a physical cause-the absence of necessary
neurotransmitters in the brain-and can be managed with the
correct medication. What makes it different from other
illnesses, like diabetes, for example, is that people don't
try to "cope" with their diabetes, or try to "tough it out"
They don't try to "deal" with it. They take their
medication and they feel better.
Ay, there's the rub. Depression is still viewed as a MENTAL
illness and I truly believe that's what scares people into
denial. One of my favorite jobs as a psychiatric nurse is
to run groups for my patients that teach them about their
disease. I try to empower them with the facts and the
knowledge they need to educate themselves-and hopefully
others-about the misconceptions about mental illness.
Sadly, most of my patients will never be able to do this,
but the people on this List are a well-educated group who
should not embrace misconceptions.
Anti-depressants are NOT "happy pills" They simply enable
you to climb up from the hell that is CD into experiencing
the "normal" highs and lows that we call life. They do NOT
have any more side-effects that any other class of
medication (think of the mind-altering drugs most PWPs take
on a routine basis)
Besides, why would anyone want to suffer from a disease for
which a cure was available? Get help IF you need it.
Depression kills. I've seen it.
Carole Hercun, R.N.,C. 53/51/?45
--- "William A. Parrette" <[log in to unmask]> wrote:
> Hi all,
>
> On Mon, 8 May 2000, the digest contained:
>
> > Date: Mon, 8 May 2000 07:40:10 +0800
> > From: Dennis Greene <[log in to unmask]>
> > Subject: Re: depression
>
> > I have had PD for 13+ years now and I am still sad
> occasionally - but,
> > thank God, not depressed - and certainly not clinically
> depressed ...
> > ... the difference between sadness and
> depression, far from
> > being one of semantics, is profound ...
> the symptoms
> > of PD (in particular the mask with its frozen, down
> turned, features ) make
> > us look depressed it is assumed that we are depressed
> ...
>
> I'll throw in my $0.02 here and agree with
> Dennis. Granted,
> I've only been dealing with PD for 4+ years, I am
> far from de-
> pressed. Angry at times, sad at others, but not
> depressed. I
> have had bouts of depression -- what felt like
> profound depres-
> sion -- back in my teens. But, my current feelings
> are far from
> what I felt back then.
>
> As I described in my "journal" on my Web site,
> My "mask-like
> face" has been an issue most of my life. And, I
> would really not
> like to have this one feature be one of the things
> someone used
> to decide that I was depressed. I like to call
> my "mask-like
> face" my neutral face as it is there when I am
> not expressing
> emotion -- which is most of the time. :-)
>
> I have heard some *incredible* things about the
> powerful drugs
> used to treat clinical depression. So, I would
> like to avoid
> those drugs as best I can. (As a side note, I was
> involved with
> another on-line group discussion forum a couple
> of years ago
> which had a number of people who were taking some of
> these power-
> ful drugs. I found it interesting that they they
> came up with a
> little piece of jewelry -- a pin -- that they would
> wear so that
> they could identify each other outside of
> cyber-space in real-
> life.) In fact, one of the things that contributes
> to *my* occa-
> sional anger/sadness is that I have never been much
> of a "pill-
> taker." And, now that PD has forced me to be on
> three different
> "pills," in different combinations, four times a
> day, I get a
> little upset at it on occasion.
>
> So, yes, I understand that depression and
> clinical depression
> can be a very difficult thing to endure. But, I
> would like to
> avoid being labeled as such based on PD and facial
> expressions.
> It seems that there are many different PD people
> with a vast
> range of differences in their physical being, their
> personality,
> and their symptoms and features.
>
> Take care ...
>
> Bill--
> ...who once saw a mime arrested and told he had a right
> to remain silent.
>
> (\
> ..___. William A. ....._..._ .......7177 Heritage
> Dr..(42?)\\_ _/(\ ------+
> | _ \__ _ _ _ _ _ ___| |_| |_ ___ .Westchester........| \
> 0 0 _\)___ |
> | _/ _` | '_| '_/ -_) _| _/ -_).OH 45069-4012......|
> =(_T_)= )* |
> |_| \__,_|_| |_| \___|\__|\__\___|.513/779-0780.......|
> /"/ ( / |
> ...... http://w3.one.net/~wap/ .... [log in to unmask]
> .......+--- <_<_/-<__| ---+
__________________________________________________
Do You Yahoo!?
Send instant messages & get email alerts with Yahoo! Messenger.
http://im.yahoo.com/
=========================================================================
Date: Mon, 8 May 2000 20:07:41 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Paul Lauer <[log in to unmask]>
Subject: test
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Test.
=========================================================================
Date: Mon, 8 May 2000 20:28:14 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: depression/Clinical Depressiom 101
Carole - well said about the depression. We don't hesitate to take
insulin, or thyroid, or hormones, but the stigma of depression is still
that - a stigma. I have CD, but I don't care for the side effects -
nausea, shaking, loss of libido. I've tried 3 different brand names and
they are all the same, so I have to really fight with myself to stay
above it. Sometimes I lose. Thanks for the info. Jo Ann from Houston
=========================================================================
Date: Mon, 8 May 2000 21:30:25 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Paul Lauer <[log in to unmask]>
Subject: Instructions for joining
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Dear list: I had my interview today for the GM-1 Ganglioside study in
Philadelphia along with two other pwps, both of whom have had pd far longer
than I and neither of whom knew of the list. I proselytize for the list
whenever appropriate and promised to send both of them instructions to join.
Here I sit ready to make good and I forgot how. Would someone please reply
with join instructions?
Thank you
Paul H. Lauer
=========================================================================
Date: Mon, 8 May 2000 20:05:21 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: Instructions for joining
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
On 8 May 2000, at 21:30, Paul Lauer wrote:
> Dear list: I had my interview today for the GM-1 Ganglioside study in
> Philadelphia along with two other pwps, both of whom have had pd far longer
> than I and neither of whom knew of the list. I proselytize for the list
> whenever appropriate and promised to send both of them instructions to join.
> Here I sit ready to make good and I forgot how. Would someone please reply
> with join instructions?
>
> Thank you
>
> Paul H. Lauer
Hi Paul,
All you need to do is send a two word + your name message to the Listserv.
To: [log in to unmask]
Subject: leave blank
Body: SUBSCRIBE PARKINSN your first name your last name
Just 2 words followed by the subcribers name,
in your case SUBSCRIBE PARKINSN Paul Lauer
in my case SUBSCRIBE PARKINSN Murray Charters
in your friends case SUBSCRIBE PARKINSN xxxxxx yyyyyyyy
no signature, no subject, and send it to the LISTSERV... not
to PARKINSN....
Use the computer that you want signed onto the List (the LISTSERV
software automatically knows where to send the mail)
It is pretty simple, but computers are not intuitive, so it must be
exactly as stated........ all the best ......... murray
PS: Alternately, you could go to John Cottingham's site AT:
http://www.ionet.net/~jcott/parkmail/maillist.html
and just scroll down and click on the SUBSCRIBE button....
(Subcribe to PARKINSN Now)
For the real full tutorial you could go to Janet's web page at:
http://www.geocities.com/janet313/pienet/5th/basics.html
and read at your leisure...
the subscriptions - the basics
subscription instructions: - the short version
subscription instructions: - the long version
Or..... you could read John Cottingham's subscription tutorial at:
http://www.ionet.net/~jcott/parkmail/sub.html
There are most of the options (there's also Simon's site)
Now what could be easier than that????
:-) ......... murray
[log in to unmask]
=========================================================================
Date: Mon, 8 May 2000 20:34:57 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: PAN phone # asap
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=ISO-8859-1
Content-transfer-encoding: Quoted-printable
On 8 May 2000, at 18:47, Barbara Blake-Krebs wrote:
> Greetings from the Krebs' recovery retreat!
> HELP!! Can find no listing in information or web. Would like to contac=
t
> tonite or at least give LA friend the contact info. Thanks! 913-677-11=
95.
> Book biz.
>
> Thanks!
>
> Barbara Blake-Krebs 59/44
Hi Barbara,
I'm happy to see you back on this forum....
and I'm happy to say I know where the contact info is....
http://www.geocities.com/janet313/pienet/wwweb/index.html
Select WWWeb Resources 03 - Parkinson's Organizations
Scroll down to... The Parkinsons Action Network
Go to their web site and click on contact us...
Scroll down to:
Headquarters
Parkinson's Action Network
840 Third Street
Santa Rosa, California=A0 95404
Voice:=A0
(800) 850-4726
(707) 544-1994
Fax:=A0
(707) 544-2363
E-mail:=A0
[log in to unmask]
I hope this works ....
All the best .................... murray
[log in to unmask]
=========================================================================
Date: Mon, 8 May 2000 18:52:00 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charles E Murray <[log in to unmask]>
Subject: Re: Depression and Fatigue / cd or pd?
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
. What do others do for this fatigue.... it's
> debilitating!
> >Clare Wilson (69/ 3 )
>
>
> fatigue is now considered one of the five key symptoms of pd
>
> when i 'run out of steam' i either rest and read for awhile
> or take a nap - 30 minutes usually does the trick
>
> there is no more point in 'fighting' pd-related fatigue
> than there is in 'fighting' pd-related tremor
>
> janet
>
> A great topic as this is the most difficult and obstructive problem for
me as well, and Requip, a blessing in many ways, has made drowsiness much
worse. Even a 59 I had not learned to nap effectively, but I agree with
Janet that cooperating with the fatigue and doing what it is asking (lay
down and close my eyes) works better than anything else. There are some
drugs less habit forming than amphetamines that can be prescribed and
while my specialist is willing to do so I want see if a peaceful
accommodation can be made before taking that step. I'm sure open to help
in this area, however.
Chuck
=========================================================================
Date: Tue, 9 May 2000 07:55:55 +0200
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Maryse Schild <[log in to unmask]>
Subject: Re: Some advice/help appreciated
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
hello Tony, john who is on 9 mg Requip/day also has headaches. Mainly in
the morning
Maryse cg John 71,11
=========================================================================
Date: Tue, 9 May 2000 00:44:57 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Barb_MSN <[log in to unmask]>
Subject: Re: Depression and Fatigue / cd or pd?
I either take an hour's nap or go to the convenience store and guy
a pint of ice cream to be eaten immediately upon returning home.
Just the anticipation is enough to wake me up! <GRIN>
Barb Mallut (LOVE that Haagan Daz Coffee Toffee Crunch!)
[log in to unmask]
-----Original Message-----
From: Charles E Murray <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Monday, May 08, 2000 8:57 PM
Subject: Re: Depression and Fatigue / cd or pd?
>. What do others do for this fatigue.... it's
>> debilitating!
>> >Clare Wilson (69/ 3 )
>>
>>
>> fatigue is now considered one of the five key symptoms of pd
>>
>> when i 'run out of steam' i either rest and read for awhile
>> or take a nap - 30 minutes usually does the trick
>>
>> there is no more point in 'fighting' pd-related fatigue
>> than there is in 'fighting' pd-related tremor
>>
>> janet
>>
>> A great topic as this is the most difficult and obstructive
problem for
>me as well, and Requip, a blessing in many ways, has made
drowsiness much
>worse. Even a 59 I had not learned to nap effectively, but I
agree with
>Janet that cooperating with the fatigue and doing what it is
asking (lay
>down and close my eyes) works better than anything else. There
are some
>drugs less habit forming than amphetamines that can be prescribed
and
>while my specialist is willing to do so I want see if a peaceful
>accommodation can be made before taking that step. I'm sure open
to help
>in this area, however.
>
>Chuck
=========================================================================
Date: Tue, 9 May 2000 09:09:54 +0100
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Sinead Aungier <[log in to unmask]>
Subject: Re: Non mouse Bridge game for Playstation
MIME-Version: 1.0
Content-Type: text/plain
> ----------
> From: Charles E Murray[SMTP:[log in to unmask]]
> Reply To: Parkinson's Information Exchange Network
> Sent: Monday, May 08, 2000 6:13 PM
> To: [log in to unmask]
> Subject: Re: Non mouse Bridge game for Playstation
>
>
>
>
>
>
>
> Thanks Chuck, That sounds like some very useful information. I'll pass it
> on my my mother.
>
> Sinead
> --------------------
> Sinead said,
> My mother has PD and can't use a PC because she has difficulty using the
> mouse
>
> I use a track ball type mouse. That pesky little arrow, with a regular
> mouse in my hand, can wind up on the kitchen window, and since I can't
> find a way to put icons on the window, I went to trackball with lots of
> adjustment for speed, fixing on target places, etc. It was from
> Microsoft. Mostly, however, I use laptop (Toshiba) with the little stick
> in the middle of the keyboard, and this is much easier for me as I have a
> few fingers that don't quiver, plus the little stick has enough
> resistance that it doesn't jerk the arrow around too much.
>
> Chuck
>
=========================================================================
Date: Tue, 9 May 2000 05:41:36 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: Depression and Fatigue / cd or pd? / alternatives
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At 12:44 AM 2000/05/09 -0700, Barb_MSN <[log in to unmask]> wrote:
>I either take an hour's nap or go to the convenience store and guy
>a pint of ice cream to be eaten immediately upon returning home.
>Just the anticipation is enough to wake me up! <GRIN>
>Barb Mallut (LOVE that Haagan Daz Coffee Toffee Crunch!)
now that's what i call positive reinforcement!
[eggcept in my case it would have to be B&J NewYorkFudgeChunk]
begs renovations to that old cigarette ad, i'd walk a mile for a camel....
janet
who doesn't have any B&J available for breakfast
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Tue, 9 May 2000 05:50:28 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: 55 (count'em, five-five) ever-lovin years!!!
Comments: To: cyber-dad-don mckinley <[log in to unmask]>
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
on may 9th ... umm ...
(lessee 2000 less 55 equals 1945 yikes)
in the year of 1945 don and vivian tied the knot
that started the weaving of the fabric of their lives together
a glorious tapestry of joy and pain, of laughter and tears
i feel blessed
to be able to say they are my heroes
and to be able to wish them the very happiest of anniversaries
with much love
sis
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Tue, 9 May 2000 05:59:47 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: a link to cyber-dad's web page...
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
... among a few others!
go check out his dancing duds!
"http://www.geocities.com/janet313/pienet/6th/members.html"
sis
don's adopted cyber-daughter
aka
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Tue, 9 May 2000 07:23:02 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Judith Richards <[log in to unmask]>
Organization: @Home Network
Subject: NEWS-Special Care Units Help Patients With Brain Diseases
MIME-Version: 1.0
Content-Type: text/plain; charset=iso-8859-1
Content-Transfer-Encoding: 8bit
This is a subject near and dear to my heart...jmr
Special Care Units Help Patients With Brain Diseases
NEW YORK, May 8, 2000 (Reuters Health) - Neurological intensive care
units (Neuro-ICUs) may be more effective in treating severe neurological
conditions than general ICUs are, according to new research.
Study author Dr. Michael Diringer, a neurologist at Washington
University School of
Medicine in St. Louis, Missouri, compared 1,038 patients with bleeding
in the brain
(intracerebral hemorrhage), and after adjusting for age, gender and the
severity of
hemorrhage, found that those admitted to Neuro-ICUs had a 35% mortality
rate as
compared to 40% for those admitted to general ICUs.
Age, the patient's alertness when admitted, and the ICU's familiarity
with the patient's
specific condition were other factors associated with higher mortality.
"In a generalized ICU, they may see a specific neurological problem once
or twice a year,
but in a Neuro-ICU, they see it once or twice a day," said Diringer in
an interview with
Reuters Health.
"The flip side is that it's a very inefficient way to run things," noted
Diringer who points out that hospitals often elect to have one larger
ICU than a bunch of small ones. "In the new
economies of medicine, we're forced to prove the things that we
intuitively think are correct, are in fact correct," Diringer explained.
Although the data indicates that patients in specialized ICUs do better,
the findings are
preliminary and there are many questions left to be answered. For
example, Diringer only
looked at the results from two Neuro-ICUs. "Maybe there is something
special about these
two ICUs that sort of swayed things," said Diringer. "I wouldn't
recommend that anyone run
out and change anything they're doing based on this, but I'd ask that
hospital administrators
pause and think about this. We can't just make arbitrary decisions
because it's more efficient
when it can affect patient outcome."
According to Diringer, the study needs to be replicated and there are
many questions that
still need to be answered in order to make the determination about the
appropriate ICU in
hospitals, such as, "Did people go home?" and "What quality of life do
they have now?"
The research was presented recently during the American Academy of
Neurology's 52nd
annual meeting, held in San Diego, California.
Copyright © 2000 Reuters Limited.
--
Judith Richards, London, Ontario, Canada
[log in to unmask]
Today’s Research...
Tomorrow’s Cure
=========================================================================
Date: Tue, 9 May 2000 06:18:12 +0000
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Phil Tompkins <[log in to unmask]>
Subject: Pneumonia Was: NEWS-Parkinson's disease reduces life span
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Hello,
On 4 May 00, at 8:01, (I'm a little behind) Judith Richards posted:
> WESTPORT, May 4, 2000 (Reuters Health) - Even if their symptoms
> are treated successfully with levodopa, patients with Parkinson's
> disease have a shorter life span compared with the general
> population, Italian researchers report in the April issue of the
> Archives of Neurology.
>
> Dr. Giovanni Savettieri, of the University of Palermo, and
> colleagues identified cases and controls by conducting a
> door-to-door survey in three Sicilian cities. They compared the
> survival of 59 Parkinson's disease patients with that of 118
> controls. In addition, the researchers compared the causes of death
> for each group.
....
> Dr. Savettieri and colleagues found that the primary cause of death for
> both groups was cardiovascular disease. However, "pneumonia was the
> cause of death significantly associated with Parkinson's disease."
....
I think that the risk of pneumonia to us PWPs has not been
sufficiently emphasized. I searched Medline for references to PD
and pneumonia and found abstracts (see below) of several studies
of PWP groups in the US, Japan and Australia in which pneumonia
was the number 1 cause of death. Among non-PWPs in the US,
pneumonia is the 5th leading cause of death for people 65 and
over.
The reason for the high risk of fatal pneumonia to PWPs is that
some of the precipitating conditions, such as aspiration (taking
food or fluid down the windpipe) and immobility, are much more
frequent among older people with advanced PD. PWPs also tend
to be shallow breathers, which I think is also a contributing factor.
There is now a vaccine for pneumococcal pneumonia, which is the
most common and fatal type of pneumonia, and it's a good idea for
all of us to get a shot. More information about immunization is
available from:
http://www.nih.gov/nia/health/pubpub/pneum.htm
The PD/pneumonia studies:
J Neurol Neurosurg Psychiatry 1999 Sep;67(3):300-7. The sydney
multicentre study of Parkinson's disease: progression and mortality
at 10 years. Hely MA, Morris JG, Traficante R, Reid WG,
O'Sullivan DJ, Williamson PM. Medline PMID: 10449550, UI:
99380423.
J Am Geriatr Soc 1999 Aug;47(8):967-72. Postoperative
complications in Parkinson's disease. Pepper PV, Goldstein MK.
PMID: 10443858, UI: 99371458.
Eur Neurol 1997;38 Suppl 2:60-3. Prognosis of Parkinson's disease
in Japan. Tottori University Parkinson's Disease Epidemiology
(TUPDE) Study Group. Nakashima K, Maeda M, Tabata M,
Adachi Y, Kusumi M, Ohshiro H. PMID: 9387805, UI: 98046998.
Neurology 1994 Oct;44(10):1865-8. Parkinson's disease and its
comorbid disorders: an analysis of Michigan mortality data, 1970 to
1990. Gorell JM, Johnson CC, Rybicki BA. PMID: 7936238, UI:
95022201.
Phil Tompkins
Amherst, Mass
age 62/dx 1990
=========================================================================
Date: Tue, 9 May 2000 08:37:48 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Jackie G." <[log in to unmask]>
Subject: Thanks for HELP
MIME-Version: 1.0
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Dear Listmembers,
Thank you so much for all of your quick much needed help. You know, =
when you are in the midst of a crisis you can forget some of the basics, =
like No Compazine. I knew that, I just was not thinking clearly due to =
worry and little sleep - but thanks to you I got Bob off of it last =
Saturday. Yesterday our reg. neuro returned from vacation and he was =
horrified to see that Bob was given Compazine, he was also quite upset =
about the MS Contin (morphine). He stopped all of those terrible meds =
and today Bob is titrating up on Requip. I am quite sure that we =
getting back on track. Thanks again for all of your good advice and =
prayers, I don't know what I would've done without you!
Jackie
CG for husband Bob 49/42/35
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<HTML><HEAD>
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<DIV><FONT face=3D"MS Sans Serif" size=3D2>Dear =
Listmembers,</FONT></DIV>
<DIV> </DIV>
<DIV><FONT face=3D"MS Sans Serif" size=3D2>Thank you so much for all of =
your quick=20
much needed help. You know, when you are in the midst of a crisis =
you can=20
forget some of the basics, like No Compazine. I knew that, I just =
was not=20
thinking clearly due to worry and little sleep - but thanks to you I got =
Bob off=20
of it last Saturday. Yesterday our reg. neuro returned from =
vacation and=20
he was horrified to see that Bob was given Compazine, he was also quite =
upset=20
about the MS Contin (morphine). He stopped all of those terrible =
meds and=20
today Bob is titrating up on Requip. I am quite sure =
that we=20
getting back on track. Thanks again for all of your good advice and =
prayers, I=20
don't know what I would've done without you!</FONT></DIV>
<DIV><FONT face=3D"MS Sans Serif" size=3D2>Jackie</FONT></DIV>
<DIV><FONT face=3D"MS Sans Serif" size=3D2>CG for husband Bob=20
49/42/35</FONT></DIV></BODY></HTML>
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Date: Tue, 9 May 2000 14:00:12 +0100
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Sinead Aungier <[log in to unmask]>
Subject: depression
MIME-Version: 1.0
Content-Type: text/plain
The best cure for depression is to be busy because when you're busy you're
not thinking about how you feel. But also don't overdo things or you'll
tire yourself out. I'd also recommend eating well and getting plenty of
vitamin C and not letting your body overheat especially at night.
Sinead
=========================================================================
Date: Tue, 9 May 2000 06:11:57 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Good News... WAS: Re: Thanks for HELP
In-Reply-To: <[log in to unmask]>
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On 9 May 2000, at 8:37, Jackie G. wrote:
Dear Listmembers,
Thank you so much for all of your quick much needed help. You know, when you are in the
midst of a crisis you can forget some of the basics, like No Compazine. I knew that, I just was
not thinking clearly due to worry and little sleep - but thanks to you I got Bob off of it last
Saturday. Yesterday our reg. neuro returned from vacation and he was horrified to see that Bob
was given Compazine, he was also quite upset about the MS Contin (morphine). He stopped all
of those terrible meds and today Bob is titrating up on Requip. I am quite sure that we getting
back on track. Thanks again for all of your good advice and prayers, I don't know what I would've
done without you!
Jackie
CG for husband Bob 49/42/35
Hi Jackie and Bob,
It's really great to read your Good News... (The red lights were
flashing and the sirens blaring when I read your plea for Help!)
Best regards ............ murray
[log in to unmask]
=========================================================================
Date: Tue, 9 May 2000 06:11:58 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Murray Charters <[log in to unmask]>
Subject: Preparing for Emergencies
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Hi Jackie and Bob,
It's really great to read your Good News... (The red lights were
flashing and the sirens blaring when I read your plea for Help!)
Now get a three ring binder and mark it Medical Information in
Case of Emergency and put in all the pertinent information you
can think up. (Starting with contra-indicated drugs)
Here are a couple of posts from the archives.....
>>> Posting number 66207, dated 19 Aug 1999 00:00:0/
On 18 Aug 99 at 18:14, judith richards wrote:
> Hopkins: Carrying Your Medical History
> August 18, 1999
>
> BALTIMORE (Johns Hopkins) - If you're ever rushed to the
> emergency room, unconscious or unable to speak clearly, what
> would you like the medical team to know about you?
>
> Doctors and nurses need certain information. Helping them get it
> can mean faster and more accurate medical decisions. On a card
> or piece of paper in your wallet, here's what the pros would like
> to know: name and date of birth; name and phone of primary
> physician if you have one; previous hospitalizations and
> surgeries; any medications you take; and family medical history,
> especially things like cancer, diabetes and heart trouble. It
> may seem like a lot, but it's worth it.
>
> "As much information as a patient can give us about their medical
> history, the better it is for them. Because it's all pieces of a
> puzzle [that] help us determine what's going on at the time and
> how we can treat them and make them feel better," says Jean Marie
> Lucas, clinical nurse specialist for the Johns Hopkins Emergency
> Department.
>
> Lucas says some people are hesitant to share their habits and
> histories on paper. But she reminds patients that hospitals are
> there to help, not judge.
>
> Copyright 1999 The Johns Hopkins University. All rights
> reserved.
>
> Judith Richards, London, Ontario, Canada
> [log in to unmask]
Hi Judith,
This is a great idea which was brought forth on this List before
and has been tested and refined over the past couple of years by
myself and I think possibly Geo. Lussier.
As many of you on this list know, I now have a three ring binder
marked "Information for Awareness & Assessment in a Medical Emergency -
Murray Charters".
The first page is tabbed "Medic Alert"... A page that states that I
have Parkinson's. In addition it gives my g.p.'s name & phone #, my
neuro's name and phone #, lists the medication's I take (drug,dosage,
timing) blood type, and allergies.
The second and third pages are tabbed "Personal Data" and list
my name, address, tel.#, fax#, e-mail, my social insurance #, my
Health Care #, my age and date of birth and my language for
communication. In addition my caregiver (my wife) is listed, and the
names, addresses, and tel. #'s of my 5 children and my sister who
lives nearby, under the heading "If You Are Unable To Contact
Caregiver and an Emergency Exists, Please Contact..."
The 4th. 5th. & 6th. pages are photocopies of my prescriptions.
The next several pages are monographs of the medications I take and
are marked with tabs for each individual med.
At the back of the binder are plastic pocket pages tabbed "Pertinent
Phone Numbers". These pages have business card pockets and contain
the following business cards. My g.p.; my neuro; my pharmacist; my
dentist; my optometrist; my physiotherapist; several Parkinson
Resources such as UBC Neurodegenerative Disorders Centre; NPF;
B.C.P.D.A.; my employer; my trade union; my wife's employer; etc.
Each card has a computer generated label "Doctor" "Neurologist"
"Pharmacist" etc. Each label is bright yellow high-lighted. It's
like a very condensed who's who yellow pages customized for one
individual - me!
In the pocket in the binder cover is a photocopy of the latest blood
tests I've had (on the Labs letterhead with their address and phone
#) There is a running log sheet where I mark the date and reason for
any medical related office or hospital visit.
The beauty of this binder is that ALL the information is in one
place, its ALL in plastic protector covers, there are no loose pieces of
paper, it is very portable, and available in an instant. I find it a very
handy reference tool when I want to call my dr. or neuro, etc.
This binder sits under the phone when I'm at home and goes in my
personal carry on bag when I travel.
I have a wallet card that states all my medical info is in a 3 ring
binder and where it should be located.
I recommend that everyone (not just PWP's) should consider organizing
similar databases. Ya never know when it just might be very handy...
Best regards............... murray
>>> Posting number 70844, dated 30 Oct 1999 17:18:03
From: "Nina P. Brown" <[log in to unmask]>
Subject: Re: Hospital info instructions
(I just included an insert in our newsletter that has
the information you wanted.)
The following was adapted from a combination of recommendations
from the Parkinson list, the Wilamette-Columbia Parkinsonian Society guide
and an article by Beverly Steward.
BE PREPARED FOR EMERGENCIES
If you're ever rushed to the emergency room, unconscious or unable to
speak clearly, what would you like the medical team to know about you?
Having Parkinson=92s rarely sends you to the hospital, but it does tend to
complicate your care.
Your neurologist may not be at the hospital; the attending doctors and
busy
nursing staff may not be knowledgeable or have had much experience with
people who have Parkinson=92s. To help avoid a bad experience, plan ahead
and allow the doctors and nurses to make faster and more accurate medical
decisions by having all the information they need readily available. If
they are unfamiliar with Parkinson=92s, there is also the possibility your
symptoms could be misinterpreted and you could be labeled an
=93uncooperative=94 patient or you might get additional blankets for
a chill when you are really shaking from a tremor.
In order to avoid these possibilities, have a card in your wallet
that tells where someone can find comprehensive emergency-hospital
information.
Get a three ring binder and include additional data from the following
suggestions.
* Photocopies of your prescriptions along with monographs of each
medication.
* A page of business cards that include pertinent numbers (pharmacist,
dentist, Parkinson resources, employer, etc.).
* Copies of latest blood tests.
* A running log sheet listing the date and reason for any medical
related office or hospital visits.
* A Living Will, if you have one, and consider having a close family
member get a limited power of attorney to represent you. If you do
have a Durable Power of Attorney for Health Care, have copies to give
the hospital and doctor.
* Have sufficient copies of the following information guide and give
one to your admitting physician, one to the nurse on each shift (4),
one to the attending surgeon if you=92re having surgery and one to th=
e
anesthesiologist.
INFORMATION FOR MEDICAL CARE AND ASSESSMENT
My full name is ______________________________________
Address:____________________________________________
Phone: __________________
Insurance Info: __________________________________
Phone: __________
Social Security No. ______________________
Date of Birth: _________________
DOCTORS
I was diagnosed with Parkinson=92s disease in ________. (year)
It is important to have a neurologist/doctor familiar with my condition.
Family doctor: ____________________ Phone: ________
Neurologist: _________________________ Phone: ________
Other:_____________________________ Phone: ________
EMERGENCY INFORMATION
Blood type: ___________
Allergies: ___________________________________________
Please contact:
Name:_________________________________
Address: _________________________
Phone:_________________________
Name:__________________________________
Address _________________________
Phone:_________________________
Name:__________________________________
Address: _________________________
Phone:_________________________
MEDICATIONS
I must be given my medication promptly at the times specified. If this is
not possible, consult my admitting physician for authorization to
administer my own medication or alternatively, have it administered by my
caregiver. The timing of my medication is very important to help my =93of=
f=94
times. Following are all prescription and over-the-counter drugs I
currently take.
(chart)
Medication
Strengeh Time Taken
Possible Side Effects: nausea, dizziness, mental changes,
confusion, hallucinations, involuntary movements, loss of appetite,
dryness of mouth, lowered blood pressure.
RED ALERT
If I am on Eldepryl, I MUST NOT BE GIVEN DEMEROL.
Eldepryl with Demerol can be deadly! To be safe,
Eldepryl should not be taken for a period prior to taking Demerol.
It is imperative that my attending physicians verify and stipulate this
interval. A number of other drugs may be contraindicated with some I take,
please check it carefully.
ADDITIONAL CONCERNS/COMMENTS/CONDITIONS
for which I am being treated:
___________________________________________
____________________________________________
____________________________________________
____________________________________________
WHAT IS PARKINSON=92S DISEASE?
Parkinson=92s disease is a slowly progressive disorder due to the
accelerated
loss of the brain chemical dopamine (a neuro-transmitter) that activates
the message system controlling movement. Its symptoms are tremors,
rigidity, slowed gait and balance impairment (which may resemble
intoxication, but is not). These worsen and lessen several times a day in
=93on-off=94 cycles. It is important that those who care for me outside of=
my
home have a basic understanding of the disease so that observations and
impressions can be accurately treated as characteristics of Parkinson=92s
and not as personal behavior traits. Please note that stress, anxiety,
lack of exercise and/or the need for rest may worsen my condition.
Therefore, I HAVE CIRCLED PERTINENT INFORMATION AND MY SPECIFIC SYMPTOMS .
Name: _______________________ Room ______ Bed______
MEDICATION
Administer Parkinson medication EXACTLY on schedule.
Without medicine I may become rigid and disoriented.
Response to medication may affect physical therapy timing.
AMBULATION
Have difficulty with balance, stooped posture, swollen feet.
Difficulty walking (a decrease in natural arm swing, short shuffling
steps, difficulty turning).
May freeze and fall. Require help getting started and walking.
Dizziness.
=93On-off=94 symptoms (able to perform one minute, but not the next=97
which may be related to timing of medications.)
ELIMINATION
Urinary problems (hesitancy, frequency, inability to wait, or
incontinence.)
Suffer from constipation, need special diet or other treatment.
Impaction
is a significant danger.
COORDINATION
Tremor, rigidity (cannot open food or other containers easily).
Cannot always repeat a former action.
May not have strength to push call button.
Have slow responses. Have trouble turning in bed.
Dyskinesias (involuntary, unwanted, writhing movements) caused by
sensitivity & over-medication-not to get attention.
COMMUNICATION
Speech problems: low voice volume, slurred indistinct words.
Face shows little or no emotion ("mask of Parkinson=92s").
Depression and dementia from the disease.
EATING & SWALLOWING
Difficulty swallowing. Choke on food. Very slow eater.
Need special diet due to the effect protein has on my medication.
Drooling.
SLEEPING
Trouble getting to sleep. Sleep fitfully.
Have anxiety sweats.
"M. Dawn Legan" wrote:
> Some time ago, an information sheet was put on the list with
> instructions for hospital personnel. I thought I saved it, but can't
> find it. If someone has it, would you mind sending it to me personally
> or republishing it on the list? Thanks. M.Dawn
The roof don't leak when it ain't rainin' but the time to *fix* it is NOW!
Best regards ............ murray
[log in to unmask]
=========================================================================
Date: Tue, 9 May 2000 09:21:28 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: KEN CLEMENTS <[log in to unmask]>
Organization: @Home Network Member
Subject: Bilateral high-frequency stimulation of the subthalamic nucleus (
HPSTN )
MIME-Version: 1.0
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To PIEN Participants:-
I came across a recent article on HPSTN which intrigued me . This new
surgical treatment for PD is reported to be pioneered by a Dr. Alim
Benabid in France and is now being studied somewhere in Canada.
I searched the Parkinson's Archives for more information but came up
blank.
Does anyone have any other leads, more details, experiences ???
Cheers, Ken Clements <[log in to unmask]>
=========================================================================
Date: Tue, 9 May 2000 06:42:50 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: Bilateral high-frequency stimulation of the subthalamic
nucleus ( HPSTN )
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
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On 9 May 2000, at 9:21, KEN CLEMENTS wrote:
> To PIEN Participants:-
>
> I came across a recent article on HPSTN which intrigued me . This new
> surgical treatment for PD is reported to be pioneered by a Dr. Alim
> Benabid in France and is now being studied somewhere in Canada.
> I searched the Parkinson's Archives for more information but came up
> blank.
> Does anyone have any other leads, more details, experiences ???
>
> Cheers, Ken Clements <[log in to unmask]>
Hi Ken,
You might ask Maryse to talk to the Dr. ...
U.J.F., Grenoble, FR:
Alim-Louis BENABID
U.318 INSERM-UJFG
Pavillon B
Centre Hospitalier Universitaire
BP 217
F-38043 GRENOBLE Cedex 9, France
Phone: 33-76.76.56.25
Fax: 33.76.76.56.19
E-mail: [log in to unmask]
all the best . murray
[log in to unmask]
=========================================================================
Date: Tue, 9 May 2000 09:57:45 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Clare Wilson <[log in to unmask]>
Subject: Re: Depression and Fatigue / cd or pd?
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In a message dated 05/09/2000 1:54:27 AM Mountain Daylight Time,
[log in to unmask] writes:
<< > fatigue is now considered one of the five key symptoms of pd
>> >>
Thank you for ALL those responses. Will work it out in my ADLs to
nap briefly and more frequently. You guys are always THERE! Thanks.
Clare
=========================================================================
Date: Tue, 9 May 2000 09:43:08 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Frans van Duinen <[log in to unmask]>
Organization: Master Programmer Group Inc.
Subject: Re: Instructions for joining
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Hi Paul,
Refer them to one of the websites that has the registration instructions, e.g.
http://www.ionet.net/~jcott/parkmail/maillist.html
Paul Lauer wrote:
>
> Dear list: I had my interview today for the GM-1 Ganglioside study in
> Philadelphia along with two other pwps, both of whom have had pd far longer
> than I and neither of whom knew of the list. I proselytize for the list
> whenever appropriate and promised to send both of them instructions to join.
> Here I sit ready to make good and I forgot how. Would someone please reply
> with join instructions?
>
> Thank you
>
> Paul H. Lauer
--
Frans van Duinen
(416) 652-8580
Toronto, Ontario
=========================================================================
Date: Tue, 9 May 2000 09:50:35 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Frans van Duinen <[log in to unmask]>
Organization: Master Programmer Group Inc.
Subject: Re: Depression and Fatigue / cd or pd?
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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Barb, I like your thinking. Here I stopped taking Requip because of the
drowsiness, when I should have clued to the fact that i gave me a medical
reason to eat ice cream!!
Barb_MSN wrote:
>
> I either take an hour's nap or go to the convenience store and guy
> a pint of ice cream to be eaten immediately upon returning home.
>
> Just the anticipation is enough to wake me up! <GRIN>
>
> Barb Mallut (LOVE that Haagan Daz Coffee Toffee Crunch!)
> [log in to unmask]
>
> -----Original Message-----
> From: Charles E Murray <[log in to unmask]>
> To: [log in to unmask] <[log in to unmask]>
> Date: Monday, May 08, 2000 8:57 PM
> Subject: Re: Depression and Fatigue / cd or pd?
>
> >. What do others do for this fatigue.... it's
> >> debilitating!
> >> >Clare Wilson (69/ 3 )
> >>
> >>
> >> fatigue is now considered one of the five key symptoms of pd
> >>
> >> when i 'run out of steam' i either rest and read for awhile
> >> or take a nap - 30 minutes usually does the trick
> >>
> >> there is no more point in 'fighting' pd-related fatigue
> >> than there is in 'fighting' pd-related tremor
> >>
> >> janet
> >>
> >> A great topic as this is the most difficult and obstructive
> problem for
> >me as well, and Requip, a blessing in many ways, has made
> drowsiness much
> >worse. Even a 59 I had not learned to nap effectively, but I
> agree with
> >Janet that cooperating with the fatigue and doing what it is
> asking (lay
> >down and close my eyes) works better than anything else. There
> are some
> >drugs less habit forming than amphetamines that can be prescribed
> and
> >while my specialist is willing to do so I want see if a peaceful
> >accommodation can be made before taking that step. I'm sure open
> to help
> >in this area, however.
> >
> >Chuck
--
Frans van Duinen
(416) 652-8580
Toronto, Ontario
=========================================================================
Date: Tue, 9 May 2000 08:09:35 -0700
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "J. R. Bruman" <[log in to unmask]>
Subject: Re: Inderol & Procardia experiences
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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Greg & Suzanne wrote:
>
> My father, who is 81, has a tremor that slowly developed over nine years.
> A year ago, after Dad had a bout with pneumonia, the tremor spread from his
> right hand to his right arm & is quite pronounced. He has not been on any
> medication for it, but it now is beginning to really bother him, although
> he still drives & manages with most things. His doctor suggested that Dad
> look into whether he would be interested in taking Inderol & Procardia for
> it.
Inderal (propranolol) is a "beta-blocker" drug usually prescribed to
reduce excessive heart pulse rate, but also is approved and used to
control essential tremor. Until now, it hasn't been reported to cause
any motion disorder, but by coincidence, the current Archives of
Neurology (v.57, pp570-571) contains a related case report. My review
(to be in CSR JUN 00) follows:
Palomeras E et al;Arch Neur 2000;57:570-571:
They report a patient receiving gabapentin (Neurontin) to treat
essential tremor. He developed severe dystonia on addition of
80mg/day of propranolol (Inderal), which alone has not been known
to cause movement disorder. Reduction of propranolol to 40mg/day
has resolved the dystonia problem, so they suspect a heretofore
unreported interaction of the two drugs.
Cheers,
Joe
--
J. R. Bruman (818) 789-3694
3527 Cody Road
Sherman Oaks, CA 91403-5013
=========================================================================
Date: Tue, 9 May 2000 11:17:20 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: KF Etzold <[log in to unmask]>
Subject: Re: Bilateral high-frequency stimulation of the subthalamic
nucleus ( HPSTN )
Mime-Version: 1.0
Content-type: text/plain; charset=us-ascii
High frequency stimulation is a variant of STN stimulation. The pulse
parameters are changed, specifically the frequency is changed to a higher
value.
Much of the information in the archives on STN is applicable to High
frequency STN.
K-F Etzold CG Carline
KEN CLEMENTS <[log in to unmask]>@listserv.utoronto.ca> on 05/09/2000
09:21:28 AM
Please respond to "Parkinson's Information Exchange Network"
<[log in to unmask]>
Sent by: "Parkinson's Information Exchange Network"
<[log in to unmask]>
To: [log in to unmask]
cc:
Subject: Bilateral high-frequency stimulation of the subthalamic nucleus (
HPSTN )
To PIEN Participants:-
I came across a recent article on HPSTN which intrigued me . This new
surgical treatment for PD is reported to be pioneered by a Dr. Alim
Benabid in France and is now being studied somewhere in Canada.
I searched the Parkinson's Archives for more information but came up
blank.
Does anyone have any other leads, more details, experiences ???
Cheers, Ken Clements <[log in to unmask]>
=========================================================================
Date: Tue, 9 May 2000 11:18:25 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: Bilateral high-frequency stimulation of the subthalamic
nucleus ( HPSTN )
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At 09:21 AM 2000/05/09 -0400, KEN CLEMENTS <[log in to unmask]> wrote:
>To PIEN Participants:-
>I came across a recent article on HPSTN which intrigued me . This new
>surgical treatment for PD is reported to be pioneered by a Dr. Alim
>Benabid in France and is now being studied somewhere in Canada.
>I searched the Parkinson's Archives for more information but came up
>blank.
>Does anyone have any other leads, more details, experiences ???
>Cheers, Ken Clements <[log in to unmask]>
hi ken
this may be new in some parts
but it's well known in europe
i'm surprised you didn't find anything in the archives...
here are some references from PubMed:
"http://www.ncbi.nlm.nih.gov/PubMed/"
1. Neurol Res 2000 Apr;22(3):237-46
Future prospects of brain stimulation.
PMID: 10769816, UI: 20232649
2. Arch Neurol 2000 Apr;57(4):461-5
Subthalamic stimulation in Parkinson disease:
a multidisciplinary approach.
PMID: 10768618, UI: 20229105
3. J Neurol Neurosurg Psychiatry 2000 May;68(5):595-600
Axial parkinsonian symptoms can be improved:
the role of levodopa and bilateral subthalamic stimulation.
PMID: 10766889, UI: 20229918
4. J Neurosurg 2000 Apr;92(4):615-25
Bilateral subthalamic stimulation for Parkinson's disease
by using three-dimensional stereotactic magnetic resonance imaging
and electrophysiological guidance.
PMID: 10761650, UI: 20222287
5. Neurology 1999 Jul 13;53(1):85-90
Chronic subthalamic nucleus stimulation reduces
medication requirements in Parkinson's disease.
PMID: 10408541, UI: 99335026
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Tue, 9 May 2000 11:21:28 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: Instructions for joining
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At 09:30 PM 2000/05/08 EDT, you wrote:
>Dear list: I had my interview today for the GM-1 Ganglioside study in
>Philadelphia along with two other pwps, both of whom have had pd far longer
>than I and neither of whom knew of the list. I proselytize for the list
>whenever appropriate and promised to send both of them instructions to join.
>Here I sit ready to make good and I forgot how. Would someone please reply
>with join instructions?
>Thank you
>Paul H. Lauer
hi paul
a section of 'a new voice' is devoted to pienet subscription instructions;
from the 'front page', select 'pienet', and then 'subscriptions'.
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Tue, 9 May 2000 10:29:40 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Terry Kempf <[log in to unmask]>
Subject: Michael Fox
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For those of you that can get on the Internet, go to tvguide.com,
and click on TV GUIDE MAGAZINE. There is a fairly long interview
with Michael Fox. He's talks quite a bit about some of his experiences
with PD.
Since I presume the article is copyrighted, it is probably not right
to copy and paste into a letter. It is available on the newsstands here
in the U.S. Michael J Fox is on the cover. The latest issue that just came
out today.
Terry from the Madcity
=========================================================================
Date: Tue, 9 May 2000 11:32:29 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: depression /cd / bootstraps
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
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At 02:00 PM 2000/05/09 +0100, "Sinead Aungier <[log in to unmask]>" wrote:
>The best cure for depression is to be busy because when you're busy you're
>not thinking about how you feel. But also don't overdo things or you'll
>tire yourself out. I'd also recommend eating well and getting plenty of
>vitamin C and not letting your body overheat especially at night.
if this is advice for those suffering clinical depression [cd]
i'm afraid it's not very good advice
dr. david burns describes the single most debilitating symptom of cd
as 'the paralysis of will' - 'keeping busy' just aint in the picture
a friend also told me that
the reason people with cd walk around with their heads hanging down is
they are looking for those 'bootstraps' they are supposed to 'pull themselves up' with
a little education goes a long way
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Tue, 9 May 2000 08:46:54 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Audrey <[log in to unmask]>
Subject: Re: Some advice/help appreciated
MIME-Version: 1.0
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Hi Tony ,
I just read your post and thought the symtoms you describe fit the ones my
friend John has. He told me that he has lost weight over the past year. He
also told me that his shoulders and arms hurt especially his shoulders. He
calls them "sore" which is a good description I suspect knowing him. John
seldom reads the posts but I will forward this to him to see if he will
respond to you, or a least let me know if there is anything I can add to
help you. I hope this is of some help for you ...
*seattle* audrey friend of pwp aussie John 49/42/38 ?
----- Original Message -----
From: " Tony Leather at Home" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, May 08, 2000 4:42 AM
Subject: Some advice/help appreciated
> Best wishes
>
> Tony
>
> -----Original Message-----
> From: Tony Leather at Home [mailto:[log in to unmask]]
> Sent: 30 April 2000 20:22
> To: L-Soft list server at UofT (1.8d)
> Subject: Some advice appreciated
>
> Thanks for this terrific support site - it is great to be able to learn
&
> share with PWP friends.
>
> I am 54 and dxd for near on 4 years. I only take Ropinerole and follow a
> nutritional support programme, together with weekly acupuncture &
> fortnightly biofeedback sessions.
>
> I see my doc & neuro as little as is realistically possible. I work full
> time as an Education Director and am playing golf, tennis & squash.
>
> Unlike most other PWPs I have spoken to, I have experienced a significant
> weight gain and suffer from a lot of pain & discomfort across my shoulders
> and in my arms. I thought an exercise programme in the gym might help
with
> all this - anyone got any pearls of wisdom to impart?
>
> As an afterthought - I suffer from daily headaches - I guess this may be
the
> Ropinerole - any experiences of this anyone?
>
> Incidentally, there are some great tips for using shortcut keys if you
have
> difficulty with the mouse - visit http://officeupdate.microsoft.com
> <http://officeupdate.microsoft.com/> & download the Office shortcut keys.
> There are also some useful tips for customising your keyboard to avoid
that
> annoying repetition of letters in words.
>
>
> Stay well
>
>
> Best wishes
>
> Tony
>
=========================================================================
Date: Tue, 9 May 2000 09:01:55 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Audrey <[log in to unmask]>
Subject: Re: depression /cd / bootstraps
MIME-Version: 1.0
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Only someone who has not had cd would suggest that one who had it should *
stay busy*as a help..If it is about motivation that is a foreign term while
in the dark place we all know who are cd. I get upset when I was advised to
stay busy as if I didn't know that it made sense once, but no longer did in
the worst hours. None of us choose to be cd and can only expect to have our
moods more even with less deep dips in the road. I appreciate the kind
advice in the spirit it is offered, yet all who say this are not helpful no
matter how well meaning. Maybe someone else who has cd has a better
description of the darkness and the fear and despair that is within it than
I have. It needs to be posted for all to see and heed.
*Seattle* Audrey friend of pwp aussie John 49/42/38 ?
----- Original Message -----
From: " janet paterson" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, May 09, 2000 8:32 AM
Subject: Re: depression /cd / bootstraps
> At 02:00 PM 2000/05/09 +0100, "Sinead Aungier <[log in to unmask]>"
wrote:
> >The best cure for depression is to be busy because when you're busy
you're
> >not thinking about how you feel. But also don't overdo things or you'll
> >tire yourself out. I'd also recommend eating well and getting plenty of
> >vitamin C and not letting your body overheat especially at night.
>
>
> if this is advice for those suffering clinical depression [cd]
> i'm afraid it's not very good advice
>
> dr. david burns describes the single most debilitating symptom of cd
> as 'the paralysis of will' - 'keeping busy' just aint in the picture
>
> a friend also told me that
> the reason people with cd walk around with their heads hanging down is
> they are looking for those 'bootstraps' they are supposed to 'pull
themselves up' with
>
> a little education goes a long way
>
> janet
>
> janet paterson
> 53 now / 41 dx / 37 onset
> 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
> come visit my website "a new voice" at:
> http://www.geocities.com/janet313/
>
=========================================================================
Date: Tue, 9 May 2000 11:45:06 -0500
Reply-To: "Charles T. Meyer MD" <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Charles T. Meyer MD" <[log in to unmask]>
Subject: Re: depression /cd / bootstraps
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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Janet,
I agree with you regarding clinical depression. When someone gets
clinically depressed they have already passed the point of pulling
themselves "up by their own bootstraps", Sinead is confusing being
discouraged with CD a common but often serious error. Clinical Depression
is an illness which can be as or more debilitating as PD. It can lead to
suicide or withdrawal of massive proportions with the person suffering with
it having no idea that it is occurring since one's perception is altered by
the illness.
I practiced psychiatry for about 23 years prior to my disability with PD. I
also have been treated for CD and have a number of people in my immediate
family who have had severe depressions. Sinead, I think that if your
cure works for someone then it is unlikely that they have CD but rather they
are dysphoric and blue.
The signs and symptoms of Clinical depression: (Not all need to be present)
1. Dysphoric (blue) mood
2. General feeling of pessimism- glass is half empty rather than 1/2
full
3 . Change in appetite especially loss of appetite and weight loss
4. Sleep disturbance (either too much or too little ) especially earlyAM
awakening**
5. Low energy **
6. Tearfulness
7. Loss of interest in most activities
8. Decrease in ability to experience anything as pleasurable (e.g. loss
of libido)
9 Low self esteem sometimes the point of suicidal thoughts
10. Decreased concentration**
11. Feelings of hopelessness**
12. Motor agitation or slowing**
13. Irritability
**may be confused with PD symptoms
As noted before as many as 50% of PD patients may develop clinical
depression and the reason may be related to the loss of dopamine caused by
the PD as well as the situation we find ourselves in. If you have many of
these symptoms you should be under the care of a mental health professional
who understands PD and ask your neurologist for a referral to such a person.
Charlie
Charles T. Meyer, MD
----- Original Message -----
From: "janet paterson" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, May 09, 2000 10:32 AM
Subject: Re: depression /cd / bootstraps
> At 02:00 PM 2000/05/09 +0100, "Sinead Aungier <[log in to unmask]>"
wrote:
> >The best cure for depression is to be busy because when you're busy
you're
> >not thinking about how you feel. But also don't overdo things or you'll
> >tire yourself out. I'd also recommend eating well and getting plenty of
> >vitamin C and not letting your body overheat especially at night.
>
>
> if this is advice for those suffering clinical depression [cd]
> i'm afraid it's not very good advice
>
> dr. david burns describes the single most debilitating symptom of cd
> as 'the paralysis of will' - 'keeping busy' just aint in the picture
>
> a friend also told me that
> the reason people with cd walk around with their heads hanging down is
> they are looking for those 'bootstraps' they are supposed to 'pull
themselves up' with
>
> a little education goes a long way
>
> janet
>
> janet paterson
> 53 now / 41 dx / 37 onset
> 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
> come visit my website "a new voice" at:
> http://www.geocities.com/janet313/
=========================================================================
Date: Tue, 9 May 2000 13:09:08 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: janet paterson <[log in to unmask]>
Subject: Re: Michael Fox / TV Guide Magazine Interview
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
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At 10:29 AM 2000/05/09 -0500, Terry Kempf <[log in to unmask]> wrote, in part:
>... on the Internet, go to tvguide.com, and click on TV GUIDE MAGAZINE.
>There is a fairly long interview with Michael Fox. ...
A GRACEFUL GOODBYE
Spin City star Michael J. Fox talks about how it feels to walk away from series TV and how he plans to wage war against Parkinson’s disease.
Michael J. Fox has always been someone you want to root for - whether as smart-aleck Alex P. Keaton in 'Family Ties', slacker Marty McFly in the 'Back to the Future' trilogy or deputy mayor Michael Flaherty in 'Spin City'.
In each of these roles and in his performances in such films as 'Casualties of War' and 'The American President', he has captured the bright young man whose endearing self-confidence helps him succeed despite overwhelming odds.
So, in 1998, when Fox publicly revealed that he had had Parkinson’s disease for the past seven years - a progressive neurological disorder that as yet has no cure - his fans rallied round him, deluging him with cards and letters of support. In January, Fox, 38, announced that he would leave Spin City (except for occasional appearances next season) and redirect his time and energy. (Charlie Sheen, whom Fox calls "a great actor and a great guy," will be the series’s new star.)
Since then, Fox has devoted himself to his family (he and his wife, actress Tracy Pollan, 39, have three kids, Sam, 10, and 5-year-old twin daughters Aquinnah and Schuyler) and to the fight for a cure for Parkinson’s.
He has lobbied Congress for research funding, set up the Michael J. Fox Foundation for Parkinson’s Research and is developing a Web site so that fans can contribute to his cause.
As upbeat and animated as always, Fox recently sat down in New York City with TV Guide editor-in-chief Steven Reddicliffe to talk about how he feels - both physically and emotionally - about leaving TV and about what lies ahead.
TV Guide: How are you doing now that you’ve filmed the final show?
Michael J. Fox: There’s a feeling of accomplishment and pride. There are obviously bittersweet feelings about friendships... But once I gathered the cast in my dressing room and talked to them about [my decision to leave] - it was certainly emotional and a big shock to them. And trust me, you don’t want to be the person who gets all these people together and says, "Guess what? You may be out of work." But once I told them, I didn’t regret it for a second.
TVG: Did you think about it a long time?
MJF: I did. What I couldn’t anticipate was how good it would feel to be able to represent my whole self. It was a big change not having to go through the motions that were required in keeping this to myself. And it became very liberating. I started to think, "If I can do 100 episodes, that will be terrific." And I kind of had a wait-and-see attitude. As I went into the beginning of last year, we were energized by the presence of Heather [Locklear]. It was a real coup for us, and for me personally, because she took so much of the load off.
[But] as we got toward Christmas, I started to think, "I want to be with my family." And I’d done some things in Washington, and I really started to feel a part of the Parkinson’s community and to be energized by the potential for breakthroughs. My daughters are 5 and going into school. That’s a special time. My father was in the military and he didn’t have that kind of time. If I [do] and I can afford it, I should take it.
So I thought, "I’ll go on vacation." Because my memories were that over the summer I felt so much better. So we went to the Caribbean [during the Christmas break from the show]. And sure enough, I get down there and I feel better. And I’m cutting back on medication and relaxing and just having a great time. One day I go out snorkeling and I’m following this sea turtle around, just floating above it. And I got out of the water and walked up to Tracy on the beach and said, "I’m done." I came back and started to tell people.
TVG: Do you wish you had done it earlier?
MJF: No. I came in [to do] 100 episodes. I’m stubborn. And I do believe that what has kept me fundamentally happy and optimistic is that I accept things. I take things as they come and put one foot in front of the other. But at the same time I am competitive and willful. I like to win. Sometimes I can let things go, but they have scratch marks on them.
TVG: Have you talked to Muhammad Ali, or Janet Reno, who also have Parkinson’s?
MJF: I’d love to speak to Ali. I haven’t. I’m going to call him and set something up soon. Before I had Parkinson’s, this man was a hero of mine. I have a photograph of him in my dressing room. He’s one of the first people I spoke to [my son about] at length, when he was old enough to understand the idea of heroes and role models. I showed him 'When We Were Kings'. I idolized Ali’s principles, his strength - I even admired his stubbornness and his foolishness in allowing himself to be hurt the way that he was. I would love to find a way to be involved with him on something.
TVG: Would you say fighting this disease is now your mission?
MJF: It’s my mission inasmuch as it’s something that I’m extremely committed to. At the risk of sounding like I’m bucking for papal recognition or something, it very quickly became not about me. It’s about the whole thing. It’s not a mission to save myself. Because I’m very optimistic.
TVG: How involved are you in your own care?
MJF: [I’m involved] to the extent I know what the drugs are and what they do. And I’ve also had [brain surgery] that helped me tremendously. But anybody who has Parkinson’s is only the expert on their Parkinson’s. Because it’s a very idiosyncratic, anomalous condition.
TVG: So you’re not intimidated by that. You want to know it all?
MJF: Oh, absolutely. The reason I have a sunny disposition is that I’m equal parts optimistic and realistic.
TVG: How did you tell your children about this?
MJF: There’d be little tiny things, like they’ll say, "Can you read a story?" And if I’m between doses of medication, there’s a transition period where it’s sometimes difficult to have some dexterity. And I’ll say, "Yeah, I can read to you. You’ve got to hold the book." And they’ll say, "Why?" And I’ll say, "Because I’ll have a hard time holding it right now." And that’s about all you can do with my 5-year-olds.
With my son, who has always been scientifically oriented, he has a book - that big brain book. And I take the thing out and go, "This makes this stop, and it doesn’t make it [stop] for me." When I had my surgery, I talked to him about it. [I] could be very matter-of-fact.
TVG: Was he worried?
MJF: No, he hasn’t said so. But a little while ago I was having a conversation with him, and my right hand was tremoring a bit, and he was listening to me. And he was right in my eyes. He didn’t break. He just put his hand on my hand and kept listening to me. And it was this great moment. I finished the conversation and walked away. I said [to Tracy], "I had no idea that anyone could be that empathetic." He was just kind of saying, "You know, it’s fine. Don’t be distracted by that because it has nothing to do with us."
In a way I’m grateful for [having the disease]. Because there wasn’t this balance. When you’re 29 years old, which is the age I was when I was diagnosed, and you’ve had a winning streak like I had - [it feels] right that I would get a bag of hammers. Not to get too mawkish about it, but I didn’t become a man until I had this. And it has given me kind of a serenity and a clarity that I wouldn’t have had otherwise. But all said and done, I’m not going to run out of money. There’s steaks in the fridge and life is good.
TVG: Do you need to produce or direct or act to feel fulfilled at this point?
MJF: Not from the point of view of there being an outside reaction to it. I’m a creative person, and so I’ll always do that. I’d like to write a book. I have a title: How to Lose Your Brain Without Losing Your Mind.
TVG: Are you still playing hockey?
MJF: I played hockey this winter, which was great. I got out on the ice and I was flying. I went skiing this winter. But there are losses.
TVG: Like what?
MJF: I’m slower than I was. I’m not as dexterous. I’m as strong as I was, but not as agile. People ask, "What does it feel like?" - and it’s a great question, as opposed to "How are you doing?"
Because it feels interesting. It feels like all kinds of things. There’s weird things. There’s this freezing element to it, which is strange. One day [Spin City co-star] Michael [Boatman]...was coming out of the makeup room and Michael - I just love him to death - he’s coming out of the makeup door and I’m walking in. We met in the doorway. He stopped and I stopped. And I said to him, "You have to move." He said, "Why?" And I’m thinking, "Oh, my God, this is terrible. He’s thinking that I’m saying, ‘I’m the big shot here and you have to move." I’m not - literally, he had to move or my body would not recognize that it was now OK for me to move. Is that a loss? Is that weird? I don’t know.
TVG: What about Tracy? Has this made you closer?
MJF: It’s hard to say, because we were always so tight. When was I diagnosed, 1991? We were married in 1988. So we’d been married for three years. We’ve now been married for 12 years. Seventy-five percent of our marriage has been dealing with this reality. It’s touching to me as I think about it now, but it is amazing. It is a tremendously close friendship. And I have a huge amount of respect and love and feeling of pride [for] Tracy.
Also, you know, I get to go to the beach with this woman. She’s unbelievable. I mean, there are 21-year-old girls walking by today that I wouldn’t waste my time taking my eyes off my wife to look at. I mean she’s just - she’s stunning and she’s funny.
That’s the other thing about her, she’s just funny. I’ll say, "Honey, can you cut this bagel?" And I’m waiting for my pill to kick in and she’ll go, "OK, brain disease, right?" So yeah, it’s good.
TVG: In a previous TV Guide story, you talked about drinking, another challenge in your life at one point.
MJF: Well, yeah. I couldn’t be partying when I was trying to deal with this. I wasn’t this maniac, but I needed to completely change my lifestyle to take care of my body. And so I said, "I can’t drink." I was never an out-of-control, you know, maniac. But I couldn’t even afford to be a not-out-of-control maniac. I couldn’t afford to be your Uncle Larry who has too many on the weekend at the barbecue. I wanted to deal with this and be present for this. So I haven’t had a drink in, like, eight years.
TVG: Was that hard?
MJF: It wasn’t. Actually, it was fairly easy. Cigarettes are hard.
TVG: You’ve had two hugely successful shows. Do you think about your comedy legacy?
MJF: I don’t know about legacy. I love doing that for a living. I look forward to having another chance to do it. And I think about - I don’t know if teaching is the word - but there are crafts and customs and techniques and philosophies [of comedy]. What people call the Komedy Kollege, with two ks. I’d love to see that stay alive.
TVG: You like making people laugh.
MJF: I love making people laugh. But I don’t think of myself as a particularly funny person. Sure, I can be witty - but I’m not a laugh riot. If you’ve got good writing, there’s just a rhythm you get into. And I can’t explain the rhythm, but it’s just a joy. And when I started to have this physical situation and then I started to do Spin City and I’m [thinking], "I’d like to do that, but [if] my pill’s not working the next time I do it, am I boxing myself into a corner?" So what the legacy is, I don’t know. I hope people watch the show in reruns and laugh. I know that I worked real hard at it and I never took it for granted.
TVG: Do you worry about your kids in all of this?
MJF: Oh, no, it can be a drama for everybody else. It’s not a drama for me. I don’t know whether it’s a proverb or Confucius or the Bible - but there’s this story about God or some deity getting a group of people together and saying, "Everybody take their worst problem and put it in the middle of the circle. Step back. Now step forward and take a problem out." And everybody takes their own back. And I would take this one back because I know it.
And I’m completely confident that in my fifties this will be gone. Which means I’m going to take a little bit of an ass kicking for a few years. You’re 5-foot-4 and you played hockey all your life - I’m used to ass kickings.
What’s a unique privilege and a unique gift - it may be with full acknowledgement of the fact that researchers and scientists and doctors and other people are going to do the work here - but maybe my being in this position can, in a small way, influence the outcome of [the battle against Parkinson’s]. I mean, God, who wouldn’t give the world for that?
BY MICHAEL LOGAN
TV Guide Online - [Feature Story]
<A HREF="http://www.tvguide.com/magazine/issues/000508/magftr1.asp">
http://www.tvguide.com/magazine/issues/000508/magftr1.asp</A>
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Tue, 9 May 2000 13:31:56 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: janet paterson <[log in to unmask]>
Subject: NEWS: Newscan: US Feds Launch Internet Fraud Complaint Center
Comments: cc: [log in to unmask]
Mime-Version: 1.0
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FEDS LAUNCH INTERNET FRAUD COMPLAINT CENTER
The U.S. Department of Justice and the Federal Bureau of Investigation are
collaborating on the creation of an Internet Fraud Complaint Center, which
will give consumers and businesses a one-stop shop for reporting incidents
in which a computer was used for criminal activity, such as fraudulent
claims made over a Web site, via e-mail, or in chat rooms. It will not cover
crime in which computers were the target, such as the distributed denial of
service attacks that crippled some major businesses' computers recently.
Those problems should be addressed by the National Infrastructure Protection
Center. (TechWeb 8 May 2000)
http://www.techweb.com/wire/story/TWB20000508S0011
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Tue, 9 May 2000 13:33:49 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: janet paterson <[log in to unmask]>
Subject: NEWS: Newscan: Stanford Searches For Profits With E-Skolar
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STANFORD SEARCHES FOR PROFITS WITH E-SKOLAR
Stanford University has launched a new for-profit company, e-Skolar Inc.,
featuring an online medical search engine that enables doctors to perform
simultaneous searches across multiple databases, including textbooks,
peer-reviewed medical journals, drug databases, updated clinical guidelines
and the National Library of Medicine. The new service, which will not carry
advertising, will be available for a $240 annual subscription fee. E-Skolar
prides itself on the quality of its offerings and its speedy delivery of
information. "If you go to other sites, you can't tell the wheat from the
chaff," says Phyllis Gardner, senior associate dean of education and student
affairs at Stanford. "Consumer information is mixed in and it's a nightmare
for doctors. This is all peer-reviewed, high quality literature." (Wall
Street Journal 9 May 2000)
http://interactive.wsj.com/articles/SB957831343399868698.htm
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Tue, 9 May 2000 15:41:15 -0400
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Mary Ann Ryan <[log in to unmask]>
Subject: Re: Good News... WAS: Re: Thanks for HELP
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He stopped all
> of those terrible meds and today Bob is titrating up on Requip. I am
quite sure that we getting
> back on track.
Jackie, please let us know how Bob does on his new medication regimen. It
will be important to all of us who follow his progress to learn how much
function he will be able to regain
-----
God bless
Mary Ann (CG Jamie 60/20)
=========================================================================
Date: Tue, 9 May 2000 16:34:53 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Michael Fox / TV Guide Magazine Interview
Janet - Thanks for repeating Michael J. Fox' story. It is remarkable
what a good attitude will do, with loving support from friends and
family. I enjoyed it. Best wishes, Jo Ann from Houston
=========================================================================
Date: Tue, 9 May 2000 14:05:48 -0700
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Marling McReynolds <[log in to unmask]>
Subject: list folks, I need some help
In-Reply-To: <002101bfb9ee$8b349fa0$831e3b94@Llambs>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Ok, here is the deal.
I had a geocities address and yahoo bought out geocities. Now,
mail to that geocities address is transferred to a similar yahoo
address and I get the mail. However, since I am mailing out on
that account through yahoo, the listserv does not recognize it.
I have a new address, this one ( [log in to unmask]) and wish to
close the geocities address. However every time I try to send the
command I get error messages that my "yahoo" address is not
recognized.
How do I get the geocities address off the list?
Thanks
Marling
51, 5 from diag, and still trying to laugh
=========================================================================
Date: Tue, 9 May 2000 18:00:54 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: list folks, I need some help
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At 02:05 PM 2000/05/09 -0700, Marling McReynolds <[log in to unmask]> wrote:
>Ok, here is the deal.
>I had a geocities address and yahoo bought out geocities. Now,
>mail to that geocities address is transferred to a similar yahoo
>address and I get the mail. However, since I am mailing out on
>that account through yahoo, the listserv does not recognize it.
>I have a new address, this one ( [log in to unmask]) and wish to
>close the geocities address. However every time I try to send the
>command I get error messages that my "yahoo" address is not
>recognized.
>How do I get the geocities address off the list?
>Thanks
>Marling
>51, 5 from diag, and still trying to laugh
as i see it, you want to do two things:
1. terminate your existing subscription from yahoo/geocities
2. start a new subscription from eelriver
1. the listserver has your subscription attributed to a specific e-mail address;
if you cannot send mail *from* that specific address now,
you have two choices:
A. you can terminate/delete your address/account at yahoo/geocities and thus
force "returned mail-address unknown" your listmail back to the listserv and thus
trigger the listserv's automatic delete function
or,
B. you can call in the final resort executive artillery swat team
i.e. the list-mom, to decimate your existing subscription
2. starting a new subscription from eelriver is the easy part:
send the command message:
subscribe parkinsn marling mcreynolds
to:
[log in to unmask]
janet
the unarmed list elfette
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Tue, 9 May 2000 18:47:42 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Paul Lauer <[log in to unmask]>
Subject: help with joining instructions
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Janet...Franz...Murray. Thank you all for your help. If you see either
[log in to unmask] or [log in to unmask] on the list in the future, you will
know you had a hand in the happening.
Paul H. Lauer
=========================================================================
Date: Tue, 9 May 2000 19:59:59 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: NEWS: Tourbus: The Bat! - A Great Email Program
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
hi all
we/ve talked about our favourite internet software recently
i've been a fan of eudora e-mail for a long time
but this review has me re-thinking...
heck i wish i DID have a financial interest in this one!
janet
from the Tourbus newsletter [go to the site for details on all the features
"http://www.TOURBUS.com"
-->
================================
THE BAT! - A GREAT EMAIL PROGRAM
================================
A few days ago I got an email from a guy named Stan Polozov, who is
the R&D manager at RIT Research Labs, in the Republic of Moldova. Stan
described The Bat! as "the most powerful and user friendly email
client in the world". I was skeptical, because I'd never heard of The
Bat! before, and to be honest, I didn't know where Moldova was.
<A href="http://www.ritlabs.com/the_bat">
http://www.ritlabs.com/the_bat </A>
I had an inkling that it was formerly a part of the USSR, and that
turned out to be a better guess than "a small town in New Jersey".
I've since re-educated myself on eastern European geography, and also
discovered that Stan was right. According to the user ratings at
Deja.com, The Bat! is the top-rated email program, scoring a near- out
of 5. (For reference, the closest competitor is Eudora, with a score
of 3.7) Below are links to the Deja ratings page and a review from
the venerable CWSApps site:
<A href="http://www.deja.com/products/at_a_glance/glance.xp?PDID=11989">
http://www.deja.com/products/at_a_glance/glance.xp?PDID=11989 </A>
<A href="http://cws.internet.com/mail.html">
http://cws.internet.com/mail.html </A>
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Tue, 9 May 2000 17:10:59 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Carole Hercun <[log in to unmask]>
Subject: Re: depression/Clinical Depressiom 101
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Hi Jo Ann: Don't give up the search for an anti-depressant
that works for you, and with an acceptable side-effect
profile. The side-effects you describe sound like those of
the ones classified as SSRIs, for example, Prozac. There
are many more available, one of which may work better FOR
YOU.
There are the atypical ones, as well as the good
old-fashioned (but still effective) tri-cyclics and
MAO-inhibitors. There is even one that is still waiting
approval in the U.S. (although it has been used
successfully in Europe for years)called Reboxetine which
promises to be a break-through drug, since it is the first
of those classified as SNRIs, similar to the situation with
Prozac a few years ago when it debuted.
Incidentally, I, too, was reluctant to admit I needed help
for a "mental" illness 10 years ago, when I began suffering
from severe depression (a precourser to my PD diagnosis.)
I used to sneak in the back door of the Center for
Psychotherapy where my psychiatrist worked, until i noticed
that 1/2 of the therapists, nurses, etc. that I worked with
were also sneaking in and out. The was in the days before
managed care, when you had the luxury to combine medication
with the "talk cure", the best of both worlds.
Carole
--- Jo Ann Coen <[log in to unmask]> wrote:
> Carole - well said about the depression. We don't
> hesitate to take
> insulin, or thyroid, or hormones, but the stigma of
> depression is still
> that - a stigma. I have CD, but I don't care for the
> side effects -
> nausea, shaking, loss of libido. I've tried 3 different
> brand names and
> they are all the same, so I have to really fight with
> myself to stay
> above it. Sometimes I lose. Thanks for the info. Jo Ann
> from Houston
__________________________________________________
Do You Yahoo!?
