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re reminder of purpose and function of the list barbara so you are responsible for this great site that has me up at 5am reading and replying to, emails i have found it invaluable as i wait for diagnosis this is a vulnerable/scarey time for me and my family and i have found site members supportive and caring although i am miles away sometimes it is the humour as much as the medical advice and help which lifts the spirits and tickles the fancy and reduces the fear thank you judy >From: Barbara Patterson <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Welcome to new members (& reminder to long-term members) >Date: Tue, 16 May 2000 07:09:20 -0400 > >Welcome! > >You have joined the PARKINSN mailing list, also >known as the Parkinson's Information Exchange >Network (PIEnet). > >Please send a message to the list members (if you >want to) introducing yourself and any >Parkinson's-related topics you would like. > >Let me introduce myself. I am a secretary for four >faculty members in the School of Nursing, McMaster >University. In September, 1992, I was diagnosed >as having Parkinson's ... hence my interest in >this list. > >My purpose in starting the list was the exchange >of information about Parkinson's. The list rapidly >changed into the largest support group I know. >Besides its original purpose, the list has become >'a means of feeling connected' to others... a way >of feeling we're not alone... of making the road >of living with pd easier to bear. > >I have always felt that we hear each other better >on the list because we can't see each other. >Symptoms, age, colour, race, don't interfere. The >list knows no countries, has nothing to do with >money... there's no "what's in it for me?" > >But these same qualities mean our words are open >to misinterpretation. Since others can't see our >wry smile or wink or hear our tone of voice, a >goal of keeping it "short & sweet" can result in >appearing abrupt. > >Also, the same word can have different meanings >and different shades of meaning to different >people in different areas of the world so care >must be taken in both your writing and your >reading of the messages. > >Flaming and selling are not allowed. Please send >messages in plain text only. Do not make any >changes in medication or any treatments without >consulting your physician. Be kind. Be honest. >Share the time fairly.... if you think you have >taken more than your share of the list resources, >you just might have. > >Keep it generally related to Parkinson's. Don't >abuse the generosity of the University of >Toronto's free gift of the list. Don't include all >of the message to which you are replying. Use >plain text with no attachments. Wash your hands >with soap before you eat. :) In other words, use >the same common courtesy that you would elsewhere. > >We need everyone's voices if we are going to make >a difference in the care and treatment of pd and >the motivation and funding of research. Speak up. >Tell your story. Ask your questions. Answer >questions. Debate/argue about the answers. >Debate/argue about the goals, administration, >day-to-day functioning of the list. Tell a joke... >but please don't attempt to silence anyone else's >voice. > >The messages on the Parkinsn list may be personal >but they are NOT private... never have been. The >illusion of privacy when using e-mail is just >that: an illusion. > >Never, in the history of this planet, has this >kind of relationship existed. We meet in a place >that has no walls. We talk to our friends whom we >have never seen. We care deeply for other members >whom we will never physically hug. Folks, we're >making it up as we go along, so any rules have to >be flexible. > > I hope you enjoy your involvement with the >Parkinsn Information Exchange Network. > > Barb >================================================== >Barbara Patterson [log in to unmask] >HSC 2J22 905-525-9140, ext. 22403 >Secretary School of Nursing >McMaster University Hamilton, Ontario, Canada >================================================== > > Parkinsn Subscription Instructions: The Short >Version: > > List Address: for posting a message to the >PARKINSN listmembers: > [log in to unmask] > > Command Address: for sending a command to the >LISTSERV computer: > [log in to unmask] > > To obtain a list of the commands that the >listserv recognizes: > HELP > To obtain your current subscription options: > QUERY PARKINSN > To receive copies of your own messages: > SET PARKINSN REPRO > To change from individual messages to the digest >format: > SET PARKINSN DIGEST > To change back to individual messages from the >digest format: > SET PARKINSN NODIGEST > To stop incoming mail temporarily: > SET PARKINSN NOMAIL > To resume incoming mail: > SET PARKINSN MAIL > To stop incoming mail permanently and terminate >your subscription: > SIGNOFF PARKINSN > To subscribe, send this command: > SUBSCRIBE PARKINSN YOURFIRSTNAME YOURLASTNAME > > >============================================================================ >Barbara Patterson >[log in to unmask] >HSC 2J22 905-525-9140, ext. 22403 > School of Nursing >============================================================================ ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com