 |
 |
Greg, I think it may be money well spent. I, too, am a part of this study. The study being spoken of can be important. They are looking at disease progression and the area(s) of the brain involved. This is not the sort of basic research the drug companies are doing..This study is not looking for a cure. It is looking for the basic cause and trying to better understand the disease. The study is using here to fore unavailable technologies and starting from itch [that is just before scratch]. I personally think that it will be necessary to find the cause(s) before we find the cure. Will Johnnston A.P.D.A. DelMarVA Chapter Pres. 4049 Oakland School Road Salisbury MD 21804 USA 410-543-0110 ---------- From: Greg Sterling <[log in to unmask]> To: [log in to unmask] Subject: Re: A new PD study! Date: Monday, July 24, 2000 8:42 AM Murray, Sounds like a waste of money to me. I'll bet the results show a marked decrease in both physical and mental reaction times. DUH. What rocket scientist proposed this gem? It almost makes me want to call then myself. They ought to donate the funds to the hungry or something. Sorry if I don't share your enthusiasm. Greg 47/35/35 ----- Original Message ----- From: "Murray Charters" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, July 24, 2000 5:42 AM Subject: Re: A new PD study! > On 19 Jul 2000, at 10:25, Bill Innanen wrote: > > > I'm going to be in another PD study! The Udall Parkinson's Center at > > Johns Hopkins is doing a study of reaction time in Parkinson's > > patients. Christina (one of the people who were administering the > > tests for the Hopkins Longitudinal Study [1]) called me at home > > yesterday to ask if I was interested, but all she got was my > > answering machine. Today I called back and agreed to be a victim. > > > > From what Christina said it's a 3-way study of reaction time. One of > > the sections is the same reaction time test on the laptop that I did > > in the Longitudinal Study. In fact it sounded as if I won't have to > > repeat that segment. Then they hook you up to an EEG and monitor > > your brain waves while doing similar reaction time tests. The third > > segment is the most exciting. It will be testing reaction time while > > they monitor my brain functions in a fMRI machine (functional MRI - > > they can see segments of the brain light up as they are used). One > > of the many questions Christina asked was if I was claustrophobic. > > I'll be spending several hours in the machine. > > > > I quipped that they would probably find that my skull was completely > > hollow. Christina said that is a universal response to a first MRI > > of the head - everybody says that! (And here I thought I was being > > original.) > > > > The tests are being run on Wednesdays when they have the fMRI macnine > > time. My appointment is for 2 August. She will be sending me more > > explanatory material soon (by snail-mail presumably). > > > > I'm excited! > > > > Here are some fMRI web pages. I have yet to find a simple "what-is" > > page for fMRI. > > > http://www.nmr.mgh.harvard.edu/fmrianalysis/index.html > > http://www.fmri.org/ > > http://128.151.16.162/2nmr.html > > http://crl.ucsd.edu/bilingual/fMRI3.html > > > Bill > > > > Longitudinal Study: see the 19 May entry in my diary: > > http://bill.innanen.com/parkinsons/diary200005.shtml > > -- > > Bill Innanen <mailto: [log in to unmask]> > > <http://Bill.Innanen.com> & <http://mni.ms> > > Hi Bill, > Good on ya for volunteering for a study.... I have given the Movement Disorder > Group here at least on day every year since diagnosis........ > > We can make a difference...... > > Here are a few links re: fMRI... Give you sumpthin' t'do while you're waiting > for Aug. 2nd. ..... Let us know how it all works out..... > > History of fMRI > http://www.ee.duke.edu/~jshorey/MRIHomepage/fmri.html > > fMRI Study Info > http://www.csbmb.princeton.edu/fmri.html > > fMRI Screening Info > http://www.csbmb.princeton.edu/screening.html > > fMRI Current Studies > http://www.csbmb.princeton.edu/cgi-bin/ranstudies > > Functional MR Imaging (fMRI) > http://www.radiologyresource.org/content/functional_mr.htm > > MRI & fMRI > http://teach.bhs.mq.edu.au/~tbates/imaging_techniques/fMRI/MRI_&_fMRI.html > > Brief Introduction to fMRI > http://www.fmrib.ox.ac.uk/fmri_intro/ > > fMRI - About Functional MRI (General) > http://www.fmri.org/fmri.htm > > All About Functional Magnetic Resonance Imaging (FMRI) > http://www.cmrr.drad.umn.edu/fmri.html > > Functional Magnetic Resonance Imaging (FMRI) Med Students > http://www.medstudents.com.br/original/original/fmri/fmri.htm > > Using fMRI to Study the Brain > http://www.giccs.georgetown.edu/labs/bbf/fMRI.html > > Watching the Brain in Action > http://www.psc.edu/science/goddard.html > > fMRI Brain Imaging > http://www.artificialbrains.com/brainscanning/fmri.html > > NIDA - Teaching Packet - The Brain and the Actions of Cocaine, Opiates, and Marijuana > http://165.112.78.61/Teaching/Teaching.html > > Functional MRI studies of face recognition > and conditional visuo-motor associations > http://rhea.ujf-grenoble.fr/people/ssimon/ > > Brain Activity is Visibly Altered > http://health.ucsd.edu/news/2000_02_09_Sleep.html > > fMRI > http://hendrix.ei.dtu.dk/staff/students/fnielsen/thesis/finn/node16.html > > Functional MRI Networks - 300+ links > http://www.duke.edu/~richwarp/ > http://www.duke.edu/~richwarp/fmri.html > > Functional fMRI - Links & Info > http://www.functionalmri.org/ > > The National fMRI Data Center - New > http://www.fmridc.org/ > > James Wilson - fMRI Research Student > http://www.fmrib.ox.ac.uk/~wilson/ > > fMRI / MRI / Brain Image Analysis Labs > http://www.fmrib.ox.ac.uk/resources/labs.html > > Other interesting Brain Mapping Sites... > http://porkpie.loni.ucla.edu/BMD_HTML/BrainMapSites.html > > http://www.fmri-world.net/ > > John Hopkins Medical Institutions > Division of Psychiatric Neuro-Imaging > http://pni.med.jhu.edu/ > http://www.mri.jhu.edu/ > http://www.mri.jhu.edu/main.html > > Neuroimaging Links > http://www.neuropsychologycentral.com/interface/content/links/page_material/ imaging/imaging_li > nks.html > > Best regards .......... murray > > > [log in to unmask] > > View the Parkinson's Awareness Links at: > http://www.geocities.com/janet313/pienet/wwweb/index.html >