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Judy, Murray, et al

BOY!  Do we get down to the nitty-gritty here on the List.

 When I tried to speak about urinary frequency as a PD symptom
with my cousin as she asked what each pill I was taking was for
(Pooh!  A mere handful, compared to those occasional "TWO handfuls
Pill Days!) <rueful smile>,  found her unable to discuss the
EITHER topic - the PD  or the frequency.... She found the PD too
scary to talk about and was too embarrassed to talk about the
other  topic.  Mind you, we are CLOSE cousins and close
friends....

Anyway, back to the topic... I take a generic form of Daytril (the
gold standard for frequency) comprised of oxybutinin chloride and
imipramine daily.

In the 2 years I've been on these drugs, I no longer run to the
bathroom the 50 to 60 times a day that had made my life HELL for
several years prior to taking the meds.

And YES.... frequency IS caused (in our cases) by the PD doing
it's "thang" on our respective and collective bladders.  But at
least we DO have the drugs nowadays, and the drugs DO work!!!

WOWIE!   I now no longer feel like I'm single handedly supporting
the toilet paper industry!!

Barb Mallut
[log in to unmask]

Original Message-----
From: Judy George <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Friday, June 30, 2000 12:15 AM
Subject: Re: DSSE & urination


>nothing like personal experience murray
>thanks for your frankness it helps to guage  and evaluate my
symptoms
>judy
>
>
>>From: Murray Charters <[log in to unmask]>
>>Reply-To: Parkinson's Information Exchange Network
>><[log in to unmask]>
>>To: [log in to unmask]
>>Subject: DSSE & urination
>>Date: Wed, 28 Jun 2000 22:49:24 -0700
>>
>>On 28 Jun 2000, at 20:33, Judy George wrote:
>>
>> > janet and all
>> > got the dsse from your site
>> > i cant open yours marjorie and no children have materialised
to assist
>> > what a great tool
>> > my thanks for your wonderful efforts at your site
>> >
>> > could i ask
>> > how does pd effect urination?
>> > what should i be noticing
>> > how do muscle cramps manifest themselves
>> > often, on the odd occasion, seldom????????
>> >
>> > the other symptoms i understand well enough i think
>> > regards to you all
>> > judy
>> >
>>
>>Hi Judy,
>>Speaking from personal experience, I have noticed variances in
frequency,
>>(urge to void more often up to hourly) and the feeling when you
get the
>>urge
>>that ya just might lose it all if you don't go right now.
>>
>>I can only speculate on a possible cause. Perhaps anxiety &
stress, perhaps
>>a side effect of a drug, perhaps a minor bladder infection, or
perhaps this
>>is
>>directly related to Parkinson's....  This symptom (with me) goes
into
>>remission
>>by itself after a while and I tend to forget all about it for a
year or two
>>until I
>>again experience the thrill of nearly wetting my pants in
public.
>>
>>I would suggest it is on the sheet because it is something that
should be
>>noted and discussed with your doctor and is probably very
treatable.
>>
>>I think the things to watch for are abnormalities like
frequency, urge,
>>leakage,
>>volume retained, any burning sensation, any difficulty.
>>
>>cheers ........ murray
>>
>>
>>
>>
>>
>>[log in to unmask]
>
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