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Hilary, I agree with you, the need to fund retirement community for YOPDs. I am interested in learning more about this subject. Long term care will be a major problem for as. We need to take control of our own lives and futures. Yes, the cure will come, but what about us who have had PD for 10 yrs. Hilary or anyone else, your thoughts on organizing and further discussions on this subject, please email me at [log in to unmask] thank you, bob garrick > From: Hilary Blue <[log in to unmask]> > Reply-To: "Parkinson's Information Exchange Network" > <[log in to unmask]> > Date: Wed, 9 Aug 2000 01:11:01 -0500 > To: [log in to unmask] > Subject: Re: Announcing a fundraising party for PD research > > may i make a radical suggestion? > that the money NOT go to research! > but that it be used > to form the nucleus of a fund > to build > a retirement community for YOPDs! > if they can do it in australia we can do it here. > and it is desperately needed. > > some of us shooting our mouths off > on this list > we are the ones who will need it. > the cure is coming > that is sure > but will it be in time for us/and even if it is, > will it buy back what we have lost > or arrest the progress of the disease where it is at ?? > in either case, large number of us > will need assisted living facilities > so let us thank nih for heeding our call, > and leave the research fund Raising > > > > > > > > in > the hands > of those who are so capably succeeding, > and let us turn our attention to the needs' of the people > the faces behind the mask, > the names we have read, > and the stories we have heard > let us worry about what is going to happen to them, to us, > and let us dedicate ourselves > to helping ourselves > not becoming a burden. on others. > > hilary blue > 51,33,24. > > > > Ivan M Suzman wrote: >> >> ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) >> Ivan Suzman 50/39/36 [log in to unmask] :-) >> Portland, Maine land of lighthouses 67 Deg. F. sunset - clear and >> dry :-) >> ******************************************************************** >> Dear friends in the Parkinson's community: >> >> ANNOUNCING A GALA FUNDRAISING PARTY >> >> I am planning to host a fundraising gathering for PD research >> on Sunday afternoon, September 24, 2000, in Portland, Maine, >> and would like to link in with the PD Unity Walk in New York City. >> >> I hope to invite dozens of friends and caregivers, >> and raise at least $15,000.00 for PD research. Anyone >> reading this message is invited, and you may call me >> at Cure-It Productions, 207-797-5785 for information >> on travel and accommodation . >> >> My two questions are: >> >> 1) How can $15,000.00 be best used to help >> PD research? It is not a lot , but it might make >> a bit difference to a research project either about >> to start , or already going on. >> >> 2) Where does the Unity Walk money go? >> It seems like there are so many possible >> recipients. I really wonder what the options >> are when one has this $15,000.00 goal in mind. >> >> Sincerely yours, >> >> Ivan Suzman >> >> :-) >> 50/39/36 >