Send instant messages & get email alerts with Yahoo! Messenger.
http://im.yahoo.com/
=========================================================================
Date: Tue, 9 May 2000 18:01:08 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Carole Hercun <[log in to unmask]>
Subject: Re: Depression and Fatigue / cd or pd?
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Hi Barb: I vote for both the nap AND the ice cream, but
then I've always been greedy. Carole
--- Barb_MSN <[log in to unmask]> wrote:
> I either take an hour's nap or go to the convenience
> store and guy
> a pint of ice cream to be eaten immediately upon
> returning home.
>
> Just the anticipation is enough to wake me up! <GRIN>
>
> Barb Mallut (LOVE that Haagan Daz Coffee Toffee Crunch!)
> [log in to unmask]
>
> -----Original Message-----
> From: Charles E Murray <[log in to unmask]>
> To: [log in to unmask]
> <[log in to unmask]>
> Date: Monday, May 08, 2000 8:57 PM
> Subject: Re: Depression and Fatigue / cd or pd?
>
>
> >. What do others do for this fatigue.... it's
> >> debilitating!
> >> >Clare Wilson (69/ 3 )
> >>
> >>
> >> fatigue is now considered one of the five key symptoms
> of pd
> >>
> >> when i 'run out of steam' i either rest and read for
> awhile
> >> or take a nap - 30 minutes usually does the trick
> >>
> >> there is no more point in 'fighting' pd-related
> fatigue
> >> than there is in 'fighting' pd-related tremor
> >>
> >> janet
> >>
> >> A great topic as this is the most difficult and
> obstructive
> problem for
> >me as well, and Requip, a blessing in many ways, has
> made
> drowsiness much
> >worse. Even a 59 I had not learned to nap effectively,
> but I
> agree with
> >Janet that cooperating with the fatigue and doing what
> it is
> asking (lay
> >down and close my eyes) works better than anything else.
> There
> are some
> >drugs less habit forming than amphetamines that can be
> prescribed
> and
> >while my specialist is willing to do so I want see if a
> peaceful
> >accommodation can be made before taking that step. I'm
> sure open
> to help
> >in this area, however.
> >
> >Chuck
__________________________________________________
Do You Yahoo!?
Send instant messages & get email alerts with Yahoo! Messenger.
http://im.yahoo.com/
=========================================================================
Date: Tue, 9 May 2000 22:01:22 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Fran Landes <[log in to unmask]>
Subject: Feedback on Medication
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Is anyone who has been diagnosed a year ago taking Amantadine in combination
with Mirapex? Any information on how you are doing with the Mirapex will be
appreciated. I am not taking any Sinemet as yet.
Thank you.
Fran Landes
46/45/43
=========================================================================
Date: Tue, 9 May 2000 19:13:22 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Carole Hercun <[log in to unmask]>
Subject: Re: depression /cd / bootstraps
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Hi Audrey: I think you are very eloquent all by yourself.
Here's my definition of Clinical Depression:
Finding yourself descending ever deeper into your own
personal 9 Circles of Hell
Food that tastes like ashes in your mouth
Looking at the family you love gathered around the
Christmas tree on Christmas morning and feeling...nothing
Lying in bed thinking you must be dying because you feel so
bad but not caring
Losing your laughter
Not feeling capable of doing the work you love
Being afraid all the time
Counting the days, hours, minutes, seconds that the
psychiatrist said it would take for the anti-depressant to
kick in...
Carole
--- Audrey <[log in to unmask]> wrote:
> Only someone who has not had cd would suggest that one
> who had it should *
> stay busy*as a help..If it is about motivation that is a
> foreign term while
> in the dark place we all know who are cd. I get upset
> when I was advised to
> stay busy as if I didn't know that it made sense once,
> but no longer did in
> the worst hours. None of us choose to be cd and can only
> expect to have our
> moods more even with less deep dips in the road. I
> appreciate the kind
> advice in the spirit it is offered, yet all who say this
> are not helpful no
> matter how well meaning. Maybe someone else who has cd
> has a better
> description of the darkness and the fear and despair that
> is within it than
> I have. It needs to be posted for all to see and heed.
>
> *Seattle* Audrey friend of pwp aussie John 49/42/38 ?
>
>
> ----- Original Message -----
> From: " janet paterson" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, May 09, 2000 8:32 AM
> Subject: Re: depression /cd / bootstraps
>
>
> > At 02:00 PM 2000/05/09 +0100, "Sinead Aungier
> <[log in to unmask]>"
> wrote:
> > >The best cure for depression is to be busy because
> when you're busy
> you're
> > >not thinking about how you feel. But also don't
> overdo things or you'll
> > >tire yourself out. I'd also recommend eating well and
> getting plenty of
> > >vitamin C and not letting your body overheat
> especially at night.
> >
> >
> > if this is advice for those suffering clinical
> depression [cd]
> > i'm afraid it's not very good advice
> >
> > dr. david burns describes the single most debilitating
> symptom of cd
> > as 'the paralysis of will' - 'keeping busy' just aint
> in the picture
> >
> > a friend also told me that
> > the reason people with cd walk around with their heads
> hanging down is
> > they are looking for those 'bootstraps' they are
> supposed to 'pull
> themselves up' with
> >
> > a little education goes a long way
> >
> > janet
> >
> > janet paterson
> > 53 now / 41 dx / 37 onset
> > 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0
> Canada
> > come visit my website "a new voice" at:
> > http://www.geocities.com/janet313/
> >
__________________________________________________
Do You Yahoo!?
Send instant messages & get email alerts with Yahoo! Messenger.
http://im.yahoo.com/
=========================================================================
Date: Tue, 9 May 2000 22:27:49 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: depression /cd / bootstraps / jane kenyon's description
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
this is a repost
of the best description of the experience of cd
that i have ever found
janet
-----------------------------------------------------------------------
Post: 029603
Date: Sat, 23 Aug 1997
From: janet paterson
Subj: CD: A Poem by Jane Kenyon
-----------------------------------------------------------------------
HAVING IT OUT WITH MELANCHOLY
If many remedies are prescribed for an illness,
you may be certain that the illness has no cure.
A.P. Chekhov
The Cherry Orchard
1 FROM THE NURSERY
When I was born, you waited
behind a pile of linen in the nursery,
and when we were alone, you lay down
on top of me, pressing
the bile of desolation into every pore.
And from that day on
everything under the sun and moon
made me sad=97even the yellow
wooden beads that slid and spun
along a spindle on my crib.
You taught me to exist without gratitude.
You ruined my manners toward God:
"We're here simply to wit for death;
the pleasures of earth are overrated."
I only appeared to belong to my mother,
to live among blocks and cotton undershirts
with snaps; among red tin lunch boxes
and report cards in ugly brown slipcases.
I was already yours=97the anti-urge,
the mutilator of souls.
2 BOTTLES
Elavil, Ludiomil, Doxepin,
Norpramin, Prozac, Lithium, Xanax,
Wellbutrin, Parnate, Nardil, Zoloft.
The coated ones smell sweet or have
no smell; the powdery ones smell
like the chemistry lab at school
that made me hold my breath.
3 SUGGESTION FROM A FRIEND
You wouldn't be so depressed
if you really believed in God.
4 OFTEN
Often I go to bed as soon after dinner
as seems adult
(I mean I try to wait for dark)
in order to push away
from the massive pain in sleep's
frail wicker coracle.
5 ONCE THERE WAS LIGHT
Once, in my early thirties, I saw
that I was a speck of light in the great
river of light that undulates through time.
I was floating with the whole
human family. We were all colors - those
who are living now, those who have died,
those who are not yet born. For a few
moments I floated, completely calm,
and I no longer hated having to exist.
Like a crow who smells hot blood
you came flying to pull me out
of the glowing stream.
"I'll hold you up. I never let my dear
ones drown!" After that, I wept for days.
6 IN AND OUT
The dog searches until he finds me
upstairs, lies down with a clatter
of elbows, puts his head on my foot.
Sometimes the sound of his breathing
saves my life - in and out, in
and out; a pause, a long sigh...
7 PARDON
A piece of burned meat
wears my clothes, speaks
in my voice, dispatches obligations
haltingly, or not at all.
It is tired of trying
to be stouthearted, tired
beyond measure.
We move on to the monoamine
oxidase inhibitors. Day and night
I feel as if I had drunk six cups
of coffee, but the pain stops
abruptly. With the wonder
and bitterness of someone pardoned
for a crime she did not commit
I come back to marriage and friends,
to pink-fringed hollyhocks; come back
to my desk, books, and chair.
8 CREDO
Pharmaceutical wonders are at work
but I believe only in this moment
of well-being. Unholy ghost,
you are certain to come again.
Coarse, mean, you'll put your feet
on the coffee table, lean back,
and turn me into someone who can't
take the trouble to speak; someone
who can't sleep, or who does nothing
but sleep; can't read, or call
for an appointment for help.
There is nothing I can do
against your coming.
When I am awake, I am still with thee.
9 WOOD THRUSH
High on Nardil and June light
I wake at four,
waiting greedily for the first
notes of the wood thrush. Easeful air
presses through the screen
with the wild, complex song
of the bird, and I am overcome
by ordinary contentment.
What hurt me so terribly
all my life until this moment?
How I love the small, swiftly
beating heart of the bird
singing in the great maples;
its bright, unequivocal eye.
Jane Kenyon
Copyright 1996 by Jane Kenyon
>From Otherwise: New & Selected Poems
<http://www.graywolfpress.org/>
-------------------------------------------------------------------
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Tue, 9 May 2000 22:36:10 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Paul Lauer <[log in to unmask]>
Subject: Fwd: Visit
MIME-Version: 1.0
Content-Type: multipart/mixed; boundary="part1_a8.4d91ddf.264a251a_boundary"
--part1_a8.4d91ddf.264a251a_boundary
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Simon: I'm sending this through the list because when I tried to send it
privately it came back as undeliverable.
Paul H. Lauer
--part1_a8.4d91ddf.264a251a_boundary
Content-Type: message/rfc822
Content-Disposition: inline
Return-path: <[log in to unmask]>
From: [log in to unmask]
Full-name: PHL1037
Message-ID: <[log in to unmask]>
Date: Tue, 9 May 2000 21:41:34 EDT
Subject: Visit
To: [log in to unmask]
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
X-Mailer: AOL 5.0 for Windows sub 104
Simon: We live in Norwalk, CT. approximately 150 miles from Center City
Philadelphia. If you feel that ambitious we would be glad to give you dinner
and could even put you up for the night. It would feel like Jolly Old since
we are Wedgwood collectors and have a fair amount of it scattered around.
Paul H. Lauer
--part1_a8.4d91ddf.264a251a_boundary--
=========================================================================
Date: Tue, 9 May 2000 23:13:43 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Dick Swindler <[log in to unmask]>
Subject: Re: dbs
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Mark -
Dick went home the following afternoon. It's possible you will be asked to
stay two nights, but I believe one is standard.
margie Swindler
=========================================================================
Date: Tue, 9 May 2000 23:15:24 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: depression /cd / bootstraps
Carole - what a great reply to Audrey regarding depression. Doggonit,
we've all been there at sometime or another. I can't take
antidepresssants because of the various side effects, but some do and it
works on them in a great way. Some people respond in 4 to 5 days, and
some take a week or two for it to kick in. And I'm grateful that it
works for some. Best wishes, Jo Ann from Houston
=========================================================================
Date: Tue, 9 May 2000 20:20:24 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jane Ross <[log in to unmask]>
Subject: Re: Feedback on Medication
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Dear Fran,
My answer may not count because I've had DBS STN surgery and have had
Parkinson's for 21 years but when the battery died last year I had to go
back on medication while I waited for a new one. I chose Symmetryl with the
Mirapex that I still take. Symmetryl was the most effective drug that I
took over the many years, but it didn't work this time. I don't know if it
was because it was generic, or a result of the surgery. Since the surgery 4
years ago, I haven't taken Sinemet.
> Is anyone who has been diagnosed a year ago taking Amantadine in
combination
> with Mirapex? Any information on how you are doing with the Mirapex will
be
> appreciated. I am not taking any Sinemet as yet.
>
> Thank you.
>
> Fran Landes
> 46/45/43
=========================================================================
Date: Tue, 9 May 2000 20:41:43 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Hilary Zunin <[log in to unmask]>
MIME-version: 1.0
Content-type: multipart/alternative;
boundary="----=_NextPart_000_0039_01BFB9F6.FC3CCE40"
This is a multi-part message in MIME format.
------=_NextPart_000_0039_01BFB9F6.FC3CCE40
Content-Type: text/plain;
charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
UNSUBSCRIBE
------=_NextPart_000_0039_01BFB9F6.FC3CCE40
Content-Type: text/html;
charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
<!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
<HTML><HEAD>
<META content=3D"text/html; charset=3Diso-8859-1" =
http-equiv=3DContent-Type>
<META content=3D"MSHTML 5.00.2314.1000" name=3DGENERATOR>
<STYLE></STYLE>
</HEAD>
<BODY bgColor=3D#ffffff>
<DIV> UNSUBSCRIBE</DIV></BODY></HTML>
------=_NextPart_000_0039_01BFB9F6.FC3CCE40--
=========================================================================
Date: Wed, 10 May 2000 01:24:50 -0400
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Cathy Morse <[log in to unmask]>
Subject: Re: depression /cd / bootstraps
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Carole,
Your description was magnificent. and all too familiar.
i would like to add the the following;
A conviction that your death would be a gift to your family Believing
that death ts the only way your spouse will enjoy any remaining
lifetime,
it's up to you to set him free.
you have nothing of value for your children they would be better
off without you
death will be easier for your loved ones to accept than watching
you become useless
cd is like a dense fog coming off the water. You have no control over
when it comes; how thick it will be( or when it will vanish.. Nor can
you predict what will trigger it. In a really dense fog you cannot see
your hand in front of your face, you easily lose your bearings, all that
exists for you is the fog and it's dampness permeates your soul.
Cathy
arole Hercun wrote:
> Hi Audrey: I think you are very eloquent all by yourself.
> Here's my definition of Clinical Depression:
> Finding yourself descending ever deeper into your own
> personal 9 Circles of Hell
> Food that tastes like ashes in your mouth
> Looking at the family you love gathered around the
> Christmas tree on Christmas morning and feeling...nothing
> Lying in bed thinking you must be dying because you feel so
> bad but not caring
> Losing your laughter
> Not feeling capable of doing the work you love
> Being afraid all the time
> Counting the days, hours, minutes, seconds that the
> psychiatrist said it would take for the anti-depressant to
> kick in...
> Carole
>
> --- Audrey <[log in to unmask]> wrote:
> > Only someone who has not had cd would suggest that one
> > who had it should *
> > stay busy*as a help..If it is about motivation that is a
> > foreign term while
> > in the dark place we all know who are cd. I get upset
> > when I was advised to
> > stay busy as if I didn't know that it made sense once,
> > but no longer did in
> > the worst hours. None of us choose to be cd and can only
> > expect to have our
> > moods more even with less deep dips in the road. I
> > appreciate the kind
> > advice in the spirit it is offered, yet all who say this
> > are not helpful no
> > matter how well meaning. Maybe someone else who has cd
> > has a better
> > description of the darkness and the fear and despair that
> > is within it than
> > I have. It needs to be posted for all to see and heed.
> >
> > *Seattle* Audrey friend of pwp aussie John 49/42/38 ?
> >
> >
> > ----- Original Message -----
> > From: " janet paterson" <[log in to unmask]>
> > To: <[log in to unmask]>
> > Sent: Tuesday, May 09, 2000 8:32 AM
> > Subject: Re: depression /cd / bootstraps
> >
> >
> > > At 02:00 PM 2000/05/09 +0100, "Sinead Aungier
> > <[log in to unmask]>"
> > wrote:
> > > >The best cure for depression is to be busy because
> > when you're busy
> > you're
> > > >not thinking about how you feel. But also don't
> > overdo things or you'll
> > > >tire yourself out. I'd also recommend eating well and
> > getting plenty of
> > > >vitamin C and not letting your body overheat
> > especially at night.
> > >
> > >
> > > if this is advice for those suffering clinical
> > depression [cd]
> > > i'm afraid it's not very good advice
> > >
> > > dr. david burns describes the single most debilitating
> > symptom of cd
> > > as 'the paralysis of will' - 'keeping busy' just aint
> > in the picture
> > >
> > > a friend also told me that
> > > the reason people with cd walk around with their heads
> > hanging down is
> > > they are looking for those 'bootstraps' they are
> > supposed to 'pull
> > themselves up' with
> > >
> > > a little education goes a long way
> > >
> > > janet
> > >
> > > janet paterson
> > > 53 now / 41 dx / 37 onset
> > > 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0
> > Canada
> > > come visit my website "a new voice" at:
> > > http://www.geocities.com/janet313/
> > >
>
> __________________________________________________
> Do You Yahoo!?
> Send instant messages & get email alerts with Yahoo! Messenger.
> http://im.yahoo.com/
=========================================================================
Date: Tue, 9 May 2000 23:30:32 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charles E Murray <[log in to unmask]>
Subject: Re: depression /cd / bootstraps
Comments: To: [log in to unmask]
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Wonderful descriptions. I recognize thoughts I have had in the past.
How about one more:
The feeling that you are breathing air that should to go someone more
deserving.
Chuck
=========================================================================
Date: Tue, 9 May 2000 22:48:00 -0700
Reply-To: Constance Tate <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Constance Tate <[log in to unmask]>
Subject: mothers day
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
dear all
here is a poem given to me just before i had my 7th child
i thought i would share it with list so if anybody knows any mothers with
a large family they could give it to them.
******************************************************************
Count Your Blessings
If the good Lord sends down a wee lassie to you,
And then should happen to send ye another.
Ye'll know He's approvin' o' ye as a Mother.
Then if He chooses to offer ye three,
'Tis a diligent Mother ye happen to be,
But if by some chance He should trust ye with four,
Faith I'd not be surprised if He'd trust ye with more,
But devil a few are the women alive
That He's ever considered o' trustin' with five,
He looks the world over and carefully picks,
Just one in a thousand He'd ever give six,
And be sure if He'd ever should bless ye with seven,
Ye're a saint and ye're fit for the glories of Heaven.
***********************************************************************
Happy Mothers Day to all Mothers
love
connie
=========================================================================
Date: Wed, 10 May 2000 09:15:58 +0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Tony Leather at Home <[log in to unmask]>
Subject: Re: Some advice/help appreciated
In-Reply-To: <006801bfb9cd$ccf66fc0$3cb4e13f@audrey>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Thanks Audrey - I do hope your friend makes contact.
It's good to talk!!
Best wishes
Tony
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]] On Behalf Of Audrey
Sent: 09 May 2000 23:47
To: [log in to unmask]
Subject: Re: Some advice/help appreciated
Hi Tony ,
I just read your post and thought the symtoms you describe fit the ones my
friend John has. He told me that he has lost weight over the past year. He
also told me that his shoulders and arms hurt especially his shoulders. He
calls them "sore" which is a good description I suspect knowing him. John
seldom reads the posts but I will forward this to him to see if he will
respond to you, or a least let me know if there is anything I can add to
help you. I hope this is of some help for you ...
*seattle* audrey friend of pwp aussie John 49/42/38 ?
----- Original Message -----
From: " Tony Leather at Home" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, May 08, 2000 4:42 AM
Subject: Some advice/help appreciated
> Best wishes
>
> Tony
>
> -----Original Message-----
> From: Tony Leather at Home [mailto:[log in to unmask]]
> Sent: 30 April 2000 20:22
> To: L-Soft list server at UofT (1.8d)
> Subject: Some advice appreciated
>
> Thanks for this terrific support site - it is great to be able to learn
&
> share with PWP friends.
>
> I am 54 and dxd for near on 4 years. I only take Ropinerole and follow a
> nutritional support programme, together with weekly acupuncture &
> fortnightly biofeedback sessions.
>
> I see my doc & neuro as little as is realistically possible. I work full
> time as an Education Director and am playing golf, tennis & squash.
>
> Unlike most other PWPs I have spoken to, I have experienced a significant
> weight gain and suffer from a lot of pain & discomfort across my shoulders
> and in my arms. I thought an exercise programme in the gym might help
with
> all this - anyone got any pearls of wisdom to impart?
>
> As an afterthought - I suffer from daily headaches - I guess this may be
the
> Ropinerole - any experiences of this anyone?
>
> Incidentally, there are some great tips for using shortcut keys if you
have
> difficulty with the mouse - visit http://officeupdate.microsoft.com
> <http://officeupdate.microsoft.com/> & download the Office shortcut keys.
> There are also some useful tips for customising your keyboard to avoid
that
> annoying repetition of letters in words.
>
>
> Stay well
>
>
> Best wishes
>
> Tony
>
=========================================================================
Date: Wed, 10 May 2000 10:46:30 +0100
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Sinead Aungier <[log in to unmask]>
Subject: depression
MIME-Version: 1.0
Content-Type: text/plain
> I had true clinical depression for several years and know all about it and
> drugs did me no good. I got out of it by eating foods high in vitamin C,
> such as potatoes, brocolli and cutting out foods that rob you of vitamins
> and also by maintaining a moderate body temperature. The medical
> profession know very little about depression and I had to get out of it
> myself. I find that when you're busy and achieving things this gives you
> a natural high which can only be good for you rather that being stuck in
> your thoughts thinking about your problems, which only reinforces this bad
> mental habit.
>
Sinead
=========================================================================
Date: Wed, 10 May 2000 03:54:42 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Audrey <[log in to unmask]>
Subject: Re: depression
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I am happy for you that your cd was diagnosed and cured. I do not intend
to argue the point, I only will restate the obvious. Cd is not a brain
disorder that can be*cured*. It is a condition that can be helped, however,
by medicine and by psychiatiatric counseling. It is as all have stated in
the past day, truly a hell to be in. No amount of nutrition can solve it any
more than exercise or sleep or ignoring it . It is a fact that we face each
morning and that we go to bed knowing it will still be there the next day.
There are degrees of cd, and of course all of the things I mentioned will
help...but they will not cure it nor make it go away. Only meds will
alleviate the symptoms and counseling help to understand why you have the
feelings you have. If vitamins or keeping busy were the right answers why
then would suicide seem a better alternative? To know that there is another
way to feel : To wake up one morning and find the dark tunnel is gone, just
as my doctor promised, is a miracle well worth the work it took to find it
and the pill I take to keep it away.
BTW.. I had 3 months of twice weekly counseling and then was referred to a
psychiatrist/neurologist for treatment when meds seemed appropriate. He
insisted that I be part of all the decisions from the beginning for my
mental health. This included the choice of the family of antidepressants
which Prozac represented. I was lucky, it worked just as promised, and
continues to work at the lowest dosage.
*Seattle* Audrey friend of pwp aussie John 49/42/38?
---- Original Message -----
From: " Sinead Aungier" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, May 10, 2000 2:46 AM
Subject: depression
> > I had true clinical depression for several years and know all about it
and
> > drugs did me no good. I got out of it by eating foods high in vitamin
C,
> > such as potatoes, brocolli and cutting out foods that rob you of
vitamins
> > and also by maintaining a moderate body temperature. The medical
> > profession know very little about depression and I had to get out of it
> > myself. I find that when you're busy and achieving things this gives
you
> > a natural high which can only be good for you rather that being stuck in
> > your thoughts thinking about your problems, which only reinforces this
bad
> > mental habit.
> >
> Sinead
>
=========================================================================
Date: Wed, 10 May 2000 12:08:17 +0100
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Sinead Aungier <[log in to unmask]>
Subject: Re: depression
MIME-Version: 1.0
Content-Type: text/plain
> ----------
> From: Audrey[SMTP:[log in to unmask]]
> Reply To: Parkinson's Information Exchange Network
> Sent: Wednesday, May 10, 2000 11:54 AM
> To: [log in to unmask]
> Subject: Re: depression
>
>
>
>
> I don't agree that only medication will alleviate the symptoms and I find
> that councelling only makes you dependant you your councellor to "fix" you
> and you give away your power to them. Any time I went to these people, I
> was worse after it. I found that I was focusing more inward and thinking
> about my problems more because I was trying to understand my problems. I
> decided to take action myself and quit these drugs that were doing me no
> good. I experimented and noticed that certain things would give me energy
> boosts and other things wouldn't. Gradually I got out of CD, and believe
> me I've been to the worst of it. Now, I don't get depressed very often,
> only the blues type of depression and I'm achieving great things....and
> all without medications
>
> --------------
> I am happy for you that your cd was diagnosed and cured. I do not
> intend
> to argue the point, I only will restate the obvious. Cd is not a brain
> disorder that can be*cured*. It is a condition that can be helped,
> however,
> by medicine and by psychiatiatric counseling. It is as all have stated in
> the past day, truly a hell to be in. No amount of nutrition can solve it
> any
> more than exercise or sleep or ignoring it . It is a fact that we face
> each
> morning and that we go to bed knowing it will still be there the next day.
> There are degrees of cd, and of course all of the things I mentioned will
> help...but they will not cure it nor make it go away. Only meds will
> alleviate the symptoms and counseling help to understand why you have the
> feelings you have. If vitamins or keeping busy were the right answers why
> then would suicide seem a better alternative? To know that there is
> another
> way to feel : To wake up one morning and find the dark tunnel is gone,
> just
> as my doctor promised, is a miracle well worth the work it took to find
> it
> and the pill I take to keep it away.
>
> BTW.. I had 3 months of twice weekly counseling and then was referred to a
> psychiatrist/neurologist for treatment when meds seemed appropriate. He
> insisted that I be part of all the decisions from the beginning for my
> mental health. This included the choice of the family of antidepressants
> which Prozac represented. I was lucky, it worked just as promised, and
> continues to work at the lowest dosage.
>
> *Seattle* Audrey friend of pwp aussie John 49/42/38?
>
>
> ---- Original Message -----
> From: " Sinead Aungier" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Wednesday, May 10, 2000 2:46 AM
> Subject: depression
>
>
> > > I had true clinical depression for several years and know all about it
> and
> > > drugs did me no good. I got out of it by eating foods high in vitamin
> C,
> > > such as potatoes, brocolli and cutting out foods that rob you of
> vitamins
> > > and also by maintaining a moderate body temperature. The medical
> > > profession know very little about depression and I had to get out of
> it
> > > myself. I find that when you're busy and achieving things this gives
> you
> > > a natural high which can only be good for you rather that being stuck
> in
> > > your thoughts thinking about your problems, which only reinforces this
> bad
> > > mental habit.
> > >
> > Sinead
> >
>
=========================================================================
Date: Wed, 10 May 2000 07:16:46 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: William Harshaw <[log in to unmask]>
Subject: Re: Bilateral high-frequency stimulation of the subthalamic
nucleus ( HPSTN )
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Ken,
I think by Dr. Andres Lozano at the Toronto Western Hospital
Cheers,
Bill
----- Original Message -----
From: "KEN CLEMENTS" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, May 09, 2000 8:21 AM
Subject: Bilateral high-frequency stimulation of the subthalamic nucleus
HPSTN )
> To PIEN Participants:-
>
> I came across a recent article on HPSTN which intrigued me . This new
> surgical treatment for PD is reported to be pioneered by a Dr. Alim
> Benabid in France and is now being studied somewhere in Canada.
> I searched the Parkinson's Archives for more information but came up
> blank.
> Does anyone have any other leads, more details, experiences ???
>
> Cheers, Ken Clements <[log in to unmask]>
>
=========================================================================
Date: Wed, 10 May 2000 07:24:22 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Re: Ivan's WHOM-FM radio Interview /copies
Comments: To: [log in to unmask]
Comments: cc: [log in to unmask], [log in to unmask],
[log in to unmask], [log in to unmask], [log in to unmask],
[log in to unmask], [log in to unmask], [log in to unmask],
[log in to unmask], [log in to unmask], [log in to unmask],
[log in to unmask], [log in to unmask], [log in to unmask],
[log in to unmask], [log in to unmask], [log in to unmask],
[log in to unmask], [log in to unmask],
[log in to unmask], [log in to unmask], [log in to unmask],
[log in to unmask], [log in to unmask], [log in to unmask]
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Dear PIEN members and friends,
Many of you will remember that, with my friends
helping me out, I sent you more than 70 videotapes
last August, of a 26-minute TV interview I had done
with the local United Paramount Network TV station,
WPME-TV. That tape, "TheChallenge of Young Parkinson's
Disease" has been extremely well-received, and still is in demand.
Now, these same friends and I are are starting to send out
audiocassettes,
in protective bubblepack envelopes, of my recent, 30-minute,
WHOM-FM radio broadcast, aired April 16, 2000.
Again, the demand is very heavy.
Anyone on PIEN can acquire an unlimited
number of copies, along with playback notes,
directly from Cureit Productions, my small,
kitchen-table company, by writing me at:
[log in to unmask]
I personally sign each enclosed playback guide,
and inspect each mailing before it goes out.
It still is wintry up here in the North, with cold,
rainy days in the 30's and 40's. That weather
causes my my PD symptoms to be more difficult at times,
so please be a bit patient.
I am getting a wonderful response. Fortunately, my voice is very
audible and
very rich, so the listening is easy. The audiocassette and
listening guide have gone out to the offices of Mr. Ali, Mr. Fox,
the APDA Young Onset center, and
to fill pre-interview requests from PIEN members.
The most complete 'review" can be
found on PIEN, May 6, 2000, by
PIEN member, Linda Herman.
Ivan Suzman
50/39/36
My surface-mail address is:
Cureit Productions,
c/o Ivan Suzman
9 Range Street
Portland Maine 04103-1135 USA
tel 207-797-5785
On Sun, 7 May 2000 20:42:31 -0400
chuck bulch <[log in to unmask]> writes:
> Diane,
> How do I get one of these tapes?
> Marie
>
> M. Marie McNeely
> 64/ 62/60?
>
> >
>
> Greg Sterling wrote:
>
> > Ivan,Greg and I both listened to your audio taped radio
> interview of
> > April 11th for Parkinson's Awareness Month. We both enjoyed it
> very
> > much and thought you did a wonderful job informing the public
> about
> > PD. We recommend others on the list purchase the tape to support
> your
> > cause. Diane (wife of Greg 47/35/35)
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 50/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses 37 rainy and cold wind
deg. F :-)
********************************************************************
=========================================================================
Date: Tue, 9 May 2000 22:59:10 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Beverly Forte <[log in to unmask]>
Subject: Depression
MIME-Version: 1.0
Content-Transfer-Encoding: 7bit
Content-Type: text/plain; boundary="WLdNFYJPbTAbOcIcbZWGEFHOCSYGPA";
charset="iso-8859-1"
Thank you Chuck for your story of faith in using PD as a teacher for
spiritual growth. My story is similar.
I am a behavioral medicine psychologist who was diagnosed with PD 9 years
ago while in graduate school. I was experiencing depressive symptoms before
my diagnosis. In addition to sadness and fatigue I was experiencing severe
sleep problems. After my diagnosis, I took a subtherapeutic dose of an
antidepressant to help stabilize my sleep problems. Do those of you feeling
"depressed" also have sleep problems? If so, I would suggest dealing
directly with the sleep. Lack of sleep alone can greatly contribute to
symptoms that look like PD progression - like fatigue, memory slippage,
irritability, sadness.There a medical and nonmedical remedies for sleep
problems. Those of you who need antidepressants, don't beat yourself up.
Depressive symtpoms are caused by low neurotransmitters. You can wait to
build them on your own as you deal with other issues or you can get a jump
start with medication. I believe it is OK to take meds when needed.
After my diagnosis, I continued to feel sadness - I was a self-employed
single parent in just finishing my PhD in psychology. But it was not the
psychology or the medication that has brought me to my current point of joy.
Thank you Chuck for your story of faith in using PD as a teacher for
spiritual growth. My story is similar. I thank God that I slowed down enough
to find out what living was about, even if it took PD to slow me down. My
faith in God's infinite Love gives me the peace of living in the NOW with
celebration and joy. I do not "cope" with my PD, I live and love abundantly.
My witness of joy, even on tough days, has touched the lives of others. They
look at me and feel blessed that they only lost a job or wrecked their car!
And for those that try to feel sorry for me I say "Please don't worry about
me! You could just as easily die of heart attack tomorrow!"
May God bless each of us. And Chuck, just because there's no record of a
healing of PD, there's no reason you or me or anyone else might not be the
first. Spiritual medicine is powerful. My prayers are with you.
Beverly
-----Original Message-----
From: Automatic digest processor <[log in to unmask]>
To: Recipients of PARKINSN digests <[log in to unmask]>
Date: Sunday, May 07, 2000 11:02 PM
Subject: PARKINSN Digest - 7 May 2000 (#2000-397)
-----Original Message-----
From: Automatic digest processor <[log in to unmask]>
To: Recipients of PARKINSN digests <[log in to unmask]>
Date: Sunday, May 07, 2000 11:02 PM
Subject: PARKINSN Digest - 7 May 2000 (#2000-397)
=========================================================================
Date: Wed, 10 May 2000 09:02:31 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Frans van Duinen <[log in to unmask]>
Organization: Master Programmer Group Inc.
Subject: Food & PD
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
I am looking for info on the benefits of certain food in the management of
PD/PD symptoms.
I found an interesting article at:
http://www.ionet.net/~jcott/homepage/archive/097.html
and someone here mentionned borscht (I think).
Then there is the effect of food (protein) on the absorption of L-dopa and
the management of drowsiness (blood sugar?)
Are there any other ideas?
--
--
Frans van Duinen
(416) 652-8580
Toronto, Ontario
=========================================================================
Date: Wed, 10 May 2000 10:07:37 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Camilla Flintermann <[log in to unmask]>
Subject: Re: Ivan's WHOM-FM radio Interview /copies
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Dear Ivan-- at our support group Tuesday I presented the message about the
audio tape, and we would like to buy one. We hope to get local radio
stations to use it.....BUT you still don't say what the cost, including s/h
will be---please let us all know (if I didn't miss it! )
>Dear PIEN members and friends,
>
>
>Many of you will remember that, with my friends
>helping me out, I sent you more than 70 videotapes
>last August, of a 26-minute TV interview I had done
>with the local United Paramount Network TV station,
>WPME-TV. That tape, "TheChallenge of Young Parkinson's
>Disease" has been extremely well-received, and still is in demand.
>
>Now, these same friends and I are are starting to send out
>audiocassettes,
>in protective bubblepack envelopes, of my recent, 30-minute,
>WHOM-FM radio broadcast, aired April 16, 2000.
> Again, the demand is very heavy.
Camilla Flintermann, CG for Peter 82/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
also, on PDWebring at http://members.tripod.lycos.nl/genugten/flinterm.htm
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
And visit the CARE webring at
http://www.crosswinds.net/~caregivers/index.html
=========================================================================
Date: Wed, 10 May 2000 15:53:32 +0100
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Sinead Aungier <[log in to unmask]>
Subject: Re: Food & PD
MIME-Version: 1.0
Content-Type: text/plain
> ----------
> From: Frans van Duinen[SMTP:[log in to unmask]]
> Reply To: [log in to unmask]
> Sent: Wednesday, May 10, 2000 3:02 PM
> To: [log in to unmask]
> Subject: Food & PD
>
>
>
>
>
> I saw a good article on the web on this subject, but can't remember the
> web address. I'll try to find it. One of the things it was recommending
> was antioxidants as a form of treatment
>
> Sinead
>
> ------------------
> I am looking for info on the benefits of certain food in the management of
> PD/PD symptoms.
> I found an interesting article at:
> http://www.ionet.net/~jcott/homepage/archive/097.html
> and someone here mentionned borscht (I think).
> Then there is the effect of food (protein) on the absorption of L-dopa
> and
> the management of drowsiness (blood sugar?)
>
> Are there any other ideas?
> --
> --
> Frans van Duinen
> (416) 652-8580
> Toronto, Ontario
>
=========================================================================
Date: Wed, 10 May 2000 10:27:59 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Frans van Duinen <[log in to unmask]>
Organization: Master Programmer Group Inc.
Subject: PD and coffee
MIME-Version: 1.0
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I find that drinking coffee agravates my PD symptoms, though not always to the
same extent. Even decaf seems to do it, though never to the degree.
Unfortunately, I still drink the stuff, houfh way less than I used to.
Has anyone else experienced that?
--
Frans van Duinen
(416) 652-8580
Toronto, Ontario
=========================================================================
Date: Wed, 10 May 2000 11:29:23 -0400
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
Subject: Re: PD and coffee
Comments: To: [log in to unmask]
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Dear Frans,
In my experience, some people with PD find that caffeine increases
tremor, while others find it gives them a little "energy boost" with no
ill effects. I don't think there is one single answer for all people
with PD; I think you need to determine what works best for you.
What about continuing to gradually cut back, to see if there is a "safe
level" of coffee for you? Or trying tea as a substitute, which has
somewhat less caffeine?
Best regards,
Kathrynne
Frans van Duinen wrote:
>
> I find that drinking coffee agravates my PD symptoms, though not always to the
> same extent. Even decaf seems to do it, though never to the degree.
> Unfortunately, I still drink the stuff, houfh way less than I used to.
>
> Has anyone else experienced that?
> --
> Frans van Duinen
> (416) 652-8580
> Toronto, Ontario
--
Kathrynne Holden, MS, RD
Author: "Eat well, stay well with Parkinson's disease"
"Constipation and Parkinson's" -- audiocassette & guidebook
"Guidelines for Medical Nutrition Therapy for Parkinson's disease"
& Risk Assessment Tools
"Risk for malnutrition and bone fracture in Parkinson's disease,"
J Nutr Elderly. V18:3;1999.
http://www.nutritionucanlivewith.com/
=========================================================================
Date: Wed, 10 May 2000 11:45:49 EDT
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Anne Martin <[log in to unmask]>
Subject: Care List
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Please send me the latest information on how to join the Care list. The
address I have for it is no longer correct and neither is the e-mail address
for Camilla Flinterman.
If you could send by e-mail rather than posting it, I'd appreciate it! Thank
you.
=========================================================================
Date: Wed, 10 May 2000 07:20:32 -0700
Reply-To: Constance Tate <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Constance Tate <[log in to unmask]>
Subject: Fw: mothers day
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----- Original Message -----
From: Constance Tate <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, May 09, 2000 10:48 PM
Subject: mothers day
> dear all
> here is a poem given to me just before i had my 7th child
> i thought i would share it with list so if anybody knows any mothers with
> a large family they could give it to them.
>
> ******************************************************************
> Count Your Blessings
>
> If the good Lord sends down a wee lassie to you,
> And then should happen to send ye another.
> Ye'll know He's approvin' o' ye as a Mother.
> Then if He chooses to offer ye three,
> 'Tis a diligent Mother ye happen to be,
> But if by some chance He should trust ye with four,
> Faith I'd not be surprised if He'd trust ye with more,
> But devil a few are the women alive
> That He's ever considered o' trustin' with five,
> He looks the world over and carefully picks,
> Just one in a thousand He'd ever give six,
> And be sure if He'd ever should bless ye with seven,
> Ye're a saint and ye're fit for the glories of Heaven.
> ***********************************************************************
>
> Happy Mothers Day to all Mothers
> love
> connie
>
>
>
>
>
>
>
>
=========================================================================
Date: Wed, 10 May 2000 18:51:41 +0200
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
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From: Maryse Schild <[log in to unmask]>
Subject: Re: Care List
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here is what I found:
NEWCOMERS TO THE PD LIST : DO YOU KNOW ABOUT "CARE" ?
CARE is a sublist of this one, which was created because it appeared
that
the caregivers (CGs)of people with Parkinsons (PWPs) needed a place
where
they could find support of all kinds, vent frustrations, and exchange
ideas
without fear of hurting anyone's feelings. It is, so to speak, a
"virtual"
support group, as many CGs do not have a local group , or are "long
distance CGs'".
The CARE list (Caregivers Are Really Essential) is much smaller than
the
main PD list, so there is less traffic daily and fewer messages to
read.
It does NOT shut off participation on the main PD list, although a few
CGs
find both lists are too much to follow, and decide to read only CARE.
We
operate through a listserv at Miami University in Oxford, OH, and are a
*closed* list, meaning that any CG who wishes to join should send to:
[log in to unmask]
this command --in body of post:--no signature, please:
SUBscribe CARE your full name
The request will be forwarded to the co-owners of the list, who will add
you, and send you further instructions.
Questions? Ask me--- Camilla Flintermann, [log in to unmask]
or---Jeff Jones, [log in to unmask]
Camilla Flintermann, CG for Peter 81/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
Camilla Flintermann, CG for Peter 81/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
=========================================================================
Date: Wed, 10 May 2000 14:11:40 -0400
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Kathy Greene <[log in to unmask]>
Subject: Re: PARKINSN Digest - 9 May 2000 to 10 May 2000 - Special issue
(#2000-403)
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Good description, remember when the mother of the paralyzed student from
Columbine shot herself? Several people around were amazed at how selfish
the act was. I always thought she must have thoughts like the ones you
mentioned. From her viewpoint in may have seemed a totally unselfish act,
to get out of the way. CD lets me understand that thought, medication
allows me to read it and see just how far off track it is.
".....A conviction that your death would be a gift to your family Believing
that death ts the only way your spouse will enjoy any remaining
lifetime,
it's up to you to set him free.
you have nothing of value for your children they would be better
off without you
=========================================================================
Date: Wed, 10 May 2000 14:15:38 -0400
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Kathy Greene <[log in to unmask]>
Subject: Re: PARKINSN Digest - 9 May 2000 to 10 May 2000 - Special issue
(#2000-403)
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The ability to organize and take the vitamins and get up and exercise and
use 'mind over matter' techniques is a sign to me that the sufferer did not
have a true clinical depression. I only wish I had had the inner resources
to do these things, then the CD would not have been such a depilitating
disease.
=========================================================================
Date: Wed, 10 May 2000 13:19:03 -0500
Reply-To: "Charles T. Meyer MD" <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: "Charles T. Meyer MD" <[log in to unmask]>
Subject: Re: depression
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I am sorry that you had to get out of the depression yourself but I disagree
strongly that the medical, profession knows little about depression and how
to treat it. If you are able to achieve things and get the natural high
that gives then probably you are not all that clinically Depressed. The
fact that you were able to shift your attitude without medications is useful
but does not prove that "the medical profession knows little about
depression." All it proves is we don't know as much as we would like to
know.
The issue is what is depression? Is it a medical illness that results from
the interaction of our genetic make-up and our experiences or is it a moral
weakness that one can talk one's self out of and that people get and keep
from doing something "wrong"? I personally see it as a medical illness with
meds and certain types of psychotherapy as being quite helpful in treating
most (but not all) people.
Depression is a brain disease just like PD. and requires medical treatment
like PD. Who- especially among this group would say that PD is not a brain
disease and the decreases of dopamine in the brain are just coincidences
that can be wished away. And who among us would say that MD's know little
about PD because they can't cure it? In fact in depression the "cure" or
remission rate is about 80+% with what we do know while with PD the cure
rate is zero. With depression we just know more about the illness'
treatment rather than its pathogenesis.
I am taking time to make these points because I fear that some people might
take what you did for yourself as a prescription for themselves and miss out
on what for many is a potentially lifesaving treatment.
Charlie
----- Original Message -----
From: "Sinead Aungier" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, May 10, 2000 4:46 AM
Subject: depression
> > I had true clinical depression for several years and know all about it
and
> > drugs did me no good. I got out of it by eating foods high in vitamin
C,
> > such as potatoes, brocolli and cutting out foods that rob you of
vitamins
> > and also by maintaining a moderate body temperature. The medical
> > profession know very little about depression and I had to get out of it
> > myself. I find that when you're busy and achieving things this gives
you
> > a natural high which can only be good for you rather that being stuck in
> > your thoughts thinking about your problems, which only reinforces this
bad
> > mental habit.
> >
> Sinead
=========================================================================
Date: Wed, 10 May 2000 11:16:30 -0700
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Barb_MSN <[log in to unmask]>
Subject: Re: Depression and Fatigue / cd or pd?
Carole, m'dear, you're my kinda gal! <BIG smile> I bet you'd
never apologize or come up with excuses for ordering that second
(or THIRD) scoop, either!
Barb Mallut
[log in to unmask]
-----Original Message-----
From: Carole Hercun <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Tuesday, May 09, 2000 6:06 PM
Subject: Re: Depression and Fatigue / cd or pd?
>Hi Barb: I vote for both the nap AND the ice cream, but
>then I've always been greedy. Carole
>
>
>--- Barb_MSN <[log in to unmask]> wrote:
>> I either take an hour's nap or go to the convenience
>> store and guy
>> a pint of ice cream to be eaten immediately upon
>> returning home.
>>
>> Just the anticipation is enough to wake me up! <GRIN>
>>
>> Barb Mallut (LOVE that Haagan Daz Coffee Toffee Crunch!)
>> [log in to unmask]
>>
>> -----Original Message-----
>> From: Charles E Murray <[log in to unmask]>
>> To: [log in to unmask]
>> <[log in to unmask]>
>> Date: Monday, May 08, 2000 8:57 PM
>> Subject: Re: Depression and Fatigue / cd or pd?
>>
>>
>> >. What do others do for this fatigue.... it's
>> >> debilitating!
>> >> >Clare Wilson (69/ 3 )
>> >>
>> >>
>> >> fatigue is now considered one of the five key symptoms
>> of pd
>> >>
>> >> when i 'run out of steam' i either rest and read for
>> awhile
>> >> or take a nap - 30 minutes usually does the trick
>> >>
>> >> there is no more point in 'fighting' pd-related
>> fatigue
>> >> than there is in 'fighting' pd-related tremor
>> >>
>> >> janet
>> >>
>> >> A great topic as this is the most difficult and
>> obstructive
>> problem for
>> >me as well, and Requip, a blessing in many ways, has
>> made
>> drowsiness much
>> >worse. Even a 59 I had not learned to nap effectively,
>> but I
>> agree with
>> >Janet that cooperating with the fatigue and doing what
>> it is
>> asking (lay
>> >down and close my eyes) works better than anything else.
>> There
>> are some
>> >drugs less habit forming than amphetamines that can be
>> prescribed
>> and
>> >while my specialist is willing to do so I want see if a
>> peaceful
>> >accommodation can be made before taking that step. I'm
>> sure open
>> to help
>> >in this area, however.
>> >
>> >Chuck
>
>
>__________________________________________________
>Do You Yahoo!?
>Send instant messages & get email alerts with Yahoo! Messenger.
>http://im.yahoo.com/
=========================================================================
Date: Wed, 10 May 2000 14:39:27 EDT
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Martin Taylor <[log in to unmask]>
Subject: Stiff leg syndrome
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I'm new to this scene & am already overwhelmed with the amount of useful
information plus the added junk.
Has anybody the time to read it?
I'm 63 , diagnosed about seven years ago. But still running my own small
architects practice but finding that my pace is getting slower. Fortunately I
dont have any tremor just stiffness on the right side. THe major problem is
numbness in my right knee which makes walking difficult & seems to lead to a
general feeling of lethargy. Has anybody else experienced this symptom? Is
there any treatment or suggestions?
I'm hoping that a research project in which I'm a participant may help.
The UNiversity of Westminster in London is conducting research into ways of
improving the quality of life for PD sufferers. It is running for about
18month & is about halfway thru.
THe trials consist of two groups one having therapeutic massage and the other
Alexander Technique sessions. with a third control group not having any
treatments.
I was in the Alexander group. For those of you who dont know about it. AT is
to do with positive body posture control, how to sit, walk, stand, bend and
even how to get out of bed without effort. Its effective & gentle. It has
made me much more aware of my body & how I misuse it. THe final results
should be published in about 18 months.
Finally has anyone any experience of adjustable beds? THe ones where the
mattress alters its contours. I have looked at many different types but am
still unsure which is the best for PD condition. Anyone have any advice?
Martin Taylor
=========================================================================
Date: Wed, 10 May 2000 12:16:36 -0700
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Murray Charters <[log in to unmask]>
Subject: Subscribe / UnSubscribe
Comments: To: Hilary Zunin <[log in to unmask]>
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On 9 May 2000, at 20:41, Hilary Zunin wrote:
> UNSUBSCRIBE
Hi Hilary,
All you need to do is send a two word message to the Listserv.
To: [log in to unmask]
Subject: leave blank
Body: SIGNOFF PARKINSN
Just 2 words, no signature, no subject, and send it to the LISTSERV... not
to PARKINSN....
It is pretty simple, but computers are not intuitive, so it must be
exactly as stated........ all the best ......... murray
Ps: Alternately, you could go to John Cottingham's site and just click on
the SIGNOFF button.... (Remove My Name From PARKINSN Please) The site is:
http://www.ionet.net/~jcott/parkmail/maillist.html
Now what if someone wants to Subscribe?
All you need to do is send a two word + your name message to the Listserv.
To: [log in to unmask]
Subject: leave blank
Body: SUBSCRIBE PARKINSN your first name your last name
Just 2 words followed by the subcribers name,
in my case SUBSCRIBE PARKINSN Murray Charters
in your case SUBSCRIBE PARKINSN xxxxxx yyyyyyyy
no signature, no subject, and send it to the LISTSERV... not
to PARKINSN....
Use the computer that you want signed onto the List (the LISTSERV
software automatically knows where to send the mail)
PS: Alternately, you could go to John Cottingham's site AT:
http://www.ionet.net/~jcott/parkmail/maillist.html
and just scroll down and click on the SUBSCRIBE button....
(Subcribe to PARKINSN Now)
For the real full tutorial you could go to Janet's web page at:
http://www.geocities.com/janet313/pienet/5th/basics.html
and read at your leisure...
the subscriptions - the basics
subscription instructions: - the short version
subscription instructions: - the long version
Or..... you could read John Cottingham's subscription tutorial at:
http://www.ionet.net/~jcott/parkmail/sub.html
There are most of the options (there's also Simon's site)
Now what could be easier than that????
:-) ......... murray
[log in to unmask]
=========================================================================
Date: Wed, 10 May 2000 15:52:53 -0400
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
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From: Michel Margosis <[log in to unmask]>
Subject: Re: Depression
Comments: To: Beverly Forte <[log in to unmask]>
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You seem to live up to your name, for 'Forte' in French means a strong
woman. But more than that, you give me an beneficent uplift, and I am
just a CG for my wife who's been afflicted for over 11 years. You
deserve more than a hug,
Michel
Beverly Forte wrote:
> ................................. I do not "cope" with my PD, I live and love
> abundantly.
> My witness of joy, even on tough days, has touched the lives of others. They
> look at me and feel blessed that they only lost a job or wrecked their car!
> And for those that try to feel sorry for me I say "Please don't worry about
> me! You could just as easily die of heart attack tomorrow!" .............
=========================================================================
Date: Wed, 10 May 2000 15:52:46 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Camilla Flintermann <[log in to unmask]>
Subject: Re: Subscribe / UnSubscribe
In-Reply-To: <39195324.30470.82DAF28@localhost>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Thanks, Murray-- you do a great job of "covering all the bases"-- the
simple email route, or the more complete instructions on the web from
Janet, John, and Simon. A good way to help those who and "web-free"---
Murray wrote in part:
>Hi Hilary,
>All you need to do is send a two word message to the Listserv.
SNIPPED
>Ps: Alternately, you could go to John Cottingham's site and just click on
>the SIGNOFF button.... (Remove My Name From PARKINSN Please) The site is:
>http://www.ionet.net/~jcott/parkmail/maillist.html
SNIPPED
>PS: Alternately, you could go to John Cottingham's site AT:
>
SNIPPED
>For the real full tutorial you could go to Janet's web page at:
>http://www.geocities.com/janet313/pienet/5th/basics.html
>and read at your leisure...
>
>the subscriptions - the basics
>
>subscription instructions: - the short version
>subscription instructions: - the long version
>
>Or..... you could read John Cottingham's subscription tutorial at:
>
>http://www.ionet.net/~jcott/parkmail/sub.html
>
>There are most of the options (there's also Simon's site)
>
Camilla Flintermann, CG for Peter 82/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
also, on PDWebring at http://members.tripod.lycos.nl/genugten/flinterm.htm
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
And visit the CARE webring at
http://www.crosswinds.net/~caregivers/index.html
=========================================================================
Date: Wed, 10 May 2000 16:07:06 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: depression /cd / bootstraps
You know, reading about other people going through depression as I have,
has been very enlightening. It means that other people know what it's
all about. We all seem to share the same feelings. Reading about this
has been more therapeutic than if I had taken meds, or if I had seen a
psychiatrist. Whether we are a PWP or a CG, or in my case, almost a CG,
the symptoms are still the same even though the reasons may be
different. Thanks to all of you "almost doctors" out there who have
helped all of us understand more about depression .In fact, this list
has been better for me than any other method. Let's continue to stick
together. Jo Ann from Houston
=========================================================================
Date: Wed, 10 May 2000 16:21:49 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Rick Everett <[log in to unmask]>
Subject: Re: Depression and Fatigue / cd or pd?
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I've just started experimenting with NADH and it seems to have fixed my
mid-day slump though am still shot by evening.
----- Original Message -----
From: janet paterson <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, May 08, 2000 4:54 PM
Subject: Re: Depression and Fatigue / cd or pd?
> At 03:28 PM 2000/05/08 EDT, Clare Wilson <[log in to unmask]> wrote:
> >Dennis, my MDS has recently discussed with me my complaint of
> >fatigue which has plagued me for months. She maintains that this
> >is related to depression, and I insist I am not depressed. My life is
> >busy and full of activities which I enjoy and friends with whom I share
> >much. But this fatigue has got to go, and I'm stuck with it. Yes, I
> >feel sad at times, and have many aches and pains, but mostly I go
> >ahead with my life. My doc didn't suggest an antidepressant nor did
> >I request one. What do others do for this fatigue.... it's debilitating!
> >Clare Wilson (69/ 3 )
>
>
> fatigue is now considered one of the five key symptoms of pd
>
> when i 'run out of steam' i either rest and read for awhile
> or take a nap - 30 minutes usually does the trick
>
> there is no more point in 'fighting' pd-related fatigue
> than there is in 'fighting' pd-related tremor
>
>
> janet
>
> janet paterson
> 53 now / 41 dx / 37 onset
> 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
> come visit my website "a new voice" at:
> http://www.geocities.com/janet313/
=========================================================================
Date: Wed, 10 May 2000 14:30:32 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charles E Murray <[log in to unmask]>
Subject: Re: depression
MIME-Version: 1.0
Content-Type: text/plain
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I have watched a blister grow on the skin of a hypnotised subject touched
by a finger tip, but told it was a lighted cigarette.
I have watched a brother with terminal liver and colon cancer, given a
two month prognosis by oncologists at the U of A (after surgery and
other medical efforts for two years failed to halt the spread), decline
chemo, adopt a macrobiotic food diet and the practice of meditation, then
be pronounced cancer free 13 months later.
Twenty years ago medical science denied any connection between diet and
cancer. Today this has changed, but scientists still resist the
possibility that diet can be curative. Few physicians would deny that,
at times, medical science finds intself playing "catch up," with
disciplines not restricted by the "scientific method" of research.
Witness the slow acknowledgement of the efficacy of accupuncture as one
example.
Studies have demonstrated that certain attitudes correlate with good and
bad prognoses in many illnesses.
My dad, troubled most of his life by migranes, learned biofeedback and
today has absolute control of migrane cycles, stopping them at the outset
with mental imagery.
Is it possible that, given the incredible power of our mind, we can
affect the physiology of our bodies, including the brain's chemical
balance, by the patterns of our thinking?
Sinead and I believe diet and "positive" thinking patterns can be
therapeutic because that has been our experience.
Some folks in 12 Step programs apply the rationale that if someone quit
drinking (using, etc.) without a 12 step program they must not have been
a real alcoholic (addict, etc.) in the first place. With this simple
logic they dismiss all input and declare irrelevant all experience from
such people under the conclusion that such folks are "not one of us.":
Are some of us using this same kind of logic to dismiss the experience of
those who say diet and positive thinking were effective in their
depression, i.e, "They were not suffering from true CD."
Wouldn't it be interesting if someday we determine that negative thinking
patterns change brain chemistry, and that, with rescue and transitional
help from anti depressant meds, diligent training in positive thought
patterns proves to be the best method of keeping brain chemistry healthy?
In the meantime, I'll keep taking my St. John's Wort and Requip for
whatever they have contributed to my coming "out of the darkness and into
the light." (Title of the book- written by a psychiatrist - that
boosted me down the path to peace of mind). And if I go back to a darker
place I will use all the resources I can find, medical and spiritual, to
come back out again.
Chuck
=========================================================================
Date: Wed, 10 May 2000 19:17:04 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Margaret Tuchman <[log in to unmask]>
Subject: Re: PA/NJ Visit next week
In-Reply-To: <v04220808b53b93277b06@[32.102.22.66]>
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What a bummer!! I would have enjoyed meeting you. I live in
Princeton - central NJ, but I am leaving to go to Texas on the
14th and returning on the 21st. Perhaps your business will bring
you to the east coast again, soon.
Margaret
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]]On Behalf Of Simon Coles
Sent: Sunday, May 07, 2000 6:47 PM
To: [log in to unmask]
Subject: PA/NJ Visit next week
Hi,
I'll be in Atlantic City next week for a conference (Mon - Thu)
and
will be in the general area from Sun 14th to Sat 20th (flying
in/out
of Philadelphia).
If any PARKINS list members living in the area would like to meet
up,
send me a mail off list to [log in to unmask] I've got a car so I
am
mobile (if a little lost sometimes....:-)
Simon
--------- My opinions are my own, NIP's opinions are
theirs ----------
Simon J. Coles Email:
[log in to unmask]
New Information Paradigms Work Phone: +44 1344
753703
http://www.nipltd.com/ Work Fax: +44 1344
753742
=============== Life is too precious to take seriously
===============
=========================================================================
Date: Wed, 10 May 2000 21:03:09 EDT
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Jo Ann Coen <[log in to unmask]>
Subject: Re: PA/NJ Visit next week
Margaret - Where in Texas are you coming? Maybe if you come close to
Houston, we can meet for coffee and talk. jo Ann from Houston
=========================================================================
Date: Wed, 10 May 2000 21:03:09 EDT
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Jo Ann Coen <[log in to unmask]>
Subject: Re: depression
What an interesting posting regarding positive thinking and proper
nutrition. Believe it or not, I have always believed that the power of
the mind far exceeds any chemical given it, although in some cases,
chemicals can give the boost one needs to get back on track. I have a
book I keep on my coffee table, called. "You CAN Heal Your Body". It
tells what it is in the thinking processes that cause certain illnesses,
and gives positive attitudinal thoughts toward that disease, as well as
affirmations to overcome it. Interesting enough, it says that PD is
caused by the extreme desire to control all situations, but being unable
to. Now whether that is true or not, it doesn't matter. What matters is
the ability to change your life by changing your thinking. Depression
has devastated me, but I was told that mine was a situational depression
(if there really is such a thing). I believe I wrote you, Chuck, on
your personal
mail and told you why. I do feel that some people can get over their
depression - at least for a while - where others need assistance.I
certainly am an advocate of proper vitamin intake, and B vitamins being
extremely important because they affect the nervous system.
It's too bad that today's doctor's only have a few hours study in
nutrition and vitamin importance. What they know had to be learned out
of residency by reading. Most of us would benefit greatly if we would
read up on it. I used to subscribe to Prevention Magazine, but it became
so commercial, I stopped my subscription. Yet they were correct in
stating that proper nutrition, exercize and good sleep, was very
important. Depresssion isn't always lack of "not doing anything", or "Not
eating correctly", etc. most of us are depressed because we feel,
"what's the use?" What comes first, the chicken or the egg? This is
especially true with PWP'S because they know - at this time - there is no
cure.
Yet, we can't give up hoping. None of us. Not the PWP's, not the CG's, or
almost CG's as I am. We have to keep hoping. I give credit to my PWP
and to William Parrette, both of whom seem to have the greatest positive
attitude of all. Jo Ann from Houston
=========================================================================
Date: Wed, 10 May 2000 21:27:46 -0400
Reply-To: Parkinson's Information Exchange Network
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From: Audrey <[log in to unmask]>
Subject: Re: depression
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Hi Chuck, I hear you and like what you say. I could wallow in my
exhaustion, grief, remorse, loneliness,
etc., and be on a downward slope or I can and do have my little cry and then
get busy and see if someone needs a friend or some work should be done, or
maybe it's time to take care of myself (which I had neglected)
Those things are helping me heal. But I think some are too far "down" to be
able to do it alone.
I learned at a very early age that the only thing I have control over is
myselfand I am a surviver.
Thanks so much for the sites you posted and all your posts. You are a deep
thinker. Cheers,
Audrey in Pa.
----- Original Message -----
From: Charles E Murray <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, May 10, 2000 5:30 PM
Subject: Re: depression
> I have watched a blister grow on the skin of a hypnotised subject touched
> by a finger tip, but told it was a lighted cigarette.
>
> I have watched a brother with terminal liver and colon cancer, given a
> two month prognosis by oncologists at the U of A (after surgery and
> other medical efforts for two years failed to halt the spread), decline
> chemo, adopt a macrobiotic food diet and the practice of meditation, then
> be pronounced cancer free 13 months later.
>
> Twenty years ago medical science denied any connection between diet and
> cancer. Today this has changed, but scientists still resist the
> possibility that diet can be curative. Few physicians would deny that,
> at times, medical science finds intself playing "catch up," with
> disciplines not restricted by the "scientific method" of research.
> Witness the slow acknowledgement of the efficacy of accupuncture as one
> example.
>
> Studies have demonstrated that certain attitudes correlate with good and
> bad prognoses in many illnesses.
>
> My dad, troubled most of his life by migranes, learned biofeedback and
> today has absolute control of migrane cycles, stopping them at the outset
> with mental imagery.
>
> Is it possible that, given the incredible power of our mind, we can
> affect the physiology of our bodies, including the brain's chemical
> balance, by the patterns of our thinking?
>
> Sinead and I believe diet and "positive" thinking patterns can be
> therapeutic because that has been our experience.
>
> Some folks in 12 Step programs apply the rationale that if someone quit
> drinking (using, etc.) without a 12 step program they must not have been
> a real alcoholic (addict, etc.) in the first place. With this simple
> logic they dismiss all input and declare irrelevant all experience from
> such people under the conclusion that such folks are "not one of us.":
>
> Are some of us using this same kind of logic to dismiss the experience of
> those who say diet and positive thinking were effective in their
> depression, i.e, "They were not suffering from true CD."
>
> Wouldn't it be interesting if someday we determine that negative thinking
> patterns change brain chemistry, and that, with rescue and transitional
> help from anti depressant meds, diligent training in positive thought
> patterns proves to be the best method of keeping brain chemistry healthy?
>
>
> In the meantime, I'll keep taking my St. John's Wort and Requip for
> whatever they have contributed to my coming "out of the darkness and into
> the light." (Title of the book- written by a psychiatrist - that
> boosted me down the path to peace of mind). And if I go back to a darker
> place I will use all the resources I can find, medical and spiritual, to
> come back out again.
>
> Chuck
=========================================================================
Date: Mon, 27 Aug 1956 20:46:15 +0000
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Hilary Blue <[log in to unmask]>
Subject: Re: PA/NJ Visit next week
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while we are on the subject of meeting each other - who is coming to the PAN
FORUM this year ?
hilary blue
Jo Ann Coen wrote:
>
> Margaret - Where in Texas are you coming? Maybe if you come close to
> Houston, we can meet for coffee and talk. jo Ann from Houston
=========================================================================
Date: Wed, 10 May 2000 23:43:21 -0400
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Barbara Patterson <[log in to unmask]>
Subject: Re: depression (not yet)
In-Reply-To: <000d01bfbae8$1f4bbee0$43041fd0@ujvnh>
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Hi, folks...last month, two faculty member at McMaster University
nominated me for a Woman of the Year Award in this area...the awards are
to be given out tomorrow evening...so, if you can spare some prayers or
kind thoughts, please feel free...not with the goal of winning but rather
that I don't trip and fall or spill my dinner in front of 500 people!
Barb :)
===========================================================================
Barbara Patterson [log in to unmask]
HSC 2J22 905-525-9140, ext. 22403
School of Nursing
===========================================================================
=========================================================================
Date: Wed, 10 May 2000 23:49:14 -0400
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Debra Maniscalco <[log in to unmask]>
Subject: Re: depression (not yet)
In-Reply-To: Barbara Patterson <[log in to unmask]>'s message of
Wed, 10 May 2000 23:43:21 -0400
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Barb, Congradulations, and best of luck!! Deb cg. Dad 67/12+
=========================================================================
Date: Wed, 10 May 2000 20:55:43 -0700
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
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From: "J. R. Bruman" <[log in to unmask]>
Subject: Re: depression (not yet)
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Barbara Patterson wrote:
>
> Hi, folks...last month, two faculty member at McMaster University
> nominated me for a Woman of the Year Award in this area...the awards are
> to be given out tomorrow evening...so, if you can spare some prayers or
> kind thoughts, please feel free...not with the goal of winning but rather
> that I don't trip and fall or spill my dinner in front of 500 people!
How about Woman Of The Century?
Joe
--
J. R. Bruman (818) 789-3694
3527 Cody Road
Sherman Oaks, CA 91403-5013
=========================================================================
Date: Wed, 10 May 2000 20:57:16 -0700
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
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From: "J. R. Bruman" <[log in to unmask]>
Subject: Currrent Science Reviews INDEX
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Current Science Reviews Index May 2000
In the 5½ years since I began posting the CSRs, we've seen
the advent of free PubMed, news services, archives and websites
galore (and dedicated listmembers like Judith Richards and Janet
Paterson to dig out every useful scrap) on PD-related info. You'd
think the CSRs were hopelessly passe, but no- I and, I think,
quite a few other listmembers still find them useful in their own
peculiar way. But I've quit posting one of the features most
useful to me, namely the monthly cumulative CSR Index. It now has
over 1500 entries that fill 25 pages, too big for e-mail. I've
considered and rejected some of the obvious alternatives, but
here is one that might work: If you really want to keep your own
personal file of the CSRs and their Index, I could copy the Index
to a 3½ inch floppy and send it to you by snailmail. The floppies
and mailers aren't too costly, and, depending on the demand, we
might work something out. Let me know, off-list, what you think.
Cheers,
Joe
--
J. R. Bruman (818) 789-3694
3527 Cody Road
Sherman Oaks, CA 91403-5013
=========================================================================
Date: Wed, 10 May 2000 20:36:05 -0700
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From: Benjamin Winter <[log in to unmask]>
Subject: biofeedback
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Charles Murray wrote: "... My dad, troubled most of his life
by migranes, learned BIOFEEDBACK and today has absolute
control of migrane cycles, stopping them at the outset with
mental imagery."
Does anyone have any [leads to] information re use of
biofeedback to manage PD symptoms?
Ben Winter, 66/66/64
Victoria BC Canada
=========================================================================
Date: Thu, 11 May 2000 00:11:00 -0400
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
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From: Cathy Morse <[log in to unmask]>
Subject: Re: depression
Comments: To: "Charles T. Meyer MD" <[log in to unmask]>
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Charlie,
Thank you for your words and medical perspective. As someone who has been
battling depression for five years now, it is very disturbing to me to have
this condition trivialized by the boot-strap and attitude types of arguments..
I struggle every day to have a positive attitude, and as Mr. parkinson takes
away more and more of my life, it becomes more and more difficult to maintain a
positive attitude. Parkinson's is horrible, but without my anti depression and
anti anxiety drugs and a wonderful therapist, I wouldn't be here today.
My husband has referred to me as his "half empty girl",. A title he doesn't
like after thinking about it for a while because It is too true. All of my
family is baffled by my lack of self-confidence. Do I try to look at myself as
others see me? You bet I do. When I look in the mirror, I see nothing special
or accomplished. When I hear the it's your attitude, diet, lack of guts attitude
it is just one more thing that I'm doing wrong. It is just one more thing I am
responsible and at fault for.
I have a great deal of respect for people like Chuck Murray who have and can
harness that positive attitude. Chuck probably did not intend his comments to be
taken so personally by anyone. (Then again maybe yes..) In either case, it
stikes me as if it is my failure. Every day I try to be positive because I don't
enjoy having an Eyore perspective and I hate it when the most pleasant daydream
turns nightmarish before i can stop the offending thought.
So thank you again, Charlie for coming to my defense.
Cathy
Charles T. Meyer MD" wrote:
> I am sorry that you had to get out of the depression yourself but I disagree
> strongly that the medical, profession knows little about depression and how
> to treat it. If you are able to achieve things and get the natural high
> that gives then probably you are not all that clinically Depressed. The
> fact that you were able to shift your attitude without medications is useful
> but does not prove that "the medical profession knows little about
> depression." All it proves is we don't know as much as we would like to
> know.
>
> The issue is what is depression? Is it a medical illness that results from
> the interaction of our genetic make-up and our experiences or is it a moral
> weakness that one can talk one's self out of and that people get and keep
> from doing something "wrong"? I personally see it as a medical illness with
> meds and certain types of psychotherapy as being quite helpful in treating
> most (but not all) people.
>
> Depression is a brain disease just like PD. and requires medical treatment
> like PD. Who- especially among this group would say that PD is not a brain
> disease and the decreases of dopamine in the brain are just coincidences
> that can be wished away. And who among us would say that MD's know little
> about PD because they can't cure it? In fact in depression the "cure" or
> remission rate is about 80+% with what we do know while with PD the cure
> rate is zero. With depression we just know more about the illness'
> treatment rather than its pathogenesis.
>
> I am taking time to make these points because I fear that some people might
> take what you did for yourself as a prescription for themselves and miss out
> on what for many is a potentially lifesaving treatment.
>
> Charlie
>
> ----- Original Message -----
> From: "Sinead Aungier" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Wednesday, May 10, 2000 4:46 AM
> Subject: depression
>
> > > I had true clinical depression for several years and know all about it
> and
> > > drugs did me no good. I got out of it by eating foods high in vitamin
> C,
> > > such as potatoes, brocolli and cutting out foods that rob you of
> vitamins
> > > and also by maintaining a moderate body temperature. The medical
> > > profession know very little about depression and I had to get out of it
> > > myself. I find that when you're busy and achieving things this gives
> you
> > > a natural high which can only be good for you rather that being stuck in
> > > your thoughts thinking about your problems, which only reinforces this
> bad
> > > mental habit.
> > >
> > Sinead
=========================================================================
Date: Thu, 11 May 2000 00:29:54 -0400
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From: Michel Margosis <[log in to unmask]>
Subject: Re: depression (not yet)
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Barb, you'll do just fine, even without my prayers, but with my support and
admiration for your achievements.
Fondly,
Michel
Barbara Patterson wrote:
> Hi, folks...last month, two faculty member at McMaster University
> nominated me for a Woman of the Year Award in this area...the awards are to be
> given out tomorrow evening...so, if you can spare some prayers or kind
> thoughts, please feel free...not with the goal of winning but rather that I
> don't trip and fall or spill my dinner in front of 500 people!
> Barb :)
=========================================================================
Date: Thu, 11 May 2000 01:04:44 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
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From: =?iso-8859-1?Q?=2A?= <[log in to unmask]>
Organization: [log in to unmask]
Subject: Ivan -- PD virus alert
Comments: To: "Clare D. Strand" <[log in to unmask]>
MIME-Version: 1.0
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Hi All:
Epstein-Barr virus was cultured in the Rochester, NY lab (were I used to work).
12 years prior to PD diagnosis.
I'll be curious to follow this research.
Ray
> E-MOVE reports from the 52nd Annual Meeting of the American Academy of
> Neurology, held in San Diego, California, 30 April-5 May 2000. Citation
> numbers below refer to abstracts of presentations and posters, which are
> published in Neurology 2000;54(suppl.3).
