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Panel Urges Monitoring of Chronic Diseases

The Pew Environmental Health Commission and 13 top public health groups
have proposed that the United States establish a system to count and
monitor chronic diseases like birth defects, asthma and Alzheimer's.

A report from the health commission, based at the Johns Hopkins School of
Public Health, said that while scientists had managed to map the human
genome and could track infectious diseases with some speed and accuracy,
they still lacked basic information about chronic diseases, like how often
they occur, whom they afflict, where they frequently occur and the
environmental factors associated with them.

Lowell Weicker Jr., the commission chairman and the former governor of
Connecticut, said, "We responded quickly to the threat of West Nile virus,
tracking and monitoring every report of infected birds and people, but 20
years into the asthma epidemic, this country is still unable to track where
and when attacks occur and what environmental links may trigger them."

The report, endorsed by several public health groups, including the
American Cancer Society, the American Lung Association and the American
Public Health Association, noted that a survey conducted for the commission
showed that Americans believe, erroneously, that chronic diseases are being
monitored.

The misperception comes from the small surveys done on different diseases
that often suggest, for example, that a disease's occurrence is rising.
But, said Dr. Thomas Burke, leader of the study that produced the report,
surveys cannot give the vital information needed to help solve the mystery
of how diseases move and what may be causing them.

Among the diseases and disorders that are not counted and tracked, but
should be, the report said, are asthma, emphysema, birth defects,
Alzheimer's, multiple sclerosis, cerebral palsy, autism, mental
retardation, and a variety of cancers, especially childhood cancers.

In addition, the report said, toxic agents that are not monitored, but
which are suspected of causing disease, include pollutants like PCB's and
dioxin, dangerous metals like mercury and lead, and pesticides. The
Environmental Protection Agency sets limits on how much of some of these
substances can be put into the environment, but it does not track them and
try to link their effects to human diseases.

An example of the failure to monitor chronic diseases and possible
environmental causes was the case of Libby, Mont., the report said. In that
town of 2,700, an epidemic of respiratory diseases, including asbestosis,
unusual cancers and emphysema, has been unofficially noted for decades.
Only this year did a federal investigation find that a vermiculite mine not
far away had been releasing tons of tremolite for 50 years. Tremolite is a
natural but rare and highly toxic form of asbestos. Investigators estimate
that 200 residents have died from diseases associated with the substance,
and many more are ill.

Active tracking of respiratory disease "might have picked this up much
sooner, and started preventive activities 10 to 20 years ago," said Dr.
Henry Falk, administrator of the federal Agency for Toxic Substances and
Disease Registry.


By PHILIP J. HILTS
Copyright 2000 The New York Times Company
http://www.nytimes.com/2000/09/12/science/12SHEL.html

janet paterson
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