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Dear All I'm a UK-based documentary-maker making a serious science film about early-onset Parkinson's for the BBC. Part of our film features a young man who has found that a certain illegal psychoactive helps relieve both his PD symptoms and dyskinesias. Given the sensitive nature of the subject, it's not easy to get other PWP to admit to taking illegal drugs, but I wonder if anyone here has had any experience in this area and would be willing to talk to me privately - in absolute confidence. Jemima Harrison Producer/Director > From: "Kathrynne Holden, MS, RD" <[log in to unmask]> > Reply-To: Parkinson's Information Exchange Network > <[log in to unmask]> > Date: Fri, 1 Sep 2000 08:48:31 -0400 > To: [log in to unmask] > Subject: Re: laser treatment for Parkinson disease > > Dear Yen, > Your father has been diagnosed with PD for five years, yet > is only taking 300 mg of levodopa daily. It's possible that > he is undermedicated. > > It's also possible that the "passing out" episodes are due > to orthostatic hypotension, which can occur with PD > medications. Is his physician a neurologist specializing in > movement disorders? That is extremely important for his > well-being as PD advances. As PD progresses, it becomes > increasingly harder to prescribe exactly the right > medications in the right amounts. > > I suggest you might e-mail your question to Dr. Abe > Lieberman, a leading neurologist specializing in Parkinson's > disease. > > If you'd like to do so, go to the NPF website: > > http://www.parkinson.org/ > > scroll down the page and click on > > Ask Dr. Lieberman, NPF Medical Director > > Follow the directions, and you'll be able to e-mail Dr. > Lieberman > directly. He usually responds within 48 hours. > > My very best regards, > Kathrynne > > yen dinh wrote: >> >> Hi everyone, >> >> My father is 64 years old. He was diagnosed at 59. He has been taking >> Sinemet continuously since then. Now, he is taking Sinemet 25/100mg 3tablets >> a day. His health is getting worse. He has difficulty in speaking, moving >> his legs, his hand, and especially he has some sudden passing out times(even >> when he was eating). When that happends, we usually have to help him to lay >> down in a bed then about 15minutes after he will be back consious. My father >> has been taking blood pressure but the result is normal. His blood pressure >> is not too high or neither too low. His doctor doens't know why my father >> experienced the sudden passing out times. We're out of hope right now!!! >> >> By the way, we read on a newspaper about the laser treatment for PD. The >> treatment will be combined with taking the pills(Sinemet). Has anybody ever >> heard about that treatment. Any information would be really appreciated. >> Thanks for your help! >> >> Yen >> >> _________________________________________________________________________ >> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. >> >> Share information about yourself, create your own public profile at >> http://profiles.msn.com. > > -- > Kathrynne Holden, MS, RD > Author: "Eat well, stay well with Parkinson's disease" > "Constipation and Parkinson's" -- audiocassette & guidebook > "Guidelines for Medical Nutrition Therapy for Parkinson's > disease" > & Risk Assessment Tools > "Risk for malnutrition and bone fracture in Parkinson's > disease," > J Nutr Elderly. V18:3;1999. > http://www.nutritionucanlivewith.com/