>
> Epstein-Barr virus latent membrane protein immunoreactivity in Lewy
> bodies: An example of molecular mimicry between EBV and alpha-synuclein
> JM Woulfe, DG Munoz
> P01.136
>
> An antibody against Epstein-Barr virus reacts with alpha-synuclein,
> according to this study.
>
> A monoclonal antibody was generated against Epstein-Barr virus latent
> membrane protein (EBV- LMP). Immunohistochemical analysis of
> antibody-protein interaction in normal brain showed "identical topographic
> and cellular patterns of distribution in all areas examined" for both the
> EBV-LMP antibody and other alpha-synuclein markers. Within Lewy bodies in
> PD brain, the pattern of distribution matched that of alpha-synuclein, but
> not ubiquitin, tau, or neurofilament protein. Direct interaction of the
> antibody with alpha-synuclein was confirmed by western blot and ELISA. The
> authors conclude, "Assuming that similar antibodies are generated during
> natural latent infection with EBV, these results could bear implications
> with respect to elucidating a virally initiated, autoimmune pathogenesis
> for Parkinson's disease, and, perhaps, for other ëalpha-
> synucleinopathies.'"
>
>
>
>
--
..........................................................................
Ray Strand
mailto:[log in to unmask]
48/47/45?
..........................................................................
...on the edge of the prairie abyss ......................
=========================================================================
Date: Wed, 10 May 2000 23:16:02 -0700
Reply-To: Parkinson's Information Exchange Network
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From: Charles E Murray <[log in to unmask]>
Subject: Re: PARKINSN Digest - ----: I swear my last share on depression
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Thanks Kathy,
you shared re the Columbine mom who committed suicide:
"From her viewpoint it may have seemed a totally unselfish act,
to get out of the way. CD lets me understand that thought, medication
allows me to read it and see just how far off track it is."
This explanation helps me understand, but also gives me some insight into
what I went through last year.
For some time after being diagnosed PWP I dwelled on doing my spouse a
favor by making sure the nice term insurance policy pays off before the
coverage expires. Six months ago this seemed like a very legitimate
concept and it absorbed a fair amount of my limited mental energy. More
importantly, it didn't seem spiritually inconsistent at the time. I
considered it probable that in 5 years when the insurance renewal rights
expire, my quality of life would be nearing an end and sneaking quietly
out of my body would be a two way gift for her, relieving her of
caretaker job and assuring financial security to the level I felt I
should have achieved by that time.
Some of us seem to be defining CD as a condition that only appropriate
medication can relieve, hence, ipso facto Sinead, I and anyone else who
emerged from the darkness without meds could not have had CD. OK, how
about a sort of junior type depression, sub clinical, or something like
that. This isn't a "my depression was worse than yours" discussion, and
I readily agree that when these thoughts, feelings and perhaps more
severe brain chemistry result in paralysis of action, medication is an
imparative, appropriate and stigma free course of treatment.
The following is therefore for those who haven't reached CD, or those on
med for CD who have recovered to the level where some conscious decision
making capacity returns, but perhaps they still feel a lack of joy in
living.
As I have shared before, when my PD specialist declined anti depressants,
I looked for the lessons of my pain, asked for Higher guidance in
understanding what love would teach me, and, with pain as the catalyst, I
let go of the was and yet to be, and settled into existence, for the
first time in my life, in NOW.
What a great place to be, because NOW doesn't need a five year plan. It
doesn't even allow a five year plan. In yet that last day of life
insurance coverage may still be etched in big letters at the end of a
dark tunnel of decreasing days. In NOW that tunnel doesn't even have an
entrance. When I am really NOW consciousness moves outward. When I was
living in the was and yet to be, I felt guilt and remorse for the was
that wasn't enough, and fear for the yet to be, since if my was was
imperfect, my yet to be would surely be a disaster. In NOW was and yet
don't exist, so there is nothing keeping me focused on myself, my needs,
my shortcomings, my failures, my future infirmity, etc.
Before NOW I was a black hole, sucking at the energy and attention of the
world around me and giving no light in return. In NOW I have become,
once again, a fully participating part of the IS in which we move
together, connecting with the world without exhausting those around me
with a constant tugging at their attention to meet my needs.
A perverse little part of me kind of misses the attention, the excuses PD
and my understandable despair made for me, the worried and sympathetic
looks. I kind of enjoyed my sub clinical depression and bending ears
with my misfortune. Hell, I still like the attention. On balance,
however, I'm glad the pain was intense enough for me to become willing
to be guided by a loving director into the safe haven of NOW. Being a
victim felt good in the spotlight, but when the lights were out between
was and yet and I was no longer the center of attention, I felt just
plain lousy.
If true CD contains none of these characteristics I describe, including
the little payoffs, but is purely a chemical condition with no causative
or recovery relationship to thought, then my experience is, as has been
inferred, irrelevant, indeed unhelpful to those with CD, and to those
folks I apologize if they take my thoughts as critical. It is not my
intention to criticize or judge, and since I think Guilt Sucks, certainly
not to suggest that these friends are weak willed or morally remiss. I
readily accept the possibility that my problems were a thinking disorder
and true CD's, in contrast, suffer purely from genetic or other chemical
problems.
But for those who have achieved substantial relief from the darkness with
medication, but still lack joy in their daily lives, perhaps my
experience can be helpful on the premise that a medically stablized CD,
who might incidentally also have some "stinking thinking," might benefit
from a change of perpective.
Chuck
=========================================================================
Date: Thu, 11 May 2000 01:33:05 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
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From: =?iso-8859-1?Q?=2A?= <[log in to unmask]>
Organization: [log in to unmask]
Subject: Re: Stiff leg syndrome
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Martin Taylor wrote:
> I'm new to this scene & am already overwhelmed with the amount of useful
> information plus the added junk.
>
One peron's junk is another's treasure.
I couldn't resist.
What gets posted here is very diverse, so don't hesitate in using
the delete key, when it gets to be a bit much.
>
> Has anybody the time to read it?
>
Maybe if you're retired.
After a while you get familiar with what is treasure or junk.
>
> I'm 63 , diagnosed about seven years ago. But still running my own small
> architects practice but finding that my pace is getting slower. Fortunately I
What kind of architecture--just curious.
I'll be building several geodesic domes on my land in western Minnesota,
overlooking the Abyss.
>
> dont have any tremor just stiffness on the right side. THe major problem is
> numbness in my right knee which makes walking difficult & seems to lead to a
> general feeling of lethargy. Has anybody else experienced this symptom? Is
> there any treatment or suggestions?
>
Best to talk to a neurologist...sounds like your "progression" is slow?
I didn't have a tremor until I started taking Sinemet, go figure. Rigidity in
my back and left wrist can be painful on occaission...rest and stretching or
next dose of medication helps.
Caution: numbness in knee may or may not be Parkinsonian...get it checked out.
One of our PD support group members just got a knee replacement--he is
almost 80.
>
> I'm hoping that a research project in which I'm a participant may help.
>
Sounds good.
>
> The UNiversity of Westminster in London is conducting research into ways of
> improving the quality of life for PD sufferers. It is running for about
> 18month & is about halfway thru.
>
> THe trials consist of two groups one having therapeutic massage and the other
> Alexander Technique sessions. with a third control group not having any
> treatments.
>
> I was in the Alexander group. For those of you who dont know about it. AT is
> to do with positive body posture control, how to sit, walk, stand, bend and
> even how to get out of bed without effort. Its effective & gentle. It has
> made me much more aware of my body & how I misuse it. THe final results
> should be published in about 18 months.
>
> Finally has anyone any experience of adjustable beds? THe ones where the
> mattress alters its contours. I have looked at many different types but am
> still unsure which is the best for PD condition. Anyone have any advice?
>
> Martin Taylor
Best of luck.
--
..........................................................................
Ray Strand
mailto:[log in to unmask]
48/47/45?
..........................................................................
...on the edge of the prairie abyss ......................
=========================================================================
Date: Thu, 11 May 2000 09:14:04 +0100
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Sinead Aungier <[log in to unmask]>
Subject: Re: depression
MIME-Version: 1.0
Content-Type: text/plain
> ----------
> From: Charles T. Meyer MD[SMTP:[log in to unmask]]
> Reply To: Charles T. Meyer MD
> Sent: Wednesday, May 10, 2000 7:19 PM
> To: [log in to unmask]
> Subject: Re: depression
>
>
>
> As already stated I AM not clinically depressed NOW. But I WAS for
> several years. I think I am more in a position to talk than someone who
> has never had clinical depression and I'll give you a list of my symptoms
> if you don't believe me. Suit yourself, know as little as YOU would like
> to know. I am not telling people to pull themselves together and talk
> themselves out of it. I said nothing like that. I said nothing about PD
> if you read my emails on this subject correctly and I didn't say that the
> medical profession know little about PD. I think people can decide for
> themselves.
>
> Sinead
>
>
> -------------
> I am sorry that you had to get out of the depression yourself but I
> disagree
> strongly that the medical, profession knows little about depression and
> how
> to treat it. If you are able to achieve things and get the natural high
> that gives then probably you are not all that clinically Depressed. The
> fact that you were able to shift your attitude without medications is
> useful
> but does not prove that "the medical profession knows little about
> depression." All it proves is we don't know as much as we would like to
> know.
>
> The issue is what is depression? Is it a medical illness that results
> from
> the interaction of our genetic make-up and our experiences or is it a
> moral
> weakness that one can talk one's self out of and that people get and keep
> from doing something "wrong"? I personally see it as a medical illness
> with
> meds and certain types of psychotherapy as being quite helpful in treating
> most (but not all) people.
>
> Depression is a brain disease just like PD. and requires medical
> treatment
> like PD. Who- especially among this group would say that PD is not a
> brain
> disease and the decreases of dopamine in the brain are just coincidences
> that can be wished away. And who among us would say that MD's know little
> about PD because they can't cure it? In fact in depression the "cure" or
> remission rate is about 80+% with what we do know while with PD the cure
> rate is zero. With depression we just know more about the illness'
> treatment rather than its pathogenesis.
>
> I am taking time to make these points because I fear that some people
> might
> take what you did for yourself as a prescription for themselves and miss
> out
> on what for many is a potentially lifesaving treatment.
>
> Charlie
>
> ----- Original Message -----
> From: "Sinead Aungier" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Wednesday, May 10, 2000 4:46 AM
> Subject: depression
>
>
> > > I had true clinical depression for several years and know all about it
> and
> > > drugs did me no good. I got out of it by eating foods high in vitamin
> C,
> > > such as potatoes, brocolli and cutting out foods that rob you of
> vitamins
> > > and also by maintaining a moderate body temperature. The medical
> > > profession know very little about depression and I had to get out of
> it
> > > myself. I find that when you're busy and achieving things this gives
> you
> > > a natural high which can only be good for you rather that being stuck
> in
> > > your thoughts thinking about your problems, which only reinforces this
> bad
> > > mental habit.
> > >
> > Sinead
>
=========================================================================
Date: Thu, 11 May 2000 10:28:03 +0200
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Chris van der Linden <[log in to unmask]>
Organization: AZ St. Lucas
Subject: Re: dbs
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
> could someone please inform as to the "typical" length of time in the
> hospital i could expect to spend when I have a dbs performed on me June
27.
> My hospital hasnt been anwering its phones at all today, and I need to
know!
> Thanx, mark
In our hospital DBS/STN is performed on both sides the same day (why subject
the patient to two days of surgery???) The implanted electrodes are than
connected to outside programmable stimulators for five to seven days and
immediately after the surgery the stimulators are switched on (there is no
reason whatsoever to delay the stimulation, if anything the delay of
stimulation will not help the patient at all). If the test stimulation is
effective and there are no complications, the definitive neuropacemakers
(Itrel III and NOT Itrel II) are implanted. Itrel III gives the patients the
opportunity with an external device ("remote control") to change the
voltage, the frequency and the pulse duration. The Itrel II has a strong
magentic device to switch the stim. on or off and is a pain in the neck for
most patients (much more outpatient visits to the doctor!!!!!).
Than the patient remains in the hosptital for another week for fine-tuning
of the neuropacemakers and is discharged with an optimal stimulation
programm.
Return to follow-up after one month.
The doctor uses a computer to change parameters if necessary. This device
should be handled by an experienced doctor and not by residents or
nurses!!!!!
A short stay in the hospital with such an important operation is poor
medical practice.
If any further questions, please don't hesitate to contact me through this
medium.
Always ask about the exact costs of the surgery and compare to other
centers.
The Itrel II, with the implanted electrode and wiring (a US made device) is
sold in Belgium for 200.000
Belgian francs which is approximately less than $ 5000
Best regards,
Chris van der Linden, M.D.
Movement Disorder Center
St. Lucas Hospital Ghent
Ghent
BELGIUM
=========================================================================
Date: Thu, 11 May 2000 04:41:35 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Stan or Joan Snyder <[log in to unmask]>
Subject: Re: Woman of The Year!!
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
You have my prayers, my best wishes and my vote for a lifetime
achievement award! Joan
--
Joan E. Snyder 48/10
[log in to unmask]
<http://members.tripod.lycos.nl/genugten/snyder.htm>
"Hang tough.....no way through it but to do it."
Chris-in-the-Morning (Northern Exposure)
=========================================================================
Date: Thu, 11 May 2000 06:53:21 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: depression (not yet)
Barbara P -Congratulations! What an honor. I was selected as the
Outstanding Realtor of the year, a few years back, walked up to get my
award, stood there and made an acceptance speech, got home and realized I
had forgotten to wear a slip under my white dress.
So believe me, you'll do fine. Jo Ann from Houston
=========================================================================
Date: Thu, 11 May 2000 07:05:03 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
Subject: Re: depression (not yet)
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Barb, this recognition is long-overdue. You have played a major role in
bringing PD to public awareness, not to mention raising awareness and
allowing for unique networking among people with PD and caregivers.
Whether you win or not, your work has been recognized -- and along with
it, greater awareness of PD.
My prayers will be that your work will receive its just due, and that
you will win the award, but in any case -- you truly ARE the Woman of
the Year!
Best regards,
Kathrynne
Barbara Patterson wrote:
>
> Hi, folks...last month, two faculty member at McMaster University
> nominated me for a Woman of the Year Award in this area...the awards are
> to be given out tomorrow evening...so, if you can spare some prayers or
> kind thoughts, please feel free...not with the goal of winning but rather
> that I don't trip and fall or spill my dinner in front of 500 people!
> Barb :)
>
> ============================================================================
> Barbara Patterson [log in to unmask]
> HSC 2J22 905-525-9140, ext. 22403
> School of Nursing
> ============================================================================
--
Kathrynne Holden, MS, RD
Author: "Eat well, stay well with Parkinson's disease"
"Constipation and Parkinson's" -- audiocassette & guidebook
"Guidelines for Medical Nutrition Therapy for Parkinson's disease"
& Risk Assessment Tools
"Risk for malnutrition and bone fracture in Parkinson's disease,"
J Nutr Elderly. V18:3;1999.
http://www.nutritionucanlivewith.com/
=========================================================================
Date: Thu, 11 May 2000 07:13:06 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Abe Sirota <[log in to unmask]>
Subject: Re: Bad reaction to sinemet, info please
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
I find sinemet one of the best, I take only sinemet and this makes me feel
good.It was doctors FRUCHT prescription.He stoped all other medication. ABE
=========================================================================
Date: Thu, 11 May 2000 07:19:44 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Abe Sirota <[log in to unmask]>
Subject: Re: Rigid Hamstring Relief
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
I find sinemet one of the best medication
ABA
=========================================================================
Date: Thu, 11 May 2000 07:36:35 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Hilary Blue <[log in to unmask]>
Subject: Re: Woman of The Year!!
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
forgive my ignorance: i must have missed something while my mouse was sick
-- who are you congratulating?
hilary
Stan or Joan Snyder wrote:
>
> You have my prayers, my best wishes and my vote for a lifetime
> achievement award! Joan
> --
> Joan E. Snyder 48/10
> [log in to unmask]
> <http://members.tripod.lycos.nl/genugten/snyder.htm>
> "Hang tough.....no way through it but to do it."
> Chris-in-the-Morning (Northern Exposure)
=========================================================================
Date: Thu, 11 May 2000 07:58:37 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Hilary Blue <[log in to unmask]>
Subject: go barb!!
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
WELL DONE BARB!
and apologies - in my present state of romantic delirium, i have been
refusing to read anything with the word depression in it!!!!
=========================================================================
Date: Thu, 11 May 2000 09:14:52 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Mary Ann Ryan <[log in to unmask]>
Subject: Re: Ivan -- PD virus alert
Comments: To: [log in to unmask]
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Regarding the Epstein-Barr virus....has anyone thought to track the
incidence of Alzheimers or PD in folks who have had Mono??
-----
God bless
Mary Ann
=========================================================================
Date: Thu, 11 May 2000 09:28:38 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: depression (not yet) / Woman of the Year Nominee!!!
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At 11:43 PM 2000/05/10 -0400, Barbara Patterson <[log in to unmask]> wrote:
>Hi, folks...last month, two faculty member at McMaster University
>nominated me for a Woman of the Year Award in this area...the awards
>are to be given out tomorrow evening...so, if you can spare some
>prayers or kind thoughts, please feel free...not with the goal of
>winning but rather that I don't trip and fall or spill my dinner
>in front of 500 people!
>Barb :)
what wonderful news, barb!
what is the group affiliation?
who are the other nomineees?
what are their chances?
but really ...
who cares!!!
your nomination is simply a public reflection
of the esteem that so many of us hold you in on a daily basis
and probably don't tell you often enough
this list has been a godsend to me
and due to its natural and energetic growth over 7 years
it is providing the same benefit to thousands of us around the world
... and its all your fault!!!
trip, fall, spill, break a leg!!!
with much love
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Thu, 11 May 2000 09:39:08 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Barbara Blake-Krebs <[log in to unmask]>
Subject: Re: Neuroleptic Malignant Syndrome - a survivor
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
I am a recent survivor of NMS. As my husband Fred Krebs wrote in mid-March,
2000, I was rushed to the hospital with renal failure, low blood pressure,
104-5' temperature brought on by increasingly violent dyskinesias over a
two-day period. I was in ICU for 5 days, acute care for over 3 weeks, and a
nursing home for 2 weeks. i am in the 3rd week of "home" recovery.
Fortunately, my renal function was not permanently damaged I am however
quite weak which affects my ability to walk and to work at any task for a
sustained period. Also, I have great discomfort from a tight, often
constricted, throat and swelling in mouth and throat.
Fred and I are working on a more complete summary of my case which we hope to
post in a few days. I feel lucky to be alive!
Barbara Blake-Krebs 59/44
Merriam KS
[log in to unmask] [log in to unmask]
In a message dated 5/7/00 PM, Joe Bruman writes:
<<
BUT, PWP should be extremely concerned and aware of a syndrome
usually
described as "like" (read: indistinguishable from) NMS,
associated not
with neuroleptics per se but with *abrupt reduction or
withdrawal* of
drugs that aren't neuroleptics, including some used to treat PD.
I
choose to call this "abrupt withdrawal syndrome" (AWS). Very
rare, to
be sure, but it only needs to happen once.
I haven't checked all the PD drugs that have been associated with
AWS,
but offhand I recall amantadine (Symmetrel), tolcapone (Tasmar),
and
carbidopa/levodopa (Sinemet). I would urge PWP to look up any
drug
they may be taking, in an authoritative reference such as the
PDR, to
see if AWS (my term) has been reported for that drug. If so, and
if
sudden withdrawal becomes necessary, it should be monitored by a
qualified professional. Cheers,
Joe
--
J. R. Bruman (818) 789-3694
3527 Cody Road
Sherman Oaks, CA 91403-5013
>>
=========================================================================
Date: Thu, 11 May 2000 09:40:26 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Dale Severance <[log in to unmask]>
Subject: Re: PA/NJ Visit next week
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Hi Hilary
I have made my reservations for the forum and will see you there
Dale Severance
=========================================================================
Date: Thu, 11 May 2000 08:48:01 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Phyllis Riely <[log in to unmask]>
Subject: Re: biofeedback
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I have used technique with success ,in pain from mussel spasm Phyllis
Riely
----- Original Message -----
From: Benjamin Winter <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, May 10, 2000 10:36 PM
Subject: biofeedback
> Charles Murray wrote: "... My dad, troubled most of his life
> by migranes, learned BIOFEEDBACK and today has absolute
> control of migrane cycles, stopping them at the outset with
> mental imagery."
>
> Does anyone have any [leads to] information re use of
> biofeedback to manage PD symptoms?
>
> Ben Winter, 66/66/64
> Victoria BC Canada
>
=========================================================================
Date: Thu, 11 May 2000 10:27:04 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: Currrent Science Reviews INDEX
Comments: To: [log in to unmask]
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 8bit
At 08:57 PM 2000/05/10 -0700, Joe Bruman <[log in to unmask]> wrote:
>Current Science Reviews Index May 2000
>
>In the 5½ years since I began posting the CSRs, we've seen
>the advent of free PubMed, news services, archives and websites
>galore (and dedicated listmembers like Judith Richards and Janet
>Paterson to dig out every useful scrap) on PD-related info. You'd
>think the CSRs were hopelessly passe, but no- I and, I think,
>quite a few other listmembers still find them useful in their own
>peculiar way. But I've quit posting one of the features most
>useful to me, namely the monthly cumulative CSR Index. It now has
>over 1500 entries that fill 25 pages, too big for e-mail. I've
>considered and rejected some of the obvious alternatives, but
>here is one that might work: If you really want to keep your own
>personal file of the CSRs and their Index, I could copy the Index
>to a 3½ inch floppy and send it to you by snailmail. The floppies
>and mailers aren't too costly, and, depending on the demand, we
>might work something out. Let me know, off-list, what you think.
>Cheers,
>Joe
hi joe
if you would like me to keep a full copy of the CSR index
in the 'pienet' section of 'a new voice'
i would be happy to do it
and it might be interesting to see how the site's own search engine
deals with the CSR!
janet
ps
updates are a given
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Thu, 11 May 2000 10:32:20 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Camilla Flintermann <[log in to unmask]>
Subject: Re: depression (not yet)
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Hi Barb-- this is wonderful---may I say that it couldn't happen to a nicer
or more deserving person !
We're all rooting for you!
>Hi, folks...last month, two faculty member at McMaster University
>nominated me for a Woman of the Year Award in this area...the awards are
>to be given out tomorrow evening...so, if you can spare some prayers or
>kind thoughts, please feel free...not with the goal of winning but rather
>that I don't trip and fall or spill my dinner in front of 500 people!
>Barb :)
>
>============================================================================
>Barbara Patterson [log in to unmask]
>HSC 2J22 905-525-9140, ext. 22403
> School of Nursing
>============================================================================
Camilla Flintermann, CG for Peter 82/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
also, on PDWebring at http://members.tripod.lycos.nl/genugten/flinterm.htm
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
And visit the CARE webring at
http://www.crosswinds.net/~caregivers/index.html
=========================================================================
Date: Thu, 11 May 2000 10:39:41 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: QT: tailor
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
if you are out to describe the truth
leave elegance to the tailor
albert einstein
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Thu, 11 May 2000 10:35:04 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Poems by Bob Armentrout on the wwweb
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
hi all
bob 'tex' armentrout's collection of poetry
has been installed at 'a new voice' [in the 'pienet/words/nuggets' section]:
"http://www.geocities.com/janet313/pienet/boba/index.html"
there are two formats:
the main index takes you to the individual poems on individual web pages
while a secondary index takes you to a single large document containing all poems
[for easier downloading/printing if needed]
in gratitude
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Thu, 11 May 2000 11:11:17 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bob Anibal <[log in to unmask]>
Subject: Re: depression (not yet) / Woman of the Year Nominee!!!
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
If you don't win , I think we should cry foul and the election rigged
Love to a real sweetheart
Bob A.
----- Original Message -----
From: "janet paterson" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, May 11, 2000 9:28 AM
Subject: Re: depression (not yet) / Woman of the Year Nominee!!!
At 11:43 PM 2000/05/10 -0400, Barbara Patterson
<[log in to unmask]> wrote:
>Hi, folks...last month, two faculty member at McMaster University
>nominated me for a Woman of the Year Award in this area...the awards
>are to be given out tomorrow evening...so, if you can spare some
>prayers or kind thoughts, please feel free...not with the goal of
>winning but rather that I don't trip and fall or spill my dinner
>in front of 500 people!
>Barb :)
what wonderful news, barb!
what is the group affiliation?
who are the other nomineees?
what are their chances?
but really ...
who cares!!!
your nomination is simply a public reflection
of the esteem that so many of us hold you in on a daily basis
and probably don't tell you often enough
this list has been a godsend to me
and due to its natural and energetic growth over 7 years
it is providing the same benefit to thousands of us around the world
... and its all your fault!!!
trip, fall, spill, break a leg!!!
with much love
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Thu, 11 May 2000 10:37:20 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Hawkins, Darwin" <[log in to unmask]>
Subject: AN "OUTSIDER'S" VIEW OF DEPRESSION
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Friends,
I forwarded one of the e-mails (Chuck's) about CD to a close friend because
of a discussion we had the other day. He is a recovered (in my opinion not a
recovering) alcoholic (for 17 years now). What prompted the conversation was
at his daughter's wedding two weeks ago, he had to propose a toast using a
glass of Champaign at the wedding cake table. He did well. I noticed and
commented later that he only pretended to take a sip from the glass. I told
him I admired his commitment to never again take a drink.
We got to discussing how he overcome the addiction. He said his wife still
to this day is in denial that he either was never an alcoholic or he has not
completed the recovery because he did not go through the 12 step program.
Wine, beer, and spirits are still kept and served on occasion in their home.
His response to the e-mail follows. I thought it appropriate to share with
all of you. BTW, he is the editor of one of my flying club's newsletter and
is also writing a Steven King type horror novel. Very articulate gentleman
and I am happy to count him as one of my very close friends.
Darwin
- - - - - - - - - - -
> This is an interesting piece. Here is my take on the 12 Step idea that
> some
> people have. I believe that they reject the idea of anyone handling their
> problems in a different manners than they did because it makes them feel
> inferior. If they acknowledge that other people can achieve what they did
> without meetings, programs and support groups they view the other person
> as
> more capable and themselves less capable. Thus they take the position
> that
> the other person didn't really have a problem because "there is no other
> way
> to fix this problem other than the one I used."
>
> Its sad that these people don't realize that it is always the individual
> who
> fixes their own problem. Turning problems over to God is a way to allow
> themselves a little breathing room. By telling themselves that they no
> longer have to worry about a problem it allows them to step back and get
> some perspective on it. Most of our problems are not as bad as they seem
> to
> the individual. By mentally dumping the worry, which debilitates the
> person, they can then take steps to fix the problem because they don't
> have
> to worry about failing.
>
> I have always thought that depression was brought on by peoples' negative
> thinking and self absorption. There seems to always be a cause that
> triggers this in the person. Perhaps there are some people who simply get
> depressed for no reason but I think the majority of people do this based
> upon a loss in their life. A loss of a loved one, loss of a job, natural
> disaster that destroys a home, etc. They spend too much time dwelling on
> what they no longer have instead of being grateful for what they did have
> for so long. This limits the person's ability to see other
> possibilities...which makes them dwell on their loss....which limits their
> ability to see....until they spiral down to a position of total
> hopelessness. Its true that brain chemistry affects our emotions and
> ability to handle problems. Some of the anti-depressant drugs allow
> people
> to jump ahead by bringing their brain chemistry back close to normal.
> However, if they don't learn to be positive and handle life's problems
> without giving up they are just setting themselves up for another
> depressive
> state. Too many people think the answer is just more pharmaceuticals.
> Like
> the 12 step people, they get the notion that it is not possible to fix a
> problem any other way. If a person can do it they are viewed as not
> really
> having a problem. Pretty sad.
>
> -----Original Message-----
> From: Hawkins, Darwin
> To: XXXXXXXXXX
> Sent: 5/11/00 9:16 AM
> Subject: FW: depression
>
> I'm sending this to you (came in on my Parkinson's Information Exchange
> Network e-mail) in light of what we were discussing the other day about
> the
> 12 step program. Maybe we do have the capability of mind over matter!
>
> > ----------
> > From: Charles E Murray[SMTP:[log in to unmask]]
> > Sent: Wednesday, May 10, 2000 4:30 PM
> > Subject: Re: depression
> >
> > I have watched a blister grow on the skin of a hypnotized subject
> touched
> > by a finger tip, but told it was a lighted cigarette.
> >
> > I have watched a brother with terminal liver and colon cancer, given
> a
> > two month prognosis by oncologists at the U of A (after surgery and
> > other medical efforts for two years failed to halt the spread),
> decline
> > chemo, adopt a macrobiotic food diet and the practice of meditation,
> then
> > be pronounced cancer free 13 months later.
> >
> > Twenty years ago medical science denied any connection between diet
> and
> > cancer. Today this has changed, but scientists still resist the
> > possibility that diet can be curative. Few physicians would deny
> that,
> > at times, medical science finds itself playing "catch up," with
> > disciplines not restricted by the "scientific method" of research.
> > Witness the slow acknowledgment of the efficacy of acupuncture as
> one
> > example.
> >
> > Studies have demonstrated that certain attitudes correlate with good
> and
> > bad prognoses in many illnesses.
> >
> > My dad, troubled most of his life by migraines, learned biofeedback and
> > today has absolute control of migraine cycles, stopping them at the
> outset
> > with mental imagery.
> >
> > Is it possible that, given the incredible power of our mind, we can
> > affect the physiology of our bodies, including the brain's chemical
> > balance, by the patterns of our thinking?
> >
> > Sinead and I believe diet and "positive" thinking patterns can be
> > therapeutic because that has been our experience.
> >
> > Some folks in 12 Step programs apply the rationale that if someone
> quit
> > drinking (using, etc.) without a 12 step program they must not have
> been
> > a real alcoholic (addict, etc.) in the first place. With this simple
> > logic they dismiss all input and declare irrelevant all experience
> from
> > such people under the conclusion that such folks are "not one of us.":
> >
> > Are some of us using this same kind of logic to dismiss the experience
> of
> > those who say diet and positive thinking were effective in their
> > depression, i.e, "They were not suffering from true CD."
> >
> > Wouldn't it be interesting if someday we determine that negative
> thinking
> > patterns change brain chemistry, and that, with rescue and
> transitional
> > help from anti depressant meds, diligent training in positive thought
> > patterns proves to be the best method of keeping brain chemistry
> healthy?
> >
> >
> > In the meantime, I'll keep taking my St. John's Wort and Requip for
> > whatever they have contributed to my coming "out of the darkness and
> into
> > the light." (Title of the book- written by a psychiatrist - that
> > boosted me down the path to peace of mind). And if I go back to a
> darker
> > place I will use all the resources I can find, medical and spiritual,
> to
> > come back out again.
> >
> > Chuck
> >
>
=========================================================================
Date: Thu, 11 May 2000 10:44:08 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: doublea <[log in to unmask]>
Subject: Re: Ivan -- PD virus alert
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
for what it's worth, the last extensive blood work up I had done showed that
at one time i had mono - it would be interesting to see how many of us have
had it.
bob aka tex
----- Original Message -----
From: "Mary Ann Ryan" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, May 11, 2000 8:14 AM
Subject: Re: Ivan -- PD virus alert
> Regarding the Epstein-Barr virus....has anyone thought to track the
> incidence of Alzheimers or PD in folks who have had Mono??
> -----
> God bless
> Mary Ann
>
=========================================================================
Date: Thu, 11 May 2000 10:46:49 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: doublea <[log in to unmask]>
Subject: Re: depression (not yet) / Woman of the Year Nominee!!!
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
----- Original Message -----
From: "Bob Anibal" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, May 11, 2000 10:11 AM
Subject: Re: depression (not yet) / Woman of the Year Nominee!!!
> If you don't win , I think we should cry foul and the election rigged
> Love to a real sweetheart
> Bob A.
> ----- Original Message -----
> From: "janet paterson" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Thursday, May 11, 2000 9:28 AM
> Subject: Re: depression (not yet) / Woman of the Year Nominee!!!
>
>
> At 11:43 PM 2000/05/10 -0400, Barbara Patterson
> <[log in to unmask]> wrote:
> >Hi, folks...last month, two faculty member at McMaster University
> >nominated me for a Woman of the Year Award in this area...the awards
> >are to be given out tomorrow evening...so, if you can spare some
> >prayers or kind thoughts, please feel free...not with the goal of
> >winning but rather that I don't trip and fall or spill my dinner
> >in front of 500 people!
> >Barb :)
>
>
> what wonderful news, barb!
>
> what is the group affiliation?
> who are the other nomineees?
> what are their chances?
>
> but really ...
> who cares!!!
>
> your nomination is simply a public reflection
> of the esteem that so many of us hold you in on a daily basis
> and probably don't tell you often enough
>
> this list has been a godsend to me
> and due to its natural and energetic growth over 7 years
> it is providing the same benefit to thousands of us around the world
>
> ... and its all your fault!!!
>
> trip, fall, spill, break a leg!!!
>
>
> with much love
>
> janet
>
> janet paterson
> 53 now / 41 dx / 37 onset
> 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
> come visit my website "a new voice" at:
> http://www.geocities.com/janet313/
>
=========================================================================
Date: Thu, 11 May 2000 10:47:05 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: doublea <[log in to unmask]>
Subject: Re: depression (not yet) / Woman of the Year Nominee!!!
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
You have my congratulations and my best wishes, Good luck, Barb!
the other bob a AKA tex
----- Original Message -----
From: "Bob Anibal" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, May 11, 2000 10:11 AM
Subject: Re: depression (not yet) / Woman of the Year Nominee!!!
> If you don't win , I think we should cry foul and the election rigged
> Love to a real sweetheart
> Bob A.
> ----- Original Message -----
> From: "janet paterson" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Thursday, May 11, 2000 9:28 AM
> Subject: Re: depression (not yet) / Woman of the Year Nominee!!!
>
>
> At 11:43 PM 2000/05/10 -0400, Barbara Patterson
> <[log in to unmask]> wrote:
> >Hi, folks...last month, two faculty member at McMaster University
> >nominated me for a Woman of the Year Award in this area...the awards
> >are to be given out tomorrow evening...so, if you can spare some
> >prayers or kind thoughts, please feel free...not with the goal of
> >winning but rather that I don't trip and fall or spill my dinner
> >in front of 500 people!
> >Barb :)
>
>
> what wonderful news, barb!
>
> what is the group affiliation?
> who are the other nomineees?
> what are their chances?
>
> but really ...
> who cares!!!
>
> your nomination is simply a public reflection
> of the esteem that so many of us hold you in on a daily basis
> and probably don't tell you often enough
>
> this list has been a godsend to me
> and due to its natural and energetic growth over 7 years
> it is providing the same benefit to thousands of us around the world
>
> ... and its all your fault!!!
>
> trip, fall, spill, break a leg!!!
>
>
> with much love
>
> janet
>
> janet paterson
> 53 now / 41 dx / 37 onset
> 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
> come visit my website "a new voice" at:
> http://www.geocities.com/janet313/
>
=========================================================================
Date: Thu, 11 May 2000 10:51:10 -0500
Reply-To: "Charles T. Meyer MD" <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Charles T. Meyer MD" <[log in to unmask]>
Subject: Re: depression (not yet)
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Good Luck Barb,
If you don't win remember that you've already won the person of the
millenium award from us. And which counts more a vote of 1900 or the award.
from McMaster. Virtually voting we can ignore your falls just as you can
ignore our drools, falls dyskinesias and accidents. That is what makes
what you have done with the list so great. We can and do relate to each
other as "whole" people even though society might see us as "different" or
even "frightening" and discount our contributions So whether or not you get
the award or whether or not you fall on your face or dump your dinner you
are already person of the millenium for me and I am sure the list.
Charlie
.
----- Original Message -----
From: "Barbara Patterson" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, May 10, 2000 10:43 PM
Subject: Re: depression (not yet)
> Hi, folks...last month, two faculty member at McMaster University
> nominated me for a Woman of the Year Award in this area...the awards are
> to be given out tomorrow evening...so, if you can spare some prayers or
> kind thoughts, please feel free...not with the goal of winning but rather
> that I don't trip and fall or spill my dinner in front of 500 people!
> Barb :)
>
>
===========================================================================
> Barbara Patterson
[log in to unmask]
> HSC 2J22 905-525-9140, ext. 22403
> School of Nursing
>
===========================================================================
=========================================================================
Date: Thu, 11 May 2000 11:58:24 -0400
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Michel Margosis <[log in to unmask]>
Subject: Re: Woman of The Year!!
Comments: To: Blue Hilary <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Hilary, your mouse needs catnip...and you need a catnap...
The award is for Barbara P. founder of this list.
Michel
Hilary Blue wrote:
> forgive my ignorance: i must have missed something while my mouse was sick
> -- who are you congratulating?
=========================================================================
Date: Thu, 11 May 2000 11:00:37 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: =?iso-8859-1?Q?=2A?= <[log in to unmask]>
Organization: [log in to unmask]
Subject: Re: Currrent Science Reviews INDEX
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii; x-mac-type="54455854";
x-mac-creator="4D4F5353"
Content-Transfer-Encoding: 7bit
janet paterson wrote:
snipped csr snail mail & discs & handling info, etc...hassels...
thanks for the offer--almost placed my order, but,
looks like a better plan from janet!
> >Cheers,
> >Joe
>
> hi joe
>
> if you would like me to keep a full copy of the CSR index
> in the 'pienet' section of 'a new voice'
> i would be happy to do it
>
> and it might be interesting to see how the site's own search engine
> deals with the CSR!
>
> janet
>
> ps
> updates are a given
--good idea
--effective use of mass communicastion technologies
--on the ball as usual
--i hope joe takes you up on your gracious offer.
--
..........................................................................
Ray Strand
mailto:[log in to unmask]
48/47/45?
..........................................................................
...on the edge of the prairie abyss ......................
=========================================================================
Date: Thu, 11 May 2000 12:18:11 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: NEWS: Newscan: Internet Gender Gap Has Closed In U.S.
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
INTERNET GENDER GAP HAS CLOSED IN U.S.
According to a study by the Pew Research Center, 46% of Web surfers are now
female, compared with just 18% in 1996. Much of the "gender gap" has closed
in the last six months, during which 9 million American women went online
for the first time. After surveying 3,533 adults in March, Pew researchers
concluded that men and women spent roughly equal time online, with women
tending to frequent health and medical sites, and men using the Net to
research product information and trade stocks. The findings mirror those of
another market research study released last month by the Angus Reid Group of
Vancouver, Canada, which said American men and women spend equal time
surfing the Net and placing online shopping orders. And in contrast to some
earlier reports, the two recent studies found that being online contributes
to social interaction and family connections, rather than fueling isolation
and depression. "The Internet is not isolationist; it's 'connectionist,'"
says Pew official Lee Rainie. (Los Angeles Times 11 May 2000)
"http://www.latimes.com/business/20000511/t000044476.html"
"http://www.newsscan.com/newsscan/newscup.html"
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Thu, 11 May 2000 11:27:05 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Hawkins, Darwin" <[log in to unmask]>
Subject: HMO Better Blues
MIME-Version: 1.0
My daughter-in-law just sent this to me. Thought the list needs a good
laugh. I believe I've been to this Doctor's office!
> HMO BETTER BLUES
> by Joe Dion
> _________________________
>
> A man walked into a doctor's office and the receptionist
> asked him what he had. He replied, "I got shingles."
>
> She said, "Fill out this form and supply your name, address,
> medical insurance number. When you're done, please take a
> seat."
>
> Fifteen minutes later a nurse's aide came out and asked him
> what he had. He said, "I got shingles."
>
> So she took down his height, weight, and complete medical
> history, then said, "Change into this gown and wait in the
> examining room."
>
> A half hour later a nurse came in and asked him what he had.
> He said, "I got shingles."
>
> So she gave him a blood test, a blood pressure test, an
> electrocardiogram, and told him to wait for the doctor.
>
> An hour later the doctor came in and asked him what he had.
> He said, "Shingles."
>
> The doctor gave him a full-cavity examination, and then said,
> "I just checked you out thoroughly, and I can't find shingles
> anywhere."
>
> The man replied, "They're outside in the truck. Where do you
> want them?"
>
>
=========================================================================
Date: Thu, 11 May 2000 12:29:18 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: [log in to unmask]
Subject: Re: Ivan -- PD virus alert
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Re: exposure to or having had "mono" virus...
I recall in the 60's reading an article that "mono" was a disease of the
affluent...this was published by a researcher at the Fox Chase Cancer Center
I believe. The gist of the study was.....Virtually every child in public
(welfare) clinics in inner cities tested positive for the virus at a very
young age (and also some tribal communities in less industrial countries)
because of exposure....however, the disease was prevalent among college
students in the US because it was the first time these "affluent" youngsters
had been in mass housing situations and a lot of group interactions......and
therefore did not have the immunity built up from earlier exposure.
This, I would assume sorta blows the theory of a link between PD/mono.
Rita
=========================================================================
Date: Thu, 11 May 2000 11:41:43 -0500
Reply-To: "Charles T. Meyer MD" <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Charles T. Meyer MD" <[log in to unmask]>
Subject: Re: depression
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Sinead and List,
In looking at my replies to you and others I realize that in an effort to
promote my medical view of depression I may have been interpreted as putting
down non-conventional therapies. I think that they at times might be quite
helpful. Certainly biofeedback can be useful in breaking certain cycles.
St. John's Wort has some data which supports its use in mild depressions
(although it also it also decreases the effectiveness of birth control
pills) Acupuncture might have a role in certain illnesses. And that old
placebo effect undoubtedly makes certain people better because they want to
and are doing something. In testing new antidepressants 1/3 of depressed
people get better from placebo while 2/3 improve with any particular drug.
The trick is the 1/3 that gets better from the drug not all respond to the
same drug. What my point is is that one should not reject standard medical
treatment of depression and continue to spiral down. If a non standard
treatment works and it is not harmful then by all means use it. But don't
reject meds because of the bad experiences of someone on the internet.
BTW I did not mean to imply that you made any reference to PD. The
comparison was mine not yours.
Charlie
----- Original Message -----
From: "Sinead Aungier" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, May 11, 2000 3:14 AM
Subject: Re: depression
> > ----------
> > From: Charles T. Meyer MD[SMTP:[log in to unmask]]
> > Reply To: Charles T. Meyer MD
> > Sent: Wednesday, May 10, 2000 7:19 PM
> > To: [log in to unmask]
> > Subject: Re: depression
> >
> >
> >
> > As already stated I AM not clinically depressed NOW. But I WAS for
> > several years. I think I am more in a position to talk than someone who
> > has never had clinical depression and I'll give you a list of my
symptoms
> > if you don't believe me. Suit yourself, know as little as YOU would
like
> > to know. I am not telling people to pull themselves together and talk
> > themselves out of it. I said nothing like that. I said nothing about
PD
> > if you read my emails on this subject correctly and I didn't say that
the
> > medical profession know little about PD. I think people can decide for
> > themselves.
> >
> > Sinead
> >
> >
> > -------------
> > I am sorry that you had to get out of the depression yourself but I
> > disagree
> > strongly that the medical, profession knows little about depression and
> > how
> > to treat it. If you are able to achieve things and get the natural
high
> > that gives then probably you are not all that clinically Depressed.
The
> > fact that you were able to shift your attitude without medications is
> > useful
> > but does not prove that "the medical profession knows little about
> > depression." All it proves is we don't know as much as we would like to
> > know.
> >
> > The issue is what is depression? Is it a medical illness that results
> > from
> > the interaction of our genetic make-up and our experiences or is it a
> > moral
> > weakness that one can talk one's self out of and that people get and
keep
> > from doing something "wrong"? I personally see it as a medical illness
> > with
> > meds and certain types of psychotherapy as being quite helpful in
treating
> > most (but not all) people.
> >
> > Depression is a brain disease just like PD. and requires medical
> > treatment
> > like PD. Who- especially among this group would say that PD is not a
> > brain
> > disease and the decreases of dopamine in the brain are just coincidences
> > that can be wished away. And who among us would say that MD's know
little
> > about PD because they can't cure it? In fact in depression the "cure" or
> > remission rate is about 80+% with what we do know while with PD the cure
> > rate is zero. With depression we just know more about the illness'
> > treatment rather than its pathogenesis.
> >
> > I am taking time to make these points because I fear that some people
> > might
> > take what you did for yourself as a prescription for themselves and miss
> > out
> > on what for many is a potentially lifesaving treatment.
> >
> > Charlie
> >
> > ----- Original Message -----
> > From: "Sinead Aungier" <[log in to unmask]>
> > To: <[log in to unmask]>
> > Sent: Wednesday, May 10, 2000 4:46 AM
> > Subject: depression
> >
> >
> > > > I had true clinical depression for several years and know all about
it
> > and
> > > > drugs did me no good. I got out of it by eating foods high in
vitamin
> > C,
> > > > such as potatoes, brocolli and cutting out foods that rob you of
> > vitamins
> > > > and also by maintaining a moderate body temperature. The medical
> > > > profession know very little about depression and I had to get out of
> > it
> > > > myself. I find that when you're busy and achieving things this
gives
> > you
> > > > a natural high which can only be good for you rather that being
stuck
> > in
> > > > your thoughts thinking about your problems, which only reinforces
this
> > bad
> > > > mental habit.
> > > >
> > > Sinead
> >
=========================================================================
Date: Thu, 11 May 2000 11:49:44 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Arthur Hirsch <[log in to unmask]>
Subject: Re: depression (not yet)
In-Reply-To: <[log in to unmask] .CA>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Congratulations, Barb
Granted it would be embarrassing. Worse it would be hurtful to you and/or
messy. I certainly wouldn't do it on purpose, but were you to trip and
fall or spill your dinner, it would only reinforce to the crowd the
handicap under which you (and indeed all of us) are working.
It's a message that need to be heard - but let's hope not at your expense.
Best wishes,
Art
At 11:43 PM 5/10/00 -0400, Barbara Patterson wrote:
>Hi, folks...last month, two faculty member at McMaster University
>nominated me for a Woman of the Year Award in this area...the awards are
>to be given out tomorrow evening...so, if you can spare some prayers or
>kind thoughts, please feel free...not with the goal of winning but rather
>that I don't trip and fall or spill my dinner in front of 500 people!
>Barb :)
>
>============================================================================
>Barbara Patterson [log in to unmask]
>HSC 2J22 905-525-9140, ext. 22403
> School of Nursing
>============================================================================
>
=========================================================================
Date: Thu, 11 May 2000 11:55:53 -0500
Reply-To: "Charles T. Meyer MD" <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Charles T. Meyer MD" <[log in to unmask]>
Subject: Fw: Re: depression (not yet)
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
This was not posted while a later email was -therefore I am trying it
again!!
----- Original Message -----
From: "Charles T. Meyer MD" <[log in to unmask]>
To: "Parkinson's Information Exchange Network"
<[log in to unmask]>
Sent: Thursday, May 11, 2000 10:51 AM
Subject: Re: Re: depression (not yet)
> Good Luck Barb,
>
> If you don't win remember that you've already won the person of the
> millenium award from us. And which counts more a vote of 1900 or the
award.
> from McMaster. Virtually voting we can ignore your falls just as you can
> ignore our drools, falls dyskinesias and accidents. That is what makes
> what you have done with the list so great. We can and do relate to each
> other as "whole" people even though society might see us as "different" or
> even "frightening" and discount our contributions So whether or not you
get
> the award or whether or not you fall on your face or dump your dinner you
> are already person of the millenium for me and I am sure the list.
>
> Charlie
>
> .
> ----- Original Message -----
> From: "Barbara Patterson" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Wednesday, May 10, 2000 10:43 PM
> Subject: Re: depression (not yet)
>
>
> > Hi, folks...last month, two faculty member at McMaster University
> > nominated me for a Woman of the Year Award in this area...the awards are
> > to be given out tomorrow evening...so, if you can spare some prayers or
> > kind thoughts, please feel free...not with the goal of winning but
rather
> > that I don't trip and fall or spill my dinner in front of 500 people!
> > Barb :)
> >
> >
>
===========================================================================
> > Barbara Patterson
> [log in to unmask]
> > HSC 2J22 905-525-9140, ext. 22403
> > School of Nursing
> >
>
===========================================================================
>
=========================================================================
Date: Thu, 11 May 2000 13:03:44 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION
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At 10:37 AM 2000/05/11 -0500,
darwin hawkins <[log in to unmask]>
and his friend chuck wrote, in part:
>> ...Here is my take on the 12 Step idea that
>> some people have. I believe that they reject the idea of anyone handling
>> their problems in a different manners than they did because it makes them
>> feel inferior. If they acknowledge that other people can achieve what they
>> did without meetings, programs and support groups they view the other person
>> as more capable and themselves less capable. Thus they take the position
>> that the other person didn't really have a problem because "there is no other
>> way to fix this problem other than the one I used."...
i think that is one possible 'take'...
these issues are difficult to grapple with, because they are written in shades of gray
there is little black and white simplicity
when it comes to us messy humans and our predicaments
another 'take' on the concept of some AA 12-steppers' rejection of alternate 'cures'
is their exposure to those individuals who don't make it in any way
the ones who 'slip through the cracks' into homelessness
or despair or suicide by drinking
or suicide by other means
in the medical literature
Alcoholics Anonymous is the only proven way to 'cure' alcoholism
it's quite possible that some AA 12-steppers are adamant about 'their way'
purely out of caring based on personal experience and observation
>> Its sad that these people don't realize that it is always the individual
>> who fixes their own problem. Turning problems over to God is a way to
>> allow themselves a little breathing room. By telling themselves that they
>> no longer have to worry about a problem it allows them to step back and
>> get some perspective on it. Most of our problems are not as bad as they
>> seem to the individual. By mentally dumping the worry, which debilitates
>> the person, they can then take steps to fix the problem because they
>> don't have to worry about failing....
'turning problems over to '{name one]' is one of the hardest things we can do
we all want to think we can control our own lives
that we should be able to control them
that 'letting go of control'
is a sign of weakness
and guilt
while in fact [imho, of course]
relinquishing the egotistic idea of control over something that we don't control anyway
is simply a matter of facing reality
and dismissing illusions
>> I have always thought that depression was brought on by peoples' negative
>> thinking and self absorption. There seems to always be a cause that
>> triggers this in the person. Perhaps there are some people who simply get
>> depressed for no reason but I think the majority of people do this based
>> upon a loss in their life. A loss of a loved one, loss of a job, natural
>> disaster that destroys a home, etc...
i believe that the literature all indicates three contributors to cd:
1. a significant trauma or loss or series of same
2. a genetic component [as much as 40%]
3. an individual 'threshold' level
some of us are allergic to mushrooms
some of us love mushrooms
some of us are indifferent
are we 'guilty' for causing our allergy?
are we 'weak' for exposing our mushroom addiction?
are we 'stalwart' in the face of mushroom temptation?
we are individual bio-chemical stews which cannot be counted on 100%
for identical repsonses to identical stimuli
in fact, [imho], quite the opposite!
[and vive la difference!]
>> ...They spend too much time dwelling on what they no longer have
>> instead of being grateful for what they did have for so long. This
>> limits the person's ability to see other possibilities... which
>. makes them dwell on their loss....which limits their ability to see....
>> until they spiral down to a position of total hopelessness....
i know this spiral well
it is the classic cd configuration
i don't agree with the idea that 'they spend too much time...'
>>Too many people think the answer is just more pharmaceuticals....
and i don't agree with this idea either
'"too" much' or '"too" many' by whose judgment?
these statements seem to reflect the 'blame the victim for her weakness' stigma again
echoes of the 'bootstraps' concept...
our brain chemistry is phenomenal
and causes behaviours mental physical and emotional
which we don't necessarily have conscious control over
which may appear to be difficult to comprehend
both to ourselves and to outsiders
viz
someone looking at me marching around the grocery store yesterday
might have said - pd ? who's got pd? she's gotta be kidding!
that's an outsider's judgment based on very little real knowledge of me and my life
i have been learning
how hard it is not to judge others
[who the heck can know all of the background?]
and i have also been learning how critical it is to try to learn same
in order to also learn how not to judge myself
we talk about "pd" being the ultimate custom fit designer disease;
i think maybe that idea could be extended to "life"
just my two canuck cents' worth
janet
ps
thanks for making me think
[i think!]
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Thu, 11 May 2000 13:10:28 -0400
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: janet paterson <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION / ooops!
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At 01:03 PM 2000/05/11 -0400, i wrote:
>At 10:37 AM 2000/05/11 -0500,
>darwin hawkins <[log in to unmask]>
>and his friend chuck wrote, in part:...
unless your friend's name is chuck
as well as the "instigator" of this mini-thread
i goofed
sorry
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Thu, 11 May 2000 10:39:10 -0700
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Barb_MSN <[log in to unmask]>
Subject: ...And the Winner Is?
Dear Barb P.,
I always knew you were a real winner! <smile>
YOU GO GIRL.......
Love at ya...
Barb Mallut
[log in to unmask]
=========================================================================
Date: Thu, 11 May 2000 10:53:20 -0700
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Barb_MSN <[log in to unmask]>
Subject: Re: Ivan -- PD virus alert
I had mono when I was 24, and didn't develop PD the slightest PD
symptom until approximately I was 32.
Gee... both of my daughters had mono many years ago... so I'd
REALLY prefer that it's proven there's no relationship between PD
and mono.
Barb Mallut
[log in to unmask]
-----Original Message-----
From: doublea <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Thursday, May 11, 2000 8:44 AM
Subject: Re: Ivan -- PD virus alert
>for what it's worth, the last extensive blood work up I had done
showed that
>at one time i had mono - it would be interesting to see how many
of us have
>had it.
>bob aka tex
>----- Original Message -----
>From: "Mary Ann Ryan" <[log in to unmask]>
>To: <[log in to unmask]>
>Sent: Thursday, May 11, 2000 8:14 AM
>Subject: Re: Ivan -- PD virus alert
>
>
>> Regarding the Epstein-Barr virus....has anyone thought to track
the
>> incidence of Alzheimers or PD in folks who have had Mono??
>> -----
>> God bless
>> Mary Ann
>>
=========================================================================
Date: Thu, 11 May 2000 11:04:35 -0700
Reply-To: Parkinson's Information Exchange Network
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From: Audrey <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION
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Thanks Janet for saying exactly what I wanted to say. I would add that what
bothers me about the other side of this discussion is a seemingly
unwillingness to understand that those, as I am, ( not knowing what feeling
happy/joy was ) do understand that they feel cured. It isn't about who is
right or who is wrong, it is to validate that I , among others, know that we
are not cured of cd only coping with an awareness of its seriousness. I do
not believe that anyone said that we do not eat properly or realize that
positive ideas and being involved in outside events are valuable.. It is
that we can only know the importance of involvement or positive thinking. We
do not have the energy to do it. Somehow the idea has been overlooked that
some cd people have always been depressed, entirely unaware that they see
the world differently than others do. And if they do, what can they do about
it? How can anyone understand *happines or joy* if they are only words with
little meaning or power to change anything. This is not a choice, this is a
condition just as much as pd is one. If any 10 step program works then use
it . It is important to understand that it could be a crutch, but that is
where therapy helps. If one gives over ones mental health to a higher power
then that becomes their way to cope. How about the rest of us though, who
are strong I believe, realizing that at some point we are alone fighting the
destructive power cd has over us? It is not by accident that many who are cd
also are dependent on drugs and or alcohol or some other substance. Charlie
probably knows the incidence of this, and if he has treated anyone who is
cd, most likely asked very early if they used alcohol or drugs to feel
better. I hardly equate a critical need to take low dose antidepressant as
being weak; far beit, it is a sign of recognition and strength.
*seattle* audrey non pwp but a loyal friend to a few pwp on the list and
especially to pwp aussie John 49/42/38
=========================================================================
Date: Thu, 11 May 2000 15:13:08 -0400
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: janet paterson <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION
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At 11:04 AM 2000/05/11 -0700, Audrey <[log in to unmask]> wrote:
>Thanks Janet for saying exactly what I wanted to say. I would add that what
>bothers me about the other side of this discussion is a seemingly
>unwillingness to understand that those, as I am, ( not knowing what feeling
>happy/joy was ) do understand that they feel cured. It isn't about who is
>right or who is wrong, it is to validate that I , among others, know that we
>are not cured of cd only coping with an awareness of its seriousness. I do
>not believe that anyone said that we do not eat properly or realize that
>positive ideas and being involved in outside events are valuable.. It is
>that we can only know the importance of involvement or positive thinking. We
>do not have the energy to do it. Somehow the idea has been overlooked that
>some cd people have always been depressed, entirely unaware that they see
>the world differently than others do. And if they do, what can they do about
>it? How can anyone understand *happines or joy* if they are only words with
>little meaning or power to change anything. This is not a choice, this is a
>condition just as much as pd is one. If any 10 step program works then use
>it . It is important to understand that it could be a crutch, but that is
>where therapy helps. If one gives over ones mental health to a higher power
>then that becomes their way to cope. How about the rest of us though, who
>are strong I believe, realizing that at some point we are alone fighting the
>destructive power cd has over us? It is not by accident that many who are cd
>also are dependent on drugs and or alcohol or some other substance. Charlie
>probably knows the incidence of this, and if he has treated anyone who is
>cd, most likely asked very early if they used alcohol or drugs to feel
>better. I hardly equate a critical need to take low dose antidepressant as
>being weak; far beit, it is a sign of recognition and strength.
>
>*seattle* audrey non pwp but a loyal friend to a few pwp on the list and
>especially to pwp aussie John 49/42/38
audrey
here is a slightly edited version of a message i sent in about
recognising cd in myself [after 'the fact', of course]
i can still 'experience' that moment in my car driving to work
it was an epiphany
i believe that medically, cd can be termed 'cured'
although someone who has had a 'major depression incident'
is more likely than the average person to have another one
janet
======================================================================
Post: 027685
Date: Tue, 15 Jul 1997
Subj: Re: perceptions shared
----------------------------------------------------------------------
recognising cd is the hardest aspect i think
probably followed by accepting it
and deciding to deal with it
it's as common as the common cold
but more so in parkies
it's been hidden away in the 'looneybin' closet
for too long
as far as i'm concerned:
if i have pd
i have a type of bio-chemical imbalance
which needs to be corrected
no shame/guilt/fear attached
if i have cd
i have a type of bio-chemical imbalance
which needs to be corrected
no shame/guilt/fear attached
the 'corrections'
are simply the ways and means i have at my disposal
to 'tune-up' and 'fine-tune' as much as possible
this bio-chemical body
i live in
cuz i don't have a spare one handy
the catch 22 of cd
relative to other imbalances
is that it affects my perception of myself and my world
the only reason i could recognise it in myself the first time
was because i had done a lot of reading on the subject
in order to understand someone near and dear
after i was on an anti-depressant medication for a few weeks
the clouds broke and the sun blazed through one day
when i caught myself singing on the way to work
for the first time in two years
at that moment i fully realized
[a] that there really had been clouds
[b] that they had been dogging me for two years
[c] that they had snuck up behind me silent and slow
[d] that they had been twisting my perceptions like fun-house mirrors
except that it wasn't very much fun
however
from the perspective i now have
i can look on all of it as invaluable growing experience
and would not change a thing
not cd and not pd
how else would i have arrived at this point
of sharing so much with you?
======================================================================
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Thu, 11 May 2000 15:38:53 -0400
Reply-To: Parkinson's Information Exchange Network
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From: janet paterson <[log in to unmask]>
Subject: pd acceptance / "on-off" phenomenon
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hi all
this discussion on clinical depression has triggered
something else i have been mulling about for awhile
is pd unique in terms of its "on-off" phenomenon as compared with other 'disabilities'?
is there any other 'chronic degenerative condition' which can change
from a virtually 'cured' appearance symptomatically
to severe incapacity several times in a day
as part of its 'normal' manifestation?
[speaking for myself of course and any other parkie
who may be at an on-off plateau like mine]
if this is unique to pd
i wonder what kind of impact this 'cycling' has on us psychologically?
if any?
[pun not intended, honest]
do we go through a range of emotions [maybe subconsciously]
from "it's a miracle!! i'm cured!!" to "ono, i'm paralysed again"
and if we do that several times per day
are we exposed to extreme stress
without necessarily being
conscious of it?
just musing and mulling...
janet
who thinks she has 'accepted' her pd fairly well...
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Thu, 11 May 2000 15:36:27 EDT
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Arlene Boss <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION
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must have wrong e-mail address. I am not Janet
=========================================================================
Date: Thu, 11 May 2000 15:37:06 EDT
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Arlene Boss <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION
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wrong e-mail address. No Janet here
=========================================================================
Date: Thu, 11 May 2000 16:02:22 -0500
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Pick Mahaffey <[log in to unmask]>
Subject: ENVIRONMENTAL CHEMICALS CULPRIT FOR VAST MAJORITY OF PARKINSON'S
DISEASE VICTIMS
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Now, recent evidence indicates that most Parkinson's cases result from =
environmental chemical pollutants.
The researchers reported that, "No genetic component is evident when the =
disease begins after age 50 years. However, genetic factors appear to be =
important when [Parkinson's] disease begins at or before age 50." Thus=20
fewer than 10% of Parkinson's cases -- only those that begin relatively =
early in life -- have a genetic component.=20
That leaves environmental chemicals as the culprit for the vast majority =
of Parkinson's, according to the researchers who conducted the twin =
study. In announcing their results, they specifically pointed out that =
the search for causes of Parkinson's should now re-focus on =
environmental chemicals such as pesticides and herbicides.[10]
http://www.flipside.org/vol2/feb99/99fe03a.htm for full study article.
Works for me. The wife is paranoid about cockroaches. Terminix kept our =
house steeped in pesticides for 25 years. No cockroaches at all tho'. =
Every appliance I pulled for repair has an eighth of an inch of powdered =
pesticide on it. My PD occurred at age 70. dx 69.
------=_NextPart_000_0005_01BFBB62.4B0D1180
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<HTML><HEAD>
<META content=3D"text/html; charset=3Diso-8859-1" =
http-equiv=3DContent-Type>
<META content=3D"MSHTML 5.00.2614.3500" name=3DGENERATOR>
<STYLE></STYLE>
</HEAD>
<BODY bgColor=3D#ffffff>
<DIV>Now, recent evidence indicates that most Parkinson's cases result =
from=20
environmental chemical pollutants.</DIV>
<DIV> </DIV>
<DIV> </DIV>
<DIV>The researchers reported that, "No genetic component is evident =
when the=20
disease begins after age 50 years. However, genetic factors appear to be =
important when [Parkinson's] disease begins at or before age 50." Thus=20
<P></P>fewer than 10% of Parkinson's cases -- only those that begin =
relatively=20
early in life -- have a genetic component.=20
<P></P>That leaves environmental chemicals as the culprit for the vast =
majority=20
of Parkinson's, according to the researchers who conducted the twin =
study. In=20
announcing their results, they specifically pointed out that the search =
for=20
causes of Parkinson's should now re-focus on environmental chemicals =
such as=20
pesticides and herbicides.[10]</DIV>
<DIV> </DIV>
<DIV> </DIV>
<DIV><A=20
href=3D"http://www.flipside.org/vol2/feb99/99fe03a.htm">http://www.flipsi=
de.org/vol2/feb99/99fe03a.htm</A> =20
for full study article.</DIV>
<DIV> </DIV>
<DIV>Works for me. The wife is paranoid about cockroaches. Terminix kept =
our=20
house steeped in pesticides for 25 years. No cockroaches at all =
tho'. =20
Every appliance I pulled for repair has an eighth of an inch of powdered =
pesticide on it. My PD occurred at age 70. dx 69.</DIV></BODY></HTML>
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=========================================================================
Date: Tue, 11 May 2094 14:18:00 -0700
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: JONI DIAMOND <[log in to unmask]>
Organization: Prodigy Internet
Subject: vacation hold
MIME-Version: 1.0
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charset="iso-8859-1"
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I forgot...what do I need to do to put a vacation hold on the list? =
Short folks have short memories..hahaha! :) Hope everyone has a great =
couple of weeks!=20
hugs,
Joni
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<HTML><HEAD>
<META content=3D"text/html; charset=3Diso-8859-1" =
http-equiv=3DContent-Type>
<META content=3D"MSHTML 5.00.2919.6307" name=3DGENERATOR>
<STYLE></STYLE>
</HEAD>
<BODY bgColor=3D#c0c0c0>
<DIV>I forgot...what do I need to do to put a vacation hold on the list? =
Short=20
folks have short memories..hahaha! :) Hope everyone has a great couple =
of weeks!=20
</DIV>
<DIV>hugs,</DIV>
<DIV>Joni</DIV></BODY></HTML>
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=========================================================================
Date: Thu, 11 May 2000 17:24:56 EDT
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Jo Ann Coen <[log in to unmask]>
Subject: Re: HMO Better Blues
Darwin Hawkins - that was so cute about the shingles thingee. But you
know what aggravates the P------- out of me, is that every time I go in
there they ask my age. Are they so stupid, they can't look back to the
last time I was there? One day the nurse asked my age, and I said, "my
dear, there are two things women don't talk about:
One is their sex life and the other is their age". She very quickly
thimbed through my file and found my age. Jo Ann from Houston
=========================================================================
Date: Thu, 11 May 2000 17:24:56 EDT
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Jo Ann Coen <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION
Janet P - Thanks for posting about the 12 step programs. I could go into
a 10 page liturgy about them, but basically what you said is true. If
it's not done our way, it's not the right way. All of us know there are
many paths to our destination, and trial and error is the only way for us
to find the right path.
You've give us many insights and I want to thank you. Jo Ann from
Houston
=========================================================================
Date: Thu, 11 May 2000 17:34:41 -0400
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Ivan M Suzman <[log in to unmask]>
Subject: Re: Is PD caused by a VIRUS?
Comments: To: [log in to unmask]
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Ray and all,
I keep thinking that the virus theory for PD's cause
makes SO much sense ! Maybe what you have
provided below about the Epstein-Barr virus will help
unravel the mystery.
If you have to suffer through this, Ray, I hope
you don't go through what some of us who have
been getting worn out have to go through.
Ivan
50/39/36
On Thu, 11 May 2000 01:04:44 -0500 =?iso-8859-1?Q?=2A?=
<[log in to unmask]> writes:
> Hi All:
>
> Epstein-Barr virus was cultured in the Rochester, NY lab (were I
> used to work).
> 12 years prior to PD diagnosis.
>
> I'll be curious to follow this research.
>
> Ray
>
>
>
>
> > E-MOVE reports from the 52nd Annual Meeting of the American
> Academy of
> > Neurology, held in San Diego, California, 30 April-5 May 2000.
> Citation
> > numbers below refer to abstracts of presentations and posters,
> which are
> > published in Neurology 2000;54(suppl.3).
> >
> > Epstein-Barr virus latent membrane protein immunoreactivity in Lewy
> > bodies: An example of molecular mimicry between EBV and
> alpha-synuclein
> > JM Woulfe, DG Munoz
> > P01.136
> >
> > An antibody against Epstein-Barr virus reacts with alpha-synuclein,
> > according to this study.
> >
> > A monoclonal antibody was generated against Epstein-Barr virus
> latent
> > membrane protein (EBV- LMP). Immunohistochemical analysis of
> > antibody-protein interaction in normal brain showed "identical
> topographic
> > and cellular patterns of distribution in all areas examined" for
> both the
> > EBV-LMP antibody and other alpha-synuclein markers. Within Lewy
> bodies in
> > PD brain, the pattern of distribution matched that of
> alpha-synuclein, but
> > not ubiquitin, tau, or neurofilament protein. Direct interaction
> of the
> > antibody with alpha-synuclein was confirmed by western blot and
> ELISA. The
> > authors conclude, "Assuming that similar antibodies are generated
> during
> > natural latent infection with EBV, these results could bear
> implications
> > with respect to elucidating a virally initiated, autoimmune
> pathogenesis
> > for Parkinson's disease, and, perhaps, for other ëalpha-
> > synucleinopathies.'"
> >
> >
> >
> >
> --
>
.........................................................................
.
> Ray Strand
> mailto:[log in to unmask]
> 48/47/45?
>
.........................................................................
.
>
> ...on the edge of the prairie abyss ......................
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 50/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses 44 raw and cold, wintry deg.
F :-)
********************************************************************
=========================================================================
Date: Thu, 11 May 2000 17:46:55 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Ivan M Suzman <[log in to unmask]>
Subject: Re: Ivan -- PD virus alert
MIME-Version: 1.0
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I had mono at age 5!
Ivan
50/39/36
On Thu, 11 May 2000 10:44:08 -0500 doublea <[log in to unmask]> writes:
> for what it's worth, the last extensive blood work up I had done
> showed that
> at one time i had mono - it would be interesting to see how many of
> us have
> had it.
> bob aka tex
> ----- Original Message -----
> From: "Mary Ann Ryan" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Thursday, May 11, 2000 8:14 AM
> Subject: Re: Ivan -- PD virus alert
>
>
> > Regarding the Epstein-Barr virus....has anyone thought to track
> the
> > incidence of Alzheimers or PD in folks who have had Mono??
> > -----
> > God bless
> > Mary Ann
> >
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 50/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses deg. F :-)
********************************************************************
=========================================================================
Date: Thu, 11 May 2000 18:09:47 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: vacation hold / subscription instructions
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At , "JONI DIAMOND <[log in to unmask]>" wrote:
>This is a multi-part message in MIME format.
>
>------=_NextPart_000_001A_02291E50.DEB1BD40
>Content-Type: text/plain;
> charset="iso-8859-1"
>Content-Transfer-Encoding: quoted-printable
>
>I forgot...what do I need to do to put a vacation hold on the list? =
>Short folks have short memories..hahaha! :) Hope everyone has a great =
>couple of weeks!=20
>hugs,
>Joni
instructions are always available at my website
please also disable the "multi-part messages setting" in your e-mail program
janet
the amazonian list elfette
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Thu, 11 May 2000 18:15:15 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION / not my meaning
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
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At 05:24 PM 2000/05/11 EDT, "Jo Ann Coen <[log in to unmask]>" wrote:
>Janet P - Thanks for posting about the 12 step programs. I could go into
>a 10 page liturgy about them, but basically what you said is true. If
>it's not done our way, it's not the right way....
i fear you have misinterpreted my meaning
i have the greatest respect for AA and their 12-step approach.
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Thu, 11 May 2000 15:23:48 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Robert A. Fink, M. D." <[log in to unmask]>
Subject: Re: Is PD caused by a VIRUS?
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
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Date sent: Thu, 11 May 2000 17:34:41 -0400
Send reply to: Parkinson's Information Exchange Network <[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Re: Is PD caused by a VIRUS?
To: [log in to unmask]
> I keep thinking that the virus theory for PD's cause
> makes SO much sense ! Maybe what you have
> provided below about the Epstein-Barr virus will help
> unravel the mystery.
>
> If you have to suffer through this, Ray, I hope
> you don't go through what some of us who have
> been getting worn out have to go through.
>
Ivan, and others,
The virus theory for PD has been looked at (I sent you the figures
several months ago), and just about every known virus has been
"plugged in" as a cause for PD. None of them (over about 25 years of
research) have shown any correlation beyond coincidence.
Most people have been infected with the Epstein-Barr virus. I have
(and I don't have PD and I am 62 already). The other viruses that have
been suggested are present (signs of past infection) in the majority of
the healthy population.
