Barb, I think you should ask your doctor for a referral to a speech
pathologist. They are trained specifically to deal with the very
areas of the tongue, mouth, and throat that you describe, and should
be able to provide information and help.
Has your doctor discussed the possibility of a dystonia in the
throat area with you? If not, you might want to consider bringing
that up. Please keep us informed of your progress.
My very best regards,
Kathrynne
Barbara Blake-Krebs wrote:
>
> Since about Aug. 9 I have had sensations in my mouth with my tongue
> seeming to be pinched, bound, and pulled. My swallowing problems and
> tightness in the throat have been multiplied by the sensations of my tongue
> being pulled back in the throat and the pulling upward of the tongue. I feel
> like a membrane has tied the tongue to my teeth and to the back of the mouth.
> I feel like the membrane also pulls the sides of my mouth toward each other.
> There is a horseshoe shaped bone in the rear of the mouth in the palatte
> region which feels like it has bent back and forth other parts of the mouth.
> In early morning when I rise mouth is dry, I cannot move, head leans to the
> right, and my tongue seems to be wrapped around my throat. Yesterday dr.
> said no membrane as I described was in the mouth and she was puzzled about
> the horseshoe shaped bone. This morning I learned that the tongue is coated
> with a lingal membrane and the tongue muscles have mucous membranes. There
> is also the hyoid bone which is u-shaped in the deep rear of the mouth. This
> was on the Internet. I feel like I am in danger of strangling. Any thoughts
> or advice would help. Current meds are Sinemet 25/100 1.5 tabs at 6A and 1
> tab at 9A 12P 3P 6P and 9P with two half tablets available during sleep time.
> 4 two mg Requip four times a day and one 25mg elavil at bedtime. I also
> have been prescribed Xanax during the day (up to 4 .25 pills) and liquid
> valium at night. Barbara Blake Krebs by Fred Krebs [log in to unmask] Write
> to my address rather than to the list.
--
Kathrynne Holden, MS, RD
Author: "Eat well, stay well with Parkinson's disease"
"Constipation and Parkinson's" -- audiocassette & guidebook
"Guidelines for Medical Nutrition Therapy for Parkinson's disease"
& Risk Assessment Tools
"Risk for malnutrition and bone fracture in Parkinson's disease,"
J Nutr Elderly. V18:3;1999.
http://www.nutritionucanlivewith.com/
