 |
 |
Janet, why not a separate list for your cd/suicide prevention topics? you certainly have the talent and know-how to go out on your own. on your own list you could moderate - be in control of it - explore in depth the pit of despair cd can cause. that may be what some of those who've given you favorable comments would like - an indepth discussion. i'm sure you could get some pyschologists and pyschiatrists to offer medical opinions for your group. this pd list is an alive, vibrant community of intelligent, hurting pwp's and cg's. there are other topics we are interested in - not a steady diet of one thing. as you noted in this post: there is a lot of other things to discuss - and right now you mainly are concerned with cd/suicide prevention. so i'd say, go for another off-shoot of the list, janet. could be an area you could help many people. there are several other cd nets which you could refer people to also - maybe you might check them out. i believe you could add some very good insight and advice to them too. the topics you've listed have been, will be discussed on this list. we have a healthy exchange of ideas, suggestions, and at times tearful requests. but no one person should dominate the posts and decide what the majority of us want to discuss. no one person should have an agenda all the other list members are expected to follow. in essence, that's what barb p was telling us in her recent post. this doesn't mean 'divided we fall' as you so dramatically suggest - it just means we are a growing group - and a part of us may want to discuss an issue more in depth than the rest of the main list members do. you would be the logical leader to start a cd list since it obviously is something you're intensely interested in. i believe barb p has created this list as a service to all of us. it will go on even if we splinter off some more special interest groups. did the list die when sparkle was created? did it die when care givers were given their own list? it will survive for us and in spite of us - as long as barb p wishes it to. barb k At 08:51 PM 8/13/00 -0400, you wrote: >hi all > >i am having trouble understanding the logic >behind the idea that some think that clinical depression >might be more suited to a list separate from this one > >cd is effectively a pd symptom in 50% of all parkies > >if the 'official' major symptom of pd is tremour or ridigity >would similar logic not suggest that 'us' rigidity types should >go off and form a separate list from 'you' tremour types? > >or that 'you' old onset types go off and form a separate list >from 'us' young onset types? > >or how about 'you' folks with constipation problems >'i' find the subject unpleasant to talk about >and 'i' don't share 'your' symptoms >so why don't 'you' go off and form a separate constipation list? > >1900 of 'us' here >means 50% or 950 of 'us' have cd >and 80% of the 950 or 760 of 'us' have not had it diagnosed >and are not receiving the medical care 'we' need to deal with it > >in other words [or numbers] >40% of 'us' are doubly disabled needlessly >personally 'i' found the 'paralysis of will' that comes with cd >profoundly more debilitating than anything pd has dealt 'me' so far > >in other other words [or numbers] >40% of 'our' group energy, synergy, spark, gumption, and drive >is effectively inaccessible to the parkinson cause > >isn't freeing up all that pent up energy worth a little discomfort? >heck, i'd even put up with the constipation discussions! > > >janet > >janet paterson >53 now / 44 dx cd / 43 onset cd / 41 dx pd / 37 onset pd >tel: 613 256 8340 url: "http://www.geocities.com/janet313/" >email: [log in to unmask] smail: POBox 171 Almonte Ontario K0A 1A0 Canada