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david my very short experience with this syndrome is that it takes time to get a definitive diagnosis my first neurologist was noncommital and i think correct in that she simply doesnt know this list sent me scurrying for a movement disorders specialist which i found at a private city hospital after some searching and badgering he is booked until july 24 so i have had to wait i have some symptoms which indicate parkinsons but they are not definitive when i fill in the questionnaires from this list i am no more certain about what i have this list also is an indicator of the huge variety of symptoms, their severity and their ability to disable, which are lumped into the parkinson's syndrome for the first few weeks after knowing that things are not quite right and getting the half diagnosis it is extremely difficult and for me scarey life has settled a bit and i feel more able to cope with the enormous amount of information which assaults one's brain and thats just from this list i cant help with the network bu i know how it feels to be inlimbo regards and some hand holding judy >From: davidmeigs <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Can't find a support group in the Bremerton, Wash. st. area >Date: Fri, 2 Jun 2000 02:31:40 -0700 > >Anyone have any ideas about how a newbie like me can get info to my >questions on a more personal, face to face kind of way? The links I have >checked out do not have info on support groups in my local area. The >closest one I have found is a few hours drive. I don't drive so well right >now. > >You have all been so helpful, but I think I have hit a "technical >information overload". My brain is going to pop (lol). > >I plan to go back to my neurologist and give him a little push for some >kind >of more definite diagnosis. I also plan to ask him for at least giving me >meds of a test basis to see if this would help. Is this a bad idea? I >also >plan to ask him for a referral to a movement disorder specialist. > >I hope to be able to return to some kind of work, but with this stiffness, >and loss of balance & fatigue I just can't. Competing with the seeming 3 >minute doctor visit I get with this HMO, and the slow rate of definite >answers as to diagnosis is driving me Looney. > >If anyone knows of a group that meets in the Kitsap Peninsula area of >Washington state PLEASE let me know. > >Sorry for the long whine, guess I just needed to vent! > >Thanks my new online friends, > >David M. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com