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Marjorie Moorefield and other PIEN members: I am forwarding a copy of the e-mail I've sent to all those senators Marjorie listed addresses of on the senate hearing committee for stem cell research. I also will forward my post along with personalized comments to my two state senators and my state representative who will eventually be asked to vote and lobby for this type of research funding. Feel free to use this post to model your own post to the senators, personalizing with your own story and to your own senators and reps. Your sen/rep is elected to represent YOU and needs to know what YOU NEED. Tell them. Jeanette Fuhr 49/47/44? ---------- From: Leo Fuhr <[log in to unmask]> To: [log in to unmask]; [log in to unmask]; [log in to unmask]; [log in to unmask]; [log in to unmask]; [log in to unmask]; [log in to unmask]; [log in to unmask]; [log in to unmask]; [log in to unmask]; [log in to unmask]; [log in to unmask]; [log in to unmask]; [log in to unmask] Cc: [log in to unmask] Subject: MJFox testimony on stem cell research to senate hearing-216 Date: Wednesday, September 13, 2000 2:03 PM Dear Senators and Members of the Subcommitte on Labor, Health & Human Services, Education on stem cell research appropriations: I am unable to attend on Thursday, 9/24/00, the hearing when Michael J. Fox is scheduled to speak to you on the reasons he and I want you to understand why stem cell research is so important to us and to the thousands of persons with Parkinson's(pwp) in the USA. Many pwp would like to attend the hearing and speak loudly, clearly and with emotion as to our need for this research to be funded and to search for the cure for this incurable disease we live with daily. Not all of us are able to speak as eloquently and as forcibly as Michael. Some of us tremble, drool, whisper and with our faces looking frozen or masklike due to the Parkinson's symptoms you might think we didn't care where you spend research funds. In truth, we care passionately and we would shout and pound the podium, if we just had the strength to do so. I, myself, a teacher of Public Speaking, who has been diagnosed with Parkinson's since November 1997, find that I am not always able to speak as long, or as forcibly at the lecturn as I once could. Even the challenge of standing in front of a class of students for the entire 85 min., twice weekly class isn't always met. I must have a desk to lean on or a chair/stool to sit on when my energy level drops. I'm 49 years young, still in the early stages of Parkinson's, with the promise of continuing decline in the future, especially if that future doesn't include stem cell research. I feel strongly that not only Parkinson's but other neurological disorders like Alzheimer's, Multiple Sclerosis, Lou Gehrig's and spinal cord injuries and diabetes may benefit from stem cell research. When Michael Fox speaks to you on Thursday, listen carefully and note that he speaks for all of the chronically ill constituents, many who are from your state. Sincerely, Jeanette R. Fuhr 1802 Crestview Terrace Trenton, MO 64683 660/359-3100 e-mail <[log in to unmask]>