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Thank you SOOOOO much for addressing the issue of "PWP GUILT"
arising out of resting or napping during conventional "work hours"
(generally accepted as being from 9:00 a.m. to 5:00 p.m. but in
reality, that could go a coupla hours in either direction, and
into the evening)

I thought I was the only Parkie burdened by such guilt!  I
regularly hold long inter-self discussions with my conscience
trying to justify to myself that the guilt is tied into the
Judeo-Christian work issue but know in my heart that's really not
the cause.

The cause of the fatigue IS Parkinson's (for almost 26 years),
with the assistance from the assorted drugs we all seem to take.

So how does one unload the burden of guilt that seems to hit so
many of us?

Barb Mallut
[log in to unmask]

-----Original Message-----
From: Joan Hartman <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Thursday, August 10, 2000 8:03 AM
Subject: Re: Both PD & Non PD


>Marjorie ...you wrote..."I'm still debating with myself is this
is such a
>bright idea to  always know what time it is."
>
>I found it very helpful to know what time it is and how often I
woke up at
>night...this gave me a better understanding of why I can be so
tired during
>the day on some days and feel great  on other days....it gave me
the ability
>to know that I had more sleep on some nights and less on
others.....and I
>didn't feel so guilty if I had to lie down for a half hour
sometimes.
>Joan Hartman
>
>----- Original Message -----
>From: Marjorie L. Moorefield <[log in to unmask]>
>To: <[log in to unmask]>
>Sent: Thursday, August 10, 2000 7:08 AM
>Subject: Both PD & Non PD
>
>
>>         I bought some new furniture for my bedroom yesterday,
>> I went to buy a new  mattress and box springs for myself and
got to
>> looking around and found a sale on a nice chest of drawers with
a bookcase
>top.
>> I needed the bookcase top almost more than I needed the chest
>> of drawers.
>>   So I bought it and my friends picked it up for me
>> and delivered it to the house and then took my old chest of
>> drawers as payment.  I came out the winner on that, I'll tell
>> you. The mattress set will be delivered on 17 August.
>>
>> The point of all this aimless rambling being: I can finally
>> have a clock in my room which I can see at night.
>> I have a decorative Anniversary Clock, but I can't see it
>> in the dark.
>> By being able to see the time at night I found out that every
>> 1.5 to 2 hours I wake up to turn over.  I knew I couldn't turn
>> over without partially waking up, I have to tell myself to turn
over,
>> but I had no idea it was so often.  Also found out that if I
sleep
>> more than a 3 hour stretch of time, that I'm completely frozen
>> when I awaken ,and the only thing which works is my eyelids.
>> Then I have to go through the drill of getting everything to
move.
>> Which I'm sure happens to every Parkie in the world.  Its just
>> that all these years I've never known what time it
>> was during the night.
>> I'm still debating with myself is this is such a bright idea to
>>   always know what time it is.
>> I put my watch away when I retired, since I can no longer
>> hook the latch anyway. PD strikes again! So now I'm completely
>> unadorned, no earrings nor even my watch!!
>>
>> Pinkie Swindler,
>> I think that sillyness was great!!  We need more of it.
>> Life is too serious as it is!!
>>
>> Camilla,
>> I'm sure Peter and I could swap library tales till the cows
come home
>> and never repeat the same ones twice.
>> My favorite one concerning kids, is during Black History Month
>> two young boys came to the reference desk for help, librarians
>> are not allowed to do their research for them, just lead, guide
,and
>> direct them.
>> I asked them if they had picked a subject for their "Famous
Black
>> Women in Early American History" assignment and they became
very
>distraught
>> when told that "Whoopie Goldberg", would not be considered
>> in that category.
>>
>> just me,
>> Marjorie
>>