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>>While this proved false, I still >>continued the therapy for loss of balance for several years off >>and on... Murray....you wrote the above....what was your therapy for balance as that is a problem for me at times....Joan Hartman ----- Original Message ----- From: Murray Charters <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, May 12, 2000 4:49 AM Subject: Re: PD & 3am > On 12 May 2000, at 7:25, Ivan M Suzman wrote: > > > PD has its own sleep rhythm > > > > My nights start with meds at 930 PM > > and again just past midnight. > > > > Mine include medications at 330 AM > > Sometimes again at 6AM, definitely by 7AM > > > > Otherwise I become immobilized. > > > > SO if I have rested enough, I get up at > > all kinds of pre-dawn hours. > > And sometimes I am most clear-headed and > > productive and write more easily on PIEN > > at that time of the day. > > > > My neuro just revealed to me yesterday that > > I am the only patient who would be totally > > froxen up without nighttime meds.He has > > 60 PWP's in his practice of 200 or so patients. > > > > Maybe it's the tip of the iceberg; there > > must be MANY more PWP's like me. > > > > Murray do you need meds to avoid nighttime paralysis? > > > > Hi Ivan, > Rigidity is not a major symptom for me so for the most > part I don't take meds during the night and only seem to > *require* meds when I start my daily routine. > > > > > What year are you in since diagnosis and onset? > > > > Ivan Suzman > > 50 age now / 39 diagnosis / 36 onset of visible symptoms > > :-) > > > > Ivan, I had symptoms at age 38 and went through a year of tests > and the *diagnosis* was very indefinite ... I was thought to be > possibly in early stages of MS. While this proved false, I still > continued the therapy for loss of balance for several years off > and on... Other symptoms exhibited over time but they were > never dealt with as a package until age 49 when it became > obvious that I had Parkinson's. My wife and I were taking > ballroom dance lessons and I was *diagnosed* by my wife > and my dance instructor. This was of course then taken to > my gp and on to a neuro for confirmation. I'm now nearing my > 56th. birthday. I still work and don't have a lot of difficulty > aside from being slow and having a tremor. I'm left handed > and my Parkinson's affects my right side. I do suffer from > sleep deficit. > > Regards ...... murray > > [log in to unmask] > > View the Parkinson's Awareness Links at: > http://www.geocities.com/janet313/pienet/wwweb/index.html >