There is NO EVIDENCE that a virus is a causative factor in PD. The
1918 Influenza Pandemic may be the one exception, and that was
because the virus produced an encephalitis which caused
Parkinsonian symptoms as a late complication. If someone gets
encephalitis (of any type), the basal ganglia can be affected as a late
complication, but *this is not Parkinson's disease*! Parkinson's
disease is very different from "Parkinsonism" caused by encephalitis
or multiple head injuries (as with Mohammad Ali) or drugs, poisons
(like carbon monoxide).
Please, Ivan do not get people all full of anxiety over the (many)
viruses that we are constantly being exposed to.
Best,
Bob
**********************************************
Robert A. Fink, M. D., F.A.C.S., P. C.
2500 Milvia Street Suite 222
Berkeley, California 94704-2636
Telephone: 510-849-2555 FAX: 510-849-2557
WWW: http://www.dovecom.com/rafink/
mailto:[log in to unmask]
"Ex Tristitia Virtus"
*********************************************
=========================================================================
Date: Thu, 11 May 2000 19:38:31 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: wwweb resources by murray charters now updated...
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
...at my web site 'a new voice' [see below for URL] under "pienet/words"
or
...jump to murray's page directly:
"http://www.geocities.com/janet313/pienet/wwweb/index.html"
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Thu, 11 May 2000 19:42:24 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: NEWS: BBC: Net users are not nerds
Comments: cc: [log in to unmask]
Mime-Version: 1.0
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Net users are not nerds
Thursday, 11 May, 2000, 12:44 GMT 13:44 UK - Internet users are not sad and lonely social misfits but actually visit and contact relatives and friends more frequently than those who live their lives offline.
Research carried out by Pew Internet and the American Life Project found that 72% of internet users questioned had visited a relative or friend in the last day. Only 61% of those without an online account had done the same. Over 3,500 adults were contacted for the survey.
The results contradict other surveys which have found that using the internet encourages social isolation.
But Dr Adam Joinson, a psychologist at the Open University, told BBC News Online that the results of the study backed up research he was carrying out into the social effects of internet use.
In February a survey conducted by Stanford University psychologists found that regular surfers neglect friends and family to spend time online. The study showed that the more hours people use the Internet, the less time they spend in contact with real human beings.
But the results of the Pew Internet survey imply the opposite. It found that the more ways people have to communicate with friends and families, the more often they do so. The survey found that internet users do not just e-mail friends more, they also tend to phone or visit them more regularly.
Lee Rainie, the Pew project's director, said e-mail did not bring families and friends closer together because they already knew each other well. He said the important finding was the increase in contact that net use promoted.
Psychologist Adam Joinson said that rather than breaking friendships the internet seems to promote them. Many people use the internet to re-establish contact with friends they have lost touch with, he said.
Previous studies tended to take a dim view of those who spend a long time in front of a computer: "We have a tendency to see using computers as slightly negative or slightly dysfunctional. What is often missed it is what people are using the computers to do."
People who use e-mail or chat rooms regularly not only communicate more but the quality of that communication tends to be better too, said Dr Joinson.
He believes the communication that takes place via the web is more intimate and trusting than it would be face to face: "People tend to disclose four times as much information by email than they do face to face. It is a very strong foundation for friendships and relationships."
By BBC News Online internet correspondent Mark Ward
BBC News Online: Sci/Tech
"http://news.bbc.co.uk/low/english/sci/tech/newsid_744000/744780.stm"
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Thu, 11 May 2000 20:10:30 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Re: ...And the Winner Is?
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
My vote goest to Barb Patterson....Hey, can my
vote be TALLIED UP at McMaster University, please??
---
hey guys, let's make Barb P. the WOMAN of the YEAR,
y'hear???
Congrats,
Ivan
:-)
50/39/36
On Thu, 11 May 2000 10:39:10 -0700 Barb_MSN <[log in to unmask]>
writes:
> Dear Barb P.,
>
> I always knew you were a real winner! <smile>
>
> YOU GO GIRL.......
>
> Love at ya...
>
> Barb Mallut
> [log in to unmask]
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 50/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses deg. F :-)
********************************************************************
=========================================================================
Date: Thu, 11 May 2000 19:00:47 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charles E Murray <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION / not my meaning
MIME-Version: 1.0
Content-Type: text/plain
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Janet, I was the "instigator" in using the analogy of SOME people in
AA, like some people suffering from CD, concluding that recovery by any
means other than "ours" demonstrates that one didn't have the disorder in
first place.
I offered this analogy from my own experience, but must hasten to add
that, in my experience, this is a minority view among the AA people I
know. AA has a range of personalities just like any other group, being
as a whole no more open or closed minded than most. However, just as some
of those taking medication for CD have a TENDENCY to identify only with
others taking meds, AA's who recover inside the program tend to see those
who achieve abstinence outside the program as not being "alcoholics of
our kind." This is not my view or that of most people I know.
I've been looking at this dilemma in the recovery community for 20
years, and the PD (depression) community for just the few weeks since I
came on line, but similarities abound. Most striking is the fact that
both groups, despite being viewed as suffering from medical conditions by
most (but not all) in the scientific community, are still under a cloud
of moral judgment from some quarters.
A vital component of recovery from alcoholism, as well as CD, lies in
understanding and acting on the knowledge that we are not bad people
trying to be good, we are sick people seeking wellness. Even if we
believe this truth with little reservation, when we are feeling the sting
of outside prejudice in our hearts, we tend to gather together in
increasingly small groups of rigid thinking, put on the armor of
certainty and iconoclastic ideas, and defend our "method" so single
mindedly that we begin to practice contempt prior to investigation.
For many years I was affected by the social stigma attached to
alcoholism, and I thought after a 20 year journey in recovery I had
achieve enough sensitivity in this area to avoid giving offense to people
dealing with another affliction which is viewed by "society" with a
similar ambivalence. I was wrong and I apologize.
I appreciate all the comments that have been posted by Janet, Jo Ann,
Charles, Barb, Cathy, Audrey and others, and hope this post makes it
clear that while I think mental habits are important in every moment of
consciousness, I am obviously not a member of the "suck it up and
positive thinking will cure anything" school, if indeed anyone on this
list is. Whenever someone told me to suck it up, I chose to interpret
their suggestion as referring to another martini or two.
When I crashed big time nearly 20 years ago, doctors in a hospital got me
clear headed enough to begin, at their suggestion, to use the tools of
emotional and spiritual recovery offered by the 12 Steps, and if there is
no parallel with true CD, please don't take my comments as a put down,
simply hit the delete key. My remarks on line reflect my experience,
which includes many friends in recovery who are taking anti depressants
as a vital part of their recovery process. Perhaps, however, we are
dealing with yet another distinct group, i.e., alcoholic clinical
depressives, who should band together and insist that taking the 12 steps
while medicated is the only path to peace of mind:-) (in case the smiley
face is not enough, this last sentence was a stab at humor)
Discussing this aspect of my history outside of a 12 step meeting is
considered inappropriate by some in recovery, but here it is, born of a
desire to contribute to this group and the conviction that this
information is relevant to the decision by other group members to put my
sharing on "delete automatically " list, or to read what I have to say
with a better understanding of where it is coming from.
Chuck
=========================================================================
Date: Thu, 11 May 2000 21:46:40 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Eugene Hughes <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION
Mime-version: 1.0
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Hello, I mostly lurk, but felt inspired/compelled to respond to this recent
discussion. I am a psychotherapist, "retired", and social worker,
"retired", meaning I am taking care of my Dad with PD and have suspended my
life......I have found great power for people in the 12 step programs.
Power to be more free, more independent, and happier. I know many people of
AA who do not follow the "party line" that this email describes, the one
about the people being basically narrowminded. It is impossible, to my
thinking, to catagorize a group of folks in that way....impossible. Like
all PD's do this or have this, folks in 12 step programs are as individual
as we all are...... Blessings to all. Deborah, caregiver to Eugene/79/10+
----------
>From: "Hawkins, Darwin" <[log in to unmask]>
>To: [log in to unmask]
>Subject: AN "OUTSIDER'S" VIEW OF DEPRESSION
>Date: Thu, May 11, 2000, 11:37 AM
>
>Friends,
>I forwarded one of the e-mails (Chuck's) about CD to a close friend because
>of a discussion we had the other day. He is a recovered (in my opinion not a
>recovering) alcoholic (for 17 years now). What prompted the conversation was
>at his daughter's wedding two weeks ago, he had to propose a toast using a
>glass of Champaign at the wedding cake table. He did well. I noticed and
>commented later that he only pretended to take a sip from the glass. I told
>him I admired his commitment to never again take a drink.
>We got to discussing how he overcome the addiction. He said his wife still
>to this day is in denial that he either was never an alcoholic or he has not
>completed the recovery because he did not go through the 12 step program.
>Wine, beer, and spirits are still kept and served on occasion in their home.
>
>His response to the e-mail follows. I thought it appropriate to share with
>all of you. BTW, he is the editor of one of my flying club's newsletter and
>is also writing a Steven King type horror novel. Very articulate gentleman
>and I am happy to count him as one of my very close friends.
>Darwin
>- - - - - - - - - - -
>
>
>> This is an interesting piece. Here is my take on the 12 Step idea that
>> some
>> people have. I believe that they reject the idea of anyone handling their
>> problems in a different manners than they did because it makes them feel
>> inferior. If they acknowledge that other people can achieve what they did
>> without meetings, programs and support groups they view the other person
>> as
>> more capable and themselves less capable. Thus they take the position
>> that
>> the other person didn't really have a problem because "there is no other
>> way
>> to fix this problem other than the one I used."
>>
>> Its sad that these people don't realize that it is always the individual
>> who
>> fixes their own problem. Turning problems over to God is a way to allow
>> themselves a little breathing room. By telling themselves that they no
>> longer have to worry about a problem it allows them to step back and get
>> some perspective on it. Most of our problems are not as bad as they seem
>> to
>> the individual. By mentally dumping the worry, which debilitates the
>> person, they can then take steps to fix the problem because they don't
>> have
>> to worry about failing.
>>
>> I have always thought that depression was brought on by peoples' negative
>> thinking and self absorption. There seems to always be a cause that
>> triggers this in the person. Perhaps there are some people who simply get
>> depressed for no reason but I think the majority of people do this based
>> upon a loss in their life. A loss of a loved one, loss of a job, natural
>> disaster that destroys a home, etc. They spend too much time dwelling on
>> what they no longer have instead of being grateful for what they did have
>> for so long. This limits the person's ability to see other
>> possibilities...which makes them dwell on their loss....which limits their
>> ability to see....until they spiral down to a position of total
>> hopelessness. Its true that brain chemistry affects our emotions and
>> ability to handle problems. Some of the anti-depressant drugs allow
>> people
>> to jump ahead by bringing their brain chemistry back close to normal.
>> However, if they don't learn to be positive and handle life's problems
>> without giving up they are just setting themselves up for another
>> depressive
>> state. Too many people think the answer is just more pharmaceuticals.
>> Like
>> the 12 step people, they get the notion that it is not possible to fix a
>> problem any other way. If a person can do it they are viewed as not
>> really
>> having a problem. Pretty sad.
>>
>> -----Original Message-----
>> From: Hawkins, Darwin
>> To: XXXXXXXXXX
>> Sent: 5/11/00 9:16 AM
>> Subject: FW: depression
>>
>> I'm sending this to you (came in on my Parkinson's Information Exchange
>> Network e-mail) in light of what we were discussing the other day about
>> the
>> 12 step program. Maybe we do have the capability of mind over matter!
>>
>> > ----------
>> > From: Charles E Murray[SMTP:[log in to unmask]]
>> > Sent: Wednesday, May 10, 2000 4:30 PM
>> > Subject: Re: depression
>> >
>> > I have watched a blister grow on the skin of a hypnotized subject
>> touched
>> > by a finger tip, but told it was a lighted cigarette.
>> >
>> > I have watched a brother with terminal liver and colon cancer, given
>> a
>> > two month prognosis by oncologists at the U of A (after surgery and
>> > other medical efforts for two years failed to halt the spread),
>> decline
>> > chemo, adopt a macrobiotic food diet and the practice of meditation,
>> then
>> > be pronounced cancer free 13 months later.
>> >
>> > Twenty years ago medical science denied any connection between diet
>> and
>> > cancer. Today this has changed, but scientists still resist the
>> > possibility that diet can be curative. Few physicians would deny
>> that,
>> > at times, medical science finds itself playing "catch up," with
>> > disciplines not restricted by the "scientific method" of research.
>> > Witness the slow acknowledgment of the efficacy of acupuncture as
>> one
>> > example.
>> >
>> > Studies have demonstrated that certain attitudes correlate with good
>> and
>> > bad prognoses in many illnesses.
>> >
>> > My dad, troubled most of his life by migraines, learned biofeedback and
>> > today has absolute control of migraine cycles, stopping them at the
>> outset
>> > with mental imagery.
>> >
>> > Is it possible that, given the incredible power of our mind, we can
>> > affect the physiology of our bodies, including the brain's chemical
>> > balance, by the patterns of our thinking?
>> >
>> > Sinead and I believe diet and "positive" thinking patterns can be
>> > therapeutic because that has been our experience.
>> >
>> > Some folks in 12 Step programs apply the rationale that if someone
>> quit
>> > drinking (using, etc.) without a 12 step program they must not have
>> been
>> > a real alcoholic (addict, etc.) in the first place. With this simple
>> > logic they dismiss all input and declare irrelevant all experience
>> from
>> > such people under the conclusion that such folks are "not one of us.":
>> >
>> > Are some of us using this same kind of logic to dismiss the experience
>> of
>> > those who say diet and positive thinking were effective in their
>> > depression, i.e, "They were not suffering from true CD."
>> >
>> > Wouldn't it be interesting if someday we determine that negative
>> thinking
>> > patterns change brain chemistry, and that, with rescue and
>> transitional
>> > help from anti depressant meds, diligent training in positive thought
>> > patterns proves to be the best method of keeping brain chemistry
>> healthy?
>> >
>> >
>> > In the meantime, I'll keep taking my St. John's Wort and Requip for
>> > whatever they have contributed to my coming "out of the darkness and
>> into
>> > the light." (Title of the book- written by a psychiatrist - that
>> > boosted me down the path to peace of mind). And if I go back to a
>> darker
>> > place I will use all the resources I can find, medical and spiritual,
>> to
>> > come back out again.
>> >
>> > Chuck
>> >
>>
=========================================================================
Date: Tue, 11 May 2094 19:02:25 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: JONI DIAMOND <[log in to unmask]>
Organization: Prodigy Internet
Subject: How do I do a vacation hold please?
MIME-Version: 1.0
Content-Type: multipart/alternative;
boundary="----=_NextPart_000_0029_02291E78.9A13F220"
This is a multi-part message in MIME format.
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charset="iso-8859-1"
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Hi Everyone! If anyone is in the Costa Rica and/or Belize area..please =
let me know if you'd like to get together to say hi! I will be gone from =
5/13 - 5/30. In the meanwhile, could someone please tell me how to do a =
vacation hold?=20
Thanks and my best to all!
hugs,
Joni
aka..."tall stuff"
------=_NextPart_000_0029_02291E78.9A13F220
Content-Type: text/html;
charset="iso-8859-1"
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<!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
<HTML><HEAD>
<META content=3D"text/html; charset=3Diso-8859-1" =
http-equiv=3DContent-Type>
<META content=3D"MSHTML 5.00.2919.6307" name=3DGENERATOR>
<STYLE></STYLE>
</HEAD>
<BODY bgColor=3D#c0c0c0>
<DIV><FONT size=3D4>Hi Everyone! If anyone is in the Costa Rica and/or =
Belize=20
area..please let me know if you'd like to get together to say hi! I will =
be gone=20
from 5/13 - 5/30. In the meanwhile, could someone please tell me how to =
do a=20
vacation hold? </FONT></DIV>
<DIV><FONT size=3D4>Thanks and my best to all!<BR>hugs,</FONT></DIV>
<DIV><FONT size=3D4>Joni</FONT></DIV>
<DIV><FONT size=3D4>aka..."tall stuff"</FONT></DIV></BODY></HTML>
------=_NextPart_000_0029_02291E78.9A13F220--
=========================================================================
Date: Thu, 11 May 2000 17:21:11 -0700
Reply-To: Constance Tate <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Constance Tate <[log in to unmask]>
Subject: non pd
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
can anyone think of a song that mentions san diego. one of our sons is
district manager
of a company and his big boss has asked for one i guess for advertising
i can't think of any.
would really like to find one.
=========================================================================
Date: Thu, 11 May 2000 19:44:06 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Gordon Seese <[log in to unmask]>
Subject: Re: Feedback on Medication
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At 10:01 PM 5/9/00 EDT, you wrote:
>Is anyone who has been diagnosed a year ago taking Amantadine in combination
>with Mirapex? Any information on how you are doing with the Mirapex will be
>appreciated. I am not taking any Sinemet as yet.
>
>Thank you.
>
>Fran Landes
>46/45/43
>
> Gordon hs taken Amantadine for years, off and on. He does take it now
with mirapex and Sinemet. T.L.Seese
=========================================================================
Date: Thu, 11 May 2000 22:44:03 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: John Walker <[log in to unmask]>
Subject: Congratulations Barbara Patterson
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Congratulations Barbara Patterson, City of Hamilton's Woman of the Year
-----------------
City of Hamilton Mayor's Status of Women
1999 Women of the Year Awards
Barbara has made a truly significant contribution to her immediate
community as well as the community of people with Parkinson's disease
worldwide.
She was diagnosed with Parkinson's in 1972 and developed the Parkinson's
Disease Information Exchange Network which is the first electronic mailing
list for Parkinson's disease in the world.
It has grown to have over 1800 users representing about 37 countries.
Barbara is also an active supporter of Caveat and Phoenix Place.
She collects thousands of dollars per year in a fund raiser for Phoenix Place,
which provides second level housing to women and children who are victims
of abuse.
On-line Learning Series of Courses
http://www.bestnet.org/~jwalker/course.htm
Member: Association for International Business
_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/
_/ _/
_/ John S. Walker _/
_/ Publisher, CSS Internet News (tm) _/
_/ (Internet Training and Research) _/
_/ PO Box 57247, Jackson Stn., _/
_/ Hamilton, Ontario, Canada, L8P 4X1 _/
_/ Email [log in to unmask] _/
_/ http://www.bestnet.org/~jwalker _/
_/ _/
_/ "To Teach is to touch a life forever" _/
_/ On the Web one touch can reach so far! _/
_/ _/
_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/
=========================================================================
Date: Thu, 11 May 2000 22:40:11 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: How do I do a vacation hold please? / second reply
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At , "JONI DIAMOND <[log in to unmask]>" wrote:
>This is a multi-part message in MIME format.
>
>------=_NextPart_000_001A_02291E50.DEB1BD40
>Content-Type: text/plain;
> charset="iso-8859-1"
>Content-Transfer-Encoding: quoted-printable
>
>I forgot...what do I need to do to put a vacation hold on the list? =
>Short folks have short memories..hahaha! :) Hope everyone has a great =
>couple of weeks!=20
>hugs,
>Joni
instructions are always available at my website
please also disable the "multi-part messages setting" in your e-mail program
janet
the amazonian list elfette
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Thu, 11 May 2000 20:56:35 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
Subject: Re: Congratulations Barbara Patterson
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
John, thanks for updating us so quickly on Barbara's well-deserved
award. To us, she has ALWAYS been the Woman of the Year; how just that
the City of Hamilton now recognizes her merits, also!
My very best regards,
Kathrynne
John Walker wrote:
>
> Congratulations Barbara Patterson, City of Hamilton's Woman of the Year
>
> -----------------
>
> City of Hamilton Mayor's Status of Women
>
> 1999 Women of the Year Awards
>
> Barbara has made a truly significant contribution to her immediate
> community as well as the community of people with Parkinson's disease
> worldwide.
>
> She was diagnosed with Parkinson's in 1972 and developed the Parkinson's
> Disease Information Exchange Network which is the first electronic mailing
> list for Parkinson's disease in the world.
>
> It has grown to have over 1800 users representing about 37 countries.
>
> Barbara is also an active supporter of Caveat and Phoenix Place.
>
> She collects thousands of dollars per year in a fund raiser for Phoenix Place,
> which provides second level housing to women and children who are victims
> of abuse.
>
> On-line Learning Series of Courses
> http://www.bestnet.org/~jwalker/course.htm
>
> Member: Association for International Business
> _/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/
> _/ _/
> _/ John S. Walker _/
> _/ Publisher, CSS Internet News (tm) _/
> _/ (Internet Training and Research) _/
> _/ PO Box 57247, Jackson Stn., _/
> _/ Hamilton, Ontario, Canada, L8P 4X1 _/
> _/ Email [log in to unmask] _/
> _/ http://www.bestnet.org/~jwalker _/
> _/ _/
> _/ "To Teach is to touch a life forever" _/
> _/ On the Web one touch can reach so far! _/
> _/ _/
> _/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/
--
Kathrynne Holden, MS, RD
Medical nutrition therapy for Parkinson's disease
Author: "Eat well, stay well with Parkinson's disease"
"Parkinson's disease: interview and assessment tools for nutrition
professionals"
"Risk for malnutrition and bone fracture in Parkinson'sdisease," J Nutr
Elderly. V18:3;1999.
http://www.nutritionucanlivewith.com/
=========================================================================
Date: Thu, 11 May 2000 23:02:15 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: will johnston <[log in to unmask]>
Subject: Re: ENVIRONMENTAL CHEMICALS CULPRIT FOR VAST MAJORITY OF
PARKINSON'SDISEASE VICTIMS
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
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Pick,
The jump from genetic to environmental cause is logical since there are no
other possible causes so far as I know. The jump to chemical is a probable
since everything is made of chemicals either naturally or through man's
intervention, but leaves open trauma - which is environmental but not
chemical. There were few chemical pollinates in the early 1800's when
Dr. Parkinson first described the shaking palsy which now bear his name.
Here in our area we have two brothers who are identical twins. One worked
in agriculture / horticulture all his life and has Parkinson's. The other
twin worked in partnership in agriculture / horticulture with his twin,
performing exactly the same tasks day after day, month after month, year
after year as his brother and does not have any symptoms of PD.
The term "idiopathic" is used with most Parkinson's disease. Simply and
appropriately, it means we do not know what causes it.
Will Johnnston
A.P.D.A. DelMarVA Chapter Pres.
4049 Oakland School Road
Salisbury MD 21804 USA 410-543-0110
----------
From: Pick Mahaffey <[log in to unmask]>
To: [log in to unmask]
Subject: ENVIRONMENTAL CHEMICALS CULPRIT FOR VAST MAJORITY OF
PARKINSON'SDISEASE VICTIMS
Date: Thursday, May 11, 2000 5:02 PM
Now, recent evidence indicates that most Parkinson's cases result from
environmental chemical pollutants.
The researchers reported that, "No genetic component is evident when the
disease begins after age 50 years. However, genetic factors appear to be
important when [Parkinson's] disease begins at or before age 50." Thus
fewer than 10% of Parkinson's cases -- only those that begin relatively
early in life -- have a genetic component.
That leaves environmental chemicals as the culprit for the vast majority of
Parkinson's, according to the researchers who conducted the twin study. In
announcing their results, they specifically pointed out that the search for
causes of Parkinson's should now re-focus on environmental chemicals such
as pesticides and herbicides.[10]
http://www.flipside.org/vol2/feb99/99fe03a.htm for full study article.
Works for me. The wife is paranoid about cockroaches. Terminix kept our
house steeped in pesticides for 25 years. No cockroaches at all tho'.
Every appliance I pulled for repair has an eighth of an inch of powdered
pesticide on it. My PD occurred at age 70. dx 69.
=========================================================================
Date: Thu, 11 May 2000 20:24:22 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: Congratulations Barbara Patterson
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
On 11 May 2000, at 22:44, John Walker wrote:
> Congratulations Barbara Patterson, City of Hamilton's Woman of the Year
>
> -----------------
SNIP
Hi John,
Thanks for the News Flash. We had our choice confirmed!!!
Hi Barbara,
Congratulations! This is splendid news. I hope it makes the papers
so that the entire country can be informed and be elated on your
behalf....
Best regards ............... murray
>
> City of Hamilton Mayor's Status of Women
>
> 1999 Women of the Year Awards
>
> Barbara has made a truly significant contribution to her immediate
> community as well as the community of people with Parkinson's disease
> worldwide.
>
> She was diagnosed with Parkinson's in 1972 and developed the Parkinson's
> Disease Information Exchange Network which is the first electronic mailing
> list for Parkinson's disease in the world.
>
> It has grown to have over 1800 users representing about 37 countries.
>
> Barbara is also an active supporter of Caveat and Phoenix Place.
>
> She collects thousands of dollars per year in a fund raiser for Phoenix Place,
> which provides second level housing to women and children who are victims
> of abuse.
>
>
[log in to unmask]
=========================================================================
Date: Thu, 11 May 2000 22:19:17 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Les Rogers <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Hi!
My name is Laura, and I am a CG for my wonderful husband, Les who
was diagnosed with Parkinsons in 1995.
My personal experience with CD dates back to 1962 when I found myself
waking up in the morning and immediately after discovering that I was alive
and had another day to go through, would go to a corner of my room, and in
a fetal position, cry until I was exhausted.
Going to a psychiatrist as I did voluntarily, was not discussed with most
friends, because of the stigma attached to it in that day. I found that just
"talking it out" with someone who would not judge me helped a great deal.
I was also on valium. When I finally was through talking and "confessing"
every little thing I ever felt guilty and angry about, I told my doctor that
I was ready to "do something." I was ready to get out in the world again
and learn, do, see, experience the good things of life. Of course, he was
elated. I then asked him, " What will I do if I become so depressed again?"
He asked me what I would do if I sought
medical help for a broken arm, and then later broke my arm again. Would
I not get my arm repaired again? Depression is no different. You are always
welcome to come back any time you need help. I have had various bouts with
depression most of my life. But now I understand that I can deal with it in
different
ways depending upon to what extent I feel the pain. And I understand that
sometimes
one needs to keep working at finding relief in whatever way works for you. ( Just
like each PD has to find their own way to find relief from this terrible
disease.) I can
not put myself in your shoes, only my own. I cannot really feel the pain of a
PD, only
the pain of a CD, and to me that is sometimes bad enough. I look in my husband's
eyes to try find ways to make him "all better."
This network has helped a great deal in learning about PD. Even though you
do not know me, I feel that I know you and you are ALL so wonderful. I am
making a notebook of all your information. And keep up the "small talk." I
really
believe this is a very important part of the healing process by bonding, loving
each
other and sharing your experiences, both positive and negative.
May God Bless
Laura Rogers
> Hello, I mostly lurk, but felt inspired/compelled to respond to this recent
> discussion. I am a psychotherapist, "retired", and social worker,
> "retired", meaning I am taking care of my Dad with PD and have suspended my
> life......I have found great power for people in the 12 step programs.
> Power to be more free, more independent, and happier. I know many people of
> AA who do not follow the "party line" that this email describes, the one
> about the people being basically narrowminded. It is impossible, to my
> thinking, to catagorize a group of folks in that way....impossible. Like
> all PD's do this or have this, folks in 12 step programs are as individual
> as we all are...... Blessings to all. Deborah, caregiver to Eugene/79/10+
> ----------
> >From: "Hawkins, Darwin" <[log in to unmask]>
> >To: [log in to unmask]
> >Subject: AN "OUTSIDER'S" VIEW OF DEPRESSION
> >Date: Thu, May 11, 2000, 11:37 AM
> >
>
> >Friends,
> >I forwarded one of the e-mails (Chuck's) about CD to a close friend because
> >of a discussion we had the other day. He is a recovered (in my opinion not a
> >recovering) alcoholic (for 17 years now). What prompted the conversation was
> >at his daughter's wedding two weeks ago, he had to propose a toast using a
> >glass of Champaign at the wedding cake table. He did well. I noticed and
> >commented later that he only pretended to take a sip from the glass. I told
> >him I admired his commitment to never again take a drink.
> >We got to discussing how he overcome the addiction. He said his wife still
> >to this day is in denial that he either was never an alcoholic or he has not
> >completed the recovery because he did not go through the 12 step program.
> >Wine, beer, and spirits are still kept and served on occasion in their home.
> >
> >His response to the e-mail follows. I thought it appropriate to share with
> >all of you. BTW, he is the editor of one of my flying club's newsletter and
> >is also writing a Steven King type horror novel. Very articulate gentleman
> >and I am happy to count him as one of my very close friends.
> >Darwin
> >- - - - - - - - - - -
> >
> >
> >> This is an interesting piece. Here is my take on the 12 Step idea that
> >> some
> >> people have. I believe that they reject the idea of anyone handling their
> >> problems in a different manners than they did because it makes them feel
> >> inferior. If they acknowledge that other people can achieve what they did
> >> without meetings, programs and support groups they view the other person
> >> as
> >> more capable and themselves less capable. Thus they take the position
> >> that
> >> the other person didn't really have a problem because "there is no other
> >> way
> >> to fix this problem other than the one I used."
> >>
> >> Its sad that these people don't realize that it is always the individual
> >> who
> >> fixes their own problem. Turning problems over to God is a way to allow
> >> themselves a little breathing room. By telling themselves that they no
> >> longer have to worry about a problem it allows them to step back and get
> >> some perspective on it. Most of our problems are not as bad as they seem
> >> to
> >> the individual. By mentally dumping the worry, which debilitates the
> >> person, they can then take steps to fix the problem because they don't
> >> have
> >> to worry about failing.
> >>
> >> I have always thought that depression was brought on by peoples' negative
> >> thinking and self absorption. There seems to always be a cause that
> >> triggers this in the person. Perhaps there are some people who simply get
> >> depressed for no reason but I think the majority of people do this based
> >> upon a loss in their life. A loss of a loved one, loss of a job, natural
> >> disaster that destroys a home, etc. They spend too much time dwelling on
> >> what they no longer have instead of being grateful for what they did have
> >> for so long. This limits the person's ability to see other
> >> possibilities...which makes them dwell on their loss....which limits their
> >> ability to see....until they spiral down to a position of total
> >> hopelessness. Its true that brain chemistry affects our emotions and
> >> ability to handle problems. Some of the anti-depressant drugs allow
> >> people
> >> to jump ahead by bringing their brain chemistry back close to normal.
> >> However, if they don't learn to be positive and handle life's problems
> >> without giving up they are just setting themselves up for another
> >> depressive
> >> state. Too many people think the answer is just more pharmaceuticals.
> >> Like
> >> the 12 step people, they get the notion that it is not possible to fix a
> >> problem any other way. If a person can do it they are viewed as not
> >> really
> >> having a problem. Pretty sad.
> >>
> >> -----Original Message-----
> >> From: Hawkins, Darwin
> >> To: XXXXXXXXXX
> >> Sent: 5/11/00 9:16 AM
> >> Subject: FW: depression
> >>
> >> I'm sending this to you (came in on my Parkinson's Information Exchange
> >> Network e-mail) in light of what we were discussing the other day about
> >> the
> >> 12 step program. Maybe we do have the capability of mind over matter!
> >>
> >> > ----------
> >> > From: Charles E Murray[SMTP:[log in to unmask]]
> >> > Sent: Wednesday, May 10, 2000 4:30 PM
> >> > Subject: Re: depression
> >> >
> >> > I have watched a blister grow on the skin of a hypnotized subject
> >> touched
> >> > by a finger tip, but told it was a lighted cigarette.
> >> >
> >> > I have watched a brother with terminal liver and colon cancer, given
> >> a
> >> > two month prognosis by oncologists at the U of A (after surgery and
> >> > other medical efforts for two years failed to halt the spread),
> >> decline
> >> > chemo, adopt a macrobiotic food diet and the practice of meditation,
> >> then
> >> > be pronounced cancer free 13 months later.
> >> >
> >> > Twenty years ago medical science denied any connection between diet
> >> and
> >> > cancer. Today this has changed, but scientists still resist the
> >> > possibility that diet can be curative. Few physicians would deny
> >> that,
> >> > at times, medical science finds itself playing "catch up," with
> >> > disciplines not restricted by the "scientific method" of research.
> >> > Witness the slow acknowledgment of the efficacy of acupuncture as
> >> one
> >> > example.
> >> >
> >> > Studies have demonstrated that certain attitudes correlate with good
> >> and
> >> > bad prognoses in many illnesses.
> >> >
> >> > My dad, troubled most of his life by migraines, learned biofeedback and
> >> > today has absolute control of migraine cycles, stopping them at the
> >> outset
> >> > with mental imagery.
> >> >
> >> > Is it possible that, given the incredible power of our mind, we can
> >> > affect the physiology of our bodies, including the brain's chemical
> >> > balance, by the patterns of our thinking?
> >> >
> >> > Sinead and I believe diet and "positive" thinking patterns can be
> >> > therapeutic because that has been our experience.
> >> >
> >> > Some folks in 12 Step programs apply the rationale that if someone
> >> quit
> >> > drinking (using, etc.) without a 12 step program they must not have
> >> been
> >> > a real alcoholic (addict, etc.) in the first place. With this simple
> >> > logic they dismiss all input and declare irrelevant all experience
> >> from
> >> > such people under the conclusion that such folks are "not one of us.":
> >> >
> >> > Are some of us using this same kind of logic to dismiss the experience
> >> of
> >> > those who say diet and positive thinking were effective in their
> >> > depression, i.e, "They were not suffering from true CD."
> >> >
> >> > Wouldn't it be interesting if someday we determine that negative
> >> thinking
> >> > patterns change brain chemistry, and that, with rescue and
> >> transitional
> >> > help from anti depressant meds, diligent training in positive thought
> >> > patterns proves to be the best method of keeping brain chemistry
> >> healthy?
> >> >
> >> >
> >> > In the meantime, I'll keep taking my St. John's Wort and Requip for
> >> > whatever they have contributed to my coming "out of the darkness and
> >> into
> >> > the light." (Title of the book- written by a psychiatrist - that
> >> > boosted me down the path to peace of mind). And if I go back to a
> >> darker
> >> > place I will use all the resources I can find, medical and spiritual,
> >> to
> >> > come back out again.
> >> >
> >> > Chuck
> >> >
> >>
=========================================================================
Date: Thu, 11 May 2000 21:10:35 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
Subject: Re: Neuroleptic Malignant Syndrome - a survivor
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Dear Barb,
I am so, SO happy to hear from you at last! We have all been very
worried and feeling helpless as we read Fred's posts. I'm profoundly
grateful to hear from you at last and know that you're back home and
recovering.
I'll look forward to your summary to the list, and may I suggest that
you post it to "Ask Dr. Lieberman" on the NPF website as well? I can't
help but think he might have some insight into the throat constriction
and swelling.
VERY glad to have you back,
Kathrynne
Barbara Blake-Krebs wrote:
>
> I am a recent survivor of NMS. As my husband Fred Krebs wrote in mid-March,
> 2000, I was rushed to the hospital with renal failure, low blood pressure,
> 104-5' temperature brought on by increasingly violent dyskinesias over a
> two-day period. I was in ICU for 5 days, acute care for over 3 weeks, and a
> nursing home for 2 weeks. i am in the 3rd week of "home" recovery.
> Fortunately, my renal function was not permanently damaged I am however
> quite weak which affects my ability to walk and to work at any task for a
> sustained period. Also, I have great discomfort from a tight, often
> constricted, throat and swelling in mouth and throat.
>
> Fred and I are working on a more complete summary of my case which we hope to
> post in a few days. I feel lucky to be alive!
>
> Barbara Blake-Krebs 59/44
> Merriam KS
> [log in to unmask] [log in to unmask]
--
Kathrynne Holden, MS, RD
Medical nutrition therapy for Parkinson's disease
Author: "Eat well, stay well with Parkinson's disease"
"Parkinson's disease: interview and assessment tools for nutrition
professionals"
"Risk for malnutrition and bone fracture in Parkinson'sdisease," J Nutr
Elderly. V18:3;1999.
http://www.nutritionucanlivewith.com/
=========================================================================
Date: Fri, 12 May 2000 09:25:30 +0500
Reply-To: Muntazar Bashir Ahmed <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Muntazar Bashir Ahmed <[log in to unmask]>
Subject: Re: Feedback on Medication
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hi all,
I am new to this network. My question is for anybody using Selegeline with
Rivotril and suffering acute side effect in having difficulty in urination
on adding Amantadine to the medication. Difficulty disappears at end of day
when the morning dose effect has worn off.
Regards and best wishes
Muntazar Bashir Ahmed
Pakistan
----- Original Message -----
From: Gordon Seese <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, May 12, 2000 7:44 AM
Subject: Re: Feedback on Medication
> At 10:01 PM 5/9/00 EDT, you wrote:
> >Is anyone who has been diagnosed a year ago taking Amantadine in
combination
> >with Mirapex? Any information on how you are doing with the Mirapex will
be
> >appreciated. I am not taking any Sinemet as yet.
> >
> >Thank you.
> >
> >Fran Landes
> >46/45/43
> >
> > Gordon hs taken Amantadine for years, off and on. He does take it
now
> with mirapex and Sinemet. T.L.Seese
>
=========================================================================
Date: Fri, 12 May 2000 01:09:48 -0400
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Michel Margosis <[log in to unmask]>
Subject: Re: Congratulations Barbara Patterson
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
I voted for you more than once several years ago and I
am glad the City of Hamilton has caught up with me.
Fondly
Michel
=========================================================================
Date: Fri, 12 May 2000 05:19:24 GMT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Judy George <[log in to unmask]>
Subject: Re: depression /cd / bootstraps
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
audrey
i think understanding depression is the best thing i learnt from my doctor
her understanding was that depression was part of the human condition and as
such i needed to accept this and deal with it
ive learned to do this ie accept it as part of my lot
it is inherited and very real at times
judy
>From: Audrey <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: depression /cd / bootstraps
>Date: Tue, 9 May 2000 09:01:55 -0700
>
>Only someone who has not had cd would suggest that one who had it should *
>stay busy*as a help..If it is about motivation that is a foreign term while
>in the dark place we all know who are cd. I get upset when I was advised
>to
>stay busy as if I didn't know that it made sense once, but no longer did in
>the worst hours. None of us choose to be cd and can only expect to have our
>moods more even with less deep dips in the road. I appreciate the kind
>advice in the spirit it is offered, yet all who say this are not helpful no
>matter how well meaning. Maybe someone else who has cd has a better
>description of the darkness and the fear and despair that is within it than
>I have. It needs to be posted for all to see and heed.
>
>*Seattle* Audrey friend of pwp aussie John 49/42/38 ?
>
>
>----- Original Message -----
>From: " janet paterson" <[log in to unmask]>
>To: <[log in to unmask]>
>Sent: Tuesday, May 09, 2000 8:32 AM
>Subject: Re: depression /cd / bootstraps
>
>
> > At 02:00 PM 2000/05/09 +0100, "Sinead Aungier <[log in to unmask]>"
>wrote:
> > >The best cure for depression is to be busy because when you're busy
>you're
> > >not thinking about how you feel. But also don't overdo things or
>you'll
> > >tire yourself out. I'd also recommend eating well and getting plenty
>of
> > >vitamin C and not letting your body overheat especially at night.
> >
> >
> > if this is advice for those suffering clinical depression [cd]
> > i'm afraid it's not very good advice
> >
> > dr. david burns describes the single most debilitating symptom of cd
> > as 'the paralysis of will' - 'keeping busy' just aint in the picture
> >
> > a friend also told me that
> > the reason people with cd walk around with their heads hanging down is
> > they are looking for those 'bootstraps' they are supposed to 'pull
>themselves up' with
> >
> > a little education goes a long way
> >
> > janet
> >
> > janet paterson
> > 53 now / 41 dx / 37 onset
> > 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
> > come visit my website "a new voice" at:
> > http://www.geocities.com/janet313/
> >
________________________________________________________________________
Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com
=========================================================================
Date: Fri, 12 May 2000 03:44:04 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: Congratulations Barbara Patterson / our list-mom!!!
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At 10:44 PM 2000/05/11 -0400, John Walker <[log in to unmask]> wrote:
>Congratulations Barbara Patterson, City of Hamilton's Woman of the Year
>City of Hamilton Mayor's Status of Women
>1999 Women of the Year Awards
>Barbara has made a truly significant contribution to her immediate
>community as well as the community of people with Parkinson's disease
>worldwide.
>She was diagnosed with Parkinson's in 1992 and developed the Parkinson's
>Disease Information Exchange Network which is the first electronic mailing
>list for Parkinson's disease in the world.
>It has grown to have over 1800 users representing about 37 countries.
>Barbara is also an active supporter of Caveat and Phoenix Place.
>She collects thousands of dollars per year in a fund raiser for Phoenix Place,
>which provides second level housing to women and children who are victims
>of abuse.
thank you john for the notice
it's great news and perfect timing for mom's day, no?
barb's woman of the year every year in my book!
janet
ps
i corrected a typo the right way, i hope,
1972 should be 1992, yes?
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Fri, 12 May 2000 00:42:02 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Barb_MSN <[log in to unmask]>
Subject: Re: HMO Better Blues
You're BAD, Jo Ann... very ,very bad! <Grin> Ain't it FUN to be
bad every once in a while?
Barb Mallut
[log in to unmask]
-----Original Message-----
From: Jo Ann Coen <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Thursday, May 11, 2000 2:29 PM
Subject: Re: HMO Better Blues
>Darwin Hawkins - that was so cute about the shingles thingee.
But you
>know what aggravates the P------- out of me, is that every time I
go in
>there they ask my age. Are they so stupid, they can't look back
to the
>last time I was there? One day the nurse asked my age, and I
said, "my
>dear, there are two things women don't talk about:
>One is their sex life and the other is their age". She very
quickly
>thimbed through my file and found my age. Jo Ann from Houston
=========================================================================
Date: Thu, 11 May 2000 16:21:37 -0300
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Joao Carvalho <[log in to unmask]>
Subject: Re: depression (not yet)
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Yeah Barb -- we are very happy to endorse Camilla words below ...Congrats.
Cheers ,
Camilla Flintermann wrote:
> Hi Barb-- this is wonderful---may I say that it couldn't happen to a nicer
> or more deserving person !
> We're all rooting for you!
>
> >Hi, folks...last month, two faculty member at McMaster University
> >nominated me for a Woman of the Year Award in this area...the awards are
> >to be given out tomorrow evening...so, if you can spare some prayers or
> >kind thoughts, please feel free...not with the goal of winning but rather
> >that I don't trip and fall or spill my dinner in front of 500 people!
> >Barb :)
> >
> >============================================================================
> >Barbara Patterson [log in to unmask]
> >HSC 2J22 905-525-9140, ext. 22403
> > School of Nursing
> >============================================================================
>
> Camilla Flintermann, CG for Peter 82/70/55
> Oxford, Ohio
> http://www.newcountry.nu/pd/members/camilla/one.htm
> <[log in to unmask]>
>
> also, on PDWebring at http://members.tripod.lycos.nl/genugten/flinterm.htm
>
> "Ask me about the CARE list for
> Caregivers of Parkinsonians ! "
> And visit the CARE webring at
> http://www.crosswinds.net/~caregivers/index.html
--
Joao Paulo - Salvador,BA,Brazil
[log in to unmask]
[log in to unmask]
=========================================================================
Date: Thu, 11 May 2000 22:22:35 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION / not my meaning
Well Janet, as usual, there is a misinterpretation of what you said, and
a misinterpretation of what I said. So. I say, it's the last time I'll
ever tell you thank you and the last time I will EVER respond to anything
you write. Seems the stars are not in it for us. Jo Ann from Houston
=========================================================================
Date: Fri, 12 May 2000 02:39:19 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: wwweb resources by murray charters now updated...
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
On 11 May 2000, at 19:38, janet paterson wrote:
> ...at my web site 'a new voice' [see below for URL] under "pienet/words"
>
> or
>
> ...jump to murray's page directly:
> "http://www.geocities.com/janet313/pienet/wwweb/index.html"
>
>
> janet
>
Thankyou ...... murray
[log in to unmask]
=========================================================================
Date: Fri, 12 May 2000 03:02:28 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: Poems by Bob Armentrout on the wwweb
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
On 11 May 2000, at 10:35, janet paterson wrote:
> hi all
>
> bob 'tex' armentrout's collection of poetry
> has been installed at 'a new voice' [in the 'pienet/words/nuggets' section]:
> "http://www.geocities.com/janet313/pienet/boba/index.html"
>
> there are two formats:
> the main index takes you to the individual poems on individual web pages
> while a secondary index takes you to a single large document containing all poems
> [for easier downloading/printing if needed]
>
>
> in gratitude
>
> janet
>
Hi Bob & hi Janet,
Very impressive! When I have time, I do enjoy poetry....
Here is today's tipple from the Free Pint Bar...
The following new messages have been posted on The Free Pint Bar at
<http://www.freepint.co.uk/bar>.
MESSAGE: (#3204) Today's Tipple From Free Pint - Poetry
http://www.freepint.co.uk/cgi-bin/webbbs/config.pl?review=3204
AUTHOR: Simon Collery <[log in to unmask]>
DATE: 10/5/0 4:06 p.m.
http://www.geocities.com/~spanoudi/poems/index.html
There have been a lot of postings about music on the Free Pint Bar, and
some articles in the Newsletter too. So for a change, I thought I'd look
up what poetry resources were available. I expected to come across several
good quality sites and lots of appalling ones. In fact I spent a long time
looking and just came up with a couple of good sites. I'm sure there are
others but I ran out of time. Anyhow, if you work in an office where music
is not welcomed, try poetry instead. All the better if music is permitted,
because then you can read the poetry out loud.
With nearly 6000 works and 700 poets, you really can have a good time
looking through this collection. Oddly enough, when using the search
function you have to search twice, to cover two different sites. This is a
pity, but if you are using the site for recreational purposes, you
probably won't mind so much. The free search is handy, but you are better
off searching the alphabetical list of authors or titles. There's even a
subject index which shows how much work goes into maintaining this site.
And it makes an excellent way of browsing.
These are all out of copyright works, in case anyone was worried. And if
you have some favourite works you can send them in, as long as they are
out of copyright also. The site is a bit slow, but once you get going, you
can open things in new pages and read while waiting for something else to
load. There are links to other things of interest, such as biographies,
bibliographies, other poetry sites, societies, etc.
It's only fair to mention that it was the following site that led me to
this charming resource: http://www.cswnet.com/~erin/ so thank you to
'Erin' for creating this. Erin's lovely site is also dedicated to poetry
and is well worth a look around. Cheers Simon
Business Development, Free Pint
PS If you have any comments on today's reviewed site, good or bad, feel
free to post them here. And if you would like to suggest a Tipple send it
to [log in to unmask]
Link: Poetry on the Web
URL: <http://www.geocities.com/~spanoudi/poems/index.html>
= = = = = = = = = = = = = = = = = = = = = = = = = = = = = = = = = =
Just thought I'd post this one to y'all Bob and to the other "poets"
and poetry fans on the List.
All the best ...... murray
[log in to unmask]
=========================================================================
Date: Fri, 12 May 2000 05:12:30 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: doublea <[log in to unmask]>
Subject: Re: Congratulations Barbara Patterson
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
1800 YEAH BARB'S!!! might be too many, but on the other hand, I think most
of us would like to say well done, we are so glad that the city of Hamilton
recognized what we all knew. Great news Barb, and well deserved.
bob AKA tex
=========================================================================
Date: Fri, 12 May 2000 03:24:04 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: PD & 3am
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Hi Bob,
I've noticed many times that certain people seem to often
post at 3am... Myself, you (Tex), janet, & several others.
I typically sleep 2 -3 hours and then prowl around for a few
hours and sometimes catch a few more winks before the
6am wake up call, breakfast, and my normal day....
Do we all have problems sleeping??
Anybody got any great tips to pass on??
Perhaps I'm extra wide awake tonight because I have an
acquaintence who was just awarded Woman of the Year...
:-) ....... murray
[log in to unmask]
=========================================================================
Date: Fri, 12 May 2000 05:43:53 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: doublea <[log in to unmask]>
Subject: Re: Poems by Bob Armentrout on the wwweb
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
A little while ago, someone asked me if I "enjoyed" writing poetry, and I
truthfully answered I didn't know if I enjoyed it, anymore then I enjoy
breathing, but I did know that both are a necessity for me. What I have
discovered , is that I do enjoy other people reading my poems and relating
to them, or telling me how this one reminded them of something which
happened to them etc. I also know that as much fun as this web stuff can be,
I can drive myself silly trying to put two pages together, much less 40
some-odd. I wanted to publicly thank Janet for all the hard work she went to
not only to post my poems for me, but also to rescue the dozen or so which
got lost when my son decided his new game fit very well over the stored
poems on Dad's disk.
Thank you very much Janet, for all your hard work.
bob aka tex
=========================================================================
Date: Fri, 12 May 2000 06:02:35 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: doublea <[log in to unmask]>
Subject: Re: NON PD PD & 3am
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
My Dear Mr Murray -
I was highly insulted by your insinuation that I have trouble sleeping - I
will have you know that I sleep like a baby - just like a baby. I sleep a
couple of hours, and then I wake up yelling and ready to eat,
but absolutely no trouble sleeping (SMILE)
good morning murray, what's for breakfast?
bob aka tex
ps the best tip I have ever had, ---- is that one good turn gets all the
blanket!
> Hi Bob,
> I've noticed many times that certain people seem to often
> post at 3am... Myself, you (Tex), janet, & several others.
>
> I typically sleep 2 -3 hours and then prowl around for a few
> hours and sometimes catch a few more winks before the
> 6am wake up call, breakfast, and my normal day....
>
> Do we all have problems sleeping??
>
> Anybody got any great tips to pass on??
>
> Perhaps I'm extra wide awake tonight because I have an
> acquaintence who was just awarded Woman of the Year...
>
> :-) ....... murray
> [log in to unmask]
>
=========================================================================
Date: Fri, 12 May 2000 07:25:56 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Re: PD & 3am
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
PD has its own sleep rhythm
My nights start with meds at 930 PM
and again just past midnight.
Mine include medications at 330 AM
Sometimes again at 6AM, definitely by 7AM
Otherwise I become immobilized.
SO if I have rested enough, I get up at
all kinds of pre-dawn hours.
And sometimes I am most clear-headed and
productive and write more easily on PIEN
at that time of the day.
My neuro just revealed to me yesterday that
I am the only patient who would be totally
froxen up without nighttime meds.He has
60 PWP's in his practice of 200 or so patients.
Maybe it's the tip of the iceberg; there
must be MANY more PWP's like me.
Murray do you need meds to avoid nighttime paralysis?
What year are you in since diagnosis and onset?
Ivan Suzman
50 age now / 39 diagnosis / 36 onset of visible symptoms
:-)
On Fri, 12 May 2000 03:24:04 -0700 Murray Charters
<[log in to unmask]> writes:
> Hi Bob,
> I've noticed many times that certain people seem to often
> post at 3am... Myself, you (Tex), janet, & several others.
>
> I typically sleep 2 -3 hours and then prowl around for a few
> hours and sometimes catch a few more winks before the
> 6am wake up call, breakfast, and my normal day....
>
> Do we all have problems sleeping??
>
> Anybody got any great tips to pass on??
>
> Perhaps I'm extra wide awake tonight because I have an
> acquaintence who was just awarded Woman of the Year...
>
> :-) ....... murray
> [log in to unmask]
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 50/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses deg. F :-)
********************************************************************
=========================================================================
Date: Fri, 12 May 2000 07:28:52 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Alison Landes <[log in to unmask]>
Subject: Re: Congratulations Barbara Patterson
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Good Morning Barbara,
Been reading the posts about your Nomination for Woman of the Year this
morning and I wanted to acknowlege you personally for your contributions.
Thank you for the ListServe. It has made and continues to make a tremendous
contribution to our family and truly creates a sense of security knowing that
there is a place to turn for truth, caring and informed feedback on just
about any Parkinson's related topic. It's hard to imagine how much more
difficult it would be to deal with a diagnosis of Parkinson's without access
to this remarkable communication medium.
Alison Landes
CG for sister, Fran Landes 46/45/43
and Founder and President of Take Charge America - Cure Parkinson's, Inc.
=========================================================================
Date: Fri, 12 May 2000 04:33:01 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Joan Hartman <[log in to unmask]>
Subject: Re: PD & 3am
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hey Murray, just because we're not posting doesn't mean we're not up and
awake...I bet there are a bunch more like me who lurk and play solitaire in
the middle of the night.....have a great rest of the night.........as for me
I'm going back to bed after all it's 4:30 and I gotta be back in bed in
time to wake up with the alarm....ha ha........Joan Hartman
----- Original Message -----
From: Murray Charters <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, May 12, 2000 3:24 AM
Subject: PD & 3am
> Hi Bob,
> I've noticed many times that certain people seem to often
> post at 3am... Myself, you (Tex), janet, & several others.
>
> I typically sleep 2 -3 hours and then prowl around for a few
> hours and sometimes catch a few more winks before the
> 6am wake up call, breakfast, and my normal day....
>
> Do we all have problems sleeping??
>
> Anybody got any great tips to pass on??
>
> Perhaps I'm extra wide awake tonight because I have an
> acquaintence who was just awarded Woman of the Year...
>
> :-) ....... murray
> [log in to unmask]
>
=========================================================================
Date: Fri, 12 May 2000 04:49:08 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: PD & 3am
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
On 12 May 2000, at 7:25, Ivan M Suzman wrote:
> PD has its own sleep rhythm
>
> My nights start with meds at 930 PM
> and again just past midnight.
>
> Mine include medications at 330 AM
> Sometimes again at 6AM, definitely by 7AM
>
> Otherwise I become immobilized.
>
> SO if I have rested enough, I get up at
> all kinds of pre-dawn hours.
> And sometimes I am most clear-headed and
> productive and write more easily on PIEN
> at that time of the day.
>
> My neuro just revealed to me yesterday that
> I am the only patient who would be totally
> froxen up without nighttime meds.He has
> 60 PWP's in his practice of 200 or so patients.
>
> Maybe it's the tip of the iceberg; there
> must be MANY more PWP's like me.
>
> Murray do you need meds to avoid nighttime paralysis?
>
Hi Ivan,
Rigidity is not a major symptom for me so for the most
part I don't take meds during the night and only seem to
*require* meds when I start my daily routine.
>
> What year are you in since diagnosis and onset?
>
> Ivan Suzman
> 50 age now / 39 diagnosis / 36 onset of visible symptoms
> :-)
>
Ivan, I had symptoms at age 38 and went through a year of tests
and the *diagnosis* was very indefinite ... I was thought to be
possibly in early stages of MS. While this proved false, I still
continued the therapy for loss of balance for several years off
and on... Other symptoms exhibited over time but they were
never dealt with as a package until age 49 when it became
obvious that I had Parkinson's. My wife and I were taking
ballroom dance lessons and I was *diagnosed* by my wife
and my dance instructor. This was of course then taken to
my gp and on to a neuro for confirmation. I'm now nearing my
56th. birthday. I still work and don't have a lot of difficulty
aside from being slow and having a tremor. I'm left handed
and my Parkinson's affects my right side. I do suffer from
sleep deficit.
Regards ...... murray
[log in to unmask]
View the Parkinson's Awareness Links at:
http://www.geocities.com/janet313/pienet/wwweb/index.html
=========================================================================
Date: Fri, 12 May 2000 05:01:26 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Joan Hartman <[log in to unmask]>
Subject: Re: PD & 3am
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
>>While this proved false, I still
>>continued the therapy for loss of balance for several years off
>>and on...
Murray....you wrote the above....what was your therapy for balance as that
is a problem for me at times....Joan Hartman
----- Original Message -----
From: Murray Charters <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, May 12, 2000 4:49 AM
Subject: Re: PD & 3am
> On 12 May 2000, at 7:25, Ivan M Suzman wrote:
>
> > PD has its own sleep rhythm
> >
> > My nights start with meds at 930 PM
> > and again just past midnight.
> >
> > Mine include medications at 330 AM
> > Sometimes again at 6AM, definitely by 7AM
> >
> > Otherwise I become immobilized.
> >
> > SO if I have rested enough, I get up at
> > all kinds of pre-dawn hours.
> > And sometimes I am most clear-headed and
> > productive and write more easily on PIEN
> > at that time of the day.
> >
> > My neuro just revealed to me yesterday that
> > I am the only patient who would be totally
> > froxen up without nighttime meds.He has
> > 60 PWP's in his practice of 200 or so patients.
> >
> > Maybe it's the tip of the iceberg; there
> > must be MANY more PWP's like me.
> >
> > Murray do you need meds to avoid nighttime paralysis?
> >
>
> Hi Ivan,
> Rigidity is not a major symptom for me so for the most
> part I don't take meds during the night and only seem to
> *require* meds when I start my daily routine.
>
> >
> > What year are you in since diagnosis and onset?
> >
> > Ivan Suzman
> > 50 age now / 39 diagnosis / 36 onset of visible symptoms
> > :-)
> >
>
> Ivan, I had symptoms at age 38 and went through a year of tests
> and the *diagnosis* was very indefinite ... I was thought to be
> possibly in early stages of MS. While this proved false, I still
> continued the therapy for loss of balance for several years off
> and on... Other symptoms exhibited over time but they were
> never dealt with as a package until age 49 when it became
> obvious that I had Parkinson's. My wife and I were taking
> ballroom dance lessons and I was *diagnosed* by my wife
> and my dance instructor. This was of course then taken to
> my gp and on to a neuro for confirmation. I'm now nearing my
> 56th. birthday. I still work and don't have a lot of difficulty
> aside from being slow and having a tremor. I'm left handed
> and my Parkinson's affects my right side. I do suffer from
> sleep deficit.
>
> Regards ...... murray
>
> [log in to unmask]
>
> View the Parkinson's Awareness Links at:
> http://www.geocities.com/janet313/pienet/wwweb/index.html
>
=========================================================================
Date: Fri, 12 May 2000 08:26:35 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Greg Sterling <[log in to unmask]>
Subject: Re: PD & 3am
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Murray,
Sell your computer and read the encyclopedia. You'll sleep.
Seriously though, I have had the same problems with sleep. The best thing I
have found is to set a schedule and stick to it. I used to work shifts and
that only made things worse. As far as rigidity goes count me in. It
drives me nuts! I thought I read somewhere that rigidity and slowness of
movement is more common in young-onset PD.
Greg
47/35/35
----- Original Message -----
From: Murray Charters <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, May 12, 2000 6:24 AM
Subject: PD & 3am
> Hi Bob,
> I've noticed many times that certain people seem to often
> post at 3am... Myself, you (Tex), janet, & several others.
>
> I typically sleep 2 -3 hours and then prowl around for a few
> hours and sometimes catch a few more winks before the
> 6am wake up call, breakfast, and my normal day....
>
> Do we all have problems sleeping??
>
> Anybody got any great tips to pass on??
>
> Perhaps I'm extra wide awake tonight because I have an
> acquaintence who was just awarded Woman of the Year...
>
> :-) ....... murray
> [log in to unmask]
>
=========================================================================
Date: Fri, 12 May 2000 10:26:18 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION / not my meaning
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At 10:22 PM 2000/05/11 EDT, you wrote:
>Well Janet, as usual, there is a misinterpretation of what you said, and
>a misinterpretation of what I said. So. I say, it's the last time I'll
>ever tell you thank you and the last time I will EVER respond to anything
>you write. Seems the stars are not in it for us. Jo Ann from Houston
never say never, sweetie!
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Fri, 12 May 2000 10:32:42 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION / not my meaning
Chuck - thank you, thank you, thank you. Some people are so stupidly
narrow minded, they can't see beyond the end of their noses (no names
mentioned) Please write me on a personal basis, so we can discuss this
further. Jo Ann from Houston Jac694@ juno 2Com
=========================================================================
Date: Fri, 12 May 2000 10:30:17 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Camilla Flintermann <[log in to unmask]>
Subject: Re: Poems by Bob Armentrout on the wwweb
In-Reply-To: <00bf01bfbbfe$f7eaa2e0$0d0671cf@computer>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Bob A wrote in part--
> A little while ago, someone asked me if I "enjoyed" writing poetry, and I
>truthfully answered I didn't know if I enjoyed it, anymore then I enjoy
>breathing, but I did know that both are a necessity for me. What I have
>discovered , is that I do enjoy other people reading my poems and relating
>to them, or telling me how this one reminded them of something which
>happened to them etc.
SNIPPED
Believe me Bob, these words speak to my condition also! When a poem comes,
it is THERE, and the anaolgy with breathing is a true one for me, too. I
also am very pleased when something I've written speaks to others--often
people who have read a few of my poems on my website let me know that, and
I appreciate it. I've always found your poems moving and
true,--remembering the ones you wrote when Dawana was hospitalized--and
will enjoy visiting the website to see more of them!
Camilla Hewson Flintermann <[log in to unmask]>
http://www.newcountry.nu/pd/members/camilla/one.htm
also on PDWebring at :
http://members.tripod.lycos.nl/genugten/flinterm.htm
"...everywhere I go,
I find that a poet
has been there
before me..."
...Sigmund Freud
=========================================================================
Date: Fri, 12 May 2000 11:33:25 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Camilla Flintermann <[log in to unmask]>
Subject: Re: PD & 3am
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Ivan wrote in part
SNIPPED
>
>My neuro just revealed to me yesterday that
>I am the only patient who would be totally
>froxen up without nighttime meds.He has
>60 PWP's in his practice of 200 or so patients.
>
>Maybe it's the tip of the iceberg; there
>must be MANY more PWP's like me.
For sure, Ivan---Peter also takes meds through the night--Sinemet ,
ReQuip, Sinemet CR and Seroquel.
I'm not giving specific times and doses,( like Don McKinley), as they are
unique, but our alarm goes off for meds at 11:30PM, 2:30 & 5:30 AM & 7:30
AM. Often Peter is up ahead of his sleepy CG and takes the 7:30 himself.
His early morning hours are good, and I'm sure this would not be true
without the nighttime meds.
BTW-- thanks for purchase info re: tapes--I've fwd it to group leader.
Camilla Flintermann, CG for Peter 82/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
also, on PDWebring at
http://members.tripod.lycos.nl/genugten/flinterm.htm
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
And visit the CARE webring at
http://www.crosswinds.net/~caregivers/index.html
=========================================================================
Date: Fri, 12 May 2000 11:38:54 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Camilla Flintermann <[log in to unmask]>
Subject: NON-PD--: U.S. Depository progam funding cut (fwd)
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
From the Oxford, Ohio Citizens for Peace & Justice group---
> What this could mean is the beginning of the end to easy public access
>to lots of government information if we are not careful. I'd be more than
>happy to provide more information on the significance of this at the next
>OCPJ meeting if folks are interested.
>
> Respectfully, Pamela Salela
>===============================================================================
>
>Date: Wed, 10 May 2000 16:08:14 -0500
>From: Jack Montgomery (W. Kentucky Univ.)
>Subject: Depository program funding cut
>
>From: Bernadine Abbott Hoduski [mailto: [log in to unmask]]
>
>
>The full House Appropriations Committee voted today, May 9, 2000, to
>drastically cut the funding for the depository program.
>They argued that the program could function as a totally
>electronic program. This in spite of the fact
>the thousands of publications in the program are not in
>electronic form and will not be since many of them are maps,
>reports and other publicatins not suitable for electronic format.
>This will mean that depository libraries will not
>receive paper editions of the US Code, Federal Register,
>Congressional Record, CFR, hearings, reports, documents and
>many other publications. This will be the end of a permanent
>record of government activities and publications in depository
>libraries unless libraries buy the publications or receive one
>of the few copies that the publishing agencies may have in
>paper. Most of these publications are not sold.
>
>If we learned nothing else from the recent virus attacks it is the
>fragility of our data bases and our access to them. The
>future of research and knowledge about our government is at stake.
>Please email, fax, call or write your Member of the House asp.
>Send info on to other list serves, library directors,
>trustees, friends of libraries, newspaper reporters and editors, public
>interest groups and anyone else who needs long term access to government
>information. The press and the public do not understand the meaning
>of this action. It is a good guess that many of those who will be
>voting on this bill do not understand it either.
>
>Bernadine, GODORT, ALA Council
>
>Bernadine Abbott Hoduski
>Government Information Advisor
>100 N. Lamborn,
>Helena, Montana
>406-449-9974
>
>****** END OF FILE ********** ACQflash ********** END OF FILE ******
>
>
>******************************
>Pamela M. Salela, M.S., M.A.
>Educational Leadership,
>Women's Studies Selector and
>Academic Resident Librarian
>350 King Library
>Miami University Libraries
>Oxford, Ohio 45056
>PHONE: (513) 529-1674
>FAX: (513) 529-3110
>******************************
Camilla Flintermann, CG for Peter 82/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
also, on PDWebring at
http://members.tripod.lycos.nl/genugten/flinterm.htm
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
And visit the CARE webring at
http://www.crosswinds.net/~caregivers/index.html
=========================================================================
Date: Fri, 12 May 2000 11:13:11 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Frans van Duinen <[log in to unmask]>
Organization: Master Programmer Group Inc.
Subject: [NONPD] Re: PD & 3am
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
What you do is you reset the clock on your pc (where your email gets its time
stamp), to impress your boss/friends with the long hours you work.
Murray Charters wrote:
>
> Hi Bob,
> I've noticed many times that certain people seem to often
> post at 3am... Myself, you (Tex), janet, & several others.
>
> I typically sleep 2 -3 hours and then prowl around for a few
> hours and sometimes catch a few more winks before the
> 6am wake up call, breakfast, and my normal day....
>
> Do we all have problems sleeping??
>
> Anybody got any great tips to pass on??
>
> Perhaps I'm extra wide awake tonight because I have an
> acquaintence who was just awarded Woman of the Year...
>
> :-) ....... murray
> [log in to unmask]
--
Frans van Duinen
(416) 652-8580
Toronto, Ontario
=========================================================================
Date: Fri, 12 May 2000 12:16:39 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Outsider??????
I am truly distressed to learn that I am an "outsider" on this listserv.
I guess I shouldn't have taken "her" message so personally, but it cut to
the bone, which I suppose is what "she" intended to do.
All of you have read my messages, which I intended to send with love
and with which I had planned to offer hope and encouragement.
Please let me know if YOU consider me an outsider as well, and I
will stop. I know I said that once before, but so many of you let me
know right away,that was wrong of me to think that way, because that's
what "she" wanted, was for me to quit.
This last tirade has me so upset, I'm going to bed for a while.
Best wishes to all of you. Jo Ann from Houston
=========================================================================
Date: Fri, 12 May 2000 09:13:53 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Barb_MSN <[log in to unmask]>
Subject: Re: NON PD PD & 3am
Bob 'n Murray....
Hey youse two wackos... if you're serving buttermilk pancakes for
that breakfast (it's at Murray's place, right?) <smirk>
Say, Murray, I looooove buttermilk pancakes but they've GOTTA be
served with REAL maple syrup, got that?!? None of that "tastes
like..." stuff that all the pancake eateries serve now-a-days.
HEY LIST-PEOPLE!! Breakfast's at Murray's! Place your orders
NOW!
Barb <ducking, running & grinning> Mallut
[log in to unmask]
-----Original Message-----
From: doublea <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Friday, May 12, 2000 4:02 AM
Subject: Re: NON PD PD & 3am
>My Dear Mr Murray -
>I was highly insulted by your insinuation that I have trouble
sleeping - I
>will have you know that I sleep like a baby - just like a baby. I
sleep a
>couple of hours, and then I wake up yelling and ready to eat,
>but absolutely no trouble sleeping (SMILE)
>good morning murray, what's for breakfast?
>bob aka tex
>ps the best tip I have ever had, ---- is that one good turn gets
all the
>blanket!
>
>> Hi Bob,
>> I've noticed many times that certain people seem to often
>> post at 3am... Myself, you (Tex), janet, & several others.
>>
>> I typically sleep 2 -3 hours and then prowl around for a few
>> hours and sometimes catch a few more winks before the
>> 6am wake up call, breakfast, and my normal day....
>>
>> Do we all have problems sleeping??
>>
>> Anybody got any great tips to pass on??
>>
>> Perhaps I'm extra wide awake tonight because I have an
>> acquaintence who was just awarded Woman of the Year...
>>
>> :-) ....... murray
>> [log in to unmask]
>>
=========================================================================
Date: Fri, 12 May 2000 12:20:21 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Camilla Flintermann <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION / not my meaning
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
SNIPPED
>Discussing this aspect of my history outside of a 12 step meeting is
>considered inappropriate by some in recovery, but here it is, born of a
>desire to contribute to this group and the conviction that this
>information is relevant to the decision by other group members to put my
>sharing on "delete automatically " list, or to read what I have to say
>with a better understanding of where it is coming from.
>
>
>Chuck
Thanks, Chuck, for your honest and thoughtful post.
Camilla Flintermann, CG for Peter 82/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
also, on PDWebring at
http://members.tripod.lycos.nl/genugten/flinterm.htm
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
And visit the CARE webring at
http://www.crosswinds.net/~caregivers/index.html
=========================================================================
Date: Fri, 12 May 2000 13:03:26 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Camilla Flintermann <[log in to unmask]>
Subject: Re: Outsider??????
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Dear JoAnn--
Of course not. Stay here. Period.
>Please let me know if YOU consider me an outsider as well, and I
>will stop.
Camilla Flintermann, CG for Peter 82/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
also, on PDWebring at
http://members.tripod.lycos.nl/genugten/flinterm.htm
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
And visit the CARE webring at
http://www.crosswinds.net/~caregivers/index.html
=========================================================================
Date: Fri, 12 May 2000 13:06:33 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: NON PD PD & 3am
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At 09:13 AM 2000/05/12 -0700, Barb_MSN <[log in to unmask]> wrote:
>Bob 'n Murray....
>Hey youse two wackos... if you're serving buttermilk pancakes for
>that breakfast (it's at Murray's place, right?) <smirk>
>Say, Murray, I looooove buttermilk pancakes but they've GOTTA be
>served with REAL maple syrup, got that?!? None of that "tastes
>like..." stuff that all the pancake eateries serve now-a-days.
>HEY LIST-PEOPLE!! Breakfast's at Murray's! Place your orders
>NOW!
>Barb <ducking, running & grinning> Mallut
i'll be right there
with the finest maple syruple
from the maple syruple capital of ontari-ario!
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Fri, 12 May 2000 13:10:48 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Poems by Bob Armentrout on the wwweb
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
re-post:
hi all
bob 'tex' armentrout's collection of poetry
has been installed at 'a new voice' [in the 'pienet/words/nuggets' section]:
"http://www.geocities.com/janet313/pienet/boba/index.html"
there are two formats:
the main index takes you to the individual poems on individual web pages
while a secondary index takes you to a single large document containing all poems
[for easier downloading/printing if needed]
in gratitude
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Fri, 12 May 2000 10:18:40 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Robert A. Fink, M. D." <[log in to unmask]>
Subject: Re: Congratulations Barbara Patterson
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Congratulations to our Barbara! Hooray!
Best,
Bob
Date sent: Thu, 11 May 2000 22:44:03 -0400
Send reply to: Parkinson's Information Exchange Network <[log in to unmask]>
From: John Walker <[log in to unmask]>
Subject: Congratulations Barbara Patterson
To: [log in to unmask]
> Congratulations Barbara Patterson, City of Hamilton's Woman of the
> Year
>
> -----------------
>
> City of Hamilton Mayor's Status of Women
>
> 1999 Women of the Year Awards
>
> Barbara has made a truly significant contribution to her immediate
> community as well as the community of people with Parkinson's disease
> worldwide.
