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Ivan - I agree with Marjorie. No way are you end-stage. Is your doctor a MDS? You think and express yourself far too clearly to be end-stage, and I presume that you're still eating and digesting your food, still getting around, even with help, and so forth. Hang in there, and don't get discouraged by a probably very inaccurate (and unnecessary) diagnosis. Margie << My 45-ish family doctor has just used the words, "END STAGE PARKINSON's" to describe my symptoms. THIS is truly challenging, something I must give considerable thought to, then try to forget about, and only then, try to beat it back by living VERY mindfully. >>