What is P-I-E-N-O?
P-I-E-N-O is the name of the Online version of the Parkinsons Information
Exchange Network. Barbara Patterson is our listowner and the University of
Toronto is the host of the listserv that distributes our messages. I am the
webmaster of the Online version.
The content of the P-I-E-N-O site was formerly on my personal pages in
Oklahoma. The Parkinsn Email Message page has been configured and
maintained by me since its inception last year. The Parkinsn Archive
Treasures pages, Parkinsn Current Topics Index and the Parkinsn's List Drug
Database have always fallen under the unbrella of Parkinson's Information
Exchange Network with the blessings of OUR "Woman of the Year"!
Parkinsn has been international in scope from its birth in November 1994.
It is perceived to be an American list...a Canadian list...an Australian
list but the outreach is geometric. We reach every part of our global village.
We each have so much to share.
Returning from Australia this year, I thought of the possibilities we have
together to hasten the cure, to improve the quality of our lives..waiting
and ways to reach those who need our information, support and even a kind
listening ear. My site was at its maximum limits and my budget was limited.
I researched my options and consulted with Barbara and asked for her
suggestion of a possible name for the new endeavor and
Parkinsons-Information-Exchange-Network-Online.com was the resulting
conclusion.
Who are the present users of the Parkinsn pages?
The logs show daily visitors from almost every country of the world. We are
linked to by several international medical schools and pharmacology
departments. Our information is found on all the major search engines of
the world. Every page is translated on the fly into several languages.
How is P-I-E-N-O different from the parkinsn mailing list?
P-I-E-N-O is now located at an international gateway, on a super fast
server, rather than being located at the crossroads of two dirt roads in
the heartland with once a week mail service. If in the unlikely event
P-I-E-N-O is inaccessible...listen to TV...cause California might have
fallen off into the Pacific Ocean..:) The time listed is Pacific Time.
P-I-E-N-O has the answers...if you have a question. Both the Online Message
page and the Current Topics Index page has a mail management center where
you can change or manage your parkinsn list mail by clicking on the
appropriate buttons. You don't have to remember hard to understand
instructions.
P-I-E-N-O has a smart search engine that updates daily the 770 plus files
on the P-I-E-N-O site which includes the contents of the last 500 messages
sent to the list. The old parkinsn site only had 50 messages and they were
not searchable. The message files are not made available to outside search
engine spiders. Winona is the only one I let through the gate. Results are
returned with the word you were searching for used in context.
You can check the P-I-E-N-O messages from any computer on the internet,
anywhere in the world. Subscription is required to post messages and
postings must come from the same mail account that you subscribed from.
If you travel with a notebook computer with a configured mail program you
can log on to any ISP and send messages to the list by modifying the SMTP
settings in the program to mail.thenameoftheISPyouareloggedinto. Your
messages will then be sent and accepted. Any replies with be in your pop
mailbox on your home ISP.
What is New at P-I-E-N-O?
1. Each page has the P-I-E-N-O logo at the top.
2. The entry point to P-I-E-N-O is at:
http://www.parkinsons-information-exchange-network-online.com
3. Listen to Dr. Rick Stell's "Demystifying the Neurological Examination
for Parkinsons" available in RealPlayer format as you read the transcript.
4. The background songs (midis) were remixed to play at a lower volume
level except on the main page.
5. The P-I-E-N-O message page refreshes every 7 minutes to display new
messages that may have come in during Rod McKuen's poetry in song. If you
hear nothing...when asked..click yes to install the free plugin. RealPlayer
requires you to go through three pages before finally letting you download
it..but keep clicking on the FREE link on each page... :) The realplayer
plugins are used on future pages with talks.
Where do we go from here?
I will be adding a calendar of events which I hope groups will use to
announce events in which they have an interest, which will allow others
sufficient time to attend.
Many in the Parkinson's struggle earn their livelihood from that struggle.
Cooperation to many groups means meeting and sitting at the same table
before governments requesting a pie..of which they desire a slice..to eat
in private.
P-I-E-N-O needs partners, of those who sit at the tables of power, to share
their factual information resources, so this noble international exchange
can deseminate it to the hopeful, Parkinson's world. That is our mission
statement.
[log in to unmask] Search the parkinsn archive online at:
http://james.parkinsons.org.uk
Catch the Parkinsn's List Online messages at:
http://www.ionet.net/~jcott/parkmail/maillist.html
Click the navigation ads and use the new search tools
John Cottingham
