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chuck if i read your posting correctly, you are saying that this site be kept for serious pd / medical issues only i suspect we would be bored sh------ if that happened i post here because of the fun, the banter, the soul issues however i am only one voice dealing with the pd issues at the level of ones soul is sooooooooo important *sometimes* one's family and/or friends cant talk at the level of soul and soul needs so this list provides an outlet i would like to join what you suggest doing so keep me informed judy >From: Charles E Murray <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Question about subjects >Date: Thu, 8 Jun 2000 09:39:01 -0700 > >I have read the occasional posts of the List purpose, etc., and have no >quarrel with exchange of information regarding symptoms and treatment >options, drug side effects, etc., nor with the jokes and casual banter. >This is family and lightening our mood is always welcome. That >said-------------- > >Sifting through upwards of 50 posts per day, it seems the focus is so >heavily oriented to the mechanics of our disease (i.e., how to make our >bodies function better or what drug will elevate our mood or libido), >that I feel myself being pulled back to the unrelenting obsession with my >body that characterized my first six months of mental life after >diagnosis. That was not a happy time. > >To keep from going back there I need to interact with PWP and CG's who >want to discuss how they are coping and learning. In other words, >feelings, spirituality, how PD is affecting us emotionally. > >If someone knows of an online group where such topics are common, please >pass this information on to me, [log in to unmask] > >My last "vulnerable feelings" post received one response (thank's JoAnn), >leading me to believe that my PD focus is out of step with the majority >of the group, so if any of you would like to discuss these issues >(perhaps reluctant to do so on the "big" list), as part of small list of >PWP and CG's, please post me. I will create a group list and hopefully >we can form a small discussion group, utilizing our E Mail program's >internal list device so that everyone gets copied with shares. If it >proves helpful to enough people I understand a list server could be >acquired at a modest cost. > >I would propose that we take turns in choosing a weekly topic to exchange >views about. This could be as simple as "Depression," or "Anger" or a >little more elaborate, such as "What are the positive things PD has >brought into your life." An always OK topic would be "How is your NOW," >a catch all to allow discussion of today's experience with PD, its >challenges, absurdities, teaching ability, etc. > >If anyone is interested, please advise, and you are welcome to post me >privately. > >Chuck Murray >[log in to unmask] ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com