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Hello, I kept your email so I could respond when I have time. I am a caregiver but was struck by your post because I am always trying to have a spiritual sane approach to this disease. I don't know how else to say it. My family is pretty challenging, I am the only person taking care of my dad and I moved from my home and my real family to do this. I left this part of the country, the US, 25+ years ago, and I am astounded how blessed I was to know to do this, I don't fit in here, and it is a challenge to try and stay spiritually aware, grateful and excited by life in these circumstances. I hope this makes sense. I am not, or I am trying very hard NOT to be part of any victim kind of mentality and to know I made the choice to do this, that there are gifts and lessons on any path, and to stay attuned to my higher self/higher power enough so that I will be guided when this is done and when I can/should move on. Just wanted to offer a response of some kind to your email. Thanks for writing what you did, i enjoy your emails very much. Deborah caregiver to Eugene/80/10+ ---------- >From: Charles E Murray <[log in to unmask]> >To: [log in to unmask] >Subject: Question about subjects >Date: Thu, Jun 8, 2000, 12:39 PM > >I have read the occasional posts of the List purpose, etc., and have no >quarrel with exchange of information regarding symptoms and treatment >options, drug side effects, etc., nor with the jokes and casual banter. >This is family and lightening our mood is always welcome. That >said-------------- > >Sifting through upwards of 50 posts per day, it seems the focus is so >heavily oriented to the mechanics of our disease (i.e., how to make our >bodies function better or what drug will elevate our mood or libido), >that I feel myself being pulled back to the unrelenting obsession with my >body that characterized my first six months of mental life after >diagnosis. That was not a happy time. > >To keep from going back there I need to interact with PWP and CG's who >want to discuss how they are coping and learning. In other words, >feelings, spirituality, how PD is affecting us emotionally. > >If someone knows of an online group where such topics are common, please >pass this information on to me, [log in to unmask] > >My last "vulnerable feelings" post received one response (thank's JoAnn), >leading me to believe that my PD focus is out of step with the majority >of the group, so if any of you would like to discuss these issues >(perhaps reluctant to do so on the "big" list), as part of small list of >PWP and CG's, please post me. I will create a group list and hopefully >we can form a small discussion group, utilizing our E Mail program's >internal list device so that everyone gets copied with shares. If it >proves helpful to enough people I understand a list server could be >acquired at a modest cost. > >I would propose that we take turns in choosing a weekly topic to exchange >views about. This could be as simple as "Depression," or "Anger" or a >little more elaborate, such as "What are the positive things PD has >brought into your life." An always OK topic would be "How is your NOW," >a catch all to allow discussion of today's experience with PD, its >challenges, absurdities, teaching ability, etc. > >If anyone is interested, please advise, and you are welcome to post me >privately. > >Chuck Murray >[log in to unmask]