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hi edith.

i am so sorry, but honestly it is ok.  I belong to the egroup shy
drager/MSA
We would love to have u there. The group is very nice and small.  WHat
are ur symptoms that point ur diag to MSA or atypical PD?? Have u ever
heard of diffused lewy body disease?? It is not Alzheimer's.

nancy:)

"Edith S. Love" wrote:
>
> Hi, Nancy,
> For now I'm in the category of Parkinson Plus Disease/Syndrome. Atypical PD
> would be another term though it hasn't been used much with me.  I have some
> of the symptoms of PD; meds don't work very well, and I have been informed
> that my brain stem is not the brain stem of a PDer.  To date Shy Drager has
> been scratched. As for the others- PSP, CBGD, MSA's-OPCA, SND-I don't fit
> any of the profiles at this time.  Alzheimer's has also been scratched.
>
> I hope this clarifies some of/any of your queries.  I, too, am in the
> dark-working my way toward the light.
>
> E
> May we all walk in the headdress of the sun
>
>  10:50 PM 9/16/2000 -0400, you wrote:
> >hi edith.
> >can u explain what u mean by PD+ ??Parkinsons disease plus, atypical PD,
> >multiple system atrophy?? shy drager? or SND? or opca?
> >
> >thanks:)
> >nancy
> >
> >