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At 02:08 PM 06/22/2000 -0500, John Cottingham wrote: In Part~~~ >The AAN, the American organization for neurologists, advised me that >P-I-E-N-O and our members are classified as a Patient Advisory Group and as >such are not recognized by them. I presume, factually informed medical >consumers are a threat to their membership. > >So be it! > >Post Udall bill, where are the National Organizations now? They have the >money and we get the bill. > >P-I-E-N-O has the ability to stream talks over the internet. I had >submitted requests for content recently but the silence from National >Organizations was complete. If greed is their motive or >inter-organizational jealously is the problem, all they have to do is tell >us the price and together we can raise the ransom. > >Roche, Smith Kline Beecham, Dupont and Medtronics, etc has financed >conferences for the national organizations. We should be able to hear those >conferences. If any organization receives NIH funding...those results >should be placed in the public domain without any copyrights at the time of >publishing. That should apply to PDF, NPF and APDA. > >If the National Organizations will step forward and support Parkinsn, they >will receive all the glory, but those who do not, will be noticed by their >lack of presence. > >P-I-E-N-O has an unfunded budget but new international services are planned >for this quarter. > >John Cottingham > > > > John, Wouldn't it be wonderful if a cure for PD was found next week and we could all quit taking their stupid medication and never have to go to a Neurologist again???? Well, we can dream can't we? Thanks for all the work you do on the Web Page, It's beautiful!! just me, Marjorie 67/12