 |
 |
barb, you shame me with your warmth and consideration and understanding!!!!!!! hilary Barb_MSN wrote: > > Hi Alf..... > > While I'm not a caregiver, I've had PD for almost 26 years. Also, > I've got 7 years on ya and do NOT consider myself as "old." > <smile> > > I suspect your wife's reference to any symptoms you've mentioned > in her presence as being AGE related instead of possibly being PD > related is HER way of showing her denial of your diagnosis. > > It sounds like you've got a healthy curiosity about what's > happening to your body, and that will benefit you in the future. > > Just remember when it comes to a major illness such as we have, > your wife is entitled to her own thoughts, feelings, and fears > about what YOU'RE going thru as well as what SHE is going thru > because of the sudden intrusion into her life, and her marriage of > this steeeeeenkin' disease. > > Hang in there.... > > Barb Mallut > [log in to unmask] > > -----Original Message----- > From: Alf Cousins <[log in to unmask]> > To: [log in to unmask] <[log in to unmask]> > Date: Wednesday, July 12, 2000 12:02 AM > Subject: doubting Thomas > > >I know caregivers must have a difficult time, finding their lives > turned > >upside down, especially after years of effort, but how do I deal > with my > >wife (I'm not modern enough to call her a 'significant other') > who responds > >to every report of my condition with a "that's probably just > because of your > >age". I'm 50, I've had the symptoms for nearly two years, got a > firm > >diagnosis from a Neurologist about two months ago. OK, so it's > early days > >and I don't need meds, and the tremor etc doesn't get in the way > of doing > >things. But I notice changes which I also read about in forums > like this > >one, like vivid dreams, blurred vision, loss of smell, and so on. > I have to > >say, I'm acutely aware of becoming a hypochondriac (-you know, > the best way > >to make your family ill? Buy them a medical book for Xmas!) So, I > kinda note > >the new symptoms with the same interest as, I imagine, a pregnant > woman > >notes the subtle changes in her body. One day the bump is going > to be > >obvious to everyone. But for now, when I report some new > observation I'd > >like the conversation to be about the possibility that it may be > related to > >PD, not have it dismissed as "Look you're getting older, you > might have > >expected this to happen anyway..." Am I being unfair, am I > missing > >something.... any caregivers out there who want to fire an > opinion my way. > >Alf > >50/<1/2