 |
 |
David, This is just my own experience speaking, since I have been there, done that, as I'm sure most Parkies have. IMOHO, the best thing you can do while waiting for your appointment with your Movement Disorder Specialist, is to keep a medical journal of your symptoms, from day to day. In fact, someone years ago put a Daily Symptom Status Evaluator on the Net , I have a copy of it if you'd like one, just email me and I'll send it to you. Just like everyone else, I would have tried anything in the beginning to get rid of PD, gone to the far corners of the earth to find someone who could even offer me a glimmer of hope for a cure. I finally learned to live with it, and I save my energy for other things now. I'm not saying to give up hope, I'm just saying "Live for today". just me, Marjorie At 07:08 AM 06/24/2000 -0700, you wrote: >Hi friends, > >I'm still waiting to see my movement disorder spec. But I've been doing >some studying different sites. When I read the info on Shy-Dragger I about >fell out of my chair. Over the last 4 years or so I have had my blood >pressure go (way) up and down. When its way down I get to the point of >blacking out. > >The last time I went to the hospital for it was about 2 1/2 years ago. I am >curious if this is also somthing Parkies go through? > >Also I feel that my Bradykinsia is my worst symptom. BUT, it fluctuates, it >can be terrible for about 2 days, and then BLAM, I CAN WALK ALMOST NORMALLY. >Swallowing, is also getting rapidly worse. Breathing more difficult too. > >I know you guys have a "first hand" insight, please get back to me if you >can. > >Thanks, > >David Meigs