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SIGNOFF PARKINSN ----- Original Message ----- From: Barbara Patterson <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, May 16, 2000 1:09 PM Subject: Welcome to new members (& reminder to long-term members) > Welcome! > > You have joined the PARKINSN mailing list, also > known as the Parkinson's Information Exchange > Network (PIEnet). > > Please send a message to the list members (if you > want to) introducing yourself and any > Parkinson's-related topics you would like. > > Let me introduce myself. I am a secretary for four > faculty members in the School of Nursing, McMaster > University. In September, 1992, I was diagnosed > as having Parkinson's ... hence my interest in > this list. > > My purpose in starting the list was the exchange > of information about Parkinson's. The list rapidly > changed into the largest support group I know. > Besides its original purpose, the list has become > 'a means of feeling connected' to others... a way > of feeling we're not alone... of making the road > of living with pd easier to bear. > > I have always felt that we hear each other better > on the list because we can't see each other. > Symptoms, age, colour, race, don't interfere. The > list knows no countries, has nothing to do with > money... there's no "what's in it for me?" > > But these same qualities mean our words are open > to misinterpretation. Since others can't see our > wry smile or wink or hear our tone of voice, a > goal of keeping it "short & sweet" can result in > appearing abrupt. > > Also, the same word can have different meanings > and different shades of meaning to different > people in different areas of the world so care > must be taken in both your writing and your > reading of the messages. > > Flaming and selling are not allowed. Please send > messages in plain text only. Do not make any > changes in medication or any treatments without > consulting your physician. Be kind. Be honest. > Share the time fairly.... if you think you have > taken more than your share of the list resources, > you just might have. > > Keep it generally related to Parkinson's. Don't > abuse the generosity of the University of > Toronto's free gift of the list. Don't include all > of the message to which you are replying. Use > plain text with no attachments. Wash your hands > with soap before you eat. :) In other words, use > the same common courtesy that you would elsewhere. > > We need everyone's voices if we are going to make > a difference in the care and treatment of pd and > the motivation and funding of research. Speak up. > Tell your story. Ask your questions. Answer > questions. Debate/argue about the answers. > Debate/argue about the goals, administration, > day-to-day functioning of the list. Tell a joke... > but please don't attempt to silence anyone else's > voice. > > The messages on the Parkinsn list may be personal > but they are NOT private... never have been. The > illusion of privacy when using e-mail is just > that: an illusion. > > Never, in the history of this planet, has this > kind of relationship existed. We meet in a place > that has no walls. We talk to our friends whom we > have never seen. We care deeply for other members > whom we will never physically hug. Folks, we're > making it up as we go along, so any rules have to > be flexible. > > I hope you enjoy your involvement with the > Parkinsn Information Exchange Network. > > Barb > ================================================== > Barbara Patterson [log in to unmask] > HSC 2J22 905-525-9140, ext. 22403 > Secretary School of Nursing > McMaster University Hamilton, Ontario, Canada > ================================================== > > Parkinsn Subscription Instructions: The Short > Version: > > List Address: for posting a message to the > PARKINSN listmembers: > [log in to unmask] > > Command Address: for sending a command to the > LISTSERV computer: > [log in to unmask] > > To obtain a list of the commands that the > listserv recognizes: > HELP > To obtain your current subscription options: > QUERY PARKINSN > To receive copies of your own messages: > SET PARKINSN REPRO > To change from individual messages to the digest > format: > SET PARKINSN DIGEST > To change back to individual messages from the > digest format: > SET PARKINSN NODIGEST > To stop incoming mail temporarily: > SET PARKINSN NOMAIL > To resume incoming mail: > SET PARKINSN MAIL > To stop incoming mail permanently and terminate > your subscription: > SIGNOFF PARKINSN > To subscribe, send this command: > SUBSCRIBE PARKINSN YOURFIRSTNAME YOURLASTNAME > > SIGNOFF PARKINSN > =========================================================================== > Barbara Patterson [log in to unmask] > HSC 2J22 905-525-9140, ext. 22403 > School of Nursing > =========================================================================== >