Print

Print


"This is a family disease"  Juanita, what you said rings a bell with me.

My dad has PD and my maternal grandpa has PD.  Therefore I have it on both
sides.  I am very fearful for my siblings and myself that we will get it.  I
am 30 yo and sometimes I think about the future and how I would cope with
it.  Everytime I have trembling in my arm or weakness, I think, "Oh no, it's
starting."  I wonder how my dh would cope with me getting it.  I don't think
he would cope well, as I am the one who does most of the work around the
house, etc.  Also, I want to have a few more kids (I have one) and I dread
the thought of doing that with PD.

Does anyone know what my odds are of getting it?  BTW, my dad has the early
onset at age 39 and my mother's father has late onset in his late 60's or
early 70's - not sure.

Thanks much, Jennifer, Dad is PWP 39/55

-----Original Message-----
From: Juanita Hibbert [mailto:[log in to unmask]]
Sent: Wednesday, July 12, 2000 4:07 AM
To: [log in to unmask]
Subject: Re: doubting Thomas


Dear Thomas. I am a caregiver. I try to be
a very positive one.From my prospective
it is important for you to convey to your wife that you have great
concern for what
is happening to you. You will be very aware of every little change in
every aspect of your being. You might suggest that she become a
participant on the care
list. Also keep TALKING to her. She is
either unaware of the severity of this disease or is just not sure how
to react
to the facts.
Does she go to the dr with you.? If not
you might suggest that you both make a
consultation appt with your nuero. That
way she can become involved in the reality of the need for as much
knowledge as possible.This is a family disease. It is
necessary for both of you to get your concerns out in the open. Get all
the
information that you can. Now is the time to plan for the future. Don't
dwell on the worst, however be aware of what to look for and how to make
the best possible
choices for your care  Encourage your wife to be apart of your medical
treatment plan.
George and I are very fortunate. We have always been able to plainly
express ourselves to one another. We both have fears and MOST we are
able to talk about.
Hope this has helped from a caregivers
side of the coin.
Good luck, Juanita CG for George 74/71/64