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Dave B.

I have had PD for almost 26 years, and  started out with the
disease and internal tremor  on the right side of my body.  The
only other outwardly visible symptom I had for years was my right
arm became very rigid and was always pulled up at a 25 or 30
degree angle to my body.

As timed passed, other symptoms made themself known tho were still
always internal:   breathing problems, trouble swollowing,
could'nt  turn  over in bed, and other aggravating and scary
things.

Eventually, I decided to look into having a pallidotomy (at that
time brain stim sturgery had just started being tested and was not
available because the FDA hadn't yet approved for the general PD
community)

I had the a unilateral pallidotmy (one side only and performed on
the left side of my body to alleviate symptoms on the right side
of my body.) on Oct. 24, 1994,  and 55 minutes after the surgery
began, I  walked, DANCED out of the operating room. ate a big
dinner and was back at work the following day.  I haven't had
another symptom on the  right side since!

I do have an occassional external tremor - a "resting tremor" - on
th left side now , usually once or twice a day and on some days
there are NO tremors at all.

There are internal symptoms - especially my whispy voice that no
one can hear! <GROAN> and an inalblity to tolerate the triple
diget heat we're having daily in hotter-then-hot  L.A.area  keeps
me indoors till early evening almost every day.

But I'm still ME... errrr... so far.

Hang in there, m'friend...

Barb Mallut
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-----Original Message-----
From: Dave Bergford <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Friday, September 08, 2000 7:35 PM
Subject: Re: Internal Tremor


Thanks to Jim for sending the research paper.  I am among those
who have internal tremor.  So far, it  happens 1 - 3 times a day,
usually for a very short duration (a few minutes).  Does anyone
know if this symptom gets worse over time like many other PD
symptoms?

Dave Bergford
59/58/55?
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