 |
 |
Ivan, I'm sorry you had to deal with such a "caregiver". HIS stresses!!! I'd love to hear them. Tell him you'll trade him all his probems for a 14 year sentence with PD. Greg 47/35/35 Ivan M Suzman wrote: > SO many of you have written, and to each of > you, all i cna say is thanks. > > I am now beyond this near-crisis, and am > talking comfortably again with the caregiver > who was getting frayed at the edges. The > difficultie are ending. > > He was definitely burning out. WE talked > about HIS stress factors, and took the > spotlight off of me. > > And now, with help in place, > I am going away for this weekend to a lakeside cabin. > Maeanwhile, the caregiver has made his own > plans, and is looking forward to telling me about HIS > weekend, FREE of responsibility to help me. > > Most of the other caregivers (there are NINE) > have rallied to fill my schedule, so that the rather > temperamental caregiver who was shouting can > see that he does NOT have to be as responsible > for my well-being, and can just RELAX. He now > feels less isolated, and much more part of a team. > > Ivan > > On Wed, 31 May 2000 18:41:33 -0400 nancy <[log in to unmask]> writes: > > Ivan, > > Hi. > > I am a patient. However, I have been a caregiver to my mom and dad > > when > > I was very young. The frustration at times was enormous on both my > > parents and my siblings and me. What we did was take turns taking > > care > > of our parents. They were young so their illness was unexpected as > > is me > > with young onset p.d. > > > > Soooo....what I do is take it upon myself to have more than one > > caregiver. One person can't take care of an ill person without > > breaks. > > I give the caregiver time off. That keeps all of us sane:) It is > > very > > hard for a caregiver to watch someone progress. Once month we go to > > a > > movie, and spontaneous declare a day 'no doctor day'. Another thing > > we > > do is declare caregiver day. I surprise the caregiver and tell them > > it's > > their day, they get the choice something they want to do. Many > > times > > they are so busy trying to assist and take care of me that they > > loose > > sight of themselves. > > > > Sincerely, > > Nancy M. > > Ivan M Suzman wrote: > > > > > > Dear friends, > > > > > > I need some guidance . An > > > experienced caregiver is > > > shouting at me. I must > > > either find a substitute, > > > or figure out how to > > > sit down with him when > > > he has calmed down, and > > > talk.. > > > > > > What do you caregivers do, > > > to prevent your stress factors and > > > personal frustrations from > > > coming out against a patient? > > > > > > Thank you, > > > > > > Ivan Suzman > > ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > Ivan Suzman 50/39/36 [log in to unmask] :-) > Portland, Maine land of lighthouses deg. F :-) > ********************************************************************