>
> She was diagnosed with Parkinson's in 1972 and developed the
> Parkinson's Disease Information Exchange Network which is the first
> electronic mailing list for Parkinson's disease in the world.
>
> It has grown to have over 1800 users representing about 37 countries.
>
> Barbara is also an active supporter of Caveat and Phoenix Place.
>
> She collects thousands of dollars per year in a fund raiser for
> Phoenix Place, which provides second level housing to women and
> children who are victims of abuse.
>
>
>
>
>
>
>
> On-line Learning Series of Courses
> http://www.bestnet.org/~jwalker/course.htm
>
> Member: Association for International Business
> _/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/
> _/ _/
> _/ John S. Walker _/
> _/ Publisher, CSS Internet News (tm) _/
> _/ (Internet Training and Research) _/
> _/ PO Box 57247, Jackson Stn., _/
> _/ Hamilton, Ontario, Canada, L8P 4X1 _/
> _/ Email [log in to unmask] _/
> _/ http://www.bestnet.org/~jwalker _/
> _/ _/
> _/ "To Teach is to touch a life forever" _/
> _/ On the Web one touch can reach so far! _/
> _/ _/
> _/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/
>
**********************************************
Robert A. Fink, M. D., F.A.C.S., P. C.
2500 Milvia Street Suite 222
Berkeley, California 94704-2636
Telephone: 510-849-2555 FAX: 510-849-2557
WWW: http://www.dovecom.com/rafink/
mailto:[log in to unmask]
"Ex Tristitia Virtus"
*********************************************
=========================================================================
Date: Fri, 12 May 2000 13:12:19 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: wwweb resources by murray charters now updated...
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
re-post:
...at my web site 'a new voice' [see below for URL] under "pienet/words"
or
...jump to murray's page directly:
"http://www.geocities.com/janet313/pienet/wwweb/index.html"
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Fri, 12 May 2000 13:13:15 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: How do I do a vacation hold please? / second reply
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
re-post:
At , "JONI DIAMOND <[log in to unmask]>" wrote:
>This is a multi-part message in MIME format.
>
>------=_NextPart_000_001A_02291E50.DEB1BD40
>Content-Type: text/plain;
> charset="iso-8859-1"
>Content-Transfer-Encoding: quoted-printable
>
>I forgot...what do I need to do to put a vacation hold on the list? =
>Short folks have short memories..hahaha! :) Hope everyone has a great =
>couple of weeks!=20
>hugs,
>Joni
instructions are always available at my website
please also disable the "multi-part messages setting" in your e-mail program
janet
the amazonian list elfette
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Fri, 12 May 2000 13:13:55 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: Congratulations Barbara Patterson / our list-mom!!!
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
re-post:
At 10:44 PM 2000/05/11 -0400, John Walker <[log in to unmask]> wrote:
>Congratulations Barbara Patterson, City of Hamilton's Woman of the Year
>City of Hamilton Mayor's Status of Women
>1999 Women of the Year Awards
>Barbara has made a truly significant contribution to her immediate
>community as well as the community of people with Parkinson's disease
>worldwide.
>She was diagnosed with Parkinson's in 1992 and developed the Parkinson's
>Disease Information Exchange Network which is the first electronic mailing
>list for Parkinson's disease in the world.
>It has grown to have over 1800 users representing about 37 countries.
>Barbara is also an active supporter of Caveat and Phoenix Place.
>She collects thousands of dollars per year in a fund raiser for Phoenix Place,
>which provides second level housing to women and children who are victims
>of abuse.
thank you john for the notice
it's great news and perfect timing for mom's day, no?
barb's woman of the year every year in my book!
janet
ps
i corrected a typo the right way, i hope,
1972 should be 1992, yes?
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Fri, 12 May 2000 13:19:09 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: oops - maybe!
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
hi all
sorry about the duplications [if any]
i've been having some erratic responses from my isp mail server
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Fri, 12 May 2000 14:17:56 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Re: Congratulations Barbara Patterson
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
(Trumpet fanfare- Tan-tan-ta-ra !!! )
! We are 100% behind you, BARB PATTERSON!! Thank you
for all your wonderful work!!
Ivan Suzman
50/39/36
On Fri, 12 May 2000 10:18:40 -0700 "Robert A. Fink, M. D."
<[log in to unmask]> writes:
> Congratulations to our Barbara! Hooray!
>
>
> Best,
>
> Bob
>
>
> Date sent: Thu, 11 May 2000 22:44:03 -0400
> Send reply to: Parkinson's Information Exchange Network
> <[log in to unmask]>
> From: John Walker <[log in to unmask]>
> Subject: Congratulations Barbara Patterson
> To: [log in to unmask]
>
> > Congratulations Barbara Patterson, City of Hamilton's Woman of the
> > Year
> >
> > -----------------
> >
> > City of Hamilton Mayor's Status of Women
> >
> > 1999 Women of the Year Awards
> >
> > Barbara has made a truly significant contribution to her immediate
> > community as well as the community of people with Parkinson's
> disease
> > worldwide.
> >
> > She was diagnosed with Parkinson's in 1972 and developed the
> > Parkinson's Disease Information Exchange Network which is the
> first
> > electronic mailing list for Parkinson's disease in the world.
> >
> > It has grown to have over 1800 users representing about 37
> countries.
> >
> > Barbara is also an active supporter of Caveat and Phoenix Place.
> >
> > She collects thousands of dollars per year in a fund raiser for
> > Phoenix Place, which provides second level housing to women and
> > children who are victims of abuse.
> >
> >
> >
> >
> >
> >
> >
> > On-line Learning Series of Courses
> > http://www.bestnet.org/~jwalker/course.htm
> >
> > Member: Association for International Business
> > _/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/
> > _/ _/
> > _/ John S. Walker _/
> > _/ Publisher, CSS Internet News (tm) _/
> > _/ (Internet Training and Research) _/
> > _/ PO Box 57247, Jackson Stn., _/
> > _/ Hamilton, Ontario, Canada, L8P 4X1 _/
> > _/ Email [log in to unmask] _/
> > _/ http://www.bestnet.org/~jwalker _/
> > _/ _/
> > _/ "To Teach is to touch a life forever" _/
> > _/ On the Web one touch can reach so far! _/
> > _/ _/
> > _/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/_/
> >
>
>
> **********************************************
> Robert A. Fink, M. D., F.A.C.S., P. C.
> 2500 Milvia Street Suite 222
> Berkeley, California 94704-2636
> Telephone: 510-849-2555 FAX: 510-849-2557
> WWW: http://www.dovecom.com/rafink/
>
> mailto:[log in to unmask]
>
> "Ex Tristitia Virtus"
>
> *********************************************
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 50/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses deg. F :-)
********************************************************************
=========================================================================
Date: Fri, 12 May 2000 12:37:44 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
Subject: Re: Outsider??????
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Jo Ann, if 'twere me, I would strongly object to being told what to do
-- as in: "never say never." And I would also object to being called
"sweetie" by someone other than a close friend. This doesn't make you an
outsider in any sense of the word; it means, if you feel as I do, that
someone has given you an order, and has called you by a name you don't
like. Please do continue to contribute to the Parkinsn listserv, your
posts are valued by many others.
Best regards,
Kathrynne
Jo Ann Coen wrote:
>
> I am truly distressed to learn that I am an "outsider" on this listserv.
> I guess I shouldn't have taken "her" message so personally, but it cut to
> the bone, which I suppose is what "she" intended to do.
>
> All of you have read my messages, which I intended to send with love
> and with which I had planned to offer hope and encouragement.
> Please let me know if YOU consider me an outsider as well, and I
> will stop. I know I said that once before, but so many of you let me
> know right away,that was wrong of me to think that way, because that's
> what "she" wanted, was for me to quit.
>
> This last tirade has me so upset, I'm going to bed for a while.
>
> Best wishes to all of you. Jo Ann from Houston
--
Kathrynne Holden, MS, RD
Medical nutrition therapy for Parkinson's disease
Author: "Eat well, stay well with Parkinson's disease"
"Parkinson's disease: interview and assessment tools for nutrition
professionals"
"Risk for malnutrition and bone fracture in Parkinson'sdisease," J Nutr
Elderly. V18:3;1999.
http://www.nutritionucanlivewith.com/
=========================================================================
Date: Fri, 12 May 2000 11:05:41 -0300
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Joao Carvalho <[log in to unmask]>
Subject: Re: pd acceptance / "on-off" phenomenon
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Hi Janet ,
It is not schizophrenia that has an abrupt change of mood ? How about people that have
double personality ? Could these have some connection with the "on-off" condition someway
since they occur also in the brain ?
Cheers ,
janet paterson wrote:
> this discussion on clinical depression has triggered
> something else i have been mulling about for awhile
>
> is pd unique in terms of its "on-off" phenomenon as compared with other 'disabilities'?
>
> is there any other 'chronic degenerative condition' which can change
> from a virtually 'cured' appearance symptomatically
> to severe incapacity several times in a day
> as part of its 'normal' manifestation?
>
> [speaking for myself of course and any other parkie
> who may be at an on-off plateau like mine]
>
> if this is unique to pd
> i wonder what kind of impact this 'cycling' has on us psychologically?
> if any?
> [pun not intended, honest]
>
> do we go through a range of emotions [maybe subconsciously]
> from "it's a miracle!! i'm cured!!" to "ono, i'm paralysed again"
> and if we do that several times per day
> are we exposed to extreme stress
> without necessarily being
> conscious of it?
Joao Paulo - Salvador,BA,Brazil
[log in to unmask]
=========================================================================
Date: Fri, 12 May 2000 14:46:35 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Re: NON PD PD & 3am
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Hey , there, janet p....
Canada has Great Women of the Year, great Maple syrup,
but guess what?-- SO do we in Maine!! Plus,
blueberries, for those pancakes at Murray's
And. uniquely GGREEAAATTT
CYBERHUGS for worn-out PWP's!!
So, here's a Cybersuperhug for you, Janet--
Now, PWP guys and gals, don't get jealous, just, LINE UP!
I<<<<jp>>>>>S
feel better???
from Ivan
:-)
On Fri, 12 May 2000 13:06:33 -0400 janet paterson <[log in to unmask]>
writes:
> At 09:13 AM 2000/05/12 -0700, Barb_MSN <[log in to unmask]>
> wrote:
> >Bob 'n Murray....
> >Hey youse two wackos... if you're serving buttermilk pancakes for
> >that breakfast (it's at Murray's place, right?) <smirk>
> >Say, Murray, I looooove buttermilk pancakes but they've GOTTA be
> >served with REAL maple syrup, got that?!? None of that "tastes
> >like..." stuff that all the pancake eateries serve now-a-days.
> >HEY LIST-PEOPLE!! Breakfast's at Murray's! Place your orders
> >NOW!
> >Barb <ducking, running & grinning> Mallut
>
>
> i'll be right there
> with the finest maple syruple
> from the maple syruple capital of ontari-ario!
>
>
> janet
>
>
> janet paterson
> 53 now / 41 dx / 37 onset
> 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
> come visit my website "a new voice" at:
> http://www.geocities.com/janet313/
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 50/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses deg. F :-)
********************************************************************
=========================================================================
Date: Fri, 12 May 2000 14:39:39 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Re: Outsider??????
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
JoAnn
Here is a great big, CYBERHUG
from a cute Maine bear!!
I<<<<jac>>>>S
Feel better?
Joann, you know the song,"We are Family," don't you?
Hope you feel better-you've always been included by me!!
On Fri, 12 May 2000 12:16:39 EDT Jo Ann Coen <[log in to unmask]> writes:
> I am truly distressed to learn that I am an "outsider" on this
> listserv.
> I guess I shouldn't have taken "her" message so personally, but it
> cut to
> the bone, which I suppose is what "she" intended to do.
>
> All of you have read my messages, which I intended to send with
> love
> and with which I had planned to offer hope and encouragement.
> Please let me know if YOU consider me an outsider as well, and I
> will stop. I know I said that once before, but so many of you let
> me
> know right away,that was wrong of me to think that way, because
> that's
> what "she" wanted, was for me to quit.
>
> This last tirade has me so upset, I'm going to bed for a while.
>
> Best wishes to all of you. Jo Ann from Houston
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 50/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses deg. F :-)
********************************************************************
=========================================================================
Date: Fri, 12 May 2000 15:03:22 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: pd acceptance / "on-off" phenomenon
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At 11:05 AM 2000/05/12 -0300, Joao Carvalho <[log in to unmask]> wrote:
>Hi Janet ,
>It is not schizophrenia that has an abrupt change of mood ?
>How about people that have double personality ? Could these
>have some connection with the "on-off" condition someway
>since they occur also in the brain ?
hi joao
i don't know much at all about schizophrenia other than
that it is connected to 'too much dopamine' as opposed to 'too little'
[hey! maybe we could work some deals...!]
double or multiple personality syndrome i believe
can manifest in extremely abrupt changes in 'personae'
but i think that those changes are triggered by outside circumstances
as they appear to affect the psychology or safety of the personae involved
i guess i was thinking of something like sub-conscious "mini-stages"
of despair or denial and elation and hope
and maybe even frustration
underlying it all
just musing...
imagining how someone in christopher reeve's condition
would cope if he could suddenly walk and then suddenly not
several times a day
or if someone who was blind
would cope if she could suddenly see and then suddenly not
several times a day
or ....
this has to be a unique aspect of parkinsons's
as compared to other 'disabilities', no?
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Fri, 12 May 2000 14:46:30 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Charles T. Meyer, M.D." <[log in to unmask]>
Subject: Barb Patterson's award
Comments: To: Barbara Patterson <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I always knew that Canadian's had good judgement. Congratulations on your
award Barb. I can't think of a more deserving person.
Charlie
=========================================================================
Date: Fri, 12 May 2000 12:49:43 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: Outsider??????
In-Reply-To: "Kathrynne Holden, MS, RD"
<[log in to unmask]>'s message of Fri, 12 May
2000 12:37:44 -0600
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
Kathrynne, your words for JoAnn echo
my feelings also. Hang in there JoAnn.
Juanita CG for George 74 dx 98
=========================================================================
Date: Fri, 12 May 2000 14:48:15 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: =?iso-8859-1?Q?=2A?= <[log in to unmask]>
Organization: [log in to unmask]
Subject: Re: Ivan -- PD virus alert
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii; x-mac-type="54455854";
x-mac-creator="4D4F5353"
Content-Transfer-Encoding: 7bit
My personal opinion is ::: that there are a lot of causes (see below) of PD (the
effect).
--physical trauma (boxers)
--possibly viral (encephilitis, EBV, etc...)
--genetic (Parkin gene, early onset, Wilsons Disease
--fruit fly (PD), mouse(PD WD), dogs(WD) serve as genetic models
--drugs (MPTP, 6-OHDA, amphetamines, etc... see animal models)
--pesticides (there may be a few out there)
--(Rotenone now the new model for PD induction in laboratoy animals)
--Whatever the major risk groups are, and there are several
--(from statistical epidemiology), and our neuros usually ask
What I'm getting at is all these causes are not THE cause of the PD manifest
effect.
All these events possibly "trigger" apoptosis (natural cell death) in a
persistent ongoing process that destoys the substantia nigra
(which leaves us lacking in dopamine, gives us the symptoms of PD)
(and an interest in this listserve).
Look up neuroprotectants such as these and others
--(CGP 3466B, HU-211, naphthoquinone, cannabinoids, THC 346, 6R-BH(4),
etc...)
and you will get feeling that we still don't know what bush we are beating
around.
The same applies to curative (not just symptomatic) treatments.
Various stem cell implants (animal, fetal, adult, auto), genetic theapy with
viral vectors--several, brain growth hormones, neuroimmunophilins, etc...
I hope this can all be sorted out soon.
It sometimes makes me itchy to be in a lab again.
Just ordered up a dozen papers from PubMed via the
University Library web page, for light reading on my trip out West
(Spokane area) for possibly the last Sunbanks Blues Festival
--and to see my sisters.
--
> > > authors conclude, "Assuming that similar antibodies are generated
> > > during natural latent infection with EBV, these results could bear
> > > implications with respect to elucidating a virally initiated,
> > > autoimmune pathogenesis for Parkinson's disease,
> > > and, perhaps, for other alpha-synucleinopathies
>
what is interesting is there is pattern of distribution of anti-bodies--
perhaps a different virus is involved, similar to EBV...this is just a starting
point
when it comes to viral research-but, what they are looking at is like a
bio-molecular finger print.
[log in to unmask] wrote:
> Re: exposure to or having had "mono" virus...
>
> I recall in the 60's reading an article that "mono" was a disease of the
> affluent...this was published by a researcher at the Fox Chase Cancer Center
snipped
> This, I would assume sorta blows the theory of a link between PD/mono.
>
> Rita
-- maybe--
-- as they say in the report -- "perhaps"
-- wait and see
-- we need all the clues we can get.
Yours in Hope.
..........................................................................
Ray Strand
mailto:[log in to unmask]
48/47/45?
..........................................................................
...on the edge of the prairie abyss ......................
=========================================================================
Date: Fri, 12 May 2000 13:08:46 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Robert A. Fink, M. D." <[log in to unmask]>
Subject: Re: Would you please help a fellow listmember?
Comments: To: Stan or Joan Snyder <[log in to unmask]>
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Date sent: Fri, 12 May 2000 13:11:00 -0500
From: Stan or Joan Snyder <[log in to unmask]>
To: "Dr.Robert A Fink" <[log in to unmask]>,
"Dr. Charlie Meyers" <[log in to unmask]>
Subject: Would you please help a fellow listmember?
> Good Morning Gentlemen:
> I don't know that we have ever had the opportunity to exchange
> ideas directly back & forth over the PD listserv, but I need your help
> for a fellow list-member who is in terrible danger, I fear. Her name
> (and you might well remember her) is Jennifer Smith. She is an
> early-onset PWP, who up until a year & a half ago lived with her older
> (yet her soul-mate) husband in the Great Smoky Mountains & worked as
> T-shirt artists. She a very happy until her world began to fall apart.
> First, the dxes of PD, then the death of her beloved husband, then a
> frantic call to come to her parents home in California to nurse her
> elderly & infirm mother through a risky surgery. When she finally made
> it back home to her mountains, she was under so much stress & became
> very depressed. One night, after a series of particularly bad nights
> in the chat room (where we had become very close), we all felt that
> intervention was called for before she killed herself. I kept her on
> the phone, got her to tell me her friend's name & phone number & typed
> it into the chatroom screen. Another friend in chat called Jen's
> friend, who immediately started to make her way to Jen's cabin.
> Meanwhile, we took turns, (1 of our friends, a nurse from Belgium),
> phoning & keeping the others up-to-date in the chartroom. Finally, her
> friend arrived just in time to help Jen to save her life. She was put
> into the psych ward at a city hospital & not left alone...even after
> she was released several weeks later...with her meds straightened out
> and she seemed to be doing so well. She was picking up the pieces &
> going on with her life...and then, another urgent call from her
> parents. She packed up & left immediately for California. Since being
> there, she had some seizures, I can't begin to tell you about them or
> what caused them; only that they frightened her enough (along with the
> urging of friends from the chatroom), to check into a hospital for a
> complete medical workup. Instead, after very few tests, she has been
> told that she doesn't have PD-that it is all in her mind and taken off
> all of her pd meds...but she is loaded upon their meds to the point
> that she is either crying & hysterical or subdued & listless when one
> of us call her. They have convinced her that her only recourse is to
> sell her beloved cabin & stay in California under their care-this is
> something that she would never do in her state of lucidity; but we all
> feel that her power of reasoning has been compromised. I understand
> that I am asking you to do an enormous favor but could you possibly
> get ahold of her doctors at Eisenhower Medical Center in Palm Desert,
> CA and make them aware of your perspective as doctors with PD and to
> possibly make them a bit more understanding of the special needs of PD
> patients?? Thank you n advance for your caring & compassion & anything
> that you might be able to do. Sincerely, joan P.S. Jen has this
> terrible fear of being locked away and never coming out again.
>
>
> ___________________________________
> Joan E. Snyder 48/10
> [log in to unmask]
> <http://members.tripod.lycos.nl/genugten/snyder.htm>
> "Hang tough.....no way through it but to do it."
> Chris-in-the-Morning (Northern Exposure)
>
Joan,
There is no way that a stranger (even a doctor) can obtain access to
medical records (or to the treating physicians) of others without a
direct consent/request from the patient whose records are being
requested.
If one of us were able to obtain the records (or talk to the doctors),
that would still not give us enough information to make any kind of
diagnosis or medical recommendations. If Jennifer could somehow
request that her doctors speak to me, I would be willing to do so, but
she would have to make the request (in writing). All of this is for
purposes of the protection of patient confidentiality.
BTW, I myself do not have PD, but I treat patients who do, and have
had a relative with the condition.
Best,
Bob
**********************************************
Robert A. Fink, M. D., F.A.C.S., P. C.
2500 Milvia Street Suite 222
Berkeley, California 94704-2636
Telephone: 510-849-2555 FAX: 510-849-2557
WWW: http://www.dovecom.com/rafink/
mailto:[log in to unmask]
"Ex Tristitia Virtus"
*********************************************
=========================================================================
Date: Fri, 12 May 2000 16:11:33 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Kastner <[log in to unmask]>
Subject: Re: Barb Patterson's award
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii" ; format="flowed"
May a lurker and a fellow Canadian join in to congratulate you? From
my short residence on PIEN, I can see how well-deserved the award is.
Great stuff, Barb!
,\\urrayK (...the joker, not the researcher!)
.-. .-.
/ \ .-. .-. / \
/ \ / \ .-. .-. / \ / \
/__Murray_Kastner_____\_____/___\___/___\_ ___ mailto:[log in to unmask]
\ / \ / `-' \ / \ / \
\ / `-' `-' \ /
`-' `-'
=========================================================================
Date: Fri, 12 May 2000 20:23:35 GMT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Judy George <[log in to unmask]>
Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION / not my meaning
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
jo ann
it is always frustrating when one's personal and
very real experiences dont resonate with anothers
i think depression is a very individual and personal matter within the broad
medical definition
each of us is very different with very different support systems, different
medical support, different reactions to lifes vagaries and very different
personalities
*sometimes* and i stress only sometimes posters dont seem to understand and
give regard to individual differences......this is so of every aspect of
life and the list is just one small microcosm of life so i guess we do
rather well on the whole
in almost every instance of need i have found the list wonderful
it is invaluable and its posters full of pertinent and helpful advice
judy
>From: Jo Ann Coen <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: AN "OUTSIDER'S" VIEW OF DEPRESSION / not my meaning
>Date: Fri, 12 May 2000 10:32:42 EDT
>
>Chuck - thank you, thank you, thank you. Some people are so stupidly
>narrow minded, they can't see beyond the end of their noses (no names
>mentioned) Please write me on a personal basis, so we can discuss this
>further. Jo Ann from Houston Jac694@ juno 2Com
________________________________________________________________________
Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com
=========================================================================
Date: Fri, 12 May 2000 20:33:53 GMT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Judy George <[log in to unmask]>
Subject: Re: Outsider??????
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
jo ann
stay with it
i found the last posting *never say never sweetie* rather sad
most of us are fighting a battle with this disease or syndrome and our
nervous energy is needed for such battles
we are all outsiders and insiders and whatever siders if we allow it to
happen to us
life is far too short and on the whole too much fun to waste thus
judy
>From: Jo Ann Coen <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Outsider??????
>Date: Fri, 12 May 2000 12:16:39 EDT
>
>I am truly distressed to learn that I am an "outsider" on this listserv.
>I guess I shouldn't have taken "her" message so personally, but it cut to
>the bone, which I suppose is what "she" intended to do.
>
>All of you have read my messages, which I intended to send with love
>and with which I had planned to offer hope and encouragement.
>Please let me know if YOU consider me an outsider as well, and I
>will stop. I know I said that once before, but so many of you let me
>know right away,that was wrong of me to think that way, because that's
>what "she" wanted, was for me to quit.
>
>This last tirade has me so upset, I'm going to bed for a while.
>
>Best wishes to all of you. Jo Ann from Houston
________________________________________________________________________
Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com
=========================================================================
Date: Fri, 12 May 2000 20:35:05 GMT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Judy George <[log in to unmask]>
Subject: Re: NON PD PD & 3am
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
are macdonalds open at 3am
they make the best pancakes around here in australia
judy
>From: Barb_MSN <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: NON PD PD & 3am
>Date: Fri, 12 May 2000 09:13:53 -0700
>
>Bob 'n Murray....
>
>Hey youse two wackos... if you're serving buttermilk pancakes for
>that breakfast (it's at Murray's place, right?) <smirk>
>
>Say, Murray, I looooove buttermilk pancakes but they've GOTTA be
>served with REAL maple syrup, got that?!? None of that "tastes
>like..." stuff that all the pancake eateries serve now-a-days.
>
>HEY LIST-PEOPLE!! Breakfast's at Murray's! Place your orders
>NOW!
>
>Barb <ducking, running & grinning> Mallut
>[log in to unmask]
>
>-----Original Message-----
>From: doublea <[log in to unmask]>
>To: [log in to unmask] <[log in to unmask]>
>Date: Friday, May 12, 2000 4:02 AM
>Subject: Re: NON PD PD & 3am
>
>
> >My Dear Mr Murray -
> >I was highly insulted by your insinuation that I have trouble
>sleeping - I
> >will have you know that I sleep like a baby - just like a baby. I
>sleep a
> >couple of hours, and then I wake up yelling and ready to eat,
> >but absolutely no trouble sleeping (SMILE)
> >good morning murray, what's for breakfast?
> >bob aka tex
> >ps the best tip I have ever had, ---- is that one good turn gets
>all the
> >blanket!
> >
> >> Hi Bob,
> >> I've noticed many times that certain people seem to often
> >> post at 3am... Myself, you (Tex), janet, & several others.
> >>
> >> I typically sleep 2 -3 hours and then prowl around for a few
> >> hours and sometimes catch a few more winks before the
> >> 6am wake up call, breakfast, and my normal day....
> >>
> >> Do we all have problems sleeping??
> >>
> >> Anybody got any great tips to pass on??
> >>
> >> Perhaps I'm extra wide awake tonight because I have an
> >> acquaintence who was just awarded Woman of the Year...
> >>
> >> :-) ....... murray
> >> [log in to unmask]
> >>
________________________________________________________________________
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=========================================================================
Date: Fri, 12 May 2000 16:44:53 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "<Audrey Cashwell>" <[log in to unmask]>
Subject: Re: NON PD PD & 3am
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Judy
If you ever get to Connecticut, I'll make you great pancakes.
Audrey
=========================================================================
Date: Fri, 12 May 2000 20:57:52 GMT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Judy George <[log in to unmask]>
Subject: Re: NON PD PD & 3am
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
audrey
that message went quickly
i am still on the computer because family get at it so i get up early and
have a turn
thanks for the offer
i will post when i am coming
we make nice crepes here at home but ocassionally we go to macdonalds and
have a plate ful of the ghasly stuff they put in them
it tastes good
judy
>From: "<Audrey Cashwell>" <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: NON PD PD & 3am
>Date: Fri, 12 May 2000 16:44:53 EDT
>
> Judy
> If you ever get to Connecticut, I'll make you great
>pancakes.
>
> Audrey
________________________________________________________________________
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=========================================================================
Date: Fri, 12 May 2000 17:11:19 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Outsider??????
Kathrynne - Thanks for your quick reply. This too shall pass. I'm too
old and too big-hearted to let this get me down for long - so when I wake
up at 6 am Sat. morning, it will be over for me. It is 90 degress here
in hot, humid Houston, and I'm going to put on some-thing cooler. Best
wishes to you and yours. Jo Ann from Houston
=========================================================================
Date: Fri, 12 May 2000 17:11:19 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Outsider??????
Ivan - you are still a dear. I so appreciate what you are doing to get
our message "out there". And thank you for your reply to me. Jo Ann from
Houston
=========================================================================
Date: Fri, 12 May 2000 17:15:40 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: janet paterson <[log in to unmask]>
Subject: NEWS: BBC: Lethal guinea pig kills virtual people
Comments: cc: [log in to unmask]
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Lethal guinea pig kills virtual people
Friday, 12 May, 2000, 17:49 GMT 18:49 UK - Living the life of a virtual person is proving to be a little too real for some computer game enthusiasts.
Artificial people created by players of The Sims are falling victim to a virtual virus introduced into the game via a computerised guinea pig.
Players who have lavished hours of work on the virtual people are bombarding the games creators with angry messages because their creations are dying off.
The Sims is the latest creation of Will Wright - the man behind classic computer games such as Sim City. But instead of running a city The Sims involves helping virtual people live rich and fulfilling lives.
Players of the game help their Sims find jobs, make friends, furnish their houses and even fall in love, get married and have children.
The game became an instant hit because with a little hard work players can build a house with a pool that they could never afford in the real world. Many people like it because Sim kids do what they are told and people are always getting promoted.
The life of any Sims can be made more fulfilling by downloading new gadgets and furniture for them from the website of Maxis - the company that developed the game.
The extras are chunks of computer code that look like objects such as radios or chairs that cause the Sims to react in new ways. But one of the latest extras, a guinea pig, is proving a little too lifelike for some people.
Sloppy Sims who do not clean the cage of the guinea pig and get bitten by the filthy beast are falling ill and, in some cases, dying.
To make matters worse sick Sims that do not rest and recover can infect other Sims.
Players of The Sims who have lavished attention on the virtual people for weeks only to see them cut down by a dirty guinea pig are getting annoyed.
"People are very upset by this aspect of reality being added unannounced to the game," said Sandra Linkletter, a keen Sims player. She said people were annoyed because there was no warning about the danger posed by the guinea pig.
Other Sims players have bombarded Maxis with protests and the discussion area of The Sims website has rung with questions about cures for the sick Sims and how a Sim can recover from the career setback of spending a few days in bed.
Some child Sims with bad grades have ended up in military school after spending a day or two in bed recovering from the cold.
The campaign of criticism seems to have had an effect. In response Maxis has now updated the guinea pig code. The virus that Sims can catch from the new pet is less virulent and leads only to a cold rather than death.
By BBC News Online internet correspondent Mark Ward
BBC News Online: Sci/Tech
http://news.bbc.co.uk/low/english/sci/tech/newsid_746000/746700.stm
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Fri, 12 May 2000 18:30:13 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Outsider??????
Juanita - Thanks. My love says I am far too sensitive where she is
concerned and that she is just a person like I am, except I don't have
PD, he does. As I've told others, I've sent my messages with intent of
love and hope and encouragement, and since I'm upsetting the group, I'm
"going to change my way of living", etc. (Remember that old song?(Change
my way of living change the way I strut my stuff,
etc) So when I wake up in the morning, I'll pull on my old survivor
instincts and come out a winner, as I know you are. BTW< How is George
doing lately? Hope as well as my PWP. Jo Ann from Houston
=========================================================================
Date: Fri, 12 May 2000 18:30:13 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: NON PD PD & 3am
Judy George - by now, you've probably read my posts where I said I was
too old and too caring to listen to that kind of "stuff". Sweetie is an
insulting word here in Texas, so I'll just have to ignore it. I promise
things will get better for all of us on the listserv, cause I'm not
participating in the feud any longer. It's too upsetting to the people on
the list, and the longer I harbor it, the more upsetting it is to me. So
as I said, by 6 am Sat morning (tomorrow) it'll be gone out the window.
Thanks for writing. Jo Ann from Houston
=========================================================================
Date: Fri, 12 May 2000 18:30:13 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Would you please help a fellow listmember?
Oh Joan, I will pray for this lady. How you must be worrying. Fear is
our utmost enemy, and she needs to be helped through this.
By the way, Joan , would you please e-mail me on my personal address
David Boot's number. Juno crashed me and I lost all addresses, and his
birthday just passed, and I wanted to wish him a happy birthday. My PWP
gave it to me, but I copied it down wrong.
I'm at [log in to unmask] Thanks. Best wishes, Jo Ann from Houston
=========================================================================
Date: Fri, 12 May 2000 18:53:43 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Earnie & Barbara Knight <[log in to unmask]>
Subject: Re: PD & 3am
In-Reply-To: <391B7954.28477.10932E78@localhost>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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murray:
i too spent a lot of sleepless nights. when i mentioned this to my doctor he
said this is common for people with pd, and he prescribed a mild
antidepressant to take at night. he had to adjust the dosage, but now i can
sleep through to morning most nights. and if i do wake up at 3 a.m. i can go
back to sleep. getting a good night's sleep has really helped.
barbara
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]]On Behalf Of Murray Charters
Sent: Friday, May 12, 2000 6:24 AM
To: [log in to unmask]
Subject: PD & 3am
Hi Bob,
I've noticed many times that certain people seem to often
post at 3am... Myself, you (Tex), janet, & several others.
I typically sleep 2 -3 hours and then prowl around for a few
hours and sometimes catch a few more winks before the
6am wake up call, breakfast, and my normal day....
Do we all have problems sleeping??
Anybody got any great tips to pass on??
Perhaps I'm extra wide awake tonight because I have an
acquaintence who was just awarded Woman of the Year...
:-) ....... murray
[log in to unmask]
=========================================================================
Date: Fri, 12 May 2000 19:00:25 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: Would you / have a happy birthday?
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At 06:30 PM 2000/05/12 EDT, "Jo Ann Coen <[log in to unmask]>" wrote, in part:
>...By the way, Joan , would you please e-mail me on my personal address
>David Boot's number. Juno crashed me and I lost all addresses, and his
>birthday just passed, and I wanted to wish him a happy birthday. My PWP
>gave it to me, but I copied it down wrong....
hey
i wished you a happy birthday on friday!
didnt you see my message?
love
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Fri, 12 May 2000 18:21:02 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Beverly Forte <[log in to unmask]>
Subject: 3 am
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I have been taking PD meds for 9 years (now age 49) for mainly =
stiffness. I
take my last night meds (sinemet and sinemet cr and Mirapex about 10pm. =
I am
a natural night owl, way before my illness. I am often up til 2am =
sometimes
later. I seem to have almost perfect flexibility, clarity of thought, =
and
creatively. I am a psychologist now working as a writer. I fee so good =
this
time of night I don't want to go to bed and lose the time...I get up =
about
6am to take meds and go back to bed so that I'll be flexible when I get =
up
about 7 am because of my work demands (although I am blessed to have a =
10
second commute to my home office). I'm usualy very very rigid when I =
wake up
but can get up enough to take meds and sleep another hour.
I'm sleepy during the day some and take power naps which recharge me. In
recent years, energy has not been a problem.
I've figure out that my alert cycle is about 6 hours off my day/nights =
in
Texas. Guess I could straighten that out by moving to Hawaii!!!
How many of us were night owls before our illness?
I would love to chat with some of you late at night because there is
generally no one to call that late!
Beverly
-----Original Message-----
From: Murray Charters <[log in to unmask]>
Date: Friday, May 12, 2000 6:49 AM
Subject: Re: PD & 3am
On 12 May 2000, at 7:25, Ivan M Suzman wrote:
> PD has its own sleep rhythm
>
> My nights start with meds at 930 PM
> and again just past midnight.
>
> Mine include medications at 330 AM
> Sometimes again at 6AM, definitely by 7AM
>
> Otherwise I become immobilized.
>
> SO if I have rested enough, I get up at
> all kinds of pre-dawn hours.
> And sometimes I am most clear-headed and
> productive and write more easily on PIEN
> at that time of the day.
>
> My neuro just revealed to me yesterday that
> I am the only patient who would be totally
> froxen up without nighttime meds.He has
> 60 PWP's in his practice of 200 or so patients.
>
> Maybe it's the tip of the iceberg; there
> must be MANY more PWP's like me.
>
> Murray do you need meds to avoid nighttime paralysis?
>
Hi Ivan,
Rigidity is not a major symptom for me so for the most
part I don't take meds during the night and only seem to
*require* meds when I start my daily routine.
>
> What year are you in since diagnosis and onset?
>
> Ivan Suzman
> 50 age now / 39 diagnosis / 36 onset of visible symptoms
> :-)
>
Ivan, I had symptoms at age 38 and went through a year of tests
and the *diagnosis* was very indefinite ... I was thought to be
possibly in early stages of MS. While this proved false, I still
continued the therapy for loss of balance for several years off
and on... Other symptoms exhibited over time but they were
never dealt with as a package until age 49 when it became
obvious that I had Parkinson's. My wife and I were taking
ballroom dance lessons and I was *diagnosed* by my wife
and my dance instructor. This was of course then taken to
my gp and on to a neuro for confirmation. I'm now nearing my
56th. birthday. I still work and don't have a lot of difficulty
aside from being slow and having a tremor. I'm left handed
and my Parkinson's affects my right side. I do suffer from
sleep deficit.
Regards ...... murray
[log in to unmask]
View the Parkinson's Awareness Links at:
http://www.geocities.com/janet313/pienet/wwweb/index.html
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<BODY bgColor=3D#ffffff>
<DIV>I have been taking PD meds for 9 years (now age 49) for mainly =
stiffness.=20
I<BR>take my last night meds (sinemet and sinemet cr and Mirapex about =
10pm. I=20
am<BR>a natural night owl, way before my illness. I am often up til 2am=20
sometimes<BR>later. I seem to have almost perfect flexibility, clarity =
of=20
thought, and<BR>creatively. I am a psychologist now working as a writer. =
I fee=20
so good this<BR>time of night I don't want to go to bed and lose the =
time...I=20
get up about<BR>6am to take meds and go back to bed so that I'll be =
flexible=20
when I get up<BR>about 7 am because of my work demands (although I am =
blessed to=20
have a 10<BR>second commute to my home office). I'm usualy very very =
rigid when=20
I wake up<BR>but can get up enough to take meds and sleep another =
hour.<BR>I'm=20
sleepy during the day some and take power naps which recharge me. =
In<BR>recent=20
years, energy has not been a problem.<BR><BR>I've figure out that my =
alert cycle=20
is about 6 hours off my day/nights in<BR>Texas. Guess I could straighten =
that=20
out by moving to Hawaii!!!<BR><BR>How many of us were night owls before =
our=20
illness?<BR><BR>I would love to chat with some of you late at night =
because=20
there is<BR>generally no one to call that=20
late!<BR><BR>Beverly<BR><BR><BR>-----Original Message-----<BR>From: =
Murray=20
Charters <<A=20
href=3D"mailto:[log in to unmask]">[log in to unmask]</A>&g=
t;<BR>Date:=20
Friday, May 12, 2000 6:49 AM<BR>Subject: Re: PD & 3am<BR><BR><BR>On =
12 May=20
2000, at 7:25, Ivan M Suzman wrote:<BR><BR>> PD has its own sleep=20
rhythm<BR>><BR>> My nights start with meds at 930 PM<BR>> and =
again=20
just past midnight.<BR>><BR>> Mine include medications at 330 =
AM<BR>>=20
Sometimes again at 6AM, definitely by 7AM<BR>><BR>> Otherwise I =
become=20
immobilized.<BR>><BR>> SO if I have rested enough, I get up =
at<BR>> all=20
kinds of pre-dawn hours.<BR>> And sometimes I am most clear-headed=20
and<BR>> productive and write more easily on PIEN<BR>> at that =
time of the=20
day.<BR>><BR>> My neuro just revealed to me yesterday =
that<BR>> I=20
am the only patient who would be totally<BR>> froxen up without =
nighttime=20
meds.He has<BR>> 60 PWP's in his practice of 200 or so=20
patients.<BR>><BR>> Maybe it's the tip of the iceberg; =
there<BR>> must=20
be MANY more PWP's like me.<BR>><BR>> Murray do you need meds =
to =20
avoid nighttime paralysis?<BR>><BR><BR>Hi Ivan,<BR>Rigidity is not a =
major=20
symptom for me so for the most<BR>part I don't take meds during the =
night and=20
only seem to<BR>*require* meds when I start my daily=20
routine.<BR><BR>><BR>> What year are you in since diagnosis and=20
onset?<BR>><BR>> Ivan Suzman<BR>> 50 age now / 39 diagnosis / =
36 onset=20
of visible symptoms<BR>> :-)<BR>><BR><BR>Ivan, I had symptoms at =
age 38=20
and went through a year of tests<BR>and the *diagnosis* was very =
indefinite=20
... I was thought to be<BR>possibly in early stages of MS. =
While=20
this proved false, I still<BR>continued the therapy for loss of balance =
for=20
several years off<BR>and on... Other symptoms exhibited over time but =
they=20
were<BR>never dealt with as a package until age 49 when it =
became<BR>obvious=20
that I had Parkinson's. My wife and I were taking<BR>ballroom =
dance=20
lessons and I was *diagnosed* by my wife<BR>and my dance instructor. =
This was of=20
course then taken to<BR>my gp and on to a neuro for confirmation. =
I'm now=20
nearing my<BR>56th. birthday. I still work and don't have a lot of =
difficulty<BR>aside from being slow and having a tremor. I'm left=20
handed<BR>and my Parkinson's affects my right side. I do suffer=20
from<BR>sleep deficit.<BR><BR>Regards ...... murray<BR><BR><A=20
href=3D"mailto:[log in to unmask]">[log in to unmask]</A><B=
R><BR>View=20
the Parkinson's Awareness Links at:<BR><A=20
href=3D"http://www.geocities.com/janet313/pienet/wwweb/index.html">http:/=
/www.geocities.com/janet313/pienet/wwweb/index.html</A><BR><BR></DIV></BO=
DY></HTML>
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=========================================================================
Date: Fri, 12 May 2000 18:22:06 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Beverly Forte <[log in to unmask]>
Subject: no outsiders
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I beleive that any one who reads our postings is an important part of =
the
group. There are no outsiders in that sense. Even those who remain =
silent
may have an insight when reading about the path of others. Perhaps they =
say
a prayer for those of us asking for help. We all have a role and I =
encourage
everyone to stay.
My hope is that we can we create a space with such love that any heart =
can
be expressed without fear of criticism or correction. There is much pain
expressed on these pages, and few places in our life that we can express =
it
and receive a "hug" back.
I try to remember that people speak from their own frame of reference =
and
from their own pain, often with their comments having more to do with =
them
than the person addressed. I beleive that is one way we learn from each
other and heal. I choose to accept any responses from friends here as =
loving
attempts to help me.
Much love,
Beverly
-----Original Message-----
From: Jo Ann Coen <[log in to unmask]>
Date: Friday, May 12, 2000 11:16 AM
Subject: Outsider??????
>I am truly distressed to learn that I am an "outsider" on this =
listserv.
>I guess I shouldn't have taken "her" message so personally, but it cut =
to
>the bone, which I suppose is what "she" intended to do.
>
>All of you have read my messages, which I intended to send with love
>and with which I had planned to offer hope and encouragement.
>Please let me know if YOU consider me an outsider as well, and I
>will stop. I know I said that once before, but so many of you let me
>know right away,that was wrong of me to think that way, because that's
>what "she" wanted, was for me to quit.
>
>This last tirade has me so upset, I'm going to bed for a while.
>
>Best wishes to all of you. Jo Ann from Houston
>
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<DIV>I beleive that any one who reads our postings is an important part =
of=20
the<BR>group. There are no outsiders in that sense. Even those who =
remain=20
silent<BR>may have an insight when reading about the path of others. =
Perhaps=20
they say<BR>a prayer for those of us asking for help. We all have a role =
and I=20
encourage<BR>everyone to stay.<BR><BR>My hope is that we can we create a =
space=20
with such love that any heart can<BR>be expressed without fear of =
criticism or=20
correction. There is much pain<BR>expressed on these pages, and few =
places in=20
our life that we can express it<BR>and receive a "hug" =
back.<BR><BR>I=20
try to remember that people speak from their own frame of reference =
and<BR>from=20
their own pain, often with their comments having more to do with =
them<BR>than=20
the person addressed. I beleive that is one way we learn from=20
each<BR>other and heal. I choose to accept any responses from friends =
here as=20
loving<BR>attempts to help me.<BR><BR>Much=20
love,<BR>Beverly<BR><BR><BR>-----Original Message-----<BR>From: Jo Ann =
Coen=20
<<A href=3D"mailto:[log in to unmask]">[log in to unmask]</A>><BR>Date: =
Friday,=20
May 12, 2000 11:16 AM<BR>Subject: Outsider??????<BR><BR><BR>>I am =
truly=20
distressed to learn that I am an "outsider" on this =
listserv.<BR>>I=20
guess I shouldn't have taken "her" message so personally, but =
it cut=20
to<BR>>the bone, which I suppose is what "she" intended to=20
do.<BR>><BR>>All of you have read my messages, which I =
intended =20
to send with love<BR>>and with which I had planned to offer =
hope and=20
encouragement.<BR>>Please let me know if YOU consider me an outsider =
as well,=20
and I<BR>>will stop. I know I said that once before, but so =
many of you=20
let me<BR>>know right away,that was wrong of me to think that =
way,=20
because that's<BR>>what "she" wanted, was for me to=20
quit.<BR>><BR>>This last tirade has me so upset, I'm going to bed =
for a=20
while.<BR>><BR>>Best wishes to all of you. Jo Ann from=20
Houston<BR>><BR></DIV></BODY></HTML>
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=========================================================================
Date: Fri, 12 May 2000 16:24:58 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: Outsider??????
In-Reply-To: Jo Ann Coen <[log in to unmask]>'s message of Fri, 12 May 2000
18:30:13 EDT
Content-Type: Text/Plain; Charset=US-ASCII
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MIME-Version: 1.0 (WebTV)
We are hangin in there. I have truly been enjoying my new(May2)
grandson.Geo
is doing well. He's walking 1-1 1/2 each day(weather permitting) We live
in western Wa, so rain is abundant.
You don't need to change your life. You just need to stop letting weird
Janet have so much power on your mind. She appears to me to be a control
freak and
by playing her games you give her the control she seems to need. I know
it is difficult, just try to ignore her and hit the delete key. Works
well for me.
Thanks for keeping touch.
Juanita
=========================================================================
Date: Fri, 12 May 2000 16:33:28 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: Outsider??????
In-Reply-To: Juanita Hibbert <[log in to unmask]>'s message of Fri, 12 May
2000 16:24:58 -0700
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
That last post was supposed to have been sent to JoAnn privately, I had
no intention for that to be posted to the list. Please
forgive the insensitively that appears to
be in that post. It was meant for JoAnn
alone.
Juanita CG for George 74 dx 98
=========================================================================
Date: Fri, 12 May 2000 19:35:30 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: no outsiders
Beverly - You wrote the most beautiful message, as have many on the
listserv. I plan to let this whole thing drop, and never respond to
that situation again. Your reply means a great deal to me. Best wishes,
Jo Ann from Houston
=========================================================================
Date: Fri, 12 May 2000 19:42:52 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Address
Barb Mallit- Please send me your private mail address - if you wish to.
I deleted things 90 miles and hour and deleted yours before I knew what
happened. Thank and best to you. Jo Ann from Houston
[log in to unmask]
=========================================================================
Date: Fri, 12 May 2000 19:42:52 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Outsider??????
Ah Juanita truer words were never spoken. Im dropping all of this by 6am
in the morning (Sat) and my life will go on, thanks to the support of my
cyberfriends, some who have written on my private mail box and some on
the PD mail box Enjoy your grandson as much as possible. They grow too
fast and sometimes away from us. My grand daughter is getting married
next Friday. By the wasy, you could send of that rin down here, we need
it. Jo Ann from Houston
=========================================================================
Date: Fri, 12 May 2000 18:39:02 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: Parkinson's Web Sites
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
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On 15 Apr 2000, at 7:49, Linda J Herman wrote:
> Thanks for your reply, Murray - I thought this site was great:
> Newly Diagnosed With PD
> http://spring.parkinsons.org.uk/spnewly.htm
> I couldn't connect to the FAQ site - could you check the URL?
> The Frequently Asked Questions About Parkinson's Disease
> http://etb.ninds.nih.gov/PDFAQ.html
>
Hi Linda,
I wrote these birds about the status of their website and the
first person I talked to replied promptly and referred me to a
"higher" authority... Apparently it was beneath him to reply.
But.... guess what I discovered by *playing* with this a little...
They still have the page... they just renamed it...
http://etb.ninds.nih.gov/PDFAQ.html#psy
Now this works and, as near as I can tell, the content is identical
to what I saw on the original site...
>
> I wasn't suggesting yet another PD web site - but maybe links and
> access to some of the "gems" could be expanded and improved. Also
> helpful is a short description of what the link is about, if it's not
> clear by the title.
>
This is a great suggestion and could be done in the *future*....
>
> Below is a listing of Web sites that Barb Blake-Krebs, who is still
> recuperating, and I compiled for the appendix to our book on young onset
> PD, Behind the Masks, ( which is still under consideration for
> publication - they ask us to "be patient.") It is based on suggestions
> from the list and our own favorites, and is open to other
> recommendations (especially for non U.S. organizations and young onset
> sites) -- or corrections if you note an error, or ommissions. We will
> also look through all of Murray's recommened sites. Thanks
> Linda
>
SNIP
Linda, what is the book status now??
All the best ............. murray
[log in to unmask]
View the Parkinson's Awareness Links at:
http://www.geocities.com/janet313/pienet/wwweb/index.html
=========================================================================
Date: Fri, 12 May 2000 22:23:35 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Camilla Flintermann <[log in to unmask]>
Subject: Re: no outsiders
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Way to go, Beverly-- and beautifully said--thanks!
> I beleive that any one who reads our postings is an important part of
>the
>group. There are no outsiders in that sense. Even those who remain silent
>may have an insight when reading about the path of others. Perhaps they say
>a prayer for those of us asking for help. We all have a role and I encourage
>everyone to stay.
>
>My hope is that we can we create a space with such love that any heart can
>be expressed without fear of criticism or correction. There is much pain
>expressed on these pages, and few places in our life that we can express it
>and receive a "hug" back.
>
>I try to remember that people speak from their own frame of reference and
>from their own pain, often with their comments having more to do with them
>than the person addressed. I beleive that is one way we learn from each
>other and heal. I choose to accept any responses from friends here as loving
>attempts to help me.
>
>Much love,
>Beverly
>
>
>-----Original Message-----
>From: Jo Ann Coen <<mailto:[log in to unmask]>[log in to unmask]>
>Date: Friday, May 12, 2000 11:16 AM
>Subject: Outsider??????
>
>
>>I am truly distressed to learn that I am an "outsider" on this listserv.
>>I guess I shouldn't have taken "her" message so personally, but it cut to
>>the bone, which I suppose is what "she" intended to do.
>>
>>All of you have read my messages, which I intended to send with love
>>and with which I had planned to offer hope and encouragement.
>>Please let me know if YOU consider me an outsider as well, and I
>>will stop. I know I said that once before, but so many of you let me
>>know right away,that was wrong of me to think that way, because that's
>>what "she" wanted, was for me to quit.
>>
>>This last tirade has me so upset, I'm going to bed for a while.
>>
>>Best wishes to all of you. Jo Ann from Houston
>>
Camilla Flintermann, CG for Peter 82/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
also, on PDWebring at
http://members.tripod.lycos.nl/genugten/flinterm.htm
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
And visit the CARE webring at
http://www.crosswinds.net/~caregivers/index.html
=========================================================================
Date: Fri, 12 May 2000 22:42:24 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Camilla Flintermann <[log in to unmask]>
Subject: Re: Outsider??????
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
>That last post was supposed to have been sent to JoAnn privately, I had
>no intention for that to be posted to the list. Please
>forgive the insensitively that appears to
> be in that post. It was meant for JoAnn
>alone.
>Juanita CG for George 74 dx 98
Thanks for the explanation, Juanita, which makes MY post to YOU "NULL AND
VOID" ;-)
Camilla Flintermann, CG for Peter 82/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
also, on PDWebring at
http://members.tripod.lycos.nl/genugten/flinterm.htm
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
And visit the CARE webring at
http://www.crosswinds.net/~caregivers/index.html
=========================================================================
Date: Fri, 12 May 2000 20:05:38 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: Outsider??????
In-Reply-To: Camilla Flintermann <[log in to unmask]>'s message of Fri, 12
May 2000 22:42:24 -0400
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
Camilla, It looks as if our posts crossed in transit. Nothing further
need be said. I HOPE!
Juanita
=========================================================================
Date: Fri, 12 May 2000 23:14:14 -0400
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Michel Margosis <[log in to unmask]>
Subject: Re: Outsider??????
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Dear JoAnn:
'She' is the outsider!
(Who's she?)
Michel
=========================================================================
Date: Fri, 12 May 2000 23:15:21 -0400
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Cathy Morse <[log in to unmask]>
Subject: Re: 3 am
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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Hi Beverly (and all list owls),
Eleven - twelve o'clock is when I get my second burst of energy. And
I firmly believer that no self-respecting day begins before noon.
Fortunately, I no longer can work, so I can indulge myself with coffee,
toast and newspaper in my room each morning and go downstairs sometime
after 10:30 - 11:OO am. I have always been that way and do ( a more
accurate word is probably did) some of my best work after mid-night.
The down-side is that mornings that were never my best time of day are
now incredibly horrible. I need 3 hours or so of taking meds,
catnapping, etc., before I am able to get started.
Yes, I'm usually here at night.
Cathy
Beverly Forte wrote:
> Part 1.1 Type: Plain Text (text/plain)
> Encoding: quoted-printable
=========================================================================
Date: Fri, 12 May 2000 20:30:56 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Benjamin Winter <[log in to unmask]>
Subject: Re: Parkinson's Web Sites
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
> I couldn't connect to the FAQ site - could you check the
URL?
> http://etb.ninds.nih.gov/PDFAQ.html
Five minutes ago, I connected this URL with no problems.
Ben
=========================================================================
Date: Fri, 12 May 2000 23:43:00 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: let us not forget Woman of the Year!!!
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
hi all
i truly hope that this current silliness
doesn't distract anyone from the big and happy news of the day
Barb Patterson has been given a wonderful award and recognition
from the mayor of one of the key cities in ontario
i couldn't be prouder of her and what she's done for us
i have seen her workload from the other side of the server
and still can't imagine how she manages to do it all
and keep her full time job too!
how about it joanne judy juanita cathy beverly chuck greg
any congratulations from you guys for our list mom?
or maybe a rousing cheer of hip hip hoooray?!
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Fri, 12 May 2000 23:49:43 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Outsider??????
Juanita - Please don't worry about posting in the wrong place. I've
heard there is no such thing as an accident, so maybe some of the people
who read what you wrote, needed to. Best wishes, Jo Ann from Houston
=========================================================================
Date: Fri, 12 May 2000 23:55:59 -0400
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Michel Margosis <[log in to unmask]>
Subject: Re: NON PD PD & 3am
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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There's the rub!!! In the North 'sweetie' is a term of endearment.
Just keep a stiff upper lip and toss your anger away. Then I'll be
able to give you hugs.
Michel
Jo Ann Coen wrote:
> ..................... Sweetie is an insulting word here in Texas, so I'll
> just have to ignore it. .................
=========================================================================
Date: Fri, 12 May 2000 21:07:07 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charles E Murray <[log in to unmask]>
Subject: Re: 3 am
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
The number of "night owls" sharing on this topic has amazed me. I have
always been more of a night than morning person, but as PD has progressed
my sleep patterns have become erratic, two or three hours one night, 5
the next, occasionally 8 hours.
It feels like one reason for staying up late (these days on the computer)
results from feeling my best physically and mentally late at night.
Maybe when the day's stresses are behind, my dopamine stores are
recharging. Whatever the reason, I start to pick up around 8 PM and
often, if engaged in something interesting, go on till 3AM.
Chuck
=========================================================================
Date: Fri, 12 May 2000 21:09:48 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: let us not forget Woman of the Year!!!
In-Reply-To: janet paterson <[log in to unmask]>'s message of Fri, 12 May
2000 23:43:00 -0400
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
Of course, I applaud all that Barbara P
has done. I certainly do not need to be spoken to like a child, nor do I
need to be reminded of my manners I am well beyond needing to be chided
into action.
Juanita.
=========================================================================
Date: Sat, 13 May 2000 00:11:50 -0400
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Cathy Morse <[log in to unmask]>
Subject: Congratulations Barb
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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Congratulations Barbara Patterson, City of Hamilton's Woman of the Year
This is a well deserved honor.
Cathy
=========================================================================
Date: Fri, 12 May 2000 21:12:22 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: Outsider??????
In-Reply-To: Jo Ann Coen <[log in to unmask]>'s message of Fri, 12 May 2000
23:49:43 EDT
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
JoAnn please write me off list so I can
check your address against my address book.
Juanita
=========================================================================
Date: Sat, 13 May 2000 00:28:14 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: NEWS: TOURBUS: Mr Schnell Goes To Washington
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
>------------------------------
>Mr. Schnell Goes to Washington
>------------------------------
>
>You probably remember that silly urban legend that warns that the US
>Congress will very shortly be voting on
>
> Bill 602P [that] will permit the [US] Federal Govt to charge a 5
> cent surcharge on every email delivered, by billing Internet
> Service Providers at source. The consumer would then be billed
> in turn by the ISP ...
>
> One congressman, Tony Schnell (r) has even suggested a "twenty to
> forty dollar per month surcharge on all Internet service" above
> and beyond the government's proposed email charges
>
>Fortunately, there is no Bill 602P, nor is there a Congressman
>Schnell. But that didn't stop hundreds of thousands of angered
>netizens from flooding their congressperson's inbox with "say no to
>602P" emails.
>
>Now for the surreal part. In response to of all of these angry
>emails, the US House Commerce Committee earlier this week approved
>H.R. 1291, the "Internet Access Charge Prohibition Act." The act
>precludes the FCC from imposing on providers of Internet access
>service any per-minute charges intended for universal service support.
>
>That's right, folks. Because of an Internet hoax saying that the US
>Congress is considering imposing a 5 cent surcharge on every email,
>the US Congress is in now in the process of passing a law that
>PROHIBITS such a surcharge in the first place. Chalk up a victory,
>however unintended, for the hoaxsters. :)
>
>Of course, the speed of US legislative process is, well, glacial. It
>may take months or even years for this act to become law. Still, it
>is a neat story. And, if you are REALLY bored and are looking for
>something to pass the time, you can always follow HR 1291 on its path
>through the legislative process by periodically visiting
>
><A HREF="http://thomas.loc.gov/cgi-bin/bdquery/z?d106:HR01291:@@@X">
>http://thomas.loc.gov/cgi-bin/bdquery/z?d106:HR01291:@@@X </A>.
>
>To read more about how the Bill 602P hoax spawned a real House
>Resolution (and potential federal law), check out Peter Goodman's
>recent Washington Post article titled "Congress to Block Imaginary
>Internet Tax Bill" at
>
><A HREF="http://washingtonpost.com/wp-dyn/articles/A35483-2000May9.html">
>http://washingtonpost.com/wp-dyn/articles/A35483-2000May9.html </A>
Tourbus Home: "http://www.TOURBUS.com"
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Sat, 13 May 2000 00:38:11 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: NEWS: eBMJ: Editorial: Depression in Parkinson's Disease
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 8bit
Editorials: Depression in Parkinson's disease
Must be properly diagnosed and treated to avoid serious morbidity
Psychiatric symptoms frequently coexist with idiopathic Parkinson's disease and are often underdiagnosed and poorly treated.1
Depression and anxiety are the most common psychiatric conditions that accompany Parkinson's disease.
A study by Menza et al found that 12 out of 42 patients with Parkinson's disease met the criteria for an anxiety disorder according to the Diagnostic and Statistical Manual and 11 of them had a comorbid depressive disorder.2
Recent reviews show that depression is a common and potentially debilitating aspect of Parkinson's disease, affecting 40-50% of patients.3-5
While its aetiology in Parkinson's disease is unclear (biochemical changes, psychosocial factors, and situational stressors have all been implicated), it has an adverse effect on the quality of patients' lives, and doctors should ensure that it is diagnosed and properly treated.
The diagnosis is not easy because clinical symptoms of depression can overlap with or be mistaken for those of Parkinson's disease (such as the flat affect, inability to work, fatigue, preoccupation with ill health, loss of desire, and reduction in libido.
Moreover, depression in patients with Parkinson's disease is qualitatively different from primary major depression in that self blame, guilt, delusions, a sense of failure, self destructive thoughts, and suicide are less frequent.7
Several studies have failed to find a clear association between the severity of depression and motor disability.
Depressive symptoms precede those of motor dysfunction in 12-37% of patients with Parkinson's disease.7
The severity of depression contributes to the cognitive disorders in Parkinson's disease; in a prospective cohort study of patients with Parkinson's disease who did not have dementia, depression was associated with a significantly increased risk of developing dementia.9
Depression in Parkinson's disease is usually linked to a reduction in brain catecholamines, serotonin (a decrease in the concentration of 5-hydroxy-indoleacetic acid in cerebrospinal fluid), or dopamine (postmortem studies show dopamine depletion in the ventral tegmental area; glucose positron emission tomography shows hypometabolism in the orbital and prefrontal cortices).
Paradoxically, levodopa and dopamine agonists (except selegiline at high doses, 30-40 mg/day) do not consistently alleviate depressive symptoms.
In patients with fluctuating motor symptoms depression occurs when motor function is poor; more puzzling, deep brain stimulation, notably of subthalamic nuclei, can induce a delayed depression, although it improves motor function.10
Once depression is diagnosed, treatment is complicated by the drugs the patient is already taking.
Due to the lack of systematic clinical trials there are still three main questions concerning the prescribing of an antidepressant. 3 4
The first is whether the antidepressant drug can increase or induce parkinsonian symptomstricyclic antidepressants such as desipramine, nortriptyline, and imipramine can improve motor symptoms, but selective serotonin reuptake inhibitors are repeatedly reported in case reports as potential inducers of parkinsonism.
Fluoxetine is the only one to have been studied in this way, but a retrospective chart review by Caley and Friedman did not find that fluoxetine caused parkinsonian symptoms.5
There are no data on the more recently launched antidepressants such as venlafaxine (a serotonin noradrenaline recapture inhibitor) and mirtazapine (a noradrenaline serotonin specific antidepressant).
The second question is the safety of antidepressant drugs in patients with Parkinson's disease.
Tricyclic antidepressants can cause delusions, cognitive disorders (due to their anticholinergic effect), or orthostatic hypotension (they block adrenergic alpha receptors).
The third question concerns interactions between antidepressant and antiparkinson drugs.
Only one drug combination seems to be risky for patients: selective serotonin reuptake inhibitors (such as fluoxetine and fluvoxamine) and selegiline are associated with the potential and rare (the incidence is 0.24%) serotonin syndrome.12
The diagnosis of serotonin syndrome is made on the basis of three of the following symptoms: a change in mental status (such as the onset of delusions, change in level of consciousness), myoclonus, sweating, hyperreflexia, tremor, diarrhoea, shivering, uncoordination, and fever. This syndrome can be fatal.
The depression associated with Parkinson's disease must be treated.
The first choice is selective serotonin reuptake inhibitors (sertraline 50-200 mg/day; paroxetine 20-40 mg/day) or, in some countries and on an empirical basis, tianeptine (12.5 mg three times a day), which increases the presynaptic recapture of 5-hydroxy-indoleacetic acid, or moclobemide (300 mg/day), which is a reversible and selective inhibitor of monoamine-oxidase type.
Adverse drug interactions are rare, except when selegiline is given at more than 5 mg twice daily.
Clinical trials are needed not only to determine the risk-benefit ratio of these drug regimens but also to determine the optimum dose and duration of antidepressant therapy in Parkinson's disease.
Hervé Allain, head, department of experimental and clinical pharmacology.
Stéphane Schuck, assistant, unit of pharmacoepidemiology.
Nicolas Mauduit, research assistant, unit of pharmacovigilance.
University of Rennes I, 2 avenue Pr Leon Bernard, 35043 Rennes Cedex, France ([log in to unmask])
Acknowledgments
Professor Allain has been given funding for clinical trials from Schering, Novartis, Roche, and Sanofi-Synthelabo. He has been paid for attending symposia by Schering, Janssen International, Pfizer Interntional, and Novartis.
1.
Henderson R, Kurlan R, Kersun JM. Preliminary examination of the comorbidity of anxiety and depression in Parkinson's disease. J Neuropsychiatry Clin Neurosci 1992; 4: 257-264[Abstract].
2.
Menza MA, Robertson-Hoffman DE, Bonapace AS. Parkinson's disease and anxiety: comorbidity with depression. Biol Psych 1993; 34: 465-470[Medline].
3.
Zesiewicz TA, Gold M, Chari G, Hauser RA. Current issues in depression in Parkinson's disease. Am J Geriatr Psychiatry 1999; 7: 110-118[Abstract/Full Text].
4.
Cummings JL, Masterman DL. Depression in patients with Parkinson's disease. Int J Geriatr Psychiatry 1999; 14: 711-718[Medline].
5.
Dooneef G, Mirabello E, Bell K, Marder K, Stern Y, Mayeux R. An estimate of the incidence of depression in idiopathic Parkinson's disease. Arch Neurol 1992; 49: 305-307[Medline].
6.
Kostic VS, Filipovic SR, Lecic D, Mancilovic D, Sokic D, Sternic N. Effect of age at onset on frequency of depression in Parkinson's disease. J Neurol Neurosurg Psychiatry 1994; 57: 1265-1267[Abstract].
7.
Taylor A, Saint-Cyr JA, Lang AE, Kenny FT. Parkinson's disease and depression: a critical re-evaluation. Brain 1986; 109: 279-292[Abstract].
8.
Mindham RH. Psychiatric symptoms in parkinsonism. J Neurol Neurosurg Psychiatry 1970; 33: 188-191[Medline].
9.
Marder K, Tang MX, Cote L, Stern Y, Mayeuf R. The frequency and associated risk factors for dementia in patients with Parkinson's disease. Arch Neurol 1995; 52: 695-701[Medline].
10.
Bejjami BP, Damie P, Anulf I, Thivard L, Bonnet AM, Dormont D. Transient acute depression induced by high frequency deep-brain stimulation. N Engl J Med 1999; 340: 1476-1479[Medline].
11.
Caley CF, Friedman JH. Does fluoxetine exacerbate Parkinson's disease? J Clin Psychiatry 1992; 53: 278-282[Medline].
12.
Toyama SC, Iacono RP. Is it safe to combine a selective serotonin reuptake inhibitor with selegiline. Ann Pharmacother 1994; 28: 405-406[Medline].
BMJ 2000;320:1287-1288 ( 13 May )
"http://bmj.com/cgi/content/full/320/7245/1287"
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Sat, 13 May 2000 00:46:04 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Outsider??????
Juanita I couldn't pick up your address from my address book, but I am
at [log in to unmask] . Would love to hear from you. Jo Ann
=========================================================================
Date: Sat, 13 May 2000 00:46:04 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Woman of the Year
Barbara - what an honor. All of us here, always knew you were wonderful
and now, everyone knows it. You have been such an inspiration and so
very, very helpful , and we are all proud to count you among us. Keep up
the good work, you are needed and wanted. jo Ann from Houston By the
way, did you have a slip under your white dress? (ha!)
=========================================================================
Date: Fri, 12 May 2000 22:46:50 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
Subject: Re: let us not forget Woman of the Year!!!
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
janet paterson wrote:
> i truly hope that this current silliness
Some current posts have not seemed silly to all concerned. Perhaps you
speak for yourself.
Kathrynne
--
Kathrynne Holden, MS, RD
Medical nutrition therapy for Parkinson's disease
Author: "Eat well, stay well with Parkinson's disease"
"Parkinson's disease: interview and assessment tools for nutrition
professionals"
"Risk for malnutrition and bone fracture in Parkinson'sdisease," J Nutr
Elderly. V18:3;1999.
http://www.nutritionucanlivewith.com/
=========================================================================
Date: Fri, 12 May 2000 21:30:53 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charles E Murray <[log in to unmask]>
Subject: Re: let us not forget Woman of the Year!!!
MIME-Version: 1.0
Content-Type: text/plain
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> Barb Patterson has been given a wonderful award and recognition
> from the mayor of one of the key cities in ontario
>
> i couldn't be prouder of her and what she's done for us
> i have seen her workload from the other side of the server
> and still can't imagine how she manages to do it all
> and keep her full time job too!
>
> how about it --------------- chuck -------
> any congratulations from you guys for our list mom?
>
> or maybe a rousing cheer of hip hip hoooray?!
>
>
> janet
JANET
(-: smiley face in advance, meaning don't take much of the following
seriously, puleeez)
>
> I thought Onterio was a small city between Los Angeles and San
Bernardino here in California. The people there make fun of us
Bakersfield folk 125 miles to the north (the home of Buck Owens, star of
the old TV show "He Haw"), so naturally, being very sensitive, I was
darned if I was going to congradulate anyone from Onterio.
But you talk about "cities" in onterio, you must mean that big cold place
with all the evergreen trees way up there. Well, in that case,
congradulations to Barb. Beiing in my first few days on the list I
didn't have the background information or long term acquaintance I
thought necessary to join the congradulations. Now that you have invited
me to do so, "Hip Hip hoorah!
Love
Chuck
=========================================================================
Date: Fri, 12 May 2000 23:54:19 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charles E Murray <[log in to unmask]>
Subject: Fw: From the bench, the aspiring Water Boy
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In my school days I was active in athletics, football, basketball, pole
vaulting on the track team. If I wasn't out on the court or field of
play the sport held no interest for me. I had no desire to be anything
other than what we called a "starter." Any coach who took me out of the
game, even for a brief rest, was on my list of undesirable people. If I
wasn't a full time star I was nothing (and I was seldom a star).
Winning, perfect performance, those were personal expectations, and they
continued in the game of life for many years. My expectations always
exceeded my willingness to work, and the stress this added ground me down
a little more each day. As these traits put so much subjective pressure
in my life, I began to falter. As my defects started to make my
performance unravel, liquid courage became my way of staying in the game.
Finally, I crashed on wobbly legs and was carried off the field of play.
I was put in jock rehab and taught about a Power Greater that myself. I
was told that there was more to life than the game, and that the game
could be played by more gentle rules.
But inevitably I charged back onto the field, though I'd like to think in
a more thoughtful and gentle way. This sometimes led to comic results,
as when I would smile and wave encouragement to the opposing half back as
he ran past me toward the end zone. My fellow players would chide me
into tackling him the next time, telling me I was shirking my "duty" to
the team by "loving my enemies." (What the hell kind of trial attorney
are you?")
So most of the time for the next few years I tackled anyone who tried to
run through my position, but secretly refused to get excited when the
other team experienced success, as long as it didn't embarrass me
personally. I even slipped more and more into the black and white
stripes of a referee after being told I was better suited to be a
mediator of the contest than a player in the game. For ten years I
filled this neutral role, but I was still on the field, still taking the
game very seriously.
And then came Parkinson's.
As my legs began to feel like I was running through a vat of molasses,
fear and self pity set in. Why me? How can I keep influencing and
controlling? Will I even be able to stay in the game? I will be of no
value if I'm not doing my duty. No one will respect me. I won't survive
financially, (ad nauseam)
I turned to the Coach, and this time, instead of the one named "Mi Ego,"
who had always told me to "suck it up, get back in there and hit
somebody, " this new Coach, brought to me by the spiritual teaching I
learned after being knocked out of the game the first time, this Coach
found a willing heart when He said, "I've been watching you on the field
long enough. It is time for you to take a rest, sit out and watch, maybe
a period or two, maybe the rest of the game. Rest, observe, and we will
see. I promise you that if you will sit with patience and observe with
an open heart, you will will understand safety and love and you will be
transformed."
At first the voice of that old coach echoed in my ear. I fretted, I was
unhappy and felt victimized.
