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Jeannette and PIENfamily, Right or wrong, it is those words, END STAGE PARKINSON's that he used, that I have to cope with. Thank you for supporting me, Jeannette. Somehow I hope that I can avoid the episodes of hypothermic paralysis that can come over me in literally two or thre seconds. Then I am really at God's mercy if noone is around, and some- times I can't move at all. Ivan :-) On Thu, 7 Sep 2000 08:01:24 -0500 Leo Fuhr <[log in to unmask]> writes: > List family, > > Ivan said in part: > > > > My 45-ish family doctor has just used the > words, "END STAGE PARKINSON's" > to describe my symptoms. THIS is > truly challenging, something I must > give considerable thought > to, then try to forget about, and only then, > try to beat it back by living VERY mindfully. > > It seems that Ivan has done what anyone who is told depressing > information > about his/her health must do. He has thought about it, decided to > not > dwell on it, and has pushed the information to the back of his > thoughts and > is still LIVING, and DOING the things he determines are MOST > necessary to > his living. IE, still advocating for those disabled by PD, still > singing > or doing the things he enjoys, still asking questions, still being > the Ivan > we have come to know through this forum. > > Keep on living, coping, questioning, advocating Ivan! Your doctor > was just > giving you his opinion on what for him might have been a "bad" day. > Who > knows, on that particular day you might have been in a bad "off" > during the > dr visit. > > Hang in there, > Jeanette Fuhr 49/47/44? ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 50/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ********************************************************************