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Margie, Your dh's time with pd and age are very similar to my dad's.  Is the
DBS reversible in the event new treatments and possible future cures.
Thanks much, Jennifer

-----Original Message-----
From: Dick Swindler [mailto:[log in to unmask]]
Sent: Monday, July 10, 2000 4:06 PM
To: [log in to unmask]
Subject: Re: New Member with ????s


Hi, Jennifer,

I know that the benefits of pallidotomy tend to wear off over time.  If your
dad just had a pallidotomy on one side, he'd still be a candidate for DBS
(deep brain surgery, in which electrodes are implanted into the brain) on
the
other side.  The most recent type of DBS is STN, or location of the
electrode
in the subthalamic nucleus.  The benefits seem to last and sometimes
recipients show increasing improvement over time.  As for future treatments
and possible cures, I don't know.  It would probably depend on what the
treatment is.

Is your dad seeing a movement disorder specialist?  Those are the neuros who
specialize in PD and similar diseases.  They're usually much more
knowledgeable about PD, PD meds, surgical treatments, and so forth.  If your
dad isn't seeing a movement disorder specialist and you'd be interested in
finding one, tell the listmembers where you live, and someone will come up
with some good recommendations.

BTW, my husband was diagnosed at 37 and is now 55.  He has had PD for 18
years.  Four and a half years ago he had bilateral DBS, and got a new lease
on life.  The surgery doesn't cure the disease, but it sure gave him back
his
life, and he continues to do extremely well for someone who has had PD for
18
years.

Good for you for being concerned and wanting to get involved in your dad's
care and treatment.  As his condition worsens, he's less able to make good
judgments about his own condition, or to think what to do to seek help for
it.

Margie Swindler, cg for Dick, 55/18

<< Thanks to Camilla and Sylvia.  I am checking out the site as I read this.
I
 am trying to read about pallidotomies and there effect on benefits of
future
 treatments or possible cures.  If anyone has any comments, I would
 appreciate them.
  >>