But then, watching from my new home on the bench, I noticed I could see
far more of the action than when my whole world was the"guy across the
line as a player, or breaking up a fracas as a referee. Next I began to
realize that what I was watching was a GAME. It was not something to
take too seriously. In the heat of battle I had lost sight of anything
outside the playing field, but from the bench I had time to notice the
birds flying over the field, unmindful of the importance of the contest
below. I could see the majestic mountains in the distance, sensing
instinctively that lovers were walking trails to the summit, hand in
hand, unmindful of the contest as the pursue their own path.
Relieved of the stress of battle, the distraction of intense
concentration on the next play, it slowly dawned on me that I could play
a new and far more peaceful role in life, even more peaceful than that of
referee. I could be one of the Water Boys for both teams. I learned
that a capable Water Boy doesn't judge, penalize or discriminate between
one team or the other, but must carry water to anyone interested in a
drink. And I found the Coach smiles just as often at us Water carriers
as He does the hard charging competitors.
Now that I am breaking in at this new position (one I always felt only
nerds and wimps would fill), I understand that, no matter how intense the
contest, no matter how long it lasts, and no matter what the outcome,
each of us needs the water of Love. Until I got benched by Parkinson's I
didn't realize that I can look past the uniforms, the team loyalties, the
action on the field and see the real core of all of us present and former
players, and that is (help me here doctors) something like 90 percent
water.
Without Parkinson's this new job would never have appealed to me, yet
today it feels like something I was born to do, so I guess gratitude and
Parkinson's must fit into the same sentence. No matter what lies ahead
in my journey with PD, I can always carry the water.
Sincerely,
Aspiring Water Boy (or Water Person if you prefer, as most of the Water
Boys I know are actually of the other gender)
Chuck
=========================================================================
Date: Fri, 12 May 2000 23:58:59 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: let us not forget Woman of the Year!!!
In-Reply-To: Charles E Murray <[log in to unmask]>'s message of Fri, 12 May 2000
21:30:53 -0700
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Chuck, your post was hilarious! Keep them coming.
Juanita CG for George 74 dx98
=========================================================================
Date: Sat, 13 May 2000 00:07:31 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: Fw: From the bench, the aspiring Water Boy
In-Reply-To: Charles E Murray <[log in to unmask]>'s message of Fri, 12 May 2000
23:54:19 -0700
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Chuck, what a wonderful analogy of
the important things in our lives.
Thanks for sharing it with us.
Juanita
=========================================================================
Date: Sat, 13 May 2000 07:19:17 GMT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Judy George <[log in to unmask]>
Subject: Re: Outsider??????
Mime-Version: 1.0
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the big picture is often important
you seem to understand the picture
hope you enjoy your grandson as much as we all do the next generation of
persons
judy
>From: Juanita Hibbert <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: Outsider??????
>Date: Fri, 12 May 2000 16:24:58 -0700
>
>We are hangin in there. I have truly been enjoying my new(May2)
>grandson.Geo
>is doing well. He's walking 1-1 1/2 each day(weather permitting) We live
>in western Wa, so rain is abundant.
>You don't need to change your life. You just need to stop letting weird
>Janet have so much power on your mind. She appears to me to be a control
>freak and
>by playing her games you give her the control she seems to need. I know
>it is difficult, just try to ignore her and hit the delete key. Works
>well for me.
>Thanks for keeping touch.
>Juanita
________________________________________________________________________
Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com
=========================================================================
Date: Sat, 13 May 2000 00:28:10 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Audrey <[log in to unmask]>
Subject: Re: Fw: From the bench, the aspiring Water Boy
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What a wonderful and imaginative story about the water boy you know so
well..
*seattle audrey*
----- Original Message -----
From: " Charles E Murray" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, May 12, 2000 11:54 PM
Subject: Fw: From the bench, the aspiring Water Boy
> In my school days I was active in athletics, football, basketball, pole
> vaulting on the track team. If I wasn't out on the court or field of
> play the sport held no interest for me. I had no desire to be anything
> other than what we called a "starter." Any coach who took me out of the
> game, even for a brief rest, was on my list of undesirable people. If I
> wasn't a full time star I was nothing (and I was seldom a star).
>
> Winning, perfect performance, those were personal expectations, and they
> continued in the game of life for many years. My expectations always
> exceeded my willingness to work, and the stress this added ground me down
> a little more each day. As these traits put so much subjective pressure
> in my life, I began to falter. As my defects started to make my
> performance unravel, liquid courage became my way of staying in the game.
>
> Finally, I crashed on wobbly legs and was carried off the field of play.
> I was put in jock rehab and taught about a Power Greater that myself. I
> was told that there was more to life than the game, and that the game
> could be played by more gentle rules.
>
> But inevitably I charged back onto the field, though I'd like to think in
> a more thoughtful and gentle way. This sometimes led to comic results,
> as when I would smile and wave encouragement to the opposing half back as
> he ran past me toward the end zone. My fellow players would chide me
> into tackling him the next time, telling me I was shirking my "duty" to
> the team by "loving my enemies." (What the hell kind of trial attorney
> are you?")
>
> So most of the time for the next few years I tackled anyone who tried to
> run through my position, but secretly refused to get excited when the
> other team experienced success, as long as it didn't embarrass me
> personally. I even slipped more and more into the black and white
> stripes of a referee after being told I was better suited to be a
> mediator of the contest than a player in the game. For ten years I
> filled this neutral role, but I was still on the field, still taking the
> game very seriously.
>
> And then came Parkinson's.
>
> As my legs began to feel like I was running through a vat of molasses,
> fear and self pity set in. Why me? How can I keep influencing and
> controlling? Will I even be able to stay in the game? I will be of no
> value if I'm not doing my duty. No one will respect me. I won't survive
> financially, (ad nauseam)
>
> I turned to the Coach, and this time, instead of the one named "Mi Ego,"
> who had always told me to "suck it up, get back in there and hit
> somebody, " this new Coach, brought to me by the spiritual teaching I
> learned after being knocked out of the game the first time, this Coach
> found a willing heart when He said, "I've been watching you on the field
> long enough. It is time for you to take a rest, sit out and watch, maybe
> a period or two, maybe the rest of the game. Rest, observe, and we will
> see. I promise you that if you will sit with patience and observe with
> an open heart, you will will understand safety and love and you will be
> transformed."
>
> At first the voice of that old coach echoed in my ear. I fretted, I was
> unhappy and felt victimized.
>
> But then, watching from my new home on the bench, I noticed I could see
> far more of the action than when my whole world was the"guy across the
> line as a player, or breaking up a fracas as a referee. Next I began to
> realize that what I was watching was a GAME. It was not something to
> take too seriously. In the heat of battle I had lost sight of anything
> outside the playing field, but from the bench I had time to notice the
> birds flying over the field, unmindful of the importance of the contest
> below. I could see the majestic mountains in the distance, sensing
> instinctively that lovers were walking trails to the summit, hand in
> hand, unmindful of the contest as the pursue their own path.
>
> Relieved of the stress of battle, the distraction of intense
> concentration on the next play, it slowly dawned on me that I could play
> a new and far more peaceful role in life, even more peaceful than that of
> referee. I could be one of the Water Boys for both teams. I learned
> that a capable Water Boy doesn't judge, penalize or discriminate between
> one team or the other, but must carry water to anyone interested in a
> drink. And I found the Coach smiles just as often at us Water carriers
> as He does the hard charging competitors.
>
> Now that I am breaking in at this new position (one I always felt only
> nerds and wimps would fill), I understand that, no matter how intense the
> contest, no matter how long it lasts, and no matter what the outcome,
> each of us needs the water of Love. Until I got benched by Parkinson's I
> didn't realize that I can look past the uniforms, the team loyalties, the
> action on the field and see the real core of all of us present and former
> players, and that is (help me here doctors) something like 90 percent
> water.
>
> Without Parkinson's this new job would never have appealed to me, yet
> today it feels like something I was born to do, so I guess gratitude and
> Parkinson's must fit into the same sentence. No matter what lies ahead
> in my journey with PD, I can always carry the water.
>
> Sincerely,
> Aspiring Water Boy (or Water Person if you prefer, as most of the Water
> Boys I know are actually of the other gender)
> Chuck
>
=========================================================================
Date: Sat, 13 May 2000 12:54:02 +0500
Reply-To: Muntazar Bashir Ahmed <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Muntazar Bashir Ahmed <[log in to unmask]>
Subject: Re: Fw: From the bench, the aspiring Water Boy
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Marvellous thoughts, thank you, thank you very much! You have indeed
enlightened me.God bless you.
Muntazar Bashir Ahmed
Pakistan
----- Original Message -----
From: Charles E Murray <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, May 13, 2000 11:54 AM
Subject: Fw: From the bench, the aspiring Water Boy
> In my school days I was active in athletics, football, basketball, pole
> vaulting on the track team. If I wasn't out on the court or field of
> play the sport held no interest for me. I had no desire to be anything
> other than what we called a "starter." Any coach who took me out of the
> game, even for a brief rest, was on my list of undesirable people. If I
> wasn't a full time star I was nothing (and I was seldom a star).
>
> Winning, perfect performance, those were personal expectations, and they
> continued in the game of life for many years. My expectations always
> exceeded my willingness to work, and the stress this added ground me down
> a little more each day. As these traits put so much subjective pressure
> in my life, I began to falter. As my defects started to make my
> performance unravel, liquid courage became my way of staying in the game.
>
> Finally, I crashed on wobbly legs and was carried off the field of play.
> I was put in jock rehab and taught about a Power Greater that myself. I
> was told that there was more to life than the game, and that the game
> could be played by more gentle rules.
>
> But inevitably I charged back onto the field, though I'd like to think in
> a more thoughtful and gentle way. This sometimes led to comic results,
> as when I would smile and wave encouragement to the opposing half back as
> he ran past me toward the end zone. My fellow players would chide me
> into tackling him the next time, telling me I was shirking my "duty" to
> the team by "loving my enemies." (What the hell kind of trial attorney
> are you?")
>
> So most of the time for the next few years I tackled anyone who tried to
> run through my position, but secretly refused to get excited when the
> other team experienced success, as long as it didn't embarrass me
> personally. I even slipped more and more into the black and white
> stripes of a referee after being told I was better suited to be a
> mediator of the contest than a player in the game. For ten years I
> filled this neutral role, but I was still on the field, still taking the
> game very seriously.
>
> And then came Parkinson's.
>
> As my legs began to feel like I was running through a vat of molasses,
> fear and self pity set in. Why me? How can I keep influencing and
> controlling? Will I even be able to stay in the game? I will be of no
> value if I'm not doing my duty. No one will respect me. I won't survive
> financially, (ad nauseam)
>
> I turned to the Coach, and this time, instead of the one named "Mi Ego,"
> who had always told me to "suck it up, get back in there and hit
> somebody, " this new Coach, brought to me by the spiritual teaching I
> learned after being knocked out of the game the first time, this Coach
> found a willing heart when He said, "I've been watching you on the field
> long enough. It is time for you to take a rest, sit out and watch, maybe
> a period or two, maybe the rest of the game. Rest, observe, and we will
> see. I promise you that if you will sit with patience and observe with
> an open heart, you will will understand safety and love and you will be
> transformed."
>
> At first the voice of that old coach echoed in my ear. I fretted, I was
> unhappy and felt victimized.
>
> But then, watching from my new home on the bench, I noticed I could see
> far more of the action than when my whole world was the"guy across the
> line as a player, or breaking up a fracas as a referee. Next I began to
> realize that what I was watching was a GAME. It was not something to
> take too seriously. In the heat of battle I had lost sight of anything
> outside the playing field, but from the bench I had time to notice the
> birds flying over the field, unmindful of the importance of the contest
> below. I could see the majestic mountains in the distance, sensing
> instinctively that lovers were walking trails to the summit, hand in
> hand, unmindful of the contest as the pursue their own path.
>
> Relieved of the stress of battle, the distraction of intense
> concentration on the next play, it slowly dawned on me that I could play
> a new and far more peaceful role in life, even more peaceful than that of
> referee. I could be one of the Water Boys for both teams. I learned
> that a capable Water Boy doesn't judge, penalize or discriminate between
> one team or the other, but must carry water to anyone interested in a
> drink. And I found the Coach smiles just as often at us Water carriers
> as He does the hard charging competitors.
>
> Now that I am breaking in at this new position (one I always felt only
> nerds and wimps would fill), I understand that, no matter how intense the
> contest, no matter how long it lasts, and no matter what the outcome,
> each of us needs the water of Love. Until I got benched by Parkinson's I
> didn't realize that I can look past the uniforms, the team loyalties, the
> action on the field and see the real core of all of us present and former
> players, and that is (help me here doctors) something like 90 percent
> water.
>
> Without Parkinson's this new job would never have appealed to me, yet
> today it feels like something I was born to do, so I guess gratitude and
> Parkinson's must fit into the same sentence. No matter what lies ahead
> in my journey with PD, I can always carry the water.
>
> Sincerely,
> Aspiring Water Boy (or Water Person if you prefer, as most of the Water
> Boys I know are actually of the other gender)
> Chuck
>
=========================================================================
Date: Sat, 13 May 2000 05:16:17 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Abe Sirota <[log in to unmask]>
Subject: Re: Bad reaction to sinemet, info please
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
I take 4 of 50 by 200 of sinemet it makes my pain weaker it's the best
medication I just dropped MIRAPEX I feel much better. I just don't know how
long ABA
=========================================================================
Date: Sat, 13 May 2000 09:21:28 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Greg Sterling <[log in to unmask]>
Subject: Re: let us not forget Woman of the Year!!!
MIME-Version: 1.0
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ditto
Greg
47/35/35
----- Original Message -----
From: Juanita Hibbert <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, May 13, 2000 12:09 AM
Subject: Re: let us not forget Woman of the Year!!!
> Of course, I applaud all that Barbara P
> has done. I certainly do not need to be spoken to like a child, nor do I
> need to be reminded of my manners I am well beyond needing to be chided
> into action.
> Juanita.
>
=========================================================================
Date: Sat, 13 May 2000 09:40:54 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Audrey <[log in to unmask]>
Subject: Re: Fw: From the bench, the aspiring Water Boy
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hi Chuck, (WATER BOY) This post is a MUST SAVE. Wish I could write like
that!!
Hugs, Audrey in Pa.
----- Original Message -----
From: Charles E Murray <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, May 13, 2000 2:54 AM
Subject: Fw: From the bench, the aspiring Water Boy
> In my school days I was active in athletics, football, basketball, pole
> vaulting on the track team. If I wasn't out on the court or field of
> play the sport held no interest for me. I had no desire to be anything
> other than what we called a "starter." Any coach who took me out of the
> game, even for a brief rest, was on my list of undesirable people. If I
> wasn't a full time star I was nothing (and I was seldom a star).
>
> Winning, perfect performance, those were personal expectations, and they
> continued in the game of life for many years. My expectations always
> exceeded my willingness to work, and the stress this added ground me down
> a little more each day. As these traits put so much subjective pressure
> in my life, I began to falter. As my defects started to make my
> performance unravel, liquid courage became my way of staying in the game.
>
> Finally, I crashed on wobbly legs and was carried off the field of play.
> I was put in jock rehab and taught about a Power Greater that myself. I
> was told that there was more to life than the game, and that the game
> could be played by more gentle rules.
>
> But inevitably I charged back onto the field, though I'd like to think in
> a more thoughtful and gentle way. This sometimes led to comic results,
> as when I would smile and wave encouragement to the opposing half back as
> he ran past me toward the end zone. My fellow players would chide me
> into tackling him the next time, telling me I was shirking my "duty" to
> the team by "loving my enemies." (What the hell kind of trial attorney
> are you?")
>
> So most of the time for the next few years I tackled anyone who tried to
> run through my position, but secretly refused to get excited when the
> other team experienced success, as long as it didn't embarrass me
> personally. I even slipped more and more into the black and white
> stripes of a referee after being told I was better suited to be a
> mediator of the contest than a player in the game. For ten years I
> filled this neutral role, but I was still on the field, still taking the
> game very seriously.
>
> And then came Parkinson's.
>
> As my legs began to feel like I was running through a vat of molasses,
> fear and self pity set in. Why me? How can I keep influencing and
> controlling? Will I even be able to stay in the game? I will be of no
> value if I'm not doing my duty. No one will respect me. I won't survive
> financially, (ad nauseam)
>
> I turned to the Coach, and this time, instead of the one named "Mi Ego,"
> who had always told me to "suck it up, get back in there and hit
> somebody, " this new Coach, brought to me by the spiritual teaching I
> learned after being knocked out of the game the first time, this Coach
> found a willing heart when He said, "I've been watching you on the field
> long enough. It is time for you to take a rest, sit out and watch, maybe
> a period or two, maybe the rest of the game. Rest, observe, and we will
> see. I promise you that if you will sit with patience and observe with
> an open heart, you will will understand safety and love and you will be
> transformed."
>
> At first the voice of that old coach echoed in my ear. I fretted, I was
> unhappy and felt victimized.
>
> But then, watching from my new home on the bench, I noticed I could see
> far more of the action than when my whole world was the"guy across the
> line as a player, or breaking up a fracas as a referee. Next I began to
> realize that what I was watching was a GAME. It was not something to
> take too seriously. In the heat of battle I had lost sight of anything
> outside the playing field, but from the bench I had time to notice the
> birds flying over the field, unmindful of the importance of the contest
> below. I could see the majestic mountains in the distance, sensing
> instinctively that lovers were walking trails to the summit, hand in
> hand, unmindful of the contest as the pursue their own path.
>
> Relieved of the stress of battle, the distraction of intense
> concentration on the next play, it slowly dawned on me that I could play
> a new and far more peaceful role in life, even more peaceful than that of
> referee. I could be one of the Water Boys for both teams. I learned
> that a capable Water Boy doesn't judge, penalize or discriminate between
> one team or the other, but must carry water to anyone interested in a
> drink. And I found the Coach smiles just as often at us Water carriers
> as He does the hard charging competitors.
>
> Now that I am breaking in at this new position (one I always felt only
> nerds and wimps would fill), I understand that, no matter how intense the
> contest, no matter how long it lasts, and no matter what the outcome,
> each of us needs the water of Love. Until I got benched by Parkinson's I
> didn't realize that I can look past the uniforms, the team loyalties, the
> action on the field and see the real core of all of us present and former
> players, and that is (help me here doctors) something like 90 percent
> water.
>
> Without Parkinson's this new job would never have appealed to me, yet
> today it feels like something I was born to do, so I guess gratitude and
> Parkinson's must fit into the same sentence. No matter what lies ahead
> in my journey with PD, I can always carry the water.
>
> Sincerely,
> Aspiring Water Boy (or Water Person if you prefer, as most of the Water
> Boys I know are actually of the other gender)
> Chuck
=========================================================================
Date: Sat, 13 May 2000 10:10:14 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bonnie Rowley <[log in to unmask]>
Subject: Check out The Search for the Best Mother
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Barb P & all,
Since members of PIE come from so many countries all around the world, I
thought I'd offer this page as congrats to Barb P.
<A HREF="http://sendafriend.com/momsearch/">Click here: The Search for the
Best Mother</A>
http://sendafriend.com/momsearch/
Bonnie
daughter of Jim 77/72
* * *
Live well * Laugh often * Love much
Join SPARKLE
[log in to unmask]
=========================================================================
Date: Sat, 13 May 2000 10:22:23 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Fw: From the bench, the aspiring Water Boy
Chuck - Beautifully put. Your new game may not have the same excitement
as the old one, and your new coach can be tough sometimes, but mostly
tough with love added to it. All of us are constantly searching for
ourselves and the search won't end until we
leave this spaceship called Earth. Best wishes, Jo Ann from Houston
=========================================================================
Date: Sat, 13 May 2000 07:55:29 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Carole Hercun <[log in to unmask]>
Subject: Re: depression /cd / bootstraps / jane kenyon's description
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
janet-What a wondrous writer! Thank you for the
introduction. Carole
--- janet paterson <[log in to unmask]> wrote:
> this is a repost
> of the best description of the experience of cd
> that i have ever found
>
> janet
>
>
-----------------------------------------------------------------------
> Post: 029603
> Date: Sat, 23 Aug 1997
> From: janet paterson
> Subj: CD: A Poem by Jane Kenyon
>
-----------------------------------------------------------------------
>
> HAVING IT OUT WITH MELANCHOLY
>
> If many remedies are prescribed for an illness,
> you may be certain that the illness has no
> cure.
>
> A.P. Chekhov
> The Cherry Orchard
>
>
> 1 FROM THE NURSERY
>
> When I was born, you waited
> behind a pile of linen in the nursery,
> and when we were alone, you lay down
> on top of me, pressing
> the bile of desolation into every pore.
> And from that day on
> everything under the sun and moon
> made me sad=97even the yellow
> wooden beads that slid and spun
> along a spindle on my crib.
>
> You taught me to exist without gratitude.
> You ruined my manners toward God:
> "We're here simply to wit for death;
> the pleasures of earth are overrated."
>
> I only appeared to belong to my mother,
> to live among blocks and cotton undershirts
> with snaps; among red tin lunch boxes
> and report cards in ugly brown slipcases.
> I was already yours=97the anti-urge,
> the mutilator of souls.
>
> 2 BOTTLES
>
> Elavil, Ludiomil, Doxepin,
> Norpramin, Prozac, Lithium, Xanax,
> Wellbutrin, Parnate, Nardil, Zoloft.
> The coated ones smell sweet or have
> no smell; the powdery ones smell
> like the chemistry lab at school
> that made me hold my breath.
>
> 3 SUGGESTION FROM A FRIEND
>
> You wouldn't be so depressed
> if you really believed in God.
>
> 4 OFTEN
>
> Often I go to bed as soon after dinner
> as seems adult
> (I mean I try to wait for dark)
> in order to push away
> from the massive pain in sleep's
> frail wicker coracle.
>
> 5 ONCE THERE WAS LIGHT
>
> Once, in my early thirties, I saw
> that I was a speck of light in the great
> river of light that undulates through time.
> I was floating with the whole
> human family. We were all colors - those
> who are living now, those who have died,
> those who are not yet born. For a few
> moments I floated, completely calm,
> and I no longer hated having to exist.
>
> Like a crow who smells hot blood
> you came flying to pull me out
> of the glowing stream.
> "I'll hold you up. I never let my dear
> ones drown!" After that, I wept for days.
>
> 6 IN AND OUT
>
> The dog searches until he finds me
> upstairs, lies down with a clatter
> of elbows, puts his head on my foot.
>
> Sometimes the sound of his breathing
> saves my life - in and out, in
> and out; a pause, a long sigh...
>
> 7 PARDON
>
> A piece of burned meat
> wears my clothes, speaks
> in my voice, dispatches obligations
> haltingly, or not at all.
> It is tired of trying
> to be stouthearted, tired
> beyond measure.
>
> We move on to the monoamine
> oxidase inhibitors. Day and night
> I feel as if I had drunk six cups
> of coffee, but the pain stops
> abruptly. With the wonder
> and bitterness of someone pardoned
> for a crime she did not commit
> I come back to marriage and friends,
> to pink-fringed hollyhocks; come back
> to my desk, books, and chair.
>
> 8 CREDO
>
> Pharmaceutical wonders are at work
> but I believe only in this moment
> of well-being. Unholy ghost,
> you are certain to come again.
>
> Coarse, mean, you'll put your feet
> on the coffee table, lean back,
> and turn me into someone who can't
> take the trouble to speak; someone
> who can't sleep, or who does nothing
> but sleep; can't read, or call
> for an appointment for help.
>
> There is nothing I can do
> against your coming.
> When I am awake, I am still with thee.
>
> 9 WOOD THRUSH
>
> High on Nardil and June light
> I wake at four,
> waiting greedily for the first
> notes of the wood thrush. Easeful air
> presses through the screen
> with the wild, complex song
> of the bird, and I am overcome
> by ordinary contentment.
> What hurt me so terribly
> all my life until this moment?
> How I love the small, swiftly
> beating heart of the bird
> singing in the great maples;
> its bright, unequivocal eye.
>
> Jane Kenyon
>
>
> Copyright 1996 by Jane Kenyon
> >From Otherwise: New & Selected Poems
> <http://www.graywolfpress.org/>
>
-------------------------------------------------------------------
>
> janet paterson
> 53 now / 41 dx / 37 onset
> 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
> come visit my website "a new voice" at:
> http://www.geocities.com/janet313/
__________________________________________________
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Send instant messages & get email alerts with Yahoo! Messenger.
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=========================================================================
Date: Sat, 13 May 2000 08:20:26 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Carole Hercun <[log in to unmask]>
Subject: Re: depression /cd / bootstraps
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Hi Chuck: Well said, and too familiar. Carole
--- Charles E Murray <[log in to unmask]> wrote:
> Wonderful descriptions. I recognize thoughts I have had
> in the past.
> How about one more:
>
> The feeling that you are breathing air that should to go
> someone more
> deserving.
>
> Chuck
>
__________________________________________________
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=========================================================================
Date: Sat, 13 May 2000 11:24:36 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: depression /cd / bootstraps / jane kenyon's description
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At 07:55 AM 2000/05/13 -0700, Carole Hercun <[log in to unmask]> wrote:
>janet-What a wondrous writer! Thank you for the
>introduction. Carole
>
i'm glad you liked it, carole
jane kenyon has been a hero of mine
since i discovered her work a few years ago
here's a short one from the other side of the mud hole
janet
-----------------------------------------------------
Now That We Live
Fat spider by the door.
Brow of hayfield, blue
eye of pond.
Sky at night like an open well.
Whip-Poor-Will calls
in the tall grass:
I belong to the Queen of Heaven!
The cheerful worm
in the cheerful ground.
Regular shape of meadow and wall
under the blue
imperturbable mountain.
-----------------------------------------------------
From "Otherwise" by Graywolf Press.
Jane Kenyon was born in Ann Arbor in 1947 and
graduated from the University of Michigan. She
lived and worked with her husband Donald Hall
in Wilmot, New Hampshire, until her death in
1995 after 15 months' struggle with leukemia.
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Sat, 13 May 2000 11:39:20 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Don McKinley <[log in to unmask]>
Subject: LIST:------- B. PATTERSON
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: quoted-printable
THERE IS NO ONE WHO KNOWS BARB SHOULD HAVE THE AWARD THAN ME. (DON & =
VIVIAN) LOT OF YOU WHERE NOT ON THE LIST. WHEN BARB GOT ME THROUGH SOME =
ROUGH TIMES. I AMY NOT EVEN MAY NOT BEEN HEAR. I PUT THIS IN CAP'S SO =
NONE WOULD NOT MISS IT. THANKS BARB. YOU ARE OF THE BEST AND ONE OF A =
KIND.=20
I.Y.Q. DON AND =
VIVIAN
LOVE OF MY LIFE-- =
55=20
=========================================================================
Date: Sat, 13 May 2000 11:51:00 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: NEWS: Canadians hooked on cable Internet
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Canadians hooked on cable Internet:
Twice as many people surfing the Web on cable in this country than in the U.S., survey finds
Saturday May 13, 2000 - Canadians lag behind Americans in using the Internet but lead the world in cable Web surfing, a recently released poll shows.
Commissioned by the federal government, the survey is the first publicly available study that measured Canadian and U.S. Internet penetration at the same point in time, using the same technique.
It revealed that 37 per cent of Canadians five years of age or older use the Internet, compared with 48 per cent of Americans. Comparing households, 40 per cent of Canadian homes have at least one person using the Internet, while 45 per cent do in the United States.
The survey also showed that one-quarter -- 26 per cent -- of Canadians enjoy their own e-mail address compared with 35 per cent of Americans.
But when it comes to cable hookups to the Internet, Canadians are world leaders with about 10 per cent of households -- twice as many as in the U.S. -- surfing with the speedier connection.
As well, once Canadians start using the Internet, the Web becomes a greater part of their life than in the United States.
Among those individuals in Canada who use the Internet, 48 per cent use it daily, while only 41 per cent of Americans say the same thing.
Paul Pierlot, a spokesman for Industry Canada, said the country's competitive cable market partly explains Canada's growing Internet cable audience. He said one cable company in Canada is offering a subscription rate of $29.95 a month.
The CRTC has mandated third-party access to cable, creating a competitive environment among Internet cable providers that does not yet exist in the U.S.
The move has forced cable companies to provide access to Internet cable providers and increased cable penetration. The high-speed access to the Internet is preferred by many using the Net for such things as multi-media and music.
The $22,000 poll, which was carried out by Toronto-based ACNielsen/DJC Research in March 1999, was only released by the government this week. A total of 1,400 people -- 700 households in each country -- were surveyed during a seven-day period.
The margin of error of a sample of 700 is plus or minus 3.8 percentage points. The pollsters said they adjusted the results to reflect the difference between Canada and the U.S. with respect to household penetration of telephone service.
Mr. Pierlot said while Canada may lag slightly behind American use of the Internet, it is still one of the top users in the world. He said there is continuing rapid growth in the number of users in the past year, and the margin between the two countries may be have been reduced.
One reason often given for the Canadian lag in integrating the Web into their life is Canada's francophone population. Survey after survey has found that Quebec users lag behind the rest of the country in using the Internet, with one recent survey showing 46 per cent of Canadians outside of Quebec were using the Net, while only 35 per cent were surfing in Quebec. The main language of use on the Internet is English.
Canada virtually tied the U.S. in two categories in the survey. It showed that 21 per cent of Canadian and Americans use the Internet both at home and away from home. And the percentage of households in both countries with at least one subscription to an Internet service provider is about 33 per cent.
Jack Aubry
The Ottawa Citizen
Copyright 2000 Ottawa Citizen
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Sat, 13 May 2000 12:38:45 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Irene Rosenthal <[log in to unmask]>
Subject: (no subject)
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
could SOMEONE PLEASE TELL ME ABOUT APOMORPHINE
thanks
Irene
=========================================================================
Date: Sat, 13 May 2000 13:06:38 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Sandra Norris <[log in to unmask]>
Subject: I AM BACK WITH THANKS IN MY HEART!!
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hello List family,
My father's open-heart surgery went very well and he is home and taking his
journeey on a long road to recovery. As all of us do here on the list my
Dad will take one day at a time. I wish to thank all of you for your
prayers and encouraging words.
Sandra Norris
"Faith is the daring of the soul to go farther than it can see."
=========================================================================
Date: Sat, 13 May 2000 10:26:01 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Carole Hercun <[log in to unmask]>
Subject: Re: depression (not yet) / Woman of the Year Nominee!!!
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Hi Barb: Little late with the congrats. Been wading through
a sea of e-mail Will be rooting for you! Carole
--- Bob Anibal <[log in to unmask]> wrote:
> If you don't win , I think we should cry foul and the
> election rigged
> Love to a real sweetheart
> Bob A.
> ----- Original Message -----
> From: "janet paterson" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Thursday, May 11, 2000 9:28 AM
> Subject: Re: depression (not yet) / Woman of the Year
> Nominee!!!
>
>
> At 11:43 PM 2000/05/10 -0400, Barbara Patterson
> <[log in to unmask]> wrote:
> >Hi, folks...last month, two faculty member at McMaster
> University
> >nominated me for a Woman of the Year Award in this
> area...the awards
> >are to be given out tomorrow evening...so, if you can
> spare some
> >prayers or kind thoughts, please feel free...not with
> the goal of
> >winning but rather that I don't trip and fall or spill
> my dinner
> >in front of 500 people!
> >Barb :)
>
>
> what wonderful news, barb!
>
> what is the group affiliation?
> who are the other nomineees?
> what are their chances?
>
> but really ...
> who cares!!!
>
> your nomination is simply a public reflection
> of the esteem that so many of us hold you in on a daily
> basis
> and probably don't tell you often enough
>
> this list has been a godsend to me
> and due to its natural and energetic growth over 7 years
> it is providing the same benefit to thousands of us
> around the world
>
> .... and its all your fault!!!
>
> trip, fall, spill, break a leg!!!
>
>
> with much love
>
> janet
>
> janet paterson
> 53 now / 41 dx / 37 onset
> 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
> come visit my website "a new voice" at:
> http://www.geocities.com/janet313/
__________________________________________________
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Send instant messages & get email alerts with Yahoo! Messenger.
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=========================================================================
Date: Sat, 13 May 2000 14:25:02 -0300
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Joao Carvalho <[log in to unmask]>
Subject: Re: pd acceptance / "on-off" phenomenon
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
janet paterson wrote:
> >Hi Janet ,
> >It is not schizophrenia that has an abrupt change of mood ?
> >How about people that have double personality ? Could these
> >have some connection with the "on-off" condition someway
> >since they occur also in the brain ?
>
> hi joao
> i don't know much at all about schizophrenia other than
> that it is connected to 'too much dopamine' as opposed to 'too little'
> [hey! maybe we could work some deals...!]
> double or multiple personality syndrome i believe
> can manifest in extremely abrupt changes in 'personae'
> but i think that those changes are triggered by outside circumstances
> as they appear to affect the psychology or safety of the personae involved
>
> imagining how someone in christopher reeve's condition
> would cope if he could suddenly walk and then suddenly not
> several times a day
Well , in his case the injury is not in the brain but along the spine's nerves
severed.
> or if someone who was blind
> would cope if she could suddenly see and then suddenly not
> several times a day
Here also it has to consider if the phenomena has to do with the brain or the
optical system .
What I am trying to point is that this switch on-off has to occur in the brain
system .
> this has to be a unique aspect of parkinsons's
> as compared to other 'disabilities', no?
Perhaps in some other ones that in some way have the deficient in the brain
system in the cause of the disability. Another example of on-off that occurs to
me now would be epilepsy .
Cheers ,
[log in to unmask]
=========================================================================
Date: Sat, 13 May 2000 10:38:45 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Carole Hercun <[log in to unmask]>
Subject: Re: Depression and Fatigue / cd or pd?
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Nope, Barb. I'm afraid the PD has made me feel a tad
entitled. Or, maybe I always was???
Carole
--- Barb_MSN <[log in to unmask]> wrote:
> Carole, m'dear, you're my kinda gal! <BIG smile> I bet
> you'd
> never apologize or come up with excuses for ordering that
> second
> (or THIRD) scoop, either!
>
> Barb Mallut
> [log in to unmask]
>
> -----Original Message-----
> From: Carole Hercun <[log in to unmask]>
> To: [log in to unmask]
> <[log in to unmask]>
> Date: Tuesday, May 09, 2000 6:06 PM
> Subject: Re: Depression and Fatigue / cd or pd?
>
>
> >Hi Barb: I vote for both the nap AND the ice cream, but
> >then I've always been greedy. Carole
> >
> >
> >--- Barb_MSN <[log in to unmask]> wrote:
> >> I either take an hour's nap or go to the convenience
> >> store and guy
> >> a pint of ice cream to be eaten immediately upon
> >> returning home.
> >>
> >> Just the anticipation is enough to wake me up! <GRIN>
> >>
> >> Barb Mallut (LOVE that Haagan Daz Coffee Toffee
> Crunch!)
> >> [log in to unmask]
> >>
> >> -----Original Message-----
> >> From: Charles E Murray <[log in to unmask]>
> >> To: [log in to unmask]
> >> <[log in to unmask]>
> >> Date: Monday, May 08, 2000 8:57 PM
> >> Subject: Re: Depression and Fatigue / cd or pd?
> >>
> >>
> >> >. What do others do for this fatigue.... it's
> >> >> debilitating!
> >> >> >Clare Wilson (69/ 3 )
> >> >>
> >> >>
> >> >> fatigue is now considered one of the five key
> symptoms
> >> of pd
> >> >>
> >> >> when i 'run out of steam' i either rest and read
> for
> >> awhile
> >> >> or take a nap - 30 minutes usually does the trick
> >> >>
> >> >> there is no more point in 'fighting' pd-related
> >> fatigue
> >> >> than there is in 'fighting' pd-related tremor
> >> >>
> >> >> janet
> >> >>
> >> >> A great topic as this is the most difficult and
> >> obstructive
> >> problem for
> >> >me as well, and Requip, a blessing in many ways, has
> >> made
> >> drowsiness much
> >> >worse. Even a 59 I had not learned to nap
> effectively,
> >> but I
> >> agree with
> >> >Janet that cooperating with the fatigue and doing
> what
> >> it is
> >> asking (lay
> >> >down and close my eyes) works better than anything
> else.
> >> There
> >> are some
> >> >drugs less habit forming than amphetamines that can
> be
> >> prescribed
> >> and
> >> >while my specialist is willing to do so I want see if
> a
> >> peaceful
> >> >accommodation can be made before taking that step.
> I'm
> >> sure open
> >> to help
> >> >in this area, however.
> >> >
> >> >Chuck
> >
> >
> >__________________________________________________
> >Do You Yahoo!?
> >Send instant messages & get email alerts with Yahoo!
> Messenger.
> >http://im.yahoo.com/
__________________________________________________
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Send instant messages & get email alerts with Yahoo! Messenger.
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=========================================================================
Date: Sat, 13 May 2000 13:57:28 -0400
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Cathy Morse <[log in to unmask]>
Subject: Re: Fw: From the bench, the aspiring Water Boy
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Beautifully written, Chuck. Amazing what happens to "doers" when they
are forced into a more "observing" role. Surprisingly it's not all bad as
you so well describe it.
Cathy
Charles E Murray wrote:
> In my school days I was active in athletics, football, basketball, pole
> vaulting on the track team. If I wasn't out on the court or field of
> play the sport held no interest for me. I had no desire to be anything
> other than what we called a "starter." Any coach who took me out of the
> game, even for a brief rest, was on my list of undesirable people. If I
> wasn't a full time star I was nothing (and I was seldom a star).
>
> Winning, perfect performance, those were personal expectations, and they
> continued in the game of life for many years. My expectations always
> exceeded my willingness to work, and the stress this added ground me down
> a little more each day. As these traits put so much subjective pressure
> in my life, I began to falter. As my defects started to make my
> performance unravel, liquid courage became my way of staying in the game.
>
> Finally, I crashed on wobbly legs and was carried off the field of play.
> I was put in jock rehab and taught about a Power Greater that myself. I
> was told that there was more to life than the game, and that the game
> could be played by more gentle rules.
>
> But inevitably I charged back onto the field, though I'd like to think in
> a more thoughtful and gentle way. This sometimes led to comic results,
> as when I would smile and wave encouragement to the opposing half back as
> he ran past me toward the end zone. My fellow players would chide me
> into tackling him the next time, telling me I was shirking my "duty" to
> the team by "loving my enemies." (What the hell kind of trial attorney
> are you?")
>
> So most of the time for the next few years I tackled anyone who tried to
> run through my position, but secretly refused to get excited when the
> other team experienced success, as long as it didn't embarrass me
> personally. I even slipped more and more into the black and white
> stripes of a referee after being told I was better suited to be a
> mediator of the contest than a player in the game. For ten years I
> filled this neutral role, but I was still on the field, still taking the
> game very seriously.
>
> And then came Parkinson's.
>
> As my legs began to feel like I was running through a vat of molasses,
> fear and self pity set in. Why me? How can I keep influencing and
> controlling? Will I even be able to stay in the game? I will be of no
> value if I'm not doing my duty. No one will respect me. I won't survive
> financially, (ad nauseam)
>
> I turned to the Coach, and this time, instead of the one named "Mi Ego,"
> who had always told me to "suck it up, get back in there and hit
> somebody, " this new Coach, brought to me by the spiritual teaching I
> learned after being knocked out of the game the first time, this Coach
> found a willing heart when He said, "I've been watching you on the field
> long enough. It is time for you to take a rest, sit out and watch, maybe
> a period or two, maybe the rest of the game. Rest, observe, and we will
> see. I promise you that if you will sit with patience and observe with
> an open heart, you will will understand safety and love and you will be
> transformed."
>
> At first the voice of that old coach echoed in my ear. I fretted, I was
> unhappy and felt victimized.
>
> But then, watching from my new home on the bench, I noticed I could see
> far more of the action than when my whole world was the"guy across the
> line as a player, or breaking up a fracas as a referee. Next I began to
> realize that what I was watching was a GAME. It was not something to
> take too seriously. In the heat of battle I had lost sight of anything
> outside the playing field, but from the bench I had time to notice the
> birds flying over the field, unmindful of the importance of the contest
> below. I could see the majestic mountains in the distance, sensing
> instinctively that lovers were walking trails to the summit, hand in
> hand, unmindful of the contest as the pursue their own path.
>
> Relieved of the stress of battle, the distraction of intense
> concentration on the next play, it slowly dawned on me that I could play
> a new and far more peaceful role in life, even more peaceful than that of
> referee. I could be one of the Water Boys for both teams. I learned
> that a capable Water Boy doesn't judge, penalize or discriminate between
> one team or the other, but must carry water to anyone interested in a
> drink. And I found the Coach smiles just as often at us Water carriers
> as He does the hard charging competitors.
>
> Now that I am breaking in at this new position (one I always felt only
> nerds and wimps would fill), I understand that, no matter how intense the
> contest, no matter how long it lasts, and no matter what the outcome,
> each of us needs the water of Love. Until I got benched by Parkinson's I
> didn't realize that I can look past the uniforms, the team loyalties, the
> action on the field and see the real core of all of us present and former
> players, and that is (help me here doctors) something like 90 percent
> water.
>
> Without Parkinson's this new job would never have appealed to me, yet
> today it feels like something I was born to do, so I guess gratitude and
> Parkinson's must fit into the same sentence. No matter what lies ahead
> in my journey with PD, I can always carry the water.
>
> Sincerely,
> Aspiring Water Boy (or Water Person if you prefer, as most of the Water
> Boys I know are actually of the other gender)
> Chuck
=========================================================================
Date: Sat, 13 May 2000 15:00:10 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: =?iso-8859-1?Q?=2A?= <[log in to unmask]>
Organization: [log in to unmask]
Subject: Re: Barb Patterson's award
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii; x-mac-type="54455854";
x-mac-creator="4D4F5353"
Content-Transfer-Encoding: 7bit
>
CONGRATULATIONS!!!! Barb P
I have ben mostly lurking lately, but,
would think it fantastic if you got
1,800 congratulatory messages
from the rest of us lurker learners.
Gotta go work on a sculpture (inspired by my wife):
a cast aluminum woman diving into water with
concentric waves rushing outward,
set into carved and polychromed wood table top.
Water is symbolic -- of the unknown
and the waves --of cause and effect.
The woman is brave.
I'll be thinking of you today when I work on it.
--
..........................................................................
Ray Strand
mailto:[log in to unmask]
48/47/45?
..........................................................................
...on the edge of the prairie abyss ......................
=========================================================================
Date: Sat, 13 May 2000 16:20:04 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Rick Everett <[log in to unmask]>
Subject: NEWBIE CONFUSION
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I am 49 and was diagnosed three months ago after seven years of symptoms. I,
understandably, need a fast info infusion. In particular I need some help
planning my financial future. I am self employed in a physically demanding
outdoor profession (land surveying) and am already running into problems
dealing with temperature extremes as well as rough terrain. The most
worrisome thing, though, is that my ability to drive is becoming
compromised. Since I live and practice in a rural area this is a big
problem.
I have disability insurance that pays if I can't meet my professional duties
but to make ends meet I would also need SSDI which has a higher qualifying
threshold. I've already figured out that this is different for each
individual but wondered if anyone has had experience with SSDI. In
particular, if it's patently obvious that you shouldn't be on the road and,
therefore, can't get to a job are you "unemployable"? Thanks.
=========================================================================
Date: Sat, 13 May 2000 22:55:52 +0100
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Roy Kelly <[log in to unmask]>
Subject: Neurological.
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
U.K.readers might like to be reminded that on Sunday 14 May ( tomorrow
as I write this ), there is a programme looking at neurological
conditions on CH4 at 8 pm.
It might be no good, or might be worth a look....nothing to
loose!!.....Roy.
=========================================================================
Date: Sat, 13 May 2000 15:05:23 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: NEWBIE CONFUSION
In-Reply-To: <005201bfbd18$b5f106c0$593f45cf@ms662464>
MIME-Version: 1.0
Content-type: text/plain; charset=ISO-8859-1
Content-transfer-encoding: Quoted-printable
On 13 May 2000, at 16:20, Rick Everett wrote:
> I am 49 and was diagnosed three months ago after seven years of symptoms=
. I,
> understandably, need a fast info infusion. In particular I need some hel=
p
> planning my financial future. I am self employed in a physically demandi=
ng
> outdoor profession (land surveying) and am already running into problems
> dealing with temperature extremes as well as rough terrain. The most
> worrisome thing, though, is that my ability to drive is becoming
> compromised. Since I live and practice in a rural area this is a big
> problem.
>
> I have disability insurance that pays if I can't meet my professional du=
ties
> but to make ends meet I would also need SSDI which has a higher qualifyi=
ng
> threshold. I've already figured out that this is different for each
> individual but wondered if anyone has had experience with SSDI. In
> particular, if it's patently obvious that you shouldn't be on the road a=
nd,
> therefore, can't get to a job are you "unemployable"? Thanks.
Hi Rick,
I'm a Canadian so I can't tell you much about SSDI but there is
someone on the List who may be of assistance... Contact
Greg Sterling <[log in to unmask]>
Now as far as driving..... Go to......
The Doctor's Guide - Global Edition....
The latest medical news and information for patients or friends/parents
of patients diagnosed with Parkinson's Disease.
=A0http://www.pslgroup.com/PARKINSON.HTM
DG DISPATCH - AAN: Parkinson's Patients at High Risk for Car Accidents
http://www.pslgroup.com/dg/1d0ae2.htm
It's a jungle out there......
The main thing is to not get overwhelmed by it all and trust me, that can
happen...
Here is a copy of a letter I posted in Jan. '98. I'm 2 years older
of course but these words still apply.
Posting number 36244, dated 16 Jan 1998 21:53:33
Subject: Re: Support Groups
Hi Virginia;
I'm a Parkinsonian who can identify with your letter. I had symptoms at
age 40, was finally diagnosed at age 49 and am 53 now. I too would like
to work until my maximum benefits kick in (at age 60).
I would like to offer the following to your friend:
I was not pleased with my first neurologist and tried others until I
was satisfied. I wondered how I would cope and one understanding
dr. advised me that in fact I had already been coping with all my
symptoms for more than a few years. This single conversation gave
me a different perspective and started me managing my Parkinson's
myself instead of looking for others to provide all the answers.
Parkinson's sneaks in slowly and even though you receive a diagnosis
and suddenly "have Parkinson's" it is just a name to apply to all
your symptoms. Nothing has really changed. Sure your Parkinson's
will eventually progress and of course you will have changes and
adaptations to make but it's not like a heart attack or stroke where
immediate intervention and changes are essential to life itself.
This means you do have some time to consider and manage these
changes. I work in one of the building trades. I am an elevator /
escalator mechanic. It took a few months for me to decide to tell
people or not tell people. Then I started with all of my family, the
union, my employer, friends, neighbors, and so on. Everyone was
supportive. I still work and I'm relieved that I am not hiding.
It is very important to find out everything you can about Parkinson's
because you will soon discover we are each unique individuals and since
you will only be seeing your neurologist once in a while you will need to
become the expert on your own case. This expertise will allow you to
manage your PD. and make the vital decisions facing you with a level of
confidence.
I didn't think I needed a support group but was talked into going to
the Early Onset Group locally to see what it was like. I soon
realized what a nice bunch of people most Parkinsonians are. They
all had something to offer and I realized I did too. I learned from
their experiences; from education meetings; from volunteering for
clinical studies in the Movement Disorder Clinic; from books; the
Internet; and now from this "List".
My best advice is that keeping busy and keeping a positive attitude
is better than all the drugs known to mankind. Yes, you will need
some drugs too.....but be informed enough to decide yourself (in
consultation with your professional medical practitioner of course)
when to start a regimen of drugs. Be informed and alert to any drug
related positives and negatives and/or side effects so you will be
able to consult and have a role in adjusting medication to suit you!
Be prepared whenever you meet with your dr. Make a list of your
feelings and your questions and participate actively. Don't leave
until you are satisfied you understand and agree with your
treatment.
I hope this is of some assistance.
If you need to ask.... anything goes on this List and someone of us
will surely respond.
I wish the best for your friends. Murray
.
**************************************************************************
That was more than 2 years ago... I still work, more than full time,
and I believe more than ever in keeping as busy as possible.
Rick, I wish all the best for you and all the new members ... murray
[log in to unmask]
View the Parkinson's Awareness Links at:
http://www.geocities.com/janet313/pienet/wwweb/index.html
=========================================================================
Date: Sat, 13 May 2000 15:14:08 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Too Busy to Answer E-Mail for a few Days...
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Hi All,
Just a quick note.... I'm working overtime, I just came from the
B.C. Parkinson's Disease AGM (the speaker was Dr. Donald Calne)
and my oldest daughter just called to tell me I'm a grandpa again...
Sooo ... if you're waiting for an e-mail response don't hold your breath...
I may just be too busy for day or two... murray
PS: I did get to address the AGM long enough to announce that
our own Barb Patterson had been selected Woman of the Year!
[log in to unmask]
=========================================================================
Date: Sat, 13 May 2000 23:36:16 +0100
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Roy Kelly <[log in to unmask]>
Subject: Neurology.
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
U.K. readers might like to watch a tv programme on CH4 this Sunday 14
May at 8 pm.
It is about neurological conditions.....might be useful to watch, might
be no good to us. Still I think it's worth a try....nothing to
loose..All the best...Roy.
=========================================================================
Date: Sat, 13 May 2000 18:39:39 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Too Busy to Answer E-Mail for a few Days...
Murray - Congratulations on your new grandchild. No matter how
many you have, there's always room in your heart for one more.
Looks like you HAVE been busy. Keep on learning as much as you can so
you can depart as much information as you can. Best
wishes, Jo Ann from Houston
=========================================================================
Date: Sat, 13 May 2000 15:43:50 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Drug Info - Apomorphine
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
On 13 May 2000, at 12:38, Irene Rosenthal wrote:
> could SOMEONE PLEASE TELL ME ABOUT APOMORPHINE
> thanks
> Irene
Hi Irene,
You could try janet's web site and the Links at...
http://www.geocities.com/janet313/pienet/wwweb/17.html
and search using the links there or...
Medscape has combined two of the best drug databases on the web into one
incredibly comprehensive resourse! Medscape's newly redesigned DrugInfo
database brings you the latest information from the National Drug Data
File from FirstDataBank, and the American Hospital Formulary Service Drug
Information reference from the American Society of Health-System
Pharmacists (ASHP). Find information on drug-drug and drug-food
interactions, uses and dosage, preparations, adverse effects, and four
other categories for every drug. Patient education handouts are even
available for printing and distributing at the time of prescription!
Check out Medscape DrugInfo today, at http://www.medscape.com/druginfo
[log in to unmask]
View the Parkinson's Awareness Links at:
http://www.geocities.com/janet313/pienet/wwweb/index.html
=========================================================================
Date: Sat, 13 May 2000 15:28:22 -0700
Reply-To: Constance Tate <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Constance Tate <[log in to unmask]>
Subject: Re: Too Busy to Answer E-Mail for a few Days...
Comments: cc: murray charters <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
hi murray
big congratulations !!! how many grandchildren do you now have?
we have 14 from 6 months to 22 years old and they are a delight at
any age. isn't it nice to see them when you want and be able to walk away
when things get hectic?
best to new baby and parents
also to you
connie
----- Original Message -----
From: Murray Charters <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, May 13, 2000 3:14 PM
Subject: Too Busy to Answer E-Mail for a few Days...
> Hi All,
> Just a quick note.... I'm working overtime, I just came from the
> B.C. Parkinson's Disease AGM (the speaker was Dr. Donald Calne)
> and my oldest daughter just called to tell me I'm a grandpa again...
>
> Sooo ... if you're waiting for an e-mail response don't hold your
breath...
>
> I may just be too busy for day or two... murray
>
> PS: I did get to address the AGM long enough to announce that
> our own Barb Patterson had been selected Woman of the Year!
> [log in to unmask]
>
=========================================================================
Date: Sat, 13 May 2000 21:48:38 -0400
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: chuck bulch <[log in to unmask]>
Subject: Re: Antidepressants
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Hi All;
Has anyone any information on Celexa, 20 mg (citalopram bromide).
I don't remember seeing anything on it, but that's just it I don't
remember a lot of things.
My MD has just prescribed it to replace the Luvox I've been taking which
made me sweat like a horse, but sweating might be preferable to what
might happen if I switch w/o knowing more about this medication.
Thanks in advance for any responses I get.
Marie
M. Marie McNeely
64/62/60???
=========================================================================
Date: Sat, 13 May 2000 20:20:14 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
Subject: Re: Too Busy to Answer E-Mail for a few Days...
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Murray! Congratulations -- on being a grandpa, and on speaking at the
AGM.
I heard Susan Calne speak at an NPF meeting in Las Vegas 2 years ago,
and was very impressed; but I prefer to hear you any day!
I've been hoping to be a grandma for years, but so far no cooperation
from my son, drat.
Best regards,
Kathrynne
Murray Charters wrote:
>
> Hi All,
> Just a quick note.... I'm working overtime, I just came from the
> B.C. Parkinson's Disease AGM (the speaker was Dr. Donald Calne)
> and my oldest daughter just called to tell me I'm a grandpa again...
>
> Sooo ... if you're waiting for an e-mail response don't hold your breath...
>
> I may just be too busy for day or two... murray
>
> PS: I did get to address the AGM long enough to announce that
> our own Barb Patterson had been selected Woman of the Year!
> [log in to unmask]
--
Kathrynne Holden, MS, RD
Medical nutrition therapy for Parkinson's disease
Author: "Eat well, stay well with Parkinson's disease"
"Parkinson's disease: interview and assessment tools for nutrition
professionals"
"Risk for malnutrition and bone fracture in Parkinson'sdisease," J Nutr
Elderly. V18:3;1999.
http://www.nutritionucanlivewith.com/
=========================================================================
Date: Sat, 13 May 2000 23:22:09 -0400
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Cathy Morse <[log in to unmask]>
Subject: Re: Too Busy to Answer E-Mail for a few Days...
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
congratulations Murray! Are you a little girl or little boy grandpa?
Either way it's just terrific.
Please forgive my ignorance, but what is the AGM? sounds impressive. Whenever
you have lots of time; I can wait for an answer.
Cathy
Murray Charters wrote:
> Hi All,
> Just a quick note.... I'm working overtime, I just came from the
> B.C. Parkinson's Disease AGM (the speaker was Dr. Donald Calne)
> and my oldest daughter just called to tell me I'm a grandpa again...
>
> Sooo ... if you're waiting for an e-mail response don't hold your breath...
>
> I may just be too busy for day or two... murray
>
> PS: I did get to address the AGM long enough to announce that
> our own Barb Patterson had been selected Woman of the Year!
> [log in to unmask]
=========================================================================
Date: Sun, 14 May 2000 00:29:25 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Judith Richards <[log in to unmask]>
Organization: @Home Network
Subject: NEWS-New Imaging Agent for Pksns/ADHD developed
MIME-Version: 1.0
Content-Type: text/plain; charset=iso-8859-1
Content-Transfer-Encoding: 8bit
Boston Life Sciences Files for ADHD Screen
WASHINGTON, May 12, 2000 (Reuters) - A company that has developed a new
imaging agent for Parkinson's disease and attention deficit
hyperactivity disorder (ADHD) said on Friday it had asked the Food and
Drug Administration for permission to test it on people.
Boston Life Sciences, Inc. said it had filed an investigational new drug
(IND) application with the FDA to allow it to run clinical trials of
Fluoratec, its ``second generation'' brain imaging agent.
Fluoratec shows up irregularities in the way the brain uses dopamine, an
important neurotransmitter or message-carrying chemical.
It uses technetium, which emits gamma rays that nuclear medicine single
positron emission computer tomography (SPECT) cameras can detect. The
company's other imaging agent, Altropane, uses iodine.
Altropane is in clinical studies to test its efficacy in helping
diagnose Parkinson's and ADHD, but the company says Fluoratec may be
even better.
``The images obtained in primates appear to be at least as good as those
obtained with Altropane,'' it said in a statement.
``We hope to obtain our first human images in a Phase I/II study within
the next couple of months,'' Dr. Marc Lanser, chief scientific officer
of BLSI, said in a statement.
``If the human images are of comparable quality to those obtained with
Altropane, we will press forward with the full-scale clinical
development program for this exciting compound.''
ADHD affects as many as 5.5 million U.S. children. Parkinson's disease
is a chronic, progressive deterioration of certain brain cells that
affects one million Americans.
Copyright © 2000 Reuters Limited.
--
Judith Richards, London, Ontario, Canada
[log in to unmask]
Today’s Research...
Tomorrow’s Cure
=========================================================================
Date: Sun, 14 May 2000 00:41:58 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Too Busy to Answer E-Mail for a few Days...
Kathrynne - Don't give up. The time may come when you will become a
grandmother. It's a wonderful feeling. Best wishes,
Jo Ann from Houston
=========================================================================
Date: Sun, 14 May 2000 02:02:09 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Hilary Blue <[log in to unmask]>
Subject: Re: NEWBIE CONFUSION
MIME-Version: 1.0
Content-Type: text/plain; charset=iso-8859-1
Content-Transfer-Encoding: quoted-printable
Rick,
Murray has given you a wonderful intronduction to the world of the young =
onset
pwp - i wish he had been there 27 years ago when i was 24 and experiencin=
g my
first symptoms. :ANd Even more so when i was finally diagnosed 9 years l=
ater.
ANd i am really grateful for his support now that i am going through a wh=
ole
new bunch of changes some directly and others indirectly connected with P=
D. =
About a year ago , i founded a support group through the CCNPF at my loca=
l
library with the express purpose of being a kind of action group for youn=
g
onset pwps(yoppers) We are a small dynamic group - usually about 6 - 10 =
at a
meeting, although we have 15 or so members. My credo, which is what i us=
ed as
the basis for this group, is that we as yoppers face a large number of
problems which are different forom those of the older onset pwps, and as =
such
haave to look at our present and our future quite differently. YOu have
already established some of these differences 1. work
2. insurance
3. ability to drive
4. quality of medical care
1. work - is there wome sort of variation of your job that you could do f=
rom
an office - or even from your own home. Being able to work is very import=
anmt
for one's own self image - if you are financially secure, you might look =
into
volunteering - e.g. teaching at your local school, or helping out at a
library........ =
2 Insurance - many on the list will tell you that this is very difficult =
to
obtain - Medicaid that i s- but once you have social seucrityi, it follow=
s
automatically - the problemm is to quallify for some sort of social secur=
ity
or ssdi. I suggest you read my post about how i got ssdi, which i will se=
nd
you under separte cover - it is quite an art and a skill combined! BUt y=
ou
need to be pretty disabled to qualify. ANd as i said before , for your ow=
n
self esesteemk, it may be worth it to toon working at a desk job for a wh=
ile.
you dopnt mention if you are married, or have children.. it is very impor=
tant
to maintain the love , respect and understanding of family members. ANd
sometimes not possible - divorces are frequent unfortunately - the young
spouse is just not ready to take on the responsiblity of caregiver that t=
he
older spouse has cvome to see as a nescessary part of livingand so yoper=
s
often find themslelves in the position of having no caregiver - as some o=
f us
can testify. I n my case, a single mohther,my children were placed in fos=
ter
care. a verybsore point ini thesse early hours of Mother's day ANd chil=
dren =
have to learn to respect their parents, even when they move selowly , or
shake, or wag their heads and limbs.
Where do you live" OUr group has been to the stae capital to lobby the st=
ate
legislature to become aweare of pd and to bring about some changesfor the=
individials livng in this state. I made the poijnt that the federal govt =
is
there for isssiues, but the state gove deals withi real peoople. Have you=
i
s;oken to your repreesentativees.
And are you registered to aome to the PAH FOrun in Wash DC this yeare. I=
strongly suggest that you do - hoou will meet many piiople like youirself=
, and
you will learn possigle solutiions, and ghear many ideas that will make l=
ife
much easier for you and alll pwps. l YOu have ad a positive start being=
concerned about your future - no come and share that energy with otheres =
ini
the same boaot.
sincehely
HIlary Blue.
Murray Charters wrote:
> =
> On 13 May 2000, at 16:20, Rick Everett wrote:
> =
> > I am 49 and was diagnosed three months ago after seven years of sympt=
oms. I,
> > understandably, need a fast info infusion. In particular I need some =
help
> > planning my financial future. I am self employed in a physically dema=
nding
> > outdoor profession (land surveying) and am already running into probl=
ems
> > dealing with temperature extremes as well as rough terrain. The most
> > worrisome thing, though, is that my ability to drive is becoming
> > compromised. Since I live and practice in a rural area this is a big
> > problem.
> >
> > I have disability insurance that pays if I can't meet my professional=
duties
> > but to make ends meet I would also need SSDI which has a higher quali=
fying
> > threshold. I've already figured out that this is different for each
> > individual but wondered if anyone has had experience with SSDI. In
> > particular, if it's patently obvious that you shouldn't be on the roa=
d and,
> > therefore, can't get to a job are you "unemployable"? Thanks.
> =
> Hi Rick,
> I'm a Canadian so I can't tell you much about SSDI but there is
> someone on the List who may be of assistance... Contact
> Greg Sterling <[log in to unmask]>
> =
> Now as far as driving..... Go to......
> =
> The Doctor's Guide - Global Edition....
> The latest medical news and information for patients or friends/parents=
> of patients diagnosed with Parkinson's Disease.
> =A0http://www.pslgroup.com/PARKINSON.HTM
> =
> DG DISPATCH - AAN: Parkinson's Patients at High Risk for Car Accidents
> http://www.pslgroup.com/dg/1d0ae2.htm
> =
> It's a jungle out there......
> =
> The main thing is to not get overwhelmed by it all and trust me, that c=
an
> happen...
> =
> Here is a copy of a letter I posted in Jan. '98. I'm 2 years older
> of course but these words still apply.
> =
> Posting number 36244, dated 16 Jan 1998 21:53:33
> Subject: Re: Support Groups
> =
> Hi Virginia;
> I'm a Parkinsonian who can identify with your letter. I had symptoms a=
t
> age 40, was finally diagnosed at age 49 and am 53 now. I too would lik=
e
> to work until my maximum benefits kick in (at age 60).
> =
> I would like to offer the following to your friend:
> =
> I was not pleased with my first neurologist and tried others until I
> was satisfied. I wondered how I would cope and one understanding
> dr. advised me that in fact I had already been coping with all my
> symptoms for more than a few years. This single conversation gave
> me a different perspective and started me managing my Parkinson's
> myself instead of looking for others to provide all the answers.
> =
> Parkinson's sneaks in slowly and even though you receive a diagnosis
> and suddenly "have Parkinson's" it is just a name to apply to all
> your symptoms. Nothing has really changed. Sure your Parkinson's
> will eventually progress and of course you will have changes and
> adaptations to make but it's not like a heart attack or stroke where
> immediate intervention and changes are essential to life itself.
> =
> This means you do have some time to consider and manage these
> changes. I work in one of the building trades. I am an elevator /
> escalator mechanic. It took a few months for me to decide to tell
> people or not tell people. Then I started with all of my family, the
> union, my employer, friends, neighbors, and so on. Everyone was
> supportive. I still work and I'm relieved that I am not hiding.
> =
> It is very important to find out everything you can about Parkinson's
> because you will soon discover we are each unique individuals and since=
> you will only be seeing your neurologist once in a while you will need =
to
> become the expert on your own case. This expertise will allow you to
> manage your PD. and make the vital decisions facing you with a level o=
f
> confidence.
> =
> I didn't think I needed a support group but was talked into going to
> the Early Onset Group locally to see what it was like. I soon
> realized what a nice bunch of people most Parkinsonians are. They
> all had something to offer and I realized I did too. I learned from
> their experiences; from education meetings; from volunteering for
> clinical studies in the Movement Disorder Clinic; from books; the
> Internet; and now from this "List".
> =
> My best advice is that keeping busy and keeping a positive attitude
> is better than all the drugs known to mankind. Yes, you will need
> some drugs too.....but be informed enough to decide yourself (in
> consultation with your professional medical practitioner of course)
> when to start a regimen of drugs. Be informed and alert to any drug
> related positives and negatives and/or side effects so you will be
> able to consult and have a role in adjusting medication to suit you!
> =
> Be prepared whenever you meet with your dr. Make a list of your
> feelings and your questions and participate actively. Don't leave
> until you are satisfied you understand and agree with your
> treatment.
> =
> I hope this is of some assistance.
> =
> If you need to ask.... anything goes on this List and someone of us
> will surely respond.
> =
> I wish the best for your friends. Murray
> .
> ***********************************************************************=
***
> =
> That was more than 2 years ago... I still work, more than full time,
> and I believe more than ever in keeping as busy as possible.
> =
> Rick, I wish all the best for you and all the new members ... murray
> =
> [log in to unmask]
> =
> View the Parkinson's Awareness Links at:
> http://www.geocities.com/janet313/pienet/wwweb/index.html
=========================================================================
Date: Sun, 14 May 2000 03:31:04 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: QT: mistakes
Comments: cc: [log in to unmask]
Mime-Version: 1.0
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freedom is not worth having
if it does not include the freedom to make mistakes
mahatma gandhi
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Sun, 14 May 2000 00:41:36 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Step Therapy - Was: Re: PD & 3am
In-Reply-To: <008201bfbc09$ce33ebe0$4ee8b3d1@oemcomputer>
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On 12 May 2000, at 5:01, Joan Hartman wrote:
> >>While this proved false, I still
> >>continued the therapy for loss of balance for several years off
> >>and on...
>
> Murray....you wrote the above....what was your therapy for balance as that
> is a problem for me at times....Joan Hartman
>
Hi Joan,
The first therapy I did was to counter sudden unexplained falls
which occurred without warning, usually on level surfaces, usually
when initiating stride forward from a standstill. These falls were due
to me moving forward but my feet staying glued to the spot.
I fell unexpectedly a dozen times a month prior to therapy and was
thought to have MS. A visit to a neuro and an MRI indicated this was
not the case but left the falls an unexplained event. The MS therapy
seemed to help so I kept at it.
First I "walked" in slow motion... Pick up 1 foot, hold, move it forward, hold,
put that foot down, hold, transfer weight to equal on both feet, hold, pick
up the rear foot, hold, stride through, etc. This therapy involved stepping
over lines painted on the concrete. Then I moved to what I call
"step therapy"
The therapy was stepping onto an object and stepping off on the
other side. The first raised object was a 1" plywood square 12" x 12".
The idea was to get me to consciously pick up my feet, consciously
transfer my weight, and balance in between in a slow motion. The
progression was to bigger "objects" (2" plank; 3" plank; and combinations
up to a 7" step) Much like today's Reabok Steps but not quite as classy.
When I was stepping and balancing on a 7" step the therapy moved to
stairs.
Then I took ballroom dance lessons. The theory here was that dance
lessons require balanced weight transfer, offer mild activity, and are
not boring. I have only fallen a few times in the ten years since I started
dance lessons. I also was confident enough to resume the field duties
of my job where I still work today. (The company had allowed me to
work in the office as a supervisor for 7 years while I was getting my act
together).
I hope you find something worthwhile in this.... murray
[log in to unmask]
View the Parkinson's Awareness Links at:
http://www.geocities.com/janet313/pienet/wwweb/index.html
=========================================================================
Date: Sun, 14 May 2000 00:41:42 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: Drug Info - Apomorphine
In-Reply-To: <391D7836.17523.4264225@localhost>
MIME-Version: 1.0
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> On 13 May 2000, at 12:38, Irene Rosenthal wrote:
> > could SOMEONE PLEASE TELL ME ABOUT APOMORPHINE
> > thanks
> > Irene
>
Hi Irene,
Sorry, but it's not on the formulary lists and doesn't appear in the drug
databases.... So ignore my post on trying those... Try this instead...
http://apomorphine.org/
All the best ........ murray
On 13 May 2000, at 15:43, Murray Charters wrote:
> Hi Irene,
> You could try janet's web site and the Links at...
>
> http://www.geocities.com/janet313/pienet/wwweb/17.html
>
> and search using the links there or...
>
> Medscape has combined two of the best drug databases on the web into one
> incredibly comprehensive resourse! Medscape's newly redesigned DrugInfo
> database brings you the latest information from the National Drug Data
> File from FirstDataBank, and the American Hospital Formulary Service Drug
> Information reference from the American Society of Health-System
> Pharmacists (ASHP). Find information on drug-drug and drug-food
> interactions, uses and dosage, preparations, adverse effects, and four
> other categories for every drug. Patient education handouts are even
> available for printing and distributing at the time of prescription!
> Check out Medscape DrugInfo today, at http://www.medscape.com/druginfo
>
[log in to unmask]
View the Parkinson's Awareness Links at:
http://www.geocities.com/janet313/pienet/wwweb/index.html
=========================================================================
Date: Sun, 14 May 2000 00:41:38 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: 3 am
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
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On 12 May 2000, at 18:21, Beverly Forte wrote: (in part)
How many of us were night owls before our illness?
Hi Beverly,
Which came first? The chicken or the eggg??
I've always been a morning person - born on a farm - rose at 5AM
with my dad to do chores - first one on the jobsite every morning
in my adult life... The manager where I worked came in one morning
around 7AM and caught me making coffee and starting my daily
routine. Surprized, he said "How come you're here so early?"
I'm not early was my response. He looked at his watch, checked
the clock and said "What do you mean you're not early? It's not
quite 7AM." I'm not early I said, I'm here every day at 7AM. It's
the first time I've ever seen you before 8 tho!
I've never slept more than 5 - 6 hours in my adult life so 11:30
to midnite is my normal (usual?) bedtime, always has been.
I still rise early. The difference in the last ten years is that I now
seldom sleep more than 2 or 3 hours at a stretch and am often
up prowling wide awake in the middle of the night. Like you I
find this a great time for creativity.
So I would have to say my night owl habits came as part of PD...
All the best ...... murray
On 12 May 2000, at 18:21, Beverly Forte wrote:
I have been taking PD meds for 9 years (now age 49) for mainly stiffness. I
take my last night meds (sinemet and sinemet cr and Mirapex about 10pm. I am
a natural night owl, way before my illness. I am often up til 2am sometimes
later. I seem to have almost perfect flexibility, clarity of thought, and
creatively. I am a psychologist now working as a writer. I fee so good this
time of night I don't want to go to bed and lose the time...I get up about
6am to take meds and go back to bed so that I'll be flexible when I get up
about 7 am because of my work demands (although I am blessed to have a 10
second commute to my home office). I'm usualy very very rigid when I wake up
but can get up enough to take meds and sleep another hour.
I'm sleepy during the day some and take power naps which recharge me. In
recent years, energy has not been a problem.
I've figure out that my alert cycle is about 6 hours off my day/nights in
Texas. Guess I could straighten that out by moving to Hawaii!!!
How many of us were night owls before our illness?
I would love to chat with some of you late at night because there is
generally no one to call that late!
Beverly
Hi again,
The computer I use is relatively antiquated and doesn't permit
chat software capabilities.... Maybe when I upgrade...
regards ... murray
[log in to unmask]
View the Parkinson's Awareness Links at:
http://www.geocities.com/janet313/pienet/wwweb/index.html
=========================================================================
Date: Sun, 14 May 2000 00:41:41 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: Antidepressants
Comments: cc: [log in to unmask]
In-Reply-To: <[log in to unmask]>
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On 13 May 2000, at 21:48, chuck bulch wrote:
> Hi All;
>
> Has anyone any information on Celexa, 20 mg (citalopram bromide).
> I don't remember seeing anything on it, but that's just it I don't
> remember a lot of things.
