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Jen,
I know I have been running around in circles over my husband's health
and forthcoming surgery, but have I missed something?

What John Cottingham is talking about is, you don't have to belong
to this list ,if you don't want to get all these messages in your mailer.
You can go to the PIENO, choose, NOMAIL, and not get it delivered to
your computer, but you can still scan the last 500 messages, and use
the archives without even belonging to the list.

This list does just what its supposed to do. Provides a place for us
PWP to let off steam and interact with each other.
Its not a place for strictly Medical Information, there are PLENTY
of URL's for those places.
I can't imagine why we'd want to leave here?

Did I miss something?

just me,
Marjorie





At 02:15 PM 08/01/2000 -0400, you wrote:
>I know that I am new here, but I thought I might introduce you to a service
>called egroups. You can find out about their services at
>http://www.egroups.com/info/features.html.  I think that they would be a
>great tool for you guys. They provide a chat room and online polling. This
>is just a few of their many services. I know about them, because I am on
>another support group through them. All of your emails would go through
>them and be archived there. They will help you transfer your group if you
>have over 500 members. Just a thought.
>
>Jen, Dad w/ PD 55/39
>
>-----Original Message-----
>From: John Cottingham [mailto:[log in to unmask]]
>Sent: Tuesday, August 01, 2000 10:02 AM
>To: [log in to unmask]
>Subject: Re: Get me off this list
>
>
>It has been my observation that Parkinsn membership motivation is related
>to wanting a question answered. Most folks have tunnel vision and refuse to
>read anything that doesn't relate to their interest. The old saying, "You
>can lead a horse to water..but you can't make him/her drink" applies to the
>readership.
>
>Periodic postings don't reach those folks. People don't relate P-I-E-O to
>Parkinsn so they think P-I-E-N-O postings aren't meant to provide useful
>information for them. If the list had an annual resubscription requirement,
>only the core of Parkinsn, about 200 people, would remain from year to year.
>
>The longer folks stay, and their memory wanders is the motivation of the
>periodic postings.
>
>Mail screening works but useful information is lost by those who are in a
>fix and need to do something with their subscription.
>
>The new breed of surfer and subscriber demands instant gratification and
>detailed instructions while clear and concise and tolerated by veterans of
>the net, are no longer suitable. The new folks don't get it that a machine
>rather than a parkie or volunteer handles subscriptions. There are no
>employees here.
>
>I've tweaked the address of the page with the mail management buttons so
>that it won't wrap in email and work to initiate your default browser and
>go to the page.
>
>The tweaked address for the P-I-E-N-O maillist page is:
>
>http://parkinsons-information-exchange-network-online.com/parkmail/
>
>Don't worry about the Notice page that appears, you will be taken to the
>proper page.
>
>
>Click on the button that applies to your Parkinsn mail option. When you
>move the mouse over the buttons, a description of what the button does
>appears.
>
>What happens when you click a Mail Management button is your default email
>program opens and the email is preaddressed and the appropriate information
>is automatically inserted into the body of the message. With the exception
>of the Subscribe button which requires a FirstName and LastName, the
>commands are complete. Just send the message. Depending on the net, the
>listserv or your email provider, an acknowledgement message from the
>listserv will appear in your mailbox.
>
>Requirements:
>
>You must interact with the listserv from the same email address that you
>used when subscribing. If you have changed ISPs, unless the mail settings
>for the old ISP are still in your email program, it won't work.
>
>Give the listserv a day to reply. If you are using one of the free email
>addresses or AOL even though you click the send button on your email
>program, your ISP may not send your message over the internet for hours,
>minutes or days.
>
>If you click on a Mail Management button and your email program doesn't
>open or nothing is placed in the body of the message, your browser's email
>settings are set wrong. If you use another browser also, try it.
>
>
>
>[log in to unmask]  Search the parkinsn archive online at:
>                 http://james.parkinsons.org.uk
>                Catch the Parkinsn's List Online messages at:
>         http://www.parkinsons-information-exchange-network-online.com
>             Click the navigation ads and use the new search tools
>John Cottingham