Hi, Joy. My mother Joyce was diagnosed with this particular form of MSA. Others have posted info but if you want to contact me off list, please feel free. Also, I subscribe to the Shy-Drager list, which covers ALL forms of MSA, including SD (there are a few members with it). In any case, I have come to realize that whichever MSA disease you have, they overlap a lot. Good luck. Debbie Debbie White [log in to unmask] >