> My MD has just prescribed it to replace the Luvox I've been taking which
> made me sweat like a horse, but sweating might be preferable to what
> might happen if I switch w/o knowing more about this medication.
>
> Thanks in advance for any responses I get.
>
> Marie
>
> M. Marie McNeely
> 64/62/60???
Hi Marie,
You could try janet's web site and the Links at...
http://www.geocities.com/janet313/pienet/wwweb/17.html
and search using the links there or...
Medscape has combined two of the best drug databases on the web into one
incredibly comprehensive resourse! Medscape's newly redesigned DrugInfo
database brings you the latest information from the National Drug Data
File from FirstDataBank, and the American Hospital Formulary Service Drug
Information reference from the American Society of Health-System
Pharmacists (ASHP). Find information on drug-drug and drug-food
interactions, uses and dosage, preparations, adverse effects, and four
other categories for every drug. Patient education handouts are even
available for printing and distributing at the time of prescription! Check
out Medscape DrugInfo today, at http://www.medscape.com/druginfo
Medscape has this patient handout....
CITALOPRAM HYDROBROMIDE ORAL
Patient Handout IMPORTANT NOTE: THE FOLLOWING INFORMATION IS INTENDED TO
SUPPLEMENT, NOT SUBSTITUTE FOR, THE EXPERTISE AND JUDGMENT OF YOUR
PHYSICIAN, PHARMACIST OR OTHER HEALTHCARE PROFESSIONAL. IT SHOULD NOT BE
CONSTRUED TO INDICATE THAT USE OF THE DRUG IS SAFE, APPROPRIATE, OR
EFFECTIVE FOR YOU. CONSULT YOUR HEALTHCARE PROFESSIONAL BEFORE USING
THIS DRUG.
CITALOPRAM - ORAL
(sye-TAL-oh-pram)
COMMON BRAND NAME(S): Celexa
USES: This medication is used to treat depression.
HOW TO USE THIS MEDICATION: Take this product by mouth, generally once daily with or
without food. Try to take it at the same time each day so you will remember to take it. Dosage
is adjusted based on age, response to treatment and other medical conditions. It may take
several weeks for the full effect of this medication to occur. Do not stop taking this medication or
change the dose without first consulting your doctor or pharmacist.
SIDE EFFECTS: Dizziness, drowsiness, trouble sleeping, dry mouth, nausea, diarrhea,
increased sweating, headache, and may occur the first several days as your body adjusts to the
medication. If these effects persist or worsen, notify your doctor. Report promptly mental/mood
changes, tremors or changes in sexual desire or ability. Unlikely but report promptly muscle
restlessness, stiffness or weakness, fever, rash or muscle/joint pain. Very unlikely but report
promptly swelling of hands, feet or face or change in amount of urine. If you notice other effects
not listed above, contact your doctor or pharmacist.
PRECAUTIONS: Tell your doctor your medical history, including any allergies, seizures, other
mental conditions (e.g, bipolar disorder), liver or kidney disease. Use caution when performing
tasks that require alertness (e.g., driving) until you know how you react to this medication. To
avoid dizziness and lightheadedness when rising from a seated position, get up slowly. Ask your
doctor or pharmacist about the use of alcohol before using this medication. This medication
should be used only when clearly needed during pregnancy. Discuss the risks and benefits with
your doctor. This drug is excreted into breast milk. Because of the potential risk to the infant,
breast-feeding while using this drug is not recommended. Consult your doctor before breast-
feeding. Caution is advised when this drug is used in the elderly, as they may be more sensitive
to the side effects of this product.
DRUG INTERACTIONS: Tell your doctor of all nonprescription and prescription medication you
may use, especially MAO inhibitors (e.g., furazolidone, selegiline, tranylcypromine, phenelzine,
moclobemide), cimetidine, lithium, metoprolol, and drugs that may cause drowsiness, such as
anti-anxiety or anti-seizure drugs, sedatives, tranquilizers, narcotic pain relievers (e.g., codeine),
tramadol, other psychiatric medications (e.g, venlafaxine, nefazodone, tricyclic antidepressants
such as amitriptyline, SSRIs such as fluoxetine), or certain antihistamines (e.g.,
diphenhydramine), which are also found in many cough-and-cold products. Also report drugs for
migraines (e.g., "triptans" such as sumatriptan, or ergot drugs) or for weight loss (e.g.,
sibutramine, dexfenfluramine). If you are currently taking an MAO inhibitor, wait at least 14 days
between discontinuing the MAO inhibitor and starting therapy with this drug, or vice versa.
Consult your doctor or pharmacist. Do not start or stop any medicine without doctor or
pharmacist approval.
NOTES: Do not share this medication with others.
MISSED DOSE: If you miss a dose, use it as soon as you remember. If it is near the time of
the next dose, skip the missed dose and resume your usual dosing schedule. Do not "double-
up" the dose to catch up.
STORAGE: Store at room temperature of 59 to 86 degrees F (15-30 degrees C) away from light
and moisture.
[log in to unmask]
View the Parkinson's Awareness Links at:
http://www.geocities.com/janet313/pienet/wwweb/index.html
=========================================================================
Date: Sun, 14 May 2000 00:41:45 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: Too Busy to Answer E-Mail for a few Days...
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
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On 13 May 2000, at 18:39, Jo Ann Coen wrote:
> Murray - Congratulations on your new grandchild. No matter how
> many you have, there's always room in your heart for one more.
> Looks like you HAVE been busy. Keep on learning as much as you can so
> you can depart as much information as you can. Best
> wishes, Jo Ann from Houston
Hi Jo Ann, Kathrynne, Connie, Cathy, & All,
A few days goes by quick when you're havin' fun....
This is my 3rd. grandchild, all granddaughters, 5lbs.15oz.
Thanks for all the best wishes..... murray
[log in to unmask]
=========================================================================
Date: Sun, 14 May 2000 00:41:35 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: Parkinson's Web Sites
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
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On 12 May 2000, at 20:30, Benjamin Winter wrote:
> > I couldn't connect to the FAQ site - could you check the
> URL?
> > http://etb.ninds.nih.gov/PDFAQ.html
>
>
> Five minutes ago, I connected this URL with no problems.
>
> Ben
Hi Ben,
You're right! They deny this site exists, (but I knew it usedta) and
now it appears restored.
All the best ......... murray
On 20 Apr 2000, at 16:09, Nicholson, Brian (NINDS) wrote:
> Mr. Murray,
>
> I didn't know that the Experimental Therapeutics Branch had a web site
> separate from http://intra.ninds.nih.gov/ You will need to check with the
> branch's chief, Dr. Chase, and ask him about it. His contact information is
> below:
>
SNIP
I wrote... he didn't reply... the sites back anyway...
[log in to unmask]
=========================================================================
Date: Sun, 14 May 2000 03:59:28 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Newbie Confusion: A Chorus of Replies [neatened]
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
[hi all
wow - this one is going on the 'bus' in the 'newbie' section!
janet]
Rick,
Murray has given you a wonderful intronduction to the world of the young onset
pwp - I wish he had been there 27 years ago when I was 24 and experiencing my
first symptoms, and even more so when I was finally diagnosed 9 years later.
And I am really grateful for his support now that I am going through a whole
new bunch of changes, some directly and others indirectly, connected with PD.
About a year ago, I founded a support group through the CCNPF at my local
library with the express purpose of being a kind of action group for Young
Onset People with Parkinson's (Yoppers) We are a small dynamic group - usually
about 6 - 10 at a meeting, although we have 15 or so members. My credo, which
is what I used as the basis for this group, is that we as Yoppers face a large
number of problems which are different forom those of the older onset PWP's, and
as such have to look at our present and our future quite differently.
You have already established some of these differences:
1. work
2. insurance
3. ability to drive
4. quality of medical care
1. Work - is there wome sort of variation of your job that you could do from
an office - or even from your own home. Being able to work is very important
for one's own self image - if you are financially secure, you might look into
volunteering - e.g. teaching at your local school, or helping out at a library...
2 Insurance - many on the list will tell you that this is very difficult to
obtain - Medicaid that is - but once you have social security, it follows
automatically - the problem is to qualify for some sort of social security
or SSDI. I suggest you read my post about how I got SSDI, which i will send
you under separate cover - it is quite an art and a skill combined! But you
need to be pretty disabled to qualify. And as I said before, for your own
self esteem, it may be worth it to try working at a desk job for a while.
You don't mention if you are married, or have children. It is very important
to maintain the love, respect and understanding of family members. And sometimes
not possible - divorces are frequent unfortunately - the young spouse is just not
ready to take on the responsiblity of caregiver that the older spouse has come
to see as a nescessary part of living and so Yoppers often find themselves in
the position of having no caregiver - as some of us can testify. In my case,
a single mother, my children were placed in foster care. a very sore point in
these early hours of Mother's Day. And children have to learn to respect their
parents, even when they move slowly, or shake, or wag their heads and limbs.
Where do you live? Our group has been to the state capital to lobby the state
legislature to become aware of pd and to bring about some changes for the
individuals livng in this state. I made the point that the federal gov't is
there for issues, but the state gov't deals with real people. Have you
spoken to your representatives?
And are you registered to come to the PAN Forum in Washington DC this year?
I strongly suggest that you do - you will meet many people like yourself, and
you will learn possible solutiions, and hear many ideas that will make life
much easier for you and all PWPs. You have had a positive start being
concerned about your future - so come and share that energy with others in
the same boat.
Sincerely,
Hilary Blue
Murray Charters wrote:
> On 13 May 2000, at 16:20, Rick Everett wrote:
>> I am 49 and was diagnosed three months ago after seven years of symptoms.
>> I, understandably, need a fast info infusion. In particular I need some
>> help planning my financial future. I am self employed in a physically
>> demanding outdoor profession (land surveying) and am already running into
>> problems dealing with temperature extremes as well as rough terrain. The
>> most worrisome thing, though, is that my ability to drive is becoming
>> compromised. Since I live and practice in a rural area this is a big
>> problem.
>>
>> I have disability insurance that pays if I can't meet my professional
>> duties but to make ends meet I would also need SSDI which has a higher
>> qualifying threshold. I've already figured out that this is different
>> for each individual but wondered if anyone has had experience with SSDI.
>> In particular, if it's patently obvious that you shouldn't be on the road
>> and, therefore, can't get to a job are you "unemployable"? Thanks.
>
> Hi Rick,
>
> I'm a Canadian so I can't tell you much about SSDI but there is
> someone on the List who may be of assistance... Contact
> Greg Sterling <[log in to unmask]>
>
> Now as far as driving..... Go to......
> The Doctor's Guide - Global Edition....
> The latest medical news and information for patients or friends/parents
> of patients diagnosed with Parkinson's Disease.
> http://www.pslgroup.com/PARKINSON.HTM
>
> DG DISPATCH - AAN: Parkinson's Patients at High Risk for Car Accidents
> http://www.pslgroup.com/dg/1d0ae2.htm
>
> It's a jungle out there......
> The main thing is to not get overwhelmed by it all and trust me, that can
> happen...
>
> Here is a copy of a letter I posted in Jan. '98. I'm 2 years older
> of course but these words still apply.
>
>======================================================================
> Post: 036244
> Date: 16 Jan 1998
> Subj: Re: Support Groups
>----------------------------------------------------------------------
>
> Hi Virginia;
>
> I'm a Parkinsonian who can identify with your letter. I had symptoms at
> age 40, was finally diagnosed at age 49 and am 53 now. I too would like
> to work until my maximum benefits kick in (at age 60).
>
> I would like to offer the following to your friend:
>
> I was not pleased with my first neurologist and tried others until I
> was satisfied. I wondered how I would cope and one understanding
> dr. advised me that in fact I had already been coping with all my
> symptoms for more than a few years. This single conversation gave
> me a different perspective and started me managing my Parkinson's
> myself instead of looking for others to provide all the answers.
>
> Parkinson's sneaks in slowly and even though you receive a diagnosis
> and suddenly "have Parkinson's" it is just a name to apply to all
> your symptoms. Nothing has really changed. Sure your Parkinson's
> will eventually progress and of course you will have changes and
> adaptations to make but it's not like a heart attack or stroke where
> immediate intervention and changes are essential to life itself.
>
> This means you do have some time to consider and manage these
> changes. I work in one of the building trades. I am an elevator /
> escalator mechanic. It took a few months for me to decide to tell
> people or not tell people. Then I started with all of my family, the
> union, my employer, friends, neighbors, and so on. Everyone was
> supportive. I still work and I'm relieved that I am not hiding.
>
> It is very important to find out everything you can about Parkinson's
> because you will soon discover we are each unique individuals and since
> you will only be seeing your neurologist once in a while you will need to
> become the expert on your own case. This expertise will allow you to
> manage your PD. and make the vital decisions facing you with a level of
> confidence.
>
> I didn't think I needed a support group but was talked into going to
> the Early Onset Group locally to see what it was like. I soon
> realized what a nice bunch of people most Parkinsonians are. They
> all had something to offer and I realized I did too. I learned from
> their experiences; from education meetings; from volunteering for
> clinical studies in the Movement Disorder Clinic; from books; the
> Internet; and now from this "List".
>
> My best advice is that keeping busy and keeping a positive attitude
> is better than all the drugs known to mankind. Yes, you will need
> some drugs too.....but be informed enough to decide yourself (in
> consultation with your professional medical practitioner of course)
> when to start a regimen of drugs. Be informed and alert to any drug
> related positives and negatives and/or side effects so you will be
> able to consult and have a role in adjusting medication to suit you!
>
> Be prepared whenever you meet with your dr. Make a list of your
> feelings and your questions and participate actively. Don't leave
> until you are satisfied you understand and agree with your
> treatment.
>
> I hope this is of some assistance.
>
> If you need to ask.... anything goes on this List and someone of us
> will surely respond.
>
> I wish the best for your friends. Murray
>======================================================================
>
> That was more than 2 years ago... I still work, more than full time,
> and I believe more than ever in keeping as busy as possible.
>
> Rick, I wish all the best for you and all the new members ... murray
>
> View the Parkinson's Awareness Links at:
> http://www.geocities.com/janet313/pienet/wwweb/index.html
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Sun, 14 May 2000 03:11:11 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Joan Hartman <[log in to unmask]>
Subject: Re: Step Therapy - Was: Re: PD & 3am
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Murray.....Congratulations on your new grandchild and thank you for taking
the time to write back on the balance therapy and Yes...it is ALL worthwhile
and helpful...........Joan Hartman
----- Original Message -----
From: Murray Charters <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, May 14, 2000 12:41 AM
Subject: Step Therapy - Was: Re: PD & 3am
> On 12 May 2000, at 5:01, Joan Hartman wrote:
> > >>While this proved false, I still
> > >>continued the therapy for loss of balance for several years off
> > >>and on...
> >
> > Murray....you wrote the above....what was your therapy for balance as
that
> > is a problem for me at times....Joan Hartman
> >
>
> Hi Joan,
> The first therapy I did was to counter sudden unexplained falls
> which occurred without warning, usually on level surfaces, usually
> when initiating stride forward from a standstill. These falls were due
> to me moving forward but my feet staying glued to the spot.
>
> I fell unexpectedly a dozen times a month prior to therapy and was
> thought to have MS. A visit to a neuro and an MRI indicated this was
> not the case but left the falls an unexplained event. The MS therapy
> seemed to help so I kept at it.
>
> First I "walked" in slow motion... Pick up 1 foot, hold, move it forward,
hold,
> put that foot down, hold, transfer weight to equal on both feet, hold,
pick
> up the rear foot, hold, stride through, etc. This therapy involved
stepping
> over lines painted on the concrete. Then I moved to what I call
> "step therapy"
>
> The therapy was stepping onto an object and stepping off on the
> other side. The first raised object was a 1" plywood square 12" x 12".
> The idea was to get me to consciously pick up my feet, consciously
> transfer my weight, and balance in between in a slow motion. The
> progression was to bigger "objects" (2" plank; 3" plank; and combinations
> up to a 7" step) Much like today's Reabok Steps but not quite as classy.
> When I was stepping and balancing on a 7" step the therapy moved to
> stairs.
>
> Then I took ballroom dance lessons. The theory here was that dance
> lessons require balanced weight transfer, offer mild activity, and are
> not boring. I have only fallen a few times in the ten years since I
started
> dance lessons. I also was confident enough to resume the field duties
> of my job where I still work today. (The company had allowed me to
> work in the office as a supervisor for 7 years while I was getting my act
> together).
>
> I hope you find something worthwhile in this.... murray
>
>
> [log in to unmask]
>
> View the Parkinson's Awareness Links at:
> http://www.geocities.com/janet313/pienet/wwweb/index.html
>
=========================================================================
Date: Sun, 14 May 2000 05:43:56 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: doublea <[log in to unmask]>
Subject: Re: non pd - 3am and too busy
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Congrats on the new grandchild Murray, and I was glad to see I wasn't the
only one awake this morning. Breakfast at my house today - I will serve
juevos rancheros, and all the diet coke you can drink, hurry and place your
orders
bob aka tex
ps if barb wants, i will even throw in some baskin robbins for dessert
=========================================================================
Date: Sun, 14 May 2000 08:17:29 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bonnie Rowley <[log in to unmask]>
Subject: Re: Too Busy to Answer E-Mail for a few Days...
MIME-Version: 1.0
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Congrats on all accounts, grandpa.
BTW, no need to reply. :-)
Bonnie
daughter of Jim 77/72
* * *
Live well * Laugh often * Love much
Join SPARKLE
[log in to unmask]
In a message dated 5/13/00 6:23:16 PM Eastern Daylight Time,
[log in to unmask] writes:
> Hi All,
> Just a quick note.... I'm working overtime, I just came from the
> B.C. Parkinson's Disease AGM (the speaker was Dr. Donald Calne)
> and my oldest daughter just called to tell me I'm a grandpa again...
>
> Sooo ... if you're waiting for an e-mail response don't hold your breath...
>
> I may just be too busy for day or two... murray
>
> PS: I did get to address the AGM long enough to announce that
> our own Barb Patterson had been selected Woman of the Year!
> [log in to unmask]
>
=========================================================================
Date: Sun, 14 May 2000 09:41:17 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Hilary Blue <[log in to unmask]>
Subject: Re: Feedback on Medication
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Fran,
i have taken amantadine at two periods during my long bout with Parkinsons.
Both times successfully until the side effects became too intrusive. The first
time 16 years ago, the second time two years ago - with mirapex - and it was
so successful that i managed to avert having DBS surgery! Howwever both times
i was taking sinamet - which i have been taking now for 18 years.
if you want any more details contact me off list or by phone
hilary blue
51 33 24
Fran Landes wrote:
>
> Is anyone who has been diagnosed a year ago taking Amantadine in combination
> with Mirapex? Any information on how you are doing with the Mirapex will be
> appreciated. I am not taking any Sinemet as yet.
>
> Thank you.
>
> Fran Landes
> 46/45/43
=========================================================================
Date: Sun, 14 May 2000 10:04:29 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: non pd - 3am and too busy
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At 05:43 AM 2000/05/14 -0500, doublea <[log in to unmask]> wrote:
>Congrats on the new grandchild Murray, and I was glad to see I wasn't the
>only one awake this morning. Breakfast at my house today - I will serve
>juevos rancheros, and all the diet coke you can drink, hurry and place your
>orders
>bob aka tex
>ps if barb wants, i will even throw in some baskin robbins for dessert
>
ahem
shall i bring my own b&j cherry garcia?
jmp
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Sun, 14 May 2000 10:56:48 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: NEWS: NYTimes: Rising Internet Use Quietly Transforms Way
Japanese Live
Comments: cc: [log in to unmask]
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Rising Internet Use Quietly Transforms Way Japanese Live
May 14, 2000 - Ina, Japan -- The Ohara Farm seems pretty much like any other family-owned farm here, small in scale, neat as a pin and dreamily bucolic, surrounded by the magnificent mountains of central Japan.
But its most distinguishing feature is less obvious. The farm is selling its feisty, free-range chickens online.
Kaku Kurita for The New York Times Rei Kimura, holding two of the chickens he raises on the Ohara Farm in Ina, Japan, uses the Internet to introduce his product directly to customers over the World Wide Web.
The Ohara Farm's Web site is the most frequently visited "shop" at Rakuten, an online bazaar that features dozens of such sites and scores 95 million hits a month. The farm's site has generated a cult following for the chicks that Rei Kimura, 29-year-old son of the farm's owner, profiles in a "Chick Diary."
A few months back, for instance, Mr. Kimura introduced Sakura-chan and Momiji-chan, two newly hatched chicks from Gifu prefecture. (Sakura and Momiji are Japanese chicken breeds.) "They are cheeping for their mother," he reported.
The Internet is quietly transforming Japan, making celebrities of small farmers like the Kimuras, empowering women, changing the way people apply for jobs and schools and generally chipping away at traditional patterns of behavior.
Japan is set to become the world's largest user of the Internet next year, according to Infocom, a Japanese research company that specializes in data about the Internet and telecommunications. That is thanks to the country's voracious appetite for cruising cyberspace using mobile terminals, and many say the impact of that love affair will be huge.
"The use of the Internet here has started more as a social thing that in the end is going to have enormous implications," said Jiro Kokuryo, a professor at Keio University's business school, who specializes in e-commerce and information systems. "It is changing people's point of view and empowering them to challenge traditional ways of doing things."
Groups that have traditionally had little influence here are finding their voices and taking action on the Internet. Farmers like the Kimuras escape the huge, bureaucratic distribution system that has been sucking up their profits. Working mothers are banding together to form business ventures. Small companies are using the Internet to expand business and decrease reliance on a primary corporate customer.
These are all revolutionary developments by Japanese standards, and not limited to marginal players. The NEC Corporation, a confirmed member of Japan Inc., is soliciting applications internally for jobs in its expanding Internet-related businesses via e-mail, encouraging employees to seek new opportunities without necessarily asking permission of their bosses.
In the past, that would have been insubordination of the first order and a sure-fire way of wrecking one's career. Although loath to own up to subverting the traditional ways, NEC concedes that requirements that new employees and old managers seeking promotions take a test proving a specified degree of English language skills are largely a result of the Internet. "If this company wants to be in the business of the Internet," said Aston Bridgman, an NEC spokesman, "its employees are going to have to be able to speak English."
The language Mr. Kimura, the egg farmer, has chosen is seduction. Not only does his diary provide updates on the chicks, showing pictures of their first feathers and first eggs, shoppers can also listen to chicks cheeping, watch them hop (albeit rather jerkily) and see how they live.
This month, his mother is featured doing a little dance for joy as part of a Mother's Day sales pitch. Mr. Kimura's father has been more reticent about his son's online sales venture, but he has allowed his picture to be on the Web site.
It is the soft sell at its best, and it is working. Sales were up 20 percent last year, Mr. Kimura said. He is expecting 20 to 30 percent more growth this year -- with all the profit from Internet sales going into the farm's coffers.
The Kimuras' endeavor represents at least a small challenge to one of the world's most cumbersome distribution systems. For decades, the government maintained a tight grip on farmers through production quotas, distribution regulations and stringent standards that rendered a portion of Japan's produce substandard and thus unprofitable.
The government system has been waning for some years. Before they put the farm online, the Kimuras had already begun shipping to the less-restrictive co-op system, which yields better profit margins but still involves middle men.
But the Internet has provided the small farm with direct contact with its customers, and the Kimuras are finding the relationship delightful.
"It's as if we've been doing business from behind a curtain all this time, and suddenly we are face-to-face with our customers," Mr. Kimura said.
Women are also banding together on the Internet. Some 25.6 percent of the 14 million Japanese using the Internet at the end of 1998 were women, according to the Ministry of Posts and Telecommunications, up from 17.8 percent in the same period a year earlier.
"If we can solve the problems of the time and location of work with the Internet, it will become a means of solving some of the child care problems that women who want to work face in this country and, in the future, the problems relating to care of the elderly," said Naoko Utsonomiya, who has joined an online work place called Y's Staff.
She says the changes brought by the Internet will help crack the bamboo ceiling.
"The business practice of face-to-face negotiation and drinking sake together into the night has made it difficult for women to advance in the business world," she said.
Women like Mrs. Utsonomiya, in particular, are finding new opportunities in cyberspace. Yuri Tazawa is the founder of Y's Staff, a virtual company that attempts to put to use the skills of women who want to work at home. With child care facilities limited and pressure strong on mothers to stay home, most Japanese women leave their jobs after marriage or after having children.
Mrs. Tazawa abandoned a job in computer planning at Sharp Electronics when she married seven years ago. Pregnant, she looked for work and found an editor who gave her a job writing for a magazine aimed at new computer users.
She had two more daughters, and the family moved about Japan, setting up home in four different cities around the country before settling in Hokkaido three years ago.
At that time, articles about "small office, home office," or "soho" workers abounded in the media. Soho workers were typically women with children working from home using the Internet, doing relatively thankless tasks like data entry.
The media hailed the phenomenon as a huge opportunity for former career women, but Mrs. Tazawa was hearing differently. "I heard from women who were doing data entry all day long and earning only 1,000 yen," or about $9 at current exchange rates, Mrs. Tazawa said. "It seemed that in many cases, these women were just cheap labor, and if the Internet was indeed going to overcome all the barriers to women working, that would have to change."
Y's Staff now has about 40 members whose skills range from Web page design and writing to fortune-telling. Mrs. Tazawa drums up projects and posts the parameters and specifications on the Y's Staff Web site, and recruits from among the members to build project teams.
Between 30 and 50 women apply to join Y's Staff each month, and 1 or 2 are accepted. "We have to determine who wants to work for pocket money when the baby is asleep and who really wants to distinguish themselves in society," she said.
Y's Staff are, essentially, an online office. They have done consulting for e-commerce and Internet-related ventures, created contents for home pages, planned and edited online magazines and written books about the Internet and personal computing. Members' earnings range from $280 to $2,800 a month, depending on how active they are.
"If there was no Internet," Mrs. Tazawa said, "after quitting the company and getting married and having kids and moving every one or two years, the only job I would have had would be standing behind a cash register at a local supermarket."
Small-business people, too, are out to use the Internet. Consider Niizuma, a prototype maker in Kamata, a district in Tokyo that is home to hundreds of tiny parts suppliers, machine tool makers and the like. It went online last November, promoting its three-dimensional computer-assisted design abilities and soliciting new customers.
"Small companies usually depend on getting orders from one or two companies," said Kiyokazu Niizuma, the company's founder. "If orders keep coming, you're fine, but if they stop, you have almost no work."
He has long used a sales force to make sure Niizuma did not rely too heavily on any one company. But that is costly and time-consuming, since it takes roughly six months of wining, dining and meetings to secure an order.
In comparison, orders coming in over the Internet take two or three weeks, said Shiro Katagiri, the head of Niizuma's sales department. About 20 companies that Niizuma has never done business with have expressed interest in placing orders, and four have actually done so. "Before we did this, I was thinking at times that I should increase the number of sales people," Mr. Niizuma said. "But now I'm starting to worry about whether we can do all the work coming in over the Internet."
Mr. Niizuma, who is old enough to remember having to flee Tokyo during the American air raids in World War II, thinks the impact of the Internet will reach far beyond his thriving company.
The traditional emphasis on personal relationships, which have been critical to business here, is fast breaking down. New distribution systems are putting businesses and customers into much closer contact, to the benefit of both.
"Even major companies are placing orders in an arm's-length process now to cut costs," he said. "Sony is selling some things online for 1,000 yen less than in stores, which is a big step toward removing intermediaries and connecting to the consumer."
Do these changes alarm him? "I don't have any worries about the future," he said. "To me, the changes the Internet is bringing about represent new chances."
By STEPHANIE STROM
Copyright 2000 The New York Times Company
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Sun, 14 May 2000 10:06:05 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: doublea <[log in to unmask]>
Subject: Re: non pd - 3am and too busy
MIME-Version: 1.0
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nope, just place your orders - the nearest baskin robbins is about 100 miles
from here anyway, so it's just as easy to get 2 scoops as one. and a
cheerful good morning to you Ms Janet
you wrote:
> ahem
> shall i bring my own b&j cherry garcia?
>
=========================================================================
Date: Sun, 14 May 2000 11:29:05 EDT
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: "<Audrey Cashwell>" <[log in to unmask]>
Subject: Re: Feedback on Medication
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Hello to all
On Sinemet Cr for about 2 yrs
,starting to hear that they save the sinemet for later on in the Parkinson,
Because it work so good . I'am putting on weight like crazy ,and I don't know
why . Eating is less cut a lot things , and i still don't know what to do ?
Any one help.
Audrey C
From CT
=========================================================================
Date: Sun, 14 May 2000 16:27:43 IST
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Sinead Aungier <[log in to unmask]>
Subject: depression
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Here is a short chapter I scanned in from a book called "The Vitamin Bible"
by Earl Mindell, about using vitamins for depression:
"
Chapter XV
It's Not All in Your Mind
How Vitamins and Minerals Affect Your Moods
The first scientifically documented discovery to relate mental illness to
diet occurred when it was found that pellagra [with its depression,
diarrhoea, and dementia] could be cured with niacin. After that, it was
shown that supplementation with the whole B complex produced greater
benefits than niacin alone.
Evidence of biochemical causes for mental disturbances con-tinues to mount.
Experiments have shown that symptoms of mental illness can be switched off
and on by altering vitamin levels in the body.
Dr. R. Shulman, reporting in the British Journal of Psychiatry, found that
forty-eight out of fifty-nine psychiatric patients had folic-acid
deficiencies. Other research has shown that the major-ity of the mentally
and emotionally ill are deficient in one or more of the B-complex vitamins
or vitamin C. And even normal, happy people have been found to become
depressed and experi-ence other symptoms of emotional disturbance when made
niacin or folic-acid deficient.
At California's Stanford University, Nobel Laureate Dr. Linus Pauling
conducted a series of tests to determine individual vitamin needs. As part
of the series, he administered massive doses of vitamin C [as much as 40 g.]
to schizophrenics and discovered that little or none of it was discarded in
the urine. Since the body expels what is doesn't need of the water-soluble
vitamins, the test clearly indicated that the mentally ill needed more
vitamin C - more than one thousand times the RDA -than the rest of us.
Vitamins and Minerals for Depression and Anxiety
The following vitamins and minerals have in many cases been found to be
effective in the treatment of depression and anxiety.
Vitamin B, [thiamine] - large amounts appear to energise depressed people
and tranquilise anxious ones
Vitamin B6 [pyridoxine] - important for the function of the adrenal cortex
Pantothenic acid - has a tension-relievine effect.
Vitamin C [Ascorbic acid] - essential for combatting stress
Vitamin E [alpha-tocopheroll - aids needed oxygen
Zinc - oversees body processes and aids in brain function
Magnesium - necessary for nerve functioning, known as the antistress mineral
Calcium - makes you less jumpy, more relaxed.
Other Drugs Can Add to Your Problems
Alcohol is a nerve depressant. If you take tranquillisers and a drink, the
combination of the two can cause a severe depression - or even death.
If you take Darvon with a tranquilliser, you might find yourself
experiencing tremors and mental confusion. The same thing can happen if you
combine a sedative with an antihistamine [such as any found in
over-the-counter cold preparations].
Oral contraceptives deplete the body of B6, B12, folic acid, and vitamin C.
If you're on the pill and depressed, it is not surprising. Your need for B2,
necessary for normal tryptophan metabolism, is fifty to a hundred times a
non-pill-user's requirement.
Drugs that you Might Not Think Would Cause Depression - But >
Can:
adrenocorticoids
baclofen
beta-blockers
antihypertensives
oestrogens
anti-arthritis medicines
potassium supplements
procainamide
propoxphene
any sex hormones
trimethobenzamide
"
In addition to this I know of a programme that was run in a large University
near where I live that had a large group of people who were clinically
depressed and who attended regular meetings for this programme where they
would engage in activities such as crafts in a group setting with the aim of
improving their depression. In the beginning these people were reluctant to
try and believed themselves incapable of doing these activities but they
agreed to give it a go and eventually their confidence grew when they saw
themselves achieving things and by the end of the program their depression
had greatly improved.
When we are very depressed we need a greater quantity of vitamin C, because
when you are stressed vitamin C goes out of your body quicker, but if you
are doing activities that do the opposite of stress you then your
requitement for this vitamin will reduce.
________________________________________________________________________
Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com
=========================================================================
Date: Sun, 14 May 2000 17:00:25 IST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Sinead Aungier <[log in to unmask]>
Subject: Why Vitamins Have Come Under Attack
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
Here is an excerpt from a chapter I scanned in from the book The Vitamin
Bible, by Earl Mindell:
Chapter XVIII
You and Your Rx
Why Vitamins Have Come Under Attack
The medical establishment considers current therapy to be drugs, surgery,
and analysis. Vitamins are rarely used in treatment, and preventive
medicine is still in its infancy.
The situation is changing, however, because the public wants health
professionals who are knowledgeable about nutrition.
Vitamins are natural substances and therefore not under government control.
Many doctors don't like this, because the availability of vitamins can lead
to the ppublic's experimenting on its own. Large drugs corporations don't
like it because the substances are not patentable, which means they can't
make money from them.
Here is another excerpt from the same chapter:
The Great Medicine Rip-off
A recent study showed that ingredients found in common over-the-counter
cold, pain, and allergy remedies actually lowered the blood level of vitamin
A. Since vitamin A protects and strengthens the mucous membranes lining the
nose, throat, and lungs, a deficiency could give bacteria a cosy home to
multiply in, prolonging the illness the drug was meant to alleviate.
Aspirin, the household wonder drug, the most common ingredient of pain
relievers, cold and sinus remedies, is a vitamin-C thief. Even a small
amount can triple the excretion rate of vitamin C from the body. It can
also lead to a defieiency of folic acid, which could cause anaemia as well
as digestive disturbances.
________________________________________________________________________
Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com
=========================================================================
Date: Sun, 14 May 2000 10:19:50 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
Subject: Re: Feedback on Medication
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
> On Sinemet Cr for about 2 yrs
> ,starting to hear that they save the sinemet for later on in the Parkinson,
> Because it work so good . I'am putting on weight like crazy ,and I don't know
> why . Eating is less cut a lot things , and i still don't know what to do ?
> Any one help.
> Audrey C
> >From CT
Dear Audrey,
Some people with PD gain weight, and the cause is not always known.
Sometimes it is due to less activity, thus burning fewer calories. If
this is the case, would it be possible for you to add some kind of
activity, such as walking, to your days? Your idea of eating less may be
helpful; be sure, though, to include plenty of whole grains (like
whole-wheat bread, brown rice, whole-grain crackers), vegetables, and
fruits. These are protective foods. Also, you should ask your physician
for a referral to a registered dietitian who understands PD, to be sure
you're getting enough protein, calcium, and other nutrients. It might be
important to take a multivitamin/mineral supplement.
It's also possible to gain weight due to water retention. This is
"edema." It also can be due to less physical activity, allowing water to
be retained. Your physician can determine whether you have edema.
Other conditions, such as thyroid disorders, can contribute to weight
gain. You should discuss the weight change with your doctor so s/he can
rule out any possible contributing conditions.
My very best regards,
Kathrynne
--
Kathrynne Holden, MS, RD
Medical nutrition therapy for Parkinson's disease
Author: "Eat well, stay well with Parkinson's disease"
"Parkinson's disease: interview and assessment tools for nutrition
professionals"
"Risk for malnutrition and bone fracture in Parkinson'sdisease," J Nutr
Elderly. V18:3;1999.
http://www.nutritionucanlivewith.com/
=========================================================================
Date: Sun, 14 May 2000 17:25:33 IST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Sinead Aungier <[log in to unmask]>
Subject: Drugs and You
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
More Excerpts from The Vitamin Bible:
Chapter XVII
Drugs and You
Effects of Caffeine on the Body
There are no doubts about it, Caffeine is a powerful drug. That's right,
drug. Chances are you're not just enjoying your daily coffees or colas,
you're addicted to them.
Caffeine acts directly upon the central nervous system. It brings about an
almost immediate sense of clearer thought and lessens fatigue. It also
stimulates the release of stored sugar from the liver, which accounts for
the "list" coffee, cola, and chocolate [the caffeine big three] give. But
these benefits may be far outweighed by the side effects.
The release of stored sugar places heavy stress on the endocrine system.
Heavy coffee drinkers often develop nervousness or become jittery.
Coffee-drinking housewives demonstrated symptoms typical of drug withdrawal
when switched to a decaffeinated beverage.
People who drink five cups of coffee daily have a 50 percent greater chance
of having heart attacks than non-coffee drinkers, according to the British
Medical Journal.
Scientists at John Hopkins University have shown that caffeine can interfere
with DNA replication.
The Centre for Science in the Public Interest advises pregnant women to stay
away from caffeine, since studies have shown that the amount contained in
about four cups of coffee per day causes birth defects in test animals.
High doses of caffeine will cause laboratory animals to go into convulsions
and then die.
Caffeine can be highly toxic [the lethal dose estimated to be around 10g]
new research shows that the one quart of coffee consumed in three hours can
destroy much of the body's thiamine.
Regular tea is not the answer either, since that has nearly as much
caffeine. But herb teas can be quite invigorating.
What Alcohol Does to Your Body
Alcohol is the most widely used drug in our society, and because it is so
available, most people don't think of it as a drug. But it is; and if
misused, it can cause a lot of damage to your body.
Alcohol is not a stimulant, but actually a sedative-depressant of the
central nervous system.
It is capable of rupturing veins.
It does not warm you up, but causes you to feel colder by increasing
perspiration and body heat loss.
It destroys brain cells by causing the withdrawal of necessary water from
them.
It can deplete the body of vitamin B1, B2, B6, B12, folic acid, vitamin C,
vitamin K, zinc, magnesium and potassium.
Four drinks a day are capable of causing organ damage.
It can hamper the liver's ability to process fat.
________________________________________________________________________
Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com
=========================================================================
Date: Sun, 14 May 2000 12:42:07 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Earnie & Barbara Knight <[log in to unmask]>
Subject: Re: Drugs and You
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Sinead:
I appreciate your enthusiasm, but why don't you just ask those who are
interested to privately email you.
Also, are you aware you're violating copyright rules by scanning in those
passages of the Vitamin Bible without written permission of
author/publisher?
Barb K
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]]On Behalf Of Sinead Aungier
Sent: Sunday, May 14, 2000 1:26 PM
To: [log in to unmask]
Subject: Drugs and You
More Excerpts from The Vitamin Bible:
Chapter XVII
Drugs and You
Effects of Caffeine on the Body
There are no doubts about it, Caffeine is a powerful drug. That's right,
drug. Chances are you're not just enjoying your daily coffees or colas,
you're addicted to them.
Caffeine acts directly upon the central nervous system. It brings about an
almost immediate sense of clearer thought and lessens fatigue. It also
stimulates the release of stored sugar from the liver, which accounts for
the "list" coffee, cola, and chocolate [the caffeine big three] give. But
these benefits may be far outweighed by the side effects.
The release of stored sugar places heavy stress on the endocrine system.
Heavy coffee drinkers often develop nervousness or become jittery.
Coffee-drinking housewives demonstrated symptoms typical of drug withdrawal
when switched to a decaffeinated beverage.
People who drink five cups of coffee daily have a 50 percent greater chance
of having heart attacks than non-coffee drinkers, according to the British
Medical Journal.
Scientists at John Hopkins University have shown that caffeine can interfere
with DNA replication.
The Centre for Science in the Public Interest advises pregnant women to stay
away from caffeine, since studies have shown that the amount contained in
about four cups of coffee per day causes birth defects in test animals.
High doses of caffeine will cause laboratory animals to go into convulsions
and then die.
Caffeine can be highly toxic [the lethal dose estimated to be around 10g]
new research shows that the one quart of coffee consumed in three hours can
destroy much of the body's thiamine.
Regular tea is not the answer either, since that has nearly as much
caffeine. But herb teas can be quite invigorating.
What Alcohol Does to Your Body
Alcohol is the most widely used drug in our society, and because it is so
available, most people don't think of it as a drug. But it is; and if
misused, it can cause a lot of damage to your body.
Alcohol is not a stimulant, but actually a sedative-depressant of the
central nervous system.
It is capable of rupturing veins.
It does not warm you up, but causes you to feel colder by increasing
perspiration and body heat loss.
It destroys brain cells by causing the withdrawal of necessary water from
them.
It can deplete the body of vitamin B1, B2, B6, B12, folic acid, vitamin C,
vitamin K, zinc, magnesium and potassium.
Four drinks a day are capable of causing organ damage.
It can hamper the liver's ability to process fat.
________________________________________________________________________
Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com
=========================================================================
Date: Sun, 14 May 2000 12:47:34 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Earnie & Barbara Knight <[log in to unmask]>
Subject: Re: Drugs and You
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Sinead:
Sorry - I meant copyright laws (not rules). As a published writer I'm very
sensitive about violation of these laws.
Barb K
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]]On Behalf Of Earnie & Barbara
Knight
Sent: Sunday, May 14, 2000 12:42 PM
To: [log in to unmask]
Subject: Re: Drugs and You
Sinead:
I appreciate your enthusiasm, but why don't you just ask those who are
interested to privately email you.
Also, are you aware you're violating copyright rules by scanning in those
passages of the Vitamin Bible without written permission of
author/publisher?
Barb K
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]]On Behalf Of Sinead Aungier
Sent: Sunday, May 14, 2000 1:26 PM
To: [log in to unmask]
Subject: Drugs and You
More Excerpts from The Vitamin Bible:
Chapter XVII
Drugs and You
Effects of Caffeine on the Body
There are no doubts about it, Caffeine is a powerful drug. That's right,
drug. Chances are you're not just enjoying your daily coffees or colas,
you're addicted to them.
Caffeine acts directly upon the central nervous system. It brings about an
almost immediate sense of clearer thought and lessens fatigue. It also
stimulates the release of stored sugar from the liver, which accounts for
the "list" coffee, cola, and chocolate [the caffeine big three] give. But
these benefits may be far outweighed by the side effects.
The release of stored sugar places heavy stress on the endocrine system.
Heavy coffee drinkers often develop nervousness or become jittery.
Coffee-drinking housewives demonstrated symptoms typical of drug withdrawal
when switched to a decaffeinated beverage.
People who drink five cups of coffee daily have a 50 percent greater chance
of having heart attacks than non-coffee drinkers, according to the British
Medical Journal.
Scientists at John Hopkins University have shown that caffeine can interfere
with DNA replication.
The Centre for Science in the Public Interest advises pregnant women to stay
away from caffeine, since studies have shown that the amount contained in
about four cups of coffee per day causes birth defects in test animals.
High doses of caffeine will cause laboratory animals to go into convulsions
and then die.
Caffeine can be highly toxic [the lethal dose estimated to be around 10g]
new research shows that the one quart of coffee consumed in three hours can
destroy much of the body's thiamine.
Regular tea is not the answer either, since that has nearly as much
caffeine. But herb teas can be quite invigorating.
What Alcohol Does to Your Body
Alcohol is the most widely used drug in our society, and because it is so
available, most people don't think of it as a drug. But it is; and if
misused, it can cause a lot of damage to your body.
Alcohol is not a stimulant, but actually a sedative-depressant of the
central nervous system.
It is capable of rupturing veins.
It does not warm you up, but causes you to feel colder by increasing
perspiration and body heat loss.
It destroys brain cells by causing the withdrawal of necessary water from
them.
It can deplete the body of vitamin B1, B2, B6, B12, folic acid, vitamin C,
vitamin K, zinc, magnesium and potassium.
Four drinks a day are capable of causing organ damage.
It can hamper the liver's ability to process fat.
________________________________________________________________________
Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com
=========================================================================
Date: Sun, 14 May 2000 12:46:10 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Hilary Blue <[log in to unmask]>
Subject: Re: Feedback on Medication - weight history
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
age 24 1st symptoms no meds wt 116
27 94 lbs
33 diagnosis sinemet 102 lbs
36 add amantadine
and parlodel 116
38 sinemet =eldepryl (drop other 2)
+various antidepressants 130+
45 drop eldepryl 160
48 extreme dyskinesa start amantadine again
50 low dyskinesia stop amantadine (side effects) 112
51 (now) significant mirapex comptan, requip and max 130
dyskinesia sinemet now 122
my eating habits have mot changed much
i eat more vegetable than meat, but calorie wise it isi about the same.
draw your own conclusions but i th ink the pattern is quite clear!
hilary blue
Hello to all
> On Sinemet Cr for about 2 yrs
> ,starting to hear that they save the sinemet for later on in the Parkinson,
> Because it work so good . I'am putting on weight like crazy ,and I don't know
> why . Eating is less cut a lot things , and i still don't know what to do ?
> Any one help.
> Audrey C
>
> >From CT
=========================================================================
Date: Sun, 14 May 2000 12:43:18 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: newbie confusion...
Comments: cc: [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
is now on the wweb at:
http://www.geocities.com/janet313/pienet/2nd/10newb.html
janet
janet paterson
53 now / 41 dx / 37 onset
613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
come visit my website "a new voice" at:
http://www.geocities.com/janet313/
=========================================================================
Date: Sun, 14 May 2000 10:12:49 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Barb_MSN <[log in to unmask]>
Subject: Re: depression
Hi Sinead...
Ooops! Please understand that the following comment isn't meant
to hurt you, so don't take it as a personal slight, ok? I just
don't want to see ya get in any trouble with the law.
Because I used to work online on the Microsoft Network I've got
some (not alot - but SOME) familiarity about what one LEGALLY can
and can't post on the Web and Internet.
The articals you've scanned and posted on the List are more than
likely COPYRIGHTED by the author and/or the author's designated
agent. That copyright protects the author's right to have the
sole say-so on who may and may NOT publicly print or post work
that is a product
Usually those of us who copy and paste an ARTICLE from one site to
another on the Web or the I'net don't cet caught , but when
someone posts a CHAPTER of a copyrighted BOOK or script and it has
been copyrighted by that author (and virtually all books, scripts,
etc.. today and in the past have been copyrighted and state so in
a conspicuous place in the book/script) then that could be a huge
and costly legal problem in the offing!
THAT means one heck of a lotta negative publicity about YOU - the
individual who (innocently) broke the copyright laws by publicly
posting copyrighted material - and you might find yourself up to
your knees in law suits, which CAN carry a significant monitory
fine should you lose the case(s). And don't forget the lawyer's
fees!! <YIKES! Sky high!>
My MSN work experience tough ne that authors and author's agents,
and even their friends, family and God knows how many other
individuals who are somehow connected with the author just POP out
of the virtual woodwork claiming you are stealing copyrighted
material and the next thing ya know you're in BIG trouble ( over
something you innocently did).
Please, Please, PLEASE consider what's potentially at stake for
you if you continue scanning and posting copyrighted material to
the List. AND it's possible that our list owner, Barb P, could
also be held liable for what you (or anyone else on the List)
publicly posts on a privately owned List such as the
PIENet).
Maybe you can just post the title and author's NAME on the List if
you find something you feel to be value to many list members?
THAT way both you AND Barb P. are legally covered....
Ho... and I'm sorry about the type-O's as I'm rushing to type and
post this 'cause my daughters are on their way over to pick me up
for a "Mother's Day surprise" (and I haven't a clue what it is,
either) <smile>. Just know that I wanted OT make sure you're
aware of potential costly problems you might have if you continue
scanning and posting books without the author's permission (and
that MUST be in writing)
Barb Mallut
[log in to unmask],com
-----Original Message-----
From: Sinead Aungier <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Sunday, May 14, 2000 8:40 AM
Subject: depression
>Here is a short chapter I scanned in from a book called "The
Vitamin Bible"
>by Earl Mindell, about using vitamins for depression:
>
>"
>Chapter XV
>
>It's Not All in Your Mind
>
>How Vitamins and Minerals Affect Your Moods
>
>The first scientifically documented discovery to relate mental
illness to
>diet occurred when it was found that pellagra [with its
depression,
>diarrhoea, and dementia] could be cured with niacin. After that,
it was
>shown that supplementation with the whole B complex produced
greater
>benefits than niacin alone.
>Evidence of biochemical causes for mental disturbances con-tinues
to mount.
>Experiments have shown that symptoms of mental illness can be
switched off
>and on by altering vitamin levels in the body.
>Dr. R. Shulman, reporting in the British Journal of Psychiatry,
found that
>forty-eight out of fifty-nine psychiatric patients had folic-acid
>deficiencies. Other research has shown that the major-ity of the
mentally
>and emotionally ill are deficient in one or more of the B-complex
vitamins
>or vitamin C. And even normal, happy people have been found to
become
>depressed and experi-ence other symptoms of emotional disturbance
when made
>niacin or folic-acid deficient.
>At California's Stanford University, Nobel Laureate Dr. Linus
Pauling
>conducted a series of tests to determine individual vitamin
needs. As part
>of the series, he administered massive doses of vitamin C [as
much as 40 g.]
>to schizophrenics and discovered that little or none of it was
discarded in
>the urine. Since the body expels what is doesn't need of the
water-soluble
>vitamins, the test clearly indicated that the mentally ill needed
more
>vitamin C - more than one thousand times the RDA -than the rest
of us.
>
>
>Vitamins and Minerals for Depression and Anxiety
>
>The following vitamins and minerals have in many cases been found
to be
>effective in the treatment of depression and anxiety.
>
>Vitamin B, [thiamine] - large amounts appear to energise
depressed people
>and tranquilise anxious ones
>Vitamin B6 [pyridoxine] - important for the function of the
adrenal cortex
>Pantothenic acid - has a tension-relievine effect.
>Vitamin C [Ascorbic acid] - essential for combatting stress
>Vitamin E [alpha-tocopheroll - aids needed oxygen
>Zinc - oversees body processes and aids in brain function
>Magnesium - necessary for nerve functioning, known as the
antistress mineral
>Calcium - makes you less jumpy, more relaxed.
>
>Other Drugs Can Add to Your Problems
>
>Alcohol is a nerve depressant. If you take tranquillisers and a
drink, the
>combination of the two can cause a severe depression - or even
death.
>If you take Darvon with a tranquilliser, you might find yourself
>experiencing tremors and mental confusion. The same thing can
happen if you
>combine a sedative with an antihistamine [such as any found in
>over-the-counter cold preparations].
>Oral contraceptives deplete the body of B6, B12, folic acid, and
vitamin C.
>If you're on the pill and depressed, it is not surprising. Your
need for B2,
>necessary for normal tryptophan metabolism, is fifty to a hundred
times a
>non-pill-user's requirement.
>
>
>Drugs that you Might Not Think Would Cause Depression - But >
>Can:
>
>adrenocorticoids
>baclofen
>beta-blockers
>antihypertensives
>oestrogens
>anti-arthritis medicines
>potassium supplements
>procainamide
>propoxphene
>any sex hormones
>trimethobenzamide
>
>"
>
>In addition to this I know of a programme that was run in a large
University
>near where I live that had a large group of people who were
clinically
>depressed and who attended regular meetings for this programme
where they
>would engage in activities such as crafts in a group setting with
the aim of
>improving their depression. In the beginning these people were
reluctant to
>try and believed themselves incapable of doing these activities
but they
>agreed to give it a go and eventually their confidence grew when
they saw
>themselves achieving things and by the end of the program their
depression
>had greatly improved.
>
>When we are very depressed we need a greater quantity of vitamin
C, because
>when you are stressed vitamin C goes out of your body quicker,
but if you
>are doing activities that do the opposite of stress you then your
>requitement for this vitamin will reduce.
>
>
>
>
>
>
>
>
>
>
>_________________________________________________________________
_______
>Get Your Private, Free E-mail from MSN Hotmail at
http://www.hotmail.com
=========================================================================
Date: Sun, 14 May 2000 10:43:49 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Audrey <[log in to unmask]>
Subject: Re: depression
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I thought this discussion had been put to rest sinead. I think anyone who
has any knowledge of nutrition is aware of proper diet. I have seen all of
the recent and past research about clinical depression. It is commonly
believed that it is a brain disorder and not due to any lack of vitamins. I
think you must know that no one's body stores vitamin C. Any that is in
excess is excreted through one's urine. I drink it by the quarts because I
like it not to solve my cd. One needs to take care when self prescribing
vitamin therapy for any reason and remain within the current government
allowable amounts unless one has a * registered* dietician or a doctor's
permission. There are serious things that can happen to anyone who decides
to ignore these guidelines. We need to recognize that we do need a daily
amount of all vitamins and trace elements, but this is one of those times
where a little is plenty, but too much is still too much and foolish.
*seattle * audrey friend of pwp aussie John 49/42/38?
and friend with 2 others on the list now also..
=========================================================================
Date: Sun, 14 May 2000 14:21:05 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Earnie & Barbara Knight <[log in to unmask]>
Subject: Re: depression / copyright info
In-Reply-To: <003a01bfbdc7$a2b6e520$73a7173f@mallut>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Thanks, Barb, for posting about your knowledge of copyright law. Everyone
needs to be careful in posts from books, newspapers, etc. either in email or
on our webpages.
Check this out for more information on copyrights:
http://www.templetons.com/brad/copymyths.html
Barb K
-----Original Message-----
From: Parkinson's Informationhttp://www.templetons.com/brad/copymyths.html
Exchange Network
[mailto:[log in to unmask]]On Behalf Of Barb_MSN
Sent: Sunday, May 14, 2000 1:13 PM
To: [log in to unmask]
Subject: Re: depression
Hi Sinead...
Ooops! Please understand that the following comment isn't meant
to hurt you, so don't take it as a personal slight, ok? I just
don't want to see ya get in any trouble with the law.
Because I used to work online on the Microsoft Network I've got
some (not alot - but SOME) familiarity about what one LEGALLY can
and can't post on the Web and Internet.
The articals you've scanned and posted on the List are more than
likely COPYRIGHTED by the author and/or the author's designated
agent. That copyright protects the author's right to have the
sole say-so on who may and may NOT publicly print or post work
that is a product
Usually those of us who copy and paste an ARTICLE from one site to
another on the Web or the I'net don't cet caught , but when
someone posts a CHAPTER of a copyrighted BOOK or script and it has
been copyrighted by that author (and virtually all books, scripts,
etc.. today and in the past have been copyrighted and state so in
a conspicuous place in the book/script) then that could be a huge
and costly legal problem in the offing!
THAT means one heck of a lotta negative publicity about YOU - the
individual who (innocently) broke the copyright laws by publicly
posting copyrighted material - and you might find yourself up to
your knees in law suits, which CAN carry a significant monitory
fine should you lose the case(s). And don't forget the lawyer's
fees!! <YIKES! Sky high!>
My MSN work experience tough ne that authors and author's agents,
and even their friends, family and God knows how many other
individuals who are somehow connected with the author just POP out
of the virtual woodwork claiming you are stealing copyrighted
material and the next thing ya know you're in BIG trouble ( over
something you innocently did).
Please, Please, PLEASE consider what's potentially at stake for
you if you continue scanning and posting copyrighted material to
the List. AND it's possible that our list owner, Barb P, could
also be held liable for what you (or anyone else on the List)
publicly posts on a privately owned List such as the
PIENet).
Maybe you can just post the title and author's NAME on the List if
you find something you feel to be value to many list members?
THAT way both you AND Barb P. are legally covered....
Ho... and I'm sorry about the type-O's as I'm rushing to type and
post this 'cause my daughters are on their way over to pick me up
for a "Mother's Day surprise" (and I haven't a clue what it is,
either) <smile>. Just know that I wanted OT make sure you're
aware of potential costly problems you might have if you continue
scanning and posting books without the author's permission (and
that MUST be in writing)
Barb Mallut
[log in to unmask],com
-----Original Message-----
From: Sinead Aungier <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Sunday, May 14, 2000 8:40 AM
Subject: depression
>Here is a short chapter I scanned in from a book called "The
Vitamin Bible"
>by Earl Mindell, about using vitamins for depression:
>
>"
>Chapter XV
>
>It's Not All in Your Mind
>
>How Vitamins and Minerals Affect Your Moods
>
>The first scientifically documented discovery to relate mental
illness to
>diet occurred when it was found that pellagra [with its
depression,
>diarrhoea, and dementia] could be cured with niacin. After that,
it was
>shown that supplementation with the whole B complex produced
greater
>benefits than niacin alone.
>Evidence of biochemical causes for mental disturbances con-tinues
to mount.
>Experiments have shown that symptoms of mental illness can be
switched off
>and on by altering vitamin levels in the body.
>Dr. R. Shulman, reporting in the British Journal of Psychiatry,
found that
>forty-eight out of fifty-nine psychiatric patients had folic-acid
>deficiencies. Other research has shown that the major-ity of the
mentally
>and emotionally ill are deficient in one or more of the B-complex
vitamins
>or vitamin C. And even normal, happy people have been found to
become
>depressed and experi-ence other symptoms of emotional disturbance
when made
>niacin or folic-acid deficient.
>At California's Stanford University, Nobel Laureate Dr. Linus
Pauling
>conducted a series of tests to determine individual vitamin
needs. As part
>of the series, he administered massive doses of vitamin C [as
much as 40 g.]
>to schizophrenics and discovered that little or none of it was
discarded in
>the urine. Since the body expels what is doesn't need of the
water-soluble
>vitamins, the test clearly indicated that the mentally ill needed
more
>vitamin C - more than one thousand times the RDA -than the rest
of us.
>
>
>Vitamins and Minerals for Depression and Anxiety
>
>The following vitamins and minerals have in many cases been found
to be
>effective in the treatment of depression and anxiety.
>
>Vitamin B, [thiamine] - large amounts appear to energise
depressed people
>and tranquilise anxious ones
>Vitamin B6 [pyridoxine] - important for the function of the
adrenal cortex
>Pantothenic acid - has a tension-relievine effect.
>Vitamin C [Ascorbic acid] - essential for combatting stress
>Vitamin E [alpha-tocopheroll - aids needed oxygen
>Zinc - oversees body processes and aids in brain function
>Magnesium - necessary for nerve functioning, known as the
antistress mineral
>Calcium - makes you less jumpy, more relaxed.
>
>Other Drugs Can Add to Your Problems
>
>Alcohol is a nerve depressant. If you take tranquillisers and a
drink, the
>combination of the two can cause a severe depression - or even
death.
>If you take Darvon with a tranquilliser, you might find yourself
>experiencing tremors and mental confusion. The same thing can
happen if you
>combine a sedative with an antihistamine [such as any found in
>over-the-counter cold preparations].
>Oral contraceptives deplete the body of B6, B12, folic acid, and
vitamin C.
>If you're on the pill and depressed, it is not surprising. Your
need for B2,
>necessary for normal tryptophan metabolism, is fifty to a hundred
times a
>non-pill-user's requirement.
>
>
>Drugs that you Might Not Think Would Cause Depression - But >
>Can:
>
>adrenocorticoids
>baclofen
>beta-blockers
>antihypertensives
>oestrogens
>anti-arthritis medicines
>potassium supplements
>procainamide
>propoxphene
>any sex hormones
>trimethobenzamide
>
>"
>
>In addition to this I know of a programme that was run in a large
University
>near where I live that had a large group of people who were
clinically
>depressed and who attended regular meetings for this programme
where they
>would engage in activities such as crafts in a group setting with
the aim of
>improving their depression. In the beginning these people were
reluctant to
>try and believed themselves incapable of doing these activities
but they
>agreed to give it a go and eventually their confidence grew when
they saw
>themselves achieving things and by the end of the program their
depression
>had greatly improved.
>
>When we are very depressed we need a greater quantity of vitamin
C, because
>when you are stressed vitamin C goes out of your body quicker,
but if you
>are doing activities that do the opposite of stress you then your
>requitement for this vitamin will reduce.
>
>
>
>
>
>
>
>
>
>
>_________________________________________________________________
_______
>Get Your Private, Free E-mail from MSN Hotmail at
http://www.hotmail.com
=========================================================================
Date: Sun, 14 May 2000 19:34:16 IST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Sinead Aungier <[log in to unmask]>
Subject: Re: depression
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
Thanks for that info. Barb. I didn't think I was breaking any copyright laws
because I was just quoting some of what the author said in quotes and gave
his name and title of the book. I only scanned in part of it anyway. The
rest was typed. I wont do this again and was just trying to pass on some
useful info. to the people on the list.
Sinead
>From: Barb_MSN <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: depression
>Date: Sun, 14 May 2000 10:12:49 -0700
>
>Hi Sinead...
>
>Ooops! Please understand that the following comment isn't meant
>to hurt you, so don't take it as a personal slight, ok? I just
>don't want to see ya get in any trouble with the law.
>
>Because I used to work online on the Microsoft Network I've got
>some (not alot - but SOME) familiarity about what one LEGALLY can
>and can't post on the Web and Internet.
>
>The articals you've scanned and posted on the List are more than
>likely COPYRIGHTED by the author and/or the author's designated
>agent. That copyright protects the author's right to have the
>sole say-so on who may and may NOT publicly print or post work
>that is a product
>
>Usually those of us who copy and paste an ARTICLE from one site to
>another on the Web or the I'net don't cet caught , but when
>someone posts a CHAPTER of a copyrighted BOOK or script and it has
>been copyrighted by that author (and virtually all books, scripts,
>etc.. today and in the past have been copyrighted and state so in
>a conspicuous place in the book/script) then that could be a huge
>and costly legal problem in the offing!
>
>THAT means one heck of a lotta negative publicity about YOU - the
>individual who (innocently) broke the copyright laws by publicly
>posting copyrighted material - and you might find yourself up to
>your knees in law suits, which CAN carry a significant monitory
>fine should you lose the case(s). And don't forget the lawyer's
>fees!! <YIKES! Sky high!>
>
>My MSN work experience tough ne that authors and author's agents,
>and even their friends, family and God knows how many other
>individuals who are somehow connected with the author just POP out
>of the virtual woodwork claiming you are stealing copyrighted
>material and the next thing ya know you're in BIG trouble ( over
>something you innocently did).
>
>Please, Please, PLEASE consider what's potentially at stake for
>you if you continue scanning and posting copyrighted material to
>the List. AND it's possible that our list owner, Barb P, could
>also be held liable for what you (or anyone else on the List)
>publicly posts on a privately owned List such as the
>PIENet).
>
>Maybe you can just post the title and author's NAME on the List if
>you find something you feel to be value to many list members?
>THAT way both you AND Barb P. are legally covered....
>
>Ho... and I'm sorry about the type-O's as I'm rushing to type and
>post this 'cause my daughters are on their way over to pick me up
>for a "Mother's Day surprise" (and I haven't a clue what it is,
>either) <smile>. Just know that I wanted OT make sure you're
>aware of potential costly problems you might have if you continue
>scanning and posting books without the author's permission (and
>that MUST be in writing)
>
>Barb Mallut
>[log in to unmask],com
>
>-----Original Message-----
>From: Sinead Aungier <[log in to unmask]>
>To: [log in to unmask] <[log in to unmask]>
>Date: Sunday, May 14, 2000 8:40 AM
>Subject: depression
>
>
> >Here is a short chapter I scanned in from a book called "The
>Vitamin Bible"
> >by Earl Mindell, about using vitamins for depression:
> >
> >"
> >Chapter XV
> >
> >It's Not All in Your Mind
> >
> >How Vitamins and Minerals Affect Your Moods
> >
> >The first scientifically documented discovery to relate mental
>illness to
> >diet occurred when it was found that pellagra [with its
>depression,
> >diarrhoea, and dementia] could be cured with niacin. After that,
>it was
> >shown that supplementation with the whole B complex produced
>greater
> >benefits than niacin alone.
> >Evidence of biochemical causes for mental disturbances con-tinues
>to mount.
> >Experiments have shown that symptoms of mental illness can be
>switched off
> >and on by altering vitamin levels in the body.
> >Dr. R. Shulman, reporting in the British Journal of Psychiatry,
>found that
> >forty-eight out of fifty-nine psychiatric patients had folic-acid
> >deficiencies. Other research has shown that the major-ity of the
>mentally
> >and emotionally ill are deficient in one or more of the B-complex
>vitamins
> >or vitamin C. And even normal, happy people have been found to
>become
> >depressed and experi-ence other symptoms of emotional disturbance
>when made
> >niacin or folic-acid deficient.
> >At California's Stanford University, Nobel Laureate Dr. Linus
>Pauling
> >conducted a series of tests to determine individual vitamin
>needs. As part
> >of the series, he administered massive doses of vitamin C [as
>much as 40 g.]
> >to schizophrenics and discovered that little or none of it was
>discarded in
> >the urine. Since the body expels what is doesn't need of the
>water-soluble
> >vitamins, the test clearly indicated that the mentally ill needed
>more
> >vitamin C - more than one thousand times the RDA -than the rest
>of us.
> >
> >
> >Vitamins and Minerals for Depression and Anxiety
> >
> >The following vitamins and minerals have in many cases been found
>to be
> >effective in the treatment of depression and anxiety.
> >
> >Vitamin B, [thiamine] - large amounts appear to energise
>depressed people
> >and tranquilise anxious ones
> >Vitamin B6 [pyridoxine] - important for the function of the
>adrenal cortex
> >Pantothenic acid - has a tension-relievine effect.
> >Vitamin C [Ascorbic acid] - essential for combatting stress
> >Vitamin E [alpha-tocopheroll - aids needed oxygen
> >Zinc - oversees body processes and aids in brain function
> >Magnesium - necessary for nerve functioning, known as the
>antistress mineral
> >Calcium - makes you less jumpy, more relaxed.
> >
> >Other Drugs Can Add to Your Problems
> >
> >Alcohol is a nerve depressant. If you take tranquillisers and a
>drink, the
> >combination of the two can cause a severe depression - or even
>death.
> >If you take Darvon with a tranquilliser, you might find yourself
> >experiencing tremors and mental confusion. The same thing can
>happen if you
> >combine a sedative with an antihistamine [such as any found in
> >over-the-counter cold preparations].
> >Oral contraceptives deplete the body of B6, B12, folic acid, and
>vitamin C.
> >If you're on the pill and depressed, it is not surprising. Your
>need for B2,
> >necessary for normal tryptophan metabolism, is fifty to a hundred
>times a
> >non-pill-user's requirement.
> >
> >
> >Drugs that you Might Not Think Would Cause Depression - But >
> >Can:
> >
> >adrenocorticoids
> >baclofen
> >beta-blockers
> >antihypertensives
> >oestrogens
> >anti-arthritis medicines
> >potassium supplements
> >procainamide
> >propoxphene
> >any sex hormones
> >trimethobenzamide
> >
> >"
> >
> >In addition to this I know of a programme that was run in a large
>University
> >near where I live that had a large group of people who were
>clinically
> >depressed and who attended regular meetings for this programme
>where they
> >would engage in activities such as crafts in a group setting with
>the aim of
> >improving their depression. In the beginning these people were
>reluctant to
> >try and believed themselves incapable of doing these activities
>but they
> >agreed to give it a go and eventually their confidence grew when
>they saw
> >themselves achieving things and by the end of the program their
>depression
> >had greatly improved.
> >
> >When we are very depressed we need a greater quantity of vitamin
>C, because
> >when you are stressed vitamin C goes out of your body quicker,
>but if you
> >are doing activities that do the opposite of stress you then your
> >requitement for this vitamin will reduce.
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >_________________________________________________________________
>_______
> >Get Your Private, Free E-mail from MSN Hotmail at
>http://www.hotmail.com
________________________________________________________________________
Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com
=========================================================================
Date: Sun, 14 May 2000 12:35:06 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
Subject: Re: depression / copyright info
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
It's easy to misunderstand copyright information -- it's very
complicated. And many of us, including me, have made mistakes regarding
copyrighted material at one time or another. However, I heartily agree
with Barb's advice regarding posting of copyrighted materials. The
Internet does not grant special privilege with regard to copyrighted
works. I believe it's OK to print short excerpts, acknowledging the
source; but not a chapter, unless the author has granted permission.
And that, by the way, includes e-mail posts to listservs. It's not OK to
use another person's e-mailed post without their permission. Although it
is most commonly considered merely a breach of netiquette, it is
actually an infringement of copyright.
Best regards,
Kathrynne
Earnie & Barbara Knight wrote:
>
> Thanks, Barb, for posting about your knowledge of copyright law. Everyone
> needs to be careful in posts from books, newspapers, etc. either in email or
> on our webpages.
>
> Check this out for more information on copyrights:
>
> http://www.templetons.com/brad/copymyths.html
>
> Barb K
--
Kathrynne Holden, MS, RD
Medical nutrition therapy for Parkinson's disease
Author: "Eat well, stay well with Parkinson's disease"
"Parkinson's disease: interview and assessment tools for nutrition
professionals"
"Risk for malnutrition and bone fracture in Parkinson'sdisease," J Nutr
Elderly. V18:3;1999.
http://www.nutritionucanlivewith.com/
=========================================================================
Date: Sun, 14 May 2000 14:58:21 -0400
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Michel Margosis <[log in to unmask]>
Subject: Re: copyright info
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Publication of scientific research papers always required preliminary
literature search to insure as much as possible that noone else has or
is publishing such work. Yet many papers are based on precedence which
must be acknowledged by citation and/or by quotation. Even presentation
at scientific meetings required a preliminary author permission to
include any visual data or text from outside sources, as a matter of
form .
Michel
=========================================================================
Date: Sun, 14 May 2000 15:15:15 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: depression
Barb Mallit - I didn't know you are a published writer. That's why you
post such cute sayings. You are creative, huh? Best wishes, Jo Ann from
Houston
=========================================================================
Date: Sun, 14 May 2000 15:45:05 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bob Anibal <[log in to unmask]>
Subject: Re: depression
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
This copy right thing can get real hairy - I got involved in it at church -
We got a new organist once years ago who immediately said she would not
accept the job as long as Xerox copies of hymns were around and she
explained the copyright laws rather mixed up but she was right. I looked
into the matter and found that one church somewhere was fined $50,000 for
having. Even taping a service for the home-bound can infringe the law if it
includes a hymn by the choir - The copyright law is being considered for
chang and will make special allowances for some things.
Bob Anibal
----- Original Message -----
From: "Barb_MSN" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, May 14, 2000 1:12 PM
Subject: Re: depression
Hi Sinead...
Ooops! Please understand that the following comment isn't meant
to hurt you, so don't take it as a personal slight, ok? I just
don't want to see ya get in any trouble with the law.
Because I used to work online on the Microsoft Network I've got
some (not alot - but SOME) familiarity about what one LEGALLY can
and can't post on the Web and Internet.
The articals you've scanned and posted on the List are more than
likely COPYRIGHTED by the author and/or the author's designated
agent. That copyright protects the author's right to have the
sole say-so on who may and may NOT publicly print or post work
that is a product
Usually those of us who copy and paste an ARTICLE from one site to
another on the Web or the I'net don't cet caught , but when
someone posts a CHAPTER of a copyrighted BOOK or script and it has
been copyrighted by that author (and virtually all books, scripts,
etc.. today and in the past have been copyrighted and state so in
a conspicuous place in the book/script) then that could be a huge
and costly legal problem in the offing!
THAT means one heck of a lotta negative publicity about YOU - the
individual who (innocently) broke the copyright laws by publicly
posting copyrighted material - and you might find yourself up to
your knees in law suits, which CAN carry a significant monitory
fine should you lose the case(s). And don't forget the lawyer's
fees!! <YIKES! Sky high!>
My MSN work experience tough ne that authors and author's agents,
and even their friends, family and God knows how many other
individuals who are somehow connected with the author just POP out
of the virtual woodwork claiming you are stealing copyrighted
material and the next thing ya know you're in BIG trouble ( over
something you innocently did).
Please, Please, PLEASE consider what's potentially at stake for
you if you continue scanning and posting copyrighted material to
the List. AND it's possible that our list owner, Barb P, could
also be held liable for what you (or anyone else on the List)
publicly posts on a privately owned List such as the
PIENet).
