Hi Audrey C.---not too long---sounds like you are still on that
MerryGoRound of diagnosis. What a pain! As I recall, you DO see a movement
disorder specialist, so there's no use telling you to go to an MDS! It
does seem strange that they can't identify what causes all those problems.
Hang in there, and keep working on it. Would the SPECT scan really be a
problem when you're trying to get pregnant? O'm not familiar with it. Let
us know what happens----and good luck with finding a diagnosis.
Audrey wrote:
> Good morning to all, Back in Jan of 1999 ,I was told I have
>Parkinsons , a yr goes by not happy with my DR. all he is doing is handing
>meds all the time so I look for a new DR .so I did but they were doing
>research called the SPECT scan They could do so much for me
>,till I said no for get it I am still trying to get pregnant ok, well now the
>DR. said I dont have pd later . Now I have to start over look for another
>DR. I found one , he saw but he saw to many patients with my
>insurance ,then he said I don't think you have PD , and your to young to be
>Sinemet cr and said later also. Here I go once more I called my insurance
>they gave me a DR. he told me to stop the Sinemet , plus he said you have
>Essential Tremor, I said I do you know that only been off the meds for 4 days
>at the time . So he wanted to give me some thing for the tremors , I said no
>thank you let me see how my body feels , Well my dragging of the feet are
>back slowing down, body freezing, I will deal with this so the Dr. could see
>how my body was befor with out meds. I dont rule out PD or some thing but not
>just a tremor its not. hope this wasn'''t to long .
> Audrey C
> from CT THank you
for YOU from Camilla
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