Hi---
Sounds like you did what you had to do---
> Last Saturday in the wee hours of the morning, I had to wake my husband who
>is the PWP. My heart was beating out of rhythm and racing at 180 beats per
>minute. This has happened before. I called 911 and got Gordie out of bed to
>unlock doors and turn on lights.
> The Aid Car medics decided that I needed to go to the ER. My husband did
>not want to go along as he would shake worse at the hospital. I am OK with
>going by myself. So I leave him home sitting at the table shaking. The care
>taker part of me is really broken up leaving him to shake alone. We do have
>neighbors, friends, and relatives he can call. He chooses not to call at
>2:00 AM.
I understand that he was better off at home, and you were OK alone at the ER.
I know the feeling of needing to be there, and unable to be. I also have
a PWP who prefers to have me as the CG, but he has learned to accept one or
2 others. What helped him accept this was
his understanding that the substitute (paid) CG was MY SECURITY BLANKET so
I'd not fret about him when I had to be away. I wonder if pointing this
out to your husband might make it easier for him to accept someone else in
an emergency? Would he understand that it was not helping you with YOUR
problem to add the worry about him ?
SNIPPED
> I cannot help my medical emergencies, I feel awful leaving him, although
>he doesn't seem to mind.
Of course you can't help it if you are sick, and I suspect he wants to take
the best care of you---that may include sparing you the extra worry about
him in such a case.
>I don't really know how it feels to a PWP to shake uncontrolled for at least
>an hour. He says he is OK and does not need someone with him. He really is
>only comfortable with me seeing him at his bad times. Am I making too much
>of this happening? I just do not know how to feel.
Just DON'T feel guilty ! It's the reality of the situation, not your fault.
Does being out of
>control make his Parkinson's progress faster or is it just uncomfortable?
My guess--any stress makes symptoms worse, temporarily, but unless it is
major and prolonged the PWP will recover from any brief setbacks.
I
>am 58 and he is 63. He was diagnosed in 1996 and started medication in 1997.
> He is currently on Sinemet, Mirapex, and Selegeline.
> I went to the ER in March in the Aid Car and this happened then too. I
>wanted to call my niece to come be with him, but he said he didn't want
>anyone.
This is something you need to agree on before it happens again, if it's
really important to you.
.
>I have an appointment with my cardiologist next week, so maybe more can be
>done with my heart arrhythmia.
I hope so, for both your sakes, so please keep us posted on what you learn.
And take care of YOU , too.
> Jeannie Leroux
Camilla Flintermann, CG for Peter 82/70/55
Oxford, Ohio
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