Dear Michel and Barb,
The dyskinesias and hallucinations make me wonder if it would be best to
reduce her Sinemet, even at the cost of increasing her PD symptoms. Have
you discussed this with her physician?
My heart goes out to you both -- Barb is a beautiful and courageous
woman, and does not deserve this, nor do you. You have the support of
many friends on this list, and my thoughts and prayers are with you
both.
Love and prayers,
Kathrynne
P.S. I have changed the subject line so you wouldn't delete. I agree --
I have heard offline from two listmembers who state the constant posts
on suicide and CD have put thoughts in their minds that weren't there
before. They were not positive thoughts.
Michel Margosis wrote:
>
> I have decided to delete every post dealing with suicide, especially
> Janet's. My Barb has had PD for about twelve years and the disease has
> progressed to the point that she is now hallucinating and her invisible
> companions are getting too real. She has also become psychotic and
> paranoid, thinking that someone out there is after her family, her
> children and me, and also out to get her for being too outspoken. I
> have the kids (these kids are married adults) call her and reassure
> her. I am also afraid she might harm herself, and am inquiring into
> more CG help.
> Now, I can truly say that 'the honeymoon is over'. Barb is not doing
> well with Seroquel and I've been in touch with the psychiatrist after
> several wrenching episodes of high dyskinesia and severe depression.
> Zyprexa is likely the next antipsychotic drug we are likely to try.
> Neighbors in this senior community are quite helpful but cannot
> understand. This is our struggle and we are not winning.
> But I am still sending out bits of humor ...to change the subject.
> Michel
> 'Carpe Diem'
> I think we did when we could.
--
Kathrynne Holden, MS, RD
Author: "Eat well, stay well with Parkinson's disease"
"Constipation and Parkinson's" -- audiocassette & guidebook
"Guidelines for Medical Nutrition Therapy for Parkinson's disease"
& Risk Assessment Tools
"Risk for malnutrition and bone fracture in Parkinson's disease,"
J Nutr Elderly. V18:3;1999.
http://www.nutritionucanlivewith.com/