Maybe you can just post the title and author's NAME on the List if
you find something you feel to be value to many list members?
THAT way both you AND Barb P. are legally covered....
Ho... and I'm sorry about the type-O's as I'm rushing to type and
post this 'cause my daughters are on their way over to pick me up
for a "Mother's Day surprise" (and I haven't a clue what it is,
either) <smile>. Just know that I wanted OT make sure you're
aware of potential costly problems you might have if you continue
scanning and posting books without the author's permission (and
that MUST be in writing)
Barb Mallut
[log in to unmask],com
-----Original Message-----
From: Sinead Aungier <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Sunday, May 14, 2000 8:40 AM
Subject: depression
>Here is a short chapter I scanned in from a book called "The
Vitamin Bible"
>by Earl Mindell, about using vitamins for depression:
>
>"
>Chapter XV
>
>It's Not All in Your Mind
>
>How Vitamins and Minerals Affect Your Moods
>
>The first scientifically documented discovery to relate mental
illness to
>diet occurred when it was found that pellagra [with its
depression,
>diarrhoea, and dementia] could be cured with niacin. After that,
it was
>shown that supplementation with the whole B complex produced
greater
>benefits than niacin alone.
>Evidence of biochemical causes for mental disturbances con-tinues
to mount.
>Experiments have shown that symptoms of mental illness can be
switched off
>and on by altering vitamin levels in the body.
>Dr. R. Shulman, reporting in the British Journal of Psychiatry,
found that
>forty-eight out of fifty-nine psychiatric patients had folic-acid
>deficiencies. Other research has shown that the major-ity of the
mentally
>and emotionally ill are deficient in one or more of the B-complex
vitamins
>or vitamin C. And even normal, happy people have been found to
become
>depressed and experi-ence other symptoms of emotional disturbance
when made
>niacin or folic-acid deficient.
>At California's Stanford University, Nobel Laureate Dr. Linus
Pauling
>conducted a series of tests to determine individual vitamin
needs. As part
>of the series, he administered massive doses of vitamin C [as
much as 40 g.]
>to schizophrenics and discovered that little or none of it was
discarded in
>the urine. Since the body expels what is doesn't need of the
water-soluble
>vitamins, the test clearly indicated that the mentally ill needed
more
>vitamin C - more than one thousand times the RDA -than the rest
of us.
>
>
>Vitamins and Minerals for Depression and Anxiety
>
>The following vitamins and minerals have in many cases been found
to be
>effective in the treatment of depression and anxiety.
>
>Vitamin B, [thiamine] - large amounts appear to energise
depressed people
>and tranquilise anxious ones
>Vitamin B6 [pyridoxine] - important for the function of the
adrenal cortex
>Pantothenic acid - has a tension-relievine effect.
>Vitamin C [Ascorbic acid] - essential for combatting stress
>Vitamin E [alpha-tocopheroll - aids needed oxygen
>Zinc - oversees body processes and aids in brain function
>Magnesium - necessary for nerve functioning, known as the
antistress mineral
>Calcium - makes you less jumpy, more relaxed.
>
>Other Drugs Can Add to Your Problems
>
>Alcohol is a nerve depressant. If you take tranquillisers and a
drink, the
>combination of the two can cause a severe depression - or even
death.
>If you take Darvon with a tranquilliser, you might find yourself
>experiencing tremors and mental confusion. The same thing can
happen if you
>combine a sedative with an antihistamine [such as any found in
>over-the-counter cold preparations].
>Oral contraceptives deplete the body of B6, B12, folic acid, and
vitamin C.
>If you're on the pill and depressed, it is not surprising. Your
need for B2,
>necessary for normal tryptophan metabolism, is fifty to a hundred
times a
>non-pill-user's requirement.
>
>
>Drugs that you Might Not Think Would Cause Depression - But >
>Can:
>
>adrenocorticoids
>baclofen
>beta-blockers
>antihypertensives
>oestrogens
>anti-arthritis medicines
>potassium supplements
>procainamide
>propoxphene
>any sex hormones
>trimethobenzamide
>
>"
>
>In addition to this I know of a programme that was run in a large
University
>near where I live that had a large group of people who were
clinically
>depressed and who attended regular meetings for this programme
where they
>would engage in activities such as crafts in a group setting with
the aim of
>improving their depression. In the beginning these people were
reluctant to
>try and believed themselves incapable of doing these activities
but they
>agreed to give it a go and eventually their confidence grew when
they saw
>themselves achieving things and by the end of the program their
depression
>had greatly improved.
>
>When we are very depressed we need a greater quantity of vitamin
C, because
>when you are stressed vitamin C goes out of your body quicker,
but if you
>are doing activities that do the opposite of stress you then your
>requitement for this vitamin will reduce.
>
>
>
>
>
>
>
>
>
>
>_________________________________________________________________
_______
>Get Your Private, Free E-mail from MSN Hotmail at
http://www.hotmail.com
=========================================================================
Date: Sun, 14 May 2000 12:57:41 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Robert A. Fink, M. D." <[log in to unmask]>
Subject: Re: Why Vitamins Have Come Under Attack
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Date sent: Sun, 14 May 2000 17:00:25 IST
Send reply to: Parkinson's Information Exchange Network <[log in to unmask]>
From: Sinead Aungier <[log in to unmask]>
Subject: Why Vitamins Have Come Under Attack
To: [log in to unmask]
> A recent study showed that ingredients found in common
> over-the-counter cold, pain, and allergy remedies actually lowered the
> blood level of vitamin A. Since vitamin A protects and strengthens
> the mucous membranes lining the nose, throat, and lungs, a deficiency
> could give bacteria a cosy home to multiply in, prolonging the illness
> the drug was meant to alleviate.
>
> Aspirin, the household wonder drug, the most common ingredient of pain
> relievers, cold and sinus remedies, is a vitamin-C thief. Even a
> small amount can triple the excretion rate of vitamin C from the body.
> It can also lead to a defieiency of folic acid, which could cause
> anaemia as well as digestive disturbances.
But none of the above would be "fixed" by adding vitamins to a diet
which was not deficient. While most vitamins given in overdosage are
not particularly harmful (the body simply excretes the excess), there
are some vitamins which, if given in overdosage, can cause serious
illness. Vitamins A and D are among these.
The excessive use of vitamins are most beneficial to the companies
who make the pills.
Best,
Bob
**********************************************
Robert A. Fink, M. D., F.A.C.S., P. C.
2500 Milvia Street Suite 222
Berkeley, California 94704-2636
Telephone: 510-849-2555 FAX: 510-849-2557
WWW: http://www.dovecom.com/rafink/
mailto:[log in to unmask]
"Ex Tristitia Virtus"
*********************************************
=========================================================================
Date: Sun, 14 May 2000 12:57:41 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Robert A. Fink, M. D." <[log in to unmask]>
Subject: Re: Drugs and You
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Date sent: Sun, 14 May 2000 17:25:33 IST
Send reply to: Parkinson's Information Exchange Network <[log in to unmask]>
From: Sinead Aungier <[log in to unmask]>
Subject: Drugs and You
To: [log in to unmask]
> More Excerpts from The Vitamin Bible:
>
> The release of stored sugar places heavy stress on the endocrine
> system.
Who says so? Not at all true, actually. What kind of "stress" on what
part of the endocrine system?
Heavy coffee drinkers often develop nervousness or become
> jittery. Coffee-drinking housewives demonstrated symptoms typical of
> drug withdrawal when switched to a decaffeinated beverage.
This is true, but only when large doses are ingested.
>
> People who drink five cups of coffee daily have a 50 percent greater
> chance of having heart attacks than non-coffee drinkers, according to
> the British Medical Journal.
Please let me have the citation.
>
> Scientists at John Hopkins University have shown that caffeine can
> interfere with DNA replication.
Also, a citation, please.
>
> The Centre for Science in the Public Interest advises pregnant women
> to stay away from caffeine, since studies have shown that the amount
> contained in about four cups of coffee per day causes birth defects in
> test animals.
And a few years ago, caffeine also caused heart attacks, hypertension,
breast cysts and a few other nasty things and recent data has
contradicted this allegation.
>
> High doses of caffeine will cause laboratory animals to go into
> convulsions and then die.
>
> Caffeine can be highly toxic [the lethal dose estimated to be around
> 10g] new research shows that the one quart of coffee consumed in three
> hours can destroy much of the body's thiamine.
Huge doses of caffeine will indeed cause convulsions. The dose
mentioned above (10 grams) is about the equivalent of a *thousand
cups* of very strong coffee! There is probably enough water in a
thousand cups of coffee to throw someone into fatal heart failure!
>
> Regular tea is not the answer either, since that has nearly as much
> caffeine. But herb teas can be quite invigorating.
Right. There are a few which contain poisonous substances such as
strychnine (in small doses).
>
>
> What Alcohol Does to Your Body
>
> Alcohol is the most widely used drug in our society, and because it is
> so available, most people don't think of it as a drug. But it is; and
> if misused, it can cause a lot of damage to your body.
>
> Alcohol is not a stimulant, but actually a sedative-depressant of the
> central nervous system.
>
> It is capable of rupturing veins.
Tell me how. Maybe if it (alcohol) is injected directly into veins.
Postings such as this, filled with half-truths (and an occasional truth),
can cause fear, guilt, and worse, if people in power are influenced, can
lead to abridgement of individual rights. We tried to ban alcohol in
this country and we got Al Capone; now we are working on
cigarettes; who knows, maybe steak and sex will be next?
Best,
Bob
**********************************************
Robert A. Fink, M. D., F.A.C.S., P. C.
2500 Milvia Street Suite 222
Berkeley, California 94704-2636
Telephone: 510-849-2555 FAX: 510-849-2557
WWW: http://www.dovecom.com/rafink/
mailto:[log in to unmask]
"Ex Tristitia Virtus"
*********************************************
=========================================================================
Date: Sun, 14 May 2000 22:21:28 IST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Sinead Aungier <[log in to unmask]>
Subject: Re: Drugs and You
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
Hi Barbara,
I am sorry for sending this mail to the list. I didn't realise it was
breaking copyright laws at the time. I wont send anything like this again.
Regards,
Sinead
>From: Earnie & Barbara Knight <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: Drugs and You
>Date: Sun, 14 May 2000 12:42:07 -0400
>
>Sinead:
>
>I appreciate your enthusiasm, but why don't you just ask those who are
>interested to privately email you.
>
>Also, are you aware you're violating copyright rules by scanning in those
>passages of the Vitamin Bible without written permission of
>author/publisher?
>
>Barb K
>
>-----Original Message-----
>From: Parkinson's Information Exchange Network
>[mailto:[log in to unmask]]On Behalf Of Sinead Aungier
>Sent: Sunday, May 14, 2000 1:26 PM
>To: [log in to unmask]
>Subject: Drugs and You
>
>
>More Excerpts from The Vitamin Bible:
>
>Chapter XVII
>
>Drugs and You
>
>Effects of Caffeine on the Body
>
>There are no doubts about it, Caffeine is a powerful drug. That's right,
>drug. Chances are you're not just enjoying your daily coffees or colas,
>you're addicted to them.
>
>Caffeine acts directly upon the central nervous system. It brings about an
>almost immediate sense of clearer thought and lessens fatigue. It also
>stimulates the release of stored sugar from the liver, which accounts for
>the "list" coffee, cola, and chocolate [the caffeine big three] give. But
>these benefits may be far outweighed by the side effects.
>
>The release of stored sugar places heavy stress on the endocrine system.
>Heavy coffee drinkers often develop nervousness or become jittery.
>Coffee-drinking housewives demonstrated symptoms typical of drug withdrawal
>when switched to a decaffeinated beverage.
>
>People who drink five cups of coffee daily have a 50 percent greater chance
>of having heart attacks than non-coffee drinkers, according to the British
>Medical Journal.
>
>Scientists at John Hopkins University have shown that caffeine can
>interfere
>with DNA replication.
>
>The Centre for Science in the Public Interest advises pregnant women to
>stay
>away from caffeine, since studies have shown that the amount contained in
>about four cups of coffee per day causes birth defects in test animals.
>
>High doses of caffeine will cause laboratory animals to go into convulsions
>and then die.
>
>Caffeine can be highly toxic [the lethal dose estimated to be around 10g]
>new research shows that the one quart of coffee consumed in three hours can
>destroy much of the body's thiamine.
>
>Regular tea is not the answer either, since that has nearly as much
>caffeine. But herb teas can be quite invigorating.
>
>
>What Alcohol Does to Your Body
>
>Alcohol is the most widely used drug in our society, and because it is so
>available, most people don't think of it as a drug. But it is; and if
>misused, it can cause a lot of damage to your body.
>
>Alcohol is not a stimulant, but actually a sedative-depressant of the
>central nervous system.
>
>It is capable of rupturing veins.
>It does not warm you up, but causes you to feel colder by increasing
>perspiration and body heat loss.
>It destroys brain cells by causing the withdrawal of necessary water from
>them.
>It can deplete the body of vitamin B1, B2, B6, B12, folic acid, vitamin C,
>vitamin K, zinc, magnesium and potassium.
>Four drinks a day are capable of causing organ damage.
>It can hamper the liver's ability to process fat.
>
>________________________________________________________________________
>Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com
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Date: Sun, 14 May 2000 21:23:48 GMT
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Judy George <[log in to unmask]>
Subject: Re: Drugs and You
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re vitamin bible
bob
god forbid that we try to eliminate steak AND sex
coffee? ..maybe alcohol....... well/ but steak and sex in australia
i think our nation would implode
thanks for the wise council on material which can be quite harmful if not
tempered by medical of proper dietary advice
who wrote the bible ?
who stands to gain from its publication?
thanks
judy
>From: "Robert A. Fink, M. D." <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: Drugs and You
>Date: Sun, 14 May 2000 12:57:41 -0700
>
>Date sent: Sun, 14 May 2000 17:25:33 IST
>Send reply to: Parkinson's Information Exchange Network
><[log in to unmask]>
>From: Sinead Aungier <[log in to unmask]>
>Subject: Drugs and You
>To: [log in to unmask]
>
> > More Excerpts from The Vitamin Bible:
> >
>
> > The release of stored sugar places heavy stress on the endocrine
> > system.
>
>
>Who says so? Not at all true, actually. What kind of "stress" on what
>part of the endocrine system?
>
>
>Heavy coffee drinkers often develop nervousness or become
> > jittery. Coffee-drinking housewives demonstrated symptoms typical of
> > drug withdrawal when switched to a decaffeinated beverage.
>
>This is true, but only when large doses are ingested.
>
>
>
> >
> > People who drink five cups of coffee daily have a 50 percent greater
> > chance of having heart attacks than non-coffee drinkers, according to
> > the British Medical Journal.
>
>
>Please let me have the citation.
>
>
>
> >
> > Scientists at John Hopkins University have shown that caffeine can
> > interfere with DNA replication.
>
>
>Also, a citation, please.
>
>
>
> >
> > The Centre for Science in the Public Interest advises pregnant women
> > to stay away from caffeine, since studies have shown that the amount
> > contained in about four cups of coffee per day causes birth defects in
> > test animals.
>
>
>And a few years ago, caffeine also caused heart attacks, hypertension,
>breast cysts and a few other nasty things and recent data has
>contradicted this allegation.
>
>
>
> >
> > High doses of caffeine will cause laboratory animals to go into
> > convulsions and then die.
> >
> > Caffeine can be highly toxic [the lethal dose estimated to be around
> > 10g] new research shows that the one quart of coffee consumed in three
> > hours can destroy much of the body's thiamine.
>
>Huge doses of caffeine will indeed cause convulsions. The dose
>mentioned above (10 grams) is about the equivalent of a *thousand
>cups* of very strong coffee! There is probably enough water in a
>thousand cups of coffee to throw someone into fatal heart failure!
>
>
>
> >
> > Regular tea is not the answer either, since that has nearly as much
> > caffeine. But herb teas can be quite invigorating.
>
>Right. There are a few which contain poisonous substances such as
>strychnine (in small doses).
>
>
>
> >
> >
> > What Alcohol Does to Your Body
> >
> > Alcohol is the most widely used drug in our society, and because it is
> > so available, most people don't think of it as a drug. But it is; and
> > if misused, it can cause a lot of damage to your body.
> >
> > Alcohol is not a stimulant, but actually a sedative-depressant of the
> > central nervous system.
> >
> > It is capable of rupturing veins.
>
>
>Tell me how. Maybe if it (alcohol) is injected directly into veins.
>
>
>Postings such as this, filled with half-truths (and an occasional truth),
>can cause fear, guilt, and worse, if people in power are influenced, can
>lead to abridgement of individual rights. We tried to ban alcohol in
>this country and we got Al Capone; now we are working on
>cigarettes; who knows, maybe steak and sex will be next?
>
>
>Best,
>
>Bob
>
>
>**********************************************
>Robert A. Fink, M. D., F.A.C.S., P. C.
>2500 Milvia Street Suite 222
>Berkeley, California 94704-2636
>Telephone: 510-849-2555 FAX: 510-849-2557
>WWW: http://www.dovecom.com/rafink/
>
>mailto:[log in to unmask]
>
>"Ex Tristitia Virtus"
>
>*********************************************
________________________________________________________________________
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Date: Sun, 14 May 2000 14:26:54 -0700
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: Drugs and You
In-Reply-To: "Robert A. Fink, M. D." <[log in to unmask]>'s message of Sun, 14 May
2000 12:57:41 -0700
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Thank you Dr Bob! How true it is that
we should be very careful what we read
and repeat as fact!
Juanita Cg for George 74 dx 98
=========================================================================
Date: Sun, 14 May 2000 17:58:32 EDT
Reply-To: Parkinson's Information Exchange Network
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From: "<Audrey Cashwell>" <[log in to unmask]>
Subject: Re: Feedback on Medication
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Fivestar thank you , my thyroid is fine ,no water
retention, I do eat wheat bread, things that I should ,and i do move around
a lot ,and I try to get some walks in 4 days out of the week I go go all day
no nap at all. So I dont know whats going on , I do go to a new DR. for the
PD this week I am hoping he could help me , and thank you for your time.
=========================================================================
Date: Sun, 14 May 2000 18:09:07 EDT
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Drugs and You
What , Judy George are you saying? Give up sex? God we'd all float up
to the etheric. Jo Ann from Houston
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Date: Mon, 15 May 2000 00:20:57 +0200
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Date: Sun, 14 May 2000 23:20:01 GMT
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Judy George <[log in to unmask]>
Subject: Re: Drugs and You
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JoAann
red meat and sex and alcohol are of some importance to many australians
careful of the stereotype of course
our nation would implode without them i think
so i was hoping that noone was suggesting we destroy this island state by
prohibition
judy
>From: Jo Ann Coen <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: Drugs and You
>Date: Sun, 14 May 2000 18:09:07 EDT
>
>What , Judy George are you saying? Give up sex? God we'd all float up
>to the etheric. Jo Ann from Houston
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Date: Sun, 14 May 2000 12:06:30 -0700
Reply-To: Parkinson's Information Exchange Network
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From: Charles E Murray <[log in to unmask]>
Subject: Re: Feedback on Medication
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Don't know about sinemet, but Requip causes a little nausea, and I've
gain 15 pounds, assuming I eat more to settle stomach. Also, less
exercise equals less muscle equals lower metabolism?
Chuck
On Sun, 14 May 2000 11:29:05 EDT "<Audrey Cashwell>" <[log in to unmask]>
writes:
> Hello to all
> On Sinemet Cr for about 2
> yrs
> ,starting to hear that they save the sinemet for later on in the
> Parkinson,
> Because it work so good . I'am putting on weight like crazy ,and I
> don't know
> why . Eating is less cut a lot things , and i still don't know what
> to do ?
> Any one help.
>
> Audrey C
>
> From CT
=========================================================================
Date: Sun, 14 May 2000 16:21:22 -0700
Reply-To: Parkinson's Information Exchange Network
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From: Charles E Murray <[log in to unmask]>
Subject: Re: depression / jane kenyon's description-panic attacks
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Just finished third reading of Jane Kenyon's poem. I is very touching.
My heart goes out to other's who have come to experience CD as a
persistent invader, against which medication offers the only defense.
Hard not to begin seeing oneself as "A piece of burned meat," as Ms.
Kenyon put it.
I wonder how many on our list have experienced panic (anxiety) attacks?
I have read in the PD literature that anxiety, including full blown panic
attacks are common among PWP.
For some reason the poem took me back to the late 60's when I began a
long affair with panic attacks. The first one came out of "nowhere," my
heart simply accelerating, my palms began to sweat, breath coming in
gasps to accompany a sudden sense of impending doom. Where, I
frantically wondered, is this coming from, I was laying in bed late on a
Friday night for heaven's sake?
My anxiety learned from itself and bore offspring. After several
"invasions," the fear of invasion took on a life of its own. All I had
to do was remember I was a helpless victim of this enemy to bring panic
back for another performance.
Cunning and clever, it learned to pray on me in situations where I would
be most vulnerable, such as when I could not find a way of avoiding a
long automobile ride with other people. Overnight, it turned mild
discomforts into major phobias with its fear boosting effect. I tried a
variety of drugs, including Inderal, valium, and, of course, alcohol, to
cope. They helped, but this enemy simply adapted and grew like a strain
of antibiotic resistant virus.
After I embarked on a path of spiritual recovery the episodes became
shorter, milder and further apart, eventually becoming a manageable
annoyance. But came a day when my worst phobia of old was unavoidable,
a 5 hour ride with a friend (woman) in response to a request that we help
conduct a 12 step workshop at a holistic healing facility in Northern
California. Sure enough, we were no sooner on the road than I began to
feel anxiety surging through me. With the prospect of hundreds of miles
of misery ahead, I asked for a break in our conversation to meditate.
For no apparent reason I chose to visualize something never before
attempted by me---I thought of myself as a small baby in my mother's arms
(maybe I'm reminded of this because it is mother's day). I visualized
her telling me I was safe, loved, and that nothing I might do in that
moment would change her love for me. I was filled with a sense of being
surrounded by unconditional love. My heartbeat slowed, my palms became
dry, the feeling that something worse than death was imminent left me. I
thoroughly enjoyed the rest of the drive.
That was the last attack and it was many years ago, for I learned that
this enemy was a part of me, it belonged to my mind, the most powerful
force over which I have influence and quite literally the seat of my
"reality" as experienced in the context of human experience. Fear, I
came to understand, has no objective reality, but depends totally on my
attitudes, expectations and perceptions. With panic attacks I had come
to "expect" panic, much as Jane Kenyon came to expect depression to
return. For reasons still unclear (but guilt is high on the suspect
list) I had been choosing fear most of my life. For the first time I
agreed to own the fear, and in doing so I was empowered to make a new
choice, and that choice was to turn my life over to the presence and care
of Love.,
PD has brought a roller coaster of sensations, mental and physical, which
come in unpredictable waves. So far, however, I have been able to
understand that these sensations that arise from the chemicals (or lack
thereof) ebbing and flowing within me ARE NOT ME, and I don't have to go
where they are trying to take me. Making a daily decision to trust in
Love has allowed me to simply let these sensations be, neither fighting
them or giving them power. With Love as the REAL power within me, the
condition of my body no longer controls my happiness or lack thereof.
I am very thankful after reading all the posts that my problem was panic
attacks, rather than CD, and that my bouts with depression never reached
the level (so far) of CD as experienced by many on the list.
Sat, 13 On May 2000 07:55:29 -0700 Carole Hercun <[log in to unmask]>
writes:
> janet-What a wondrous writer! Thank you for the
> introduction. Carole
>
>
> --- janet paterson <[log in to unmask]> wrote:
> > this is a repost
> > of the best description of the experience of cd
> > that i have ever found
> >
> > janet
> >
> >
> -----------------------------------------------------------------------
> > Post: 029603
> > Date: Sat, 23 Aug 1997
> > From: janet paterson
> > Subj: CD: A Poem by Jane Kenyon
> >
> -----------------------------------------------------------------------
> >
> > HAVING IT OUT WITH MELANCHOLY
> >
> > If many remedies are prescribed for an illness,
> > you may be certain that the illness has no
> > cure.
> >
> > A.P. Chekhov
> > The Cherry Orchard
> >
> >
> > 1 FROM THE NURSERY
> >
> > When I was born, you waited
> > behind a pile of linen in the nursery,
> > and when we were alone, you lay down
> > on top of me, pressing
> > the bile of desolation into every pore.
> > And from that day on
> > everything under the sun and moon
> > made me sad=97even the yellow
> > wooden beads that slid and spun
> > along a spindle on my crib.
> >
> > You taught me to exist without gratitude.
> > You ruined my manners toward God:
> > "We're here simply to wit for death;
> > the pleasures of earth are overrated."
> >
> > I only appeared to belong to my mother,
> > to live among blocks and cotton undershirts
> > with snaps; among red tin lunch boxes
> > and report cards in ugly brown slipcases.
> > I was already yours=97the anti-urge,
> > the mutilator of souls.
> >
> > 2 BOTTLES
> >
> > Elavil, Ludiomil, Doxepin,
> > Norpramin, Prozac, Lithium, Xanax,
> > Wellbutrin, Parnate, Nardil, Zoloft.
> > The coated ones smell sweet or have
> > no smell; the powdery ones smell
> > like the chemistry lab at school
> > that made me hold my breath.
> >
> > 3 SUGGESTION FROM A FRIEND
> >
> > You wouldn't be so depressed
> > if you really believed in God.
> >
> > 4 OFTEN
> >
> > Often I go to bed as soon after dinner
> > as seems adult
> > (I mean I try to wait for dark)
> > in order to push away
> > from the massive pain in sleep's
> > frail wicker coracle.
> >
> > 5 ONCE THERE WAS LIGHT
> >
> > Once, in my early thirties, I saw
> > that I was a speck of light in the great
> > river of light that undulates through time.
> > I was floating with the whole
> > human family. We were all colors - those
> > who are living now, those who have died,
> > those who are not yet born. For a few
> > moments I floated, completely calm,
> > and I no longer hated having to exist.
> >
> > Like a crow who smells hot blood
> > you came flying to pull me out
> > of the glowing stream.
> > "I'll hold you up. I never let my dear
> > ones drown!" After that, I wept for days.
> >
> > 6 IN AND OUT
> >
> > The dog searches until he finds me
> > upstairs, lies down with a clatter
> > of elbows, puts his head on my foot.
> >
> > Sometimes the sound of his breathing
> > saves my life - in and out, in
> > and out; a pause, a long sigh...
> >
> > 7 PARDON
> >
> > A piece of burned meat
> > wears my clothes, speaks
> > in my voice, dispatches obligations
> > haltingly, or not at all.
> > It is tired of trying
> > to be stouthearted, tired
> > beyond measure.
> >
> > We move on to the monoamine
> > oxidase inhibitors. Day and night
> > I feel as if I had drunk six cups
> > of coffee, but the pain stops
> > abruptly. With the wonder
> > and bitterness of someone pardoned
> > for a crime she did not commit
> > I come back to marriage and friends,
> > to pink-fringed hollyhocks; come back
> > to my desk, books, and chair.
> >
> > 8 CREDO
> >
> > Pharmaceutical wonders are at work
> > but I believe only in this moment
> > of well-being. Unholy ghost,
> > you are certain to come again.
> >
> > Coarse, mean, you'll put your feet
> > on the coffee table, lean back,
> > and turn me into someone who can't
> > take the trouble to speak; someone
> > who can't sleep, or who does nothing
> > but sleep; can't read, or call
> > for an appointment for help.
> >
> > There is nothing I can do
> > against your coming.
> > When I am awake, I am still with thee.
> >
> > 9 WOOD THRUSH
> >
> > High on Nardil and June light
> > I wake at four,
> > waiting greedily for the first
> > notes of the wood thrush. Easeful air
> > presses through the screen
> > with the wild, complex song
> > of the bird, and I am overcome
> > by ordinary contentment.
> > What hurt me so terribly
> > all my life until this moment?
> > How I love the small, swiftly
> > beating heart of the bird
> > singing in the great maples;
> > its bright, unequivocal eye.
> >
> > Jane Kenyon
> >
> >
> > Copyright 1996 by Jane Kenyon
> > >From Otherwise: New & Selected Poems
> > <http://www.graywolfpress.org/>
> >
> -------------------------------------------------------------------
> >
> > janet paterson
> > 53 now / 41 dx / 37 onset
> > 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
> > come visit my website "a new voice" at:
> > http://www.geocities.com/janet313/
>
>
> __________________________________________________
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=========================================================================
Date: Sun, 14 May 2000 16:21:37 -0700
Reply-To: Parkinson's Information Exchange Network
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From: Hilary Zunin <[log in to unmask]>
Subject: Sleep talk!
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Is anyone else experiencing an increase in talking in your sleep, =
perhaps secondary to PD meds (Eldepryl, Amantadine, Mirapex)? My =
husband, Len (64/5), is chatting up a storm these days. I keep a pad =
near the bed so that I can jot down the most interesting remarks. Just =
last week, he said this one:
"It seems unnecessary, premature, and ridiculous. Other than =
that, I'm all for it!"
Actually, we've found this phrase amazingly useful at the oddest times. =
Anyway, he'll sometimes even repeat a phrase if I've missed a word and =
whisper a request for him to do so. All of this without waking or any =
memory of the words the next morning. Comments?
hilary
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<STYLE></STYLE>
</HEAD>
<BODY bgColor=3D#ffffff>
<DIV>Is anyone else experiencing an increase in talking in your sleep, =
perhaps=20
secondary to PD meds (Eldepryl, Amantadine, Mirapex)? My =
husband,=20
Len (64/5), is chatting up a storm these days. I keep a pad near =
the bed=20
so that I can jot down the most interesting remarks. Just last =
week, he=20
said this one:</DIV>
<DIV> </DIV>
<DIV> "It seems unnecessary, =
premature, and=20
ridiculous. Other than that, I'm all for it!"</DIV>
<DIV> </DIV>
<DIV>Actually, we've found this phrase amazingly useful at the oddest=20
times. </DIV>
<DIV> </DIV>
<DIV>Anyway, he'll sometimes even repeat a phrase if I've missed a =
word and=20
whisper a request for him to do so. All of this without waking or =
any=20
memory of the words the next morning. Comments?</DIV>
<DIV> </DIV>
<DIV>hilary</DIV></BODY></HTML>
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=========================================================================
Date: Sun, 14 May 2000 23:43:24 GMT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Judy George <[log in to unmask]>
Subject: Re: depression / jane kenyon's description-panic attacks
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chuck
re depression as experienced in my own family
after much thought and talk to doctors and the usual commonsense approach to
this thing
for our family some of it we think was and is hormonal
as i have aged there is less incidence of the phenomenon
my mother suffered intense depression especially during pregnancy
a daughter has the similar characteristics
stressful situations seem to exacerbate it
it catches one off side often and seems to materialise at odd times
we all cope by understanding what it is and trying to minimise the outside
influences
no always possible but certainly of assistance in management
accepting the fact that it is and managing it for us is helpful
from my reading of biographies of highly creative and reflective people it
may be part and parcel of highly creative individuals
no proof robert but in the writings it comes up so often
judy
>From: Charles E Murray <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: depression / jane kenyon's description-panic attacks
>Date: Sun, 14 May 2000 16:21:22 -0700
>
>Just finished third reading of Jane Kenyon's poem. I is very touching.
>My heart goes out to other's who have come to experience CD as a
>persistent invader, against which medication offers the only defense.
>Hard not to begin seeing oneself as "A piece of burned meat," as Ms.
>Kenyon put it.
>
>I wonder how many on our list have experienced panic (anxiety) attacks?
>I have read in the PD literature that anxiety, including full blown panic
>attacks are common among PWP.
>
>For some reason the poem took me back to the late 60's when I began a
>long affair with panic attacks. The first one came out of "nowhere," my
>heart simply accelerating, my palms began to sweat, breath coming in
>gasps to accompany a sudden sense of impending doom. Where, I
>frantically wondered, is this coming from, I was laying in bed late on a
>Friday night for heaven's sake?
>
>My anxiety learned from itself and bore offspring. After several
>"invasions," the fear of invasion took on a life of its own. All I had
>to do was remember I was a helpless victim of this enemy to bring panic
>back for another performance.
>
>Cunning and clever, it learned to pray on me in situations where I would
>be most vulnerable, such as when I could not find a way of avoiding a
>long automobile ride with other people. Overnight, it turned mild
>discomforts into major phobias with its fear boosting effect. I tried a
>variety of drugs, including Inderal, valium, and, of course, alcohol, to
>cope. They helped, but this enemy simply adapted and grew like a strain
>of antibiotic resistant virus.
>
>After I embarked on a path of spiritual recovery the episodes became
>shorter, milder and further apart, eventually becoming a manageable
>annoyance. But came a day when my worst phobia of old was unavoidable,
>a 5 hour ride with a friend (woman) in response to a request that we help
>conduct a 12 step workshop at a holistic healing facility in Northern
>California. Sure enough, we were no sooner on the road than I began to
>feel anxiety surging through me. With the prospect of hundreds of miles
>of misery ahead, I asked for a break in our conversation to meditate.
>
>For no apparent reason I chose to visualize something never before
>attempted by me---I thought of myself as a small baby in my mother's arms
>(maybe I'm reminded of this because it is mother's day). I visualized
>her telling me I was safe, loved, and that nothing I might do in that
>moment would change her love for me. I was filled with a sense of being
>surrounded by unconditional love. My heartbeat slowed, my palms became
>dry, the feeling that something worse than death was imminent left me. I
>thoroughly enjoyed the rest of the drive.
>
>That was the last attack and it was many years ago, for I learned that
>this enemy was a part of me, it belonged to my mind, the most powerful
>force over which I have influence and quite literally the seat of my
>"reality" as experienced in the context of human experience. Fear, I
>came to understand, has no objective reality, but depends totally on my
>attitudes, expectations and perceptions. With panic attacks I had come
>to "expect" panic, much as Jane Kenyon came to expect depression to
>return. For reasons still unclear (but guilt is high on the suspect
>list) I had been choosing fear most of my life. For the first time I
>agreed to own the fear, and in doing so I was empowered to make a new
>choice, and that choice was to turn my life over to the presence and care
>of Love.,
>
>PD has brought a roller coaster of sensations, mental and physical, which
>come in unpredictable waves. So far, however, I have been able to
>understand that these sensations that arise from the chemicals (or lack
>thereof) ebbing and flowing within me ARE NOT ME, and I don't have to go
>where they are trying to take me. Making a daily decision to trust in
>Love has allowed me to simply let these sensations be, neither fighting
>them or giving them power. With Love as the REAL power within me, the
>condition of my body no longer controls my happiness or lack thereof.
>
>I am very thankful after reading all the posts that my problem was panic
>attacks, rather than CD, and that my bouts with depression never reached
>the level (so far) of CD as experienced by many on the list.
>
>Sat, 13 On May 2000 07:55:29 -0700 Carole Hercun <[log in to unmask]>
>writes:
> > janet-What a wondrous writer! Thank you for the
> > introduction. Carole
> >
> >
> > --- janet paterson <[log in to unmask]> wrote:
> > > this is a repost
> > > of the best description of the experience of cd
> > > that i have ever found
> > >
> > > janet
> > >
> > >
> > -----------------------------------------------------------------------
> > > Post: 029603
> > > Date: Sat, 23 Aug 1997
> > > From: janet paterson
> > > Subj: CD: A Poem by Jane Kenyon
> > >
> > -----------------------------------------------------------------------
> > >
> > > HAVING IT OUT WITH MELANCHOLY
> > >
> > > If many remedies are prescribed for an illness,
> > > you may be certain that the illness has no
> > > cure.
> > >
> > > A.P. Chekhov
> > > The Cherry Orchard
> > >
> > >
> > > 1 FROM THE NURSERY
> > >
> > > When I was born, you waited
> > > behind a pile of linen in the nursery,
> > > and when we were alone, you lay down
> > > on top of me, pressing
> > > the bile of desolation into every pore.
> > > And from that day on
> > > everything under the sun and moon
> > > made me sad=97even the yellow
> > > wooden beads that slid and spun
> > > along a spindle on my crib.
> > >
> > > You taught me to exist without gratitude.
> > > You ruined my manners toward God:
> > > "We're here simply to wit for death;
> > > the pleasures of earth are overrated."
> > >
> > > I only appeared to belong to my mother,
> > > to live among blocks and cotton undershirts
> > > with snaps; among red tin lunch boxes
> > > and report cards in ugly brown slipcases.
> > > I was already yours=97the anti-urge,
> > > the mutilator of souls.
> > >
> > > 2 BOTTLES
> > >
> > > Elavil, Ludiomil, Doxepin,
> > > Norpramin, Prozac, Lithium, Xanax,
> > > Wellbutrin, Parnate, Nardil, Zoloft.
> > > The coated ones smell sweet or have
> > > no smell; the powdery ones smell
> > > like the chemistry lab at school
> > > that made me hold my breath.
> > >
> > > 3 SUGGESTION FROM A FRIEND
> > >
> > > You wouldn't be so depressed
> > > if you really believed in God.
> > >
> > > 4 OFTEN
> > >
> > > Often I go to bed as soon after dinner
> > > as seems adult
> > > (I mean I try to wait for dark)
> > > in order to push away
> > > from the massive pain in sleep's
> > > frail wicker coracle.
> > >
> > > 5 ONCE THERE WAS LIGHT
> > >
> > > Once, in my early thirties, I saw
> > > that I was a speck of light in the great
> > > river of light that undulates through time.
> > > I was floating with the whole
> > > human family. We were all colors - those
> > > who are living now, those who have died,
> > > those who are not yet born. For a few
> > > moments I floated, completely calm,
> > > and I no longer hated having to exist.
> > >
> > > Like a crow who smells hot blood
> > > you came flying to pull me out
> > > of the glowing stream.
> > > "I'll hold you up. I never let my dear
> > > ones drown!" After that, I wept for days.
> > >
> > > 6 IN AND OUT
> > >
> > > The dog searches until he finds me
> > > upstairs, lies down with a clatter
> > > of elbows, puts his head on my foot.
> > >
> > > Sometimes the sound of his breathing
> > > saves my life - in and out, in
> > > and out; a pause, a long sigh...
> > >
> > > 7 PARDON
> > >
> > > A piece of burned meat
> > > wears my clothes, speaks
> > > in my voice, dispatches obligations
> > > haltingly, or not at all.
> > > It is tired of trying
> > > to be stouthearted, tired
> > > beyond measure.
> > >
> > > We move on to the monoamine
> > > oxidase inhibitors. Day and night
> > > I feel as if I had drunk six cups
> > > of coffee, but the pain stops
> > > abruptly. With the wonder
> > > and bitterness of someone pardoned
> > > for a crime she did not commit
> > > I come back to marriage and friends,
> > > to pink-fringed hollyhocks; come back
> > > to my desk, books, and chair.
> > >
> > > 8 CREDO
> > >
> > > Pharmaceutical wonders are at work
> > > but I believe only in this moment
> > > of well-being. Unholy ghost,
> > > you are certain to come again.
> > >
> > > Coarse, mean, you'll put your feet
> > > on the coffee table, lean back,
> > > and turn me into someone who can't
> > > take the trouble to speak; someone
> > > who can't sleep, or who does nothing
> > > but sleep; can't read, or call
> > > for an appointment for help.
> > >
> > > There is nothing I can do
> > > against your coming.
> > > When I am awake, I am still with thee.
> > >
> > > 9 WOOD THRUSH
> > >
> > > High on Nardil and June light
> > > I wake at four,
> > > waiting greedily for the first
> > > notes of the wood thrush. Easeful air
> > > presses through the screen
> > > with the wild, complex song
> > > of the bird, and I am overcome
> > > by ordinary contentment.
> > > What hurt me so terribly
> > > all my life until this moment?
> > > How I love the small, swiftly
> > > beating heart of the bird
> > > singing in the great maples;
> > > its bright, unequivocal eye.
> > >
> > > Jane Kenyon
> > >
> > >
> > > Copyright 1996 by Jane Kenyon
> > > >From Otherwise: New & Selected Poems
> > > <http://www.graywolfpress.org/>
> > >
> > -------------------------------------------------------------------
> > >
> > > janet paterson
> > > 53 now / 41 dx / 37 onset
> > > 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada
> > > come visit my website "a new voice" at:
> > > http://www.geocities.com/janet313/
> >
> >
> > __________________________________________________
> > Do You Yahoo!?
> > Send instant messages & get email alerts with Yahoo! Messenger.
> > http://im.yahoo.com/
________________________________________________________________________
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=========================================================================
Date: Sun, 14 May 2000 23:47:59 GMT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Judy George <[log in to unmask]>
Subject: Re: Sleep talk!
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
hilary
what a scream
i talk or mumble as i go to sleep if i am very tired or in a stressful
situation e.g.travelling
my granddaughters think it is hilarious but get frustrated because they cant
discern what i am saying
thank goodness perhaps
i am not medicated and it only occurs in extreme tiredness or stress
judy
>From: Hilary Zunin <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Sleep talk!
>Date: Sun, 14 May 2000 16:21:37 -0700
>
>Is anyone else experiencing an increase in talking in your sleep, perhaps
>secondary to PD meds (Eldepryl, Amantadine, Mirapex)? My husband, Len
>(64/5), is chatting up a storm these days. I keep a pad near the bed so
>that I can jot down the most interesting remarks. Just last week, he said
>this one:
>
> "It seems unnecessary, premature, and ridiculous. Other than
>that, I'm all for it!"
>
>Actually, we've found this phrase amazingly useful at the oddest times.
>
>Anyway, he'll sometimes even repeat a phrase if I've missed a word and
>whisper a request for him to do so. All of this without waking or any
>memory of the words the next morning. Comments?
>
>hilary
________________________________________________________________________
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=========================================================================
Date: Sun, 14 May 2000 12:06:33 +1200
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Parkinsons NZ Information Centre <[log in to unmask]>
Subject: have you heard of?
MIME-Version: 1.0
Content-Type: multipart/alternative;
boundary="----=_NextPart_000_0017_01BFBD9C.D884E880"
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------=_NextPart_000_0017_01BFBD9C.D884E880
Content-Type: text/plain;
charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Has anyone heard of Stiffman's Disease or Hypertonia? I gather it comes =
under the general umbrella of Parkinsonism. Any info gratefully =
received.
Thanks
Eva Petro
------=_NextPart_000_0017_01BFBD9C.D884E880
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charset="iso-8859-1"
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<!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
<HTML><HEAD>
<META content=3D"text/html; charset=3Diso-8859-1" =
http-equiv=3DContent-Type>
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<STYLE></STYLE>
</HEAD>
<BODY bgColor=3D#ffffff>
<DIV><FONT face=3DArial size=3D2>Has anyone heard of Stiffman's Disease =
or=20
Hypertonia? I gather it comes under the general umbrella of =
Parkinsonism. Any=20
info gratefully received.</FONT></DIV>
<DIV> </DIV>
<DIV><FONT face=3DArial size=3D2>Thanks</FONT></DIV>
<DIV><FONT face=3DArial size=3D2>Eva Petro</FONT></DIV></BODY></HTML>
------=_NextPart_000_0017_01BFBD9C.D884E880--
=========================================================================
Date: Sun, 14 May 2000 20:08:55 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "William A. Parrette" <[log in to unmask]>
Subject: It just seemed a bit odd ... & Reviewing e-mail 101
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; charset=US-ASCII
Hi all,
First off let me say that I am not trying to flame anybody, it
is not my intent to make anybody mad or hurt anyone's feelings,
and I am not writing this note to boost my own ego or to try to
punch holes in the egos of others. It just seemed a bit odd that
...
I was reading through the digest and came upon three separate
notes about copyright issues regarding the posting of entire
chapters of a book (and as a published author as well, I happen
to agree with). And, it just seemed a bit odd that each of the
three separate posts quoted the entire text of one of the chap-
ters that were being complained about in their reply.
What is odd is that the copyrighted text that was under dis-
cussion had now been posted a total of four times. I might hu-
morously ask if there is a copyright law about copying a copy of
a violated work in an e-mail reply. Or, would the thought be too
recursive?
Anyway, this brings up one of my smaller e-mail pet peeves.
It is a fairly common form of Internet courtesy -- or 'Netiquette
-- to only include the *portion* of the text of the e-mail that
you are replying to in your reply -- not the *entire* message.
Only include that text which helps someone understand the context
of your reply.
I know that it is easier to press "Reply," add some text, and
press "Send." But, consider the fact that everyone on-list has
seen the original message at least once. Do, they need to see
the entire text of it again? And, people (like me :-) ) on the
digest don't have the option of deleting a message after we read
the reply. We get the whole thing with dozens of other, similar
messages surrounding it. And, when it starts becoming quotes of
quotes of quotes of quotes, it gets a little annoying.
For most folks, this is a simple mouse operation: point to the
text you don't need, press mouse button one, hold and drag until
the text you don't want to include is highlighted, and then press
the backspace or delete key. Or, if you don't want the text of
the original message in your reply at all, it's a very simple Op-
tion/Preference change in most mailers.
There is already a list-contingent who is trying (slowly but
surely) to get list-members to post in plain text -- no MIME at-
tachments, no included HTML -- and they are being somewhat suc-
cessful. If we could just add this one little thing, in my opin-
ion, everybody's list experience would be a little bit better.
Thank you for taking the time to let me invade your mailbox
with my opinion. We now take you back to your regularly sched-
uled Parkinson's chat.
Bill--
...who heard a wise man say "Never play leapfrog with a Unicorn."
.___. William A. ....._..._ .......7177 Heritage Drive (42?) - (42?) ----+
| _ \__ _ _ _ _ _ ___| |_| |_ ___ .Westchester........| \ ___ \ ___ |
| _/ _` | '_| '_/ -_) _| _/ -_).OH 45069-4012......| (o o) (o o) |
|_| \__,_|_| |_| \___|\__|\__\___|.513/779-0780.......| ( V ) ( V )|
..... http://w3.one.net/~wap/ .... [log in to unmask] .......+- /--m-m- /--m-m--+
=========================================================================
Date: Sun, 14 May 2000 19:09:08 -0500
Reply-To: "Charles T. Meyer MD" <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Charles T. Meyer MD" <[log in to unmask]>
Subject: Re: Drugs and You
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Bob:
According to some sources Mindell has been sentenced to prison. A review of
one of his works can be found at:
http://www.quackwatch.com/cgi-bin/mfs/24/home/sbinfo/public_html/04ConsumerE
ducation/NegativeBR/hbible.html?36#mfs
caveat emptor
Charlie
----- Original Message -----
From: "Robert A. Fink, M. D." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, May 14, 2000 2:57 PM
Subject: Re: Drugs and You
> Date sent: Sun, 14 May 2000 17:25:33 IST
> Send reply to: Parkinson's Information Exchange Network
<[log in to unmask]>
> From: Sinead Aungier <[log in to unmask]>
> Subject: Drugs and You
> To: [log in to unmask]
>
> > More Excerpts from The Vitamin Bible:
> >
>
> > The release of stored sugar places heavy stress on the endocrine
> > system.
>
>
> Who says so? Not at all true, actually. What kind of "stress" on what
> part of the endocrine system?
>
>
> Heavy coffee drinkers often develop nervousness or become
> > jittery. Coffee-drinking housewives demonstrated symptoms typical of
> > drug withdrawal when switched to a decaffeinated beverage.
>
> This is true, but only when large doses are ingested.
>
>
>
> >
> > People who drink five cups of coffee daily have a 50 percent greater
> > chance of having heart attacks than non-coffee drinkers, according to
> > the British Medical Journal.
>
>
> Please let me have the citation.
>
>
>
> >
> > Scientists at John Hopkins University have shown that caffeine can
> > interfere with DNA replication.
>
>
> Also, a citation, please.
>
>
>
> >
> > The Centre for Science in the Public Interest advises pregnant women
> > to stay away from caffeine, since studies have shown that the amount
> > contained in about four cups of coffee per day causes birth defects in
> > test animals.
>
>
> And a few years ago, caffeine also caused heart attacks, hypertension,
> breast cysts and a few other nasty things and recent data has
> contradicted this allegation.
>
>
>
> >
> > High doses of caffeine will cause laboratory animals to go into
> > convulsions and then die.
> >
> > Caffeine can be highly toxic [the lethal dose estimated to be around
> > 10g] new research shows that the one quart of coffee consumed in three
> > hours can destroy much of the body's thiamine.
>
> Huge doses of caffeine will indeed cause convulsions. The dose
> mentioned above (10 grams) is about the equivalent of a *thousand
> cups* of very strong coffee! There is probably enough water in a
> thousand cups of coffee to throw someone into fatal heart failure!
>
>
>
> >
> > Regular tea is not the answer either, since that has nearly as much
> > caffeine. But herb teas can be quite invigorating.
>
> Right. There are a few which contain poisonous substances such as
> strychnine (in small doses).
>
>
>
> >
> >
> > What Alcohol Does to Your Body
> >
> > Alcohol is the most widely used drug in our society, and because it is
> > so available, most people don't think of it as a drug. But it is; and
> > if misused, it can cause a lot of damage to your body.
> >
> > Alcohol is not a stimulant, but actually a sedative-depressant of the
> > central nervous system.
> >
> > It is capable of rupturing veins.
>
>
> Tell me how. Maybe if it (alcohol) is injected directly into veins.
>
>
> Postings such as this, filled with half-truths (and an occasional truth),
> can cause fear, guilt, and worse, if people in power are influenced, can
> lead to abridgement of individual rights. We tried to ban alcohol in
> this country and we got Al Capone; now we are working on
> cigarettes; who knows, maybe steak and sex will be next?
>
>
> Best,
>
> Bob
>
>
> **********************************************
> Robert A. Fink, M. D., F.A.C.S., P. C.
> 2500 Milvia Street Suite 222
> Berkeley, California 94704-2636
> Telephone: 510-849-2555 FAX: 510-849-2557
> WWW: http://www.dovecom.com/rafink/
>
> mailto:[log in to unmask]
>
> "Ex Tristitia Virtus"
>
> *********************************************
=========================================================================
Date: Sun, 14 May 2000 20:22:19 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "William A. Parrette" <[log in to unmask]>
Subject: Vitamins, herbs, etc. ... conflicts?
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; charset=US-ASCII
Hi all,
Since the topic of vitamins has come up recently ( ;-) ), I
would like to know if anybody has knowledge of conflicts between
herbs or specialty vitamin-type things and typical Parkinson's
medications.
I, of course, am aware of the B-conflict.
Specifically, Ginseng, NADH, or others conflicting with Lev-
odopa/Carbidopa, Selegilene, or Benzotropine. Any thoughts, in-
put, or ideas from anybody?
Thanks in advance ...
Bill--
...who's telling you it *is* as bad as you think & they *are* out to get you.
,--,
.___. William A. ....._..._ .......7177 Heritage Drive+---- _ ___/ /\| -+
| _ \__ _ _ _ _ _ ___| |_| |_ ___ .Westchester........| ,;`( )42, ) ~ |
| _/ _` | '_| '_/ -_) _| _/ -_).OH 45069-4012......| // //---'--; |
|_| \__,_|_| |_| \___|\__|\__\___|.513/779-0780.......| ' \ | ^ |
..... http://w3.one.net/~wap/ .... [log in to unmask] .......+----- ^ -- ^ -----+
=========================================================================
Date: Sun, 14 May 2000 17:25:00 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: YH <[log in to unmask]>
Subject: Tremor & Shiver
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Is there a relationship between shiver and tremor ?
I am getting more tremor on my left arm and it appears
to be more pronounced when I am cold.
Years before I started having my other PD symptoms my
left arm
shivers during winter months and not any where else of
my body.
Is this what others have experienced ?
YH
__________________________________________________
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=========================================================================
Date: Sun, 14 May 2000 20:31:25 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "William A. Parrette" <[log in to unmask]>
Subject: Re: ... copyright info AND private e-mail
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; charset=US-ASCII
Hi all,
On Sun, 14 May 2000, the digest contained:
> Date: Sun, 14 May 2000 12:35:06 -0600
> From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
> Subject: Re: depression / copyright info
> ...
> And that, by the way, includes e-mail posts to listservs. It's not OK to
> use another person's e-mailed post without their permission. Although it
> is most commonly considered merely a breach of netiquette, it is
> actually an infringement of copyright.
Thank you, Kathrynne. Having had this issue pop up on my
rock-music-related mailing list recently, I am acutely aware of
the issue/problem. I'm actually quite surprised at myself for
forgetting to mention this excellent point in my recent post.
Thanks again ...
Bill--
...who wants to know why a carrot is more orange than an orange?
.___. William A. ....._..._ .......7177 Heritage Drive+ (42?) -----------+
| _ \__ _ _ _ _ _ ___| |_| |_ ___ .Westchester........| O ______ |
| _/ _` | '_| '_/ -_) _| _/ -_).OH 45069-4012......| o / o \_/( |
|_| \__,_|_| |_| \___|\__|\__\___|.513/779-0780.......| (_ < _ ( |
..... http://w3.one.net/~wap/ .... [log in to unmask] .......+----- \______/ \( +
=========================================================================
Date: Mon, 15 May 2000 01:28:44 GMT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Judy George <[log in to unmask]>
Subject: Re: It just seemed a bit odd ... & Reviewing e-mail 101
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
william
the mind picture of anyone playing leapfrog with a unicorn made me laugh so
much i had to take to the sedatives to get back onto the internet
could have used it in my former life in a school to immobilise some of those
difficult boys
what a hoot
thanks for the advice re emailling
i am new to it and find i cant absorb all the refined techniques quickly
thanks judy
>From: "William A. Parrette" <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: It just seemed a bit odd ... & Reviewing e-mail 101
>Date: Sun, 14 May 2000 20:08:55 -0400
>
>Hi all,
>
> First off let me say that I am not trying to flame anybody, it
> is not my intent to make anybody mad or hurt anyone's feelings,
> and I am not writing this note to boost my own ego or to try to
> punch holes in the egos of others. It just seemed a bit odd that
> ...
>
> I was reading through the digest and came upon three separate
> notes about copyright issues regarding the posting of entire
> chapters of a book (and as a published author as well, I happen
> to agree with). And, it just seemed a bit odd that each of the
> three separate posts quoted the entire text of one of the chap-
> ters that were being complained about in their reply.
>
> What is odd is that the copyrighted text that was under dis-
> cussion had now been posted a total of four times. I might hu-
> morously ask if there is a copyright law about copying a copy of
> a violated work in an e-mail reply. Or, would the thought be too
> recursive?
>
> Anyway, this brings up one of my smaller e-mail pet peeves.
> It is a fairly common form of Internet courtesy -- or 'Netiquette
> -- to only include the *portion* of the text of the e-mail that
> you are replying to in your reply -- not the *entire* message.
> Only include that text which helps someone understand the context
> of your reply.
>
> I know that it is easier to press "Reply," add some text, and
> press "Send." But, consider the fact that everyone on-list has
> seen the original message at least once. Do, they need to see
> the entire text of it again? And, people (like me :-) ) on the
> digest don't have the option of deleting a message after we read
> the reply. We get the whole thing with dozens of other, similar
> messages surrounding it. And, when it starts becoming quotes of
> quotes of quotes of quotes, it gets a little annoying.
>
> For most folks, this is a simple mouse operation: point to the
> text you don't need, press mouse button one, hold and drag until
> the text you don't want to include is highlighted, and then press
> the backspace or delete key. Or, if you don't want the text of
> the original message in your reply at all, it's a very simple Op-
> tion/Preference change in most mailers.
>
> There is already a list-contingent who is trying (slowly but
> surely) to get list-members to post in plain text -- no MIME at-
> tachments, no included HTML -- and they are being somewhat suc-
> cessful. If we could just add this one little thing, in my opin-
> ion, everybody's list experience would be a little bit better.
>
> Thank you for taking the time to let me invade your mailbox
> with my opinion. We now take you back to your regularly sched-
> uled Parkinson's chat.
>
>Bill--
> ...who heard a wise man say "Never play leapfrog with a Unicorn."
>.___. William A. ....._..._ .......7177 Heritage Drive (42?) - (42?) ----+
>| _ \__ _ _ _ _ _ ___| |_| |_ ___ .Westchester........| \ ___ \ ___ |
>| _/ _` | '_| '_/ -_) _| _/ -_).OH 45069-4012......| (o o) (o o) |
>|_| \__,_|_| |_| \___|\__|\__\___|.513/779-0780.......| ( V ) ( V )|
>..... http://w3.one.net/~wap/ .... [log in to unmask] .......+- /--m-m- /--m-m--+
________________________________________________________________________
Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com
=========================================================================
Date: Sun, 14 May 2000 18:29:03 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Carole Hercun <[log in to unmask]>
Subject: Re: It just seemed a bit odd ... & Reviewing e-mail 101
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Bill, thank you for E-Mail 101. And, no, I'm NOT being
facetious. For some of us with do-it-yourself computer
educations, it's simply a matter of learning the tricks of
the trade. Prime example-the mouse 'trick' you described. i
honestly didn't realize you could do that. Love it!
Carole, Who is Happily Deleting
--- "William A. Parrette" <[log in to unmask]> wrote:
For most folks, this is a simple mouse operation:
> point to the
> text you don't need, press mouse button one, hold
> and drag until
> the text you don't want to include is highlighted,
> and then press
> the backspace or delete key. Or, if you don't
> want the text of
> the original message in your reply at all, it's a
> very simple Op-
> tion/Preference change in most mailer...
>
> Thank you for taking the time to let me invade
> your mailbox
> with my opinion. We now take you back to your
> regularly sched-
> uled Parkinson's chat.
>
> Bill--
> ...who heard a wise man say "Never play leapfrog with a
> Unicorn."
> ..___. William A. ....._..._ .......7177 Heritage Drive
> (42?) - (42?) ----+
> | _ \__ _ _ _ _ _ ___| |_| |_ ___ .Westchester........|
> \ ___ \ ___ |
> | _/ _` | '_| '_/ -_) _| _/ -_).OH 45069-4012......|
> (o o) (o o) |
> |_| \__,_|_| |_| \___|\__|\__\___|.513/779-0780.......|
> ( V ) ( V )|
> ...... http://w3.one.net/~wap/ .... [log in to unmask] .......+-
> /--m-m- /--m-m--+
__________________________________________________
Do You Yahoo!?
Send instant messages & get email alerts with Yahoo! Messenger.
http://im.yahoo.com/
=========================================================================
Date: Mon, 15 May 2000 01:47:18 GMT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Judy George <[log in to unmask]>
Subject: Re: It just seemed a bit odd ... & Reviewing e-mail 101
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
bill
yeeeeeeeeeeeeeeeeeeeeeeeeeees
judy
>From: Carole Hercun <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: It just seemed a bit odd ... & Reviewing e-mail 101
>Date: Sun, 14 May 2000 18:29:03 -0700
>
>Bill, thank you for E-Mail 101. And, no, I'm NOT being
>facetious. For some of us with do-it-yourself computer
>educations, it's simply a matter of learning the tricks of
>the trade. Prime example-the mouse 'trick' you described. i
>honestly didn't realize you could do that. Love it!
> Carole, Who is Happily Deleting
>
>--- "William A. Parrette" <[log in to unmask]> wrote:
>For most folks, this is a simple mouse operation:
> > point to the
> > text you don't need, press mouse button one, hold
> > and drag until
> > the text you don't want to include is highlighted,
> > and then press
> > the backspace or delete key. Or, if you don't
> > want the text of
> > the original message in your reply at all, it's a
> > very simple Op-
> > tion/Preference change in most mailer...
> >
> > Thank you for taking the time to let me invade
> > your mailbox
> > with my opinion. We now take you back to your
> > regularly sched-
> > uled Parkinson's chat.
> >
> > Bill--
> > ...who heard a wise man say "Never play leapfrog with a
> > Unicorn."
> > ..___. William A. ....._..._ .......7177 Heritage Drive
> > (42?) - (42?) ----+
> > | _ \__ _ _ _ _ _ ___| |_| |_ ___ .Westchester........|
> > \ ___ \ ___ |
> > | _/ _` | '_| '_/ -_) _| _/ -_).OH 45069-4012......|
> > (o o) (o o) |
> > |_| \__,_|_| |_| \___|\__|\__\___|.513/779-0780.......|
> > ( V ) ( V )|
> > ...... http://w3.one.net/~wap/ .... [log in to unmask] .......+-
> > /--m-m- /--m-m--+
>
>
>__________________________________________________
>Do You Yahoo!?
>Send instant messages & get email alerts with Yahoo! Messenger.
>http://im.yahoo.com/
________________________________________________________________________
Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com
=========================================================================
Date: Sun, 14 May 2000 21:48:10 -0400
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bob Anibal <[log in to unmask]>
Subject: Re: It just seemed a bit odd ... & Reviewing e-mail 101
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
This guy who played leapfrog with the unicorn was later on a eunuch n'est
ce pas
Bob A.
----- Original Message -----
From: "William A. Parrette" Bill--
...who heard a wise man say "Never play leapfrog with a Unicorn."
.___. William A. ....._..._ .......7177 Heritage Drive (42?) - (42?) ----+
| _ \__ _ _ _ _ _ ___| |_| |_ ___ .Westchester........| \ ___ \ ___ |
| _/ _` | '_| '_/ -_) _| _/ -_).OH 45069-4012......| (o o) (o o) |
|_| \__,_|_| |_| \___|\__|\__\___|.513/779-0780.......| ( V ) ( V )|
..... http://w3.one.net/~wap/ .... [log in to unmask] .......+- /--m-m- /--m-m--+
=========================================================================
Date: Sun, 14 May 2000 20:37:45 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: doublea <[log in to unmask]>
Subject: Re: Sleep talk!
MIME-Version: 1.0
Content-Type: multipart/alternative;
boundary="----=_NextPart_000_0034_01BFBDE4.427ACB00"
This is a multi-part message in MIME format.
------=_NextPart_000_0034_01BFBDE4.427ACB00
Content-Type: text/plain;
charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Hilary Zunin asked for comments about talking in your sleep - I sleep =
so rarely, that when I do I usually sleep very soundly, and I will also =
talk in my sleep. If someone asks me anything, I will answer, lie, =
argue, and tell them whatever seems best in order for them to leave me =
alone so I can continue sleeping. But if you are going to talk in your =
sleep - a clear concence is strongly suggested, or you better own a fast =
horse! (smile)
And if you phone while I am asleep, you better call back and tell me =
what I said. A friend of mine called one night about 4 am, broke down at =
work, and he asked me to pick him up at 7am. I assured him I would be =
there, but when I woke up at 9am, I had no idea we had talked.
bob aka tex
----- Original Message -----=20
From: Hilary Zunin=20
To: [log in to unmask]
Sent: Sunday, May 14, 2000 6:21 PM
Subject: Sleep talk!
Is anyone else experiencing an increase in talking in your sleep, =
perhaps secondary to PD meds (Eldepryl, Amantadine, Mirapex)? My =
husband, Len (64/5), is chatting up a storm these days. I keep a pad =
near the bed so that I can jot down the most interesting remarks. Just =
last week, he said this one:
"It seems unnecessary, premature, and ridiculous. Other than =
that, I'm all for it!"
Actually, we've found this phrase amazingly useful at the oddest =
times. =20
Anyway, he'll sometimes even repeat a phrase if I've missed a word and =
whisper a request for him to do so. All of this without waking or any =
memory of the words the next morning. Comments?
hilary
------=_NextPart_000_0034_01BFBDE4.427ACB00
Content-Type: text/html;
charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
<!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
<HTML><HEAD>
<META content=3D"text/html; charset=3Diso-8859-1" =
http-equiv=3DContent-Type>
<META content=3D"MSHTML 5.00.2919.6307" name=3DGENERATOR>
<STYLE></STYLE>
</HEAD>
<BODY bgColor=3D#ffffff>
<DIV><FONT size=3D2>Hilary Zunin asked for comments about talking =
in your=20
sleep - I sleep so rarely, that when I do I usually sleep very soundly, =
and I=20
will also talk in my sleep. If someone asks me anything, I will answer, =
lie,=20
argue, and tell them whatever seems best in order for them to leave me =
alone so=20
I can continue sleeping. But if you are going to talk in your sleep - a =
clear=20
concence is strongly suggested, or you better own a fast horse!=20
(smile)</FONT></DIV>
<DIV><FONT size=3D2>And if you phone while I am asleep, you better call =
back and=20
tell me what I said. A friend of mine called one night about 4 am, broke =
down at=20
work, and he asked me to pick him up at 7am. I assured him I would be =
there, but=20
when I woke up at 9am, I had no idea we had talked.</FONT></DIV>
<DIV><FONT size=3D2>bob aka tex</FONT></DIV>
<BLOCKQUOTE=20
style=3D"BORDER-LEFT: #000000 2px solid; MARGIN-LEFT: 5px; MARGIN-RIGHT: =
0px; PADDING-LEFT: 5px; PADDING-RIGHT: 0px">
<DIV style=3D"FONT: 10pt arial">----- Original Message ----- </DIV>
<DIV=20
style=3D"BACKGROUND: #e4e4e4; FONT: 10pt arial; font-color: =
black"><B>From:</B>=20
<A href=3D"mailto:[log in to unmask]" =
[log in to unmask]>Hilary=20
Zunin</A> </DIV>
<DIV style=3D"FONT: 10pt arial"><B>To:</B> <A=20
href=3D"mailto:[log in to unmask]"=20
=
[log in to unmask]>[log in to unmask]</A> =
</DIV>
<DIV style=3D"FONT: 10pt arial"><B>Sent:</B> Sunday, May 14, 2000 6:21 =
PM</DIV>
<DIV style=3D"FONT: 10pt arial"><B>Subject:</B> Sleep talk!</DIV>
<DIV><BR></DIV>
<DIV>Is anyone else experiencing an increase in talking in your sleep, =
perhaps=20
secondary to PD meds (Eldepryl, Amantadine, Mirapex)? My =
husband,=20
Len (64/5), is chatting up a storm these days. I keep a pad near =
the bed=20
so that I can jot down the most interesting remarks. Just last =
week, he=20
said this one:</DIV>
<DIV> </DIV>
<DIV> "It seems unnecessary, =
premature,=20
and ridiculous. Other than that, I'm all for it!"</DIV>
<DIV> </DIV>
<DIV>Actually, we've found this phrase amazingly useful at the oddest=20
times. </DIV>
<DIV> </DIV>
<DIV>Anyway, he'll sometimes even repeat a phrase if I've missed =
a word=20
and whisper a request for him to do so. All of this without =
waking or=20
any memory of the words the next morning. Comments?</DIV>
<DIV> </DIV>
<DIV>hilary</DIV></BLOCKQUOTE></BODY></HTML>
------=_NextPart_000_0034_01BFBDE4.427ACB00--
=========================================================================
Date: Sun, 14 May 2000 20:40:45 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
Subject: Re: Vitamins, herbs, etc. ... conflicts?
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
"William A. Parrette" wrote:
> Since the topic of vitamins has come up recently ( ;-) ), I
> would like to know if anybody has knowledge of conflicts between
> herbs or specialty vitamin-type things and typical Parkinson's
> medications.
Kava has been found to increase PD symptoms.
> I, of course, am aware of the B-conflict.
Well, the B6-levodopa conflict is mostly non-existent, since the
development of Sinemet. However, anyone using a B-complex should be
aware that the very high amounts of B-6 in most complexes WILL overwhelm
the carbidopa; a B-complex should be taken a couple of hours separately
(before or after) Sinemet, or at bedtime.
Best,
Kathrynne
--
Kathrynne Holden, MS, RD
Medical nutrition therapy for Parkinson's disease
Author: "Eat well, stay well with Parkinson's disease"
"Parkinson's disease: interview and assessment tools for nutrition
professionals"
"Risk for malnutrition and bone fracture in Parkinson'sdisease," J Nutr
Elderly. V18:3;1999.
http://www.nutritionucanlivewith.com/
=========================================================================
Date: Sun, 14 May 2000 19:59:16 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: unsubscribe
Comments: cc: =?ISO-8859-1?Q?Ingibj=F6rg?= =?ISO-8859-1?Q?Stef=E1nsd=F3ttir?=
<[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=ISO-8859-1
Content-transfer-encoding: Quoted-printable
On 15 May 2000, at 0:20, Ingibj=F6rg Stef=E1nsd=F3ttir wrote:
unsubscribe
Hi Ingibj=F6rg,
All you need to do is send a two word message to the Listserv.
To: [log in to unmask]
Subject: leave blank
Body: SIGNOFF PARKINSN
Just 2 words, no signature, no subject, and send it to the LISTSERV... not
to PARKINSN.... (PARKINSN for E-Mail Posts; LISTSERV for Commands)
It is pretty simple, but computers are not intuitive, so it must be
exactly as stated........ all the best ......... murray
Ps: Alternately, you could go to John Cottingham's site and just click on
the SIGNOFF button.... (Remove My Name From PARKINSN Please) The site is:
http://www.ionet.net/~jcott/parkmail/maillist.html
Now what if someone wants to Subscribe?
All you need to do is send a two word + your name message to the Listserv.
To: [log in to unmask]
Subject: leave blank
Body: SUBSCRIBE PARKINSN your first name your last name
Just 2 words followed by the subcribers name,
in my case SUBSCRIBE PARKINSN Murray Charters
in your case SUBSCRIBE PARKINSN xxxxxx yyyyyyyy
no signature, no subject, and send it to the LISTSERV... not
to PARKINSN....
Use the computer that you want signed onto the List (the LISTSERV
software automatically knows where to send the mail)
PS: Alternately, you could go to John Cottingham's site AT:
http://www.ionet.net/~jcott/parkmail/maillist.html
and just scroll down and click on the SUBSCRIBE button....
(Subcribe to PARKINSN Now)
For the real full tutorial you could go to Janet's web page at:
http://www.geocities.com/janet313/pienet/5th/basics.html
and read at your leisure...
the subscriptions - the basics
subscription instructions: - the short version
subscription instructions: - the long version
Or..... you could read John Cottingham's subscription tutorial at:
http://www.ionet.net/~jcott/parkmail/sub.html
There are most of the options (there's also Simon's site)
http://james.parkinsons.org.uk/parkinsn.htm
Now what could be easier than that????
:-) ......... murray
[log in to unmask]
View the Parkinson's Awareness Links at:
http://www.geocities.com/janet313/pienet/wwweb/index.html
=========================================================================
Date: Sun, 14 May 2000 23:32:54 EDT
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Howard Collins <[log in to unmask]>
Subject: Sincere Thanks to Barbara
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Barbara,
I feel indeed humbled, to be a member of your group. Thank you for the
opportunity!
Howard Collins
CBGD+PSP.
=========================================================================
Date: Sun, 14 May 2000 13:58:58 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: =?iso-8859-1?Q?=2A?= <[log in to unmask]>
Organization: [log in to unmask]
Subject: Re: Drugs and You
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii; x-mac-type="54455854";
x-mac-creator="4D4F5353"
Content-Transfer-Encoding: 7bit
Earnie & Barbara Knight wrote:
> Sinead:
>
> I appreciate your enthusiasm, but why don't you just ask those who are
> interested to privately email you.
>
> Also, are you aware you're violating copyright rules by scanning in those
> passages of the Vitamin Bible without written permission of
> author/publisher?
>
> Barb K
Seems like credit was given to the quoted material.
Then again 1800 copies were distributed.
Anyone have further clarification?
Is this different (quoting from a book) than
from quoting a web site (and giving credit)?
Permission is the best thing, of course.
..........................................................................
Ray Strand
mailto:[log in to unmask]
48/47/45?
..........................................................................
...on the edge of the prairie abyss ......................
