 |
 |
If you desire information on Shy Drager Disease or Syndrome, you may be interested in the Shy Drager list discussion, much like the Parkinsn list, run from Vanderbilt University. Information about that list is available at http://www.wenet.net/~ccjm/shy-drager/e-list.html Vanderbilt University also has an Autonomic Dysfunction Center which is building a Web Site with information about several aspects of Shy Drager Syndrome and Multiple System Atrophy. This site still appears to be under construction, however. http://www.mc.vanderbilt.edu/gcrc/adc/sdfund.html Jorge Romero ----- Original Message ----- From: Ladye Buckner <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, July 06, 2000 6:26 AM Subject: Re: niacin / SHY-DRAGER > Does anyone have information on Shy-Drager Syndrome? I have also been > reading about this and almost belief Joe has all of these sysptoms. I > haven't discussed this the the neuro yet but plan to do so. > > One of Joe's biggest problems we deal with (besides all the PD) he can pass > out almost as soon as he sits up on the side of the bed. It doesn't happen > all the time but a good part of the time. He has also fallen asleep and > ended up face down in his breakfast on 3 occasions now. We can't leave him > alone even when he is eating. > > I found info on www.webmd.com on Shy-Drager but am interested in any other > information I can come up with. Thanks, L for Joe 92/89/xx >