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Hey Barb, My grandmother used to tell me that guilt was pretty much always connected to the word "should". I "should" be doing this, I "should" have done that, I "should" be able to cope with........whatever. She was thrilled when I met a friend whose favorite saying is "Don't should on me". If you say it too quickly it can sound somewhat naughty, I usually get a pretty good giggle out of it. :O) PWP or not, none of us needs to feel guilty for doing whatever we have to do in order to function as best we can. Happy napping. ;O) Peace Pat Barb_MSN wrote: > Thank you SOOOOO much for addressing the issue of "PWP GUILT" > arising out of resting or napping during conventional "work hours" > (generally accepted as being from 9:00 a.m. to 5:00 p.m. but in > reality, that could go a coupla hours in either direction, and > into the evening) > > I thought I was the only Parkie burdened by such guilt! I > regularly hold long inter-self discussions with my conscience > trying to justify to myself that the guilt is tied into the > Judeo-Christian work issue but know in my heart that's really not > the cause. > > The cause of the fatigue IS Parkinson's (for almost 26 years), > with the assistance from the assorted drugs we all seem to take. > > So how does one unload the burden of guilt that seems to hit so > many of us? > > Barb Mallut > [log in to unmask] > > -----Original Message----- > From: Joan Hartman <[log in to unmask]> > To: [log in to unmask] <[log in to unmask]> > Date: Thursday, August 10, 2000 8:03 AM > Subject: Re: Both PD & Non PD > > >Marjorie ...you wrote..."I'm still debating with myself is this > is such a > >bright idea to always know what time it is." > > > >I found it very helpful to know what time it is and how often I > woke up at > >night...this gave me a better understanding of why I can be so > tired during > >the day on some days and feel great on other days....it gave me > the ability > >to know that I had more sleep on some nights and less on > others.....and I > >didn't feel so guilty if I had to lie down for a half hour > sometimes. > >Joan Hartman > > > >----- Original Message ----- > >From: Marjorie L. Moorefield <[log in to unmask]> > >To: <[log in to unmask]> > >Sent: Thursday, August 10, 2000 7:08 AM > >Subject: Both PD & Non PD > > > > > >> I bought some new furniture for my bedroom yesterday, > >> I went to buy a new mattress and box springs for myself and > got to > >> looking around and found a sale on a nice chest of drawers with > a bookcase > >top. > >> I needed the bookcase top almost more than I needed the chest > >> of drawers. > >> So I bought it and my friends picked it up for me > >> and delivered it to the house and then took my old chest of > >> drawers as payment. I came out the winner on that, I'll tell > >> you. The mattress set will be delivered on 17 August. > >> > >> The point of all this aimless rambling being: I can finally > >> have a clock in my room which I can see at night. > >> I have a decorative Anniversary Clock, but I can't see it > >> in the dark. > >> By being able to see the time at night I found out that every > >> 1.5 to 2 hours I wake up to turn over. I knew I couldn't turn > >> over without partially waking up, I have to tell myself to turn > over, > >> but I had no idea it was so often. Also found out that if I > sleep > >> more than a 3 hour stretch of time, that I'm completely frozen > >> when I awaken ,and the only thing which works is my eyelids. > >> Then I have to go through the drill of getting everything to > move. > >> Which I'm sure happens to every Parkie in the world. Its just > >> that all these years I've never known what time it > >> was during the night. > >> I'm still debating with myself is this is such a bright idea to > >> always know what time it is. > >> I put my watch away when I retired, since I can no longer > >> hook the latch anyway. PD strikes again! So now I'm completely > >> unadorned, no earrings nor even my watch!! > >> > >> Pinkie Swindler, > >> I think that sillyness was great!! We need more of it. > >> Life is too serious as it is!! > >> > >> Camilla, > >> I'm sure Peter and I could swap library tales till the cows > come home > >> and never repeat the same ones twice. > >> My favorite one concerning kids, is during Black History Month > >> two young boys came to the reference desk for help, librarians > >> are not allowed to do their research for them, just lead, guide > ,and > >> direct them. > >> I asked them if they had picked a subject for their "Famous > Black > >> Women in Early American History" assignment and they became > very > >distraught > >> when told that "Whoopie Goldberg", would not be considered > >> in that category. > >> > >> just me, > >> Marjorie > >>